On 18 January 2016 at 02:19:58, guitarman01 said:

you guys havent discussed l arginine on here yet?

I was taking 1-1.5g of l-arginine per day for at least 2 months a few years back, but no significant improvements unfortunately. Might be worth trying at a larger dose though, I think it's often the case that people try things in too lower dose to have a worthwhile effect.

Has anyone ever thought about candida/parasite infection? I was diagnosed with both, and leaky gut. I'm going to start my treatment today and update how I feel in a couple of weeks
i looked it up and found that I have a majority of the symptoms.
After all the gut is the most important organ in the body, if that doesn't function properly, the rest of your body suffers right?

TRY GOOGLING CANDIDA AND SEXUAL DYSFUNCTION
 

59 minutes ago, trantran83333 said:

Has anyone ever thought about candida/parasiteinfection? I was diagnosed with both, and leaky gut. I'm going to start my treatment today and update how I feel in a couple of weeks
i looked it up and found that I have a majority of the symptoms.
After all the gut is the most important organ in the body, if that doesn't function properly, the rest of your body suffers right?

TRY GOOGLING CANDIDA AND SEXUAL DYSFUNCTION

How did you get diagnosed and what is your treatment? Thx

@trantran83333good post! A number of people on this thread have resolved their digestive issues, and generally improved their conditions through eating fermented foods, and making kefir milk etc to boost their guts good bacteria.

Also interesting I was on the propeciahelp forum earlier and there is a new recovery (or at least significant improvement) story from someone who had some analysis done and found their gut flora was completely out of balance (levels of good and bad bacteria), and they actually pretty much resolved their issues using antibiotics to target the bad bacteria, but noted improvements from probiotics and also specifically mentioned lactoferrin.

I've meant to make some coconut kefir milk for ages, but have never done so, but I think I'll make the effort and combine this with probiotics, lactoferrin and attempt to eliminate sugars from my diet.

I had a talk to a co worker of mine and she suggested a really good doctor. He is a doctor and does alternative medicine as well. Her daughter did a hair analysis and he diagnosed her with candida. He completely cured her, she is still well to this day, that was 10 years ago. 

Thanks for posting that up, I've saved a copy of the diet list actually as it's good to see a list of 'can' and can't' without having to research.Looks like that Entrocare powder is basically a pretty strong probiotic, the glutamine is probably in there as it reduces sugar cravings as well as being beneficial to the immune system.

Keep us posted with how you get on, and hope it yields some good results!

@trantran83333The type of muscle testing he used wouldn't happen to be called autonomic response testing (ART), would it?

thanks for posting @trantran. im real curious if you notice positive effects from the nilstat, that anti fungal medication. ive had a white/yellow coating on the back of my tongue for a few years now that drives me nuts. I'd be curious to try this prescription myself as that could point to a lot of reasons for our side effects if it helps. although i dont think accutane has antibacterial properties but we know it can definitely mess with our gut along with everything else. and if it was as simple as repopulating and getting yeast under control... was looking a bit agoat VSL#3 suppose to be The best probiotic. Prob dont need anything that serious though just a combo of align/culturelle or similar as they are the most studied

3 hours ago, trantran83333 said:

I had a talk to a co worker of mine and she suggested a really good doctor. He is a doctor and does alternative medicine as well. Her daughter did a hair analysis and he diagnosed her with candida. He completely cured her, she is still well to this day, that was 10 years ago.

A very popular doctor because I had to wait 3 months to see him.

Told him all about my symptoms, accutane and all the supplements that I had taken.

He went ahead and checked my gut first using muscle reading method, there is a special name for it but I totally forgot what it is.
this is what he gave me to take
and my 5 week diet plan,

8 hours ago, Cory90 said:

I bought l arginine with a whole laundry list of supplements in an attempt to help my l5s1 herniation heal.

So your saying it has potential here?

I dont even know just throwing darts hoping something will stick eventually. just throwing out every idea I can think of . ive had a new one everyday so far lol. We know what people have tried over all these years. So im just looking at everything else people havent tried and new research and trying to make connections. Some type of mitochondrial dysfunction could be a real thing for us based on the studies I just posted. I dont think our brains are permanently fucked because i think we've all had moments where its kind of like "oh yea this is how im supposed to feel" but for some reason it doesnt last. So why is that? Thats part of what we need to find out.

12 hours ago, Walden Rev said:

So I contacted one of the lead engineers (Carpenter) of the Cyclodextrin study involving the child with A-hypervitaminosis.

I asked some basic questions and got immediate response:

My question to you is

1. Do you think Accutane can still be stored in the liver even after 5 years?Idon't know but the usual metabolite stored in liver with vitamin A intoxication is theretinyl ester, retinyl palmitate. It would be less likely for the less lipophilic accutane to be stored there.

2. If yes do you think Cyclodextrin can move things around?This works bysequestering the lipophilic retinyl ester into the center of the cyclodextrin molecule and allowing it to be water soluble.Ibelieve the accutane is not a lipophilic material, but relatively polar and water soluble

3. Do you think Cyclodextrin administered in the rectum is effective?We gave by IV in order for sufficient concentration to get to liver.

However, Accutane is alipophilic drug. The theory is still on.
I'm gonna give his email a response, if you guys could pose some questions (i'm not native english) he maybe can help on some theories.

Wald,

you tried this orally at all yet? what dose are you at per day?

I found it, it's called kinesiology 
I havent started my script as yet. Not looking forward to it either, the die off period is gona tax my body.... 

kinesiology is what they do in sports and exercise when we run into ailments. It's definition is how things move I believe. I've read a couple books from the "father of kinesiology". Old school ways to treat tendon inflammation through massage and therapy.

6 hours ago, trantran83333 said:

Has anyone ever thought about candida/parasite infection? I was diagnosed with both, and leaky gut. I'm going to start my treatment today and update how I feel in a couple of weeks
i looked it up and found that I have a majority of the symptoms.
After all the gut is the most important organ in the body, if that doesn't function properly, the rest of your body suffers right?

TRY GOOGLING CANDIDA AND SEXUAL DYSFUNCTION
 

I think that this is a really crucial area to focus on in our ability to heal. The first thing accutane did was wreak havoc on our guts so it makes sense to address what it might of upset.

Thanks for sharing this info - I'd like to get some tests done to see if I have a bacteria imbalance.

I reckon that many of us who get other things tested coming back saying that there's no real problem probably have a gut problem  and need to work on correcting it, everything from depression to testosterone issues. Please share any more news or results as you progress!

just taking a poll does anyone here for a fact not have allergies? you have been skin prick tested? or ige blood tested? just want to cross that out.

• Mitochondrial disease is unpredictable. Day to day, hour to hour patients can develop symptoms and their stability can be threatened.

How is Mitochondrial Disease Diagnosed?

• There is no reliable and consistent means of diagnosis.
• Diagnosis can be made by one of the few physicians who specialize in mitochondrial disease.
• Diagnosis can be made by blood DNA testing and/or muscle biopsy but neither of these tests is completely reliable.

23andme is dna testing right? any thing that can trace back to mitochondrial disease? I know some of you guys have had this

http://forums.phoenixrising.me/index.php?threads/accutane-methylation-block-and-glycine-n-methyltransferase.26042/

Accutane, Methylation Block and Glycine N-Methyltransferase

going back to this theory in a parallel universe same type forum if you guys havent seen it yet.
actually some studies and a doctor to back this up?

Where is tryingtohelp to look at this? I know he has been studying this stuff for a long time. Hope he didn't od on meth.

I was also thinking about SIBO, but I don't think that pale stools & fat malabsorbtion (and, in my case, also slightly elevated bilirubin) arethe classic manifestations of SIBO. Such symptoms are usually connected with liver, galbladder or biliary tree disorder (biliary sludge?).

But when Isotretinoin is concerned, you can't count anything out:

Quote

Systemic isotretinoin and antibiotic treatments in acne patients precisely caused variations in the microbial floras of several sites of the body, while isotretinoin was commonly more responsible than antibiotics.Knowing that alterations in the microbial colonization of the flora regions may preceede infectious disease and bacterial resistance,treatment options and follow-up procedures in acne vulgaris should be carefully determined to reduce the risk of destruction of the microbial flora.
http://www.ncbi.nlm.nih.gov/pubmed/22239608

19 hours ago, trantran83333 said:

19 hours ago, trantran83333 said:

Has anyone ever thought about candida/parasite infection? I was diagnosed with both, and leaky gut. I'm going to start my treatment today and update how I feel in a couple of weeks
i looked it up and found that I have a majority of the symptoms.
After all the gut is the most important organ in the body, if that doesn't function properly, the rest of your body suffers right?

This! So much this!

I've been lurking for a long time folks. I've read every page of this thread and I've tried pretty much everything that's been thrown around with the exception of the cannabis oil regime that was kicked around  a couple hundred pages ago. 
I tested very low for Testosterone, had all of the symptoms that coincide with that. I also had IBS like symptoms, brain fog, the list goes on. My bowel movements consisted of about 30-50 pieces of floating, fluffy, fatty nastiness.

It made sense to me that this damn drug has made a mess of our guts (that's why Roche pulled off the shelves in the US because of settled lawsuits for things like bowel removals).

If you have a similar story Here's what's been helping me:

1. Probiotics
2. Avoid Processed Sugar and as much processed food as you can
3. Lots of exercise
4. Digestive enzymes
5. mint tea
6. I don't eat dairy, red meat, massive meals, coffee, alcohol, anything that I know will cause discomfort afterwards. This will differ for everyone.

We are what we eat, and if we aren't digesting properly we can't make things like Testosterone. If your bowel movements don't look healthy there's an underlying issue.

Trantran83333 please keep us updated
 

someone above said something about testosterone levels being messed with. I urge any of you males here to get your T-levels checked if you're in doubt about your natural production. I got mine checked and the total was in the 100 range on a scale of 300-1000. Im taking cypionate 100mg every two weeks. I've been splitting the dose though and taking it every week.

You will get the run around from some doctors. Keep pressing the issue and don't settle for the garbage creams. I finally went to a urologist my brothers friend gets his test from and he happily prescribed when i showed my bloodwork. Most endocrinologist are ass backwards when it comes to this stuff.

Looks like I have to quit smoking in order to get better....
but yes will definitely keep everyone updated. 

ugh, double post. scroll down

Interesting post by Dr. Rostenberg of mthfrsupport about oxalates and their connection with biliary sludge & liver problems. This is exactly what's happened to me due to accutane & taking a sulfa drug (Bactrim). I highly suggest everyone here look into oxalates if you have ANY pain at all in your body (joints or muscles) or any tingling or poor digestion that does not seem to recover.
Join theTrying low oxalates group on FB or yahoo for more information
"There is a connection between gallbladder function, oxalates and sulfates. I just worked with a Japanese patient in his mid-40's who has suffered from severe depression, fat malabsorption (stool analysis), tachycardia, and severe adrenal fatigue. He currently deals with fatigue, inability to tolerate smells (aldehydes!), headaches, nausea, and irritability with the smallest amount of stress. The patient has a candida and bacteria gut infection, low serotonin, high urinarytaurine and very high oxalates, glyceric and glycolic. What is the connection with all these markers?

17 hours ago, guitarman01 said:

just taking a poll does anyone here for a fact not have allergies? you have been skin prick tested? or ige blood tested? just want to cross that out.

i've never had allergies thankfully and could be surrounded by pollination and not feel anything.

Cutting a ripe onion the other day actually made me tear up surprisingly, it was the most human i've felt since taking accutane.

Also, just spell out methionine, lol, you could be freaking out any new person just stumbling on this forum.

just got back some more exotic blood test to rule a few things out. all normal of course. such a slick drug this accutane.
so...
homocysteine normal
biotinidase plasma normal(they actually sent this one out to the mayo clinic)
alpha-tocopherol (vitamin e) normal
lyme disease negative
celiac disease negative
ana screen normal

for those looking to detox, this guy sounds pretty convincing. I recommend people get something like the bullet or ninja to make real easy hassle free smoothies. the supplements he recommends are pretty basic and have to deal with healing the gut, killing bad bacteria,yeast,dissolving biofilm
he mentions skin inflammation and clear eyes/lack of are signs of gut problems. This guy is pretty popular they call him the father of detox and is also a multilingual cardiologist.
pretty good video
http://www.doctoroz.com/article/3-day-jumpstart-cleanse Dr. Alejandro Junger

http://www.gordonmedical.com/unravelling-complex-chronic-illness/rich-van-konnyenberg-died-early-tuesday/
Rich believed it is possible that amethylation block, causing glutathione depletionwas an important trigger in causing symptoms in Chronic Fatigue Syndrome, and he developed the Simple Methylation Protocol as an over the counter treatment for patients to experiment with.
This is the same dr that was in contact with someone from that other forum I linked. Believed and tested? accutane caused some methylation block even years after treatment. Accutane causing a hyperactive Glycine N-Methyltransferase