tryingtohelp2014, please stop with the copper. you really are making a fool out of yourself. You were so adamant on taurine and Sam-e, you honestly hold no credibility anymore. Just stop.
every symptom someone has you scurry over to google and type in "symptom plus copper" and bc you think you found something, you automatically draw the conclusion that its related. It's just not how the world works man.

3 hours ago, guitarman01 said:

http://m.brain.oxfordjournals.org/content/130/8/2045.short

ETFDHmutations as a major cause of riboflavin-responsive multiple acyl-CoA dehydrogenation deficiency

3 hours ago, guitarman01 said:

http://m.brain.oxfordjournals.org/content/130/8/2045.short

ETFDHmutations as a major cause of riboflavin-responsive multiple acyl-CoA dehydrogenation deficiency

3 hours ago, guitarman01 said:

http://m.brain.oxfordjournals.org/content/130/8/2045.short

ETFDHmutations as a major cause of riboflavin-responsive multiple acyl-CoA dehydrogenation deficiency

Guitarman01 - I don't pretend to understand this. Have you said previously that B2 has made you feel a little better? Please simplify if you can.

8 minutes ago, hatetane said:

Guitarman01 - I don't pretend to understand this. Have you said previously that B2 has made you feel a little better? Please simplify if you can.

riboflavin and its active forms are involved in a shit ton of processes. There might be a close relationship with vitamin a. one of the most interesting signs of deficiency is mucus membrane inflammation maybe in both the sinuses and the gut. my face is constantly inflamed along with my ears, and eustachian tubes. based on studies ive read pertaining to acid reflux, if the cause is corrected this could take months to heal. mitochondrial dysfunction is something i think we also deal with. Riboflavin is also one of the main treatments for this. other signs i def have are dry crusting skin on sides of nose and dry skin on the inside folds of the ears. riboflavin also involved in healthy night vision along with vitamin a. but our blurred vision, light sensitivity could just be due to inflamed mucus membranes. riboflavin is also involved in methylation. not saying this is it though, but not letting this one go just yet.

another note some of us are producing extra mucus to help protect something that is damaged or inflammed inside the body maybe. this is the same as how it works with acid reflux, if airways are damaged by acid, more mucus is created to protect the airways

or it goes back to biotin or it goes back to vitamin a itself these can also cause mucus membrane inflammation
http://nutristart.com/3-nutrients-can-heal-ailments/

Mucous Membrane Erosion

So, for example, when the sinuses lose their lining, one is prone to allergies (cant filter out the dander, dust, pollen, etc), post-nasal drip, nasal dryness, and eventually, sinus infections.

When the respiratory system loses its lining, we can be subject to bronchitis, lung infections, asthma, emphysema, and even throat problems that are unexplainable.

When the stomach loses lining we get ulcers, and when the intestinal tract loses lining we get leaky gut, and all the aforementioned problems associated with that, as well as celiac disease, and food allergies.

When the genitourinary tract loses lining we are likely to get re-occurring bladder infections, kidney problems, interstitial cystitis, or vaginal dryness. The lining of the prostate thins and it becomes prone to infection, while thinning of the uterus can lead to endometriosis.

Also, part of the mucosal lining in many cases (sinuses, lungs, and intestinal tract) includes the fine hairs (villi, cilia) that keep those systems trapping and expelling foreign particles, again keeping them out of the blood stream. Loss of villi is the main cause of celiac disease, and cilia allow the lungs to expel dust particles (and carbon particles in the case of smokers and those who heat with wood), and mucus (which also carries out toxins and waste).

interesting what he says about vitamin a, not advocating this though
Dosing with Vitamin A

Take 50,000 IU of vitamin A daily (with a meal containing fat) for 5 days, then 30,000 IU daily until one does not squint on a sunny day. Squinting in the sunlight (outside of staring into the sun) is a feedback mechanism indicating vitamin A deficiency; this deficiency is worse when one is sensitive to all bright lights, unless there is a medical condition with this symptom. Poor night vision and dry eyes are other symptoms.

After no longer squinting on sunny days, one can take 10,000 IU daily, and even miss a few days a week. When sensitivity to light returns, I will generally go back to taking 3 or 4 pills (10,000 IU each), until the problem recedes, and then roll back my dosage. I prefer natural sourced vitamin A (from fish liver oil), but it appears that synthetic vitamin A will also do the job (unlike synthetic beta carotene), for our vegan friends.

The funny thing is when taking accutane, i dont ever remember my eyes being sensitive to light, and I have blue eyes. I didnt even need sunglasses! but now I do?

5 hours ago, marlin15 said:

tryingtohelp2014, please stop with the copper. you really are making a fool out of yourself. You were so adamant on taurine and Sam-e, you honestly hold no credibility anymore. Just stop.
every symptom someone has you scurry over to google and type in "symptom plus copper" and bc you think you found something, you automatically draw the conclusion that its related. It's just not how the world works man.

Marlin, i went thru all 39 of your posts on this forum. the only thing youve contributed:
1 questions
2 bitching and moaning
3 insults
4 suicidal thoughts

i was initially mad at your post... then i realized.... youre 21 years old. youre suffering. you dont even know what you dont know yet... honestly, you think you know how the world works??! you dont even have a mortgage yet heh. youre a scared and frustrated kid, who has grown up in the "i want it right now" era. if the internet was available 23 years ago with the information it has now...the chances of me taking this drug wouldve been 0%. i also went thru your posts and marked down your symptoms

1. thin skin (lysyl oxidase related)
2. cant tan (you specifically mention melanin)
3. celiac
4.hormone problems
5 histamine issues

if anyone needs to be tested, its you. If you dont have the means...pm me your info and ill buy the tests for you at an available local walkin clinic.

btw i still believe in all 4 things ive recommended for different reasons. and at 21, i woulve killed for someone to be working on the problem trying to help me.

14 minutes ago, tryingtohelp2014 said:

Marlin, i went thru all 39 of your posts on this forum. the only thing youve contributed:
1 questions
2 bitching and moaning
3 insults
4 suicidal thoughts

i was initially mad at your post... then i realized.... youre 21 years old. youre suffering. you dont even know what you dont know yet... honestly, you think you know how the world works??! you dont even have a mortgage yet heh. youre a scared and frustrated kid, who has grown up in the "i want it right now" era. if the internet was available 20 years ago with the information it has now...the chances of me taking this drug wouldve been 0%. i also went thru your posts and marked down your symptoms

1. thin skin (lysyl oxidase related)
2. cant tan (you specifically mention melanin)
3. celiac
4.hormone problems
5 histamine issues

if anyone needs to be tested, its you. If you dont have the means...pm me your info and ill buy the tests for you at an available local walkin clinic.

btw i still believe in all 4 things ive recommended for different reasons. and at 21, i woulve killed for someone to be working on the problem trying to help me.

I'm sorry for blowing up. All of your input above is justified, and I am impatient. I know nothing happens overnight, but i would expect a little bit of improvement. But nothing. The histamine issues aren't that big of a deal as they can be managed, everything else is horrid. I'll take copper, but I don't expect shit to work.

5 hours ago, guitarman01 said:

interesting what he says about vitamin a, not advocating this though
Dosing with Vitamin A

Take 50,000 IU of vitamin A daily (with a meal containing fat) for 5 days, then 30,000 IU daily until one does not squint on a sunny day. Squinting in the sunlight (outside of staring into the sun) is a feedback mechanism indicating vitamin A deficiency; this deficiency is worse when one is sensitive to all bright lights, unless there is a medical condition with this symptom. Poor night vision and dry eyes are other symptoms.

After no longer squinting on sunny days, one can take 10,000 IU daily, and even miss a few days a week. When sensitivity to light returns, I will generally go back to taking 3 or 4 pills (10,000 IU each), until the problem recedes, and then roll back my dosage. I prefer natural sourced vitamin A (from fish liver oil), but it appears that synthetic vitamin A will also do the job (unlike synthetic beta carotene), for our vegan friends.

The funny thing is when taking accutane, i dont ever remember my eyes being sensitive to light, and I have blue eyes. I didnt even need sunglasses! but now I do?

This is interesting, have we all looked into taking Vit A to help our problems?? other than taking some flaxseed oil with a bit of vit A in it, I haven't gone down the path of taking a high dose A supplement. When you think about it, It's actually the one thing that many doctors have put patients on when they have experienced negative side effects from accutane. I haven't heard of any doctor saying take Vit E or C or even B so is this worth investigating again just to be sure?

My sunlight sensitivity is shocking. Currently I'm waiting for my Copper supplement to arrive but maybe it's a waste of time, perhaps hitting Vit A in large quantities has been the answer all along??

Well I have dabbled in synthetic vitamin a and would not recommend it. I have a bottle of 25k iu vitamin a from fish liver oil and might try a pill or two in the near future and see how I respond. I know one reviewer on amazon said he was getting sides from synthetic vitamin a and not pills sourced from fish liver oil. But who knows with us

If you guys have not tried 400mg riboflavin per day I would try that before vitamin a or copper. I would be curious how others respond. Not to discredit anything but I don't think copper is it. Just my opinion though

13 hours ago, marlin15 said:

tryingtohelp2014, please stop with the copper. you really are making a fool out of yourself. You were so adamant on taurine and Sam-e, you honestly hold no credibility anymore. Just stop.
every symptom someone has you scurry over to google and type in "symptom plus copper" and bc you think you found something, you automatically draw the conclusion that its related. It's just not how the world works man. 

I'm also not sure about the copper thing, but taurine vitamin a thing is starting to pay off. Had two wet dreams in the last week, which is about the same as the previous 4 years combined. After getting my other fat soluable vitamins under control, by having 3000iu vitamin e, 10000iu of Vit d, and 1000mcg of vitamin k per day, I've been feeling really good, fitness is up. Unfortunately due to excessive training load I've torn my hamstring (70km running + heavy squatting 3+ times a week), so that's going to hold me back for a bit.
Still too soon to recommend others my vitamin a load (100,000iu/day for 6 weeks), but since I have had the other fat soluable vitamins + taurine, I've improved and no longer feel any regret. 
Im just trying to give you all my treatment and its results, both the positives AND the negatives, and possible changes to what I did so that the process is more successful for others. The changes I would recommend include having the other fat soluable vitamins at their upper safe dose while maxing out on the vitamin a.

As I said it hasn't been perfect and some parts off the path I took were painful and frustrating, as well as possibly obsolete, but I'm coming out the other side and feel I am closer to being able to reach my goals  

19 hours ago, marlin15 said:

tryingtohelp2014, please stop with the copper. you really are making a fool out of yourself. You were so adamant on taurine and Sam-e, you honestly hold no credibility anymore. Just stop.
every symptom someone has you scurry over to google and type in "symptom plus copper" and bc you think you found something, you automatically draw the conclusion that its related. It's just not how the world works man.

This.

Does you guys have problems with omega 3 capsules (containing only DHA not the EPA) Algae oil not fish oil

Hello everybody,

haven't followed this forum very religiously lately so not really up-to-date with any good news. Will try to catch up and read asap.

Some insight from me (exp gathered over last 2 or so years)

did 1,5 years as a raw-vegan. Nothing interesting happened.
tried RSO. Gave me anxiety attacks instead of high. Couldnt find any way to stop it...
inspired by THIS tested if i have e. histolytica (and other parasites). Negative of course
did I think 4 moritz cleanses, nothing interesting (also did clarke kindey cleanses)
tried dopamine-agonists
tried dopamine-antagonist (as advised by Paulo) from allthingsmale = both did nothing

I'm living a decent life. Been doing great in a busy job environment (brain fog well and truly gone), jost got a great job offer, managed to put up some muscle mass (pls note been working out religiously for 7-8 years or so and results were always pathetic). Don't drink coffee or any other stimulant to wake me up which is great.. Energy levels are OK.
.So all-in-all it's fine. But there is still not a slightest sign of libido. Nothing can make me horny. Nothing.

For those who haven't read my posts here and on allthings male - years ago tested very low T and DHT. TRT didn't work at all, Clomid elevated T levels to the top range but it didn't result in anything positive libido-wise.

Now almost all tests show normal in-range scores.
Lately for the first time: thyroid-antibodies began to show up and slightly elevated TSH.
Also have enlarged spleen.

My trainer also claims water retention is a strange prolem of mine. We tried diuretics, epsom salt baths and of course nothing changed.
Had my kidneys checked and both blood tests and ultrasound are OK.

Ok, guys. What do we do as a next step? Has THIS been discussed here?

P.

23 minutes ago, pabpab said:

Hello everybody,

haven't followed this forum very religiously lately so not really up-to-date with any good news. Will try to catch up and read asap.

Some insight from me (exp gathered over last 2 or so years)

did 1,5 years as a raw-vegan. Nothing interesting happened.
tried RSO. Gave me anxiety attacks instead of high. Couldnt find any way to stop it...
inspired by THIS tested if i have e. histolytica (and other parasites). Negative of course
did I think 4 moritz cleanses, nothing interesting (also did clarke kindey cleanses)
tried dopamine-agonists
tried dopamine-antagonist (as advised by Paulo) from allthingsmale = both did nothing

I'm living a decent life. Been doing great in a busy job environment (brain fog well and truly gone), jost got a great job offer, managed to put up some muscle mass (pls note been working out religiously for 7-8 years or so and results were always pathetic). Don't drink coffee or any other stimulant to wake me up which is great.. Energy levels are OK.
.So all-in-all it's fine. But there is still not a slightest sign of libido. Nothing can make me horny. Nothing.

For those who haven't read my posts here and on allthings male - years ago tested very low T and DHT. TRT didn't work at all, Clomid elevated T levels to the top range but it didn't result in anything positive libido-wise.

Now almost all tests show normal in-range scores.
Lately for the first time: thyroid-antibodies began to show up and slightly elevated TSH.
Also have enlarged spleen.

My trainer also claims water retention is a strange prolem of mine. We tried diuretics, epsom salt baths and of course nothing changed.
Had my kidneys checked and both blood tests and ultrasound are OK.

Ok, guys. What do we do as a next step? Has THIS been discussed here?

P.

Yeah, prospecia has been mentioned here, however I believe they are slightly different.
If you are vegetarian make sure you get enoughVitamin b12 and iron.

2 hours ago, pabpab said:

Hello everybody,

haven't followed this forum very religiously lately so not really up-to-date with any good news. Will try to catch up and read asap.

Some insight from me (exp gathered over last 2 or so years)

did 1,5 years as a raw-vegan. Nothing interesting happened.
tried RSO. Gave me anxiety attacks instead of high. Couldnt find any way to stop it...
inspired by THIS tested if i have e. histolytica (and other parasites). Negative of course
did I think 4 moritz cleanses, nothing interesting (also did clarke kindey cleanses)
tried dopamine-agonists
tried dopamine-antagonist (as advised by Paulo) from allthingsmale = both did nothing

I'm living a decent life. Been doing great in a busy job environment (brain fog well and truly gone), jost got a great job offer, managed to put up some muscle mass (pls note been working out religiously for 7-8 years or so and results were always pathetic). Don't drink coffee or any other stimulant to wake me up which is great.. Energy levels are OK.
.So all-in-all it's fine. But there is still not a slightest sign of libido. Nothing can make me horny. Nothing.

For those who haven't read my posts here and on allthings male - years ago tested very low T and DHT. TRT didn't work at all, Clomid elevated T levels to the top range but it didn't result in anything positive libido-wise.

Now almost all tests show normal in-range scores.
Lately for the first time: thyroid-antibodies began to show up and slightly elevated TSH.
Also have enlarged spleen.

My trainer also claims water retention is a strange prolem of mine. We tried diuretics, epsom salt baths and of course nothing changed.
Had my kidneys checked and both blood tests and ultrasound are OK.

Ok, guys. What do we do as a next step? Has THIS been discussed here?

P.

How healthy did your gut flora look out of interest? (assuming you got this test done along with the parasitology) I'm performing tests for gut flora/parasites and bile acid malabsorbition this week so should have the results back in a further 2-3 weeks time. Interesting that that guy basically tested negative for e.coli. Are you considering trying the 2 week regime he suggests?

Also out of interest what do you believe cleared your brain fog, or does that just seem to have lifted over time with no obvious specific factor helping clear it?

On 2/14/2016 at 8:53 PM, Fchawk said:

Yeah, prospecia has been mentioned here, however I believe they are slightly different.
If you are vegetarian make sure you get enough Vitamin b12 and iron.

Personally I would also supplement creatine at 3g/day, taurine 1-3g/day, and some BCAAs as well. These can only have a beneficial effect on your hormones and mucks building, as I think accutane affects protein synthesis 

Finally, I reckon supplementing vitamin A helps as well, however, if you are going to megadose akin to how we all megadosed on accutane, then I would be making sure to have plenty of the other fat soluable minerals as well, as vitaminosis happens not only because have too much vitamins, but because too much of one and a slight deficiency in another, causing an imbalance. Safe daily dosage levels IMO would be 20000iu vitamin a, 5000iu vitamin d, 3000iu vitamin e, 500mcg of vitamin k.

My highest dosages were 500,000iu for 3 days in a row, but I can't recommend that, though at the same time I don't regret it.

Not vegeterian. Finished after 1,5 y and sadly no improvement. Still eating extremely cleanly. (lots of herring, beef, eggs + potatoes,millet + greens, spinach, broccoli, kale, salads etc. together with each meal)

As for supplements - im coached by a top level specialist and for the first time ever im having decent results. Creatine + my water retention problems...not the best idea I guess.

I see this vit. A thing being discussed here. My 2 cents are that if I eat a say 300g of liver (33000 IU of vit. A) and 400g of  (37000 IU of vit A) or drink some carrot juice I feel - like always- nothing special.
Im supplementing vit. D, was tested v. low last october. Used to take 8000iu now taking 10000.

My highest dosages were 500,000iu for 3 days in a row, but I can't recommend that, though at the same time I don't regret it.

What happened?
 

On 2/14/2016 at 10:30 PM, tanedout said:

How healthy did your gut flora look out of interest? (assuming you got this test done along with the parasitology) I'm performing tests for gut flora/parasites and bile acid malabsorbition this week so should have the results back in a further 2-3 weeks time. Interesting that that guy basically tested negative for e.coli. Are you considering trying the 2 week regime he suggests? 

Also out of interest what do you believe cleared your brain fog, or does that just seem to have lifted over time with no obvious specific factor helping clear it? 

Well, here in Poland you can't test your microbiome. I'm toying with an idea to ship my shit overseas to US but it's around $700...
All tests which I did showed normal results but they weren't very advanced though.
Btw, there is more than one guy there who tested negative for e.coli...

Are you considering trying the 2 week regime he suggests?

I'm considering everything mate. I'd suggest to carefully read [Edited link out]   it's this guy's topic on another forum but of 52 pages long and he claims he's recovered...

Also out of interest what do you believe cleared your brain fog, or does that just seem to have lifted over time with no obvious specific factor helping clear it? 

I wish I could tell As you could read I tried a lot of things. Also I don't drink alcohol, go to gym 3-5 times a week, never eat processed food...

On 2/14/2016 at 11:37 PM, pabpab said:

Not vegeterian. Finished after 1,5 y and sadly no improvement. Still eating extremely cleanly. (lots of herring, beef, eggs + potatoes,millet + greens, spinach, broccoli, kale, salads etc. together with each meal)

As for supplements - im coached by a top level specialist and for the first time ever im having decent results. Creatine + my water retention problems...not the best idea I guess.

I see this vit. A thing being discussed here. My 2 cents are that if I eat a say 300g of liver (33000 IU of vit. A) and 400g of  (37000 IU of vit A) or drink some carrot juice I feel - like always- nothing special.
Im supplementing vit. D, was tested v. low last october. Used to take 8000iu now taking 10000.

My highest dosages were 500,000iu for 3 days in a row, but I can't recommend that, though at the same time I don't regret it.

What happened?
 
Well, here in Poland you can't test your microbiome. I'm toying with an idea to ship my shit overseas to US but it's around $700...
All tests which I did showed normal results but they weren't very advanced though.
Btw, there is more than one guy there who tested negative for e.coli...

Are you considering trying the 2 week regime he suggests?

I'm considering everything mate. I'd suggest to carefully read [Edited link out] it's this guy's topic on another forum but of 52 pages long and he claims he's recovered...

Also out of interest what do you believe cleared your brain fog, or does that just seem to have lifted over time with no obvious specific factor helping clear it? 

I wish I could tell As you could read I tried a lot of things. Also I don't drink alcohol, go to gym 3-5 times a week, never eat processed food...

Geneva Diagnostics do testing in the UK and US, so shipping to the UK from Poland would be significantly cheaper. They appear to have a distributer in Poland too. These are the guys I'm using, and it appears others have used them too based on the format of the results people post up; 

[Edited link out]

Regarding the thread on SolvePFS, can you summarise? I've tried to get a login for that forum a couple of times but never get anything back from them unfortunately so I can't read the posts. I'm assuming it's the thread from brongfogboy?

id look at some amazon reviews of vitamin a supplements for anyone considering this. people have experienced hair loss, depression,fatigue and dry skin.elevated liver enzymes and triglyceridesand these are people that never even took accutane.

Selenium ameliorates isotretinoin-induced liver injury and dyslipidemia via antioxidant effect in rats. http://www.ncbi.nlm.nih.gov/pubmed/24966012

you guys looked into selenium though i take it in the past?

what if muscle weakness which would prob include ed was just related to oxidative stress?
its the same thing chemo patients go through their weakness and fatigue is generally caused by oxidative stress by the drugs.

found this on a forum

I want to take an oral supplement that helps fair-skinned people to safely and effectively tan. I've used this before and know from past experience that it actually works and very powerfully so; also I am aware that sun exposure should be limited on Accutane and that's fine too as 30-60 minutes a day is sufficient for it to work. It's 100% safe and 100% natural BUT... one of the primary ingredients is beta carotene; specifically in the amount of 90mg per day. Beta carotene is converted as necessary by the body into vitamin A. As you probably know, vitamin A intake must be strictly regulated while on Accutane. However, with beta carotene itself I'm not as sure...

90 mg betacaroteneper day to help him tan. this is a shit ton this would equal 150k iu daily i believe. whats a moreprevalentsourceof vitamin a? is itbetacarotene? does this have its own functions in the bodyseparatefrom vitamin a? high amountssupposedlyturn your skin orange. would this be a good thingfor us? to have that kind of penetration and saturation?

On 2/14/2016 at 11:57 PM, tanedout said:

Geneva Diagnostics do testing in the UK and US, so shipping to the UK from Poland would be significantly cheaper. They appear to have a distributer in Poland too. These are the guys I'm using, and it appears others have used them too based on the format of the results people post up;

[Edited link out]

Regarding the thread on SolvePFS, can you summarise? I've tried to get a login for that forum a couple of times but never get anything back from them unfortunately so I can't read the posts. I'm assuming it's the thread from brongfogboy?

I used Genova for my stool testing. My friendly bacteria was pretty much non existent. Also had a parasite and 2 bacterial infections.

31 minutes ago, Bobby.Digital said:

I used Genova for my stool testing. My friendly bacteria was pretty much non existent. Also had a parasite and 2 bacterial infections.

Thanks Bobby, can you elaborate on specifically which parasite you had, and which strains of friendly bacteria were found to be lacking? Have you had professional medical advice on the findings and have you subsequently taken any action to try and rectify this, such as antibiotics and change of diet (i.e. no sugar) to tackle the parasite and probiotics to try and increase your levels of friendly bacteria?

1 hour ago, Modeaa said:

no, haven't looked much on selenium in relation to accutane reparing sides, thogh i think i've seen this study.

http://springerplus.springeropen.com/articles/10.1186/2193-1801-3-251
''Integrated analysis of chronic lipotoxicity on muscle metabolism and stress and its reversal by antioxidants''

NAC was the antioxidant

1 hour ago, Modeaa said:

no, haven't looked much on selenium in relation to accutane reparing sides, thogh i think i've seen this study.

http://springerplus.springeropen.com/articles/10.1186/2193-1801-3-251
''Integrated analysis of chronic lipotoxicity on muscle metabolism and stress and its reversal by antioxidants''

NAC was the antioxidant

Kids are still taking this shit. I see the Veterans are very committed to getting the word out - how bad thisdrug is.
Dubya-B is constantly urgingeveryone to report their sides! Kudos Dubs!
How bad do you guys feel that a new generation of kids - maybe kids youknow, will take this drug and be destroyed!

What are you really doing about that.
If you haven't yet reported this then do so. Make sure your GP reports it also. If they refuse, speak to the practice manager.
How many of you have been backto see the Derm that gave you this drug.
I have spoken to some top Dermatologists and they all tell me they have never had a case of ED reported to them.
So either they are lying (always a possibility) or not enough people are reporting their problems.
Can't any of you youngsters go on youtube to raise awareness? Make sure you state that these side effects donot cease when accutane is no longer taken. I can understand the really young guys keeping a low profile but you older guys need to step up.
I know several of you are doing everything you can but more needs to be done.
The PFS guys only got research underway because they got their storiesout there in the media.
I have asked for all ED case histories as a high profile PFS doctorhas said he will take a look and I have had no more than a couple of responses - how are we ever to be taken seriously if we don't get out act together.

Not one person on here has found a cure yet for any of the side effects of accutane so we need to pull together, raise media awareness,
and collate our stories.

GET YOUR VOICES HEARD!

4 hours ago, tanedout said:

Thanks Bobby, can you elaborate on specifically which parasite you had, and which strains of friendly bacteria were found to be lacking? Have you had professional medical advice on the findings and have you subsequently taken any action to try and rectify this, such as antibiotics and change of diet (i.e. no sugar) to tackle the parasite and probiotics to try and increase your levels of friendly bacteria?

Parasite infection: Dientamoeba Fragilis.
Bacterial Infection: Aeronamas Veronii biovarsobria

So from researching online and according to badbugs.org the only way to get rid of thatspecific parasite infection is to go on a course of antibiotics. The two antibiotics are Idoquionl and doxycycline. The nice thing is the doxycycline also works on the bacterial infection.

My friendly bacteria profile looked like this:

Lactobacillus spp. NG
Escherichia coli. 3+
Bilfdobacterium. NG

NG = No growth

So after taking the antibiotics to kill the infections I started taking probiotics (Garden of Life super strength). I took them for about a month until is was time to retest for the parasite and bacterial infection which required me to stop taking any probiotics 2 weeks before testing. The test also came with a friendly bacteria profile. Both my infectionswere gone. My lactobacillus was at 1+, Esch 3+, Bilfo 3+. I noticed as I was offthe probiotics my head pressure was a bit better. Which lead me into my SIBO treatment which I just finished curing about a week ago. I wrote a long introductionpost about my journey so far which you can check in my post history. I'm seeing a new functional medicine doctor whos seems to know what he's doing. I've made some of my biggest improvements so far seeing him. Lastly my diet up for the last few years has been very low sugar. The only sugar I get is fructose from apples and grapes so I did not make any adjustments while dealing with the parasite or bacterial infections.