Hi all. 1st time poster. not going to vent too much as its getting late, but I wanted to chime in after seeing some post.

I can relate to many of you on here more then i'd like to. I hate when I start to research post accutane side effects its depressing.

But i got a list, and just to sum things up a normal day for me is when i dont notice them as much. which we all know is fucked up compared to normal people problems. took tane 10 yrs ago?

But just wanted to mention everyone stay strong. on my down days I always think of the good times and know il snap out of it. been reading a little

I like indigo rush posts you seem like a cool guy man. stumbled across some of ur vids. one happy, one sad. all I got to say is your a handsome dude. Your skin looked good, hair was thick.( i wear a hat now most times cause of tane) your thoughts seem well collected. I see post that people just want to end things or give up . now we're all too smart to do that. (id knock on the door of some la rouche execs before id take myself out anyways. lol just kiddin. sort of.

anyways, ah the supplements .everyones tried everything. ive amassed a collection myself. my girlfriend still has no clue. It can be hard to stick to a routine when u dont see quick results. no magic bullets but Whats helped me? a few.

flaxseed oil 3 tbs a day. dont count this one its good for ur overall health anyways.

whey protein 3 scoops a day.

taurine powder. to tolerance. up to 12 grams

zinc n d3. more subtle. and the rest is a crap shoot.

oh btw is there anything to the whole vitamin a deficiency theory? I took 50-75 thousand ius of it for awhile a couple yrs ago for shits n giggles. there were pros and cons i believe but it wasnt all bad. i mean i didnt die or anything. thinkin bout trying it again.

has anyone else tried high doses of vitamin a?

Thats it for now. time for my goodnite cig and bed.

I have a unifying theory I am going to present here tomorrow but it's too late here and sleep is important but I want to give a preview in case my heart or brain stop pumping in my sleep.

Theory is title the tin man inside.

humans are nothing but matter, slime, air, and friction.

accutane induces aptopsis and dryness.

What is an easy target, a fast dividing softy slimy element that is not made of sturdy matter such as bone? Hyaluronic acid. (Hyaluronic acid, Mucous, water, etc) dry and unable to duplicate the same way as before.

HA lubricates joints heart brain skin stomach, everything sticky. PPL have felt good w creatine which retains water... What else does this? Hyaluronic acid. Some men have even noticed less sperm which is a super sticky substance.

While the debate remains as to whether or not Accutane is still in the system, it still remains for even us sufferers that vit a helps create HA, therefore beta catotene creates more HA, therefore some people have felt better off of BC.

All of these things give former users problems in one form or another. Without proper HA organs rub together creating more and more friction, the immune system responds to the constant irritation and boom, auto immunity. Aging is drying is dissapearing.

This is why certain solutions only work temporarily, because if there is sand in your engine, you can put hi grade oil into the engine but eventually even high grade oil is going to burn up. You need lubrication of the insides and perhaps removal of debris . Okra a mucilaginous veggie for the gut, HA for the joints (although I feel like my body doesn't absorb the HA I take very well for some reason, perhaps I need to try rebuilding the Chondrocytes)... loads of coconut oil for brain, etc...

Notice: It is well documented that for acute hypervitaminosis A, the protocol is to take aspirin. Aspirin makes the blood platelets thinner and easier to pass through circulatory system... is a sense creating less wear and tear on a stressed system... I took 325 mgs of aspirin during a panic attack I had last night and felt way better afterwards. Might be good to take baby aspirin or white willow daily and see how we fee. Thats what I'm doing. Last night with my nightly routine I added the aspirin and Glucosamine Chondroitin (good for chondrocytes)... and today no eye dryness, minimal floaters.

Lubrication also probably has something to do with your bodies reception to foods and nutrients... Almost like the fuzzy side of the paddle that catches a tennis ball. We need the body to stick and attach itself to the food/nutrients that we in take.

This theory is based off of personal experience and hearing ppls stories. More solutions to come tomorrow good sleep important to heal body inflammation... Friction causes inflammation is aging. Repair.

I believe hot cold therapy makes sense to get healthy friction restored... or in a sense more movement internally (temperature changes) with less friction (damage)... Working out is also good because it creates movement and friction but not too much bad friction.

I guess what I'm saying is there are good types of friction which are created by healthy things. And bad types such as artificial drying.

ugh been having a horrible night so tired of everything.....5 am now and i still cant sleep. Well those are some very good ideas maynerd i believe you are making important connections. I still need to do what i have to do....hopefully it wont be much longer now before we figure this all out....

 

 

Once i am better i am going to try and help as many people as i can...Stay strong guys i think i've got the solutions in sight....

 

 

The mother of a girl i know, she had MS. Cannabis greatly helped here BUT only when she was using it. It seems like it works just like a drug from a pharmaceutical company, only working when you keep using it. She felt worse when quitting, so had to keep it up, which is a bad circle because it will make you more slugish, Cost alot of money and take your attention away from seeking a cure or healthy lifestyle but only seeking the next dose.

 

 

 

 

ok but there are many factors. Quality, type, and how it's being used. Let me ask how was it being used? I bet it was being smoked, no?

 

 

I mean seriously the fact that us accutane sufferers struggle every day, many of us practically on the verge on suicide from these horrible effects anything that can at least improve the quality of life to a point where its worth living is worth it in my eyes. They consider these effects permanent and i still have yet to see one confirmed solution, if there is any. I hope this is going to be the answer. It's really funny how people get all funny about a natural plant that is a medicine, yet when talking about a freaking horrible pharmaceutical compound that destroys the whole body, well thats fine and dandy, right?......

 

Yes, she smoked it. When she could not get it she felt so bad she "had to" substitute with alcohol, which had no good effects.

If there is a way to use it without all the sideeffects it just might be a wonderdrug.

 

I appreciate you taking the time to answer.

Can I ask what made you read the forum?

Because I gather you didn't take Accutane and that your Hypoparathyroidism is due to genetics?

 

I was reading because I am researching Accutane, saw your posts, and wanted to say something but hesitated at first. Then I thought maybe I should chime in with my theory--you all sound so alike.

 

Now I'm not so sure I want to take it. The derm was giving it to me even though he KNOWS I just got out of parathyroid surgery and have osteopenia. I kind of wanna wait a few months to recover.

 

How exactly were you diagnosed?

For you, was it blood tests?

And then, I suppose they do some x-ray

 

I was diagnosed by going through hell. Doctors are very ignorant about it and think labs have to be a certain way, when in reality it's just not true. For example, both mom and I's calcium was only 10.4 and PTH normal. They consider that "mildly elevated." It's not, because with the disease your calcium fluctuates, and 10.4 is too high for a human being's blood calcium anyway. The young man I talked to had a 10.3...that's extremely suspicious for parathyroid disease. My mother ended up having two large peanut shell sized tumors ( she was misdiagnosed for decades ) and parathyroid glands are only supposed to be the size of a grain of rice. No wonder she felt screwed up. I lost a left gland due to hyperplasia ( extreme enlargement ) which still requires surgery. That's why you should read that site--because that guy is the world's leading expert on parathyroid disease and he operates on the highest number of patients...so he has the most data to present to those endocrinology conferences. However, I did not go to him because despite his good info, he's an ass lol and there's many other good surgeons out there besides him.

 

Edit: Wanted to add regarding x-rays, there are practically no scans that can find the tumors because they are behind the thick structure of the thyroid. There is one being invented by hasn't passed the FDA yet and will take a year. We are behind in parathyroid study. The best scan is the sestamibi scan; but it is very inaccurate, as is ultrasound. We both had negative scans as did countless other patients.

 

I'm temped to take a look at the site, but I'm conscious that I'm being drawn into this again.

I can't tell you how many hours I spent reading about different diseases/ Accutane side-effects..

Certainly didn't make me feel any better.

 

I already know my thyroid and adrenals are screwed.

I'm pretty sure my Liver is, because my body doesn't tolerate alcohol.

Honestly, I'm not sure if there's a single part of my body that's not ... ahem, fucked.

 

Girlie - When did you notice your hair had returned to normal

Well as you probably know, Accutane affects a babies parathyroid gland formation. I'm looking at it in the iPledge packet right now. So is it not unreasonable to assume it can cause enlargement of a normal developed person's parathyroid gland? Plus, it causes low vitamin D, a side effect of parathyroid disease.

 

 

Are you seriously still considering Accutane? Please dont do it. Id rather try amphetamine or something equally stupid, people actually recover from that stuff, it just might do just as much for your acne also, make it worse. Im not trying to be rude. Its just not worth the risk, only maybe if 90% percent of your body is covered with soar bleeding acne and your body is leaking puss everytime anyone touches you and this was causing you to be anemic, i would try it (AFTER TRYING EVERYTHING ELSE).

Seriously drug addicts actually get help also, nobody are denying their side effects. If you take Tane and it destroys your life, you are on your own, one of us, if this drug gets proven to destroy lifes imagine the payouts that would have to be made from the medical society? It looks like a real bad conspiracy theory, but too funny things happen, especially in little norway, tests who gets mysteriously losts, journals not containing anything. Missdiagnosis from hell when compared to the foreign hospital i went to. Docs trying to de-credibilitate you with Valium, SSRIs anxiety and depression diagnosis when you feel this does not fit(I seriously do not believe in those diagnoses, they are bad explenations of neurological problems). If you take the bite they can destroy your credibility, atlesast i feel. I took a second opinion in a foreign hospital instead(thank good this did not hit me before i got a good job), came back with proofs of internal bleeding instead required surgery and slammed xrays and documentation on his desk, made the doc eat his diagnosis. Seriously the lack of help you might experience from your own medical society when you claim they caused it, would amaze you. I see you have allready been through hell with their ignorance, if you try again but this time also try blaming it on their drug, its mildly put; hard......

Im so glad i did not dare continuing past the one month, but the side effects had already hit me hard, and they came fast when they first came. Do not try and think you can stop if it makes you feel bad. It could already be too late.

What should a healthy t3 and t4 level be for a 24 year old? I have had these done, but as the doctors are asses i will have to doublecheck these again, i have my numbers somewhere..

I appreciate you taking the time to answer.

Can I ask what made you read the forum?

Because I gather you didn't take Accutane and that your Hypoparathyroidism is due to genetics?

 

How exactly were you diagnosed?

For you, was it blood tests?

And then, I suppose they do some x-rays?

 

I'm temped to take a look at the site, but I'm conscious that I'm being drawn into this again.

I can't tell you how many hours I spent reading about different diseases/ Accutane side-effects..

Certainly didn't make me feel any better.

 

I already know my thyroid and adrenals are screwed.

I'm pretty sure my Liver is, because my body doesn't tolerate alcohol.

Honestly, I'm not sure if there's a single part of my body that's not ... ahem, fucked.

 

Girlie - When did you notice your hair had returned to normal?

 

About a year after stopping accutane usage

Now my hair is sooo darn thick!! I have to think of methods to thin it out, no kidding.

so some things can come back to normal after accutane usage, and others not back to the way they were.

Hi all. 1st time poster. not going to vent too much as its getting late, but I wanted to chime in after seeing some post.

I can relate to many of you on here more then i'd like to. I hate when I start to research post accutane side effects its depressing.

But i got a list, and just to sum things up a normal day for me is when i dont notice them as much. which we all know is fucked up compared to normal people problems. took tane 10 yrs ago?

But just wanted to mention everyone stay strong. on my down days I always think of the good times and know il snap out of it. been reading a little

I like indigo rush posts you seem like a cool guy man. stumbled across some of ur vids. one happy, one sad. all I got to say is your a handsome dude. Your skin looked good, hair was thick.( i wear a hat now most times cause of tane) your thoughts seem well collected. I see post that people just want to end things or give up . now we're all too smart to do that. (id knock on the door of some la rouche execs before id take myself out anyways. lol just kiddin. sort of.

anyways, ah the supplements .everyones tried everything. ive amassed a collection myself. my girlfriend still has no clue. It can be hard to stick to a routine when u dont see quick results. no magic bullets but Whats helped me? a few.

flaxseed oil 3 tbs a day. dont count this one its good for ur overall health anyways.

whey protein 3 scoops a day.

taurine powder. to tolerance. up to 12 grams

zinc n d3. more subtle.and the rest is a crap shoot.

oh btw is there anything to the whole vitamin a deficiency theory? I took 50-75 thousand ius of it for awhile a couple yrs ago for shits n giggles. there were pros and cons i believe but it wasnt all bad. i mean i didnt die or anything. thinkin bout trying it again.

has anyone else tried high doses of vitamin a?

Thats it for now. time for my goodnite cig and bed.

 

pls be careful of flaxseed oil

efa's can perpetuate accutane long term affects.

Are you seriously still considering Accutane? Please dont do it. Id rather try amphetamine or something equally stupid, people actually recover from that stuff, it just might do just as much for your acne also, make it worse. Im not trying to be rude. Its just not worth the risk, only maybe if 90% percent of your body is covered with soar bleeding acne and your body is leaking puss everytime anyone touches you and this was causing you to be anemic, i would try it (AFTER TRYING EVERYTHING ELSE).

Seriously drug addicts actually get help also, nobody are denying their side effects. If you take Tane and it destroys your life, you are on your own, one of us, if this drug gets proven to destroy lifes imagine the payouts that would have to be made from the medical society?

 

That is soo true. Illegal drugs are safer then a drug you can get from a doctor - it's crazy.

Anyhow i want to thank everyone here for continuing in this fight and allowing me to be a part of it. You guys are like true friends to me and i dont know what i would have done if i didn't find this site, because i have nobody else to talk to about it. stay strong everyone

 

Well it's good to have you here accutaneispoison (you know what I mean)! The thing against your 'idea' is how accessible it is. Are you growing yours in a US State where it's legal (if that's possible), or you are doing it illegally? Or are you getting it from a 'friend'?

I used to post regularly here, and although I'm still coming on here as often as ever, it's becoming increasingly difficult to know what to say. I've lost the hope. I started out fairly optimistically when I read Choco's post at the start, but since then I'm struggling to see a way out of the this (apart from suicide). This is my third day in a row now of a lingering headache (it was verging on a migrane yesturday), and my eyes feel fried, all due to the light-sensitivity (I shouldn't really be typing right now). I don't know about anyone else, but when my eyes feel heavy and sore etc, I am VERY irritable and moody.

Oli Girl - it's scary that remembering your past posts it seemed like your body stopped producing insulin virtually overnight, but then again I know with my own deteriorating health, I know things can change at any moment.

Girlie - It seems many people recover their hair after several months to a year. It seems unlikely that, after 6 years, my hair will go back to how it was/should be.

If it is possible for me to recover from adrenal fatigue and hypothyroidism, then perhaps my hair will grow in thick again.

The texture of my hair is now very flimsy and if I don't wash it every day, it looks terrible and a bit greasy, too.

77 pages. Jesus... We're still going!

Personally, I'm keeping a diary now.

I plan to write in it every weekend.. Once a week. Just so I can set myself goals, give myself reminders (like how well I'm doing to stay with this) and so I can look back and see any patterns I'm creating. I'll just sum up the whole week in one and write anything worth mentioning. I can look back in months and see what progress, if any, I've made.

I think for all of us, our big problem is resistance.

It's natural to fight disease, and to want to feel better, but I think it's one of the biggest stress raisers for us.

The more we deny 'what is', the less content we feel... And we become more frustrated and agitated.

My job's been going a bit better the last week.

I feel I know the system now.

Of course, I get bored and clock-watch a lot, but I've borrowed my mum's credit card to pay for my Music college so I definitely need the money!

One of the best tools, in terms of feeling a bit better about life, I've used from a self-help book I read is, at night, listing three good things that happened during the day.

Doing this consistently is key to instating it as a good habit.

It helps to recognise the good things.

You may not feel like you have anything to be grateful for anymore.

If you feel that way, I assume you'd be fine with me shooting all your family and setting fire to your house?

Everyone has the ability to focus on the good.

Sure, not always easy to get in that mindset but you have to make a decision.

Another tip.

You have to make a firm decision.

That you will NOT become a victim of this drug.

Technically, we are 'victims' of Accutane and the medical industry, in the same way that someone is a victim of robbery.

However, we must decide to become 'Surviviors'.

If I could, I'd shake all of your hands because I'm proud of you.

For sticking with this.

For not giving up.

Well done, really, because anyone in our shoes would be on the verge of suicide.

Not saying we don't feel that way - of course, we often do - but we haven't acted on those (natural in the circumstances) thoughts.

When you make a decision - really make one - it's powerful.

If you decide to be rich in your lifetime, you won't settle for an average job.

You will do what it takes to make lots of money.

Personally, I refuse to work in an office job/retail/anything ordinary because I feel like this will be my only shot at living.

I don't want to live on the pretense that I will live forever and things will be great 'one day'.

I'm not saying we can't recover.

I mean, I don't want to have a false belief that I have plenty of time.

I'm 22. Hell knows how long I'll live til, but it's likely I've lived 1/4 of my life.

I don't like those stats.

I want to go to Hawaii, and Hollywood, Australia... lots of cool places.

There's lots I want to do and time is precious.

What have I to show for the last several years of my life, working in offices?

Fuck all really.

I've gone a bit off track, but I'm saying we need to take more action.

A lot of us have anxiety issues.

Yeah, Accutane may have screwed up our brains, but that doesn't mean we should do nothing (and just continue to focus on curing our bodies) and let these problems rule our life.

The common mistake people make is putting things off.

'I'll do it when I'm better' etc.

I used to do this for a long time before I finally started drama classes.

I still have anxiety issues, but I could join another acting class now because my comfort zone is larger than it was.

We are FAR too hard on ourselves.

I'm a bit of a perfectionist myself, but what good will it do to get angry at my reflection... at myself, because of hair-loss?

It's not my fault I have hair missing from my head.

Again, it's important not to keep blaming Accutane.

Many people (myself included I expect) become obsessed with proving themselves right.

At what cost will we be right? Yes, Accutane did this. No shit. We know that.

We don't need to convince anyone else.

Forget doctors. It's not important that we prove we're sane. Let them believe what they want.

We need to shift things..

Congratulate ourselves when we face our fears and all the rest of it.

I bought another book for my Kindle yesterday.

It's this:

[Edited link out]

It's a book of 50 recoveries from CFS (chronic fatigue syndrome).

Of course, we don't have that problem (and we're very lucky that we don't!) but it is VERY relatable to our circumstances (living with chronic disease and lacking vitality, really).

I recommend it, though I'm only 1/10 of the way through.

I think it is vital to remain hopeful, even when the chances seem so slim that we will ever get better.

Who knows - We could all be cured within a year.

Sure... 'probably not', right?

But the documentary could really help.

The book I've linked is good because CFS is typically something doctor's call 'Incurable' (which means they don't have a drug for it).

The same could be said for us.

One of the 50 stories I've read mentioned hypothyroidism and adrenal fatigue.

They healed those things, which gives me some hope.

I know things are pretty bad, you guys.

I don't know what problem I'd fix first if I could..

Probably eye floaters or social anxiety. Maybe sexual dysfunction or digestive issues.

But I'm going to badminton for the second time this week.

I get sweaty as fuck sometimes.

But I'm always asking everyone for one more game, and it REALLY helps me to get rid of some anger and stress.

That's a great thing to do.

A boxing bag may be a good idea if badminton isn't your thing. FUN exercise, competitive even, is very important to health.

I expect many of you have become recluses.

It's important, despite how you're feeling, that you have human interactions.

Love is powerful, and you won't kill yourself or give up while you feel love for someone... not necessarily a partner, but you're mother or father.

Your sister, brother... You know, relatives (lol).

My supplements should arrive soon (Probiotics and I forget what else).

If they don't work, I'm not going to keep trying new ones.

I will keep using Vitamin C powder, Vitamin D3 and Milk Thistle, but that's probably going to be all I take.

Bored of pill popping in the mornings.

Vitamin C - I believe to be good for immunity

Vitamin D - Sunshine is often absent in the UK. If it's true that it helps eliminate vitamin A toxicity, I'm all for it

Milk Thistle - I still think our liver's took some damage and Milk Thistle is meant to be good stuff.

Perhaps I'll try Borage oil too.

I may take things for my thyroid and adrenals because I know for fact that they are weakened.

Trialing supplements, and guesswork has got me no results in the past.. it's just wasted a lot of money.

Perhaps taking too many supplements is more harmful than helpful.

I do believe that it's more important for me to deal with stress, rather than just take a supplement.

My endocrine system will remain weak while I'm dealing with crazy amounts of stress, no matter what I'm taking.

It's very important that we don't do too much.

We have to accept that we can't stay up too late, or eat really bad food.

We are in the recovery process.

Our bodies want to be well.

Those people with faith are best of.. they do what they can and leave the rest up to God.

As I'm not religious, this is harder.

But it's important to know when to stop.

We can't fix this right now. The best thing would be to relax and spend our money on getting outside our bedrooms.

I think deep down we all know that.

But, once again, we get caught up in our health and focus all our energy on it.

We will not feel energetic while we focus on the bad things

The drain us.

I sometimes wonder 'Does accutane continue to damage the body after stopping it, or is stress making things worse'.

The answer to that is still unknown, but we can't deny that stress is prevelant in our lives.

And we all know that stress can create it's own problems.

I think that's all I need to say for now.

Keep on fighting guys.

I have a unifying theory I am going to present here tomorrow but it's too late here and sleep is important but I want to give a preview in case my heart or brain stop pumping in my sleep.

Theory is title the tin man inside.

humans are nothing but matter, slime, air, and friction.

accutane induces aptopsis and dryness.

What is an easy target, a fast dividing softy slimy element that is not made of sturdy matter such as bone? Hyaluronic acid. (Hyaluronic acid, Mucous, water, etc) dry and unable to duplicate the same way as before.

HA lubricates joints heart brain skin stomach, everything sticky. PPL have felt good w creatine which retains water... What else does this? Hyaluronic acid. Some men have even noticed less sperm which is a super sticky substance.

While the debate remains as to whether or not Accutane is still in the system, it still remains for even us sufferers that vit a helps create HA, therefore beta catotene creates more HA, therefore some people have felt better off of BC.

All of these things give former users problems in one form or another. Without proper HA organs rub together creating more and more friction, the immune system responds to the constant irritation and boom, auto immunity. Aging is drying is dissapearing.

This is why certain solutions only work temporarily, because if there is sand in your engine, you can put hi grade oil into the engine but eventually even high grade oil is going to burn up. You need lubrication of the insides and perhaps removal of debris . Okra a mucilaginous veggie for the gut, HA for the joints (although I feel like my body doesn't absorb the HA I take very well for some reason, perhaps I need to try rebuilding the Chondrocytes)... loads of coconut oil for brain, etc...

Notice: It is well documented that for acute hypervitaminosis A, the protocol is to take aspirin. Aspirin makes the blood platelets thinner and easier to pass through circulatory system... is a sense creating less wear and tear on a stressed system... I took 325 mgs of aspirin during a panic attack I had last night and felt way better afterwards. Might be good to take baby aspirin or white willow daily and see how we fee. Thats what I'm doing. Last night with my nightly routine I added the aspirin and Glucosamine Chondroitin (good for chondrocytes)... and today no eye dryness, minimal floaters.

Lubrication also probably has something to do with your bodies reception to foods and nutrients... Almost like the fuzzy side of the paddle that catches a tennis ball. We need the body to stick and attach itself to the food/nutrients that we in take.

This theory is based off of personal experience and hearing ppls stories. More solutions to come tomorrow good sleep important to heal body inflammation... Friction causes inflammation is aging. Repair.

I believe hot cold therapy makes sense to get healthy friction restored... or in a sense more movement internally (temperature changes) with less friction (damage)... Working out is also good because it creates movement and friction but not too much bad friction.

But think about temperature change for a second... You make something cold like a glass of ice water and put it in a warm room and what happens?

Condensation--- which is a product of energy transfer. So lets imagine we go hot cold hot cold with the body... perhaps the body does some kind of condensation like behavior and the "condensation" works as extra lubrication...

I guess what I'm saying is there are good types of friction which are created by healthy things. And bad types such as artificial drying.

 

Bloodtest wise, how do they check for parathyroid dysfunction?

Is it just through regular Thyroid checks?

As in the one that checks for Hypothyroidism?

 

I still don't know what the fuck to do about my thyroid issues.

T4 won't help whilst I have adrenal issues.

Trying to cut out stress is darn impossible.

Just took me an hour to get home because of a traffic accident.

Normally hope within 15 minutes.

Not what you need after work, is it?

 

 

Sup guys. Still cured.

 

Gotta be real careful about eating stuff with wheat in it. Surprising how it's in most things that are prepackaged or prepared by someone else.

 

I cut out veggies and just went back to my basic diet of rice, scallops, lean meat, shrimp, and now yoghurt too. It gives me the best results, so why not? While I CAN eat more things, my body seems to slow down a bit.

 

Also, binaural beats is great for focus while working.

 

And I'm also controlling portion sizes and only eating when the sun is up. That keeps me working hard and sleeping at the right time.

 

Well guess that's about it. At some point I'll try Dr. Snow and see if his wizardry can improve me further - by allowing me to eat all kinds of things, and not suffer any performance loss.

 

 

With respect, it really doesn't sound like you're cured.

Especially if you're choosing to be back on those bloody scallops

 

 

Keep us updated Humanstate! Also, don't forget to get copies or at least ask what your numbers were.

 

 

Oligirl - Please remind me how old you are now and how long you've had the side effects?

Still on insulin, I presume?

 

 

 

Indigo - I am 36 now, I believe it has been 5yrs now almost! It's been over 5 since I started Accutane. Yes Indigo I am a type 1 diabetic I don't produce any insulin at all. BASICALLY I DIE WITHOUT INSULIN IT IS BASICALLY JUVENILE DIABETES! Very diffrent from Type 2 which is insulin restistant! Accutane has left me in a metabolic madness with autoimmune thyroid, sjrogen's & type 1. Very healthy no issues ran 3 miles a day before accutane!

 

By the way taking synthyroid and then supplements for your adrenals will do the trick if your tsh is still out of wack! As for testing of Parathyroid calcium levels/ PTH hormone and scans for tumors I guess though scans may be hard if you still have your thyroid, but I have lost most of my right so who knows. However, I did shrink and develop osteopenia while on accutane and that is documented in medical records and i gained 1/2 inch back

 

 

 

I appreciate you taking the time to answer.

Can I ask what made you read the forum?

Because I gather you didn't take Accutane and that your Hypoparathyroidism is due to genetics?

 

I was reading because I am researching Accutane, saw your posts, and wanted to say something but hesitated at first. Then I thought maybe I should chime in with my theory--you all sound so alike.

 

Now I'm not so sure I want to take it. The derm was giving it to me even though he KNOWS I just got out of parathyroid surgery and have osteopenia. I kind of wanna wait a few months to recover.

 

How exactly were you diagnosed?

For you, was it blood tests?

And then, I suppose they do some x-ray

 

I was diagnosed by going through hell. Doctors are very ignorant about it and think labs have to be a certain way, when in reality it's just not true. For example, both mom and I's calcium was only 10.4 and PTH normal. They consider that "mildly elevated." It's not, because with the disease your calcium fluctuates, and 10.4 is too high for a human being's blood calcium anyway. The young man I talked to had a 10.3...that's extremely suspicious for parathyroid disease. My mother ended up having two large peanut shell sized tumors ( she was misdiagnosed for decades ) and parathyroid glands are only supposed to be the size of a grain of rice. No wonder she felt screwed up. I lost a left gland due to hyperplasia ( extreme enlargement ) which still requires surgery. That's why you should read that site--because that guy is the world's leading expert on parathyroid disease and he operates on the highest number of patients...so he has the most data to present to those endocrinology conferences. However, I did not go to him because despite his good info, he's an ass lol and there's many other good surgeons out there besides him.

 

Edit: Wanted to add regarding x-rays, there are practically no scans that can find the tumors because they are behind the thick structure of the thyroid. There is one being invented by hasn't passed the FDA yet and will take a year. We are behind in parathyroid study. The best scan is the sestamibi scan; but it is very inaccurate, as is ultrasound. We both had negative scans as did countless other patients.

 

I'm temped to take a look at the site, but I'm conscious that I'm being drawn into this again.

I can't tell you how many hours I spent reading about different diseases/ Accutane side-effects..

Certainly didn't make me feel any better.

 

I already know my thyroid and adrenals are screwed.

I'm pretty sure my Liver is, because my body doesn't tolerate alcohol.

Honestly, I'm not sure if there's a single part of my body that's not ... ahem, fucked.

 

Girlie - When did you notice your hair had returned to normal

Well as you probably know, Accutane affects a babies parathyroid gland formation. I'm looking at it in the iPledge packet right now. So is it not unreasonable to assume it can cause enlargement of a normal developed person's parathyroid gland? Plus, it causes low vitamin D, a side effect of parathyroid disease.

 

 

 

Sorry, but you be a fool to take accutane with parathyroid issue and osteopenia! DON'T DO IT

 

Of course I know. I put it off. But I'm still scaring up with red marks and it's frustrating being 24 soon with acne...It's a shame being the only one around you with that bullshit problem and then the other one I had. I'm waiting 6 months, then I'll do more research. I doubt I'll do it...i wanna see if the parathyroid diagnosis clears it up. Actually after parathyroid surgery, I broke out WAY more. I don't know why. Maybe I am straightening out my hormones? Parathyroid hormone is an EXTREMELY powerful and potent hormone.

Edit: Btw, don't base your diagnoses of adrenal fatigue and thyroid issue's off assumptions that you have it...unless your blood work backs it up. I used to think I had that stuff and parathyroid disease actually mimicked a lot ( it also can throw your thyroid out of balance because everything around the parathyroid that is bad begins to get upset. For example, my lymph nodes swelled constantly and were removed just in case. The thyroid is nearby and can be affected as well, but not permanently. Thankfully, my thyroid is 100% healthy and intact). Just make sure you are getting the right diagnose before trying to treat yourself for stuff you may not even have.

On 7/20/2012 at 4:18 AM, Maynerd said:

I have a unifying theory I am going to present here tomorrow but it's too late here and sleep is important but I want to give a preview in case my heart or brain stop pumping in my sleep.

Theory is title the tin man inside.

humans are nothing but matter, slime, air, and friction.

accutane induces aptopsis and dryness.

What is an easy target, a fast dividing softy slimy element that is not made of sturdy matter such as bone? Hyaluronic acid. (Hyaluronic acid, Mucous, water, etc) dry and unable to duplicate the same way as before.

HA lubricates joints heart brain skin stomach, everything sticky. PPL have felt good w creatine which retains water... What else does this? Hyaluronic acid. Some men have even noticed less sperm which is a super sticky substance.

While the debate remains as to whether or not Accutane is still in the system, it still remains for even us sufferers that vit a helps create HA, therefore beta catotene creates more HA, therefore some people have felt better off of BC.

All of these things give former users problems in one form or another. Without proper HA organs rub together creating more and more friction, the immune system responds to the constant irritation and boom, auto immunity. Aging is drying is dissapearing.

This is why certain solutions only work temporarily, because if there is sand in your engine, you can put hi grade oil into the engine but eventually even high grade oil is going to burn up. You need lubrication of the insides and perhaps removal of debris . Okra a mucilaginous veggie for the gut, HA for the joints (although I feel like my body doesn't absorb the HA I take very well for some reason, perhaps I need to try rebuilding the Chondrocytes)... loads of coconut oil for brain, etc...

Notice: It is well documented that for acute hypervitaminosis A, the protocol is to take aspirin. Aspirin makes the blood platelets thinner and easier to pass through circulatory system... is a sense creating less wear and tear on a stressed system... I took 325 mgs of aspirin during a panic attack I had last night and felt way better afterwards. Might be good to take baby aspirin or white willow daily and see how we fee. Thats what I'm doing. Last night with my nightly routine I added the aspirin and Glucosamine Chondroitin (good for chondrocytes)... and today no eye dryness, minimal floaters.

Lubrication also probably has something to do with your bodies reception to foods and nutrients... Almost like the fuzzy side of the paddle that catches a tennis ball. We need the body to stick and attach itself to the food/nutrients that we in take.

This theory is based off of personal experience and hearing ppls stories. More solutions to come tomorrow good sleep important to heal body inflammation... Friction causes inflammation is aging. Repair.

I believe hot cold therapy makes sense to get healthy friction restored... or in a sense more movement internally (temperature changes) with less friction (damage)... Working out is also good because it creates movement and friction but not too much bad friction.

But think about temperature change for a second... You make something cold like a glass of ice water and put it in a warm room and what happens?

Condensation--- which is a product of energy transfer. So lets imagine we go hot cold hot cold with the body... perhaps the body does some kind of condensation like behavior and the "condensation" works as extra lubrication...

I guess what I'm saying is there are good types of friction which are created by healthy things. And bad types such as artificial drying.

Interesting theory.

I think Hyaluronic acid is the thing I was most excited about, probably nearly two years ago.

I was so disappointed when nothing changed at all.

I used the Doctor's Best brand and I think I went through two bottles of the stuff (1-2 months supply)

[Edited link out]

I find it really hard to trust reviews these days.

I really wish what these people were saying was the case for me.

I'm totally with you on the dryness thing though.

I don't think my dry eyes is down to thyroid and adrenal issues, or candida.

I really want to give this another go, and used for longer but I really can't afford supplements at the moment and I'm pretty sure it'll end up in disappointment if I use hyaluronic acid again.

Decisions, decisions!

Actually indigo, my theory fits your experience as well.

Well actually the candida/bacterial issues could be either because the accutane is rotting in our system or because the friction debris of our organs is creating some kind of build up (perhaps in our guts) that is bacterial in nature.

The problem with taking HA is the problem of absorbtion that I talked about in my theory. You still need the body to sponge onto the HA and convert it into something usable, which is why both you and I do not get the benefits of direct HA intake that some non accutaner might get. Perhaps also the chondrocytes (responsible for HA production/conversion) are broken or dry (side effect of hypervitaminosis as stated in my natural encyclopedia book), which is why I think taking Chondroitin Glucosamine MSM might be a good idea.

Also, I and someone else felt better w msm, msm is involved in this whole mix as a sulfuric compound that helps joints (aka HA production). Whenever someone says something is good for joints what they really mean is that it either boosts HA, helps heal ligaments, or reduces inflamation (usually talking HA and inflamation based when talking about joint health).

When imagining the thyroid and adrenal GLANDS, I imagine them as being more slimy than other organs which is probably why they were and are targeted. I don't really have a solution for how to make them more... slippery... however if they are "grinding" then Standard Process is something you want to try. I've recommended SP many times here before. They will have actual animal glands in their products because they are all about a "like heals like" philosophy. So if you think about it as your glands are disappearing due to friction then adding more on will make it stronger. Just as I did with my dermatrophin and my skin doesn't flake anymore. (ever, at all!) Plus all SP products are loaded with natural vitamins, minerals, aminos, and compounds.

Idk, the gland issues are tough but the whole body is a gland, lets rejuvenate those slimy juices and kill the residue left over from things when things were not functioning smoothly!

You see how this theory could explain nutrient deficiencies, allergies to foods, anxiety, depression, sexual dysfunction?

Listen, I could be completely wrong here but I do watch a lot of house 😉 and he always goes with the theories that fit for the most things until they don't fit or work no more.

Cheers

Also, I know I talk about HA alot but I do not mean to imply that if I am correct about my dryness theory that simply taking HA will solve any one of our problems...

First of all there's the fact that body moisture relies upon so much and some of it is still a mystery but it does not just come down to HA, theres mucous, creatine and perhaps others I cant think of. Next the the absorbtion problem. Next, making our insides slippery again will be a highly difficult task. It will involve exercising, taking cold baths, going from hot sauna to cold pool and back again. It will involve eating low calorie diets full of mucilaginous foods, it will involve good sleep, good sex (I kid, but not really, I strongly believe in body to body contact, massages, etc). we need narrowing down all the right supplements without wasting time on ones that don't contribute (I'm doing better at this).

I mean we're kind of trying to re-evolve our bodies all the way from the swamps of our ancestors. Not an easy task. I am going to email Timothy Ferriss, if I am right about my theory I believe his input could really help. He could even use us as guinea pigs and put out another book regarding Accutane.

BTW I met a girl last night who took accutane and has anxiety and she said long naps trigger hers so I need to set my alarm for my naps.

 

Are you seriously still considering Accutane? Please dont do it. Id rather try amphetamine or something equally stupid, people actually recover from that stuff, it just might do just as much for your acne also, make it worse. Im not trying to be rude. Its just not worth the risk, only maybe if 90% percent of your body is covered with soar bleeding acne and your body is leaking puss everytime anyone touches you and this was causing you to be anemic, i would try it (AFTER TRYING EVERYTHING ELSE).

Seriously drug addicts actually get help also, nobody are denying their side effects. If you take Tane and it destroys your life, you are on your own, one of us, if this drug gets proven to destroy lifes imagine the payouts that would have to be made from the medical society?

 

 

That is soo true. Illegal drugs are safer then a drug you can get from a doctor - it's crazy.

 

 

Anyhow i want to thank everyone here for continuing in this fight and allowing me to be a part of it. You guys are like true friends to me and i dont know what i would have done if i didn't find this site, because i have nobody else to talk to about it. stay strong everyone

 

 

Well it's good to have you here accutaneispoison (you know what I mean)! The thing against your 'idea' is how accessible it is. Are you growing yours in a US State where it's legal (if that's possible), or you are doing it illegally? Or are you getting it from a 'friend'?

 

I used to post regularly here, and although I'm still coming on here as often as ever, it's becoming increasingly difficult to know what to say. I've lost the hope. I started out fairly optimistically when I read Choco's post at the start, but since then I'm struggling to see a way out of the this (apart from suicide). This is my third day in a row now of a lingering headache (it was verging on a migrane yesturday), and my eyes feel fried, all due to the light-sensitivity (I shouldn't really be typing right now). I don't know about anyone else, but when my eyes feel heavy and sore etc, I am VERY irritable and moody.

 

Oli Girl - it's scary that remembering your past posts it seemed like your body stopped producing insulin virtually overnight, but then again I know with my own deteriorating health, I know things can change at any moment.

 

Yes it did stop producing withthin 3 months! Yep things can change at any moment! Hang in there!

 

 

Bloodtest wise, how do they check for parathyroid dysfunction?

Is it just through regular Thyroid checks?

As in the one that checks for Hypothyroidism?

 

I still don't know what the fuck to do about my thyroid issues.

T4 won't help whilst I have adrenal issues.

Trying to cut out stress is darn impossible.

Just took me an hour to get home because of a traffic accident.

Normally hope within 15 minutes.

Not what you need after work, is it?

 

 

Sup guys. Still cured.

 

Gotta be real careful about eating stuff with wheat in it. Surprising how it's in most things that are prepackaged or prepared by someone else.

 

I cut out veggies and just went back to my basic diet of rice, scallops, lean meat, shrimp, and now yoghurt too. It gives me the best results, so why not? While I CAN eat more things, my body seems to slow down a bit.

 

Also, binaural beats is great for focus while working.

 

And I'm also controlling portion sizes and only eating when the sun is up. That keeps me working hard and sleeping at the right time.

 

Well guess that's about it. At some point I'll try Dr. Snow and see if his wizardry can improve me further - by allowing me to eat all kinds of things, and not suffer any performance loss.

 

 

With respect, it really doesn't sound like you're cured.

Especially if you're choosing to be back on those bloody scallops

 

 

Keep us updated Humanstate! Also, don't forget to get copies or at least ask what your numbers were.

 

 

Oligirl - Please remind me how old you are now and how long you've had the side effects?

Still on insulin, I presume?

 

 

 

Indigo - I am 36 now, I believe it has been 5yrs now almost! It's been over 5 since I started Accutane. Yes Indigo I am a type 1 diabetic I don't produce any insulin at all. BASICALLY I DIE WITHOUT INSULIN IT IS BASICALLY JUVENILE DIABETES! Very diffrent from Type 2 which is insulin restistant! Accutane has left me in a metabolic madness with autoimmune thyroid, sjrogen's & type 1. Very healthy no issues ran 3 miles a day before accutane!

 

By the way taking synthyroid and then supplements for your adrenals will do the trick if your tsh is still out of wack! As for testing of Parathyroid calcium levels/ PTH hormone and scans for tumors I guess though scans may be hard if you still have your thyroid, but I have lost most of my right so who knows. However, I did shrink and develop osteopenia while on accutane and that is documented in medical records and i gained 1/2 inch back

 

 

 

I appreciate you taking the time to answer.

Can I ask what made you read the forum?

Because I gather you didn't take Accutane and that your Hypoparathyroidism is due to genetics?

 

I was reading because I am researching Accutane, saw your posts, and wanted to say something but hesitated at first. Then I thought maybe I should chime in with my theory--you all sound so alike.

 

Now I'm not so sure I want to take it. The derm was giving it to me even though he KNOWS I just got out of parathyroid surgery and have osteopenia. I kind of wanna wait a few months to recover.

 

How exactly were you diagnosed?

For you, was it blood tests?

And then, I suppose they do some x-ray

 

I was diagnosed by going through hell. Doctors are very ignorant about it and think labs have to be a certain way, when in reality it's just not true. For example, both mom and I's calcium was only 10.4 and PTH normal. They consider that "mildly elevated." It's not, because with the disease your calcium fluctuates, and 10.4 is too high for a human being's blood calcium anyway. The young man I talked to had a 10.3...that's extremely suspicious for parathyroid disease. My mother ended up having two large peanut shell sized tumors ( she was misdiagnosed for decades ) and parathyroid glands are only supposed to be the size of a grain of rice. No wonder she felt screwed up. I lost a left gland due to hyperplasia ( extreme enlargement ) which still requires surgery. That's why you should read that site--because that guy is the world's leading expert on parathyroid disease and he operates on the highest number of patients...so he has the most data to present to those endocrinology conferences. However, I did not go to him because despite his good info, he's an ass lol and there's many other good surgeons out there besides him.

 

Edit: Wanted to add regarding x-rays, there are practically no scans that can find the tumors because they are behind the thick structure of the thyroid. There is one being invented by hasn't passed the FDA yet and will take a year. We are behind in parathyroid study. The best scan is the sestamibi scan; but it is very inaccurate, as is ultrasound. We both had negative scans as did countless other patients.

 

I'm temped to take a look at the site, but I'm conscious that I'm being drawn into this again.

I can't tell you how many hours I spent reading about different diseases/ Accutane side-effects..

Certainly didn't make me feel any better.

 

I already know my thyroid and adrenals are screwed.

I'm pretty sure my Liver is, because my body doesn't tolerate alcohol.

Honestly, I'm not sure if there's a single part of my body that's not ... ahem, fucked.

 

Girlie - When did you notice your hair had returned to normal

Well as you probably know, Accutane affects a babies parathyroid gland formation. I'm looking at it in the iPledge packet right now. So is it not unreasonable to assume it can cause enlargement of a normal developed person's parathyroid gland? Plus, it causes low vitamin D, a side effect of parathyroid disease.

 

 

 

Sorry, but you be a fool to take accutane with parathyroid issue and osteopenia! DON'T DO IT

 

 

Of course I know. I put it off. But I'm still scaring up with red marks and it's frustrating being 24 soon with acne...It's a shame being the only one around you with that bullshit problem and then the other one I had. I'm waiting 6 months, then I'll do more research. I doubt I'll do it...i wanna see if the parathyroid diagnosis clears it up. Actually after parathyroid surgery, I broke out WAY more. I don't know why. Maybe I am straightening out my hormones? Parathyroid hormone is an EXTREMELY powerful and potent hormone.

 

Edit: Btw, don't base your diagnoses of adrenal fatigue and thyroid issue's off assumptions that you have it...unless your blood work backs it up. I used to think I had that stuff and parathyroid disease actually mimicked a lot ( it also can throw your thyroid out of balance because everything around the parathyroid that is bad begins to get upset. For example, my lymph nodes swelled constantly and were removed just in case. The thyroid is nearby and can be affected as well, but not permanently. Thankfully, my thyroid is 100% healthy and intact). Just make sure you are getting the right diagnose before trying to treat yourself for stuff you may not even have.

 

Don't Do It! look on the natruopathic fourm, read some of Lamarr1986 posts ( I have been reffering people to him for 5yrs) on light therapy and scarring, hair etc....

I believe Indigo did test postive for thyroid! I have had every scan, lab, test in the world since accutane some postive some not, some gone back to normal...even had adrenals scanned!

Some many posts I love to respond too, but soo hard lol! Hang in there my friends. Indigo read your post on prescrption drug thread keep me posted on doc!

I see. Well good luck with your stuff guys. I changed my mind about Accutane after waking up with 7 more painful lumps. I just can't take it. It's not vainity for me ( gave up on looking like a pretty girl ) but it's a painful skin condition. I decided to do this: I would go on it, and if side effects were very severe, I would get off. I would also be on a fairly low dose. I'm sorry it messed you guys up. Wish you a good recovery.

edit: Thought I'd ask...how many of you were on antibiotics BEFORE Accutane for a while? I wonder if perhaps doing that crap THEN going on Accutane can already weaken your liver for Accutane to finish it off. Also, did you have high fat diets in dairy and possibly wheat? Those are very hard for the digestive system to deal with. Just wondering!

Mahweeoh - Like Oli Girl said, have you tired the holistic approach? Completely avoiding dairy, grains, and processed food? Have you tried just eating raw foods (fruit, vegetables, nuts and seeds, and nothing else)?

http://articles.mercola.com/sites/articles/archive/2011/05/31/simple-secrets-to-eliminating-acne-for-good.aspx

http://articles.mercola.com/sites/articles/archive/2006/08/29/use-accutane-for-acne-and-risk-bowel-disease.aspx

A low dose doesn't matter. I was only on at least 20mg EVERY OTHER DAY but I am suffering seven and a half years later after stopping. No, it's not the antibiotics that do the destructive damage, it's Accutane. I think you're asking for trouble.

Mahweeoh - Like Oli Girl said, have you tired the holistic approach? Completely avoiding dairy, grains, and processed food? Have you tried just eating raw foods (fruit, vegetables, nuts and seeds, and nothing else)?

 

http://articles.merc...e-for-good.aspx

http://articles.merc...el-disease.aspx

 

A low dose doesn't matter. I was only on at least 20mg EVERY OTHER DAY but I am suffering seven and a half years later after stopping. No, it's not the antibiotics that do the destructive damage, it's Accutane. I think you're asking for trouble.

 

Here's my history. Got acne around age 15. Dad took me off dairy. It went away 100% till age 18. Came back. Still off dairy. Removed gluten from diet, remained that way till 23 ( almost 24 ) and lost waaay too much weight. I don't even eat sugar. Now it doesn't matter what I eat--I still get cystic acne and crap. It's embarrassing so the point I can't face my poor boyfriend. In fact after dating him for 5 years, the other day is the first time he saw my skin..although he pretended not to notice because he's a wonderful guy. So my diet right now is so restricted that I'm practically starving half the time. THAT IS NO WAY TO LIVE. It will not help my bone density to recover that way either. If I'm on Accutane, at least I can start eating more foods and get my nutrients back. I will NEVER eat dairy however.

I'm stuck with two lovely conditions, I guess. It's quite painful and the ones on the sides of the head give me bad headaches which could be cured if they were to be stopped. I think I'd only be on it for 4 months if I did it and would be monitored closely, as I can take calcium supps with it. I know you think my decisions foolish, but the only reason the derm highly recommended it to me was because nothing was working...and he said things should be fine and at most i'd be pretty dry. I'm sorry those things happened to you though.

Edit: Oh here's a fun thing to think about. My derm asked me what foods I eliminated in my acne diet. I said dairy. He nodded and said to me, "yes dairy can make your acne worse." I don't think I've heard a doctor ever say that. lol.

I see. Well good luck with your stuff guys. I changed my mind about Accutane after waking up with 7 more painful lumps. I just can't take it. It's not vainity for me ( gave up on looking like a pretty girl ) but it's a painful skin condition. I decided to do this: I would go on it, and if side effects were very severe, I would get off. I would also be on a fairly low dose. I'm sorry it messed you guys up. Wish you a good recovery.

 

edit: Thought I'd ask...how many of you were on antibiotics BEFORE Accutane for a while? I wonder if perhaps doing that crap THEN going on Accutane can already weaken your liver for Accutane to finish it off. Also, did you have high fat diets in dairy and possibly wheat? Those are very hard for the digestive system to deal with. Just wondering!

 

Nope never had antibotics before accutane, was given as first line of tx. Beware though you can stop Accutane if you feel severe side effects, but that doesn't mean that they will go away or that they won't show up once course is over. As Accutane continues working even after your course is over per Roche! Also remember there are thoose who took a low dose and ended up in hospital! My Endo said he won't let his pts take it as they already have hormonal problems.

I am suprised that someone with Osteopenia already will risk getting Osteoprosis which isn't reversible. Better have a scan after my friend. I gave you advice it's your choice you have to live with it. Good Luck

FYI if it's caused by your hormones it will come back the acne that is! I don't see you mentioned light therapy as trying

I haven't had any ibs flair ups and am sort of regular in the bowel region... I've been off white carbs for about two weeks consistently and intermittently before that basically only doing fruit veggie nut and meat with a few cheat meals here and there... big difference from where I was before. Not sure exactly why I'm better in that regard, could be diet, could be stress reduction, could be the msm and oregano oil I take.

My personal Pros and Cons with Accutane:

Pros:

- Does its job (get's rid of acne very quickly)

- That's it!

Lifetime Cons:

- TMJ - Temporal Mandibular Joint Syndrome

- Dried Joints

- Dry Eyes

- Bad ankles, knees, hips

- Facial Scarring

Basically if your acne is HORRIBLE and it's impacting your social life and happiness, then Accutane is a good idea.

Otherwise, if there is any possible way to avoid it, you should, because the lingering side effects years down the road are not worth the instant gratification.

Here's my history. Got acne around age 15. Dad took me off dairy. It went away 100% till age 18. Came back. Still off dairy. Removed gluten from diet, remained that way till 23 ( almost 24 ) and lost waaay too much weight. I don't even eat sugar. Now it doesn't matter what I eat--I still get cystic acne and crap. It's embarrassing so the point I can't face my poor boyfriend. In fact after dating him for 5 years, the other day is the first time he saw my skin..although he pretended not to notice because he's a wonderful guy. So my diet right now is so restricted that I'm practically starving half the time. THAT IS NO WAY TO LIVE. It will not help my bone density to recover that way either. If I'm on Accutane, at least I can start eating more foods and get my nutrients back. I will NEVER eat dairy however.

 

I'm stuck with two lovely conditions, I guess. It's quite painful and the ones on the sides of the head give me bad headaches which could be cured if they were to be stopped. I think I'd only be on it for 4 months if I did it and would be monitored closely, as I can take calcium supps with it. I know you think my decisions foolish, but the only reason the derm highly recommended it to me was because nothing was working...and he said things should be fine and at most i'd be pretty dry. I'm sorry those things happened to you though.

 

Edit: Oh here's a fun thing to think about. My derm asked me what foods I eliminated in my acne diet. I said dairy. He nodded and said to me, "yes dairy can make your acne worse." I don't think I've heard a doctor ever say that. lol.

 

It's a shame if you do decide to go on it. I'm not going to say any more, but what about if you do the 4 months, and then a few weeks later your acne comes back (which is very possible) - you'd be gutted to of done potential damage to your health for nothing. And then what - do another 4 months after that, and maybe or maybe not get results again. I'm just trying to make sure you know Accutane doesn't always work, at least not permanently. I hope you're also aware that you'd be undergoing chemotherapy? Also - Accutane gave me rosacea (and you will find many others also have got rosacea after Accutane) and let em tell you it's a billion times worse skin condiition then acne. So be aware that a side efect is that Accutane can ironically make your skin much WORSE! I also wish you luck.

 

Here's my history. Got acne around age 15. Dad took me off dairy. It went away 100% till age 18. Came back. Still off dairy. Removed gluten from diet, remained that way till 23 ( almost 24 ) and lost waaay too much weight. I don't even eat sugar. Now it doesn't matter what I eat--I still get cystic acne and crap. It's embarrassing so the point I can't face my poor boyfriend. In fact after dating him for 5 years, the other day is the first time he saw my skin..although he pretended not to notice because he's a wonderful guy. So my diet right now is so restricted that I'm practically starving half the time. THAT IS NO WAY TO LIVE. It will not help my bone density to recover that way either. If I'm on Accutane, at least I can start eating more foods and get my nutrients back. I will NEVER eat dairy however.

 

I'm stuck with two lovely conditions, I guess. It's quite painful and the ones on the sides of the head give me bad headaches which could be cured if they were to be stopped. I think I'd only be on it for 4 months if I did it and would be monitored closely, as I can take calcium supps with it. I know you think my decisions foolish, but the only reason the derm highly recommended it to me was because nothing was working...and he said things should be fine and at most i'd be pretty dry. I'm sorry those things happened to you though.

 

Edit: Oh here's a fun thing to think about. My derm asked me what foods I eliminated in my acne diet. I said dairy. He nodded and said to me, "yes dairy can make your acne worse." I don't think I've heard a doctor ever say that. lol.

 

 

It's a shame if you do decide to go on it. I'm not going to say any more, but what about if you do the 4 months, and then a few weeks later your acne comes back (which is very possible) - you'd be gutted to of done potential damage to your health for nothing. And then what - do another 4 months after that, and maybe or maybe not get results again. I'm just trying to make sure you know Accutane doesn't always work, at least not permanently. I hope you're also aware that you'd be undergoing chemotherapy? Also - Accutane gave me rosacea (and you will find many others also have got rosacea after Accutane) and let em tell you it's a billion times worse skin condiition then acne. So be aware that a side efect is that Accutane can ironically make your skin much WORSE! I also wish you luck.

 

Discussed it with parents. They feel I should not because I am still weak...and they feel the acne MAY be the cause from the parathyroid disease. So I'm not going to do it. Retin-A should take care of it for a little bit while I wait out my recovery. I will wait for a while before I decide on it. Anything else I should try then in the mean time? I'm sicker from losing weight really due to the acne...it's the only way I keep it under somewhat control.

Really good that you're not going to go ahead with it yet. Sergio and a few others here have mentioned it, but have you tried the raw food diet (100% raw foods), or would be willing to try it? That diet works on every level because you are only putting into your body what nature intended. I know you said you are worried about your weight, but there are plenty of raw fatty foods to eat to maintain/gain weight. You may need to buy some raw food books from Amazon for some inspiration and how it all works. A good forum on raw food is:

[Edited link out]

I would love to do raw foods 100%, but it seems to late for me - my body just can't heal because Accutane does such damage that nothing works. If you have tried raw foods, then I'm not sure what else to suggest. But as you said that your acne went away for a bit when you changed your diet slightly, then diet could still be the key now. I know acne isn't something you want to have, but it's about choosing the lesser of two evils. You seriously don't want to risk getting permanent health problems and be part of this.

On 7/22/2012 at 7:02 PM, jmsil said:

Really good that you're not going to go ahead with it yet. Sergio and a few others here have mentioned it, but have you tried the raw food diet (100% raw foods), or would be willing to try it? That diet works on every level because you are only putting into your body what nature intended. I know you said you are worried about your weight, but there are plenty of raw fatty foods to eat to maintain/gain weight. You may need to buy some raw food books from Amazon for some inspiration and how it all works. A good forum on raw food is:

[Edited link out]

I would love to do raw foods 100%, but it seems to late for me - my body just can't heal because Accutane does such damage that nothing works. If you have tried raw foods, then I'm not sure what else to suggest. But as you said that your acne went away for a bit when you changed your diet slightly, then diet could still be the key now. I know acne isn't something you want to have, but it's about choosing the lesser of two evils. You seriously don't want to risk getting permanent health problems and be part of this.

Ok...what about low dose accutane at 20 MG? Heard of that? I want to try things like that but...ugh. And it's so hard to gain weight on that diet i'm already small.What a stressful decision this has all been..

I can tell your not keen on the idea of raw food, but something like this in a typical day: a big fruit smoothie (400 calories), 200g nuts or seeds (1200 calories), one bunch of (6) bananas (600 calories) and one large salad including greens, healthy oils and avocados (400 calories) would give you a total of 2600 calories quite easily, and as the recommended daily allowence for calories is 2000, you 'should' gain weight. Sergio above mentioned the 80/10/10 raw food diet which has a book for daily food plans but even I think that's very hard to do to get (and enjoy) eating so much fruit to get the calories.

I started at only 20mg Accutane a day until it was halved some months later. I know your trying to think of everything possible to avoid the side effects, but you can't prevent them - if Accutane is strong enough to take away the acne (which in itself is a side effect as this drug is meant for cancer) then you will get other side effects. To flip it over, you may go on the drug and get no side effects (permanent ones) and wonder what the fuss was about. You just need to not become ignorant and ignore what can go wrong. It isn't worth the risk, but to you, at this moment in time, you're desperate and you may think it is. All I will say is there isn't all the controversy about Accutane for nothing. Just last month, another 2 Accutane cases were won by former Accutane users and Roche had to pay them $9 million each in compensation. It's up to you.

On 7/23/2012 at 9:29 AM, Mahweeoh said:

On 7/22/2012 at 7:02 PM, jmsil said:

Really good that you're not going to go ahead with it yet. Sergio and a few others here have mentioned it, but have you tried the raw food diet (100% raw foods), or would be willing to try it? That diet works on every level because you are only putting into your body what nature intended. I know you said you are worried about your weight, but there are plenty of raw fatty foods to eat to maintain/gain weight. You may need to buy some raw food books from Amazon for some inspiration and how it all works. A good forum on raw food is:

[Edited link out]

I would love to do raw foods 100%, but it seems to late for me - my body just can't heal because Accutane does such damage that nothing works. If you have tried raw foods, then I'm not sure what else to suggest. But as you said that your acne went away for a bit when you changed your diet slightly, then diet could still be the key now. I know acne isn't something you want to have, but it's about choosing the lesser of two evils. You seriously don't want to risk getting permanent health problems and be part of this.

Ok...what about low dose accutane at 20 MG? Heard of that? I want to try things like that but...ugh. And it's so hard to gain weight on that diet i'm already small.What a stressful decision this has all been..

Please dont. Each and everyone of us could write a book about why you should not take it. Unfortunately we dont have the energy, just read these last 80 pages and make a decission. People are not making this up. I did not think this was possible before it hit me, but it did, sometimes still hard to realize... Yes people have been damaged by only 20 MG dosages. The pushers usually increase treatment time if they lower the dosage, but people have gotten serious issues with small dosages even after little time. I tried tetracycline first, by law you have to try "everything" before you take accutane. But the docs made extremely poor effort , put me on tetracycline for some weeks before throwing me on a high accutane dosage. If i had done any research before i went to the docs i would never have touched any of them, of course the docs who make millions selling it will promote it, thats why they went 10 years to school, to bee rich, its like taking the word of a used car salesman.

The main purpose of accutane was to lower the bloodsupply to the brain and hinder the creation of new cells. This could be beneficial for last stage braincancer tumors, as it would hinder further growth. Not a good thing for a young person without lifethreatening inopperatable tumors. The dermatologists are somewhat hesitant about telling you that disapperance of acne originally only was a side effect. There are group lawsuits in norway aslo, like there was 10 years ago also, they all loose, but soon they will win, the evidence and damaged people are pooling up, research in other countries are getting stronger, and in sweeden for example its beieng totally banned now i think. The doc who gave me the poison is an old fart that is member of head of dermatologists in norway, it is the same people who sell it and make money out of it that make the decission to ban or keep selling the stuff.