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For those with muscle loss or weakness, Macleod specifically, have you ever tried selective androgen receptor modulators (SARMS)?? They are the closest thing to steroids but without the sides. I hear LGD-4033 is a good one. Maybe worth trying it. Apparently it's really goofor muscles---also doesn't target liver.
I Want to give this a try.
For those with muscle loss or weakness, Macleod specifically, have you ever tried selective androgen receptor modulators (SARMS)?? They are the closest thing to steroids but without the sides. I hear LGD-4033 is a good one. Maybe worth trying it. Apparently it's really goofor muscles---also doesn't target liver.
I Want to give this a try.
SARMS? Hmm..I'll give it a try. Thanks for the recommendation.
Before using SERMs please know what it is, what PTC is and side effects.
Start with reading this https://www.steroid.com/post-cycle-therapy.php
What about the simple fact that our brains are dehydrated.
A dehydrated brain has the same neurological effects as a accutainted brain.
2 weeks ago I was ill, I had alot of nasal discharge and everyhting was blocked with fluids.
Yet the time period where I was ill I had really clear thoughts and I was super fast with verbal reactions.
Now Noopept and other supps will ofcourse give an NOS like boost to the brain but in the end the brain needs water/fluids to transport elecrolytes/potassium.
Drinking more water doesnt help us in any way it just moves it to the bladder. What about replacing the accutane "fake" vitamin a receptors with real Vitamin A. Like (COD Liver or Retinyl Palmitate).
It hopefully pushes the accutane back into the liver and with TUDCA we can move it out of the system, this way the receptor with real Vitamin A will retain the water.
Has anyone used Creatine? It's known for its water retention and energy boosting abilities.
Wow. This is crazy reading this. I am 35, have taken accutane at least 5-6 times since I was 16. Most recently 5-6 years ago just because I wanted to ensure I would not have a bad break out on my wedding! I never came across any information regarding long term side effects until today....but after reading this Ivan say that I literally have everything that was listed by different people posting.....everything! This is so depressing. Is there anything that has worked fir people to help with all of these symptoms?
Hi,
I wanted to share my story and ask others if they are experiencing similar side affects.
I'm a 35 year old female and took accutane 6 monthsago for 6 weeks only (prescribed not for acne, but for seborrheic dermatitis which is normal/legal in Poland where I was diagnosed)!
Four month later I have more and more side effects that are gradually appearing and getting worse.
My main concern:
- shortness of breath and occasional chest pain (started recently and getting worse by day, but the x-ray doesn't show anything unusual nor do the blood tests)
- head pressure (a bit like sinus infection, but without a mucous), mainly at top of nose, slightly stuffy nose, temples, front and top of head, slightly foggy vision at times and occasional ear ache
- neurological issues, shooting aches (still mild) in arms and legs, extremely heavy limbs at night, tired arms and legs most of the time, I'm also a bit 'wobbly' (possibly from weak legs?)
Plus the usual:
-dry skin, eyes, mouth (receding gums), clicking joints, back ache, fussy tummy
Can you help me with supplements, tips for dealing with this,is is typical? My shortness of breath is really worrying (I have yet another doctor's visit in a few days time).
Thank you
H
Can you help me with supplements, tips for dealing with this,is is typical? My shortness of breath is really worrying (I have yet another doctor's visit in a few days time).
Yeah I get shortness of breath too, usually seemingly without a cause, but more commonly right after eating. It also happens if I smoke too much cannabis (something I've been using strategically for motivation and creativity). This symptom has gotten better as I've balanced my health over the last year but it's not gone yet. I'm not sure specifically what the problem is but I know it got somewhat better (probably 10-20% when I added in a digestive enzyme that had ox bile in it. I remember reading something about the hormone cck and tachycardia, but it kinda went over my head and I haven't come back to it yet.
For my joints and that heavy feeling in my legs that makes it hard to wake up, grass fed collagen protein has done wonders. Vital protein and bulletproof collagen are probably the highest quality but I recently switched back to Great Lakes brand which is much cheaper and it's working well too. It's also high in glycine which according to semi recent posts on this thread, looks like it should help. I guess you can also drink bone broth for this benefit, but collagen is just more convenient for me. It also makes sense to have collagen regularly to balance out your amino acid profile. Too much methionine without glycine seems like a bad idea. The shooting pains in my arms went down as I balanced my system. As unscientific as it sounds, it's probably just "inflammation" and eating more of the right foods, less of the bad ones, sealing my gut a littler better, collagen, and fish oil all helped make different parts of my body feel less inflamed and over time the shooting pains pretty much stopped. My vision is still kinda blurry, and I'm wondering what to do for it. My friend swears by the bates method, basically eye yoga, for getting rid of his visual snow so I may try it.
For my stomach, some supps like zinc carnosine (pepzin gi), fish/krill oil, lactobacillus plantarum 299v, all had a noticeable impact (thought not massive), when I started them. Krill oil also makes me feel happy and improves my memory. Magnesium makes me feel level headed. Also I think it makes sense for everyone alive in 2015, not just Accutane victims, to balance the gut of its bacteria and do a low grade weeding and seeding basically killing stuff off and trying to replace it with better stuff. Seems to be working for me and a month in, this protocol has had the biggest benefit on my gut health.
I use unpasteurized packaged fermented foods regularly and lots of fiber rich carbs and a decent amount of high quality fat and protein. Keep it simple (read: stress free), junk food and toxin exposure is bad long term but probably necessary and beneficial every now and then, do what your grandparents probably did, get some morning sun, read, watch interviews, be a learner (in every field) reengineer your life to have genuine happiness and have small wins everywhere, and keep progressing in other places in life. Or at least that's how I deal with it...
What about the simple fact that our brains are dehydrated.
A dehydrated brain has the same neurological effects as a accutainted brain.2 weeks ago I was ill, I had alot of nasal discharge and everyhting was blocked with fluids.
Yet the time period where I was ill I had really clear thoughts and I was super fast with verbal reactions.
Now Noopept and other supps will ofcourse give an NOS like boost to the brain but in the end the brain needs water/fluids to transport elecrolytes/potassium.Drinking more water doesnt help us in any way it just moves it to the bladder. What about replacing the accutane "fake" vitamin a receptors with real Vitamin A. Like (COD Liver or Retinyl Palmitate).
It hopefully pushes the accutane back into the liver and with TUDCA we can move it out of the system, this way the receptor with real Vitamin A will retain the water.Has anyone used Creatine? It's known for its water retention and energy boosting abilities.
This is interesting. I have been looking at trying Vitamin A supplementation as well. I know it goes against what one would normally think to do...add MORE Vitamin A, but from what I read, there may be a possible link between people with low vitamin A who took Accutane which caused hypervitaminosis. There is one case where a boy in India who was on Accutane for just a week (140mg) who lost vision at night almost completely, doctors ceased accutane, supplemented him with Vitamin A 25,000iu for a few weeks, and he regained night vision completely. See link:
I like your thinking Walden. Vit A + Tudca doesn't seem like a bad protocol to try.
As far as the creatine goes, I tried it, for the same reason you are thinking, water retention, but ended up hurting my pancreas. My creatinine levels were already high as it is. I don't recommend creatine supplementation if your levels are already normal or high.
I'm a proponent of having loads of vit A rich foods like liver and cod liver oil but I have noticed recently that including more vit A in my diet does bring back accutane symptoms. It is possible that it's replacing the 13Cis retinoic acid (accutane) on the receptor sites with the real stuff. Perhaps this mobilizes the accutane in our bloodstream and causes symptoms. I think this can heal us though. Compare the process to chelating heavy metals. You'll get worse because of all the stuff being taken out of the tissues and circulating around our body but it's an effective strategy for getting a lot of it out.
Reminder #2: be sure to check out SHEICON2015 for a lot of useful information about healing the body. I think there may be a live stream happening. Perhaps follow DrBenLynch on Periscope.
@natchez No absolute cure so far. Detox your body as much as possible. Liver flushing and niacin flush sauna therapy are some of the most effective.
Get on a nutrient rich diet (foods that we evolved eating).
On 10/12/2015 at 11:18 AM, macleod said:On 10/12/2015 at 8:21 AM, Lucas89 said:On 10/12/2015 at 7:01 AM, macleod said:Go away.
Stop trying to tell Alan whether he can post here or not. You are not a moderator.
And then this guy. FYI Alan has posted some antagonistic comments towards a reputable pharmaceutical company just recently. Just scroll up Mr. Um, Lucas.
Helllll no. What the hell is a reputable pharmaceutical company?
Yes we all have the side effects. Welcome newcomers!There is no solution to any of them at this point. I suffer from accutane side effects and have seen great improvements from eating perfectly and also fasting in between.
Anyone who cares to talk about life instead of this hogwash synthetic supplimentation is welcome to give me a jingle!
[removed]
So I guess maybe not trying Accutane..
So they want to give this poison to my brother... He's 17, a great guy, very smart, full of energy. He plays basketball in a team and want to be a professional player. His dermatologist is the same woman tha ruined my life 8 years ago. What should I do? I can't watch him degenerate into the state I'm in. And no one fucking believes me. Its a bloody nightmare.
Can you help me with supplements, tips for dealing with this,is is typical? My shortness of breath is really worrying (I have yet another doctor's visit in a few days time).
Yeah I get shortness of breath too, usually seemingly without a cause, but more commonly right after eating. It also happens if I smoke too much cannabis (something I've been using strategically for motivation and creativity). This symptom has gotten better as I've balanced my health over the last year but it's not gone yet. I'm not sure specifically what the problem is but I know it got somewhat better (probably 10-20% when I added in a digestive enzyme that had ox bile in it. I remember reading something about the hormone cck and tachycardia, but it kinda went over my head and I haven't come back to it yet.
For my joints and that heavy feeling in my legs that makes it hard to wake up, grass fed collagen protein has done wonders. Vital protein and bulletproof collagen are probably the highest quality but I recently switched back to Great Lakes brand which is much cheaper and it's working well too. It's also high in glycine which according to semi recent posts on this thread, looks like it should help. I guess you can also drink bone broth for this benefit, but collagen is just more convenient for me. It also makes sense to have collagen regularly to balance out your amino acid profile. Too much methionine without glycine seems like a bad idea. The shooting pains in my arms went down as I balanced my system. As unscientific as it sounds, it's probably just "inflammation" and eating more of the right foods, less of the bad ones, sealing my gut a littler better, collagen, and fish oil all helped make different parts of my body feel less inflamed and over time the shooting pains pretty much stopped. My vision is still kinda blurry, and I'm wondering what to do for it. My friend swears by the bates method, basically eye yoga, for getting rid of his visual snow so I may try it.
For my stomach, some supps like zinc carnosine (pepzin gi), fish/krill oil, lactobacillus plantarum 299v, all had a noticeable impact (thought not massive), when I started them. Krill oil also makes me feel happy and improves my memory. Magnesium makes me feel level headed. Also I think it makes sense for everyone alive in 2015, not just Accutane victims, to balance the gut of its bacteria and do a low grade weeding and seeding basically killing stuff off and trying to replace it with better stuff. Seems to be working for me and a month in, this protocol has had the biggest benefit on my gut health.
I use unpasteurized packaged fermented foods regularly and lots of fiber rich carbs and a decent amount of high quality fat and protein. Keep it simple (read: stress free), junk food and toxin exposure is bad long term but probably necessary and beneficial every now and then, do what your grandparents probably did, get some morning sun, read, watch interviews, be a learner (in every field) reengineer your life to have genuine happiness and have small wins everywhere, and keep progressing in other places in life. Or at least that's how I deal with it...
Can you help me with supplements, tips for dealing with this,is is typical? My shortness of breath is really worrying (I have yet another doctor's visit in a few days time).
Yeah I get shortness of breath too, usually seemingly without a cause, but more commonly right after eating. It also happens if I smoke too much cannabis (something I've been using strategically for motivation and creativity). This symptom has gotten better as I've balanced my health over the last year but it's not gone yet. I'm not sure specifically what the problem is but I know it got somewhat better (probably 10-20% when I added in a digestive enzyme that had ox bile in it. I remember reading something about the hormone cck and tachycardia, but it kinda went over my head and I haven't come back to it yet.
For my joints and that heavy feeling in my legs that makes it hard to wake up, grass fed collagen protein has done wonders. Vital protein and bulletproof collagen are probably the highest quality but I recently switched back to Great Lakes brand which is much cheaper and it's working well too. It's also high in glycine which according to semi recent posts on this thread, looks like it should help. I guess you can also drink bone broth for this benefit, but collagen is just more convenient for me. It also makes sense to have collagen regularly to balance out your amino acid profile. Too much methionine without glycine seems like a bad idea. The shooting pains in my arms went down as I balanced my system. As unscientific as it sounds, it's probably just "inflammation" and eating more of the right foods, less of the bad ones, sealing my gut a littler better, collagen, and fish oil all helped make different parts of my body feel less inflamed and over time the shooting pains pretty much stopped. My vision is still kinda blurry, and I'm wondering what to do for it. My friend swears by the bates method, basically eye yoga, for getting rid of his visual snow so I may try it.
For my stomach, some supps like zinc carnosine (pepzin gi), fish/krill oil, lactobacillus plantarum 299v, all had a noticeable impact (thought not massive), when I started them. Krill oil also makes me feel happy and improves my memory. Magnesium makes me feel level headed. Also I think it makes sense for everyone alive in 2015, not just Accutane victims, to balance the gut of its bacteria and do a low grade weeding and seeding basically killing stuff off and trying to replace it with better stuff. Seems to be working for me and a month in, this protocol has had the biggest benefit on my gut health.
I use unpasteurized packaged fermented foods regularly and lots of fiber rich carbs and a decent amount of high quality fat and protein. Keep it simple (read: stress free), junk food and toxin exposure is bad long term but probably necessary and beneficial every now and then, do what your grandparents probably did, get some morning sun, read, watch interviews, be a learner (in every field) reengineer your life to have genuine happiness and have small wins everywhere, and keep progressing in other places in life. Or at least that's how I deal with it...
Thank you for getting back to me and all thetips.
I've changed my diet andscrapped the sugar (apart from fruit),caffeine, alcohol (well, most)and somewheat andeat lots of omega-3 rich and anit-inflammatory foods and lots of nuts and kefir.I'm limiting Vit A at the moment as it gives me red spot rush on my face.
I drink a 'tea' I make myself using ginger, turmeric,cinnamon and some cayenne pepperpowder (all anit-inflammatory and cheap) with lemon and xylitol (natural sweetener that's good for your teeth which helps with dry mouth's rampant tooth decay). I also drinklots of tulsi tea to relax and licorice(again, anit-inflammatory), rooibosand black tea for antioxidants. It's mad, all I eat is anti-inflammatory, full of antioxidants and 'good for me',but I still feel horrible.GIhas been fine for the last two weeks, probably due to the diet change.
- Do you find the probiotics essential? Is it good for your gut long term?
- Collagen wise, I've read somewhere it may damage your kidneys and liver if used long term. How long have you been using it for,what do you think? I'm going to try the bone broth, some people say it's the only thing that helps.
- As for magnesium, do you mix different magnesium supplements?I have here,amongothers :), magnesium taurate,magnesium glycinate and orotate, but I'm not sure how to alternate forbest results
Has anyone triedmalic acid? It sounds like we all have some form of Fibromyalgia and Sjogren's syndromejudging by the symptoms. They recommend magnesium and malic acid forFibromyalgia
I started feeling slightly nauseous, dizzy andunbalanced, not nice. I'm struggling to work and concentrate and yet being busy seems to be the best way to somehow get on with life and take your mind of what's happening with your body for a while.
P.S Has anyone been feelingnauseous, dizzy andunbalanced? What to do to address that?
for some reason I still have side effects 1 year later from accutane. i only took it for 1 month. does anyone think this is long enough time to have permanent effects?
Temporalchanges ingene expressionin the skin of acne patients after 1 week and 8 weeks of treatment withisotretinoin http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2835911/
Wow. This is crazy reading this. I am 35, have taken accutane at least 5-6 times since I was 16. Most recently 5-6 years ago just because I wanted to ensure I would not have a bad break out on my wedding! I never came across any information regarding long term side effects until today....but after reading this Ivan say that I literally have everything that was listed by different people posting.....everything! This is so depressing. Is there anything that has worked fir people to help with all of these symptoms?
Hello sir , what is your symptoms ? i think i can help you, sent a message to me please.
But i dont think theaccutane make a side effect comeback on body after sooo many years.. did you take Finasteride ? Propecia ? Proscar ? because all these drugs blocks 5-Ar enzyme which lowers the DHT hormone in body.. just like what accutane does.
for some reason I still have side effects 1 year later from accutane. i only took it for 1 month. does anyone think this is long enough time to have permanent effects?
Welcome.. first of allim really sorry for you , my life is destroyed because of Accutanei wish i never touched that poison ever in my life.
You should tell me the all side effects you fighting with right now , and how long did you use , dosage etc.
Maybe i can help you.
I took ro(accutane) years ago when I was 14/15 and I'm now 29.
I never had any problems, I use to skate and everything till I was given that stupid pill for my acne then everything went downhill from there.. about a month into taking ro(accutane) I ended up in hospital with osteomyelitis in my spine and couldn't walk for about a month, during my time in hospital accutane appeared on the news about causing joint problems and I immediately stopped taking them, since then I've been diagnosed with osteoarthritis but not only is it arthritis it's also migratory so it moves from one joint to another...
I haven't worked in almost 12 years and I feel like I'm in my 60s, I take 250mg noflam for pain everyday and 1 week worth of 20mg prednisone which I take every now and then when inflammation starts going out of control and the noflam is no longer working..
I'm a proponent of having loads of vit A rich foods like liver and cod liver oil but I have noticed recently that including more vit A in my diet does bring back accutane symptoms. It is possible that it's replacing the 13Cis retinoic acid (accutane) on the receptor sites with the real stuff. Perhaps this mobilizes the accutane in our bloodstream and causes symptoms. I think this can heal us though. Compare the process to chelating heavy metals. You'll get worse because of all the stuff being taken out of the tissues and circulating around our body but it's an effective strategy for getting a lot of it out.
Reminder #2: be sure to check out SHEICON2015 for a lot of useful information about healing the body. I think there may be a live stream happening. Perhaps follow DrBenLynch on Periscope.
@natchez No absolute cure so far. Detox your body as much as possible. Liver flushing and niacin flush sauna therapy are some of the most effective.
Get on a nutrient rich diet (foods that we evolved eating).
Same here.
The accutane symptons are back. Burning Lips and fatigue are the most prominent at this time. Today I had my first nosebleed again.
So the stuff is defenitely working again. Now we have to get it out of the system
Currently taking
- Tudca
- Cod Liver Oil
I was dubing wether I should take Retinyl Palmitate or COD liver oil, but the Retinyl palmitate made my brain fry and the COD actually did induce accutane symptons but helped my speech so I went for that one.
Also since taking Tudca I noticed my scent is better
Adding from this day on
- Additional Liver support with Dandelion and Milk Thistle and more herbs to support the liver and hopefully the energy to move this stuff.
- Coconut Oil, for the MCT (energy) and the Ketones
- Looking forhigh 20% CBD oil to repair some damage.
- Occasionally add some Zinc Gluconate before bed.
I will try this protocol for some months. I probably lose some additional hair due to the stress everything causes, having my lips cracked everyday and I will probably be a melacholic person. At this point I would rather take action and make a mistake then do nothing being the half the man I used to be.
Has anyone noticed right after wake up the lower half of the eyes are red/blooded. After I take a some deep breaths it goes away.
I feel I dont breathe normal when I sleep, my abdomen feel like they were tense the whole night.
Wald
for some reason I still have side effects 1 year later from accutane. i only took it for 1 month. does anyone think this is long enough time to have permanent effects?
I took 10mg per day for 1 months and am still suffering from the sides over 5 years later. Ithink with regards to theepigenetic changes the amount may almost beirrelevant - one pill could 'flick the switch' as such, then you've got persistent side effects. There is at least one person on this thread who has persistent sides from a single pill.