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Repairing the long-term damage from Accutane

 
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37
(@umas)

Posted : 09/29/2016 2:38 pm

On 24.09.2016 at 4:08 AM, MovingOnMusicGal said:

Positive for SIBO, not just candida. REally going HAM on this with enteric coated peppermint oil, SF722 formula, bone broth, glutamine, etc. I'm already more hydrated on a daily basis. CBN night oil is putting me to sleep, and CBD is helping saturate my tissues and joints. FEeling better little by little. Very slow progress, but noticeable. Been doing methylation now for almost 8-9 months. It helps with mental clarity and joint pain. I'm doing other things as well but am just too lazy to detail everything. Taking LDN for past 2-3 years. Anyone else have SIBO Dx? I've been slacking on liver flushes, did 10 and was still passing things, so I genuinely believe I'm still very congested still.

I have problems with SIBO too. Right now I am taking pills lowering stomach acid, co basically I even making it worse, but nothing else right now can deal with my stomach pain...
I have high calprotectine(370) so I was thinking about LDN too. I just discovered that in city that I studied LDN can be bought in drugstore(they make small portions I think 4,5 mg)

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MemberMember
1
(@t981)

Posted : 09/30/2016 2:18 am

Hi everyone

Just checking in since my last post a couple of weeks ago. If you didn't see it then basically I'm having some sexual effects since stopping accutane a little while ago. Have continued to fluctuate since my last post. Some very good days, but some poor ones too. It's annoying but at the same time makes me positive as it shows my body is in the process of recovering/rebalancing itself.

On another note, I've only been following this forum for a short time, and already it's clear how chaotic it is. 423 pages of info. There could be some great stuff in there, maybe something that would recover other people, but no newcomer to the forum is evergoing to read through all423 pages.

A well organised forum like propeciahelp needs to be made for post-accutane sufferers. I think that until there is an 'accutanehelp' style forum, people will not take us seriously. And more importantly, I think we would recover quicker with a more organised, focussed forum. This current thread is an obstacle to progress.

I'm sure this kind of thing has been discussed before, how far along the line did it get?

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MemberMember
960
(@tryingtohelp2014)

Posted : 09/30/2016 6:31 pm

Could estrogen be the link between accutane and finasteride? .......

how finasteride increases estrogen and the sexual side effects similar to accutane......

Does Finasteride increase estrogen?

It absolutely does increase estrogen, in 2 ways in fact.
First off some of the testosterone that does not get converted to DHT gets converted to estrogen. Test levels will increase 10-20% on a 5-AR blocker depending on the dose. You can expect a 10-20% increase in estrogen as well.
Secondly, DHT acts like an anti-e agent because it has a high affinity for the aromatase enzyme.
Gyno is a side effect of fin and dut use - look it up. This is due to increased E levels.

i also found this blog and what he did.

http://www.heart-health-guide.com/causes-of-hormonal-imbalance.html

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1804
(@truejustice)

Posted : 09/30/2016 7:26 pm

53 minutes ago, tryingtohelp2014 said:

Could estrogen be the link between accutane and finasteride? .......

how finasteride increases estrogen and the sexual side effects similar to accutane......

Does Finasteride increase estrogen?

It absolutely does increase estrogen, in 2 ways in fact.
First off some of the testosterone that does not get converted to DHT gets converted to estrogen. Test levels will increase 10-20% on a 5-AR blocker depending on the dose. You can expect a 10-20% increase in estrogen as well.
Secondly, DHT acts like an anti-e agent because it has a high affinity for the aromatase enzyme.
Gyno is a side effect of fin and dut use - look it up. This is due to increased E levels.

So with that being said, would we benefit from taking a testosterone boosting supplement or something like DIM to control Estrogen?

Or possibly both!??

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MemberMember
10
(@kokodu)

Posted : 10/01/2016 3:04 am

If this theory is true so maybe someone try any medical estrogen reducer for some time and show us the results? I'm afraid that taking only testosteron will not work.

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MemberMember
299
(@macleod)

Posted : 10/01/2016 9:03 am

On 9/30/2016 at 3:18 AM, t981 said:

Hi everyone

Just checking in since my last post a couple of weeks ago. If you didn't see it then basically I'm having some sexual effects since stopping accutane a little while ago. Have continued to fluctuate since my last post. Some very good days, but some poor ones too. It's annoying but at the same time makes me positive as it shows my body is in the process of recovering/rebalancing itself.

On another note, I've only been following this forum for a short time, and already it's clear how chaotic it is. 423 pages of info. There could be some great stuff in there, maybe something that would recover other people, but no newcomer to the forum is evergoing to read through all423 pages.

A well organised forum like propeciahelp needs to be made for post-accutane sufferers. I think that until there is an 'accutanehelp' style forum, people will not take us seriously. And more importantly, I think we would recover quicker with a more organised, focussed forum. This current thread is an obstacle to progress.

I'm sure this kind of thing has been discussed before, how far along the line did it get?

We made a step in the right direction, someone here created Lastingsides.org. I suppose why everyone comes here though, is that it is an easy way to publicly post a daily journal entry, if you will, so that everyone can see. This is a popular website in the United States and garners a lot of attention. Our daily plights also are visible to the people curious about taking this drug, so naturally it is why we frequent here.

I would eventually like to take it one step further and design a standard form to collect for our records on everyone who has been adversely affected...to fill out a standard questionnaire about their side effect experience, contact info, medical readings that they are willing to share. I think all of us should create our own reports that we can collectively group and maybe even create a form that gives permission after we're gone for post mortem autopsy (pancreas, liver, brain) for those willing, to really get down to the bottom of this. You know, the evidence is gonna come out eventually, it would be nice to have some data that doctors 25 years from now can read through.

The implications are there, i suspect a number of accutane users will go on to have chronic ailments and disease, much more than the norm in a standard population...we just need to record it all, and stop trying to fight our own medical battles and health ailments individually day by day.

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MemberMember
157
(@tanedout)

Posted : 10/01/2016 1:39 pm

19 hours ago, tryingtohelp2014 said:

Could estrogen be the link between accutane and finasteride? .......

how finasteride increases estrogen and the sexual side effects similar to accutane......

Does Finasteride increase estrogen?

It absolutely does increase estrogen, in 2 ways in fact.
First off some of the testosterone that does not get converted to DHT gets converted to estrogen. Test levels will increase 10-20% on a 5-AR blocker depending on the dose. You can expect a 10-20% increase in estrogen as well.
Secondly, DHT acts like an anti-e agent because it has a high affinity for the aromatase enzyme.
Gyno is a side effect of fin and dut use - look it up. This is due to increased E levels.

i also found this blog and what he did.

http://www.heart-health-guide.com/causes-of-hormonal-imbalance.html

Interesting link!

The finasteride 'cdnuts' method for sorting fin sides is essentially some water fasts, followed by cycling testosterone boosting herbs and a pro-hormone along with an aromatase inhibitor (believe he used Res100). Others have recovered following this method, a couple quite recently over on the Swole Source forum.

In the past I've tried testosterone boosting herbs like tribulus, but have only received short term benefits. I also got a great few weeks when taking 3 x heaped teaspoons of pine pollen daily to increase T, but after 4 or so weeks I was starting to get symptoms of high e (really sensitive nipples), and in addition was getting groin pain.

Have also tried taking aromatase inhibitors - Erase Plus resulted in rock solid morning glory, but the benefits seemed to plateau after a while. Also some good results from grape seed extract, but this seemed to also give me headaches. Calcium d glucarate is supposed to be an AI but on 3g of that daily I felt like it was resulting in a swollen prostate.

One thing I've not tried is testosterone boosting sups like pine pollen along with an AI, that would potentially give some good results.

I'm currently having some moderate success improving mental clarity with methy B12 + acetyl l-caritine and some folate, so will likely continue that (also take 2mg vitamin C daily, and d3 10ui every 2 days), but I'm going to get some DIM ordered and build up on that too.

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MemberMember
4
(@mantasva)

Posted : 10/01/2016 2:08 pm

Wow, I have never used accutane but did not even know that these side effects are so real. I mean docs must be right, we should trust them, especially when you are teenager without experience. The word should spread so other know

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MemberMember
0
(@amar21)

Posted : 10/02/2016 12:03 am

On 9/5/2016 at 8:56 PM, ACCUiTy_drANE said:

 

See, but that is macleod's precise point. You assume that just because you are okay, everyone else must not really be suffering. It must be in their heads.

Please note that a lot of us have made drastic, life-altering changes to deal with our problems. We are not simply complaining, but instead, actively learning and trying new things. What you're doing is thinking back to your perception of your former self, and applying it to all of us. Well, n=1 is n=1. Speak for yourself.Hey, while you're on Pub Med, please do not overlook the following studies.

http://www.ncbi.nlm.nih.gov/pubmed/25689814

"A 25-question survey was emailed to 7,013 dermatologists included in a proprietary database (MBD, Inc.) and anonymous responses were collected. 591 board-certified dermatologists participated. Thirty-seven percent of the responding dermatologists believe that isotretinoin may cause psychiatric disturbances. Dermatologists' opinions on this relationship did not significantly impact prescription practices in patients with history of depression (P=0.056) or in patients being treated with an antidepressant (P=0.118)."

http://www.ncbi.nlm.nih.gov/pubmed/15863802

A 4-month treatment trial with isotretinoin was associated with a decrease in brain functioning in the orbito-frontal cortex, a brain region implicated in depression.

http://www.ncbi.nlm.nih.gov/pubmed/15251924

We now show, in a mouse model, that endogenous RA generated by synthetic enzymes in the meninges acts on hippocampal granule neurons, and chronic (3-week) exposure to a clinical dose of 13-cis RA may result in hippocampal cell loss.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC387382/

"This report demonstrates that a clinical dose (1 mg/kg/day) of 13-cis-RA in mice significantly reduces cell proliferation in the hippocampus and the subventricular zone, suppresses hippocampal neurogenesis, and severely disrupts capacity to learn a spatial radial maze task. The results demonstrate that the regions of the adult brain where cell proliferation is ongoing are highly sensitive to disruption by a clinical dose of 13-cis-RA."

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3276716/#R173

"Increased concentrations of homocysteine have also been associated with attacks of violent anger. Isotretinoin administration to human subjects was shown to be associated with increased concentrations of homocysteine, as well as decreases in 5-methyl-tetrahydrofolate, providing a potential metabolic mechanism by which isotretinoin may promote depression."

"In the case of patients reported to the Norwegian Medicines Agency, single photon emission computed tomography (SPECT) of the brain was performed in 15 cases who reported lasting neurological symptoms. Altered brain function was seen in all cases involving altered or reduced frontal lobe blood flow. Ten of these patients were evaluated to have organic brain damage."

https://www.ncbi.nlm.nih.gov/pubmed/20708044

"13-Cis-retinoic acid (13-cis-RA) causes depression-related behavior in mice. Hypothalamic dysregulation has been implicated in clinical depression. In fact, apoptosis of hypothalamic neurons may lead to depression after myocardial infarction. . . .We hypothesize that the ability of 13-cis-RA to decrease hypothalamic cell number may contribute to the increased depression-related behaviors observed in mice."

http://www.ncbi.nlm.nih.gov/pubmed/22239608

"Systemic isotretinoin and antibiotic treatments in acne patients precisely caused variations in the microbial floras of several sites of the body, while isotretinoin was commonly more responsible than antibiotics."

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3219165/#R39

"We have learnt that retinoids provide an essential, early signal that initiates a cascade of events leading to changes in proliferation, differentiation and predominantly apoptosis affecting most CRABP-2 expressing somatic cells as well as the stem cell compartments.8We have to appreciate that isotretinoin does not exclusively targets apoptosis of the sebaceous glands as proapoptotic drug effects have been observed in several unrelated cell systems and explain all adverse effects of isotretinoin and other retinoids (Table 2). The asthonishing functional overlap of changes in FoxO-mediated gene transcription and isotretinoinmediated gene transcription (Table 1) strongly suggests that isotretinoin and its isomerization product ATRA induces upregulation of FoxO-signaling and exerts apoptotic effects in multiple cell types like the muscle, the bone and the brain."

(Never mind the studies Roche conducted in the 1980s which demonstrates how Accutane can erode the intestinal tract. These studies were finally uncovered in the late 2000s thanks to lawsuits.)

So literally yes.

That is a lot of good research. I know the drug comes with lots of risks, most drugs do although accutane may be higher than some. Still, this blog is about the long-term effects of accutane. Your research shows no proof that accutane has these effects in the long-term, especially permanently. In addition, you didn't mention how common these effects are. Most of these studies were probably done outside human subjects (eg rats, cells) and for the ones done on humans, the effects most-likely varied from person to person, with most probably not suffering severe cases. But the way you, and many people on this blog, present the data makes it seem like everyone who ever takes accutane will forever have problems with things they are most scared of damaging like their brains and mental health. I'm not saying the research is illegitimate but it does not give merit to some of the fear-mongering claims that are said on here. Like I said, try to take a step back and really look at your life. If you do have serious problems that is one thing but I feel that many of you on here are making up problems that are not real and blaming them on accutane. From my experience, you will feel a lot better if you stop wasting your time on these blogs to let your mind be clear again.

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MemberMember
299
(@macleod)

Posted : 10/02/2016 12:38 am

8 hours ago, Amar21 said:
On 9/5/2016 at 8:56 PM, ACCUiTy_drANE said:

 

That is a lot of good research. I know the drug comes with lots of risks, most drugs do although accutane may be higher than some. Still, this blog is about the long-term effects of accutane. Your research shows no proof that accutane has these effects in the long-term, especially permanently. In addition, you didn't mention how common these effects are. Most of these studies were probably done outside human subjects (eg rats, cells) and for the ones done on humans, the effects most-likely varied from person to person, with most probably not suffering severe cases. But the way you, and many people on this blog, present the data makes it seem like everyone who ever takes accutane will forever have problems with things they are most scared of damaging like their brains and mental health. I'm not saying the research is illegitimate but it does not give merit to some of the fear-mongering claims that are said on here. Like I said, try to take a step back and really look at your life. If you do have serious problems that is one thing but I feel that many of you on here are making up problems that are not real and blaming them on accutane. From my experience, you will feel a lot better if you stop wasting your time on these blogs to let your mind be clear again.

I personally think Accutane can be a viable treatment for people and you specifically should recommend it to your family and friends. And if you haven't already, please consider taking it.

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MemberMember
158
(@accuity_drane)

Posted : 10/02/2016 10:36 am

14 hours ago, Amar21 said:
ThaI know the drug comes with lots of risks, most drugs do although accutane may be higher than some.

A lot of people love to throw this statement out whenever someone brings up Accutane's risks. "ALL drugs cause risk, so why bring up Accutane's?!" The problem is that Roche has a history of trying to cover up Accutane's side effects. For example, the time Roche tried to (ironically) market Accutane as an anti-depressant right around the time the FDA was trying to add safety labels regarding the psychiatric side effects of the drug. Or the time Roche was found covering up studies that demonstrated the mechanism of action in which Accutane leads to IBD in some. Patients have a right to be informed of the risks. Also, as people affected, we have a right to talk about the effects.

14 hours ago, Amar21 said:
Your research shows no proof that accutane has these effects in the long-term, especially permanently

The human body is not so simple that once you immediately cease an action/medication, all consequences go away. Previous studies and FDA memos have stated this! The most obvious example is the fact that many Accutane users see their skin go in permanent remission. The drug is done acting on the body, but certain mechanisms are obviously still in place. Alternatively, it could be that the body adjusts to a new norm. Also, Accutane being a chemotherapy drug, it has been acknowledged that chemotherapy drugs can cause lasting cognitive effects after treatment. This is in addition to all of the apoptotic effects Accutane has been shown to have.

14 hours ago, Amar21 said:
In addition, you didn't mention how common these effects are.

I am not qualified to answer those complex questions, but even the FDA acknowledges that the numbers are probably 10 times higher than what the official estimates reflect. And given the fact suicide is permanent, this article ties in to your former concern (regarding how permanent the side effects are) as well.

14 hours ago, Amar21 said:
But the way you, and many people on this blog, present the data makes it seem like everyone who ever takes accutane will forever have problems with things they are most scared of damaging like their brains and mental health.

This thread is specifically about healing from long-term damage. That is the main focus. It really isn't necessary for us to say "in my experience" after each post. We are worried about ourselves feeling better again. If you don't want to be exposed to it, you do not have to. In terms of what I personally said about restricting access to Accutane, that is nothing that hasn't been recommended by experts before. Accutane was originally intended for serious cases of acne. Those who outright recommend having it pulled for the market have a leg to stand on as well, as the FDA considered it in the past.

14 hours ago, Amar21 said:
I'm not saying the research is illegitimate but it does not give merit to some of the fear-mongering claims that are said on here.

Well, some may say the research is inherently scary. No one can control how you perceive it but yourself. I am no longer scared by it; I am taking control of my health the best way I can.

14 hours ago, Amar21 said:
but I feel that many of you on here are making up problems that are not real and blaming them on accutane.

lol

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MemberMember
1
(@t981)

Posted : 10/02/2016 4:31 pm

On 1 October 2016 at 3:03 PM, macleod said:
We made a step in the right direction, someone here created Lastingsides.org. I suppose why everyone comes here though, is that it is an easy way to publicly post a daily journal entry, if you will, so that everyone can see. This is a popular website in the United States and garners a lot of attention. Our daily plights also are visible to the people curious about taking this drug, so naturally it is why we frequent here.

I would eventually like to take it one step further and design a standard form to collect for our records on everyone who has been adversely affected...to fill out a standard questionnaire about their side effect experience, contact info, medical readings that they are willing to share. I think all of us should create our own reports that we can collectively group and maybe even create a form that gives permission after we're gone for post mortem autopsy (pancreas, liver, brain) for those willing, to really get down to the bottom of this. You know, the evidence is gonna come out eventually, it would be nice to have some data that doctors 25 years from now can read through.

The implications are there, i suspect a number of accutane users will go on to have chronic ailments and disease, much more than the norm in a standard population...we just need to record it all, and stop trying to fight our own medical battles and health ailments individually day by day.

That's a good point to be fair re the forum - this website gives far more exposure.

I'm a bit surprised as well that post accutane sufferers aren't recognised like pfs sufferers are. I suppose it's because they have a very common set of problems, whereas accutane sufferers have a massive range of problems that are seemingly random. That's also something I also don't get, how such a massive span of side effects can happen.

so many questions haha!

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MemberMember
223
(@gladiatoro)

Posted : 10/02/2016 8:05 pm

I found drinking organic beer helps with my constipation caused by accutane.

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MemberMember
183
(@monsterdiesel)

Posted : 10/02/2016 10:05 pm

On 9/29/2016 at 7:58 AM, TrueJustice said:
What sort of folate supplement do you take?

Is it methylfolate??

I dont have any mutation with folate so I use folinic acid. I also have a bittle of methylfolate that I use from time to time. I do have some MTR/MTRR mutations so I use methylb12 mostly and sometimes hydroxycobalamin.

I want to add, I was never able to use choline without getting depression syntoms but since using b12/folate/methionine, i've been fine. I used 1 gr of choline bitartrate with no problem.

Im also seeing a benefit from using HMB. It's an anticatabolic that lowers foxo/atrogin-1 and reverses the state of wasting accutane put us in. I use 1 gr a day. Some here mentioned lithium does the same. I measured my levels years ago and it was undetectable.

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MemberMember
1804
(@truejustice)

Posted : 10/02/2016 11:36 pm

1 hour ago, MonsterDiesel said:
I dont have any mutation with folate so I use folinic acid. I also have a bittle of methylfolate that I use from time to time. I do have some MTR/MTRR mutations so I use methylb12 mostly and sometimes hydroxycobalamin.

I want to add, I was never able to use choline without getting depression syntoms but since using b12/folate/methionine, i've been fine. I used 1 gr of choline bitartrate with no problem.

Im also seeing a benefit from using HMB. It's an anticatabolic that lowers foxo/atrogin-1 and reverses the state of wasting accutane put us in. I use 1 gr a day. Some here mentioned lithium does the same. I measured my levels years ago and it was undetectable.

Thx for your reply.

Sorry, what levels are you referring to that you measured?

your tip with methionine has helped. Vit B12 by itself wasn't doing much but when taken with TMG my depression lifts, slightly but noticeable!

Im still thinking of taking LDN. This combination of both depression and fatigue is crippling at times so anything that even helps slightly I'm interested in!!

Ill also look into the other things you've mentioned. When you say "wasting", what exactly are you referring to? Muscle, brain, liver, whole body??

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MemberMember
70
(@whackutane)

Posted : 10/02/2016 11:40 pm

Results from hydrogen/methane test. Bit confused as to why it says i tested positive for SIBO in regards to Glucose, and yet the conclusion is that I don't have it, will email them back today. Frustrating trying to work out where all these liver issues come from and how they can be tested and managed. 

How is it that accutane can completely disrupt bile production? Ive tried kickstarting it/dumping it with a bile-expelling agent for 2 weeks and achieved nothing, perhaps I will try this for as long as I can and at the highest dosage I can tolerate.

results.png

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0
(@Anonymous)

Posted : 10/03/2016 1:21 pm

sorry Guys, accutane ruined my look, in seven years I gradually lost male characteristic, my face is skinny without jaw, i lost all sex appeal, my muscle in arm are half size, my body i regressed like a teenager, I m 27 years old, impotence, non sex drive, no sex life from 2010 after 5 curse of accutane.

I dont remember dosage, the first doctor that prescribed me accutane is death....

from two years I lost hope from supplement, but calcium d glucarate is lnterest me, there is other supplement"recccomended" or i order only calcium d glucarate?

ps: yes i went to see doctor, in all my country, Switzerland, nothing can help, no one believes damage from accutane, I thew money to get me to say that all hormones test are perfect without no wrong values.

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MemberMember
47
(@walden-rev)

Posted : 10/03/2016 3:07 pm

1 hour ago, Ruvik said:

sorry Guys, accutane ruined my look, in seven years I gradually lost male characteristic, my face is skinny without jaw, i lost all sex appeal, my muscle in arm are half size, my body i regressed like a teenager, I m 27 years old, impotence, non sex drive, no sex life from 2010 after 5 curse of accutane.

I dont remember dosage, the first doctor that prescribed me accutane is death....

from two years I lost hope from supplement, but calcium d glucarate is lnterest me, there is other supplement"recccomended" or i order only calcium d glucarate?

ps: yes i went to see doctor, in all my country, Switzerland, nothing can help, no one believes damage from accutane, I thew money to get me to say that all hormones test are perfect without no wrong values.

Try rick simpson oil

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MemberMember
0
(@abi72)

Posted : 10/03/2016 7:28 pm

On 10/1/2016 at 9:04 AM, Kokodu said:

If this theory is true so maybe someone try any medical estrogen reducer for some time and show us the results? I'm afraid that taking only testosteron will not work.

What T did you take.TRT or just a supplement. For sure, without doubt accutane messes with hormones.
Have you had at least the basic sex hormones tested. They may still be within range but for many T is definitely lowered and E can be high or low.
For sure everyone should have levels checked.
Just a shame we don't have before and after to compare - that would certainly shed some light on the matter!

6 hours ago, Ruvik said:

sorry Guys, accutane ruined my look, in seven years I gradually lost male characteristic, my face is skinny without jaw, i lost all sex appeal, my muscle in arm are half size, my body i regressed like a teenager, I m 27 years old, impotence, non sex drive, no sex life from 2010 after 5 curse of accutane.

I dont remember dosage, the first doctor that prescribed me accutane is death....

from two years I lost hope from supplement, but calcium d glucarate is lnterest me, there is other supplement"recccomended" or i order only calcium d glucarate?

ps: yes i went to see doctor, in all my country, Switzerland, nothing can help, no one believes damage from accutane, I thew money to get me to say that all hormones test are perfect without no wrong values.

You never post your test results. Lets us know what they are. Just because a doctor says everything is within range doesn't mean they are right for you. Are you saying you took 5 courses of accutane or that you took it for 5 months?

19 minutes ago, hatetane said:
What T did you take.TRT or just a supplement. For sure, without doubt accutane messes with hormones.
Have you had at least the basic sex hormones tested. They may still be within range but for many T is definitely lowered and E can be high or low.
For sure everyone should have levels checked.
Just a shame we don't have before and after to compare - that would certainly shred some light on the matter! You never post your test results. Lets us know what they are. Just because a doctor says everything is within range doesn't mean they are right for you. Are you saying you took % course of accutane or that you took it for 5 months?

If you are impotent you should look into HCG and clomid. I believe some have had success and others haven't but it does seem that this is what the US doctors are recommending for accutane and PFS sufferers.

Can anyone speak up if they have tried either clomid and or HCG

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MemberMember
223
(@gladiatoro)

Posted : 10/03/2016 8:19 pm

48 minutes ago, hatetane said:
What T did you take.TRT or just a supplement. For sure, without doubt accutane messes with hormones.
Have you had at least the basic sex hormones tested. They may still be within range but for many T is definitely lowered and E can be high or low.
For sure everyone should have levels checked.
Just a shame we don't have before and after to compare - that would certainly shed some light on the matter! You never post your test results. Lets us know what they are. Just because a doctor says everything is within range doesn't mean they are right for you. Are you saying you took 5 courses of accutane or that you took it for 5 months? If you are impotent you should look into HCG and clomid. I believe some have had success and others haven't but it does seem that this is what the US doctors are recommending for accutane and PFS sufferers.

Can anyone speak up if they have tried either clomid and or HCG

I think he said he took 5 rounds of tan WOW. Sexual dis function would certainly be caused by this. Systemic dehydration would be another permanent side effect.

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MemberMember
37
(@umas)

Posted : 10/04/2016 4:44 am

8 hours ago, Gladiatoro said:
9 hours ago, hatetane said:
What T did you take.TRT or just a supplement. For sure, without doubt accutane messes with hormones.
Have you had at least the basic sex hormones tested. They may still be within range but for many T is definitely lowered and E can be high or low.
For sure everyone should have levels checked.
Just a shame we don't have before and after to compare - that would certainly shed some light on the matter! You never post your test results. Lets us know what they are. Just because a doctor says everything is within range doesn't mean they are right for you. Are you saying you took 5 courses of accutane or that you took it for 5 months? If you are impotent you should look into HCG and clomid. I believe some have had success and others haven't but it does seem that this is what the US doctors are recommending for accutane and PFS sufferers.

Can anyone speak up if they have tried either clomid and or HCG

I think he said he took 5 rounds of tan WOW. Sexual dis function would certainly be caused by this. Systemic dehydration would be another permanent side effect.

Yes he wrote "5 curse of accutane" so maybe he just forgot to write months... I hope because wtf. Even if doctors think that accutane is 100% safe, wouldn't it be obvious after first three courses that obviously accutane don't work for this guy?

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MemberMember
223
(@gladiatoro)

Posted : 10/04/2016 10:08 am

8 hours ago, Umas said:
Yes he wrote "5 curse of accutane" so maybe he just forgot to write months... I hope because wtf. Even if doctors think that accutane is 100% safe, wouldn't it be obvious after first three courses that obviously accutane don't work for this guy?

Allopathic derms MAY think it's safe I don't 1/3 of derms won't even us it , that says a lot , joint pain and depression are directly linked to this POISON , along with systemic dehydration FACT.I wouldn't necessarily call it depression but reduced brain function.

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(@truejustice)

Posted : 10/04/2016 4:33 pm

6 hours ago, Gladiatoro said:
Allopathic derms MAY think it's safe I don't 1/3 of derms won't even us it , that says a lot , joint pain and depression are directly linked to this POISON , along with systemic dehydration FACT.I wouldn't necessarily call it depression but reduced brain function.

I don't think we've made too many inroads into "systemic dehydration" If we could solve this issue I think the body would respond better to everything else!!

Other than Baxyl - what else can we take?. I'm aware that avoiding certain things also helps but my face is so dry and my brain feels fried still 19 years on. Never found anything to combat this!??

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(@gladiatoro)

Posted : 10/04/2016 5:50 pm

1 hour ago, TrueJustice said:
I don't think we've made too many inroads into "systemic dehydration" If we could solve this issue I think the body would respond better to everything else!!

Other than Baxyl - what else can we take?. I'm aware that avoiding certain things also helps but my face is so dry and my brain feels fried still 19 years on. Never found anything to combat this!??

Perhaps rso

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(@truejustice)

Posted : 10/04/2016 7:46 pm

1 hour ago, Gladiatoro said:
3 hours ago, TrueJustice said:
I don't think we've made too many inroads into "systemic dehydration" If we could solve this issue I think the body would respond better to everything else!!

Other than Baxyl - what else can we take?. I'm aware that avoiding certain things also helps but my face is so dry and my brain feels fried still 19 years on. Never found anything to combat this!??

Perhaps rso

Has anyone ever mentioned RSO helps with hydration??

I still don't have a clue how to get this stuff in Australia- it's like trying to go out and score drugs or something and how do you even know you're getting the real thing!?

Prob just end up with snake oil, ripped off with another product that promises to deliver but doesn't .

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