Acne.org Products
3 hours ago, hatetane said:That's interesting - it's long been speculated that there has been some destruction of the way Vit D is utilised.
I've gotta chime in here, the only vitamins ever mentioned by a doctor to me in regard to tane were Vit C and Vit D.
C was mentioned not due to any tests but more due to the symptoms I was describing at the time. Vit D on the other hand resulted from blood tests, doctor at the time said I was too low, not completely out of range but just too low, this was from last year. It was winter at the time but I've gotta say, I honestly don't feel incredibly different even in summertime and I see plenty of sunshine throughout the week, we still could be messed up though with the signalling of D, perhaps you can supplement all you want, if the signalling is fucked what do you do?
I've yet to take Vit D drops but that's where I'd go next, I've tried the tablets and didn't notice anything.
If I'm not mistaken isn't Vit D and Vit K strongly linked??
Mistake number 1 NEVER poison a genius . It has never been possible to create a disease with the relevant germ , FACT. The germ seeks diseased tissue in other words it's the clean up crew. Just like cancer is not to be feared think german new medicine.
Isotretinoin is just another pHARMa poison , anything 200 years or newer in medicine is PURE POISON.
@guitarman01I'm making an appointment with a neurologist and am going to ask for lots of tests. Including AAG. Will keep you updated
11 hours ago, Colinboko said:@guitarman01I'm making an appointment with a neurologist and am going to ask for lots of tests. Including AAG. Will keep you updated
Good luck! What is AAG?
On 2017-08-01 at 6:14 AM, hatetane said:On 2017-07-29 at 3:08 PM, raziel101 said:I thought I would add my story to the mix.
Im a 34 year old male, and Ive taken a lot of Accutane. I went on a 6 or 9 months treatment back in 2000. I cant remember exactly, but I think it was 80 mg a day. It cleared my cystic acne, and I was able to maintain generally okay skin for the next several years (mostly with Pro Activ). In 2014 my doctor prescribed Benzamycin (Benzoyl peroxide + antibiotic) gel as I was tired of using Pro Activ and dealing with mild to moderate acne. It worked great, but I stayed on it for 6 months and developed moderate acne again. The bacteria in my skin became resistant to the antibiotic in Benzamycin.
In the fall of 2014 I was prescribed Accutane and was on this course for 1 year (40 mg a day for 2 months, off Accutane for 2 months, then back on for another 2 months). My skin was great while on Accutane, but I continued to develop moderate acne within a month after my last dosage. My moderate acne consisted of pustules all over my temples, forehead, cheeks and along my scalp.
After 3 months since my last dosage of Accutane (I was prescribed a topical retinoid during this period which did not help), I want to a Derm who put me on Accutane for 9 months - 40 mg a day. The last dosage for this course finished in September of 2016, and by November my moderate acne returned. I tried various different natural regimes, but my acne escalated to the worst it has ever been without the cysts. I went onto a OTC 5% Benzoyl Peroxide gel which reduced the severity. I decided to go on the Murad regime from December 2016- February 2017. It helped for a month, but my moderate acne returned.
I went back on Accutane, this time 20 mg a day from the end of February to Mid June 2017. My moderate acne started to develop again 2-3 weeks later.
Ive cut out dairy and wheat, reduced my refined sugar intake, and have been drinking a lot of water for the last 3 weeks and I am seeing improvement. Actually, I want to say my skin looks better than it has ever been while being off of Accutane. Ive also started the Acne.org regime to help make sure it stays this way.
Anyways Accutane symptom. I had severe mood swings and I still do, but not as much since I was on 20 mg per day. Now that I am off it, I hope it will get better. Ive developed anxiety over the last year (not very bad, but I will wake up occasionally win the middle of the night with panic attacks, and feel nervous for no reason on certain days). Dry lips and skin have now subsided. The one thing that worries me is the daily dizzy spells I get that are followed with pressure that builds up in my head. I also have noticed I get a lot more occurrences of ringing in my ears (it passes quickly but I get it often now). I also get a very uncomfortable, bloated stomach after eating any meal. However, I am taking certain foods out of my diet to see if this is due to becoming intolerant to certain proteins. I also continue to experience hair loss (I easily shed more hair than I did pre Accutane).
Just being honest, I probably dont take care of myself as well as I should. My work keeps me from exercising, and I dont eat well. I dont stay too active because I have no energy after work, but that lack of energy could be due to poor eating and possibly my mood swings while on Accutane.
I want to stay off this drug forever. Im hoping that eating better, and taking certain foods out will improve my skin (or keep it how it is at this very moment as Im typing this) so that I can not worry about my face, and focus on eating better and becoming more active.
That is a serious amount of accutane you have taken. Are you male or female and where do you come from?
Male, in Canada.
nope
WE ARE NOT ALL GOING THROUGH THE SAME THING
how many times does someone have to say that? @Dave033, just because it was your semi-solutiondoes not make it everyone else's. Everyone may relate to some people on here, but certainly not all. You need to find what works for you and stick with it. My ENT found a partial paralysis of my left vocal cord, resulting from some type of nerve disruption. (Whether that's inflammation or not, I'm still going to experiment). Don't tell people to cancel their appointments, they could very well be finding more pieces to this mess of a puzzle.
8 minutes ago, Skipflip12 said:what methods can i try to get rid of the emotional blunting? it really sucks. i have this already 10 years now
thanks!
Have you looked down the inflammation route? A lot of studies proving depression/anhedonia/blunting to be a result of chronic low grade inflammation in the brain.
this of course would come with other autoimmune like symptoms.
26 minutes ago, Colinboko said:Have you looked down the inflammation route? A lot of studies proving depression/anhedonia/blunting to be a result of chronic low grade inflammation in the brain.this of course would come with other autoimmune like symptoms.
no not yet, have u got useful links, protocols and supplements that could help , please if youre so kind and have such information
the only one i know is n-acetylglutamine (any good) and low dose naltrexone (didnt work for me)
2 hours ago, Skipflip12 said:3 hours ago, Colinboko said:Have you looked down the inflammation route? A lot of studies proving depression/anhedonia/blunting to be a result of chronic low grade inflammation in the brain.this of course would come with other autoimmune like symptoms.
no not yet, have u got useful links, protocols and supplements that could help , please if youre so kind and have such information
the only one i know is n-acetylglutamine (any good) and low dose naltrexone (didnt work for me)
The first step would be getting tested for sure! Sometimes it may not even show up. And that will make the battle for anti-inflam meds even harder. You can always try the "can I just try a trial and see if it helps?" And if it does then you know it's inflammation. The biggest thing that I'm using to my advantage right now is my partially paralyzed left vocal cord. Doctors can't just ignore something like this. So just push for doctors! Seriously it's truly the only way to move forward with this. I have found more out in the past month just by seeing doctors than I have this entire time.
In the near future they will consider it an act of CRIME to hand out chemotherapy agents to ANYONE for any reason as I have often said POISON does not have the ability to heal the human body oh quite the contrary . We truly are living in the dark ages of medicine .
https://yourbodyisperfectintelligence.wordpress.com/category/cancer/
https://yourbodyisperfectintelligence.wordpress.com/tag/herpes-
[Edited link out]
https://rxisk.org/accutane-30-years-of-trading-our-sex-lives-for-clear-skin/
It never ceases to amaze me what people will do for clear skin , or hair think Propecia another patented POISON .
9 hours ago, Colinboko said:The first step would be getting tested for sure! Sometimes it may not even show up. And that will make the battle for anti-inflam meds even harder. You can always try the "can I just try a trial and see if it helps?" And if it does then you know it's inflammation. The biggest thing that I'm using to my advantage right now is my partially paralyzed left vocal cord. Doctors can't just ignore something like this. So just push for doctors! Seriously it's truly the only way to move forward with this. I have found more out in the past month just by seeing doctors than I have this entire time.
We should expect insight/help from the following specialists:
Rheumatologist - muscle/ skeletal
Endocrinologist - hormones
Gastroenterologist - gut/bowel
Neurologist - brain
Vascular Specialist - vein/blood flow
Someone within these specialist fields should know about inflammation and how to treat it!!!
After months of experimenting with all types of vitamins and supplements, I've come to the conclusion that most of you have: their complete shit and a waste of money. I knew this from the beginning, but thought it was worth experimenting even for a little relief.
Anyways, cannabis is still my only friend though this, since rot helps with the headaches and muscle painespecially when I apply it topically to my body.
13 hours ago, Colinboko said:WE ARE NOT ALL GOING THROUGH THE SAME THING
how many times does someone have to say that? @Dave033, just because it was your semi-solutiondoes not make it everyone else's. Everyone may relate to some people on here, but certainly not all. You need to find what works for you and stick with it. My ENT found a partial paralysis of my left vocal cord, resulting from some type of nerve disruption. (Whether that's inflammation or not, I'm still going to experiment). Don't tell people to cancel their appointments, they could very well be finding more pieces to this mess of a puzzle.
Huh and rosacea may be linked to trigeminal nerve malfunction. Maybe that's what causing our different sides, different nerves' function is disrupted ? What exact damage retinoids could have done to the nerves? Is the myeline thinned, or nerves are firing when they should not ? ..
21 hours ago, Skipflip12 said:what methods can i try to get rid of the emotional blunting? it really sucks. i have this already 10 years now
thanks!
This issue is one of the worst I have dealt with. I feel as if a lot of the mental symptoms we develop match the negative symptoms of schizophrenia: lack of motivation, lack of libido, social withdrawal, flat affect, cognitive dysfunction, anhedonia, and inattention. Believe it or not, retinoid (vitamin A) receptors play a role in the development of schizophrenia. Hallucinations (positive symptom of schizophrenia) do occur if someone were to take a high enough dose of vitamin A all at once. Yet, it seems chronically high doses over a long period of time (i.e., Accutane treatment) lead to the negative symptoms. Treating the negative symptoms (regardless of their origin or true cause) is notoriously difficult, but here are some tips in order of difficulty:
- Anti-inflammatory treatments help everything from arthritis, to depression, to pain, to schizophrenia. This is generally always a good angle for a chronically ill person to explore. A biooavailable form of Curcumin, low-dose Naltrexone, Palmitoylethanolamide, Acetyl-l-Carnitine, are all good options to explore. Personally, I take Acetyl-l-Carnitine every day and it actually helps with the brain fog/"brain wrapped in saran wrap" feeling. Curcumin also gave me a feeling of stimulation, but I stopped taking it due to its anti-androgenic effects.
- Nicotine. Lots of people with schizophrenia smoke, and so do many people with anhedonia. Nicotine regulates a sluggish prefrontal cortex to increase mood and cognition. (Possible parallels to Accutane causing reduced bloodflow in the orbitofrontal cortex?) I have heard people with anhedonia say nicotine helps them "feel human" for a few moments. https://www.sciencedaily.com/releases/2017/01/170123151345.htm Nicotine comes with its own health risks, but it's not as bad as cigarettes.
- Sarcosine is used to treat cognitive dysfunction and blunted mood in a medical setting. Its mechanism of action mimics the downstream effects of Ketamine, a potent anti-depressant. Taking 2 grams of Sarcosine plus 2 grams of Acetylcysteine may really help to bring your brain back online.
- NSI-189. No one knows how it works exactly in humans other than it enhances neurogenesis. It helped me experience the emotions of passion and bliss again. It worked for the entire 5 months I was on it--not necessarily consistently, but my emotions were always deeper when I experienced them. Sourcing this involves joining a clinical trial, waiting for it to be an approved drug, or doing some digging.
- Whenever I post about this issue, people bring up psychedelics (e.g, Psilocybin). I haven't tried them, but I know a few are undergoing clinical trials for treatment-resistant depression, so in all likelihood there is something to the idea they help.
-Monoamine oxidase inhibitors (MAOIs). Emotional blunting and anhedonia seem to go hand-in-hand, although for some people the distinction is important.Note, if your issue is STRICTLY emotional blunting, perhaps this class of meds is not your best choice. MAOIs help cognitive functioning and anhedonia. They also are neuroprotective. You can start by trying a mild, reversible MAOI like Wild Green Oat. However, it's the doctor-prescribed, irreversible MAOIs that have robust mental effects. The catch is, these are very difficult to get prescribed without an open-minded doctor. Otherwise, they run you through a trial of mind-numbing SSRIs (confirmed to cause emotional blunting in many) and literal brain-shrinking anti-psychotics first.
Lastly, I should say that weak MAOIs are also present in tobacco and coffee, which may partially explain why some respond so well to these substances, regardless of their risks.Perhaps combining coffee (decaf or otherwise) with some of these other treatments would help.Be cautious of interactions.
6 hours ago, sacha_n said:19 hours ago, Colinboko said:WE ARE NOT ALL GOING THROUGH THE SAME THING
how many times does someone have to say that? @Dave033, just because it was your semi-solutiondoes not make it everyone else's. Everyone may relate to some people on here, but certainly not all. You need to find what works for you and stick with it. My ENT found a partial paralysis of my left vocal cord, resulting from some type of nerve disruption. (Whether that's inflammation or not, I'm still going to experiment). Don't tell people to cancel their appointments, they could very well be finding more pieces to this mess of a puzzle.
Huh and rosacea may be linked to trigeminal nerve malfunction. Maybe that's what causing our different sides, different nerves' function is disrupted ? What exact damage retinoids could have done to the nerves? Is the myeline thinned, or nerves are firing when they should not ? ..
I don't know if it's a "misfiring" so to speak, or any actual damage to the nerve. Because my doctor didn't see any actual nerve destruction or anything irreversible, just that the nerve wasn't moving the muscle properly. And the muscle bulk was a lot less than my right vocal fold meaning it's not receiving proper signal for strengthening. It also makes sense because on that propecia/CFS thread a lot people talk about their muscles restrengthening almost instantly when they catch a cold/flu or have tried corticosteroids. Which leads me to believe (in my case, not saying everyone) that some type of low grade inflammation that's almost undetectable is causing very minute disruption for the nerves.
I'm about to snap legit snap
i was just told
i have gastritis and biopsy was takin
now my Ana is speckled again second time after being negative
and my igg4 is high
google is showing me so much shit
my thyroid was told it was dying off years ago now I'm told it's healthy
i have every sign of sjorgens
my skin has lupus rosacea like shit on it
I don't know how much more I can take
11 hours ago, ACCUiTy_drANE said:This issue is one of the worst I have dealt with. I feel as if a lot of the mental symptoms we develop match the negative symptoms of schizophrenia: lack of motivation, lack of libido, social withdrawal, flat affect, cognitive dysfunction, anhedonia, and inattention. Believe it or not, retinoid (vitamin A) receptors play a role in the development of schizophrenia. Hallucinations (positive symptom of schizophrenia) do occur if someone were to take a high enough dose of vitamin A all at once. Yet, it seems chronically high doses over a long period of time (i.e., Accutane treatment) lead to the negative symptoms. Treating the negative symptoms (regardless of their origin or true cause) is notoriously difficult, but here are some tips in order of difficulty:- Anti-inflammatory treatments help everything from arthritis, to depression, to pain, to schizophrenia. This is generally always a good angle for a chronically ill person to explore. A biooavailable form of Curcumin, low-dose Naltrexone, Palmitoylethanolamide, Acetyl-l-Carnitine, are all good options to explore. Personally, I take Acetyl-l-Carnitine every day and it actually helps with the brain fog/"brain wrapped in saran wrap" feeling. Curcumin also gave me a feeling of stimulation, but I stopped taking it due to its anti-androgenic effects.
- Nicotine. Lots of people with schizophrenia smoke, and so do many people with anhedonia. Nicotine regulates a sluggish prefrontal cortex to increase mood and cognition. (Possible parallels to Accutane causing reduced bloodflow in the orbitofrontal cortex?) I have heard people with anhedonia say nicotine helps them "feel human" for a few moments. https://www.sciencedaily.com/releases/2017/01/170123151345.htm Nicotine comes with its own health risks, but it's not as bad as cigarettes.
- Sarcosine is used to treat cognitive dysfunction and blunted mood in a medical setting. Its mechanism of action mimics the downstream effects of Ketamine, a potent anti-depressant. Taking 2 grams of Sarcosine plus 2 grams of Acetylcysteine may really help to bring your brain back online.
- NSI-189. No one knows how it works exactly in humans other than it enhances neurogenesis. It helped me experience the emotions of passion and bliss again. It worked for the entire 5 months I was on it--not necessarily consistently, but my emotions were always deeper when I experienced them. Sourcing this involves joining a clinical trial, waiting for it to be an approved drug, or doing some digging.
- Whenever I post about this issue, people bring up psychedelics (e.g, Psilocybin). I haven't tried them, but I know a few are undergoing clinical trials for treatment-resistant depression, so in all likelihood there is something to the idea they help.
-Monoamine oxidase inhibitors (MAOIs). Emotional blunting and anhedonia seem to go hand-in-hand, although for some people the distinction is important.Note, if your issue is STRICTLY emotional blunting, perhaps this class of meds is not your best choice. MAOIs help cognitive functioning and anhedonia. They also are neuroprotective. You can start by trying a mild, reversible MAOI like Wild Green Oat. However, it's the doctor-prescribed, irreversible MAOIs that have robust mental effects. The catch is, these are very difficult to get prescribed without an open-minded doctor. Otherwise, they run you through a trial of mind-numbing SSRIs (confirmed to cause emotional blunting in many) and literal brain-shrinking anti-psychotics first.
Lastly, I should say that weak MAOIs are also present in tobacco and coffee, which may partially explain why some respond so well to these substances, regardless of their risks.Perhaps combining coffee (decaf or otherwise) with some of these other treatments would help.Be cautious of interactions.
Excellent post with plenty of info to delve into.
What are your thoughts though on the light sensitivity many of us suffer with, would any of the things you mentioned help or do you think we need to look into fixing hypothalamus and Pituitary glands?? Looking at products completely different to what you've mentioned?
Everyone get checked for IGG4 mine showed high
mans it days can mimic sjorgens
alot of ppl say they have sjorgens like symptoms no diagnosis of it
my biopsy was negative
blood work ana positive now second time
after negative
my igg is high now
maybe closer to answers
iy don't look good for me
but maybe u guys will get further
ans rule out more
goodnight
32 minutes ago, Nemesisbrady said:Everyone get checked for IGG4 mine showed high
mans it days can mimic sjorgens
alot of ppl say they have sjorgens like symptoms no diagnosis of it
my biopsy was negative
blood work ana positive now second time
after negative
my igg is high nowmaybe closer to answers
iy don't look good for me
but maybe u guys will get further
ans rule out moregoodnight
What next though??
what did doctor say after these results?, more info needed please!