Read the book virus mania the deception has been great.

My naturopath strongly believes it's a combination (for me) of severe candida overgrowth AND methylation problems. I do feel much better on the methylation protocol. I cannot shake this fricken candida. I'm taking Humaworm after researching it a bunch, and looking into the herbs. I feel like it's keeping the candida at bay and helping with the GI symptoms. The itching EVERY DAY is unbearable and the tongue thing, well I've had that for years now. Insulin is high here and there but candida can induce that due to it causing severe hypoglycemia (candida literally eating sugar out of blood), which would explain severe fatigue, also, I get very itchy and restless at night, and insomnia...which links up with candida/parasites/bacterial infections ecetera. I'm on a microbiological warfare plan of action now. It's seems directly on point to me. My joint pain is much better when candida is at least controlled better. Waiting on my 23andme gene testing results, but either way, you can still have poor methylation and your genes not reflect it. How does only a few others have candida on here? Does anyone else have trouble keeping yeast in balance?

6 hours ago, MovingOnMusicGal said:

My naturopath strongly believes it's a combination (for me) of severe candida overgrowth AND methylation problems. I do feel much better on the methylation protocol. I cannot shake this fricken candida. I'm taking Humaworm after researching it a bunch, and looking into the herbs. I feel like it's keeping the candida at bay and helping with the GI symptoms. The itching EVERY DAY is unbearable and the tongue thing, well I've had that for years now. Insulin is high here and there but candida can induce that due to it causing severe hypoglycemia (candida literally eating sugar out of blood), which would explain severe fatigue, also, I get very itchy and restless at night, and insomnia...which links up with candida/parasites/bacterial infections ecetera. I'm on a microbiological warfare plan of action now. It's seems directly on point to me. My joint pain is much better when candida is at least controlled better. Waiting on my 23andme gene testing results, but either way, you can still have poor methylation and your genes not reflect it. How does only a few others have candida on here? Does anyone else have trouble keeping yeast in balance?

So with severe candida overgrowth does that mean you need to do twice as much work to get rid of it?

See that's the thing with parasites and infections, we can easily do vitamin level checks with blood work etc and get a result but with candida how do you measure how bad you've got it? I thought it was a case of either you have it or you don't!?

I hope you find some relief from what you are currently doing to help your problems. Can I ask, besides taking humaworm, does one just avoid sugary foods when combating candida? I mean I do that anyway these days for the best part because I don't want to be obese. There's sugar in fruit though which we all know - pls let us know foods to avoid and what is acceptable?

Also - how long do you stay on the humaworm? Pls share your daily routine if that ok!

17 hours ago, Gladiatoro said:

We are all accustained lol for life I might add. Get used to it.

Haha,I don't know man, the sunlight is like Shout, it might be able to get rid off the stain after enough time. It's what I'm hoping for.I'm only on day 10 [of sunlight] but so far more days of improvement than I expected.

When I put on 20lbs and can play sports again, I'll start speaking like cure, but I know enough at this point tonot Shout until that day.

19 hours ago, Gladiatoro said:

Read the book virus mania the deception has been great.

You should probably recommend that book to the families of those who have died from HIV/AIDS rather than contributing toward making post-Accutane sufferers appear to be fringe-theory wackjobs who don't believe in germs. ...We already have it bad enough. Hopefully the majority of newcomers know better than to refer their doctors to this thread when trying to gain legitimate acceptance of their side effects.

56 minutes ago, Dubya_B said:

You should probably recommend that book to the families of those who have died from HIV/AIDS rather than contributing toward making post-Accutane sufferers appear to be fringe-theory wackjobs who don't believe in germs. ...We already have it bad enough. Hopefully the majority of newcomers know better than to refer their doctors to this thread when trying to gain legitimate acceptance of their side effects.

What planet are you living on ? Do you see any AID$ walks anymore or actors in Hollywood wearing red ribbons NO because most have caught on to the scam.

Let me be blunt the first cases of AID$ notice I put a dollar sign behind it were junkies they died of deadly pHARMa and deadly street drugs namely what they call poppers nitrate inhalers which WILL kill . At the time it was a political definition they didn't want to blame it on there life style so they blamed a magical diabolical virus that btw was never properly isolated lol.

The rest died later of deadly pHARMa drugs namely AZT = death. And in Africa extreme poverty was re-labeled AID$. That is the sad truth.

Endless lies by the pHARMa $luts. Fact as I told you read the book virus mania or professor Peter Duesbergs book titled " Inventing the AIDS virus".

I'm probably the smartest guy you ever chatted with anyways back to accutane try ginkgo biloba it has helped me greatly with the brain fog caused by this chemo drug.

With ref to my previous post I am still looking at glands.
Tear duck production, dry mouth, teeth decay and gum inflammation amongst other things could be as a result of Sjogren's syndrome.
Definitely know accutane victims report be diagnosed with this. (Can be tested)

I see some people reporting hyperhidrosis, excess sweating - not sure about this. But others report anhidrosis, inability to sweat.
Actually I guess both are as a result of damaged sweat glands so I guess it makes sense. I know for sure that anhidrosis
is associated with Sjogrens syndrome.

Also have to look at secondary amyloidrosis, result of chronic inflammatory disease or autonomic dysfunction (also reduction in tears and
salivary secretions, anhidrosis).

Candida is tied in too.

Anyone care to research and give an opinion.
Anyone suffering from or been diagnosed with any of the above?

Be sure to look at all the causes and side effects because there are too many for me to mention.
Just remember that all you side effects could be attributed to many other illnesses.

I had been thinking along the lines of the root cause of tane sides as being down to dybiosis (imbalanced gut flora/yeast overgrowth, parasites etc) leading to problems actually obtaining nutrients for use in bodily processes, and hence impacting the bodies ability to perform methylation, however having recently got my 23andme results back confirming that I am heterozygous for both C667T and A1298C mutations (so basically confirmation that I have impaired methylation, and I know most others on here whove been tested are too) Ive been reading up a bit more about it, and obviously looking at the symptoms these mutations can cause many are familiar

Possible symptoms associated with A1298C MTHFR mutations:

hypertension
delayed speech
muscle pain
insomnia
irritable bowel syndrome
fibromyalgia
chronic fatigue syndrome
hand tremor
memory loss
headaches
brain fog

Possible signs associated with A1298C MTHFR Mutations:

elevated ammonia levels
decreased dopamine
decrease serotonin
decreased epinephrine and norepinephrine
decreased nitric oxide
elevated blood pressure
muscle tenderness
ulcers
pre-eclampsia

Possible conditions associated with A1298C MTHFR mutations:

fibromyalgia
chronic fatigue syndrome
autism
depression
insomnia
ADD/ADHD
irritable bowel syndrome
inflammatory bowel syndrome
erectile dysfunction
migraine
Raynauds
cancer
Alzheimers
Parkinsons
recurrent miscarriages

http://mthfr.net/mthfr-a1298c-mutation-some-information-on-a1298c-mthfr-mutations/2011/11/30/

However Ive actually been reading up that methylation issues can cause gut issues, so potentially this could be where the dybiosis comes in. Theres a good video here which also details some other sides like tinnitus as a symptom of methylation issues.. (definitely worth a watch!!)

Maybe its something like this has occurred,

Accutane messes up methylation [for those who are susceptible] -> gut issues result (amongst other sides) -> gut issues hamper the ability for the body to absorb enough nutrients required for proper methylation -> vicious cycle.

Interestingly the recommended protocol for those with the C667T mutation includes things Im already doing (i.e. gut protocol), avoiding sugar and processed foods, gluten, eating fermented foods like homemade sauerkraut and kefir milk) but Ive not really properly tried the methylation protocol, Ive got most of the right sups, but have only ever taken active folate at 400mg/day, not like 5mg+ daily for example.

Has anyone actually ever properly tried following the Rich Van Konyenburg methylation protocol???..

http://phoenixrising.me/treating-cfs-chronic-fatigue-syndrome-me/treating-chronic-fatigue-syndrome-mecfs-glutathione-and-the-methylation-cycle/simplified-treatment-approach-based-on-the-glutathione-depletion-methylation-cycle-block-pathogenesis-hypothesis-for-chronic-fatigue-syndrome-cfs-by-rich-van-konynenburg-ph-d

More on Rich Van Konyenburg (I actually assumed this guy was a tane suffer, so this is definitely worth reading)

http://phoenixrising.me/archives/13738

3 minutes ago, tanedout said:

I had been thinking along the lines of the root cause of tane sides as being down to dybiosis (imbalanced gut flora/yeast overgrowth, parasites etc) leading to problems actually obtaining nutrients for use in bodily processes, and hence impacting the bodies ability to perform methylation, however having recently got my 23andme results back confirming that I am heterozygous for both C667T and A1298C mutations (so basically confirmation that I have impaired methylation, and I know most others on here whove been tested are too) Ive been reading up a bit more about it, and obviously looking at the symptoms these mutations can cause many are familiar

Possible symptoms associated with A1298C MTHFR mutations:

hypertension
delayed speech
muscle pain
insomnia
irritable bowel syndrome
fibromyalgia
chronic fatigue syndrome
hand tremor
memory loss
headaches
brain fog

Possible signs associated with A1298C MTHFR Mutations:

elevated ammonia levels
decreased dopamine
decrease serotonin
decreased epinephrine and norepinephrine
decreased nitric oxide
elevated blood pressure
muscle tenderness
ulcers
pre-eclampsia

Possible conditions associated with A1298C MTHFR mutations:

fibromyalgia
chronic fatigue syndrome
autism
depression
insomnia
ADD/ADHD
irritable bowel syndrome
inflammatory bowel syndrome
erectile dysfunction
migraine
Raynauds
cancer
Alzheimers
Parkinsons
recurrent miscarriages

http://mthfr.net/mthfr-a1298c-mutation-some-information-on-a1298c-mthfr-mutations/2011/11/30/

However Ive actually been reading up that methylation issues can cause gut issues, so potentially this could be where the dybiosis comes in. Theres a good video here which also details some other sides like tinnitus as a symptom of methylation issues..

Maybe its something like this has occurred,

Accutane messes up methylation [for those who are susceptible] -> gut issues result (amongst other sides) -> gut issues hamper the ability for the body to absorb enough nutrients required for proper methylation -> vicious cycle.

Interestingly the recommended protocol for those with the C667T mutation includes things Im already doing (i.e. gut protocol), avoiding sugar and processed foods, gluten, eating fermented foods like homemade sauerkraut and kefir milk) but Ive not really properly tried the methylation protocol, Ive got most of the right sups, but have only ever taken active folate at 400mg/day, not like 5mg+ daily.

Has anyone actually ever properly tried following the Rich Van Konyenburg methylation protocol???..

http://phoenixrising.me/treating-cfs-chronic-fatigue-syndrome-me/treating-chronic-fatigue-syndrome-mecfs-glutathione-and-the-methylation-cycle/simplified-treatment-approach-based-on-the-glutathione-depletion-methylation-cycle-block-pathogenesis-hypothesis-for-chronic-fatigue-syndrome-cfs-by-rich-van-konynenburg-ph-d

More on Rich Van Konyenburg (I actually assumed this guy was a tane suffer, so this is definitely worth reading)

http://phoenixrising.me/archives/13738

I looked into this a lot and Dr Ben Lynch is a real expert on it. There is a podcast with Dr Ben Lynch, Jess Armine and Shaun Bean which is really interesting. Jess Armine gives a free 15 min telephone conversation if anyone fancy chatting to him and two people on this forum have sought treatment from him. Sarah Myhill is the only UK doctor I know treating Methylation and she is not taking on new patients.
The good news is that you can follow some methylation protocols yourself although it makes sense to really get tested and get the exact right treatment to suit your needs,

Just now, hatetane said:

I looked into this a lot and Dr Ben Lynch is a real expert on it. There is a podcast with Dr Ben Lynch, Jess Armine and Shaun Bean which is really interesting. Jess Armine gives a free 15 min telephone conversation if anyone fancy chatting to him and two people on this forum have sought treatment from him. Sarah Myhill is the only UK doctor I know treating Methylation and she is not taking on new patients.
The good news is that you can follow some methylation protocols yourself although it makes sense to really get tested and get the exact right treatment to suit your needs,

Sorry, just seen you posted Dr Ben Lynch lol. He seems like such a cool guy but the only response I got was a list of
other methylation doctors to contact!

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2792981/#!po=4.27632

Gastric acid hypersecretory states: recent insights and advances

Gastric acid secretion is largely control by cholinergic, histaminergic and peptidinergic(especially gastrin) pathways

Maybe gut health, flora is changed because of prolonged hyperacidic state. Along with histamine type reactions

On 4/28/2016 at 9:59 PM, guitarman01 said:

well all i would say is have a game plan of what you want to tell him. and be prepared that he might be no help at all. unfortunately just like haniaD was saying, Drs look at us and think we are healthy. Ive come to the point where im basically just using doctors for the different test i know they can run, to rule things out. ive pretty much had all the gastro test, short of a liver ultrasound and biopsy. i actually just had a ct scan of my liver, pancreas, gall bladder, stomach ect. nothing remarkable of course. and it cost me 500 bucks and a slightly higher risk for cancer. Awesome.

8

@guitarman01 how is the high dose Folate going for you? I'm a similar case. Methylation is blocked, but on Methionine->SAMe. Which is SAMe-synthase .

Have you done a methylation panel to confirm the block on SAMe->SAH?

Neurologically,cholinergicis the abbreviated term referring to acetylcholine. The parasympathetic nervous system, which uses acetylcholine almost exclusively to send its messages, is said to be almost entirelycholinergic

The parasympathetic system is responsible for stimulation of "rest-and-digest" or "feed and breed"^[2]activities that occur when the body is at rest, especially after eating, includingsexual arousal,salivation,lacrimation(tears),urination,digestionanddefecation. Its action is described as being complementary to that of thesympathetic nervous system, which is responsible for stimulating activities associated with thefight-or-flight response.

Neurologically,cholinergicis the abbreviated term referring toacetylcholine.^[1]Theparasympathetic nervous system, which uses acetylcholine almost exclusively to send its messages, is said to be almost entirely cholinergic. Neuromuscular junctions, preganglionic neurons of thesympathetic nervous system, thebasal forebrain, and brain stem complexes are also cholinergic. In addition, the receptor for the merocrine sweat glands are also cholinergic, since acetylcholine is released from postganglionic sympathetic neurons.

Hi guys,

I've been keeping an eye on this thread for a long time, trying some potential solutions here and there. I took accutane for just one month during 2014 and have been suffering ever since. My supplement cabinet is ridiculous with everything I've tried. Nothing's really helped my symptoms. I have low libido, low energy, inflamed/dehydrated skin, constant loose stools, and chronic eye pain.

Anyways, what made me decide to come out of the shadows was the recent success I've had with an anti-parasite supplement that contains wormwood, black walnut leaves, quassia, cloves, and male fern.

After seeing a couple of the success stories claim to have used wormwood and other ingredients like that, I decided to give those a chance, and I'm glad that I did. This is my 3rd day taking 2 pills 3 times daily, and I feel 75% better than I have at any point since taking accutane. My libido has returned to an acceptable level (My penis doesn't feel detached from body and responds much better to stimuli), my energy and mood is much better, my skin has improved to a point where I don't feel super uncomfortable in public places, my stools have actually been somewhat solid for the first time in years, and my eye pain is getting better every day.

Obviously I'm not trying to say this is the cure. I know everyone's situation and reaction to accutane is different. Plus who knows if the improvement of my symptoms will even last. But if any of the users on here (especially those that only took the drug for a short time like me) haven't tried this strategy yet, I urge you to give it a shot.

Best wishes

11 hours ago, RobGreene said:

@guitarman01 how is the high dose Folate going for you? I'm a similar case. Methylation is blocked, but on Methionine->SAMe. Which is SAMe-synthase .

Have you done a methylation panel to confirm the block on SAMe->SAH?

i only did this briefly and felt i didnt have good results. it seemed to further dry my skin and also seemed to have a negative effect on any ed type symptoms. this is from Rich on the folate protocol from cases he mentioned that had bad reactions.

Simplified Treatment Approach Based on the Glutathione Depletion- Methylation Cycle Block Pathogenesis Hypothesis for Chronic Fatigue Syndrome (CFS) by Rich Van Konynenburg, Ph.D. II

http://phoenixrising.me/treating-cfs-chronic-fatigue-syndrome-me/treating-chronic-fatigue-syndrome-mecfs-glutathione-and-the-methylation-cycle/simplified-treatment-approach-based-on-the-glutathione-depletion-methylation-cycle-block-pathogenesis-hypothesis-for-chronic-fatigue-syndrome-cfs-by-rich-van-konynenburg-ph-d

3. A third person had a history of autoimmune disease, including Sjogrens syndrome. After her fourth dosage of combined FolaPro and Intrinsi/B12/folate, she experienced a moderately severe autoimmune flare, with numerous joint and soft tissue issues, fatigue, pain, etc. She also experienced a severe flare of Sjogrens syndrome, with very dry mouth, dry eyes, and severe eye pain. Six days after discontinuing the supplements, she had a thorough ophthalmologyworkup and was diagnosed with autoimmune scleritis. She has been given topical steroids and has reported that her eyes are greatly improved.

I dont plan to try high dose folate again anytime soon.
I havent had that methylation test but I would maybe take it if I could find a place locally that would do it and my insurance covered it or it was affordable.
those your test results? sam-e seems a little low but sam-e to sah seems to be in reference range.

Over the last couple of days I've eaten LOADS of raw garlic with my evening meal (decided to do so as it's a very effective anti-fungal). About 2-3 fresh cloves chopped and added basically raw to a pasta meal and then stir fry - far more than you would have usually, and raw too.

Both last night and the night before I woke up in the middle of the night with a thumping heart rate, enough to wake me up. This is something I've had in the past, but I've never pinpointed the reasons. Doing some more reading today regarding my 23andme results I think it may possibly be related to the fact I have the CBS mutation..

[Edited link out]

Annoyingly having the CBS mutation makes you sensitive to supplementing methylfolate, which you need to supplement to improve methylation. The suggested course of action seems to be 4-6 weeks of a low sulphur diet, then slowly start introducing the methylation supporting sups.

Also I seem to remember a few people did mineral analysis, and all came back with really high copper. Any of you also do a 23andme and find you have the MTHFR mutation?...

High Copper/Low zinc

This can be a common finding when you have an MTHFR defecta high level of copper, which will conversely mean your zinc levels will fall. And since the ratio of these two metals is highly important, correctly the problem is crucial, since high copper can be related to hyperactivity, depression, headaches, acne, frequent colds due to lowered immunity, sensitive skin and/or bruising, worsening hypothyroid, adrenal stress and more.

http://www.stopthethyroidmadness.com/mthfr/

Guys i have still low semen volume due to 5 pills (120mg total - 4 days of usage) of accutane. I have also loss of morning erections. But my general erection is ok. 1,5 years is gone now.
Everyone heard the eph95's probiotic and wormwood cure. What you guys think ? what should i do ? is it safe to use with hornygoatweed ?

1 hour ago, tanedout said:

Over the last couple of days I've eaten LOADS of raw garlic with my evening meal (decided to do so as it's a very effective anti-fungal). About 2-3 fresh cloves chopped and added basically raw to a pasta meal and then stir fry - far more than you would have usually, and raw too.

Both last night and the night before I woke up in the middle of the night with a thumping heart rate, enough to wake me up. This is something I've had in the past, but I've never pinpointed the reasons. Doing some more reading today regarding my 23andme results I think it may possibly be related to the fact I have the CBS mutation..

This could be something else like you said or this could be acid reflux. especially eating all that garlic for one of your later meals. then laying down the heartburn gets worse. thats why some people raise the head of their bed a foot so they are not laying in a flat position that have gerd. it helps reflux coming up from your stomach because of gravity. reflux can get so bad it feels like your having a heart attack. it can be a scary feeling. many people have gone to the ER thinking they are having a heart attack when it is actually bad reflux. again not saying this is it, but something to keep in mind next time it happens. this reflux thing again could be due to weakened muscles(that alot of us deal with) that could also be internal allowing the acid to come back up. next time this happens maybe try some tums or some liquid antacid(something that works fast) to test this and see if it helps. if it does you then know its reflux.

2 hours ago, SaffronAide said:

Guys i have still low semen volume due to 5 pills (120mg total - 4 days of usage) of accutane. I have also loss of morning erections. But my general erection is ok. 1,5 years is gone now.
Everyone heard the eph95's probiotic and wormwood cure. What you guys think ? what should i do ? is it safe to use with hornygoatweed ?

If you haven't tried wormwood yet, definitely give it a chance. I'm not aware of any possible interactions with horny goat weed. Has HGW helped you? I've never tried it myself. Also for low semen volume, taurine gave me ridiculous amounts of semen. Not sure why though, and I haven't been taking it lately so idk.

Hi again,

Here's what makes me think (again, in my case at least), that the problem is some type of genetic suppression/excitation/abnormality (whatever).  So scientific, I know

I instantaneously had psychiatric and joint problems after accutane at 16.  I had to stop running track and I was at a varsity level.  My doctor didn't fricken tell me to stop running..Found out the hard way as my IT band and quadricep muscle have become permanently affected/like a living rigamortis-ed young adult body..bizarre.  Thanks to massages and weekly chiro (thank god my insurance covers it!) i have some semblance of low pain/managable pain management schedule now.  I also noticed, after starting methylation that my muscles and tendons started to feel like they were detaching from the bone, more fluid, loose-like.  Something switched in my body.  Like other things however, I feel as though the methylation is only part.  I do think it is linked to candida, as the toxins have built up in the body over years...some processes (likely thyroid, liver, kidneys, lymphatic system, ATP production, adrenals) shut down OVER time.  I Remember in my early 20's still having oil in my skin AFTER accutane.  it wasn't until YEARS later that my oil production stopped or severely decreased, and joint pain became rampant. To me that indicates something shutting down/hitting a limit in the body.  To this day I think it is reversible, as I every once in a while have a "normal" day. It's usually 1 in 30 days, but it's there and it gives me hope.  I think speeding up methylation, getting that working, can help with clearing infections such as candida, bacteria, etc, and get basic metabolic pathways working so the body can detoxify better.  It is strange to me that there are others who didn't have cystic acne, and they were "fine", or at least didn't blame accutane for their mild depression, and perhaps some dry lips, but we know most of us have way more serious fish to fry here.  Perhaps, some of us have a genetic mutation, or given our circumstances when we took it, something amplified the side effects without knowing.  During my serious research phase, I came upon an interesting finding that many people reported more side effects in 2006.  That is when I took the poison.   I wonder sometimes if it was a "bad batch" or something. But then I also don't want to invalidate others who have taken it at other times, who clearly have been devastated by it.  So who knows. Either way, for me, I've hit a point where focusing on the bath pathogens and yeast, and managing that better has yielded positive results. Exercise is also very important, simply getting movement each day.  Sometimes I can't do much, but light stretching can be the difference between searing joint pain and virtually none the next day.  I'm going to start taking glutamine again, as that seriously helped my gut, and seriously improved my muscle function 10 fold. The only issue is it wouldn't persist when I stopped taking it like many things.    If I can take supplements, make dietary changes, and engage in activities that make my life manageable however, you best believe I am going to do it.  I tried giving up.  Inpatient psych wards are necessary, but not fun...and the cocktail of meds they discharge you with, well, laughable, as they will only make the problem worse., and they did.  I have a great treatment team around me who is supportive, and I think that's the biggest thing that has helped me stay motivated and hopeful.  I'm also going to be getting my medical Mx card very soon.  I think high CBD edibles will do justice to my body.  I've smoked/vaped for years, (obviously I know that doesn't help candida), but have taken serious breaks to focus on diet and supplements.  I can honestly say, the anti-inflammatory effects have definitely helped me manage significantly.  Possibly helped me heal in some respects but to a more minimal degree.  The chiro has been the biggest thing for me for pain relief.  Let me be clear, I have one of the best Chiros in the area.  He does massage manipulations and manual adjustments.  and...they...last.  My head pressure is gone, and my sciatic pain is virtually gone.  Never thought that would have occurred in ten million years. If we focus on pain management on a daily bais (as hard as it fucking is), I think it helps stay focused and on track.  I have my severely down days but I'm resilient and have (i think) been through the worst.  I try to focus on one day at a time, and be grateful for the good days. Sorry, don't really know what my ppoint was, other than, this is what has worked for me in terms of management.  Also stepping back from the obsessive searching for a cure has allowed my mental health to slowly get better.  It doesn't mean I don't still look here and there and try new things.  But it isn't my only avenue. I'm not fixated anymore.  I do still want a cure like we all do. Sometimes I think, Hey@ at least we have each other.  I've gotten more support here than I have from most doctors.  Things could look a lot different if this forum didn't exist, at least for me. Thanks for reading my journal entry lol   I wish everyone the best as always.

Hello everyone. What a thread! I have spent the last 6 years doing all kinds of alternative healing to cure eczema on my hands which started during my 3rd course of roaccutane. Every practitioner sidestepped the crucial information I gave them being that I never had eczema prior to taking roaccutane expect only briefly as a baby. I now have all kinds of allergies and intolerances I also did not have prior to roaccutane. Finally something clicked and I now know roaccutane is the culprit and general eating healthily and exercising does not help with the eczema. I'm going to see an integrative doctor, but does anyone know what things I should test for and what I can do? Because for starters I don't even know which integrative doctor to choose and if they'd even know much about roaccutane damage.

Thanks

13 hours ago, MovingOnMusicGal said:

Hi again,

Here's what makes me think (again, in my case at least), that the problem is some type of genetic suppression/excitation/abnormality (whatever).  So scientific, I know

I instantaneously had psychiatric and joint problems after accutane at 16.  I had to stop running track and I was at a varsity level.  My doctor didn't fricken tell me to stop running..Found out the hard way as my IT band and quadricep muscle have become permanently affected/like a living rigamortis-ed young adult body..bizarre.  Thanks to massages and weekly chiro (thank god my insurance covers it!) i have some semblance of low pain/managable pain management schedule now.  I also noticed, after starting methylation that my muscles and tendons started to feel like they were detaching from the bone, more fluid, loose-like.  Something switched in my body.  Like other things however, I feel as though the methylation is only part.  I do think it is linked to candida, as the toxins have built up in the body over years...some processes (likely thyroid, liver, kidneys, lymphatic system, ATP production, adrenals) shut down OVER time.  I Remember in my early 20's still having oil in my skin AFTER accutane.  it wasn't until YEARS later that my oil production stopped or severely decreased, and joint pain became rampant. To me that indicates something shutting down/hitting a limit in the body.  To this day I think it is reversible, as I every once in a while have a "normal" day. It's usually 1 in 30 days, but it's there and it gives me hope.  I think speeding up methylation, getting that working, can help with clearing infections such as candida, bacteria, etc, and get basic metabolic pathways working so the body can detoxify better.  It is strange to me that there are others who didn't have cystic acne, and they were "fine", or at least didn't blame accutane for their mild depression, and perhaps some dry lips, but we know most of us have way more serious fish to fry here.  Perhaps, some of us have a genetic mutation, or given our circumstances when we took it, something amplified the side effects without knowing.  During my serious research phase, I came upon an interesting finding that many people reported more side effects in 2006.  That is when I took the poison.   I wonder sometimes if it was a "bad batch" or something. But then I also don't want to invalidate others who have taken it at other times, who clearly have been devastated by it.  So who knows. Either way, for me, I've hit a point where focusing on the bath pathogens and yeast, and managing that better has yielded positive results. Exercise is also very important, simply getting movement each day.  Sometimes I can't do much, but light stretching can be the difference between searing joint pain and virtually none the next day.  I'm going to start taking glutamine again, as that seriously helped my gut, and seriously improved my muscle function 10 fold. The only issue is it wouldn't persist when I stopped taking it like many things.    If I can take supplements, make dietary changes, and engage in activities that make my life manageable however, you best believe I am going to do it.  I tried giving up.  Inpatient psych wards are necessary, but not fun...and the cocktail of meds they discharge you with, well, laughable, as they will only make the problem worse., and they did.  I have a great treatment team around me who is supportive, and I think that's the biggest thing that has helped me stay motivated and hopeful.  I'm also going to be getting my medical Mx card very soon.  I think high CBD edibles will do justice to my body.  I've smoked/vaped for years, (obviously I know that doesn't help candida), but have taken serious breaks to focus on diet and supplements.  I can honestly say, the anti-inflammatory effects have definitely helped me manage significantly.  Possibly helped me heal in some respects but to a more minimal degree.  The chiro has been the biggest thing for me for pain relief.  Let me be clear, I have one of the best Chiros in the area.  He does massage manipulations and manual adjustments.  and...they...last.  My head pressure is gone, and my sciatic pain is virtually gone.  Never thought that would have occurred in ten million years. If we focus on pain management on a daily bais (as hard as it fucking is), I think it helps stay focused and on track.  I have my severely down days but I'm resilient and have (i think) been through the worst.  I try to focus on one day at a time, and be grateful for the good days. Sorry, don't really know what my ppoint was, other than, this is what has worked for me in terms of management.  Also stepping back from the obsessive searching for a cure has allowed my mental health to slowly get better.  It doesn't mean I don't still look here and there and try new things.  But it isn't my only avenue. I'm not fixated anymore.  I do still want a cure like we all do. Sometimes I think, Hey@ at least we have each other.  I've gotten more support here than I have from most doctors.  Things could look a lot different if this forum didn't exist, at least for me. Thanks for reading my journal entry lol   I wish everyone the best as always.

Dosage?

My allopathic doctor said I have to take better care of myself and watch my diet , I bluntly told him that I never signed up for ANY of this b.s lol .

2 hours ago, Gladiatoro said:

My allopathic doctor said I have to take better care of myself and watch my diet , I bluntly told him that I never signed up for ANY of this b.s lol .

Wow what a revelation!!
im assuming you didn't pay him, got up and left!?

He is a good doctor but hey he is trained to had out synthetic drugs however in places like Germany doctors are trained in natural medicine and drug medicine .A much better system.

So derms are worried about joint pain and depression he said yes that is a direct side effect from Chemotherapy treatment a.k.a isotretinoin. He basically said it's ( drug) not that bad . Eitherway you look at it we got severely POISONED.