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@accutanesuckss - You are absolutely right to keep your hopes up. There are enough cures of ED of different types on the web that I believe this problem could be cured in everyone who has it. I saw your Mr.Free T story earlier and posted the link also. (See my post on page 348 with that link and several others that have cured their ED in different ways.) There are other success stories too. Page 345 of this thread also has some - Vice Caz posted some there that he found.
@accutanesuckss and @blackfox01 - I've done quite a bit of reading about PSSD and though I don't understand the science behind it, I can shed some light on the topic. Accutane is an SSRI also. I don't know about Fin. SJW acts similarly, though I think because it's an herbal, it would not be classified as an SSRI. When someone cold turkeys off an SSRI, they get withdrawal symptoms, among them can be PSSD. To alleviate the w/d symptoms, the experts tell them to reinstate a small amount of the original drug, stabilize for awhile, then taper slowly off - like in 10% drops with some time in between. Eventually, the user will be completely off without the w/d symptoms. On my post on page 348, there is a link to a discussion about this very thing. (See point #9 username OP) It includes a link that I can't get to work that is a story of someone that said he cured his PSSD by reinstating his SSRI and then tapering off. So, yeah, in theory, you should be able to cure ED caused by Accutane by reinstating a small dose and then tapering off of it very slowly. I'm not recommending it, mind you. Just discussing it.
On 3/18/2016 at 1:52 PM, tanedout said:Well it wasn't me that posted it, but as it happens my results also show no trace of cholesterol (which I did think was odd, but focused more on the lack of beneficial bacteria). Also note the none-detectable levels of Triglycerides;
so what is your take away from these test? are the abnormal results that are outside the ref range some serious red flags? what about the ng for lactobacillus?is this normal? these are a fairly new kind of test right? is there anyone/doctors to consult or compare this to? are these type of test valued in the medical community yet?, or is this more of a holistic thing naturopath thing?
1 hour ago, guitarman01 said:so what is your take away from these test? are the abnormal results that are outside the ref range some serious red flags? what about the ng for lactobacillus?is this normal? these are a fairly new kind of test right? is there anyone/doctors to consult or compare this to? are these type of test valued in the medical community yet?, or is this more of a holistic thing naturopath thing?
The test results above are part of the results from a CSDA+P gastrointestinal test from Genova Diagnostics who are well respected and considered accurate. Their testing is available to people in the Europe and the States and costs about 240 ($350) https://www.gdx.net/uk/
I'm pretty much convinced that the root cause of tane sides is down todysbiosis (microbial imbalance, basically messed up gut flora), in the same way that it's looking like related conditions CFS and probably PFS are also. Unfortunately this is a relatively poorly understood area at present, but the fact that 9 people have done this test (me and 1 other on here, and 7 on a thread on SolvePFS) and 100% of them have pretty messed up gut health. The reason I did the test is:
- Establish if I have parasites (tested negative for that, but if I did it's likely a course of antibiotics would be required as a next step)
- See if I'm lacking any major species of gut flora (I am, 2 species as you can see with NG [No Growth])
- Check that my gut health is optimal. It's a bit too alkaline (pH 7.2, ideally want about 6.5-6.9, but increasing lactobacillus [lactic acid] species should lower pH)
Everyone getting tested has found slightly different results (some having parasites, some not, some lacking in specific flora, some in others), so you can't really begin to tackle the issues until you know exactly what issues you have. If you have parasites there's no point making loads of effort restoring gut flora, only to then find you get nowhere, take the test down the line and find you have a parasites which needs antibiotics. Then you can move onto re-establishing gut flora. If you have SIBO then that needs tackling before the gut flora (that's a separate test), otherwise you've likely to make that even worse by taking loads of probiotics.
I'm looking to try and re-establish lactobacillus species with well studied brands of probiotics containing this specie, kefir and sauerkraut, then once I feel I've made some headway I'm going to try and re-establish the e-coli strains with a german probiotic called Mutaflor (while eating plenty of figs, hazelnuts and chickpeas to help the e-coli colonise).
I've also ordered some resistant starch
It's clearly not a quick-fix to 'heal' the gut, getting tested first is pretty important I think, otherwise you could spend months and months on some protocol only to find it doesn't yield results, but you don't know what you were trying to tackle in the first place.
Bobby.Digital seems to be taking a similar approach to me on this, but he's one step ahead. He did the same test and had parasites, so he tackled those with the specific antibiotic needed, then tackled the species of gut flora he was low in (his e-coli was fine unlike mine, but he had NG of Bifidobacterium, whereas mine is fine), so the point I'm making is this is always going to be a tailored approach, and not a standard approach.
20 hours ago, octopusfrog said:Also has anyone attempted to reach out to Dr. Bremner ? http://www.psychiatry.emory.edu/research/laboratories/bremner/index.html
I see that his video regarding accutane was posted several pages back. Surely he would be the kind of person we could recruit to assist us here ?
I emailed him many times and never got a response. He may be a busy man but to ignore us is really sad - I am sure he has somthing he could offer us. Some of his finding at least would be helpful - we could pass it on to our doctors. Did he respond to any of you guys?
Have any of you come across specific tonsil/throat problems. I have seen several mention this but know I need the info and can't find it
thx for the response @tanedout. i do believe gut health might be the key to everything.
for all of you wondering the age old question
http://www.idosi.org/wasj/wasj18(10)12/11.pdf
yes, Oil of Oregano is safe to take with probiotics, in fact in this study, it increases the growth of bifido and lacto.
I mention this because this might be good to use in a protocol to keep the gut clean. Also thinking back havent people or persons said they cured their sides or ED using oil of oregano? Does anyone remember hearing this?
it was revealed that the increased concentration of oregano had a positive effect on the growth of the probiotic bacteria, Lactobacillus acidophilus and Bifidobacterium bifidum in probiotic milk and yoghurt
At the risk of being repetitive, here's a link to stories of two guys who CURED themselves of PFS, all sexual, mental, and physical side effects, using two antibiotics and many probiotics, after being tested positive for parasites.
[Edited link out]
@accutanesuckss, do you know specifically what two parasites you have? Maybe you just need these two antibiotics as well! Cure in two weeks!
Thank you, @tanedout for your reply as to where you got your tests.
On 3/21/2016 at 6:30 AM, Justmom said:At the risk of being repetitive, here's a link to stories of two guys who CURED themselves of PFS, all sexual, mental, and physical side effects, using two antibiotics and many probiotics, after being tested positive for parasites.
[Edited link out]
Yeah full 53 page thread on SolvePFS regarding these recoveries. BrongFogBoy actually hasn't made a full recovery despite what he initially states, but he says he's 75-80% back to normal. This thread has 7 others who get testing done, and many of them say they're feeling better after tackling their specific issues. I think that guy who was cured from PFS with just a course of antibiotics to tackle his parasite was pretty lucky.
[Edited link out]
It's also discussed on here [Edited link out[
Also worth pointing out that BrongFogBoy has done a couple of fecal transplants, which although sounds pretty horrendous is apparently a very effective way to restore gut flora (from a healthy 'doner'). There are places that will provide a course of fecal transplants, but its pretty expensive (about 4k for a course of 10 transplants).He is also still taking supplements like TUDCA and Tongkat Ali.
Theres a really good blog with loads of info here regarding gut health in general that I've been reading through. Also checkout the associated blogs
On 3/20/2016 at 2:13 AM, blackfox01 said:Was this story BS?? DId anyone else try this??
It sounds very similar to a recovery on the PSSD forums (ssri issues) A guy took SJW and felt a little bit better then he quit cold turkey and recovered.
All young men - please don't try any of these. Wait and see what the older guys say if they should decide to try these options.
I would greatly advise against finasteride, SJW, saw palmetto (definitely do not try this)) and do your best to stay away from SSRI's.
Before you take any supplement or medication, do your research. I would particularly google any given supplement/meds in relation to effect on erectile dysfunction.
Sadly I now realise that if you google isotretinoin there is no mention of ED. If you google isotretinoin/ED - how many of you would have avoided Iso/accutane then?
9 hours ago, hatetane said:I hate putting anything like this out there but those crazy bodybuilders who are not scared about putting anything into their bodies
talk about bremelanotide. I have researched it of course but has anyone tried it?
Someone with long-term ED after Accutane recently texted me to mention his success with bremelanotide a.k.a.: PT-141 . He said it didn't do anything to increase libido, but it had effects on ED that were similar to Viagra that lasted for about half a day after he injected it.
Gotta love the quaint threads used to encourage accutane usage. I say let em take it, more strength for us. Only wonder how many have changed their usernames afterwards when they find themselves in the woods alone. 
2 hours ago, Gladiatoro said:For brain fog walnuts are excellent better than cashews by far.
anything stick out? 
my brain fog has been totally gone for weeks.
2 hours ago, tryingtohelp2014 said:anything stick out?
Good to hear TTH2014! Are you putting the cessation of brain fog down to the brazil nuts alone, or are you taking any other supplement which you believe could be a factor?
The cholesterol-rich diet induced hepatomegaly and fatty liver and significantly reduced cholesterol, bile acid and phospholipid secretion. Addition of beta-cyclodextrin normalised biliary lipid secretion. Moreover, when compared to A, beta-cyclodextrin significantly lowered plasma phospholipid concentration (B: -21%; C: -29%) and the liver free/total cholesterol molar ratio (B: -40%; C: -38%), increased bile acid faecal output (B: +17%; C: +62%) and enhanced cholestero
have you guys looked into medium chain triglycerides as a fat/energy, brain fuel source? this bipasses digestion for those that seem to have trouble with fats and or putting on weight. actually used in the medical community for people that have pancreatic cancer and cant properly digest fats. this actually might hydrate the brain as well so to speak.
check this website out https://www.pancan.org/section-facing-pancreatic-cancer/learn-about-pan-cancer/diet-and-nutrition/pancreatic-enzymes/
MCT (Medium Chain Triglyceride) oil may help control weight loss in patients with uncontrolled malabsorption. MCT oil is a calorie-rich type of fat that bypasses usual fat absorption and is rapidly absorbed by the body. It is found naturally in coconut oil, palm kernel oil and butter. MCT oil is added to some medical nutritional supplements and can also be purchased alone as a nutritional supplement. Use of oral nutritional supplements may promote weight gain, help increase strength and physical activity, and improve quality of life.
also dontunderestimateenzymes
Pancreatic enzymes help break down fats, proteins and carbohydrates. A normally functioning pancreas secretes about 8 cups of pancreatic juice into the duodenum, daily. This fluid contains pancreatic enzymes to help with digestion and bicarbonate to neutralize stomach acid as it enters the small intestine.
Types of Pancreatic Enzymes and Their Effects
| ENZYME TYPE | EFFECTS | A SHORTAGE MAY CAUSE: |
|---|---|---|
| Lipase | Lipase works with bile from the liver to break down fat molecules so they can be absorbed and used by the body. |
|
| Protease | Proteases break down proteins. They help keep the intestine free of parasites such as bacteria, yeast and protozoa. |
|
| Amylase | Amylase breaks down carbohydrates (starch) into sugars which are more easily absorbed by the body. This enzyme is also found in saliva. |
|
Reasons to Take Pancreatic Enzymes
Pancreatic insufficiency is the inability of the pancreas to secrete the enzymes needed for digestion. Having an insufficient amount of pancreatic enzymes is very common among people with pancreatic cancer. When the pancreas does not produce enough enzymes to break down food, pancreatic enzyme products are needed. Doctors sometimes prescribe digestive enzymes, including pancreatic enzymes, to patients who have conditions that cause poor absorption. These products help improve digestion and absorption of food.
Some of the conditions that may cause pancreatic insufficiency include surgery (Whipple procedure or total pancreatectomy), blockage or narrowing of the pancreatic or biliary duct (the tubes that carry pancreatic juice or bile), pancreatic or duodenal tumors, cystic fibrosis or pancreatitis.
some random stuff I was just looking at when it comes to absorption, vitamin d receptors and probiotics/prebiotics
just using florastor as an example again but this would prob apply to others.
http://probiotics101.probacto.com/what-effect-can-probiotics-cause-on-mineral-absorption/
What Effect Can Probiotics Cause On Mineral Absorption
Role of probiotics in facilitating mineral absorption:
The indigestible carbohydrates like oligofructose, galactooligosaccharides and inulin have been found to cause enhanced mineral retention and absorption by the human body. Significant improvement in mineral absorption was also observed for sugar alcohols and starches. These carbohydrate compounds are able to bind and sequester the minerals and these carbohydrate-mineral complexes pass unabsorbed through the small intestine onto the colon when the minerals are released from the complex and absorbed. The probiotics can act on the nondigestible carbohydrates and gives rise to short chain fatty acids. The SCFAs so formed can affect an increased absorption of minerals like Mg2+ and Ca2+. As also the acidic condition that results from the formation of lactic acid, butyric acid or propionic acid can enhance the ionization of minerals that in turn results in passive diffusion according to the work of Cummings et al. Researchers like Resta, Feng and Christakos have demonstrated that the SCFAs can stimulate Vitamin D receptor expression on the eukaryotic cells. Now there were previous reports to suggest that in mammals Vitamin D can regulate the metabolism of calcium and hence ensures its proper absorption from the diet. The research also showed that the parts in probiotics can cause increased vitamin D receptor expression both independent and dependent of SCFAs. The signaling pathways involved in the regulation of transport of calcium are PKC and MAPK. In addition, the probiotics can cause increased transport of SCFA within the intestinal epithelia through the induction of their major transporters like monocarboxylate transporter 1 (MCT1) according to Lee et al. which promotes increase in cellular energy and VDR expression and proteins involved in calcium binding like calreticulin, Sp100. The calcium transporter, TRPV6 is also markedly induced by probiotic bacteria. In cereal foods, phytate binds and complexes the minerals. According to reports, trace mineral elements like iron, copper, zinc are highly reduced in diet with rich phytate content. The endogenous phytase is generally lacking in humans. Therefore, supply of probiotics to provide the required phytase could alleviate the problem.
What lies ahead?
The idea is to create a balance between the prebiotics and probiotics to overcome the problem of lack of mineral absorption. The future research should focus on the finding and characterization of more inulin like carbohydrates that can chelate and sequester the essential minerals. However, the prebiotics can bring along with them the problem of non-availability of minerals in certain regions of the body. The probiotics that can work on these otherwise nondigestible carbohydrates can bring relief in such situation. Therefore, the right combination of prebiotic-probiotic has to found out. But there are existing reports that suggest that the probiotic bacteria can cause sufficient improvement in mineral absorption even in the absence of the prebiotics. Efforts should be made to identify from the pool of probiotic bacterial strains the ones suitable for the purpose of mineral absorption. Strains could be so designed as to induce the increased production of mineral transporter genes. Nevertheless, the probiotics can definitely be used in improved absorption of minerals from the diet.
From Florastor website
Short-chain fatty acids are produced when healthy bacteria break down indigestible carbs and fibers in the colon. More short-chain fatty acids reflect healthier activity of bacteria in the colon. Florastor improves levels of fecal butyratethe short-chain fatty acid preferred by colon cells for energyby 60%. Healthy colon cells help your body stay hydrated by re-absorbing water in the colon
so, back to my curious relationship with copper. if there was something seriously wrong with us like too much stored vitamin a in tissues, liver, bones. I imagine if we were actually able to correct the problem there might be numerous growing pains so to speak. still cant tell if coppers a big deal or not. been taking at least 8mg a day. I feel it in my feet, in my shoulders. im not sure how the process would work. we could get bone pains that could actually be some sort of bone remodeling that could strengthen and thicken them. My hair I believe has been worse on copper, but then i think about how rogaine works where it pushes out old hair to make room for new hairs. heres the thing, im noticing numerous baby fine hairs on my lower temples where hair hasn't grown in a long time. also i used to have a unibrow that i had to shave that all but disappeared years ago. i noticed a few hairs growing in there. heres also the thing, i have to look really close to notice all these hairs, so maybe they have been there all along idk. i have a couple zits on both my shoulders and tiny acne like bumps on my forehead, again not sure if these would have been there without the copper. I also have to take something for normal digestion for this higher dose copper. taking culturelle 10bil twice daily with inulin will see if that does the trick.
so for the bad a little higher dose seems to dry my skin (but at the same time still seeing these zits)
my hair right now is not good, im hopeful this will change. if not i might be fu*ked and just sped up MPB, sure hope not
mentally im not quite sure yet. i wouldnt say im really quick and sharp yet and have good short term memory,i can tell when playing music if i forget things or parts. (in fact other things have helped more with this so far)
im getting some bone pain in my right knee, but this is the same pain in the same spot when i was taking vitamin a, so not sure if there is anything to that or if its just drying out the joint.
it seems to put moisture in my eyes, but a higher dose makes my left eye twitch its a prob ive had for a few years now.
higher dose copper is making my yellow tongue worse to the point where im mispronouncing some words. (this tells me something is still wrong with my digestion)
maybe il act like im back on accutane and take shit to counter this stuff like in that study vitamin e,c, grapeseed, maybe some taurine too.
but i dont want to lose sight of what copper is or isnt doing. This could still all be a waste lol.
idk, guitarman out.