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Repairing the long-term damage from Accutane

 
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(@josephbuchignani)

Posted : 04/01/2012 10:23 pm

Clearly you know a lot more about steroids than I do, so yes you should ignore my ignorant opinions on the subject.

 

This is very very interesting and amazing stuff. The steroid hypothesis makes a lot of sense. That's an acute observation regarding how bodybuilders seem to tolerate it so well.

 

Great job, Lukez and Levianthan!

 

This could be especially big for the worst-hit, those suffering sexual dysfunction.

 

My post-scallops life is going amazing. The impact of Circadian stress induced IBS is now heavily muted. It's only a significant interruption the day of and the day following. Being super-saturated with micronutrients feels awesome. Testosterone is definitely way up.

 

I wonder if sleep could be such a huge trigger because sleep deprivation reduces DHT? No idea.

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(@thefrenchguy)

Posted : 04/02/2012 10:41 am

Hey Mickymouse,

 

Are you saying this helped you?

Or is helping you?

 

I think we will too. And then we will be Gods in our right, and kick butt.

I know it's not good to get super hopeful, but I have a good feeling about the sauna.

I'm also planning on getting checked for nutrient deficiency

 

Stef

 

 

I think that the sauna is a good thing because vitamine A is destroyed by the heat.

http://fr.wikipedia.org/wiki/Vitamine_A

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143
(@indigorush)

Posted : 04/04/2012 2:37 am

Well, I got my sauna through the post yesterday.

It certainly works! Drenched after 40 mins.

So far, I've done 3 sessions.

I'll continue to do 2 x a day and eat well at the same time.

I really need this to work.

It seems like my biggest hope so far.

I don't know what other options are left for me.

Steroids don't seem the right way out of this, or synthetic hormones.

I want to fix what's broken.

Not put in a temporary replacement.

 

Fingers crossed guys.

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(@humanstate)

Posted : 04/04/2012 11:19 pm

Hi, hope everyone is surviving.

 

Has anyone heard of or tried the GAPS diet?

 

It's aimed at healing the gut.

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91
(@josephbuchignani)

Posted : 04/05/2012 5:34 am

Yes, I'm familiar with the GAPS diet. It's based on sound principles. I think mine might be better as a baseline. GAPS talks more about expansion beyond the baseline.

 

I just had my first solid dump since December. Amazing! It was bricklike. The diet actually works.

 

So that means this week's test is a smashing success.

 

Nothing's changed, really. I cook scallops and shrimp together in a rice cooker with white rice. Then I steam lean chicken or pork, and eat it together.

 

Cooking the scallops with rice and de-shelled shrimp gets rid of the "fishy" aftertaste of the scallops. The combined effect is quite delicious.

 

That, and I still have to be careful to regulate Circadian by eating at 6:30 - 8 am and stopping eating at 6:30-7:30 pm.

 

Amazing! I couldn't be happier. I have my life back now. WOW THAT TOOK A FREAKING LONG TIME.

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(@thefrenchguy)

Posted : 04/05/2012 10:52 am

Did some of you take Vitamine E supplements ?

They're know to reduce the effects of hypervitaminosis A; by the way, do you know your actual cholesterol and triglycerides levels ?

In fact I don't think I've been hit by the side effects but I'm not very busy so I try to help.

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(@rewopwspe)

Posted : 04/06/2012 3:07 pm

I posted here a while back and tried to go a couple months without reading this thread (for positivity's sake) but now I'm back.

 

I mentioned taking the HCL but like someone else said, it only worked for so long.

 

I am literally starving all the time. I think I have a food intolerance to every food that exists.

 

Someone mentioned using Protomorphogen, has anyone else tried that since?

 

My hair loss is terrible too.

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(@aharon)

Posted : 04/06/2012 5:43 pm

I mentioned taking the HCL but like someone else said, it only worked for so long.

 

Yes.

 

Add gelatin and MSM (2000 mg per day) to your daily diet. Both gelatin and MSM help with the intestinal lining and nutrient absorption.

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(@mickyemouse)

Posted : 04/07/2012 6:28 am

Hows progress with the sauna going Stef?

I've been thinking - making a diary of some sort with every option tried and tested.

If someone registers a domain I'd be happy to help with the hosting (wordpress blog / wiki) whatever you guys need, it'd be a pleasure

 

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143
(@indigorush)

Posted : 04/07/2012 9:17 am

Hows progress with the sauna going Stef?

I've been thinking - making a diary of some sort with every option tried and tested.

If someone registers a domain I'd be happy to help with the hosting (wordpress blog / wiki) whatever you guys need, it'd be a pleasure

 

 

Howdy Mouseman (and everyone else).

 

I'm using the Sauna twice a day at the moment, usually spending 30-40 minutes in each time.

It works well, and gets me sweating.

I wish it were a cabin one, as it's hard to wipe yourself when your enclosed in a blanket.

 

In terms of feeling better though, I can't really comment.

I think this will help, but it's going to take a little while.

I enjoy using it, regardless of what benefits it's giving me.

Go through a lot of towels and baths at the moment.

Keep asking my Mum to sort our broken shower, as that'd be much better.

 

Early days though - I'll update when I have something further to say.

I've also ordered Methyl B12 supplements.

If you do a bit of research you can find that it's recommended for chemo-brain, in order to repair nerve damage.

If these supplements don't work, like all the rest I've tried, I will not be buying any more.

Looking forward to throwing them out so my room doesn't look like an OAP's.

 

Stef

 

The one thing I'll agree with Joseph on is sleep-pattern.

I still need to work on going to bed earlier.

New YouTube video up in a bit.

I'll link it on here, as usual.

 

Stef

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(@mclozors)

Posted : 04/07/2012 12:37 pm

Indogo try

WSN Nerve Support Formula its supposed to be a better verison(more absorbing) than Methyl B12 supplements.

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(@hitman87)

Posted : 04/09/2012 4:59 am

I've read on the forums that some accutane users have difficulty breathing. It's like breathing trough a straw (not that bad, but the feeling you don't breath to full potential). ;) I've been working out a lot recently, but this somehow makes me perform less. Altough my body can take more, my breathing says: stop stop stop! Any of you guys have similar experiences?

 

I also figured out what caused the major breakout last week. It's nuts! I have the same with fish/cod liver oil. Somehow I can't take omega 3 fats it seems. :)

 

Last week I also found a big pile of accutane pills at my parents place. Seems like I still have hundreds of them. My innitial reaction was to throw them away. On second thought, they cost me a lot of money so it would be a waste. And on thirth thought I didnt what to spread this poison to other people. Pff, what to do with a big pile of accutane pills?!

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(@josephbuchignani)

Posted : 04/09/2012 6:51 am

Burn them. Post the video on Youtube.

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143
(@indigorush)

Posted : 04/09/2012 7:53 am

Yeah, dude, I can't really see any use in keeping them around.

[Edited link out] Y'all check out my new song, it's gooooood :)

Anyway, we should be hearing from James soon regarding the telomere theory.

I hope we can finally put that theory to rest, but we'll see what happens.

I have my whole life to sort out in general at the moment, so I'm not going to keep spending time on here and google trying to fix my problems.

At the end of the day, I've tried pretty much everything.

If the Sauna doesn't work, I'll try to find peace with the universe not supporting my wants.

No point in putting my life on hold.

I've come to realise everyone has health problems anyway.

Sure, they may not be so obvious, but they're there.

I have a fair bit going for me really, and I'm sure you do too.

I'm really looking forward to doing the show for the BBC.

It could lead to something good for all of us.

We'll have to wait and see.

The weather has been terrible here, the last few days.

Feel a bit trapped inside.

I'm no longer in a relationship, so I'll have a lot of spare time.

I need to focus on getting some work, and I just need to have a laugh because everything seems a bit serious at the moment.

I'm feeling a bit scared about the future, but you never know what's going to happen.

Hope everyone is doing okay

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(@brian99)

Posted : 04/10/2012 12:57 pm

About steroids:

 

The DHT theory makes some sense and I have a suggestion that may or not have been considered.

 

Proviron increases DHT or contains DHT as I understand it and a concern for those of us who've taken accutane is that oral steroids tend to be liver toxic (though Proviron is relatively mild from what I understand compared to other oral AAS) and some of us have already damaged our livers with accutane.

 

As a possible alternative the steroid Masteron is also DHT derived and is injectable, which tends to be easier on the liver.

 

In any case, I'll be experimenting with one or both soon after more research. The idea of DHT being lowered or that we're unable to produce adequate amounts endogenously or process it now seems to make sense in my case. I'll keep you posted.

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(@nick-ryan)

Posted : 04/11/2012 4:17 am

@Jmsil/James:

 

I believe it's almost to the day of your 4 weeks for your telomere test and I'm very eager to see what results come back. Though it often takes years for telomere shortening to be detected and we are young, hopefully(and not) the damage can be detected from the Accutane so that we can do something about it.

 

If the results do yield something please PM me to let me know (or however you send someone a message on this forum) because I seldom have time to read through the forum nowadays.

 

Hope everyone is doing well.

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(@jmsil)

Posted : 04/12/2012 6:52 am

Sorry that your girlfriend split up with you, Indigo. That, along with just quitting your job, make make things feel very different to before. Hope it doesn't affect you in a bad way.

 

Nick, I haven't got the results yet. There has been a problem faxing them from the hospital where I had the blood taken to my doctor's surgery, or something. I might get the results next week, but not this week. It also depends if I need to book an appointment with the doctor to get a print out of the results, or if I can just pick up the printed results from the reception whenever I want. I'm not familiar with how it works. I just had another blood test a few hours ago which does all the general stuff like the blood count, blood sugar etc., so I should get those results next week, but obviously the telomere results are the big ones. When I know, I'll post.

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(@rewopwspe)

Posted : 04/12/2012 4:14 pm

Some info online about fat soluble toxins

 

"Most often they accumulate in the fatty tissues, liver, kidneys, and brain, but also in the skin, bones, blood, cell membranes or any localized body tissues. Why should you worry about it? Because they slowly - or not slowly at all - erode your health.

Why do toxins remain in the body? Simply put, your detox system is overwhelmed, due to excessive level and variety of toxins pouring in day by day, for years and decades, beginning with your earliest age.

Body's detox capability is enormous, but it does have its limits. Constant influx of hundreds of toxins, combined with the shortage of nutrients that body needs to run and protect its detox function, results in accumulation of toxins within the body. This is in particular the case with fat-soluble toxins, which the detox system needs to convert in water-soluble form, for the body to be able to effectively dispose of.

Fat-soluble toxins that are neither neutralized, nor made more water soluble, will roam the body. Some will ultimately end up deposited in the fatty tissues throughout the body. They are causing relatively little harm as long as they remain there, but they'll leak out whenever these fatty deposits start dissolving - when you lose wait, get sick, or have prolonged intense physical activity."

 

It goes on to say thing like sweating as being very important. Nothing here that we already have not already discussed.

 

But I think it reasurres that we all need to have some serious fat-soluble detoxes. Summers coming, it's time to sweat.

 

There was a guy here who said he got better by drinking a lot of water (eh, didn't work for me) and going outside and playing a lot of sports...Sweating...detox. Yes?

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143
(@indigorush)

Posted : 04/12/2012 5:05 pm

It worries me that they spelt weight wrong.

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(@mrjarjarbinks77)

Posted : 04/13/2012 11:20 pm

I am one of these tree hugger, all natural, all organic, pro health, fitness, sports, activies, out doors, martial arts, nature, etc kind of person. Acne had really fucked me up over the years. At this point, the choice is shorter life span, side effects or run the risk of being scar face, crater face or moon face? There is not easy answer. Topicals are not doing it for me. One bad break out and I could be like Tom Cruise in vanilla sky with a face mask. Its crippling to my self esteem, to my confidence, social life, to dating, and sex life. The side effect about ED is pretty scary. If you got anexity issues, this is a side effect or so I have heard. I am fortunately, fully functional male, and I intend to keep it that way.

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(@maynerd)

Posted : 04/14/2012 2:24 am

I am having really good results (as a few others have noted some success) with the Dermatrophin PMG. Finally my face has stopped peeling everyday for the most part and the combination of the pmg with hyaluronic acid as well as biotin is making my skin feel more normal but I believe the derm pmg was the kicker. I switched from source back to Jarrow as far as Hyaluronic acid goes because I prefer taking my supps in either powder or capsule form and I must report I do like the Jarrow more (Been on Jarrow for 5 days only one noticible eye floater in the past 2 days, no soreness!).

 

 

I have been thinking about taking creatine for a few months but I haven't decided if I want to take it yet, I need to do more research. I do know that creatine hcl seems to be utilized more effeciently by your body and would therefore likely be easier on your organs. The Con-crete would be a good form of hcl. On the other hand the monohydrates will increase water retention which seems like something we could use. I just found out that creatine increases DHT levels. I've already been trying my best to drink around a gallon of water a day. Would need to get closer to 1.5 w creatine and closer to 2 with creatine and sauna at the same time. I am hesitant of the creatine tho, need to do more research to become comfortable.

 

 

Found this: http://ebooks.whnliv.../LipidDetox.pdf

 

 

Found what he said about potassium to be interesting. Probably a good idea with sauna use anyways. Also found interesting what he said about replacing bad fats with good fats such as lecithin which I plan on ordering. Getting the kind from sunflower sources rather than soy sources.

 

 

I've been thinking in terms of repairing vitamin A metabolic pathways lately. For example, Keratynocytes are involved in Vit A synthesis and also hyaluronic acid utilization among other things. They need vitamin D and selenium/selenoprotiens to work properly selenoproteins can be found in algae and astaxanthin (a caratenoid that does not convert to vit a). I am probably going to buy a micronutrient supplement soon. I think that's where Joseph is correct w his wacky diet, which I might try sometime as a short term kind of break for my system (like a fast) but wouldn't consider it longterm.

 

 

Anyway here is the full section from my physio book on vitamin A for anyone ready to tread through the tedious jargon. It covers everything from deficieny to hypervitaminosis. I challenge the genious out there to synthesize this knowledge and repair us. I feel like I'm forgetting something in this post but the first time I tried to post this one my comp freaked and it was erased bleh.

 

https://docs.google....k5Wak1rRW8/edit

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143
(@indigorush)

Posted : 04/14/2012 4:04 am

Hi Maynerd,

 

When you say you have noticed only one eye floater in the last 2 days, do you mean you normally have more?

I have a few that I can see in daylight, or a well lit room, and good God are they annoying!

I'm still worried about my gums receding because it appears worse on a couple of teeth.

Seriously, it feels like I'm running out of time. I feel like my health is declining at a rapid rate.

 

I've been using my sauna twice a day since my first mention of it. That's probably 10 days, I dunno.

No sign of it helping at all.

I'm not really sure how long I'm meant to expect for results.

I did hear on another Accutane post (on some other site) that some dude had been using an IFR sauna for years after accutane and it didn't help side effects, but he said it was good for health in general.

 

I went to the pub with my friends yesterday and felt shit.

I was in one of those brain-not-functioning moods and couldn't manage to string a sentence together.

I was also missing my girlfriend terribly... Well, she was my girlfriend.

It's her birthday today, and I can't be there.

 

I went to my Music open day and ended up singing in a band for one song.

I didn't feel nervous. It was good, and I think it'd help me feel happier if I did that instead of office work.

Still need to do my audition, which is in a couple of weeks, and need to save up as it's 1400 a year. Time to get a job again, before I end up wasting away.

When we were watching the other band play, I suddenly got a terrible pain in my head.

I hate that I assume I'm dying every time something like that happens.

It was a one-off in the end, but hurt like hell.

 

I've heard that 97.5% of supplements are useless and not absorbed.

I don't have money to buy anymore at the moment.

 

When I get a job, which hopefully I do (at least part time) soon, I'll arrange to get my vitamin/mineral levels checked out.

I do know that chemotherapy, as well as stress cause a deficiency in Magnesium, so it might be wise to take this a couple of times a day in a good form.

Still feels a bit like guesswork though.

Sick of taking lots of supplements and getting no results.

We need to remember that many of these will be banned in the next few years.

It's something that was put into place last year in the UK, and America will follow suite.

 

It angers me, because they know exactly what they're doing.

100% RDA of Vitamin C is 60mg and that's bollocks.

Vitamin C has been shown in studies to fight cancer, and yet cancer research advise people against using it.

Every disease is a business to these greedy fuckbags.

They need to be exposed for the liars they are.

There is due a paradigm shift, because people are getting more ill from drugs.

Drugs create illness.

 

They give chemotherapy and radiation to people with cancer, but those cause cancer.

In a hundred years time, I believe people will say 'What a bunch of fucking idiots. Why did they poison peoples bodies and radiation. Why didn't they fix the cause'.

 

My Cat has gone fucking senile or something this last week.

Won't shut the hell up.

He meows and you let him in and then he's near the door again wanting to go out.

What's the point in a cat?! Jesus.

 

I still feel unsure about whether we have excess vitamin A (hypervitaminonis) or if Accutane has over-rided the pathways for Vitamin A.

It's like... We have the symptoms of lacking Vitamin A.

Eyesight problems, muscous membrane problems.

And yet, we're not all blind because of this drug.

I have heard others becoming blind after/during Accutane though.

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(@mickyemouse)

Posted : 04/14/2012 1:22 pm

I did a blog post about Creatine

[Removed] -- Including some medical references might be useful for you.

Stef: Hang in there dude, give yourself something to look forward to!

Think of the documentary :)

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(@gatorwolf6)

Posted : 04/14/2012 5:29 pm

Maynerd, good find, I will have to try that Dermatrophin PMG. My face/arms/legs will not stop flaking even if I drink over a gallon of water a day.

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(@maynerd)

Posted : 04/14/2012 7:41 pm

Indigo, I notice mine when I'm outside and I look at the blue sky, happens a lot when driving. I started noticing them a few months ago and they started getting progressively worse at an alarming rate. On Easter I played kickball and within the three hours I must've seen around 100. Scary shit. As far as teeth go I'm getting gum grafting soon cuz my 2 k-9s have a lot of the root showing.

 

This is an important and difficult question to answer "I still feel unsure about whether we have excess vitamin A (hypervitaminonis) or if Accutane has over-rided the pathways for Vitamin A.

It's like... We have the symptoms of lacking Vitamin A".

 

Gator, it was actually switch124 who recommended derm pmg and nickryan who reported good results after that.

 

Still need somebody to show me how to post a pdf...

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