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Repairing the long-term damage from Accutane

 
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(@maynerd)

Posted : 07/30/2012 12:16 pm

Hellow,

 

1.) Oxyal really works! Less floaters and smaller floaters immediately, relief for days. I've only needed to use it maybe once a day, I skipped a day too, bottle says you can use 3 times a day as needed but I used less and have experienced good effects. Dry eye limited, if not cured by oxyal. These drops worked because they have hyaluronic acid in them whereas the ones the eye doctor gave me do not. Sad day when you are smarter than the "doctors".

 

2.) Congrats Indigo on getting into therapy! I took therapy for just under a year without any major problems to speak of and am so happy I did.

 

3.) Indigo mentioned Baxil. I felt no help from baxil. Interesting how HA supplements are so hit and miss. I am starting to believe that the effectiveness of HA is very limited unless you take glucosamine/msm/chondroitin with it in order to rebuild the chondrocytes damaged by accutane. From what I can conjecture, chondrocytes are necessary for the production AND synthesis of HA.

 

Goodbye!

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MemberMember
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(@indigorush)

Posted : 07/30/2012 12:34 pm

Hi Maynerd.

That's good to hear.

I'll have a look into the drops.

The Doctor's Best one's I have on order include chondroitin, and I have some MSM powder at home still.

I'll see how I get on. I'm taking Collagen powder at the moment... Kinda hoping it'll smooth out my skin a bit.

Good old vanity, haha

Anyway, I was on iHerb just now and I came across this product.

[Edited link out]

Look at the top review!!

[Edited link out]

Are these the same drops you have in the UK?

They're not a bad price :)

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(@max-2)

Posted : 07/30/2012 3:35 pm

Hi oli girl, I am glad you are still here helping out.

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(@josephbuchignani)

Posted : 07/30/2012 8:45 pm

Yo I ran out of TUDCA and stopped being able to digest pills and generally felt a significant drop. This confirms my theory about liver damage and no bile production and fat malabsorption.

 

When I was on the meds I had a good baseline diet experience but couldn't expand to a larger diet. So I'm gonna go for Dr Snow and THC oil next. And I'll use TUDCA in the interim but that may not be a long term solution. Don't know much about reversing liver damage like this.

 

Specifically it was the combo of yoghurt plus TUDCA that let me digest pills. EIther on it's own doesn't work.

 

Also I'll be getting some kefir grains and trying those out shortly.

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(@oli-girl)

Posted : 07/30/2012 9:44 pm

I appreciate your help Indigo. But if only my problems I think you were referring too (social anxiety/phobia) were it. Have I ever told you that eyes are so light sensitive that I print out messages from here instead of reading them on the screen? That I can no longer play on the Xbox or anything because it hurts my eyes too much, and gives me headaches now (this has been going on for 7 years). If I watch TV, it has to be sparingly (mainly listening to it). I mentioned not long ago that I can't even breakdown a (probiotic) capsule without my digestion going haywire now, so I can't even take everything to try and make myself better. The list is endless. So no, I don't have control, as these things aren't reversible (and always getting worse).

 

 

Jsmil,

 

When was the last time you had any testing or blood work done? I forgot were any abnormal? Where do you live? Send me a pm if you want!

 

Hi oli girl, I am glad you are still here helping out.

 

 

Max- how are you? I am in this for life dude I am sure you heard about the type 1 dx recently.... I swear I am a female version of The Insider.....

 

Hellow,

 

1.) Oxyal really works! Less floaters and smaller floaters immediately, relief for days. I've only needed to use it maybe once a day, I skipped a day too, bottle says you can use 3 times a day as needed but I used less and have experienced good effects. Dry eye limited, if not cured by oxyal. These drops worked because they have hyaluronic acid in them whereas the ones the eye doctor gave me do not. Sad day when you are smarter than the "doctors".

 

2.) Congrats Indigo on getting into therapy! I took therapy for just under a year without any major problems to speak of and am so happy I did.

 

3.) Indigo mentioned Baxil. I felt no help from baxil. Interesting how HA supplements are so hit and miss. I am starting to believe that the effectiveness of HA is very limited unless you take glucosamine/msm/chondroitin with it in order to rebuild the chondrocytes damaged by accutane. From what I can conjecture, chondrocytes are necessary for the production AND synthesis of HA.

 

Goodbye!

 

 

Did you order the Oxyal or get it from a store?

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MemberMember
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(@indigorush)

Posted : 07/31/2012 1:58 am

Someone on YouTube mentioned this to me:

[Edited link out]

Wasn't necessarily that brand but he said it has really helped with his depression, despite obviously not repairing Accutane side effects

One of the reviews on the site says:

"

For anyone with Fibromyalgia and/or chronic pain-- SAM-e repairs the neurotransmitters "worn out" by pain and restores energy and memory! My NMD supports and promotes this product wholeheartedly!"

It sounds like it's worth trying.

By the way, Maynerd, I ordered the eye drops and should get soonish. Hopefully I'll get good results like you did.

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(@dthtodrmtlgsts)

Posted : 07/31/2012 7:07 am

On 7/25/2012 at 9:56 PM, oli girl said:

I just read through your side effects and most of thoose are related to Hyperthyroid/ Grave's Disease! Need to find a good doc fast my friend...Do you have a lump in your throat is it visibly swollen? Goiter?

As for the Negative thread it is in the Accutane posts up top in the pinned thread area! I'll post a link if you can't find it.

I will find it, saving it for a bad day, no reason to ruin an alright day going through it again:)

On 7/26/2012 at 5:43 AM, Mahweeoh said:

Please note something about parathyroid disease. If you have an elevated, or even mildly elevated calcium and low vitamin D, DO NOT TAKE VITAMIN D. Why? Because it will drive your calcium up higher, making you feel more like shit. It's just basic science. Some people have had strokes from this because their calcium was too high. It will not fix the underlying problem, which is usually a parathyroid tumor or parathyroid enlargement.

So you're going to have to investigate this extremely. If your calcium is 10.3-10.4 and HIGHER than that, you most likely have a parathyroid problem. It doesn't not have to be higher than 10.3, and your PTH can oftentimes be NORMAL. So avoid doctors who say otherwise, because it isn't reality. Other conditions are MUCH more rare than parathyroid disease, including sarcoidosis. Secondary hyperparathyroidism is only caused by kidney dialysis patients only.

So it sounds like the symptoms you all share, and elevated calcium, you'd have what's called primary hyperparathyroidism. Also, scans will never see the tumor or enlargement because it is all going on BEHIND the lobe of the thyroid. Unless your tumor was humongous, which is likely isn't, it won't show up like mine didn't or my mother's. But it's still doing damage to your body no matter how large it is.

I have no swelling of the neck, and no goiter. And as i interpret my thyroid results they dont look too bad i think. What is your s-kalsium ranges? i think they use different meassuring methods. My result was: s-kalsium = 84. range=60-105. if my result were to be 10.4 or something like that i would be long below even the range, so the docs must be using different ranges? My d vitamin was also high:S, but the D vit test was done when i had been supplementing heavyly a couple a days ago.

Will redo those tests after a longer supplement pause i am having now after seeing my medium-high d3 levels. Wondering if my Dvit is staying in my blood not going into the tissue because of some other deficiancy.

The accuracy of bloodtests may vary, different methods etc. for eksample s-b12 should not be measured alone but with folate, mma, homocysteine to give a more accurate estimation of both blood and tissue levels. There are dusins of serious medical webpages stating this, jet my stupid docs only do it the simple halfassed way, will try to teach my doc this next time. for example: [Edited link out] (that particular source speek of youngsters, but applyes to everyone).

And i will secretly bring a voice recorder in case the good doc gives insanely stupid advise as for eksample to eat lots of broccoli to raise my b12 levels. It is unbelievable, folate as broccoli contains loads of would actually mask a b12 deficiancy.

On 7/28/2012 at 3:52 PM, IndigoRush said:

Update from me:

1 - I had another blood test, following my last, for my Thyroid. I got a call from the Doc's and they just said my Thyroid is now back in range. Doesn't really make sense, because I haven't done anything for it to get back in range. Not really... I took some supplements called 'Thyroid energy' and they didn't make any difference to the way I feel. Personally, I have very little faith in the accuracy of blood tests. Without sounding paranoid, I think it's very likely my thyroid is still buggered.

2 - I am going to begin counselling. Of course, I have doubts about how effective this will be. It's not like I'm depressed because of something that happened just in the past, like rape or abuse. It's something that's been going on constantly for the last 6+ years. However, the lady I met with seemed really great. I've seen a therapist before and, frankly, she was crap. She didn't care about me and it was just a job to her. This lady seemed passionate about what she did and we seem to click well. My appointments won't necessarily be with her, but the counselling is free. I'm actually on 2 waiting lists now. Typically, you have to wait for about 8-10 weeks for an appointment. I'll have to deal with time-off when it comes to it.

3 - A question for everyone. Please answer. Who here suffers from social anxiety/social phobia? For me, this is something that I feel is wrecking my life. It's making me feel like I can't work, and it's making my future as a Musician seem impossible. Rather than excitement, I have a lot of fear about September (when I go to a Music College). I'm trying to figure out if this was caused by Accutane, physically... Like the depression while on the drug. I first noticed that I was detaching myself from others while on the drug, but when I look back at my past, I see that I was always quite shy, self-conscious and wanting other people's approval. I think low self-esteem is at the root of social anxiety and, of course, sexual dysfunction, dry-eye syndrome, hair-loss and whatever else have contributed to my low self-esteem and feelings of inadequacy.

4 - Regarding the social anxiety, I am reading books on it. I already mentioned 'A life less anxious', which is a very good book. I'm currently reading 'Fear in no longer my reality' and after that, I have 'Diagonally parked in a parallel universe'. I can really relate to the one I'm reading at the moment. I was afraid that the sufferer would just need to realise his thoughts were irrational. But, like me, he knew that he shouldn't be afraid of people. He says 'If I can get free of social anxiety, so can you' and this gives me hope. The counselling could help with this too.

5 - I'm going to write another book. I have a name for it, which I think is good. Thing is, I'm going to split the book into two parts. The first part is about my social anxiety and depression - like a memoir (I'm not going to go on and on about Accutane in it, but it'll get a few mentions). The second part is how I overcame those things. Of course, I can't write that part yet, though I do have some good ideas after reading dozens of self-help books and trying stuff out myself. My plan is, I will face this thing head on right now. I just need to know what direction to walk in. I want to make big progress before my college course, and I'm hoping that doing what I love will lead to me feeling happier. My other fear at the moment is my concentration/memory. I'm like a zombie half of the time at work. My boss will say 'Remember... I told you this yesterday' and I don't remember. To be fair, there is quite a lot to remember but my brain doesn't seem to retain information too well anymore. I often feel too tired to remember song lyrics, and I really don't want to watch my potential get crushed my this.

6 - My supplements came yesterday. The probiotics, colostrum and bicarbonate of soda that I ordered from iHerb. I need to pick them up and pay a fee of £18.10.. Bloody joke! My parcels seem to get caught half of the time by customs. Another is due for delivery in the next two weeks.. Hopefully that'll avoid it. Supplements really aren't cheap though.. I've tried enough to know that these may not work at all, like those of the past. In that case, I will ditch everything and just see if my body manages by itself. I still think Vitamin C is good, so will take this. But vitamin D and everything else haven't helped so I think they're probably useless. I'm not even sure where they get the ingredients for Vitamins. Like, where does vitamin D come from? Or is it just made in a lab? I wonder whether supplements are more of a hindrance than a help.

7 - Once again, I think that C.F.S book I mentioned is worth reading for us with energy issues. It makes you realise that things could be worse, but also is very relatable to our problems. Most of the stories are very well written, though a couple are a bit 'out there'. Something that came up a few times was 'Mickel Therapy'. Some people with C.F.S/M.E claim that after a session or two of Mickel therapy, they were healed. I wasn't sure about it and did a bit of research. For something that was invented in 2004, there is surprisingly very little detail about it on google. I spoke to a lady who gives out this therapy where I live. She seemed genuine and said that it had worked for her after suffering from M.E for 7 years. I spoke to her on the phone for 30 minutes. Afterwards is when I had doubts. £80 for an hour seemed a lot of money. Even on the Mickel therapy site, there is no detail of what is involved. It's possible your entirely naked for all I know. The guy (Dr. Mickel) seems, again, very genuine and funny too. You can see him on YouTube. But, I've learned in the past that some people (and I don't just mean Roche) will screw over innocent people who will do anything to get better. Might not be the case, but I found a forum related to this therapy and after spending hundreds of pounds, many people still didn't know what the therapy was. By the sounds of it, it's just teaching you to follow your dreams and express yourself. How this is supposed to heal years of chronic illness, I have no idea. I'm not going to waste my money on something that is potentially a scam though. I was interested in it because it mentioned depression and anxiety on the site. There is a book written by the author and, on Amazon, all of the 5 star reviews are written by people who have never reviewed anything else. This always makes me suspicious.. Much like with this book: [Edited link out]

8 - I think I read from you, JMSIL, on another forum somewhere - That Cayenne didn't go down well? Someone in the C.F.S book mentioned this helped to repair their adrenals and thyroid. They said you had to be careful with how you do it though. Apparently, they read about it on Curezone. I'd be interested in trying it.

9 - Blood sugar balance is something I see as important in recovery. I will try to learn a bit more about this. PH Balance is another thing.

That's pretty much all I have to say for now.

A key, for us, is to relax more. Not in the sense that we should stop worrying (because that's easier said than done, although remembering we can't change the past is important) but we shouldn't push ourselves too much.

A brisk walk or some light sport is good exercise, but we should rest more than we do.

Late nights aren't for me at the moment. I pay for it the next day.

Stef

I used to be mildly shy as a kid, but not later years, and i think that is very normal. My life was actually perfect the years before accutane, young, dreamjob, car, apartment, girl, healthy and becoming quite athletic. Actually hesitant to take an airflight incase it would fall down and destroy my perfect life, i was so happy where i was that flying did not seem like worth the risk for me. And then i went to the doc and took a "harmless" acne drug for a month..

Suddenly crowds of people started to give me weird physical reactions, but this did not limit itself to people, driving a car fast, fast moving things on tv or in computer games, multitasking in general, typing fast on the keyboard. Everything that required an ounce of concentration made me dizzy and caused my heart to race. It was not limited to social things and i know it is something nevrological in my case. The Docs themselves added the psychological part where everything felt hopeless and them stating it was all in my head in addition to giving me valium(hell). Fortunately i went to a foreign hospital where they found obvious physical damage and documented this. So for a period i had both physical and psychological problems, but the phsych phase was caused by asshole doctors removing any hope, telling me i had anxiety actually made me have it. This is all and completely gone and i am left with weird nevrological problems and a ugly damaged body, i dont care that much about looks , i am more concerned about functionality.

Hah, and flying is not problem anymore, does not feel like i have that mutch too loose anymore :)

Was in london this weekend. You do not have methylcobalamin AT ALL in england, according to boots pharmacy. Sweeden next.

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(@jmsil)

Posted : 07/31/2012 1:02 pm

I also don't think raw cannabis, with the leaves freshly juiced, is the worst idea in the world. Desperate times call for desperate measures, and boy, things are getting desperate! A drop of raw Cannabis juice could be quite tasty. It's hard to get fully behind it though accutaneispoison, just because of the availability (to us on the straight and narrow [Edited image out]), but obviously keep your updates coming, because it will be something not many sufferers would of done.

Special glasses may be of help Indigo. There are ones that only let a certain amount of light into them which I believe may be prescribed by a doctor. But admitting to having to wear those throws a bit more of my dignity out the window. For now I'm doing without.

I'm still enjoying your videos by the way Indigo. Although I wasn't too sure about the 3 Inch Penis...

I'm from the UK Oli Girl. I last had blood work done 3 months ago (April). My liver is abnormal (out of range) and has been for the last 3 years. My white blood count keeps dipping in and out of range (at the lower end) the last 3 years. Unfortunately a few weeks ago I just got so fed up with all this that I stupidly put all the paper work of the last 3 years through the shredder, So I'm unable to give exact numbers and I'd have to get another printout. I saw a liver specialist 6 years ago (one and a half years after stopping the drug) and my liver was fine back then. My beta carotene was high but Vitamin A was normal. For it to of gone out of range, many years after stopping Accutane, there has to be something else wrong, seeing as I live healthily and don't drink or anything to harm the liver.

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(@indigorush)

Posted : 07/31/2012 4:19 pm

I also don't think raw cannabis, with the leaves freshly juiced, is the worst idea in the world. Desperate times call for desperate measures, and boy, things are getting desperate! A drop of raw Cannabis juice could be quite tasty. It's hard to get fully behind it though accutaneispoison, just because of the availability (to us on the straight and narrow wink.png), but obviously keep your updates coming, because it will be something not many sufferers would of done.

 

Special glasses may be of help Indigo. There are ones that only let a certain amount of light into them which I believe may be prescribed by a doctor. But admitting to having to wear those throws a bit more of my dignity out the window. For now I'm doing without.

 

I'm still enjoying your videos by the way Indigo. Although I wasn't too sure about the 3 Inch Penis...

 

I'm from the UK Oli Girl. I last had blood work done 3 months ago (April). My liver is abnormal (out of range) and has been for the last 3 years. My white blood count keeps dipping in and out of range (at the lower end) the last 3 years. Unfortunately a few weeks ago I just got so fed up with all this that I stupidly put all the paper work of the last 3 years through the shredder, So I'm unable to give exact numbers and I'd have to get another printout. I saw a liver specialist 6 years ago (one and a half years after stopping the drug) and my liver was fine back then. My beta carotene was high but Vitamin A was normal. For it to of gone out of range, many years after stopping Accutane, there has to be something else wrong, seeing as I live healthily and don't drink or anything to harm the liver.

 

 

C'mon dude! You love the 3 inch penis!

Did you think the video was going to be able my shrivilled nob? haha

Luckily I won't go that extent, it terms of losing all of my dignity.

 

Seriously though... Fuck dignity. Hiding in your room isn't making you feel good, so check out the glasses.

Maybe pick out some cool one's and make it your 'thing'.

It doesn't have to be weird at all.

If it helps, you should do it.

 

I'm really hoping for good things with those eye drops I ordered.

Hardly got my hopes up, but reading that old e-book about how Accutane is a pile of shite (Bill Sardi), I really think Hyaluronic Acid is a thing in this.

Not sure about supplements working, but eye drops should be a good test.

It's tricky when one person says something works and another says it does nothing.

I'll just have to see if Baxyl works for me.

 

SAM-e will be my next thing to try, as I mentioned, and I may try St. John's Wort too.

I did have it in tea form, but it was a chore having to strain it each time, because they didn't come in bags.

 

Going through a really tough time to be honest.

As some of you know, from my way-too-open YouTube videos, things with my girlfriend have been up and down.

I know she cares about me, but I also know she feels like I'm no good for her and that she should leave me and move on.

It hurts because she means a lot too me, and it also confirms thoughts I have about myself like 'Nobody will want me now. I'm nothing. I have nothing to offer. I'm just depressed and Accutane has ruined my life'.

 

I hate feeling like that.

I feel like I've lost so much already.

A break-up feels even more difficult than it should, and it's been two years.

I'd hate to see her move on and happy with someone else.

I'd think 'That should be me' and I imagine myself sinking further into depression and being forgot about.

Not being missed.

It's horrible.

Words can't convey feelings at times.

This is one of those times.

My self-worth is pretty much non existent most of the time.

I have to remind myself it's not my fault I'm like this. I'm not a bad person. I'm just facing a bitch of an obstacle.

 

I hope the social anxiety video I uploaded yesterday is of help to you, James.

 

All this talk about blood test results.

We'll be in lab coats before all is said and done!

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(@dthtodrmtlgsts)

Posted : 08/01/2012 4:09 am

IndigoRush, i am really looking forward to seieng that documetary. Could you give some more information on it? Which channel was it again?

I have a really hard time making the norwegian doctors help me, showing them that the subject will also be talked about on tv might make them take it alittle more seriously.

But they wont take me seriously if i cant give em more information on it :P And i can actually partially understand some of them, my medical story told in 15 mins(the length of an doctors apointment) make me sound crazy and i need to back it up.

Loading up with science documentation for my next doc visit to make em do their job.

Isotretionin raises homocysteine. Homocysteine can remain high if low b12. High homocysteine can be very dangerous and cause various degenerative diseases. I think high homocysteine could potentially even lower b12 more over time, especially in the body mass, brain, spinal fluid.The bloodlevels will always be kept as high as possible by the body and could give missleading results. s-b12 will not reveal correct level. Has anyone here researched this path before?? Trying to find documentation for these things, and i find some good sources.

http://www.ncbi.nlm.nih.gov/pubmed/18608712

http://www.ncbi.nlm.nih.gov/pubmed/18181979

[Edited link out]

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(@indigorush)

Posted : 08/02/2012 12:09 pm

Oxyal doesn't seem to be any good for me, I'm disappointed to say.

Floaters are still there and my eyes have been more dry with them.

It just made my vision blurry.

I'll try them again, but I don't have a good feeling about it.

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(@haydos)

Posted : 08/02/2012 8:53 pm

Hi Guys,

I'm the 6 and a half year persistent headache sufferer who had been taking Roaccutane for 2 weeks. All I'm going to say for now is to watch this guy. He may have the answers for all of us.

[Edited link out]

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(@indigorush)

Posted : 08/03/2012 1:48 am

Think this is the first time I've seen that guy.

What a legend.

I wondered why you were linking at first - Was it just to help us who still get acne? - But yeah, he mentions Accutane.

A lot of people here have tried very clean diets for a long time.

I think stress is still a big factor that stands in our way.

Plus, it's hard to say how long it'd take to get Accutane out of our body (if that's possible), especially as some people (like yourself) only took it for a very short time, and still have side effects 6 years later.

I've had the side effects for 6 and a half years too.

I used to get headaches a lot, but not so much now.

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(@dthtodrmtlgsts)

Posted : 08/03/2012 3:14 am

On 8/3/2012 at 9:53 AM, Haydos said:

Hi Guys,

I'm the 6 and a half year persistent headache sufferer who had been taking Roaccutane for 2 weeks. All I'm going to say for now is to watch this guy. He may have the answers for all of us.

[Edited link out]

For the headache: do you have HBOT in your country? I tried it for a month, 6 months after accutane. My headaches improved and stayed that way, if i had combined it with propper nutrition i think i would have had an even better outcome, and absolutely not touching alcohol which i stupidly did. Also your homocysteine, mma, and s-b12 would be interesting to know. Make absolutely sure your body has plenty of all the nutrients it needs before you try it, if you decide to do.. You can get relatively cheap treatment in asia if your country doesnt have it, but its scary not knowing what the doc is saying:p

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(@user116745)

Posted : 08/04/2012 2:36 am

Hey everyone. Coming back to see what is up. Looks like some people are making good progress while others are still struggling.

For those struggling, I have some health tips that have really helped me in my recovery.

Cutting white stuff out of my diet. Starches, processed sugar, white flour.

I eat colorful things because they make me feel colorful (good)! Everyday I usually eat carrots, apples, peanuts, almonds, bananas, pears, tomatoes, mushrooms. And sometimes some meat like turkey or chicken.

I stay positive! You have to practice everyday keeping your thoughts positive. Over time it is habit. Goals are great to keep up positiveness too. It is so awesome when I accomplish one.

Don't be afraid of the heat and of sunlight! If you work with it, it heals. It is why dark people have such strong, flexible skin! And don't be afraid of sweating.

Move your body! Have fun with it. Exercising is supposed to be fun. And it is! If you make it.

It seems like most you know the basics of being of healthy. So follow through with them everyday and over time you body will become healthier. It can take a few years though. But this is okay!

Your reality is what you make it!!!

[Edited image out]

I want to create a website dedicated to helping users of Accutane recover. I am not sure how to go about the design and meta of it right now. I have already purchased a domain. I was surprised to find out Roche bought the .com variant of the domain I bought. I suspect the bastards are up to something.

Anyway, have a nice day!

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(@hitman87)

Posted : 08/04/2012 4:00 am

I was wondering if any of you after accutane are still struggling with acne itself? Or are you more focussed on the side-effect damage accutane has caused at the moment?

 

I'm still struggling with acne that gets back very fast once I stop accutane. Had a breakthrough with probiotics though. It seems very effective in clearing up my scalp acne as well as helping my digestive system thats all messed up of accutane.

 

@Teh Pwn: I'm very curious about your website plans. I think a website is needed for the many people that suffer from accutane and don't have a clue on how to improve things. I sure got a lot of helpfull information from this topic, but I got lucky in finding it. ;)

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(@indigorush)

Posted : 08/04/2012 5:43 am

On 8/4/2012 at 3:36 PM, Teh Pwn said:

Hey everyone. Coming back to see what is up. Looks like some people are making good progress while others are still struggling.

For those struggling, I have some health tips that have really helped me in my recovery.

Cutting white stuff out of my diet. Starches, processed sugar, white flour.

I eat colorful things because they make me feel colorful (good)! Everyday I usually eat carrots, apples, peanuts, almonds, bananas, pears, tomatoes, mushrooms. And sometimes some meat like turkey or chicken.

I stay positive! You have to practice everyday keeping your thoughts positive. Over time it is habit. Goals are great to keep up positiveness too. It is so awesome when I accomplish one.

Don't be afraid of the heat and of sunlight! If you work with it, it heals. It is why dark people have such strong, flexible skin! And don't be afraid of sweating.

Move your body! Have fun with it. Exercising is supposed to be fun. And it is! If you make it.

It seems like most you know the basics of being of healthy. So follow through with them everyday and over time you body will become healthier. It can take a few years though. But this is okay!

Your reality is what you make it!!!

[Edited image out[

I want to create a website dedicated to helping users of Accutane recover. I am not sure how to go about the design and meta of it right now. I have already purchased a domain. I was surprised to find out Roche bought the .com variant of the domain I bought. I suspect the bastards are up to something.

Anyway, have a nice day!

What a pleasure it is to have you back, Sir.

What on earth have you been up to?

Obviously not shaving :P

That beard is darn impressive!

I remember you saying you would get patchy beard growth.

Is that no longer the case?

I would love to grow a mean beard like that, but it won't happen!

After a days, I appear to break out in a rash, and it gets itchy and looks crap!

Last we heard from you, you were going to become caveman-eske and live by the equator.

What HAVE you been up to?

Very curious to know.

Are you still dealing with side effects, and if so - remind me which?

You appear to be feeling much better anyway.

I'm totally with you on point three. Pity the Sun is ever lacking over in England.

Our Summer's never fail to disappoint.

Give us more details please :)

And great idea with the site.

Funny/Odd that Roche have used the .com variant.

I think the site should be filled with hopeful stories of recovery, but how on earth you'll find those, I don't know.

Feel free to put my YouTube videos in.

Or make your own!

But yeah videos, a forum and hope would be great.

Once again, it's very good to hear from you (and your hairy face)

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12
(@user116745)

Posted : 08/04/2012 4:07 pm

Thank you Indigo, I find my beard pretty epic as well. It is not patchy anymore. My hair is much stronger than it was last year.

 

Haha caveman-eske. That's pretty spot on. I said I was going to live in the rainforest. But I have not gone yet. Still want to. But haven't yet.

Instead I moved to Ohio from Colorado at the end of last year. It is much more humid here which is great.

 

I worked for 5 months at a Home Depot doing manual labor outside. It was nice.

I am done with that and now am working from home on my computer.

 

My skin is still yellowish and generally dry.

But it is okay!

Even though my health is not perfect right, when I think positively, it overides everything else.

 

So about finding a recovery story to post on the websites.. Me!! Me!! I can be the first.

When I think about my Accutane experience as a whole, it was definately positive.

I just turned 20 years old but I feel so wise! I have learned so much in the past few years, with Accutane being the catalyst to it all.

 

I would like your videos on the site.

It could be a very helpful and positive and beautiful site.

Will take a while though until I get the free time too. I just wanted to get the domain quick before roche bought it too.

 

For now though. Back to work!

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(@chiron)

Posted : 08/05/2012 10:34 am

Indigo~

 

Have you (or anyone else here) tried iodine? It is essential for balancing hormone levels and has been helping me with my thyroid issues a lot. Also it has been mentioned over and over again as a cure for cysts, fibroids and keloids which is the only type of acne I ever get since taking accutane. I am sleeping far better now than I ever have, and my "puffy" appearance has disappeared completely. I also could swear my hair looks thicker - unconfirmed though. Also, and most importantly though, I feel less anxiety or depression and far more energetic. Look it up.

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148
(@oli-girl)

Posted : 08/05/2012 10:54 pm

On 8/5/2012 at 11:34 PM, CHIRON said:

Indigo~

Have you (or anyone else here) tried iodine? It is essential for balancing hormone levels and has been helping me with my thyroid issues a lot. Also it has been mentioned over and over again as a cure for cysts, fibroids and keloids which is the only type of acne I ever get since taking accutane. I am sleeping far better now than I ever have, and my "puffy" appearance has disappeared completely. I also could swear my hair looks thicker - unconfirmed though. Also, and most importantly though, I feel less anxiety or depression and far more energetic. Look it up.

Iodine is important! I thought I posted links for you guys on restoring your thyroid naturally...that is if it is not autoimmune.....anyways I'll have to relook and repost it.....as there is a whole protocol. - Hope you everyone is doing well and JSMIL I need to pm you as there is someone you could benifit talking he suffered alot too!

Oh Yeah and more will be damaged...As as a new formula by a diffrent company hits the U.S. this fall and Canda it is in review.....Edited image out]

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143
(@indigorush)

Posted : 08/06/2012 2:01 am

I took kelp for a while, which has iodine in, and it didn't help.

I didn't take for very long though because I heard it's bad for autoimmune thyroiditis, and I still don't know if that's what I have, or if mine is secondary to adrenal fatigue.

Like I said though, for some reason my thyroid is now back in range.

Most likely because blood tests are rubbish

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37
(@chiron)

Posted : 08/06/2012 9:40 am

I took kelp for a while, which has iodine in, and it didn't help.

I didn't take for very long though because I heard it's bad for autoimmune thyroiditis, and I still don't know if that's what I have, or if mine is secondary to adrenal fatigue.

Like I said though, for some reason my thyroid is now back in range.

Most likely because blood tests are rubbish

 

I took kelp for a while, which has iodine in, and it didn't help.

I didn't take for very long though because I heard it's bad for autoimmune thyroiditis, and I still don't know if that's what I have, or if mine is secondary to adrenal fatigue.

Like I said though, for some reason my thyroid is now back in range.

Most likely because blood tests are rubbish

 

 

You might want to try it out. I have definitely noticed an increase in phlem and mucous production which is so pleasing to me. Have you noticed that people who've taken Accutane have slightly bulging eyes? Could mean that it's hormonal/thyroid-related. That seems to be helped by iodine treatment...

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143
(@indigorush)

Posted : 08/06/2012 12:29 pm

That's good man. I'm happy for you :)

You deserve some positives after all your years of suffering.

Hyperthyroid, which Oli Girl has, relates to bulging eyes.

Most sufferers, including myself, have Hypothyroid (meaning underactive).

 

But I'll add my kelp back in and see if it helps at all.

I guess that'd be a good enough source of iodine. That's why I bought it in the first place.

I just don't think a deficiency in iodine is causing all of this.

 

Seriously, when we talked about what we'd do with money if we had it... I have so much I want to do!

Here's a few -

 

- Travel the World to meet you guys, while making a YouTube documentary, in order to blow this thing to a brand new proportion and to reveal the secrets of the FDA/Roche/Other cock suckers.

- Privately get tested for hormones. I think hormones are a massive issue. Lack of sex drive and all that... They do my fucking head in.

- Have a holiday in the Sunshine - like Hawaii - for as long I wish to, while eating an entirely natural diet with, perhaps, some organic meat (like Chicken or Turkey)

- Overdose on probiotics and anything else that will help to build the immune system/ gut.

- Find a professional life coach with experience in overcoming depression/anxiety and stuff like that.

 

I dunno. There's loads of stuff I'd like money for.

Another hair analysis would be good - from a different company - as well as a full nutrient/vitamin deficiency check.

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(@thegatekeeper)

Posted : 08/06/2012 2:11 pm

Has anyone faced constant lethargy after taking accutane? Or memory problems?

 

Does anyone know if these will go away? I just feel so bad everyday I just want to die.

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(@user116745)

Posted : 08/06/2012 3:11 pm

On 8/7/2012 at 1:11 AM, TheGateKeeper said:

Has anyone faced constant lethargy after taking accutane? Or memory problems?

Does anyone know if these will go away? I just feel so bad everyday I just want to die.

Yes. Lethargy and memory problems are common with accutane. During my senior year in high school I slept in almost all my classes and my memory will wishy washy.

Just stay positive my man. Eat healthy and do some exercise everyday and these problems will go away.

Don't stress about how long it will take, because great things take time. Rome wasn't built in a day!!

Turn a negative into a positive.

Here is a little quote I love, from a drum and bass tune. It is awesome.

"We may encounter many defeats, but we must not be defeated. That in fact, it may necessary to encounter to defeats. So we can know who the hell we are, what can we overcome, what makes us stumble and fall, and some how miraculously rise, and go on."

[Edited video out]

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