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Repairing the long-term damage from Accutane

 
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143
(@indigorush)

Posted : 04/21/2012 6:04 am

Hi Guys,

 

Feeling a bit crap... well, very crap, today to be honest.

No need to explain why... It's the usual - hair-loss, premature-freaking-aging, fears of receding gums (all the normal 21-year old fears - HAHA).

 

I know some Accutane users have mentioned liver flushes not helping them, but I think this may be my next move.

 

http://eczemacure.info/2008/10/17/my-21st-liver-flush-was-i-a-victim-of-accutane/

 

You guys have likely seen the above before.

 

The reason I think we might have congested liver is:

 

We were taking a very toxic drug, known to interfere with our digestive systems.

Our body is then in a toxic state.

I think the liver ends up filtering toxins, but having them return because they're not being excreted properly.

After using the sauna for 2-3 weeks, I'm afraid it's going to be another let-down in terms of getting rid of these problems.

Intraheptic stones form in the liver to keep toxins from causing problems, but this in itself creates a sluggish liver and bile problems.

This won't necessarily show up on a liver test.. It's not a chloresterol problem.

 

Premature aging and many of our other problems could result from a congested liver.

It affects digestion, which then affects many other things.

 

Of course, we've mentioned this before, but it may be a case of giving it a go... multiple times.

It makes sense that we focus on this, because we were being given blood tests to check the liver for a reason while on this drug.

Screw supplements... Cannot be bothered with them.

 

I also contacted my nutritionist and she's said a test called the ONE test, which checks nutritional deficiencies and other things, is around 300-400.

I need some f*cking money for all this.

Before taking any other supplements, I'm going to fork out for that test.

 

Anything to keep my options open.

 

A member of this forum is on his 3rd day of fasting, which he will be trying for 2-3 weeks.

It'll be interesting to see if it helps.

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MemberMember
26
(@maynerd)

Posted : 04/21/2012 6:42 pm

If a lot of people (in whatever situation) have felt better after those liver flushes it might be worth a shot.

I went to the eye doc yesterday due to the alarming amount of floaters I have been experiencing.

After much testing she said my tear production was a little low but that my main problem is that

my eye mucous production is very low so my tears don't have anything to bind to when I blink and

once the dryness happens, crud builds up on the mucous membranes making it a difficult problem.

So, she recommended I put warm compresses on my eyes a few times a day to break

up the crud and once right before using a product called sterilid (theratears) which will

clean the crud. She next recommended systane balance 4 times a day which is a product

that mimics tears (mucous etc) very well. She also recommended omega 3s but of course ppl here have

had problems with those, yet I have not felt that connection

but will still be cautious and avoid them for now, sticking w coconut oil internally. (btw read the other day its good for the brain)

But the main thing I take from this is that I feel it confirms my low production of mucous theory.

Our insides are dry everywhere so how do we greasen ourselves like the tin man?

Good article on mucous-

[Edited link out]

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and1, and1 and and1 reacted
MemberMember
44
(@nick-ryan)

Posted : 04/21/2012 6:48 pm

On 4/22/2012 at 5:42 AM, Maynerd said:

If a lot of people (in whatever situation) have felt better after those liver flushes it might be worth a shot.

I went to the eye doc yesterday due to the alarming amount of floaters I have been experiencing.

After much testing she said my tear production was a little low but that my main problem is that

my eye mucous production is very low so my tears don't have anything to bind to when I blink and

once the dryness happens, crud builds up on the mucous membranes making it a difficult problem.

So, she recommended I put warm compresses on my eyes a few times a day to break

up the crud and once right before using a product called sterilid (theratears) which will

clean the crud. She next recommended systane balance 4 times a day which is a product

that mimics tears (mucous etc) very well. She also recommended omega 3s but of course ppl here have

had problems with those, yet I have not felt that connection

but will still be cautious and avoid them for now, sticking w coconut oil internally. (btw read the other day its good for the brain)

But the main thing I take from this is that I feel it confirms my low production of mucous theory.

Our insides are dry everywhere so how do we greasen ourselves like the tin man?

Good article on mucous-

[Edited link out]

This would seem to fit in with the other issues as bile/mucous production is also low and causing a lot of the digestive issues people are experiencing.

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Maynerd, Maynerd and Maynerd reacted
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21
(@aharon)

Posted : 04/21/2012 11:44 pm

I've found MSM at 2000mg a day is helpful. It supposedly does help with the intestinal mucousa and lining. It's helped with my gut and digestion.

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Maynerd, Maynerd and Maynerd reacted
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91
(@josephbuchignani)

Posted : 04/22/2012 6:33 am

Turns out my girlfriend snores, and that's been slowing me down for quite a while. She cut my sleep 3 hours short today and I finally noticed it. I've started using an eye mask at night which is very helpful, and now I'm adding earplugs. So we'll see if that impacts my currently week long recovery times and changes it into somethig more reasonable.

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45
(@jmsil)

Posted : 04/22/2012 7:01 am

I know some Accutane users have mentioned liver flushes not helping them, but I think this may be my next move.

 

http://eczemacure.in...im-of-accutane/

 

 

The first excerpt on there was from me... around 7 years ago now... it's scary...

 

I recently turned 26, and this is getting more and more painful as the years go by...

 

Indigo - I would't hold much hope of the living flushing. I don't know anyone who has actually fixed any long term Accutane damage with them. I tried around 10. I'm sure Luke said he tried them. Chico has tried them. I'm sure lots of other people who took Accutane have. If they worked we'd know about it - at the moment there is no proof. I could see why you gave the sauna a go - I don't think anyone else would of tried that twice a day, every day fo40 minutes each time. If Accutane really is in the body and that didn't work, I doubt anything will. If you do give liver flushing a go, then you need to be aware that Epsom Salts aren't exactly gentle on your kidneys you will feel very sick during the night after drinking the mixture. It isn't a nice thing to do.

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MemberMember
9
(@mrjarjarbinks77)

Posted : 04/22/2012 3:34 pm

Every since I read the post about erectile difficulties, I am all nervous, and concerned. Without getting graphic, I am ready to at will or a simply thought. I asked my dermatologist and he says this isn't a situation I need to be concerned about. I hope to ease into the 80mg from 40mg. I am about 80kg and 1 girl says she is on 80mg and is 114 which is so tiny. Not sure why the dose range is so random?

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MemberMember
16
(@humanstate)

Posted : 04/22/2012 5:02 pm

On 4/23/2012 at 4:34 AM, mrjarjarbinks77 said:

Every since I read the post about erectile difficulties, I am all nervous, and concerned. Without getting graphic, I am ready to at will or a simply thought. I asked my dermatologist and he says this isn't a situation I need to be concerned about. I hope to ease into the 80mg from 40mg. I am about 80kg and 1 girl says she is on 80mg and is 114 which is so tiny. Not sure why the dose range is so random?

I'm pretty sure we were all told side effects were something we didn't need to worry about.

I do think the key is the liver. If you google "dry mouth liver" or "dry eyes liver" there are tons of articles on it. I an going to try a liver flush soon. It's Epsom salts, olive oil, grapefruit juice and some other stuff. I'll let you know if it helps.

I found this blog post on detoxing from chemo. I might try some of the tips.

[Edited link out]

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MemberMember
85
(@and1)

Posted : 04/22/2012 5:09 pm

If anyone decides to liver flush you have to do your research and prepare properly, otherwise the chances for success are slim, but there is a risk that you get hurt at least from what I have heard. When I tried flushing I was at the end of the rope, so I just gave it a shot: I did my first flush, no stones. About 1-2 weeks later I tried again. This time I had a lot of stones and a lot yellowish stuff that was looking like sand and smelled fishy and at the same time like bad eggs, I can still remember the smell like it was yesterday. About 2-3 weeks after my second flush I experienced major physical changes, no dry eyes, normal stool, my skin became soft and smooth, even the dry skin on my elbows disappeared and my acne cleared completely. The dry skin on my elbows has returned, but everybody has it, who cares. Now about 3 to 4 years after my last flush - I think I did 7 or 8 between 2007 and 2009 or so - I'd say everything that used to be real dry is still little dry. My eyes are 70% of the time normal, that is, not dry. The acne in my face is gone, but body acne remains. Digestive issues still remain, but I am ways better than before. I must admit that liver flushing is only part of the puzzle... If I had more time I would flush regularly, like every three month. Do it in combination with colon hydro, at least the first to or three.

 

Have you guys tried artichoke pills, I know I used them around 2004/5, they were working great for my digestion and skin, but I did not have the money to continue using them?!

 

Other supps that are on my list and I have yet to try are:

 

- dandelion root

- sylmarin/milk thistle

- bacopa

- rhodiola

- licorice root

- peppermint oil

- bentonite clay

 

I want to give the following supps another shot:

 

- taurine

- betaine HCL (take it long term to restorce stomach acid)

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MemberMember
21
(@aharon)

Posted : 04/22/2012 5:18 pm

Yeah, I've tried lots of liver flushes and they don't work.

 

As I've said a few times now, the cleansing/clearing it out model has no evidence to support it. We don't know if it stays in the body or not.

 

Accutane could simply damage the body and leave.

 

I hope I'm not the only one who notices how round-and-round in circles a lot of these posts are. I consider that a symptom of accutane poisoning.

 

 

So we'll see if that impacts my currently week long recovery times and changes it into somethig more reasonable.

 

My recovery time from having 1-3 good days is also about a week.

 

I use earplugs and eyemask and have for years. They at times make my sleep slightly more restful but change nothing else.

 

The physical damage is extreme, no matter how hidden to the eye.

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MemberMember
91
(@josephbuchignani)

Posted : 04/22/2012 6:52 pm

well i just used the earplugs tonight and I feel a huge difference, even though I awoke after approx 7 hours due to gf's alarm. really a lot better. this is awesome.

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MemberMember
21
(@aharon)

Posted : 04/22/2012 8:04 pm

well i just used the earplugs tonight and I feel a huge difference

 

You always say that, my Neanderthal-gened colleague.

 

Give it a few days.

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MemberMember
91
(@josephbuchignani)

Posted : 04/23/2012 4:46 am

"I use earplugs and eyemask and have for years. They at times make my sleep slightly more restful but change nothing else."

Are you using meal timing as well? Stop eating 12 hours before desired waking time.

 

I got cheated out of an hour or so today, so I will be going to bed earlier to correct. But it seems my recovery from the 3 hour loss earlier is going much faster than expected. I strongly suspect that my slow recovery times are due to poor quality sleep. Given the direct correlation observed between poor sleep and IBS, this only makes sense.

 

Tonight I will do my best to be in bed on time, and will wear ear plugs and mask. We'll see how much difference it makes. I expect to be sick tomorrow under the normal model for the first 1/2 of the day, so if I'm not this will mean something.

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MemberMember
9
(@mrjarjarbinks77)

Posted : 04/23/2012 2:19 pm

 

Every since I read the post about erectile difficulties, I am all nervous, and concerned. Without getting graphic, I am ready to at will or a simply thought. I asked my dermatologist and he says this isn't a situation I need to be concerned about. I hope to ease into the 80mg from 40mg. I am about 80kg and 1 girl says she is on 80mg and is 114 which is so tiny. Not sure why the dose range is so random?

 

 

I'm pretty sure we were all told side effects were something we didn't need to worry about.

 

I do think the key is the liver. If you google "dry mouth liver" or "dry eyes liver" there are tons of articles on it. I an going to try a liver flush soon. It's Epsom salts, olive oil, grapefruit juice and some other stuff. I'll let you know if it helps.

 

I found this blog post on detoxing from chemo. I might try some of the tips.

 

http://cincovidas.co...y-or-radiation/

 

 

 

Every since I read the post about erectile difficulties, I am all nervous, and concerned. Without getting graphic, I am ready to at will or a simply thought. I asked my dermatologist and he says this isn't a situation I need to be concerned about. I hope to ease into the 80mg from 40mg. I am about 80kg and 1 girl says she is on 80mg and is 114 which is so tiny. Not sure why the dose range is so random?

 

 

I'm pretty sure we were all told side effects were something we didn't need to worry about.

 

I do think the key is the liver. If you google "dry mouth liver" or "dry eyes liver" there are tons of articles on it. I an going to try a liver flush soon. It's Epsom salts, olive oil, grapefruit juice and some other stuff. I'll let you know if it helps.

 

I found this blog post on detoxing from chemo. I might try some of the tips.

 

http://cincovidas.co...y-or-radiation/

 

 

In a sense, we are all fucked. We are gonna die one day. We've wasted how much of our life on drugs, meds, and all sorts of things we were told would fix us? There is no fixing us. Some are fortunate with great genetics, looks or money, resources, and so on. And others have bad acne or are born ugly. Some are born with disease and so on. Its all biology and genetics, things we cannot control despite our best efforts. I never really believed in fate but, I do now. I continue to do my best but, much of life is outside our control. I realize this now. All the praying, all the diets, meds, living healthy or working on fitness has amounted to what? Detox?

 

Suit yourself man. When its my time to go, fuck it. Take me. I am going to leave my mark on the world as best as I can but, when my time is up, so be it.

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Aharon, Aharon and Aharon reacted
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26
(@maynerd)

Posted : 04/23/2012 3:55 pm

 

 

In a sense, we are all fucked. We are gonna die one day. We've wasted how much of our life on drugs, meds, and all sorts of things we were told would fix us? There is no fixing us. Some are fortunate with great genetics, looks or money, resources, and so on. And others have bad acne or are born ugly. Some are born with disease and so on. Its all biology and genetics, things we cannot control despite our best efforts. I never really believed in fate but, I do now. I continue to do my best but, much of life is outside our control. I realize this now. All the praying, all the diets, meds, living healthy or working on fitness has amounted to what? Detox?

 

Suit yourself man. When its my time to go, fuck it. Take me. I am going to leave my mark on the world as best as I can but, when my time is up, so be it.

 

 

If you think we're all fucked then I suggest you quit coming to this page, it's not good for you. I think you are ignoring some of the progress we have made, even thought they are few but nobody is keeping you here and your message of "we're all fucked" doesn't help anybody who does believe we can help ourselves heal.

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MemberMember
143
(@indigorush)

Posted : 04/23/2012 3:56 pm

Hang in there everyone.

I know it's terribly difficult.

 

By the way, what happened to Chico and the rest of those who used to post? Still readingthe forum, dude?

I guess he doesn't have anything to update.

 

A man called Derek, who is directing the documentary I'll be in, emailed me today.

I may have mentioned that his Son took Roaccutane and took his life a year or so ago.

Well, Derek emailed me a letter his Son had left on his computer for him and his wife.

It was strange to read - It wasn't a suicide note.. I just don't think he ever printed the letter - It was like I'd written it.

He read, played video games, wrote stuff and played guitar. He took the drug the year I took it.

The side effects he mentioned matched me (and us).

 

My plan is - just to not give up. Even though every day I feel like crying because this is so frustrating.

I will have my blood test results Wednesday... I am meeting Derek and Ceri (from the TV company) on thursday, and I have a music audition on Friday.

Quite a lot going on for someone who feels like hiding away from the world.

But, I'll try my best to face things.

 

I'd say my gums are receding at a fairly quick rate, and I've probably got about 10 grey (or at least white) hairs coming through.

This is pretty scary, but I can't seem to do anything to stop it.

 

I'm going to carry on going to bed at 10-10.30 because 10-12 is meant to be the key time for healing.

Sure, we probably are fucked, but it's worth doing everything we can, even if it's just to have the energy to cope.

I don't want to kill myself.

I want to kill this drug's reputation.

I won't let Roche take EVERYTHING from me.

 

I'll do everything in my power to get our situation noticed.

If possible, I'll shout for funding in the documentary and set up an organisation for people in our shoes.

May never happen, but who knows. There are some good people in the world, despite what this has taught us.

 

I was looking through some pictures today, and it was sad because I looked like the happiest kid in the world.

How I wish I could go back.

 

Ordered some aspartame-free chewing gum today (Spry).

Trident is something I have daily, and if aspartame is as bad as some people say, it's worth finding an alternative.

Hell, if the FDA approved it I don't trust it.

 

Given up on supplements for now.. They don't seem to be effective.

As soon as I have a job (I'm trying), I'll get the ONE test, that I mentioned.

 

It's interesting what mrjarjarbinks77 says about Fate, because I feel like that sometimes.

Like, I was given Acne for some reason unknown to me... and I tried to get rid of it.

Now, I don't have acne. I have this.

It's as if I wasn't meant to have an easy ride.

 

I dunno.

This life is crazy sometimes.

As humans, we like to give things a meaning.

We don't know why we're here or if there's a point to this.

 

For now, I'm enjoying Sonic Generations on the xbox.

If that's all I can enjoy at the moment, then so be it.

 

Stef

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MemberMember
91
(@josephbuchignani)

Posted : 04/23/2012 5:49 pm

Well holy schnitzel, the sleep thing appears to have really worked. I slept 11 hours. Boy do I feel different. Normally I wouldn't be moving until the afternoon, but right now I'm already working in the morning, before my eyes have adjusted enough to even read the screen clearly.

 

The formula:

1. Meal timing

2. Earplugs and eye mask

3. Eagerly going to bed as soon as tired

4. Leaving plenty of time for 9 hours plus before any hard wakeup point like an alarm

 

You'll know you've succeeded when you wake up naturally in a gradual, unhurried and unforced manner well before any cues like light or noise or circadian rhythm force you to do so.

 

This is so, so awesome. The little things that like burps that are normally accompanied by deadening fatigue, discomfort and nausea are still there, but no longer significant. I'm just plowing through my work, like I haven't done (at this hour) in I can't remember when.

 

Plus I think if I do this two days in a row the feeling will be even better, due to sleep debt.

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MemberMember
1
(@luis-figo)

Posted : 04/23/2012 8:28 pm

My reason for taking accutane was oily skin and a shit loads of sebum in all of my pores. I had lived with it since i was 11/12 and tried everything else. After reading posts on bodybuilding forums saying how good accutane was and how it had changed their lives, I decided to give it a go. (I didn't read any posts about long term side effects just posts that mostly mentioned chapped lips and joint pain while on the drug, which cleared after completing their course.)

 

Little background info:

 

I'm 25 years old and took took two courses of accutane with the last one finishing May 1st 2010, so almost 2 years ago.

 

I never drank or smoked while on accutane and always had at least 8 glasses of water a day.

 

Here are the side effects I have because of accutane:

 

Back problems with nerve pain going down to the top of my ass.

 

Neck crunches when moving my head in different directions and nerve pain down the left side of my neck.

 

Elbow pain in both elbows.

 

Left knee popped a few days ago (non exercise related) and my leg just give way.

 

Extreme tightness in all of my muscles (especially my chest) which ache and burn for days after working out and never seem to fully recover.

 

I noticed not long after starting accutane how tired and heavy my muscles felt and how easily out of breath I became while running, I also noticed I couldn't run the distances that I previously could with ease. (no change as of today) .

 

Stomach noises and an uncomfortable feeling in my stomach. (this occurred roughly 8 months after finishing accutane and still happens frequently)

 

Heartburn everyday for the past 4/5 months.

 

Diarrehoea, if I eat foods with too much sugar or gluten. (Never had this problem before accutane.)

 

Extreme sweating. (I will sweat buckets just walking, even when it's freezing cold.)

 

Hair has receded at my temples and thinned all over.

 

Lots of white hairs started popping up towards the end of my second course and I have even more now.

 

Crazy amount of split ends with very strange shapes to them, I've tweezed out a shit load of hairs that are not straight or curly but are like zig zag shaped.

 

Hairs growing in areas where I never had any before. (Above my eyebrows, upper arms, upper back, just below my hairline and on top of my ears.)

 

Dark circles under my eyes where the skin has thinned and I can see veins as well.

 

Wrinkles underneath my eyes. ( I can see wrinkles in different parts of my face which I never had pre accutane).

 

Skin marks and cuts really easily since accutane.

 

Skin is always dry and oily no matter how much water I drink or omega 3 enriched fish I eat.

 

Can't handle the sun anymore because the brightness kills my eyes and the sun makes me burn and freckle easily, whilst before I never freckled from being out in the sun.

 

I also noticed moles appearing on accutane.

 

Gums have receded and some of my teeth are now see through because the enamel has gone.

 

I've had 2 blood tests in the past 6 months with no abnormal results.

 

 

That decision i made to take Accutane still haunts me to this day. I often fantasize about travelling back in time to stop myself going anywhere near Accutane.

 

Most days i feel extremely depressed and suicidal, the only reason that has stopped me from ending my life is my family because i know how much it would hurt them.

 

I finished watching Six Feet Under the other day and after the finale i just lost it. For some reason It made me think about my family finding out i had killed myself and them crying at my funeral.

 

I really feel for everyone of you on here and have had tears in my eyes reading your posts, it kills me to think that nothing can be done to heal us to what we were like pre accutane.

 

If ever anything helps me out in any way you'll be the first to know.

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MemberMember
91
(@josephbuchignani)

Posted : 04/23/2012 11:54 pm

try regrowing your teeth by ingesting massive quantities of vit K2, max strength animal source, check richard nikoley's blog. it's some kind of butter oil capsule, I believe. get the one he uses. will help your bones everywhere.

 

today continues to go absolutely awesome for me. got more done before lunch than I usually do all day, on my best days.

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MemberMember
143
(@indigorush)

Posted : 04/24/2012 5:02 am

I know sometimes my posts are quite positive, but last night I really came close to ending my life.

How? It'd be downing several packets of painkillers.

I decided not to because I still need to put up a fight against those who did this to me.

I'll at least get the documentary under way.

I've just started a blog this morning, because I feel it's easier to get my point across in words (as oposed to YouTube videos).

 

http://accutaned.wordpress.com/

 

I'll be posting on there.

 

Oh, and James should have his results soon.

I feel like I'm waiting for something big to happen.

What if it says he has the biological age of 52?

Where does that leave us?

It's been raining for weeks in England. I feel like the World sucks so much right now.

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45
(@jmsil)

Posted : 04/24/2012 11:07 am

I think you are ignoring some of the progress we have made

 

 

I honestly can't see what progress has been made, apart from learning that virtually everything we've tried doesn't work.

 

 

That decision I made to take Accutane still haunts me to this day. I often fantasize about travelling back in time to stop myself going anywhere near Accutane.

 

Most days i feel extremely depressed and suicidal, the only reason that has stopped me from ending my life is my family because i know how much it would hurt them.

 

 

You're not the only one...

 

Sorry you're going through this too. I have some of the problems you have. It's quite clear from many, many posts here that Accutane can affect your looks because of its aging, toxic effects. Yet we were not warned about this.

 

 

By the way, what happened to Chico and the rest of those who used to post? Still readingthe forum, dude?

I guess he doesn't have anything to update.

 

 

Chico said he was going to try some sort of juice fasting, but heard nothing since. Welt said he just started a four week water fast at the beginning of January, but again nothing since.

 

I've also been looking within the last year of loads of phoots of me before I took the poison, and yes, it is the saddest thing, how easily and needlessly its been taken away.

 

Indigo - Do you know how or specifically why Derek's son committed suicide? Did it make the press? I knoiw it might not be your place to say, and that it might be mentioned in the documentary anyway...

 

Like you have just said in your last post, I also came close last December, but didn't because I was too scared of it going wrong. I'd rather not say any more then that.

 

An update on the telomere test is that there is no update... I STILL have not got the results. For a few weeks now, whenever my Dad phones the doctor's, they say they haven't received the fax, and whenever my Dad phones the private hospital where the blood was taken, they say they've sent it. Well my Dad's phoned them both again today and it seems the doctor has received the results/fax but is waiting to receive a report. It seems this is due at the end of April. To be honest, I haven't got a clue what's going on. But if there is a report with this, it should go over the results in detail.

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MemberMember
143
(@indigorush)

Posted : 04/24/2012 11:51 am

 

I think you are ignoring some of the progress we have made

 

 

I honestly can't see what progress has been made, apart from learning that virtually everything we've tried doesn't work.

 

 

That decision I made to take Accutane still haunts me to this day. I often fantasize about travelling back in time to stop myself going anywhere near Accutane.

 

Most days i feel extremely depressed and suicidal, the only reason that has stopped me from ending my life is my family because i know how much it would hurt them.

 

 

You're not the only one...

 

Sorry you're going through this too. I have some of the problems you have. It's quite clear from many, many posts here that Accutane can affect your looks because of its aging, toxic effects. Yet we were not warned about this.

 

 

By the way, what happened to Chico and the rest of those who used to post? Still readingthe forum, dude?

I guess he doesn't have anything to update.

 

 

Chico said he was going to try some sort of juice fasting, but heard nothing since. Welt said he just started a four week water fast at the beginning of January, but again nothing since.

 

I've also been looking within the last year of loads of phoots of me before I took the poison, and yes, it is the saddest thing, how easily and needlessly its been taken away.

 

Indigo - Do you know how or specifically why Derek's son committed suicide? Did it make the press? I knoiw it might not be your place to say, and that it might be mentioned in the documentary anyway...

 

Like you have just said in your last post, I also came close last December, but didn't because I was too scared of it going wrong. I'd rather not say any more then that.

 

An update on the telomere test is that there is no update... I STILL have not got the results. For a few weeks now, whenever my Dad phones the doctor's, they say they haven't received the fax, and whenever my Dad phones the private hospital where the blood was taken, they say they've sent it. Well my Dad's phoned them both again today and it seems the doctor has received the results/fax but is waiting to receive a report. It seems this is due at the end of April. To be honest, I haven't got a clue what's going on. But if there is a report with this, it should go over the results in detail.

 

 

Can I ask why your Dad does all the phone calls for you?

It's a piss-take though. They should be able to fax over a report and then the doctors get it straight away.

Can you not ask them over the phone to give you your results? Can they not email it straight to you?

 

Regarding (Jesse) Derek's son, I couldn't find anything online when I searched his name and Accutane.

I also don't know how he killed himself.

I expect I'll be told on Thursday, but Derek will do a part of the documentary about his Son, so no doubt it'll be mentioned there.

 

I was looking over my hair analysis results again.

You may remember I had just one deficiency and this was magnesium.

I used to think you could buy supplements and then they'd either work or not.

However, it seems you have to be specific a lot of the time.

I was using Magnesium citrate, and this seems to be ineffective, and even though many people have reviewed it with 5 stars on iHerb (which is where I bought it from) it is apparantly not absorbed well in many people.

 

I might just buy some Magnesium Chloride to try. This is meant to be better.

Even though I said I'd given up on supplements haha.

Magnesium is meant to be more important than calcium in regards to teeth.

As my teeth are of concern, I'm willing to risk disappointment again.

 

I spent nearly all of today reading about Accutane and Hair-loss.

My hair is getting me down and seems worse than it used to be, even a few years ago.

 

I might try Biotin at 5000mcg a day.

Also, Vitamin K2 might be worth a shot.

And Phytisone is something I read about helping hair-loss. It's adrenal related, and I need to be more pro-active in that area.

 

Might order those now.

I'm still a bit scared about Vitamin A supplements, but things aren't exactly good right now.

It might be easier to take just one multivitamin and then a few additionals, instead of 15 supplements individually.

 

Stef

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MemberMember
21
(@aharon)

Posted : 04/24/2012 2:43 pm

Has anyone tried idebenone? malden over at the AllThingsMale forum on repairing accutane damage reports it's been very helpful, although there is still along way to go.

 

Indigo, try magnesium oil. . We all have messed up digestion. The oil is supposedly the easiest absorbed

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MemberMember
85
(@and1)

Posted : 04/24/2012 3:51 pm

To brighten you guys up. About 4 years back, my mum said jokingly "Son, you are getting old, your first grey hair is starting to pop up!". That was after she found one gray hair on my head. Now, it is 4 years later, I do not have a single gray hair, not even one.

 

still nobody has answered my question regarding immunoglobulin A (IgA). I have only gotten one response via text message of another guy who posted here and has a IgA deficiency as well. IgA is an antibody playing a critical role in mucosal immunity.

 

Anybody else here who has an IgA deficiency? Take a look at the results from your blood work and stool samples, usually they both include IgA measurements!

 

 

I was looking over my hair analysis results again.

You may remember I had just one deficiency and this was magnesium.

I used to think you could buy supplements and then they'd either work or not.

However, it seems you have to be specific a lot of the time.

I was using Magnesium citrate, and this seems to be ineffective, and even though many people have reviewed it with 5 stars on iHerb (which is where I bought it from) it is apparantly not absorbed well in many people.

 

 

 

Look up magesiumsulfate in wikipedia, it is used for hypmagnesemia, that is, heavy magnesium deficiency. You also take it when liver flushing and as I had already written earlier in this thread. I think this stuff is one reason why flushing helped me and calmed my nerves. But longterm magnesiumsulfate is hard on the kidney so be careful.

 

I tried magnesium oil, did not convince me, but try it. Magesium has a key role in enzyme function it is much more critical to your overall health than calcium. Furthermore you have to consider the time of day you take this stuff to ensure good absorption....

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MemberMember
21
(@aharon)

Posted : 04/24/2012 5:10 pm

Epsom salts ... yeah, I use them sometimes. Still haven't noticed much from magnesium myself except a boost for a day or two.

 

It's like vitamin D, people are finding out it's commonly deficient, but why would a relatively common deficiency matter to people who have a kind of chemical poisoning aftermath. It's a different reality, which is partly why these supplements don't work (assuming they work at all in the first place).

 

Or you could just eat scallops... it's true that's more natural than pillz.

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