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On 9/10/2017 at 0:02 AM, mariovitali said:Correct, you go to a private clinic which has a Fibroscan device and you just pay to get the test. There is also a club of people having Liver disease/ hepatitis C that owns a Fibroscan device and they travel around Greece performing Fibroscans totally free. I saw a test performed by their doctor and its the best i have seen in terms of quality. Unfortunately i am not in Greece right now as i am working abroad.
it sounds like in the US, there is even a better liver test then fibroscan that mayo invented its called a MRE liver scan. I'll continue to monitor blood liver function tests, but im not sure if I'll be able to get either one of these tests ordered by a doctor with no other markers of liver inflammation. The best I could do is show them the study you posted and my history of accutane and how it might affect the liver. If tanedout was able to get a liver ultrasound, with no elevation of liver enzymes, maybe its a possibility.
On 9/11/2017 at 11:30 AM, ACCUiTy_drANE said:Note that it is not hysteria or pseudo-science to say Accutane causes pro-aging effects. That is exactly how it is so effective at treating cancer and acne. Cancer is essentially cellular division run amok, and Accutane effectively halts cellular division in several places in the body (brain, skin, intestines, muscles, etc.) through different pathways (telomerase downregulation, FoxO upregulation). Good for cancer (short term), bad for healthy aging. All of the evidence is there. And like other chemo drugs, Accutane also leads to issues like hormone deficiency and cognitive impairment. It's all related.
I think this could be a two step process. Accutane stops cancer growth. Stops cells from dividing. Accutane stops growth. Depending on when you took accutane, you might not reach your full growth potential. Your bones dont reach their full growth potential. Eventually once you stop growing, just like in normal life, the opposite might start to happen, that paradoxically increases/speeds up the aging process.
The extra Vit A that I take is in fish oil.
The interesting thing with Vit A is yes you can take it and feel worse - this kinda gives me hope as it might mean we still have too much A stored in the liver, it might also mean the body after tane doesn't know what to do with A.
So the shortening of telomeres might not be the main reason we feel bad - I don't know for sure as we don't have anyone testing high in A that I know of on here?
All I know is even after 20 years you absolutely can feel worse after consuming Vit A - this surely has nothing to do at this stage with any so called shortening of telomeres.....it would be more to do with the liver!!
Dries out your skin, including your gums and genitals FOREVER . Dries out your eyes and gives you floaters forever. gives you leaky gut and IBS. messes with your bones. messes with your hippocampus , I really don't think being $%^&ing chronically dehydrated is very healthy for you another patented POISON . Is it any wonder that this drug has been banned in numerous countries around the world .
So I have some type of abnormal protein on my SPE test. Doc wants to dive in more. Finally something that came up ABNORMAL
Feels good to know we're not fucking crazy sometimes
1 hour ago, Colinboko said:So I have some type of abnormal protein on my SPE test. Doc wants to dive in more. Finally something that came up ABNORMAL
Feels good to know we're not fucking crazy sometimes
That's excellent. Good but not good. Maybe another crack in the case. This could circle around some things mentioned on here. I'm going to see if I had this blood test, if not I'm getting it today.
1 minute ago, guitarman01 said:1 hour ago, Colinboko said:
On 5/7/2011 at 8:07 AM, IndigoRush said:Hello.
First of all, don't get too excited if you're in a similar situation to me and were hoping this post would hold the fix for long-term (Ro)accutane damage. I just wanted to express my situation and see if anyone can help.
I'm bored of reading depressing no-way-out answers and I refuse to give up and stop trying to fix myself. I'm also not inviting those who say the side effects aren't caused by this drug - I am 100% sure, and have read enough posts from others to know that Accutane isn't simply 'out' of your system after a month. I've read several theories into why things like IBS, Erectile Dysfunction and knee problems can occur months or years after stopping treatment. I'm talking about the liver storing the high-levels of Vitamin A, Accutane staying in the colon, and even something - which if it's true means only bad news - to do with DNA change and 'Telomere' shortening, which means a slow but sure decrease in health(This has been written by Nathan Carr, who you may of heard of).
But I'm not writing to find out which of these theories, if any, is true. I want to see if anyone can actually give good advice on supplements/diet, or whatever else, to repair damage from this poison.
Below, I will list the details of when I took this drug and what side effects I have + how I cope with life. One last thing - Anyone saying that these side effects are rare, i.e 1%, forget it. 1% reported. Since taking this drug, my life has been limited and difficult. I'm not in that 1% statistic because I haven't reported it directly to the manufacturer. I expect the figure is a lot higher.
As I said, side effects can come on AFTER taking this, so people could be ignorant to the cause. However, I know better, and after watching my health drop dramatically while/after taking Accutane, I can firmly say it's the cause. Let's begin ...
Basics: I'm 21 at the end of this month. It's now 5 years since I touched Ro-accutane (Ro-accutane is just the British name for it). I took it from December 2005 - May 2006. I was meant to finish in June, but stopped due to feeling very depressed/suicidal (because of the drug). My problems are below...
- Dry Eyes (Severe)
- E.D/ Low Libido (Started last year and has gone on consistently since)
- Hair-loss (Including eyebrows, facial hair 'gaps' and body hair)
- Slow Healing (Shaving is a pain now - No, it's not my technique)
- Lack of sebum (oil)
- Brain Fog/ Memory problems - Somewhat minor
- Anxiety (mainly because of the other side effects - i.e. dry eyes causing me to feel embarassed about eye contact)
- Excessive hair (Not related to head, but my beard grows high up on cheeks and even on the outside of my nose)
- I believe I look older than I should due to lack of oil
- Joint/Muscle problems - Aches/ Slow recovery
- Excessive sweating.. Terrible if I go running at the gym, for example.
- Dry mouth
- Nosebleeds more than I should
- Fatigue
- Overall depression and confusion (*Rhetorical question* Is this a direct symptom or am I like it because of all the other side-effects stressing me out?)
That's what I can think of for now. Of course, I wasn't told about half of these being a possibly problem and I was told any side-effects will be temporary. I was 15, so I had no reason not to trust the Doc's word.
I've tried lots of different supplements (a lot of which I still take just incase they are helping/slowing down the problems) including Omega 3, Biotin, B-Complex, Vitamin E, Vitamin D, Vitamin C, Collagen, Hyaluronic acid, Aloe Vera Juice, MSM, Colostrum, Garlic, Acetyl L-Carnitine, Acetyl L-Cysteine, Milk Thistle, Dandelion Root, Quercetin, Tumeric.
So, yeah, I've tried a lot of things. The Milk Thistle and Dandelion Root are recent additions because despite having my liver test results come back as positive, I've heard your liver can still not be functioning correctly and people are given liver tests monthly while taking this drug for a reason, right? I'm starting to eat better foods as this sh*t taught me that Natural is the way to go. I still binge on cakes and that occasionally - Mainly for comfort. I'm average weight and height, but want to cut out processed foods to support my body.
I don't want to make this EXTREMELY long, so I'll cut it short. I'm currently seeing a Homeopathy about these problems. And Yes, I know "Science says it's boll*cks", and I don't understand how it's supposed to work, but sometimes you have to think outside the box and give things a go. I don't have high hopes for things getting better these days, but I'm not giving up. There is so much more I could say, but let me know your thoughts. I don't want to hear negative and hopeless responses. What HAS helped you? Acne.org seems to be the biggest place to speak about this, but we NEED the word out, so the 'experts' can do the research instead of hoping for someone else to fix us.
Thanks for reading,
Indy.
read the first ever post in this thread from back in 2011, wow! I hope that you've been able to figure out some remedies for the side effects of Accutane. I took Accutane almost 10 years ago, and I think I was somewhat naive to the effects...you know just desperate for a cure for acne. But even through all that I put my body through, it came back.
I realized that I was straining my body so much with all these prescription medications, and my hormones felt all out of wack.
Some supplements that I"m taking are omega-3 fish oils, L-lysine, I was taking zinc for awhile too, and good probiotics.
I dont' know if it was mentioned in this thread already, but there's a thing called the Mind-Gut connection. A lot of naturopaths/ homeopaths, even other doctors believe that a buildup of bad bacteria in our gut actually contributes to toxicity and inflammation-> depression, anxiety, and a host of other problems. Bad bacteria in our gut effects the emotional centers of our brain. Professors/ doctors at UCLA have even studied this.
Some scientists have even done tests with mice where a depressive state is one where they stopped swimming to save his life (in a container that was too deep for his feet to reach the bottom). Antidepressants effectively allowed them to swim for longer, so they have more motivation to keep alive.
They fed mice with probiotics (like lactobacillus rhamnosus) and they swam longer with more motivation, and their blood also showed signs of less stress hormones.
Probiotics help replenish the "good bacteria" that is actually necessary and lacking in our lifestyles + add to the fact that we are so dependent on prescription medications. They also help us to process the nutrients from food and produce important neurotransmitters, like serotonin (responsible for good mood).
You can find probiotics in sauerkraut, kefir, kimchee, yogurt, and lots of other foods, and they have millions of active cultures.
I hope this helps!! 
23 minutes ago, Nemesisbrady said:Love how my stuff is deleted when I'm tying to help by saying some of us are consuming too much a and some are avoiding
good luck everyone I'm off this
11 years and I am not better I doubt this drug goes awaytske care
that is kind of messed up, there should be some dialog about it. I would say stick around for now, the more people we have looking into this the better. I feel there is good timing right now of some things being simultaneously looked into.
On vitamin A,
18 hours ago, TrueJustice said:The interesting thing with Vit A is yes you can take it and feel worse - this kinda gives me hope as it might mean we still have too much A stored in the liver, it might also mean the body after tane doesn't know what to do with A.
I could say this for about 20 other supplements as well. I also feel ive taken worse things then vitamin a.
Im not sure based on some of these universal symptoms that also seem to relate to PFS and CFS its vitamin a exclusive.
It maybe was an environmental trigger. Generic.
Ive self induced much worse symptoms over the past year and it had nothing to do with ingesting vitamin a.
if my liver was already stressed, thats one thing. So far I havent found any signs of that short of a liver scan.
3 hours ago, guitarman01 said:That's excellent. Good but not good. Maybe another crack in the case. This could circle around some things mentioned on here. I'm going to see if I had this blood test, if not I'm getting it today.
What types of things could this possibly point to? Haven't really researched it yet. Been in class all day
4 hours ago, Colinboko said:So I have some type of abnormal protein on my SPE test. Doc wants to dive in more. Finally something that came up ABNORMAL
Feels good to know we're not fucking crazy sometimes
This is how this relates. im thinking right here lymphatic system. what I posted awhile back how it might regulate brain health.
this can be associated with lymphoma. not that you have this. Im also thinking k2 here still.
Why It Is Done
Serum protein electrophoresis is most often done to help diagnose and monitor a wide variety of conditions. These include:
- Some forms ofcancer.
- Problems with thekidneysorliver.
- Problems with the immune system.
- Conditions that lead to poornutrition.
What Abnormal Results Mean
Increased alpha-1 globulin proteins may be due to:
- Acute inflammatory disease
- Cancer
- Chronic inflammatory disease (for example, rheumatoid arthritis, SLE)
Decreased alpha-1 globulin proteins may be a sign of:
- Alpha-1 antitrypsin deficiency
Increased alpha-2 globulin proteins may indicate a:
- Acute inflammation
- Chronic inflammation
Decreased alpha-2 globulin proteins may indicate:
- Breakdown of red blood cells (hemolysis)
Increased beta globulin proteins may indicate:
- A disorder in which the body has problems breaking down fats (for example, hyperlipoproteinemia, familial hypercholesterolemia)
- Estrogen therapy
Decreased beta globulin proteins may indicate:
- Abnormally low level of LDL cholesterol
- Malnutrition
Increased gamma globulin proteins may indicate:
- Bone marrow cancer called multiple myeloma
- Chronic inflammatory disease (for example, rheumatoid arthritis)
- Overactive immune system (hyperimmunization)
- Acute infection
- White blood cell cancer called Waldenstrom macroglobulinemia
- Chronic liver disease
37 minutes ago, guitarman01 said:This is how this relates. im thinking right here lymphatic system. what I posted awhile back how it might regulate brain health.
this can be associated with lymphoma. not that you have this. Im also thinking k2 here still.Why It Is Done
Serum protein electrophoresis is most often done to help diagnose and monitor a wide variety of conditions. These include:
- Some forms ofcancer.
- Problems with thekidneysorliver.
- Problems with the immune system.
- Conditions that lead to poornutrition.
What Abnormal Results Mean
Increased alpha-1 globulin proteins may be due to:
- Acute inflammatory disease
- Cancer
- Chronic inflammatory disease (for example, rheumatoid arthritis, SLE)
Decreased alpha-1 globulin proteins may be a sign of:
- Alpha-1 antitrypsin deficiency
Increased alpha-2 globulin proteins may indicate a:
- Acute inflammation
- Chronic inflammation
Decreased alpha-2 globulin proteins may indicate:
- Breakdown of red blood cells (hemolysis)
Increased beta globulin proteins may indicate:
- A disorder in which the body has problems breaking down fats (for example, hyperlipoproteinemia, familial hypercholesterolemia)
- Estrogen therapy
Decreased beta globulin proteins may indicate:
- Abnormally low level of LDL cholesterol
- Malnutrition
Increased gamma globulin proteins may indicate:
- Bone marrow cancer called multiple myeloma
- Chronic inflammatory disease (for example, rheumatoid arthritis)
- Overactive immune system (hyperimmunization)
- Acute infection
- White blood cell cancer called Waldenstrom macroglobulinemia
- Chronic liver disease
Yikes! That's a lot! I don't now exactly what was elevated or decreased but I know for sure I have an abnormal protein. They're having me do a urine sample to further evaluation. I swear to god if this god damn drug gave me cancer....
2 hours ago, Colinboko said:Yikes! That's a lot! I don't now exactly what was elevated or decreased but I know for sure I have an abnormal protein. They're having me do a urine sample to further evaluation. I swear to god if this god damn drug gave me cancer....
I highly doubt its cancer at this point, especially for your age. Some people have been dealing with these same type symptoms for years. If it was cancer they'd be dead by now.
I just got this same blood test you did. it does seem to cover alot. So lets see.
7 hours ago, TrueJustice said:Cancer would be identifiable....
As you know our condition is much worse than that - we're all left in a state that mimics every known condition to mankind without ever clearly showing it!!
Yeah it's definitely not cancer - I've seen people who took the drug 30 years ago and they're still alive but living with side effects. I remember one guy being well into his 70s having taken it decades prior.
A new project involving Post-Retinoid Sexual Dysfunction that might be of interest:
2 hours ago, Kynarr said:A new project involving Post-Retinoid Sexual Dysfunction that might be of interest:
That's pretty awesome! That link should be posted wherever you see accutane/finasteride sides being discussed!
QuoteLaunching the RxISK Prize
September 12, 2017 | 33 Comments
This Prize is part of a two-pronged attack on the unwillingness of the medical and regulatory establishments to listen to people with adverse events in general “ not just the sexual dysfunctions mentioned here. The second front in the attack will be unveiled in a few weeks™ time.
The problem
The idea for a RxISK Prize began with our involvement with sufferers from Post-SSRI Sexual Dysfunction (PSSD) some years ago, and soon after people with comparable problems following Accutane and Finasteride. The motivation and endurance of those affected has been inspiring.
A complete and permanent wipe-out of your ability to make love is among the most debilitating side effects of a drug imaginable. In the case of all these drugs when it happens it affects men and women, young and old, can appear after a few days on the drug or only after treatment stops. It can last for decades, perhaps longer. It leads to suicides, the break-up of relationships and job losses. There is no upside to it.
PSSD shares many common features and looks like it is closely related to Post-Finasteride Syndrome (PFS), and Post-Retinoid Sexual Dysfunction (PRSD) triggered primarily by isotretinoin (Accutane). Isotretinoin is both a serotonin reuptake inhibitor and a 5-alpha reductase inhibitor (5ARI), so it could give rise to PSSD or PFS, or all three conditions may have something else in common.
We have recently submitted a paper for review describing 300 cases of PSSD, PFS and PRSD, and we are aware of many more cases and comparable phenomena happening on some other drugs. There may be tens of thousands affected as some evidence suggests that less than half of those who have been on SSRIs for months will regain full and normal function.
There are communities online and linked to universities researching these conditions as vigorously as the AIDS community once got involved in the search of a cure for AIDS. The most successful of these so far have been linked to PFS, with sufferers having created a Foundation to promote research on this condition. The research done by these groups have followed up all of the obvious treatment leads but nothing so far has worked.
A pharmacological mystery
The problems need more thinking out of the box. While serotonin and 5-alpha reductase may be where these problems start, they seem to go beyond this.
The fact that these conditions can appear after treatment stops and endure in the absence of any drug in the body for years is tremendously important to pharmacological science. This is not simple damage in that many sufferers report having temporary restorations to normal. It™s only temporary, but the fact that it happens is both a source of hope and something that in its own right needs explaining. These conditions are one of the central mysteries of pharmacology.
It is important to crack what™s going on because many doctors were inclined to dismiss PSSD, PRSD and to a lesser extent PFS, especially when it began after the person stopped treatment or when it persisted for so long in the absence of the drug. After an antidepressant, it™s very easy to claim that the problem is all in the mind. At the moment, psychiatrists seem to be the worst of all doctors, with urologists the best, and family doctors in the middle.
But PSSD, PFS and PRSD are not the only conditions in which there are enduring problems that may only appear after treatment stops. Tardive dyskinesia (TD) following antipsychotics has been recognized since 1959 and no-one thinks this is all in the mind or that it is impossible when it appears after treatment stops. But at the moment, TD has not been linked to PSSD, PFS or PRSD, and fifty years later we don™t know how it happens or how to cure it.
Another group of problems that share features in common are the withdrawal syndromes linked to antidepressants, antipsychotics and dopamine agonists. Like PSSD or TD, these appear on or after treatment and can last for years, even decades.
Now that we have a range of different drugs that can trigger these phenomena and can trigger them in different bodily systems, the chances of some pharmacologist or physiologist being able to explain what is going on should be much better.
Pinpointing the receptor systems or mechanisms involved could transform pharmacology. It would have implications for many drugs and drug development. There is probably a Nobel Prize for the person who can explain why TD or PSSD happens.
Picture or window?
You don™t have to know a thing about receptors to be fascinated by this problem and to appreciate that the picture of a patient with PSSD is actually a window on human nature and identity.
Pretty well 100% of the people who take an SSRI will have some genital numbing within 30 minutes of taking their first pill. We don™t know what causes this. This is a problem right in front of the noses of millions of people. It™s astonishing that we don™t know how this happens. Answer this and we would be half way to finding out what happens to make it endure.
Another astonishing thing is that many of the withdrawal syndromes from drugs involve burning feet, loss of smell, disturbed balance or other odd sensations. These are features of a peripheral neuropathy. The peripheral neuropathies first appeared in medical textbooks 150 years ago before we knew we had brain cells, but we still know nothing more about how they happen than the day they were first described, even though we don™t have to look inside the body to research them.
There are good reasons to think there is a lot more of œus in our skin and genitals and bodies than we are now inclined to think. We are in a brain dominated era and missing out on things that we may not need input from brain experts to solve.
Who dares wins
It is not clear that specialist training is needed to solve these problems, anymore than John Harrison had specialist training when he won the Longitude Prize, 300 years ago.
Some background in biology may help, but even without this you may already have found something that makes a difference and just didn™t know there were so many people out there desperate to know what you know.
You might be a doctor or a data analyst who notices that some patients taking another drug just don™t seem to get the same problems.
For those entirely new to the issues, or those with a pharmacological or physiological background but no awareness of these issues before now, or someone who knows something about it but little about the full range of things that have been tried without success or noted to offer temporary benefits, RxISK has a portfolio of descriptions and leads that can be made available on request.
The prize
We are following in the footsteps of the method that led to a solution to the famous Longitude problem in instituting a Prize.
The first step is to raise $100,000 toward a Prize for a Cure. We would like as many people as possible who are affected or related to someone who is affected to make a donation of $200 towards a target fund of $100,000.
As mentioned, solving this problem will likely make a major contribution to solving the enduring withdrawal syndromes that affect anyone taking antidepressants and antipsychotics. Five per cent of the populations of North America and Europe, and anywhere else where antidepressants are used on the same scale, are unable to get off treatment because of withdrawal problems “ that is 50 million people in North America and Europe alone. Fifty million cents would be $500,000 “ so a target of $100,000 seems more than reachable.
The Prize will be offered to anyone who finds a cure for PSSD, PFS or PRSD. This could be a doctor, a scientist, a drug company, a member of the public “ anyone. There are no restrictions.
RxISK has several sufferers from each of these syndromes who have convincing enduring conditions. The Prize will be given if someone can bring about a restoration to normal, or very close to it, that endures in our volunteers.
There are several reasons why we chose to make this initiative about sexual dysfunction rather than other problems such as antidepressant withdrawal. Mainly because the time is right, and there is already a strong basis to build upon. As more than one type of drug is involved, there is also potentially a larger group of people to approach the problem from different angles.
If no one claims the prize, we will use the money to support the most innovative research proposal or donate it to the PFS Foundation who are already undertaking some elegant research.
The difference between a prize and a research grant is this “
In the case of someone who has a cure, assuming it is not costly to administer it, they give it to our volunteers and if it works, they claim the money. Their overheads and costs will be minimal.
Research like that being undertaken for PFS has to recruit perhaps up to 100 subjects and get all to take a large battery of tests which have to be paid for. If the testing involves brain scans, this is costly. If it involves genes, this means recruiting thousands of subjects. A research grant even for $100,000 would not go very far toward helping this happen. And at the end of the day, research can end up with findings but no guarantee that these are the source of the problem rather than a consequence.
But in the absence of a Prize winner, the PFS Foundation already have a research infrastructure in place and research findings that can be built on, and so the money would go further there than anywhere else.
Who can donate?
Anybody. We welcome donations from not just those affected by these conditions, but from anyone who wants to help. We have suggested a minimum of $200 in order to reach our target quickly, but we are aware that money is tight for a lot of people.
Obviously any donations over $200 are most welcome, as are monthly donations.
If anyone organizes a fundraising/sponsored activity, we will publish details on the website.
How to donate
Donations can be made in one of three ways:
- US taxpayers can make a tax-deductible donation via the Foundation for Excellence in Mental Health Care using this link. Make sure you select RxISK Prizewhen asked what the donation is for.
- UK taxpayers can make a tax-deductible donation via this link.
- Other donors can make a non-tax-deductible donation via this link.
If anyone wishes to set up a linked fund that will support tax-deductible donations in another country, please contact us, and we will network into you.
While this initiative is focused on sexual dysfunction, we believe that it also draws attention to the more general fact that patients can be left with persistent side effects after the use of medications, some of which can be life-changing.
We hope that anyone interested in persistent side effects, either because they suffer from them or because they can see this is likely to be an important new frontier in medicine, will consider this Prize a cause worth supporting.
6 hours ago, Kynarr said:A new project involving Post-Retinoid Sexual Dysfunction that might be of interest:
we are all due more than a 100k though. if this was really figured out and could be proven to be drug induced, im sure it would be. Also based on some symptoms described there could be some more serious things going on then just ed. for post accutane and fin. and yes i know ed is serious enough as well.
19 hours ago, TrueJustice said:Cancer would be identifiable....
As you know our condition is much worse than that - we're all left in a state that mimics every known condition to mankind without ever clearly showing it!!
I agree with the second part, not so much the first. this is a little off topic, but alot of cancer kills because people might be living with it for years and dont even know it, by the time they do its too late. alot of times its accidently discovered from other routine exams. thats why they do some screenings and are looking at some newer blood tests for early detection. let me just add noone has cancer on here, to not freak anyone out.
23 minutes ago, guitarman01 said:we are all due more than a 100k though. if this was really figured out and could be proven to be drug induced, im sure it would be. Also based on some symptoms described there could be some more serious things going on then just ed. for post accutane and fin. and yes i know ed is serious enough as well. I agree with the second part, not so much the first. this is a little off topic, but alot of cancer kills because people might be living with it for years and dont even know it, by the time they do its too late. alot of times its accidently discovered from other routine exams. thats why they do some screenings and are looking at some newer blood tests for early detection. let me just add noone has cancer on here, to not freak anyone out.
Quick question @guitarman01, is it possible to have hyperimmunization without an identifiable "name"? Like is it possible we have chronic inflammation that may not read as lupus or sjogrens? I know doctors like to have names but like what if my ANA comes back negative but I have an abnormal protein on my serum electrophoresis which either identifies some type of inflammation or cancer. And I sure hope it's not cancer. I'm just curious. I also haven't had a CRP or sed rate test done either..
Did blood tests last month and some things to note:
creatine - .77 (.76-1.27) very low
A/G Ratio - 2.4 (1.2-2.2) Abnormally high
Immunoglobolin - 3 (0-19) low
WBC - 4.5 (3.4-10.8) low
Monocytes - .2 (.1-.9) very low
even though most tests were within the "normal" range, most were either on the low end or high end which isn't good. Most that came back really low or high dealt with low white blood cell count and immune response, which makes sense since this is all likely a result of an impaired immune response.
The only one to come out of range was the A/G ratio. Mine was higher than normal which usually is a sign of chronic inflammation, hepatitis or bone marrow disorder.
Im getting a bilateral hip x-Ray tonight because my digestion has been increasingly worse this past month. Will post results.
On 9/15/2017 at 4:33 AM, Colinboko said:Quick question @guitarman01, is it possible to have hyperimmunization without an identifiable "name"? Like is it possible we have chronic inflammation that may not read as lupus or sjogrens? I know doctors like to have names but like what if my ANA comes back negative but I have an abnormal protein on my serum electrophoresis which either identifies some type of inflammation or cancer. And I sure hope it's not cancer. I'm just curious. I also haven't had a CRP or sed rate test done either..
im sure there are many types/causes of chronic inflammation.
my ana, sed rate, and crp have always been negative.
we'll see about this protein electrophoresis test. I should have the results in a few days.
when you get a chance maybe you can find out what was abnormal.
when I did a search at walkin lab for this test, I just happen to click on home test kits, and this is what came up.
not sure what kind of associations they are using. This might mean nothing, but still worth noting.
SEARCH RESULTS FOR 'SERUM PROTEIN ELECTROPHORESIS'
Vitamin K AssaySerumBlood Test - Genova Test Kit
Vitamin K is a fat-soluble vitamin that functions as a cofactor in the production of blood coagulation factors (in the liver),..[Edited image out][Edited image out][Edited image out]Cardio Metabolic Blood Spot Profile - ZRT Test Kit
Assesses risks associated with type 2 diabetes and cardiovascular disease. Tests in this profile include: Insulin, High Sensitivity...IgE Inhalants Blood Test- Genova Test Kit
Chemiluminescent test to evaluate serum IgE antibody levels to 14 region-specific common pollens and environmental inhalants. This...Food Antibodies 90 Blood Profile, Allergix IgG4 - Genova Test Kit
Measures the IgG4 levels in serum that react to 90 different foods, including commonly eaten foods such as corn, milk, egg, and...