Acne.org Products
11 hours ago, Fchawk said:Hey everyone, this is just a 5 months update from this post. So far, I think that this is method of tackling the side effects of accutane is very effective. It isn't instant, but neither is it expensive or risky in the slightest. Even if you had no health problems doing these things would only improve your health, and most, if not all, of these things you could buy at the supplement aisle of your supermarket, maybe for creatine you may have to go to a supplement store, but I have seen them in supermarkets too, usually just a bit dearer.
Currently I feel I am pretty much 100%, and maybe I am lucky, but I just wanted to let you know it has worked for me, and the post below explains why it should work in greater detail
All in all, I think that I am having a lot of success with this, and encourage any interested to try it as well. Pretty much all the necessary research is up above, and I think that this is the best way to make a full recovery. Good Luck!
I agree with this 100%. The anti depressants have made me feel " normal" and other than the anti depressants the cannabis has been the only other thing to give me temporary relief. The mind does play a huge role in this. Maybe that's why I had such bad head pressure? My mind was trying to compensate for something that was lost. I do firmly believe recovery can be achieved and a lot of it comes down to the will and motivation to get better. If you're 100 % determined to beat this you will get back to the normal state or at least a manageable state. I find I'm at my worst when I visit this forum because of all the negative posts and I'm at my best when I'm just hanging out with friends and family and acting like nothing's wrong. Yeah, the pain might still be there, but I don't notice it as much and it doesn't interfere with daily living.
I I will say finding this forum at first scared the shit out of me and I thought I would never get better. But 8 months post Tane and I'm in a much better state than I was in the beginning.
Dont give up guys!
7 hours ago, TrueJustice said:Pls be more specific, you're taking all of these products mentiond, or just some of them??Article talks a lot about brain damage, proven brain damage in fact through testing!! Is that what you've done? All this testing?
I am taking:
Creatine
Fish Oil
Zinc
Magnesium
Vitamin D
CoQ10
Multivitamin
I am also taking BCAAs and getting plenty of protein in my diet, because of this article, and because I play sport regularly. https://www.ncbi.nlm.nih.gov/pubmed/21239090
I meditate ~3 times a week on average, and would prefer to do it more, but I feel that even the bit that I am doing is helping. I didn't do the testing itself or participate, but I am following the recommendations of many of the studies as I have said above. I went keto for a month as well, but I went interstate for several weeks and fell out of that habit.
On 6/14/2017 at 7:10 PM, Kynarr said:Here's an email I've received. Those who are trying to spread information regarding Accutane, definitely contact them. Can't hurt.
Kynarr,
I hope you don't mind us contacting you.We're trying to get a better understanding of the genital anesthesia reported in some cases of persistent sexual dysfunction after using isotretinoin.Particularly, we are trying to understand whether this genital numbness appeared immediately upon starting the drug (ie. after the first dose) or whether it developed later.Is this something you have experienced, and if so, at what point did it develop?RxISK
How did rxisk get your email address?
5 hours ago, hatetane said:On 6/14/2017 at 2:10 PM, Kynarr said:Here's an email I've received. Those who are trying to spread information regarding Accutane, definitely contact them. Can't hurt.
Kynarr,
I hope you don't mind us contacting you.We're trying to get a better understanding of the genital anesthesia reported in some cases of persistent sexual dysfunction after using isotretinoin.Particularly, we are trying to understand whether this genital numbness appeared immediately upon starting the drug (ie. after the first dose) or whether it developed later.Is this something you have experienced, and if so, at what point did it develop?RxISKHow did rxisk get your email address?
Their website changed over the years and I believe parts that used to be, are no longer, but I vaguely remember posting about my sides on there. That's probably how.
48 minutes ago, Kynarr said:Their website changed over the years and I believe parts that used to be, are no longer, but I vaguely remember posting about my sides on there. That's probably how.
Can everyone please report their sides to Rxisk. You probably all know that Dr Healey is the only doctor speaking out about accutane.
Did anyone watch Panorama - A prescription for Murder?
https://www.hindawi.com/journals/crirh/2011/317379/
This is super interesting to me... considering I'm suffering from left vocal cord palsy..........
41 minutes ago, Skipflip12 said:hey people, is there a iodine protocol somwhere? i read a lot about this and i dont know which information would be right.. maybe someone could be so kind and give me a link to the right protocol, please.
https://www.scribd.com/doc/222400050/The-Secret-That-Doubles-Testosterone
If you go to my post pg 8 you will find other articles on iodine
7 hours ago, Skipflip12 said:hey people, is there a iodine protocol somwhere? i read a lot about this and i dont know which information would be right.. maybe someone could be so kind and give me a link to the right protocol, please.
So I was looking at some things and realized people's success with iodine might have nothing to do with the thyroid, I see it mentioned alot with gut flora and dysbiosis.
7 hours ago, Colinboko said:This is super interesting to me... considering I'm suffering from left vocal cord palsy..........
What test diagnosed this again? from the ent right?
On 8/10/2017 at 7:06 PM, Colinboko said:Hey I was actually just about to message you. Do you have any more information on Babis by any chance? I found some posts by him on a dysautonomia site for AAG and his last status talks about how IVig has started to lose its' effect. Yet he won't try immunosuppressive drugs ? Why? I have no idea...
So just wanted to know if you were at all in touch with him.
No, I dont unfortunately, if you see him floating around any forums recently, let me know please.
Also could you link this dysautonomia site he was on? thanks.
On 8/10/2017 at 4:19 PM, tanedout said:This could indicate low vitamin D, but this would seem unlikely as I supplement 10,000ui every 2 days, and get plenty of sun (had this tested, waiting results but in the past it's been in range, although low end)
Low inorganic phosphate could also indicate Wilson's disease
I would be careful with vitamin D. Especially since you've mentioned racing heart/vascular type issues. This could be increasing Calcium absorption, which could be mishandled if there was any underlying issues with k2 post tane. I would think your vitamin D levels would be well in range. You know whats been looked at in the past, it wouldnt be a bad idea to get a copper serum along with a ceruloplasmin blood test to look at these by themselves and to also calculate free unbound copper.
Right now they are saying vitamin k2 is the new vitamin D and vitamin D isnt as great as once thought as a cure all.
http://www.medscape.com/viewarticle/834763
Is Vitamin K2the New Vitamin D?
on Vitamin D
After a whole lot of fuss and study, the Agency for Healthcare Research and Quality (AHRQ) issued a report this year that findsnoconsistent correlation between vitamin D and health outcomes such as cardiovascular disease, all-cause mortality, several types of cancer, or bone health.[1]Amazing.
On k2
Here are nine things every physician should know about vitamin K2:
It exists.
It is essential for life and health.
There is currently no reliable blood test to measure it.
Your body makes a certain amount via menaquinone-4 (M-4) in your gut from vitamin K1.
That may not be enough.
Your body probably needs more vitamin K2for disease prevention than it manufactures, so nutritional sources are important.
Foods rich in vitamin K2(often in the form of M-4 or M-7) include: natto (fermented soybeans); green, leafy vegetables; organ meats such as goose liver; grass-fed beef; dairy; eggs; and fish.
Or you can take nutritional supplements to achieve healthy levels of vitamin K2.
Deficiencies of vitamin K2are now being reported in serious journals to be associated withget thisall-cause mortality, cardiovascular disease, osteoporosis, diabetes, many forms of cancer, dementia, and chronic inflammation.
18 minutes ago, guitarman01 said:So I was looking at some things and realized people's success with iodine might have nothing to do with the thyroid, I see it mentioned alot with gut flora and dysbiosis. What test diagnosed this again? from the ent right? No, I dont unfortunately, if you see him floating around any forums recently, let me know please.
Also could you link this dysautonomia site he was on? thanks. I would be careful with vitamin D. Especially since you've mentioned racing heart/vascular type issues. This could be increasing Calcium absorption, which could be mishandled if there was any underlying issues with k2 post tane. I would think your vitamin D levels would be well in range. You know whats been looked at in the past, it wouldnt be a bad idea to get a copper serum along with a ceruloplasmin blood test to look at these by themselves and to also calculate free unbound copper.Right now they are saying vitamin k2 is the new vitamin D and vitamin D isnt as great as once thought as a cure all.
http://www.medscape.com/viewarticle/834763Is Vitamin K2the New Vitamin D?
on Vitamin D
After a whole lot of fuss and study, the Agency for Healthcare Research and Quality (AHRQ) issued a report this year that findsnoconsistent correlation between vitamin D and health outcomes such as cardiovascular disease, all-cause mortality, several types of cancer, or bone health.[1]Amazing.On k2
Here are nine things every physician should know about vitamin K2:
It exists.
It is essential for life and health.
There is currently no reliable blood test to measure it.
Your body makes a certain amount via menaquinone-4 (M-4) in your gut from vitamin K1.
That may not be enough.
Your body probably needs more vitamin K2for disease prevention than it manufactures, so nutritional sources are important.
Foods rich in vitamin K2(often in the form of M-4 or M-7) include: natto (fermented soybeans); green, leafy vegetables; organ meats such as goose liver; grass-fed beef; dairy; eggs; and fish.
Or you can take nutritional supplements to achieve healthy levels of vitamin K2.
Deficiencies of vitamin K2are now being reported in serious journals to be associated withget thisall-cause mortality, cardiovascular disease, osteoporosis, diabetes, many forms of cancer, dementia, and chronic inflammation.
Yes an endoscopy by literally the greatest laryngologist in illinois. He was SO interested in my problem and believes it is definitely autoimmune and referred me to a neurologist that I'll be seeing next week.
I spoke to my dermatologist today. To be fair, even though she's the one who prescribed me Accutane, she's been very helpful ironic, I know. I told her about my situation and that all the doctors I've been going to have been no help. So she referred me to a specialist who specializing in different medical fields and will help thoroughly examine me to find something to diagnose. She says all my symptoms are similar to multiple sclorosis? I don't know. im willing to take her help and I think she legitimately feels bad.
My parents also had a couple of suicide prevention therapist come to my house and talk to me because they were concerned I might harm myself and my parents are in LA and I'm in Portland.
it helped.
The funny thing is I still don't feel depressed. I just feel like the boy who cried wolf. No one will listen and everyone thinks I'm just making it up. It's quite maddening, actually.
Anyways, when you guys feel helpless talking to a therapist really does help.
I quit my job and I'm taking some time off to travel to the national parks in the west coast for a moth with one of my best friends. I think this is the best type of medicine and this will help determine if I'm still capable of doing normal shit a 24-year old does. Anyways, good luck guys!
Ill ll update in a month or so with progress.
12 hours ago, mikez said:Has anyone who's taken LDN found it lowered their appetite?
Substantially; almost on par with Adderall. In fact, Naltrexone is used in a commercial weight-loss product.
I may actually hit LDN Doctor back up for a prescription for LDN, as in the past few months I have felt neuropathic (?) pain developing in my arms and jaw. I am hoping it is merely a side effect of one of many the supplements I am taking, but I cannot be too sure about that. This "pain" has waxed and waned in previous years (post-Accutane) and I just tried to ignore it. I do not recall ever dealing with it while on LDN, but I wasn't paying attention. LDN is supposedly very effective for pain so I am hoping for the best. This is really a shame, because I always felt very thankful that I did not have to deal with chronic pain on top of everything else. But this weird, nagging pain affects me every time I have to lift something, type, text or even talk. It's just ridiculous. It feels like a "lactic acid" feeling, or like I am holding my arms outstretched for too long (except it's in my jaw too).
For anyone interested in LDN who lives in the U.S., LDN Doctor is the cheapest source even though it involves two (Skype) doctor appointments per year. As an additional benefit, it's a prescription so you know your stuff is legitimate and you don't have to worry if you pee positive for opioids, which is possible since Naltrexone binds to opioid receptors.
I hope your thing will pass. I don't know if our symptoms pass or if we just somehow unconsciously adjust.
I've had numerous physiological signs and symptoms of just crazy shit, that have disappeared over time, obviously the more permanent ones still remain (which you all know). But, old ones, For instance: I dealt with Benign fasciculation syndrome for years. All over the body. Random times. And now they have left and are just limited to my lips.
Regarding "lactic acid", I personally have lost all of that sensation immediately post tane. I exercise with different ranges of motion, and all types of muscle contractions, I run for miles and miles, and have no idea when to stop, because I don't have that lactic burning feeling any more. Eventually, my muscles fail, and I drop the weight, but I could literally do 12-15 sets of weights, or run a marathon, and have no signal to stop until the bones and tendons begin to fray. Then it takes 72 hours for my muscles to even react (delayed DOMS), so I have to calculate that too, when it used to be 24-48 my whole life. And it will be like painful bruising instead of that "good muscle soreness". Probably because of the low T and I'm damaging the muscles. Bs.
I'm almost waiving the white flag as far as trying to figure out the mechanisms of action by this drug. Especially without medical training. Just trying to see specialists to alleviate some of my biggest symptoms.
I found it quite amusing the other day while removing some of this medical 3m pore tape on my arms...Here I am, unable to feel anything when I read the news, or a loved one hugs me, and yet I feel the excruciating pain from a band-aid. Which I suppose is a relief...some parts of the brain still work. But this whole ordeal is such a malicious joke.
Also, the icing of the sick joke is that I had bad acne, super oily skin (which i miss now). I was on Tane for only a month. My acne has been gone for a decade. Not a single pimple. And I can go days without washing my face, weeks without washing my sheets, absolutely nothing.
Whatever Accutane does (retinoid toxicity) it definitely worked. Only cost me my brain, and muscles, and joints.
13 hours ago, ACCUiTy_drANE said:Substantially; almost on par with Adderall. In fact, Naltrexone is used in a commercial weight-loss product.I may actually hit LDN Doctor back up for a prescription for LDN, as in the past few months I have felt neuropathic (?) pain developing in my arms and jaw. I am hoping it is merely a side effect of one of many the supplements I am taking, but I cannot be too sure about that. This "pain" has waxed and waned in previous years (post-Accutane) and I just tried to ignore it. I do not recall ever dealing with it while on LDN, but I wasn't paying attention. LDN is supposedly very effective for pain so I am hoping for the best. This is really a shame, because I always felt very thankful that I did not have to deal with chronic pain on top of everything else. But this weird, nagging pain affects me every time I have to lift something, type, text or even talk. It's just ridiculous. It feels like a "lactic acid" feeling, or like I am holding my arms outstretched for too long (except it's in my jaw too).
Thanks for your reply. It seems to be lowering mine, which for me isn't actually ideal , as I struggle to eat as much as I used to as it is. Did this side effect wane for you over time?
Sadly, it doesn't appear to be helping my headaches and pressure sensation, although I haven't been on it that long.
Pretty interesting read here. This person was using a different marker of Vitamin D to show sickness and healing in CFS/ME. 1,25D serum. It was extremely high.
Extreme 1,25D is seen with autoimmune diseases and CFS this person says.
https://www.healthrising.org/blog/2013/06/13/a-person-with-chronic-fatigue-syndrome-recovers-and-a-gut-series-begins/
it wont let me copy and paste anything.
He also had an abnormal SPECT scan.
1 hour ago, guitarman01 said:Pretty interesting read here. This person was using a different marker of Vitamin D to show sickness and healing in CFS/ME. 1,25D serum. It was extremely high.
Extreme 1,25D is seen with autoimmune diseases and CFS this person says.
https://www.healthrising.org/blog/2013/06/13/a-person-with-chronic-fatigue-syndrome-recovers-and-a-gut-series-begins/
it wont let me copy and paste anything.
He also had an abnormal SPECT scan.
Interesting read. I have 2 close relatives who've suffered from ME/CFS, so it would definitely tie in that there's a genetic link. Both just recovered over time, not following any specific protocol. The fact that dosage of things like tane, finasteride, saw palmetto is also irrelevant also suggests genetic susceptibility - loads of people have all the symptoms from a single pill (for me I just took 10mg for 30 days)
My gastrointestinal tests showed similar results with regards to gut flora - my lactobacillus and beneficial e.coli species show no growth. This also ties in with about 15-20 PFS guys who have had this test run, and showed similar trends.
Regards sorting this out, it clearly isn't easy. I've got a load of mutaflor in the fridge still - planned to take this over a couple of months, but it just makes me constapated. Might give it another go. I have found the effects of probiotics have varied at different times. Prescript Assist used to make me really bloated to the point of being uncomfortable, but taken a few months later didn't have this effect.
https://www.anabolicmen.com/dht-supplements/
Does anyone know the status of DHT in accutane victims?
I know DHT is supposedly low in FIN guys but not always right?
On 8/15/2017 at 12:35 AM, hatetane said:https://www.anabolicmen.com/dht-supplements/
Does anyone know the status of DHT in accutane victims?
I know DHT is supposedly low in FIN guys but not always right?
[Edited video out]
On 8/15/2017 at 12:35 AM, hatetane said:https://www.anabolicmen.com/dht-supplements/
Does anyone know the status of DHT in accutane victims?
I know DHT is supposedly low in FIN guys but not always right?
My DHT is high - some PFS guys are high, some low, doesn't really make any difference with regards to serum (blood) levels. Almost certain that in all casescerebrospinal fluid (CSF) levels of DHT are low though. For anyone that hasn't already seen this study;
[Edited link out]
This could be that possiblelow grade
brain inflammation
Researchers have shown that lymphatic vessels extend into the brain.
Researchers have identified two networks: the vessels that lead into and surround the brain, and those within the brain itself. The first is known as the lymphatic system for the brain, while the latter is called the glymphatic system. The g added to lymphatic refers to glia, the kind of neuron that makes up the lymphatic vessels in the brain. The glymphatic vessels carry cerebrospinal fluid and immune cells into the brain and remove cellular trash from it.
When the systems malfunction, the brain can become clogged with toxins and suffused with inflammatory immune cells. Over decades, this process may play a key role in Alzheimers disease, Huntingtons disease, Parkinsons disease and other neurodegenerative illnesses, research suggests. This is a revolutionary finding, Nedergaard says. This system plays a huge role in the health of the brain.
Any suggestions on LDN? Im getting some from my naturopath provider on Thursday.
Main issues:
head pressure
muscle pain and fatigue
joint pain
IBS
have any of you found substantial and long term relief?
im quitting the antidepressant. Stopped working or probably never really did in the first place just a placebo.