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Repairing the long-term damage from Accutane

 
MemberMember
76
(@yetanotheraccutanevictim)

Posted : 05/12/2016 8:20 pm

1 hour ago, TrueJustice said:
Hyperbaric oxygen chambers sounds interesting. I've often wondered if that would provide some relief for us or reverse some of the damage if that's even possible?

If anyone has some experience with this treatment, pls share!

I'll have some experience within the next few weeks. Hope to share the beneficial results.

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MemberMember
9
(@user511605)

Posted : 05/12/2016 9:28 pm

Hey everyone. In the last 2.5 weeks I've spent a total of 8.5 hours in direct sunlight (avg 70 degree days). I was keeping a log, but I don't see a need anymore. For the rest of this summer I will attempt to be out there as much as possible because of how much this has helped. Vitamin D supplementation and sunlight are just not the same. I suggest if you have the time, get out there and give it a shot.

Also I had a vitamin D test 2 days ago, so after total 8 hours in sun. I'll post result when it comes in.

Time willtell if the sunlight helps long term, but for the record eating a lot of spinach did not. I had to cut that stuff out.

Quote
0
(@Anonymous)

Posted : 05/12/2016 11:08 pm

Hi,
It is a long time i know :) But i don't know, I woke up this morning and thought i had to resume you some updates, and what is the best way of healing, according to my experience (already tested everything).

First start to bring back vitamin D & A* levels up (and vitamin K, but i find it pretty hard to dose, and not sure if MK4 or MK7 better, if (with both of them) i took more than 50mcg and more than 1 times every 5 days, i felt "sick", but low dosage positive results).
Also magnesium (epsom salt foot bath preferably), zinc and maybe others, but never take isolate every day (same with vitamin A) or in long term, and always with food. Maybe omegas 3 too (not every day also).
*Not sure if beta carotene is better (it can have anti-vitamin-a proterties) or retinyl acetate, or retinyl palmitate. Retinyl acetate seems to spread in the body and in blood very fast and high concentration, and palmitate to goes high in the liver and slow in the body, but it's very/too hard and tiring on the liver, compared to acetate (who has his own drawback, i believe 1250 IU is enough with this one).

Better start with vitamin D & other cofactors of vitamin A (zinc, magnesium, vitamin K, E) for some times before taking A.

Edit: about the copper thing, i believe we don't need more copper, we probably have utilization issue (since adrenals & liver controls it) same with every other minerals, but about copper there is more chance we have too much than too low, at least in the wrong form, but taking more (even if we lack the right form), is highly stupid, specially in the artificial rock-made supplement toxic form, you are only stimulating/poisoning your adrenals and the whole system who are already very tired, but in the end you will destroy your body, copper is not like the other minerals, very hard to eliminate, specially after accutane with a very week liver & adrenals. If accutane would done something about copper, it's oxidizing it, and prevent it's elimination, like the global toxicity it induce.
Studies are made at looking at isolated things, specific things, it's not because we observ some temporarly reaction occuring locally between just two isolates, in an isolated part of the body, that it reflet something permanent, or whole. Copper react to vitamin A, like every other nutrients, everything is connected. Homeostasis is not something isolated, and organs, cells, are responsible for homeostasis, from the inside, bombarding it with tons of external rock-made supplements, won't help. There is always more chance that there is too much of something, congesting the body, preventing him from working properly, finding homeostasis, than something missing.
There is a lot of dangerous ignorant people in this forum who understand nothing, who will never get well that way, and poison other peoples mind.

I believe some suplements are useful, but only very temporarly and directly connection to vitamin A (while taking back vit D & A), because when you have deficiency, most of the time, is because of congestion, and organ weakness.  
Don't forget that everything is connected in the body, everything works in synergy with everything else. supplementing isolate can be useful but only temporarily, and low dose (and not every day), if not, it will cause imbalances, and prevent other nutrient from "working" (and being absorbed & utilized) properly.

I believe accutane act as an inhibitor, first for vitamin A (a retino¯ds cycle inhibitor (thats specially how it impair vision)) and then for other minerals & organs, because vitamin A, D, K work together, and are activators for the others & others minerals. And it's an infernal loop, accutane cause very weak organs, and at the same times prevent them to work properly, and if organs doesn't work properly (& with the global toxicity it causes) prevent nutrients homeostasis & cellular feeding to work.

Then if not since the beginning, no more meat, dairy, gluten & grains (except maybe rice, very low corn) (potato better) to allow the body to regenerate, and not try to survive toxic and stimulative foods. If can't stop meat completely maybe some fish (never red meat), never take meat more than 1 time every 3 days. If you can do some water fast for 2-3 days (or more) it's very good but some of us are far too weak to do that, can be dangerous.
Take lot of fruits (who are major detox agents).
Candida is really an issue, candidagone (nutracraft) is pretty powerful (and the parasite M from DrM, but less).

Then if not since the beginning, take detox herbs, like the 2 weeks pack from here: [Edited link out] (it cost a lot, maybe there is alternative but i didnt find a good one)
I believe liver flush is very important too, but it's powerful and not funny. Better to do it at the beginning, before changing diet completely etc.
Site with interesting infos: [Edited link out]

The only real detox you'll get, if from the lymphatic system (and it's elimination pathways, kidneys, intestines, skin), anyone telling you you need to detox via the blood, is a stupid person. Liver is not a detox organ, it's an homeostasis & nutrient utilisation organ. Like Dr Morse always said, the brain have a lymphatic system, even if official medicine always told it had none, but recently they made a "discovery" and after all, the brain have a lymphatic system, and like dr morse always said, proteins are the most toxic element (specially complex ones like gluten, etc.)[Edited link out]

Then if not since the beginning again, take glandular's (available on ourbotanicals, or iherb but lowest quality), specially adrenals (200mg) once every 2 days is the more effective, also pituitary (100mg) (every 2 days or more), kidneys (same times as adrenal), and maybe parathyroid too (10mg). Very important to start the detox process, after accutane all glands are in a sleeping state.
And its your glands and the liver, who assimilate and allow the use of vitamins and minerals (specially adrenal 30+ steroids for all minerals, and liver for vitamins/minerals also), so that's why some take coenzymated vitamins, since their organs doesn't work (& from extracellular fluids congestioned from external & natural toxicity, when it become intracellular it cause autoimmune issue).

Avoid coffee and tea, toxic for adrenals.

Tip: find a path, something to live for, a passion, patriotism, idk.. anything, a higher goal, something real & greater than yourself, if you pity yourself the body will answer to it.

Then, after bringing back vit D & A levels and feeling already far better than before, it's very "controvertial" i know, and it will bring back lot of side effects of accutane, but i believe it's essential. Isotherapy. yea yea it's only sugar and it's not logic to take back accutane imprint, but sadly with very strong blockage/inhibition, very deep one, the body is overburden and doesn't know what to do first, it's a way to force the body out of it's defensive state and start to deal with accutane, with force. And those who think it's only sugar, why not try it so? there is nothing to fear according to your point of view. to be honest i also ridiculized homeopathy, but after i tried... it's very powerful, scary even.
Best quality apparently: [Edited link out]

That's the protocol my homeopath did:

(1 week between each) (4-5 globuls for each, except accutane no more than 1 globuls)

Carbo vegetabilis 30ch. Very important to "open the exit doors" apparently.
Lycopodium 10ch
Lycopodium 12ch
Lycopodium 15ch
Lycopodium 30ch
Lycopodium 30ch

Pulsatilla 9ch
Pulsatilla 15ch
Iso-Tretinoinum 30ch (1globul)
Pulsatilla 30ch
Iso-Tretinoinum 30ch
Pulsatilla 30ch
Iso-Tretinoinum 30ch
Pulsatilla 200ch (1 globul)
Iso-Tretinoinum = if no more effect with 30ch (or only when it creates more symptoms, instead of also fixing them), go at next level, 200ch. if not continue at 30ch, until no more effects. changed to 200ch after little less than 3month.
Iso-Tretinoinum = same
Iso-Tretinoinum = same
Iso-Tretinoinum = same
Iso-Tretinoinum = same

I believe it can take several month to have no more effect with each dosage (30ch & 200ch). Then do the same with 1000ch and 10000ch.

Also took Silicea 6x approximately when i switched to 200ch isotretinoinum.

Note: pulsatilla is certainly specific to me only, the rest (carbo veg, lycopodium, silicea) is general.
Activated charcoal every day is very useful.

Very important to take no more than 1 globul for accutane.

Note2: Best way to take it, is with a jetable plastic glass, and wait to dilute it completely in small amount of water. don't touch the globuls with fingers. it's all to avoid affecting the product with any other "imprint".

When i first took this accutane isotherapy, i had 1 hour after acute pain in the pituitary/hypothalamus area (i know it because it feels the same with the glandular, except the pain) and felt very dizzy, and with vision trouble. I believe it's an area highly poisoned by accutane.
It's not that hard to endure, but really if you do that isotherapy, first be sure you general detox is already far ahead (from external (foods etc..), & natural cellular toxicity (even if accutane provoke more of it, also cause of eliminative lymphatic organs (kidneys & intestine) destroying). If not i believe it will either do nothing, or make things worse.
My awareness, mental clarity and emotions (and libido) came back after that isotherapy personaly, even if all the rest helped greatly to that too. I'll say 50/50.

------

I won't look at answers because there is lot of toxic/negative people here even if they are a few, and i won't take part of it and their drama.

Good luck in any case.

Quote
MemberMember
960
(@tryingtohelp2014)

Posted : 05/13/2016 4:24 am

i have long thought that something was still in our actual skin to influence the consistent dryness. its just a matter of getting it absorbed. This is where our bodies have shut down Fat soluable absorption as a defense against more Vitamin A entering the system? plus less oil on the skin (squalene) = less Vitamin D absorption. maybe this is where taurine really helps with the synthetic Vitamin D.

STEPS IN CHOLESTEROL SYNTHESIS PATHWAY
HMG-CoA Reductase ->->-> Squalene ->->-> Cholesterol ->->-> Sex Hormones, Cortisol, Vitamin D.

Vitamin D analogs affect the uptake and metabolism of retinol by human epidermal keratinocytes in culture.

Abstract

Human epidermis utilizes retinol as precursor for local production of a range of bioactive vitamin A metabolites including 3,4-didehydroretinol, retinoic acid, and 3,4-didehydroretinoic acid. These endogenously formed retinoids bind to nuclear retinoic acid receptors (RARs), thereby altering gene transcription. Because 9-cis-retinoic acid receptors (RXRs) form heterodimers both with RARs and the vitamin D3 receptor (VDR), it is plausible that vitamin D3 may affect retinol metabolism if altered transcription is involved in the regulation of vitamin A-metabolizing enzymes. To investigate the potential effect of vitamin D on retinol metabolism in human skin keratinocytes, HaCaT cells were preincubated with various vitamin D3-analogs at 10(-7)M for 24 h followed by the addition of [3H]retinol for another 24 h period. The uptake and metabolism of the radioactive tracer was monitored by HPLC-radiochromatography. It was found that all synthetic vitamin D-analogs tested (MC903, KH1060, EB1089, and EB1213) reduced the amount of cell-associated [3H]retinoid activity by 35-50% as compared to the vehicle. More specifically, the appearance of the parent substrate and two of its main metabolites, e.g., 3,4-didehydroretinol (ddROH) and 3,4-didehydroretinoic acid (ddRA), was inhibited by the synthetic vitamin D-analogs. The effects on retinol metabolism were not potentiated by coincubation of cells with vitamin D-analogs plus retinoic acid (RA) or 9-cis-RA. This study demonstrates that synthetic vitamin D3 interferes with both the uptake and the metabolism of retinol by human epidermal keratinocytes. Whether the effects are due to direct inhibition of cellular retinol uptake and metabolism or involve VDR-mediated transcriptional alteration of vitamin A metabolizing enzymes remains to be clarified.

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MemberMember
960
(@tryingtohelp2014)

Posted : 05/13/2016 5:20 am

Again, why accutane is used as a Chemotherapy drug. Accutane suppresses VEGF, disrupting the supply of blood vessel formation to stop tumor growth. Copper has long been known to do the opposite for wound healing. i believe we have a backup of retinoic acid in the skin thatconstantlydownregugulates tons of different factors...one of them being VEGF.

ACCUTANE= ANTI-VEGF

COPPER= PRO-VEGF

Vitamin D = PRO-VEGF

Taurine= PRO VEGF

Vascular endothelial growth factor(VEGF)

Retinoids downregulate vascular endothelial growth factor/vascular permeability factor production by normal human keratinocytes.

We found genes encoding growth factors such as IGFBP2, HBEGF and PDGFA previously reported as being down-regulated in RHEafter topical retinoic acid treatment regulated in our microarray data (). Interestingly, the expression of VEGF was severely suppressed by RA, 7.2 fold. The reduction in VEGF protein in human keratinocyte cultures by RA was paralleled by a strong down-regulation of VEGF mRNA levels (), which may contribute to the therapeutic effects of retinoids in diseases that are accompanied by angioproliferation, such as psoriasis. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4386731/

Abstract

Background:Vascular endothelial growth factor (VEGF), a potent angiogenic factor and vasodilator, is strongly expressed by epidermal keratinocytes in many angiogenesis-dependent skin disorders. Retinoids may modulate VEGF in skin and this may be related to an effect on rosacea.Aim:To investigate the effect of retinaldehyde on VEGF production by human keratinocytes.Methods:The effects of different concentrations of retinoids (all-trans-retinal and all-trans-retinoic acid) on VEGF production by cultured human skin keratinocytes in both cell extracts and supernatants were determined. Expression of VEGF was analyzed by enzyme-linked immunosorbent assay (ELISA) and RT-PCR.Results:The amount of cell-associated and secreted VEGF strongly decreased with retinoid concentration (e.g. 48, 69% inhibition at 0.1 Mall-trans-retinal and -retinoic acid, respectively, in the supernatants). In parallel, approximately 25% inhibition of VEGF mRNA expression was obtained in the presence of 0.01 Mall-trans-retinal.Conclusion:The decrease in VEGF expression by keratinocytes on contact with retinoids may prevent skin neoangiogenesis in certain skin diseases.

vs.

Copper-induced vascular endothelial growth factor expression and wound healing

1. Ironically, VEGF was not studied (18). In both in vitro (1) as well as in vivo (29) models, CuSO4clearly promote angiogenic responses. These observations have led to the development of anti-copper-based, anti-angiogenic strategies for the treatment of cancer (41). This report presents first evidence showing that inducible VEGF expression is sensitive to copper and that the angiogenic potential of copper may be harnessed to accelerate dermal wound healing.
http://ajpheart.physiology.org/content/282/5/H1821

The essential role of copper in production of VEGF makes it implicated in anti-angiogenesis therapy, such as the application of copper chelators in cancer therapy. However, suppression of angiogenesis is involved in the progression of heart hypertrophy and its transition to heart failure, therefore copper supplementation improves hypertrophic heart disease conditions
http://www.ncbi.nlm.nih.gov/pubmed/19355887

Therefore, under physiological condition, copper is required for VEGF expression to maintain normal cell growth [22]. It is important to note that both genes for eNOS and VEGF are under the regulation of HIF-1, copper is required for HIF-1 transcriptional activationand high levels of copper induce HIF-1accumulation in the cell [18, 15].Therefore, this would suggest that the increase in eNOS transcription results from the effect of copper on mechanisms other than the regulation under HIF-1.

1,25-dihydroxyvitamin D3 regulates VEGF production through a vitamin D response element in the VEGF promoter.

Abstract

In previous studies we have demonstrated that the active form of vitamin D (1,25(OH)(2)D(3)) increases vascular endothelial growth factor (VEGF) expression and release in vascular smooth muscle cells (VSMC) in vitro. However, the mechanism by which 1,25(OH)(2)D(3) increases VEGF production is currently unknown. In this work, we demonstrated binding of vitamin D receptor to two response elements in the VEGF promoter. We performed promoter transactivation analysis and we observed that, in 293T cells, VEGF promoter was activated after vitamin D treatment. Using site-directed mutagenesis we have shown that both response elements are important for VEGF promoter activity. Therefore, the increase in VEGF expression and secretion induced by 1,25(OH)(2)D(3) in VSMC in vitro could be explained by direct binding of the vitamin D receptor, as a transcription factor, to VEGF promoter. These results could explain part of the beneficial effects of vitamin D treatment in renal patients by a possible VEGF-mediated improvement of the endothelial dysfunction.

http://www.clinsci.org/content/ppclinsci/116/12/871.full.pdf

Taurine

http://cc.kangwon.ac.kr/~immunology/CIB_informations/Journal_choe/choe52.pdf

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MemberMember
76
(@yetanotheraccutanevictim)

Posted : 05/13/2016 7:24 am

8 hours ago, anonyy said:

Tip: find a path, something to live for, a passion, patriotism, idk.. anything, a higher goal, something real & greater than yourself, if you pity yourself the body will answer to it.

Then, after bringing back vit D & A levels and feeling already far better than before, it's very "controvertial" i know, and it will bring back lot of side effects of accutane, but i believe it's essential. Isotherapy. yea yea it's only sugar and it's not logic to take back accutane imprint, but sadly with very strong blockage/inhibition, very deep one, the body is overburden and doesn't know what to do first, it's a way to force the body out of it's defensive state and start to deal with accutane, with force. And those who think it's only sugar, why not try it so? there is nothing to fear according to your point of view.
Best quality apparently: http://www.remedia-homeopathy.com/en/homeopathy/Iso-Tretinoinum/a10230.html

That's the protocol my homeopath did:

(1 week between each) (4-5 globuls for each, except accutane no more than 1 globuls)

Carbo vegetabilis 30ch. Very important to "open the exit doors" apparently.
Lycopodium 10ch
Lycopodium 12ch
Lycopodium 15ch
Lycopodium 30ch
Lycopodium 30ch

Pulsatilla 9ch
Pulsatilla 15ch
Iso-Tretinoinum 30ch (1globul)
Pulsatilla 30ch
Iso-Tretinoinum 30ch
Pulsatilla 30ch
Iso-Tretinoinum 30ch
Pulsatilla 200ch (1 globul)
Iso-Tretinoinum = if no more effect with 30ch, go at next level, 200ch. if not continue at 30ch, until no more effects.
Iso-Tretinoinum = same
Iso-Tretinoinum = same
Iso-Tretinoinum = same

I believe it can take several month to have no more effect with each dosage (30ch & 200ch).

Note: pulsatilla is certainly specific to me only, the rest (carbo veg, lycopodium) is general.
Activated charcoal every day is very useful.

Note2:Best way to take it, is with a jetable plastic glass, and wait to dilute it completely in small amount of water. don't touch the globuls with fingers. it's all to avoid affecting the product with any other "imprint".

When i first took this accutane isotherapy, i had 1 hour after acute pain in the pituitary/hypothalamus area (i know it because it feels the same with the glandular, except the pain) and felt very dizzy, and with vision trouble. I believe it's an area highly poisoned by accutane.
It's not that hard to endure, but really if you do that isotherapy, first be sure you general detox is already far ahead (from external (foods etc..), & natural cellular toxicity (even if accutane provoke more of it, also cause of eliminative lymphatic organs (kidneys & intestine) destroying). If not i believe it will either do nothing, or make things worse.
My awareness, mental clarity and emotions came back after that isotherapy personaly, even if all the rest helped greatly to that too.

33

Thanks for sharing the homeopathic protocol you did. I suggest everyone read back through anonyy's posts to see what else he did. He did a lot of cleansing.

Here's a message from a highly experienced homeopath (not my personal homeopath but I plan on going to them if my current doc can't figure it out). I suggest people here contact them for help. They work remotely.
"If you look at our site, especially the part about our methods (www.homeopathyhouston.com/our-methods/) you will see that we dont try to treat everything at once for the long term. We start with a first priority of symptom relief through various daily combination remedies as much as is possible for inflammation, pain, general immune system boosting, etc., on a daily basis. And before we even start, we request a chronological history of the various events/traumas/chemicals/drugs/vaccines, etc., that are in your past, as all chronic illness is a sum total of what came before then we take a reverse chronological unlayering approach to step by step peel back the various things that contributed or worsened your state of health.

We have, among other things, actual Accutane in homeopathic potency that, if indicated we ultimately could use along with any other drug we might either have in potency or if we cant get it in potency, we do a homeopathic recipe based upon the chemical breakdown of certain drugs, or drugs in the same family that we do have, etc., in order to clear the drugs. BUT that said, wed also want to look at a full timeline going backwards, because certainly Accutane could be a tipping point, but there may also be other things leading up to that point that predisposed you to have the reaction you had, so we would need to consider that. Lyme, as well. We work with a lot of autistic kids, as well as non-autistic clients, adults and children, who have tick-borne disease, oxylate problems, etc. So theres going to be a lot going on, so wed want a full health history, and your vaccine record if you have it. All of these predispose us to chronic metabolic illnesses of all sorts.

If youd like to work with us, our intake paperwork, costs, etc., are all outlined and available on the website. Also, you can call and speak with Terri if you have any questions, but all of the things you mention are among what most of our clients have going on, and weve got a lot of varieties of homeopathic answers for them. What we do is a whole, stand-alone package, other than nutrition we are NOT nutritional counselors, but we do have basic knowledge of some of the things that can be helpful with your problems, as well because even with the greatest tune-up, a Ferrari still has to have the proper fuel to run properly.

Please feel free to give us a call if you have problems finding what youre looking for on the site, and Terri can help you with that. Wed be happy to work with you. Just give her a call M-F9am to 4pmCentral time. Distance is no problem, as a matter of fact, none of our homeopaths even live in Houston. Our clients are all over the world and all over the country, and we simply call them from our location, and then everything is billed, handled and shipped out of the Houston office. So you dont even have to make the trip to Houston. We have worked very successfully for many years, by phone and shipping out of remedies.

Wed love to work with you if it works out for you!"

Quote
MemberMember
960
(@tryingtohelp2014)

Posted : 05/13/2016 7:35 am

Get on the treadmill! depriving your body of oxygen induces VEGF blood vessel formation.

Exercise-Induced VEGF Transcriptional Activation in Brain, Lung and Skeletal Muscle

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2826189/

plus.....

Effects of finasteride on vascular endothelial growth factor.

Abstract

OBJECTIVE:

Finasteride has been shown to reduce prostate bleeding in patients with benign prostatic hyperplasia (BPH). The mechanisms behind this are not known, but it has been suggested that finasteride reduces bleeding by inhibiting angiogenesis in the prostate. Studies in animals have shown that castration rapidly induces involution of the prostate vasculature, and androgen-stimulated prostate growth may be angiogenesis dependent. The objective of this study was to explore the response to finasteride on the vasculature and the expression of vascular endothelial growth factor (VEGF), a potent regulatory factor of angiogenesis in human prostate tissue.

MATERIAL AND METHODS:

Patients with BPH were randomly assigned to 3 months of treatment either with finasteride (5 mg/day) or placebo before undergoing transurethral resection of the prostate (TURP). Prostate tissue VEGF expression was quantified by Western blot and the vascular density determined in Factor VIII immunostained tissue sections. Serum concentrations of VEGF were measured with ELISA technique.

RESULTS:

Patients treated with finasteride (n = 15) showed a decrease in prostate tissue VEGF(165) expression compared with placebo (n = 13) treated patients (p < 0.05), but the vascular density and the serum VEGF levels were unaffected.

CONCLUSIONS:

This study shows that finasteride treatment decreases VEGF expression in the human prostate.

Quote
MemberMember
5
(@healthconscious)

Posted : 05/13/2016 11:55 am

Hello fellow ex-accutane users. I have been following this thread for a while, but haven't really tried any of the supplements suggested yet.
I figure I should also contribute by sharing my account on my accutane usage and post-accutane experiences here. Who knows, maybe with more information, we can understand the effects of this drug better, right?

I live in Singapore and I am Chinese.

  • Are asians more resistant to the side effects of accutane? I think I've read about this as a passing comment from some boards.
  • I always eat healthy, not just now, but even before accutane. Almost every meal I take is home cooked. White rice as the staple, and lots of vegetables, fish and other seafood. I don't eat any land mammals though.

Current Status

  • I do not get cystic acne anymore. Not that I get those very often before accutane though.
  • I suspect I have anxiety and a weird form of OCD. I get irritated very easily. Very easily triggered by noises.
    • Cannot stand people whistling, shaking their legs, twirling their pens.
  • My genitals have become less sensitive since 2014 September. (Can still function in that aspect, but requires more effort.)
  • Libido has also lowered since 2014 September.
  • I do not suffer from joint pains. (Or at least I don't feel them.)
  • I usually do not feel that I have dry skin. As for my face, it can gets pretty oily if I don't wash it for a day.

My Story

  • Started roaccutane back in around March 2007. I was 18 years old then.
  • Course of 40mg/day for 9 months.
    • Doctor claimed that my body needs to accumulate a certain concentration of the drug to prevent relapse in the future.
    • Typical dry skin, cracked lips during the course of treatment.
    • Didn't feel depressed. (Was rather happy that my skin cleared up as such a rapid rate.)
    • Grew fat cheeks.
      • I was and still am a skinny person all over. So when my cheeks suddenly got fat with the rest of my body remaining status quo, it was very obvious and noticeable.
  • In December 2007, I was conscripted into the military. I still had my last 30ish pills, which I never took, when I entered the military.
    • Lots of physically demanding exercises everyday. Literally perspiring litres of sweat everyday.
    • Acne did some back, but none were cystic. Face started getting oily again.
    • As I was falling sick quite frequently from dusty environments, my friend recommended Cod liver oil and Fish oils.(~May 2008)
      • Had very bad reaction to cod liver oil
        • Took only 1/3 of the recommended dose and felt that my entire being just dried up, felt very very very unwell overall.
      • Also reacted negatively to fish oil
        • Felt dried up as well, got constipation, not as bad as Cod liver oil though. (Probably due to less Vit A)
  • In 2012, I started getting aching shoulder and spine whenever I sit for long using the computer. There would also be weird tingling sensation in the root of my teeth. (I have no history of doing root canal)
    • Could be due to bad posture.
  • In September of 2014, I noticed that I had problem feeling climax. (Sensitivity before climax wasn't affected then)
    • Since then, sensitivity has also lessened.
    • Still able to function fully in that aspect, but needs more effort and concentration.

I cannot be certain whether my anxiety, OCD and misophonia is caused by accutane. I can certainly remember that I did exhibit signs of anxiety and OCD even before I was 18, but they weren't as severe. Maybe accutane did have an effect and worsened them?

One more bit of information which I think may be rather important.

  • In July of 2013, I started taking a men's multivitamin. It instantly made me feel supercharged. Very alert, better mood, lots of energy both physically and mentally. The whole world just seemed to become much more brighter and colourful. Music from my headphone was much more euphoric. Never got acne no matter what junk high sugar, high msg foods I ate.
  • Note that this multivitamin contains Vitamin A in the form of 75% beta carotene and 25% Retinyl Palmitate, at 200%DV based on the stated serving size. I was taking 1/3 of the serving size, so I was ingesting about 66% DV per day. Yet, I did not feel the terrible feelings that the Cod liver oil gave me back in 2008.
  • I stopped taking the multivitamin in 2015 March after the issue on climax and sensitivity appeared in 2014 September.
    • I don't whether the issue could be due to being accumulatively overdosed on certain vitamins through the multivitamin.
    • I remembered that I was concerned over the megadosing of a certain vitamin, and read somewhere online that it may cause nerve damage.
    • Or maybe it could be due to accutane.

About a week ago, I started on the atkins diet after watching a video posted by a fellow accutane user who claimed that he had made about 95% recovery via the diet. The reasoning was that Vit A is fat soluble and accutane may be stored in our fats long term, explaining why the side effects do not go away for some even after years of stopping the treatment. So, as atkin diet helps us burn away fats, there may be a chance we can expell accutane from our body.(If it is indeed still hiding in our body in our fats cells)

As I mentioned earlier, I was a skinny kid(probably not much body fats) when I started accutane, and my cheeks puffed up during the course of treatment, and remained so after. I wonder if it could be my body's way of reacting to the super elevated levels of Vit A, by attempting to increase the capacity to store it by increasing the fats deposition in my cheeks.

Just 1 week into the atkins diet, my face has significantly slimmed down. As for the other effects, I will have to wait and see.

Quote
MemberMember
960
(@tryingtohelp2014)

Posted : 05/13/2016 5:38 pm

small anecdote.

in the last few days....everytime i take 1-2 grams of taurine and 6000iu Of D with the Mag/K2 with lunch.. the oil glands right around my nose go crazy?! it physically feels like theyre turning on. i see the oil and feel an itching right around both nostrils.

i take the copper 2mg with nothing else but a full glass of water upon waking... then eat an orange about an hour later.

Quote
MemberMember
0
(@abi72)

Posted : 05/13/2016 8:24 pm

8 hours ago, HealthConscious said:

Hello fellow ex-accutane users. I have been following this thread for a while, but haven't really tried any of the supplements suggested yet.
I figure I should also contribute by sharing my account on my accutane usage and post-accutane experiences here. Who knows, maybe with more information, we can understand the effects of this drug better, right?

I live in Singapore and I am Chinese.

  • Are asians more resistant to the side effects of accutane? I think I've read about this as a passing comment from some boards.
  • I always eat healthy, not just now, but even before accutane. Almost every meal I take is home cooked. White rice as the staple, and lots of vegetables, fish and other seafood. I don't eat any land mammals though.

Current Status

  • I do not get cystic acne anymore. Not that I get those very often before accutane though.
  • I suspect I have anxiety and a weird form of OCD. I get irritated very easily. Very easily triggered by noises.
    • Cannot stand people whistling, shaking their legs, twirling their pens.
  • My genitals have become less sensitive since 2014 September. (Can still function in that aspect, but requires more effort.)
  • Libido has also lowered since 2014 September.
  • I do not suffer from joint pains. (Or at least I don't feel them.)
  • I usually do not feel that I have dry skin. As for my face, it can gets pretty oily if I don't wash it for a day.

My Story

  • Started roaccutane back in around March 2007. I was 18 years old then.
  • Course of 40mg/day for 9 months.
    • Doctor claimed that my body needs to accumulate a certain concentration of the drug to prevent relapse in the future.
    • Typical dry skin, cracked lips during the course of treatment.
    • Didn't feel depressed. (Was rather happy that my skin cleared up as such a rapid rate.)
    • Grew fat cheeks.
      • I was and still am a skinny person all over. So when my cheeks suddenly got fat with the rest of my body remaining status quo, it was very obvious and noticeable.
  • In December 2007, I was conscripted into the military. I still had my last 30ish pills, which I never took, when I entered the military.
    • Lots of physically demanding exercises everyday. Literally perspiring litres of sweat everyday.
    • Acne did some back, but none were cystic. Face started getting oily again.
    • As I was falling sick quite frequently from dusty environments, my friend recommended Cod liver oil and Fish oils.(~May 2008)
      • Had very bad reaction to cod liver oil
        • Took only 1/3 of the recommended dose and felt that my entire being just dried up, felt very very very unwell overall.
      • Also reacted negatively to fish oil
        • Felt dried up as well, got constipation, not as bad as Cod liver oil though. (Probably due to less Vit A)
  • In 2012, I started getting aching shoulder and spine whenever I sit for long using the computer. There would also be weird tingling sensation in the root of my teeth. (I have no history of doing root canal)
    • Could be due to bad posture.
  • In September of 2014, I noticed that I had problem feeling climax. (Sensitivity before climax wasn't affected then)
    • Since then, sensitivity has also lessened.
    • Still able to function fully in that aspect, but needs more effort and concentration.

I cannot be certain whether my anxiety, OCD and misophonia is caused by accutane. I can certainly remember that I did exhibit signs of anxiety and OCD even before I was 18, but they weren't as severe. Maybe accutane did have an effect and worsened them?

One more bit of information which I think may be rather important.

  • In July of 2013, I started taking a men's multivitamin. It instantly made me feel supercharged. Very alert, better mood, lots of energy both physically and mentally. The whole world just seemed to become much more brighter and colourful. Music from my headphone was much more euphoric. Never got acne no matter what junk high sugar, high msg foods I ate.
  • Note that this multivitamin contains Vitamin A in the form of 75% beta carotene and 25% Retinyl Palmitate, at 200%DV based on the stated serving size. I was taking 1/3 of the serving size, so I was ingesting about 66% DV per day. Yet, I did not feel the terrible feelings that the Cod liver oil gave me back in 2008.
  • I stopped taking the multivitamin in 2015 March after the issue on climax and sensitivity appeared in 2014 September.
    • I don't whether the issue could be due to being accumulatively overdosed on certain vitamins through the multivitamin.
    • I remembered that I was concerned over the megadosing of a certain vitamin, and read somewhere online that it may cause nerve damage.
    • Or maybe it could be due to accutane.

About a week ago, I started on the atkins diet after watching a video posted by a fellow accutane user who claimed that he had made about 95% recovery via the diet. The reasoning was that Vit A is fat soluble and accutane may be stored in our fats long term, explaining why the side effects do not go away for some even after years of stopping the treatment. So, as atkin diet helps us burn away fats, there may be a chance we can expell accutane from our body.(If it is indeed still hiding in our body in our fats cells)

As I mentioned earlier, I was a skinny kid(probably not much body fats) when I started accutane, and my cheeks puffed up during the course of treatment, and remained so after. I wonder if it could be my body's way of reacting to the super elevated levels of Vit A, by attempting to increase the capacity to store it by increasing the fats deposition in my cheeks.

Just 1 week into the atkins diet, my face has significantly slimmed down. As for the other effects, I will have to wait and see.

Thanks for sharing, it's good to get an oriental perspective, It might be worth having having your cortisol levels checked. Good luck

2 hours ago, tryingtohelp2014 said:

small anecdote.

in the last few days....everytime i take 1-2 grams of taurine and 6000iu Of D with the Mag/K2 with lunch.. the oil glands right around my nose go crazy?! it physically feels like theyre turning on. i see the oil and feel an itching right around both nostrils.

i take the copper 2mg with nothing else but a full glass of water upon waking... then eat an orange about an hour later.

This makes good sense to me so interested to see how you get on. If you are vit D deficient you will probably need to up that dose.
In time you could slowly introduce other sensible supplements. I have a list of supplements I think are sensible but still need to research how to take them, how to slowly combine them and consider the effects on other vit/minerals as well. I really think you have started well though so good luck.

Quote
MemberMember
8
(@comishcf)

Posted : 05/13/2016 9:03 pm

Hi everyone,

I haven't posted in a really long time but I have tried out some of the things you have been talking about and have had good success with them, namely taurine and a vitamin d3 supplement (which I was originally prescribed by a doctor for mono and have used ever since). I by no means think that what I'm about to talk about is a cure, but I noticed that someone posted about black walnuts a little while back as a means for managing the side effects of whatever we have going on and this is something that has been included in a supplement that I have been taking with good success for the past year.

Initially, I thought that the problems I had been experiencing were due to allergies and inflammation of the gut set on by accutane. To combat this, I started eating a lot of blueberries, blackberries, raspberries, and strawberries (mainly in the form of protein smoothies) and went to a doctor who recommended a supplement called "GI Microb-X" by Designs for Health. I hope this doesn't sound like I'm trying to sell a product because I'm absolutely not. However, this supplement in combination with the berries have actually been great for me for remedying bad side effects (depression, dry skin, basically everything that has been mentioned). The reason why I am bringing this up is because GI Microb-X has 50 mg of black walnuts in it. Here is the full list of ingredients:

200 mg Tribulus Extract
150 mg Magnesium Caprylate
100 mg Berberine sulfate
100 mg Grapefruit extract
50 mg Barberry extract
50 mg Bearberry extract
50 mg Black walnut powder
15 mg artemisinin

I have been following tryingtohelp specifically for a while now, and have to give a specific shout out to you because of how awesome and on top of things you have been. And honestly, the taurine has helped dramatically (taking 2000 mg a day) so thank you for that. I have yet to start with copper because I haven't been tested for it but that looks promising too.

Anyways I hope this bit of info helps. The supplements are quite expensive but I truly believe they have helped mitigate symptoms in combination with the berries, as both of these are proven to attack inflammation. For those of you that are looking for some sort of relief, I believe that these things have done that for me. That being said, its absolutely not the cure just a temporary measure (hopefully).

Quote
MemberMember
1753
(@truejustice)

Posted : 05/13/2016 11:33 pm

Some really encouraging posts being sent at the moment!!

In in terms of supplementing Vit D - how should one go higher than 1000iu. I want to go higher but need a bit of advice on just how high I should go and how quickly I should do it. I'm thinking of hitting 2000iu but want to know what others think about this.

Hitting up to 6000iu seems out of the question for me not to mention unsustainable in the long run!!

interseting with anonyy's post - he made no mention of supplementing copper that I could see.
Would be interesting to hear his theories on copper!!?

Quote
MemberMember
47
(@walden-rev)

Posted : 05/14/2016 2:33 am

Hey guys just checking in.

so I have been on a different route with supplementing Vitamin D.
the way how they fix Vit D deficiency is supplementing 50000! Ui twice a week.
so I did that and the one thing that really changed were my stools.
I have my perfect stools again so thats very nice. No more undigested food and no more loose stools.
i take it with vit K and some magnesium.
soon im gonna start the Cyclodextrin again to get some fats out of my liver.

Quote
MemberMember
157
(@tanedout)

Posted : 05/14/2016 4:39 am

5 hours ago, TrueJustice said:

Some really encouraging posts being sent at the moment!!

In in terms of supplementing Vit D - how should one go higher than 1000iu. I want to go higher but need a bit of advice on just how high I should go and how quickly I should do it. I'm thinking of hitting 2000iu but want to know what others think about this.

Hitting up to 6000iu seems out of the question for me not to mention unsustainable in the long run!!

interseting with anonyy's post - he made no mention of supplementing copper that I could see.
Would be interesting to hear his theories on copper!!?

I've been taking one 10,000ui capsule every 2-3 days for about a year, and I notice if I stop. No negative effects that I'm aware of.

Quote
MemberMember
960
(@tryingtohelp2014)

Posted : 05/14/2016 6:50 am

4 hours ago, Walden Rev said:

Hey guys just checking in.

so I have been on a different route with supplementing Vitamin D.
the way how they fix Vit D deficiency is supplementing 50000! Ui twice a week.
so I did that and the one thing that really changed were my stools.
I have my perfect stools again so thats very nice. No more undigested food and no more loose stools.
i take it with vit K and some magnesium.
soon im gonna start the Cyclodextrin again to get some fats out of my liver.

I would really try to add some taurine when taking the Vitamin D specifically. this makes it more polar and absorbable. the more i read, the more of a loop this becomes. it makes it easier to deliver it to the tissues where its needed (the skin?!)

without copper, you cant methylate properly ... so you cant make taurine from methionine naturally. this is the very first step.

without taurine, you cant absorb fat soluable vitamins like vitamin D as well to counteract retinoids. its needed for bile salts.

without Vitamin D , your body produces a state of amino acid wasting.... specifically taurine!(taurinuria) https://books.google.com/books?id=KGD2BwAAQBAJ&pg=PA661&lpg=PA661&dq=taurine+and+vitamin+D&source=bl&ots=mZAujYKd_w&sig=yqRQOjzWbajykE1WQ-EyJmeApWc&hl=en&sa=X&ved=0ahUKEwiGicTRjdjMAhUFTSYKHVk_CuE4ChDoAQhOMAg#v=onepage&q=taurine%20and%20vitamin%20D&f=false

so its very easy to see how some can get caught in the catch-22 situation.

accutane drains the body of copper and taurine. both of these are known to help with fatty liver deposits.

Quote
MemberMember
1753
(@truejustice)

Posted : 05/14/2016 6:53 am

2 hours ago, tanedout said:
I've been taking one 10,000ui capsule every 2-3 days for about a year, and I notice if I stop. No negative effects that I'm aware of.

Excuse my lack of knowledge but my tablets are 1000ui with a recommendation of only 1 per day. Are there Vit D tablets that are 10000ui in strength? I wasn't aware of that.

Or are you taking 10 X 1000ui as that seems like a lot!!?

Id rather take just 1 or 2 tablets in a stronger form than having to take 10 or more of the 1000ui form.

Also, do you up the intake of K2 and magnesium in accordance with this raised D intake - is that important to do??

I'm starting to feel more positive about hitting Vit D harder - basically I haven't heard of anyone over doing it like say with Vit A for example.

Quote
MemberMember
960
(@tryingtohelp2014)

Posted : 05/14/2016 6:59 am

On 5/14/2016 at 7:53 PM, TrueJustice said:

Excuse my lack of knowledge but my tablets are 1000ui with a recommendation of only 1 per day. Are there Vit D tablets that are 10000ui in strength? I wasn't aware of that.

Or are you taking 10 X 1000ui as that seems like a lot!!?

Id rather take just 1 or 2 tablets in a stronger form than having to take 10 or more of the 1000ui form.

Also, do you up the intake of K2 and magnesium in accordance with this raised D intake - is that important to do??

I'm starting to feel more positive about hitting Vit D harder - basically I haven't heard of anyone over doing it like say with Vit A for example.

[Edited link out]
1st. get tested

2nd. if deficient 6000iu is totally safe. 200-300mg mag 1mg K2 mk4

Quote
MemberMember
76
(@yetanotheraccutanevictim)

Posted : 05/14/2016 9:37 am

12 hours ago, comishcf said:

Hi everyone,

I haven't posted in a really long time but I have tried out some of the things you have been talking about and have had good success with them, namely taurine and a vitamin d3 supplement (which I was originally prescribed by a doctor for mono and have used ever since). I by no means think that what I'm about to talk about is a cure, but I noticed that someone posted about black walnuts a little while back as a means for managing the side effects of whatever we have going on and this is something that has been included in a supplement that I have been taking with good success for the past year.

Initially, I thought that the problems I had been experiencing were due to allergies and inflammation of the gut set on by accutane. To combat this, I started eating a lot of blueberries, blackberries, raspberries, and strawberries (mainly in the form of protein smoothies) and went to a doctor who recommended a supplement called "GI Microb-X" by Designs for Health. I hope this doesn't sound like I'm trying to sell a product because I'm absolutely not. However, this supplement in combination with the berries have actually been great for me for remedying bad side effects (depression, dry skin, basically everything that has been mentioned). The reason why I am bringing this up is because GI Microb-X has 50 mg of black walnuts in it. Here is the full list of ingredients:

200 mg Tribulus Extract
150 mg Magnesium Caprylate
100 mg Berberine sulfate
100 mg Grapefruit extract
50 mg Barberry extract
50 mg Bearberry extract
50 mg Black walnut powder
15 mg artemisinin
 

4

I don't think black walnut is the compound that's the most beneficial in that formulation. It's the artemisinin, which comes from wormwood. That's the holy grail of compounds for attacking infection. If you can get artemisinin in liposomal form, it'll penetrate more deeply into your lymph and nervous system (brain included).

6 hours ago, Walden Rev said:

Hey guys just checking in.
soon im gonna start the Cyclodextrin again to get some fats out of my liver.

2

Do keep us updated on your use of cyclodextrin. I'm assuming you're making a suppository with it? That's what I'd do.
Here is an  excellent mold for making suppositories. It's non-toxic and the perfect size. I use it to make other types of suppositories like turmeric or essential oils.
For more info on making suppositories and the powerful effects: LINK

***Lastly, I want to recommend one of the best homeopaths to everyone. Her name is Joette Calabrese. She does free 15 min consultations. At least talk to her once to see what she has to offer :)
 

Quote
MemberMember
1803
(@guitarman01)

Posted : 05/14/2016 1:55 pm

You guys know this guy? has the whole wheel house of accutane sides.he has had a shit load of test done if you want to cross check. he goes by Duul
http://www.curezone.org/forums/am.asp?i=2226800

Accutane woke me up in more ways than one....

I originally took Accutane for Severe Scalp Acne/Back Acne/Oily Skin Large Pores, which was "fixed" however...

As a fortunate side effect of taking Accutane in 2009.....

Accutane caused my cerebellar tonsils to shrink, recede OR it adjusted the skull causing my Arnold-Chiari Malformation Type 1

to go away.

From my radiologist scan in 2006, before accutane:

"Multiplanar MRI of the brain reveals the cerebellar tonsils to extend 7mm inferior to the foramen magnum to the level of the posterior arch of C1. Cine CSF Flow studies showed the flow dorsal to the cerebellar tonsils is dampened on all three series"

In 2011 after accutane, my radiologist said I had no more Arnold-Chiari Malformation.

This is not heard of before, this condition can ONLY BE FIXED VIA BRAIN DECOMPRESSION SURGERY.

I am now fixed of my symptoms which included:

-dizziness

-loss of consciousness when bending neck backward or body is upside down

-major headaches and migraines

-chronic fatigue

-leg numbness / falling asleep constantly

HOWEVER: For people that did not have my condition, this is living proof that Accutane makes full physical contact with your brain. There is no debate, this ends it. So you take your risks of acne versus brain damage. Even though it helped an existing condition of mine that I wasn't expecting. What will it do to you?

I quit the drug early because of Knee / Back Pain, Constipation, and Severe Depression and Suicidal thoughts.

When I took Accutane:

Age: 19

Weight: 190

Height: 5'9

Brand: Clavaris

Dose: 40mg twice a day morning and night = 80mg total.

Took for two months before stopping due to side effects.

My Side Effects from Accutane as of December 2014:

-Dry Skin

-Dry Thinning Hair

-Hair Loss ( on and off)

- Changes to Hair Texture: My hair all over my body turn Curly, causing ingrown hair issues more than ever.

-Dry Eyes (sometimes they are in the way, my eyes are never white - always some pinkness or eye irritation)

-Dry Lips

-Eye floaters

- Night Vision reduced (visual snow, Blacks are fuzzy even during day time)

-Older than my age look

- Light Sensitivy / After image burn in easily

-Skin tone is more pale white, hardly can get a tan for some reason.

- Changes in Body Temperature, Sometimes feet are ice cold, other parts of my body are warm.

-Eyes: Staring at a computer screen for to long I see flicker rate bars on my monitor (no joke)

-Rectal Bleeding

-Hemorrhoids (recently have these removed via Banding, my bowel movements have improved 90%, no more bleeding)

-Constipation

- Receeding Gums (teeth sensitive as a result)

- TMJ / Jaw clicking (hurts to yawn sometimes)

- Disc Bulges / Low and Mid back pain. (the biggest side effect, the reason I was able to qualify for Medical MJ)

- Cracking joints such as Knees and thumbs. (loud knee cracks, thumbs always want to crack)

- Low Libido

- Changes in Erection Quality (less hard)

-Penis Head can have dryness (fixed with jojoba oil)

- Lack of Morning Erections (fixed when not masturbating for a week or two)

-Depression (probably because I am dealing with all the above)

-Lack of Dreams (fixed with small supplementation of 1mg of Melatonin)

-Dry Crusty Mucus inside of Nose

-Hand Ecezma, Arm Ecezma, really bad in the winter. (hemp salve works great to moisturize)

-Dryness around Nostrils.

-Dryness patches one or two small ones on beard growth areas.

- Lips always chapped. This might be permanent as no oils have worked yet. Chap stick WILL make it worse.

Tests Done to diagnose side effects:

-Telomeres Tested through SpectraCell Labs in Houston, TX: The Telomeres are shorter. I am 25 Year Old however, the read out says I am roughly 30 Years old. (telomere shortening confirmed? Epigentic Changes?!)[Edited link out]

-Tested MicroNutrient deficiencies. Which said I was low in Vitamin C, Alpha Lipoic Acid, Molybdenum. For vitamin A it said I had normal levels.

-Tested Semen Analysis: I am fine, I am potent with 130 million sperm count, everything is fine there.

-Tested Ultrasound of Prostate: I am fine there.

-Tested Adrenal Cortisol: Very Low Cortisol levels upon rising, ok mid day then drop at night.

-MRI of Brain done for an issue I had before accutane, however nothing bad was found there.

-General bloodwork came back normal, liver bloodwork normal.

-Tested blood for testosterone total and estrogen. Total Testosterone is 600 (I am Age 25) Estrogen was HIGH at 180 points need to get that down by 70 points.

-Tested the Stool: No H. Pylori Bacteria Found, No Celiac Disease, No Parasites - Beneficial Bactera was OK. Probiotics suggested for IBS Symptoms.

-Heavy Metal Test done: No heavy metals, copper levels normal. All levels normal.

-Urine Tests are fine / clean.

-Bone Marrow Density tested: I'm fine, perfect density.

-Growth Hormone tested: I am fine, nothing out of place there.

What I have done so far to help side effects:

-30 Day Juice Fast (celery, apple, kale, cucumber, ginger, tumeric, parsley, cilantro, basil, mint)

-Use a masticating juicer, slow turning, low heat, doesn't kill as many enzymes, more juice yield.

-Topical Cayanne Pepper for Hair Growth

-Avoid Alcohol

-Hemp Seed Oil

-Medical Cannabis Edibles, Medical Cannabis Bud (big improvement in erections, brain chemistry and depression)

-The Master Cleanse15 Day Fast (Cayanne, Lemons, Maple Syrup)

-Colonics (total is six now)

-Salt Water Flush

-Abstraining from Vitamin A

-$10,000+ dollars on Supplements from Anti-aging Reservatol to Nootropics (brain supplements)

-MRI of spine showing the Disc Bulges

-Ultra sound of abdomen showing no inflammation.

-Colonscopy revealed three Hemmroids which was causing my IBS and Rectal Bleeding, these were banded. IBS has improved by 50%

-Endoscopy revealed Grade B erosive esophogus from Acid Reflux. I believe this was caused by lack of muscle tension in my stomach region.

Still to do:

-Hair Analysis Test

-MPOD Eye test (checks for eye protein levels)

-Rick Simpson Oil (hard to find, probably have to make my own)

-Liver Flush

-Kidney Flush

-Gallbladder Flush

-IGF-1 Injections

-B12 Injections

-HGH Injections

-TRT Injections

-Hulda ClarkZapper

Final Thoughts:

I hope everyone gets well. Our health WAS robbed from us. The cure to all this corruption on Earth is TRUTH.

We are being poisoned in more ways than one. And Accutane woke me up.

---------------------------------------

Pictures Below of my Brain / Neck MRI:

For pictures of my MRI go to: acne.---org

Quote
MemberMember
76
(@yetanotheraccutanevictim)

Posted : 05/14/2016 3:19 pm

1 hour ago, guitarman01 said:

You guys know this guy? has the whole wheel house of accutane sides.he has had a shit load of test done if you want to cross check. he goes by Duul
http://www.curezone.org/forums/am.asp?i=2226800

3

Yeah, I used to follow his posts. What ever happened to him?
EDIT: This is his profile on acne.org: LINK

Quote
MemberMember
16
(@scott242)

Posted : 05/15/2016 3:28 pm

On 5/14/2016 at 7:37 AM, yetanotheraccutanevictim said:

I don't think black walnut is the compound that's the most beneficial in that formulation. It's the artemisinin, which comes from wormwood. That's the holy grail of compounds for attacking infection. If you can get artemisinin in liposomal form, it'll penetrate more deeply into your lymph and nervous system (brain included).

Do keep us updated on your use of cyclodextrin. I'm assuming you're making a suppository with it? That's what I'd do.
Here is an  excellent mold for making suppositories. It's non-toxic and the perfect size. I use it to make other types of suppositories like turmeric or essential oils.
For more info on making suppositories and the powerful effects: LINK

***Lastly, I want to recommend one of the best homeopaths to everyone. Her name is Joette Calabrese. She does free 15 min consultations. At least talk to her once to see what she has to offer :)
 

FYI I am retesting for yeast this month. I'll post when I get results next month. I tested high for yeast in 2014 (attached). Took a tincture to fix but never retested and didn't feel any different. The longest stretch of me feeling good was in 2012 when I took a supplement for h pylori and yeast (first stool test). Lasted about 2 weeks. Notice the resistance my fungi has to wormwood. 

Genova_2014_edit_jpeg_1.jpg

Genova_2014_edit_jpeg_2.jpg

Genova_2014_edit_jpeg_3.jpg

Genova_2014_edit_jpeg_4.jpg

Genova_2014_edit_jpeg_5.jpg

Genova_2014_edit_jpeg_6.jpg

Genova_2014_edit_jpeg_7.jpg

Quote
MemberMember
76
(@yetanotheraccutanevictim)

Posted : 05/15/2016 5:34 pm

2 hours ago, SCOTT242 said:
FYI I am retesting for yeast this month. I'll post when I get results next month. I tested high for yeast in 2014 (attached). Took a tincture to fix but never retested and didn't feel any different. The longest stretch of me feeling good was in 2012 when I took a supplement for h pylori and yeast (first stool test). Lasted about 2 weeks. Notice the resistance my fungi has to wormwood.

Looking forward to seeing your results. Interesting that the test indicates the fungus is resistant to wormwood.
I would personally try taking it regardless to gauge symptoms. It's probably the strongest compound I know of besides Argentyn.

Iwould also take chlorine dioxide every hour of the day for about a month to see how that affects you as well. (Get up to around 24 drops per day). Lastly, you should research turpentine. It's excellent for fungal infections.
Quote
MemberMember
0
(@abi72)

Posted : 05/15/2016 6:58 pm

For anyone who doesn't already know -high LDL colesterol is one sign of inflamation.
Inflammation is when the immune system over reacts for any given reason,

Immune cells are mostly controlled in the gut and colon.

So gut health is important for immune health,

autoimmune disease develops when you immune system attacks healthy cells.

This might not be quite right but you get the idea - as you are all discussing, gut health is essential.

On 5/15/2016 at 2:55 AM, guitarman01 said:

You guys know this guy? has the whole wheel house of accutane sides.he has had a shit load of test done if you want to cross check. he goes by Duul
http://www.curezone.org/forums/am.asp?i=2226800

Accutane woke me up in more ways than one....

I originally took Accutane for Severe Scalp Acne/Back Acne/Oily Skin Large Pores, which was "fixed" however...

As a fortunate side effect of taking Accutane in 2009.....

Accutane caused my cerebellar tonsils to shrink, recede OR it adjusted the skull causing my Arnold-Chiari Malformation Type 1

to go away.

From my radiologist scan in 2006, before accutane:

"Multiplanar MRI of the brain reveals the cerebellar tonsils to extend 7mm inferior to the foramen magnum to the level of the posterior arch of C1. Cine CSF Flow studies showed the flow dorsal to the cerebellar tonsils is dampened on all three series"

In 2011 after accutane, my radiologist said I had no more Arnold-Chiari Malformation.

This is not heard of before, this condition can ONLY BE FIXED VIA BRAIN DECOMPRESSION SURGERY.

I am now fixed of my symptoms which included:

-dizziness

-loss of consciousness when bending neck backward or body is upside down

-major headaches and migraines

-chronic fatigue

-leg numbness / falling asleep constantly

HOWEVER: For people that did not have my condition, this is living proof that Accutane makes full physical contact with your brain. There is no debate, this ends it. So you take your risks of acne versus brain damage. Even though it helped an existing condition of mine that I wasn't expecting. What will it do to you?

I quit the drug early because of Knee / Back Pain, Constipation, and Severe Depression and Suicidal thoughts.

When I took Accutane:

Age: 19

Weight: 190

Height: 5'9

Brand: Clavaris

Dose: 40mg twice a day morning and night = 80mg total.

Took for two months before stopping due to side effects.

My Side Effects from Accutane as of December 2014:

-Dry Skin

-Dry Thinning Hair

-Hair Loss ( on and off)

- Changes to Hair Texture: My hair all over my body turn Curly, causing ingrown hair issues more than ever.

-Dry Eyes (sometimes they are in the way, my eyes are never white - always some pinkness or eye irritation)

-Dry Lips

-Eye floaters

- Night Vision reduced (visual snow, Blacks are fuzzy even during day time)

-Older than my age look

- Light Sensitivy / After image burn in easily

-Skin tone is more pale white, hardly can get a tan for some reason.

- Changes in Body Temperature, Sometimes feet are ice cold, other parts of my body are warm.

-Eyes: Staring at a computer screen for to long I see flicker rate bars on my monitor (no joke)

-Rectal Bleeding

-Hemorrhoids (recently have these removed via Banding, my bowel movements have improved 90%, no more bleeding)

-Constipation

- Receeding Gums (teeth sensitive as a result)

- TMJ / Jaw clicking (hurts to yawn sometimes)

- Disc Bulges / Low and Mid back pain. (the biggest side effect, the reason I was able to qualify for Medical MJ)

- Cracking joints such as Knees and thumbs. (loud knee cracks, thumbs always want to crack)

- Low Libido

- Changes in Erection Quality (less hard)

-Penis Head can have dryness (fixed with jojoba oil)

- Lack of Morning Erections (fixed when not masturbating for a week or two)

-Depression (probably because I am dealing with all the above)

-Lack of Dreams (fixed with small supplementation of 1mg of Melatonin)

-Dry Crusty Mucus inside of Nose

-Hand Ecezma, Arm Ecezma, really bad in the winter. (hemp salve works great to moisturize)

-Dryness around Nostrils.

-Dryness patches one or two small ones on beard growth areas.

- Lips always chapped. This might be permanent as no oils have worked yet. Chap stick WILL make it worse.

Tests Done to diagnose side effects:

-Telomeres Tested through SpectraCell Labs in Houston, TX: The Telomeres are shorter. I am 25 Year Old however, the read out says I am roughly 30 Years old. (telomere shortening confirmed? Epigentic Changes?!)[Edited link out]

-Tested MicroNutrient deficiencies. Which said I was low in Vitamin C, Alpha Lipoic Acid, Molybdenum. For vitamin A it said I had normal levels.

-Tested Semen Analysis: I am fine, I am potent with 130 million sperm count, everything is fine there.

-Tested Ultrasound of Prostate: I am fine there.

-Tested Adrenal Cortisol: Very Low Cortisol levels upon rising, ok mid day then drop at night.

-MRI of Brain done for an issue I had before accutane, however nothing bad was found there.

-General bloodwork came back normal, liver bloodwork normal.

-Tested blood for testosterone total and estrogen. Total Testosterone is 600 (I am Age 25) Estrogen was HIGH at 180 points need to get that down by 70 points.

-Tested the Stool: No H. Pylori Bacteria Found, No Celiac Disease, No Parasites - Beneficial Bactera was OK. Probiotics suggested for IBS Symptoms.

-Heavy Metal Test done: No heavy metals, copper levels normal. All levels normal.

-Urine Tests are fine / clean.

-Bone Marrow Density tested: I'm fine, perfect density.

-Growth Hormone tested: I am fine, nothing out of place there.

What I have done so far to help side effects:

-30 Day Juice Fast (celery, apple, kale, cucumber, ginger, tumeric, parsley, cilantro, basil, mint)

-Use a masticating juicer, slow turning, low heat, doesn't kill as many enzymes, more juice yield.

-Topical Cayanne Pepper for Hair Growth

-Avoid Alcohol

-Hemp Seed Oil

-Medical Cannabis Edibles, Medical Cannabis Bud (big improvement in erections, brain chemistry and depression)

-The Master Cleanse15 Day Fast (Cayanne, Lemons, Maple Syrup)

-Colonics (total is six now)

-Salt Water Flush

-Abstraining from Vitamin A

-$10,000+ dollars on Supplements from Anti-aging Reservatol to Nootropics (brain supplements)

-MRI of spine showing the Disc Bulges

-Ultra sound of abdomen showing no inflammation.

-Colonscopy revealed three Hemmroids which was causing my IBS and Rectal Bleeding, these were banded. IBS has improved by 50%

-Endoscopy revealed Grade B erosive esophogus from Acid Reflux. I believe this was caused by lack of muscle tension in my stomach region.

Still to do:

-Hair Analysis Test

-MPOD Eye test (checks for eye protein levels)

-Rick Simpson Oil (hard to find, probably have to make my own)

-Liver Flush

-Kidney Flush

-Gallbladder Flush

-IGF-1 Injections

-B12 Injections

-HGH Injections

-TRT Injections

-Hulda ClarkZapper

Final Thoughts:

I hope everyone gets well. Our health WAS robbed from us. The cure to all this corruption on Earth is TRUTH.

We are being poisoned in more ways than one. And Accutane woke me up.

---------------------------------------

Pictures Below of my Brain / Neck MRI:

For pictures of my MRI go to: acne.---org

more glands being damaged - pineal gland, how many others can't recall their dreams?

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MemberMember
5
(@healthconscious)

Posted : 05/15/2016 8:27 pm

Have any of you guys tried the atkins diet?

I will be doing a cyclic ketogenic diet while gymming for the next 3 months or so, while monitoring my decreasing body fat% (hoping to reduce it from the curent ~20% to about 8%) to see whether it makes a noticeable difference to my health.

I had also just ordered a bunch of supplements from iherb, after scanning through the information I derived from this thread. I mainly ordered supps that are antagonizing/competitive towards Vit A in the system. (Taurine, VitD +K2, Magnesium, Copper).

Yup, so my strategy is to theoretically decrease my body's storage capacity for Vit A, while reinforcing its ability to get them out of my system.

***
As I mentioned earlier, my dose of accutane was quite high at 80mg/day for 9 months non-stop.
I do also get candida overgrowth issue, but I would say it's under control, and hadn't really been too much of a problem to me. A healthy gut system should prevent candida overgrowth. This could be due to my diet. I eat healthy, my meals contains no processed food like hotdogs or frozen fish fillet, not even biscuits or candies, no sugar. Basically, no sugar and no funny chemicals that you find in most processed foods nowadays. I do not drink soda. But of course, sometimes(like once in 3 months), I give into temptation and do eat a little bit of these junk foods, and I will almost definately get an acne or 2 within the next 2 days.

When I do get candida overgrowth, I make light & diluted apple cider vinegar drink. Just about 5-10 drops of ACV into a cup of water for about 3 times a day, and it seems to help with clearing the overgrowth. I do not sweeten these drink with honey or sugar.

I have a came across articles online regarding reinforcing the repair of your gut linings as a longer term solution to these gut issues. Bone broths and gelatin seems to be highly recommended for gut lining repair. Maybe you guys who are facing candida overgrowth issues can add these to your regime. These are not supplements, they are normal food that you can take during meals or as desserts.

Quote
MemberMember
0
(@abi72)

Posted : 05/15/2016 8:42 pm

Everyone should gethomocystein levels tested. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4248518/

B12 and folic acid should also be tested, I know many test B12 and it comes back ok, but this article shows that
you can have raised homocysteine but still have normal range B12.

http://www.lifeextension.com/protocols/heart-circulatory/homocysteine-reduction/Page-01

This article about is about lowering homocysteine and guess what helps?

The main supplement is B12 and folic acid as we al know but Taurine, choline and SAMe all help as well.

Is this why so many find Taurine helps.

The reason this should be taken seriously is because it is degenerative.
Would be interested to hear from anyone who has tested for raised homocysteine.

18 minutes ago, HealthConscious said:

Have any of you guys tried the atkins diet?

I will be doing a cyclic ketogenic diet while gymming for the next 3 months or so, while monitoring my decreasing body fat% (hoping to reduce it from the curent ~20% to about 8%) to see whether it makes a noticeable difference to my health.

I had also just ordered a bunch of supplements from iherb, after scanning through the information I derived from this thread. I mainly ordered supps that are antagonizing/competitive towards Vit A in the system. (Taurine, VitD +K2, Magnesium, Copper).

Yup, so my strategy is to theoretically decrease my body's storage capacity for Vit A, while reinforcing its ability to get them out of my system.

***
As I mentioned earlier, my dose of accutane was quite high at 80mg/day for 9 months non-stop.
I do also get candida overgrowth issue, but I would say it's under control, and hadn't really been too much of a problem to me. A healthy gut system should prevent candida overgrowth. This could be due to my diet. I eat healthy, my meals contains no processed food like hotdogs or frozen fish fillet, not even biscuits or candies, no sugar. Basically, no sugar and no funny chemicals that you find in most processed foods nowadays. I do not drink soda. But of course, sometimes(like once in 3 months), I give into temptation and do eat a little bit of these junk foods, and I will almost definately get an acne or 2 within the next 2 days.

When I do get candida overgrowth, I make light & diluted apple cider vinegar drink. Just about 5-10 drops of ACV into a cup of water for about 3 times a day, and it seems to help with clearing the overgrowth. I do not sweeten these drink with honey or sugar.

I have a came across articles online regarding reinforcing the repair of your gut linings as a longer term solution to these gut issues. Bone broths and gelatin seems to be highly recommended for gut lining repair. Maybe you guys who are facing candida overgrowth issues can add these to your regime. These are not supplements, they are normal food that you can take during meals or as desserts.

Where are you from? - 3am in England lol. Those supplements look ok but you should get tested first and include Vit D deficiency alongside HCY, B12, folate and folic acid. Get as much tested as possible really but definitely the ones mentioned.

Quote