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Repairing the long-term damage from Accutane

 
MemberMember
359
(@dubya_b)

Posted : 11/24/2013 8:07 pm

Champ, you're right about us needing expert help to overcome the side-effects. We could probably get a few learned people to chime in with their opinions, but how much could they really help when even they don't know for sure what exactly the problem is?

People with long-term suffering caused by Accutane don't even exist as far as most are concerned.

As a group, we've been so quiet and complacent lately that we've nearly disappeared. Jesse Jones' father did a great service for us, but other than the documentary, how often do you hear a news story about Accutane in recent times?

So what can we really even do to get the help we need?

Four years ago I made the personal decision that living the remainder of my life like a soulless robot with a broken dipstick had no value, so I swore to relentlessly look for a way out or die trying. What happened? I did contact a few doctors and made a few honest attempts at contacting the media about the rare side-effects Accutane causes. Talked with many fellow sufferers on the forums, over the phone, and spread the word to nearly anyone within earshot.

Yet, the majority of that time was frivolously spent sitting on my ass like a lazy punk-fool googling hair-brained treatments with my fingers crossed that the next one would work, or that someone else would do the work of solving the puzzle.

It's pretty bad that I've come to the point of figuratively holding a gun to myself to make myself act on my own behalf, but that's what it has come to.

Everyone, ask yourself if you are making the same mistake.

As much as many of us would be tempted to show-up at the Swiss HQ with pitchforks and nooses like Guitarman suggested, how about we actually make some noise over the issue before jumping the gun?

A few of us have discussed taking concerted action regarding exposure to the media and medical community. Some have been discussing this for years now and haven't followed-through, myself included.

I'm just going to do it. Before the end of next April, I will have either stood in front of the FDA headquarters in Silver Springs, Maryland in protest of their refusal to acknowledge the entirety and persistency of isotretinoin's side-effects or push for research into the drug's method of action and potential link to those side-effects, or I will be dead.

We don't have the full story of how this drug did harm us, but what evidence is there that no causal link exists? Questionaires in Roche's old studies and other studies performed by those who have the most to lose if a correlation was shown?

It doesn't matter what exact mechanisms anyone thinks caused their symptoms. All of us here can agree that it began with Accutane, and we all have at least that much in common.

If anyone wishes to join in protest, then please PM me, or otherwise make it known.

Any differences of opinion in the past don't matter when it comes to this.

If no one else wants to come, I'll stand there my damned self. ...It will probably be raining that time of year anyway. surprised.gif

All of the time spent theory-crafting, arguing, and learning the history and science behind Accutane, I will now put into contacting others negatively affected by the drug, those who have lost loved-ones to it, or anyone who might have an interest in helping us. There is a pretty long list already.

Whatever, the outcome, I'm going to try to make this make a difference.

If you have spent years trying to overcome the condition this shit drug has left you in, and are convinced that you are one of the special ones who will beat the overwhelming odds against you by miraculous luck or by out-smarting everyone else who has tried with the limited knowledge we have, then good luck.

You should probably learn to be at peace with living that way for the sake of your sanity.

Hope to hear from many of you.

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0
(@Anonymous)

Posted : 11/24/2013 8:30 pm

Did someone analysed his vitamin E & vitamin A or retinol levels?

If it's the case and at low level it can mean that the drug is still in our system (simple theory, as accutane is converted inside the body, difficult to know). I believe that's why isotherapy work so well, it mobilize it like mercurius do with mercury poisoned people, or it induce/restart an healing process specific to accutane. But it's not a good idea if your body is too weak with a liver, kidney & lymphatic system congestioned, your body need to be able to detoxify it properly and/or start the healing process.

You here all focus on accutane, of course it's the main problem, but it can have enhanced the symptoms & toxicity of other drug you took before. Personnaly i took doxycyclin & minocyclin for 2years, who are at least half as poisonous as accutane. I felt a lot better after doing the isotherapy of both of them after accutane one.

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MemberMember
148
(@oli-girl)

Posted : 11/24/2013 9:37 pm

Quick question for everyone here. Had two blood tests done in the last 3 months; both times I tested for LOW alkaline phosphatase. Anyone experience this?

I did right after Accutane, I had it tested a few times I will have to relook those up tomorrow, but I do know that I also had a bone issue from Accutane and low iron and b12 ( in which I feel I developed pernicious anemia) Did any other tests come back abnormal?

  • Zinc deficiency.
  • Hypothyroidism.
  • Vitamin C deficiency/Scurvy.
  • Folic acid deficiency.
  • Excess Vitamin D intake.
  • Low phosphorus levels (hypophosphatasia)
  • Celiac disease.
  • Malnutrition with low protein assimilation (including low stomach acid production/hypochlorhydria).
  • Insufficient Parathyroid gland function.
  • Pernicious anemia
  • Vitamin B6 insufficiency

 

Did someone analysed his vitamin E & vitamin A or retinol levels?

If it's the case and that it was at low level it could mean that the drug is still in our system, who is the most probable explanation. I believe that's why isotherapy work so well, it mobilize it like mercurius do with mercury poisoned people. But it's not a good idea to do it if your body is too weak, it need to be able to detoxify it properly.

You here all focus on accutane, of course it's the main problem, but it can have enhanced the symptoms & toxicity of other drug you took before. Personnaly i took doxycyclin & minocyclin for 2years, who are at least half as poisonous as accutane. I felt a lot better after doing the isotherapy of both of them after accutane one.

Nope only took Accutane, outside of maybe a Tylenol here and there! By the way out of curiosity have you posted your diet etc. on France's Ragfourm and has there been discussion there? If I remember correctly you said you were French in your first post. http://avrg.unblog.fr/

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0
(@Anonymous)

Posted : 11/24/2013 10:52 pm

There was discussion but we were only two to talk about it there. I first found by myself that diet was working, liver & kidney flush, kombucha, artichoke, sunlight etc.. i just heard a little bit about isotherapy but i though at first it was a scam, so i didn't pay attention to it. I've saw on an english website that isotherapy was effective for people who lost their hair, but i didn't had hair loss so i didn't pay attention too.
Then i found a testimony about this isotherapy (who include diet too) that cured neurological symptoms and i decided to give it a try, while adding my personnal stuff to enhance it. That was how i cured my main symptom (neurologic), with diet, liver flush (mainly) & the last part with isotherapy + some herbs & liver detox. If someone wonder what this "symptom" was (maybe other people had that too from accutane, never heard of yet): [removed]

I "first" realized the power of diet here: [removed]
There are tons of testimony & stories like that.. http://www.naturalnews.com/043006_addiction_juicing_raw_food_diet.html
http://www.naturalnews.com/030150_diabetes_Americans.html
http://www.naturalnews.com/032962_hypothyroidism_natural_solutions.html
I'm not talking about something new you see.. there is a lot of people who cured themselves of any kind of disease with simply a good, regenerating diet.
The testimony: [removed] & [removed]

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0
(@Anonymous)

Posted : 11/24/2013 11:51 pm

http://www.ncbi.nlm.nih.gov/pubmed/12164942 If someone want to try it to verify the theory (that accutane still in our body). But no idea how to try that.

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MemberMember
1803
(@guitarman01)

Posted : 11/25/2013 2:08 am

I had a vitamin a blood test a few years ago. Came back normal. It's been said the only accurate measure of vitamin a status is from a liver biopsy. This is considered surgery that no Dr would ever perform without life threatening cause. I imagine there would be evidence of accutane in the liver too, if it lingered in some form. You would think the studies would already be out though if it remained in the liver. Maybe down the line I can donate mine to science when I hit the dirt. After we are all old and gray. God I can't imagine thinking about accutane when I'm like 70 lol. But for now hardly a day goes by where I'm not reminded of the side effects, and when I'm not, that's what a good day is for me now.

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0
(@Anonymous)

Posted : 11/25/2013 3:19 am

Problem is that accutane is transformed to all-trans retinoic acid in the body, and then can be transformed back to 13-cis-RA (accutane). So it's very hard to expell or very long and impossible to analyze. The body can handle & detoxify this poison in healthy condition, problem is we had acne, who mean that our body was already supercharged of toxins & acids, that our kidney wasn't able to filter all of that so our body used the skin to expell them.

We suppressed our skin ability to filter toxins (sebaceous glands), who is by the way the largest emunctory organ. So the main problem became this toxic/acid charge, not accutane. Accutane weakens the liver, kidney & destroy the intestine, who cause intestinal hyperpermeability & cause even more toxins from diet (& liver+bile) to enter/re-enter back to the bloodstream with no possibility to be expelled. Our intestine really get completely encrusted by "garbagge", acids, toxins, mucus, undigested starch, gluten (who form a glue-like mass), etc.. that poison the body and prevent absorption of nutrients, specially minerals (& prevent healing + detoxification). Congestion of the body by toxins & acids prevent cells nutrients absorption & regeneration too, even more if you eat nutrient empty + congestion-forming food. Our body was already in pain to expell those toxins, it will be hard to expell accutane too, he can't deal with all of this at the same time, and even if all accutane is eliminated, if the toxic charge remain inchanged and added everyday, the body won't recover/heal from accutane. We are big mineral deficient, minerals in cooked food (& supplements) are not bioavailable (inorganic) and can be poisonous in large dose. We need mineralizant, raw & alkaline food. Acidity deplete minerals.

After accutane, if your body is strong enough (have enough energy remaining, correlated with surrenals), it will bring back acne (the elimination process), but if the toxic charge + the accutane charge was too much, the body will not have enough energy to repair himself + start an elimination process, it will just try to survive and do his best, that's the worst situation. People who have acne back after accutane are lucky, it mean their system are strong enough and will require less time to recover (with proper diet change), it means the toxic charge wasn't too high. A 1month diet with only raw fruit+vegetables will be enough to eliminate the remaining acne & ~3 month for accutane symptoms with somes herbs & detox help.
For those who are too weak after accutane, our organism has such a low level of energy that diet alone is not enough, herb & other "cure" are essentials to help the detoxification & the reparation of the intestine, who is the main cause of both acne & accutane toxicity symptoms. It can take up to 1-2 years to be healed completely in this case, for some people.
When we permit our body to detoxify itself by stopping poisoning him, it will start the detoxification process and all of those toxins will be released but they need to be expelled, we need to help him at that moment, detoxification symptoms aren't that easy to handle, i believe thats why people go back to their sad diet who block this process to happen and then say it doesnt work, it happened to me at one time. It take month or even years to be completely healed.

Stop waiting for a magic pill to cure you, that will NEVER happen, there is no magic pill to permit you to have bad lifestyle habit without side effects & to magicly resorb acidosis, toxicity, bad cells environment and shutdown of your body's energy/battery.

"The body is composed of cells, alimented by blood & cleansed by lymph. Every cells needs are: to be alimented (nutrient & oxygen) and eliminate their waste. All cells are in a lymph-like fluid, if this fluid is full of waste (from diet & other sources), those cells cannot eat, function properly & eliminate their own waste (those waste are acids by nature)." So if you eat an acidic & toxic food with empty nutrients (cooked & refined), the body can't neutralize those acids (with alkaline organic minerals), and if you already have an huge toxic charge, it will have hard time to expell them properly, so it bring acne, joint problem, and others kind of diseases... You understand now what's the cause of all kind of "different" disease, the toxicity can be localized anywhere, there is no rule to say where a large excess of toxins which the body cannot handle should be (even if the body try to encapsulate them in fat when he can). Environment is EVERYTHING, cells in a good environment work perfectly fine, even if you try hard to induce epigenetic, genetic or whatever you want change, the body ALWAYS come back to homeostasis if we fix/restore the environment, no diseases can resist, cause any kind of alteration of epigenetic, cell function, etc.. are caused temporarly by a bad/toxic environment, they are not even "change", it's simply a temporarly dysfunction or an adaptation depending on the situation. What the cause of bad environment? excess of toxicity, acidity & the congestion of the organism + low battery/energy provided by the surrenals.

Note: As i understand it, low alkaline phosphatase mean you have an intestinal inflammation & malabsorption, like everyone who took accutane.

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MemberMember
44
(@nick-ryan)

Posted : 11/25/2013 10:29 am

Champ, you're right about us needing expert help to overcome the side-effects. We could probably get a few learned people to chime in with their opinions, but how much could they really help when even they don't know for sure what exactly the problem is?

People with long-term suffering caused by Accutane don't even exist as far as most are concerned.

As a group, we've been so quiet and complacent lately that we've nearly disappeared. Jesse Jones' father did a great service for us, but other than the documentary, how often do you hear a news story about Accutane in recent times?

So what can we really even do to get the help we need?

Four years ago I made the personal decision that living the remainder of my life like a soulless robot with a broken dipstick had no value, so I swore to relentlessly look for a way out or die trying. What happened? I did contact a few doctors and made a few honest attempts at contacting the media about the rare side-effects Accutane causes. Talked with many fellow sufferers on the forums, over the phone, and spread the word to nearly anyone within earshot.

Yet, the majority of that time was frivolously spent sitting on my ass like a lazy punk-fool googling hair-brained treatments with my fingers crossed that the next one would work, or that someone else would do the work of solving the puzzle.

It's pretty bad that I've come to the point of figuratively holding a gun to myself to make myself act on my own behalf, but that's what it has come to.

Everyone, ask yourself if you are making the same mistake.

As much as many of us would be tempted to show-up at the Swiss HQ with pitchforks and nooses like Guitarman suggested, how about we actually make some noise over the issue before jumping the gun?

A few of us have discussed taking concerted action regarding exposure to the media and medical community. Some have been discussing this for years now and haven't followed-through, myself included.

I'm just going to do it. Before the end of next April, I will have either stood in front of the FDA headquarters in Silver Springs, Maryland in protest of their refusal to acknowledge the entirety and persistency of isotretinoin's side-effects or push for research into the drug's method of action and potential link to those side-effects, or I will be dead.

We don't have the full story of how this drug did harm us, but what evidence is there that no causal link exists? Questionaires in Roche's old studies and other studies performed by those who have the most to lose if a correlation was shown?

It doesn't matter what exact mechanisms anyone thinks caused their symptoms. All of us here can agree that it began with Accutane, and we all have at least that much in common.

If anyone wishes to join in protest, then please PM me, or otherwise make it known.

Any differences of opinion in the past don't matter when it comes to this.

If no one else wants to come, I'll stand there my damned self. ...It will probably be raining that time of year anyway. surprised.gif

All of the time spent theory-crafting, arguing, and learning the history and science behind Accutane, I will now put into contacting others negatively affected by the drug, those who have lost loved-ones to it, or anyone who might have an interest in helping us. There is a pretty long list already.

Whatever, the outcome, I'm going to try to make this make a difference.

If you have spent years trying to overcome the condition this shit drug has left you in, and are convinced that you are one of the special ones who will beat the overwhelming odds against you by miraculous luck or by out-smarting everyone else who has tried with the limited knowledge we have, then good luck.

You should probably learn to be at peace with living that way for the sake of your sanity.

Hope to hear from many of you.

Getting very tired of this forum.

The most any of you have rallied seems to be to form a group /against/ an epigentic explanation and your reasoning? Because we can't prove it. As far as I know, NOTHING has been provable here. Not one thing that someone has recommended in this entire forum can be PROVEN to work for EVERYONE. The only thing we've ever had here is anecdotal evidence; someone who did something that worked for them and that doesn't work for others because of the same reason some are affected by Accutane and others aren't- genetics.

Then someone like Dubya pushes to do something to gather attention to the cause by experts because he actually agrees we can't prove anything.. And no one even responds lol

So you're going to sit here and continue to debate half-baked theories through Googling and anecdotal exercises recommended by others here that people have already found to not work for them. Don't get me wrong, I want you all to be healthy and happy; however, look how many pages and posts this forum comprises- it's time to get real; we are not getting anywhere. Diet is the only thing I can suggest until a real cure comes out after experts have found the method of action.

Dubya- I don't know that I can stand outside a building in another state with you, but if there's anything else I can do please let me know.

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26
(@maynerd)

Posted : 11/25/2013 3:52 pm

Hello everybody,

I wanted to post about my results of doing the master cleanse for 12 days.

I did the master cleanse by the book with the exception of still taking my glandulars for multiple body parts. The cleanse is easy enough because you don't get hungry at all but the worst parts for me were: 1.) having to make so many drinks per day because I squeezed the lemons by hand. 2.) Also, the sea salt water flushing water was awful to choke down but I think I was putting too much salt in them... I have been off the fast for a month now and I believe the salt water flushes are good for you so I it once a week in the morning.

The cleanse underscored the implications of our gallbladder/liver in all this because before the fast I had a bloated upper stomach and 2 days into the fast my stomach started churning a lot and by day 3 the upper stomach bloat was gone. I was hoping that this would lead to better bile flow post fast but alas, this is still a problem.

Note: d-limonene has been shown to help with gallstone solubization.

I have noticed improvements in skin softness on certain parts of my body but other parts remained just as dry.

My hair has been softer ever since.

That is about it.

I had a lot of energy while on the cleanse, I felt really good; euphoric at times.

I have been toying around with the idea of doing it for 30 days, this time I would take a few drops of lemon essential oil too... I've heard that taking supplements voids a lot of the benefits but I just get so much benefit out of my supplements, I just don't know.

Regardless of future Master Cleanses, soon I am going to do a coffee enema in hopes to stimulate my liver. I've been reading about people having great results on these and the only bad stories come from people who do them too much.

Any of you tried coffee enemas? They sound like they could really help us kick our liver back into gear.

Oh also, I noticed a decrease in under arm odor during and after the master cleanse.

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0
(@Anonymous)

Posted : 11/25/2013 5:43 pm

We don't need to know the exact mechanism of effect of accutane, we know enough to understand how it work and how to heal ourselves, that's the more important. People who say diet, detoxification cure, healing of the intestine, etc.. doesn't work is because they have done something wrong, they didn't do it long enough or they forgot something (like repairing their intestine, the most difficult thing to do, the main cause of toxicity of both acne and accutane poisoning, it's not because you doesn't feel bad in the area that it's all ok, psychic & other symptoms of accutane came first from intestinal toxicity & damage). It takes month for some even years, it's not because it doens't show results in 2 - 3 month or even 1 years that it doesn't work, of course if after 1 month you go back to eating pasta, pizza, 1+kg of meat per week & soda's you won't recover (even if it's only one time per week, it's enough to block the detoxification & elimination process) . It's a completely shutdown & toxicity of our entire system that we need to heal, not just an accutane poisoning.

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MemberMember
359
(@dubya_b)

Posted : 11/25/2013 10:29 pm

Thanks Nick!

Every so often I'll update here and/or on ATM about how things are going.

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MemberMember
39
(@mes6890)

Posted : 11/26/2013 3:30 am

A protest would be fantastic. I work five days a week and have missed more time than I'd planned on thanks to all of these Accutane-related issues, but, I believe I could take two days off to be there.

Ah, let's call up Dr. David Graham, see if he'll come outside. Ha!

http://www.cbsnews.com/news/fda-harsh-criticism-from-within/

Just a handful (like five) of people protested Propecia (finasteride) outside of Merck's headquarters, and it generated media attention.

I was thinking the other day, you all - there are several talking points to this narrative. Of course, "remove Accutane from the market" is the main point.

But, without detracting from that main message, the point can also be made that what is missing from conversations about Accutane is indignation that acne treatment is so abysmal in the U.S. This drug came out what, thirty years ago? And our main lines of defense against severe acne in 2013 are long-term courses of antibiotics and a chemotherapy drug. And dermatologists appear to see no problem with that. It's truly sad.

There seems to be this misconception that anti-Accutane folks just don't "get" how serious acne is, and that divides us sometimes. Oh well. But I still remember what a nightmare my skin was. It doesn't compare to the nightmares caused by Accutane, but acne is a huge deal too and none of us would be here if we'd had safer and more effective treatments.

But this remains the go-to, and the point that dermatologists have the power to do tremendous harm cannot be lost, either. Accutane victims know their truths and know that this statement is true.

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MemberMember
66
(@jtm88)

Posted : 11/26/2013 8:18 pm

Oil Girl,

All other tests came back normal. The main thing out of whack is the low alkaline phosphatase. Some of the symptoms I have are:

Joint issues.

Coldness in my new joints. Def affected my circulation

Digestion issues

Bubbles in Urine. Two different urine analysis came back normal. Gonna do another one to test for Ammonia.

Dry/inflammation of eyes

 

Quick question for everyone here. Had two blood tests done in the last 3 months; both times I tested for LOW alkaline phosphatase. Anyone experience this?

I did right after Accutane, I had it tested a few times I will have to relook those up tomorrow, but I do know that I also had a bone issue from Accutane and low iron and b12 ( in which I feel I developed pernicious anemia) Did any other tests come back abnormal?

  • Zinc deficiency.
  • Hypothyroidism.
  • Vitamin C deficiency/Scurvy.
  • Folic acid deficiency.
  • Excess Vitamin D intake.
  • Low phosphorus levels (hypophosphatasia)
  • Celiac disease.
  • Malnutrition with low protein assimilation (including low stomach acid production/hypochlorhydria).
  • Insufficient Parathyroid gland function.
  • Pernicious anemia
  • Vitamin B6 insufficiency

>Did someone analysed his vitamin E & vitamin A or retinol levels?

If it's the case and that it was at low level it could mean that the drug is still in our system, who is the most probable explanation. I believe that's why isotherapy work so well, it mobilize it like mercurius do with mercury poisoned people. But it's not a good idea to do it if your body is too weak, it need to be able to detoxify it properly.
You here all focus on accutane, of course it's the main problem, but it can have enhanced the symptoms & toxicity of other drug you took before. Personnaly i took doxycyclin & minocyclin for 2years, who are at least half as poisonous as accutane. I felt a lot better after doing the isotherapy of both of them after accutane one.

Nope only took Accutane, outside of maybe a Tylenol here and there! By the way out of curiosity have you posted your diet etc. on France's Ragfourm and has there been discussion there? If I remember correctly you said you were French in your first post. http://avrg.unblog.fr/

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MemberMember
359
(@dubya_b)

Posted : 11/27/2013 1:32 am

Dr. David Healy of the RxISK organization has specifically asked for anyone suffering from sexual dysfunction of any type suspected to be caused by Accutane to please report their side effects on his organizations reporting system:

https://www.rxisk.org/Explore-Side-Effects/About.aspx?nc=635211295438447432

Of course, anyone is more than welcome to report other Accutane side-effects there.

It only takes about 15 minutes if you are only reporting one side effect.

This is an international and independent reporting agency for YOUR benefit.

Don't waste it!

They cannot help people who's side effects are nothing more than fairy-tales because they refuse to report them.

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153
(@crank92)

Posted : 11/27/2013 7:02 am

So I already feel I know many of you. I've scoured this page and others, propecia help, allthingsmale etc etc.
So Dubya_B I know you're big time on this because I see you everywhere. I skipped ahead from page 36, but back then IndigoRush and the like also seemed like big players.

Quick bio,

10 days accutane, 20mg once per day last year in November. Got horrendous case of diarrhoea (worst of my life - 43 loo trips in 24 hours, I counted. This continued for about 5 days before I gave in and took some anti-diarrhoea tabs), stopped 'tane on day 10. Severe case of 'dead behind the eyes' appeared soon after, then severe sexual dysfunction from January 2013. I've managed to provide symptomatic relief of diarrhea through the 'Specific Carbohydrate Diet' which is intended for people with Chrons disease, Ulcerative Colitis or anti-biotic induced diarrhoea. If I follow this strictly I'm completely regular and now after some time my tolerance for other foods is improving. However, caffeine and spicy foods two of my great loves are still way out of bounds unless I fancy.. nah I'll pass on the details.

My emotional blunting as well is improving since about June/July 2013, I noticed this improved after I started 'No PMO' i.e No Porn, Masturbation, Orgasm as pre-'tane I was a daily fapper and apparently this can induce emotional deadening and also ED. However, I've done that for a little over 6 months now and no improvement (or very little) on the ED. Interesting note on the ED/SD I had a brief 'high' after 'tane by that I mean about 2 weeks after I met up with a girl I was seeing at the time and she came to stay over 3 consecutive nights. We went at it 19 x over 3 nights good stamina on each. Now if I can manage once for over 30 seconds that's an achievement. This kind of follows the propecia timeline of a recovery and a complete crash.

'IF' I can sort the ED/sexual dysfunction, then I'd consider myself recovered. However, at the moment I am way way way off. I am going to see some specialist who I'm aware will tell me it's all in my head (I've braced myself for this so I don't feel like ripping his head off and sh*tting down his throat), but looking to see if some cialis/viagra can help. As with my girlfriend I can still get it up but for only like 10 seconds at a time.

My next attempt at recovery is with a long fast. Dubya know you failed with this already, but you gotta keep hope or as you say you go crazy. (Also side note I tried to message you but it won't let me?) Some people have had success with it, that's enough motivation for me. However, being super keen athlete I hover around 6% bodyfat, for those that aren't jocks that's very visible abs without tensing - but hey before you think I'm boasting - MY DICK DOES NOT WORK. Anyway this means a fast is gonna be pretty tricky to do for any length of time. Side note anyone heard of the fact that apparently low body fat people are more susceptible to the side effects of accutane due to it being fat soluble and therefore more is stored in the brain of lean people as the brain is composed of fats. FML.

Well that's the most open I've been with anyone let alone the internet in my life.

Any questions just ask. And if anyone tells me 'it's in your head' please youtube 'Liam Neeson Will Find You'.

Peace out!

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MemberMember
153
(@crank92)

Posted : 11/27/2013 8:07 am

C'mon mod hurry up and approve my posts! Who is the mod anyway? (out of curiosity)

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MemberMember
359
(@dubya_b)

Posted : 11/27/2013 5:35 pm

Hmm. That's interesting Crank. I was in a manic state and felt unnaturally horny several times during the few weeks between quitting Accutane and crashing. Most people who took Accutane don't seem to have this temporary recovery preceding a crash.

Thanks for posting your story.

BTW- IndigoRush was a big player in this. He agreed to show his face on a nationally broadcast program and discuss some embarrassing problems this drug can cause.

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0
(@Anonymous)

Posted : 11/27/2013 10:19 pm

Libido problem is just tired surrenals & nervous system by global acidity/toxicity & lack of nutrients absorption (cause the cells environment is too congestioned), nothing to do with accutane (but caused by it). It can be an excess of acidity/toxicity localized in the penis too. Since i cured myself from "accutane" my libido increased but the main thing is the sensation/pleasure in that area, who are 10 times stronger than before. Before i had orgasm but with no sensation, i feeled my penis in a strange cold/void area. Thing i noticed too is the structure of the penis, who is more "compact", don't know how to explain it. I put everyday castor oil on my penis & testicule, i find it very very helpful, this oil as an ability to stimulate the immune system & starting a detoxifying process very quickly. I saw it since after my first 3days of application i had my testicule skin who fell, typicaly a detoxification reaction (castor oil is just an oil, nothing irritant who can "kill" the skin directly). My libido & sensation increased even more after doing this. Jelq exercise seems to help detoxification + enhancing the structure too. But it's not magical, if you don't fix your general toxicity, your surrenals + nervous system will still be weakened and you won't have so much improve.

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148
(@oli-girl)

Posted : 11/27/2013 11:11 pm

Dubya - Thanks for all you do! I will pm you after the Holiday on a few things!

To all of you have a wonderful Turkey Day tomorrow! Even if you don't celebrate and unfortunate circumstances have brought us together I am grateful to have you all in life tongue.png

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359
(@dubya_b)

Posted : 11/29/2013 1:49 pm

Incredible summary discussing most of the studies involving isotretinoin's suspected link to psychiatric symptoms:

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2637283/pdf/1744-859X-8-2.pdf

The evidence described in this review strongly suggests a link between the use of isotretinoin and psychopathology. There is a great number of reports that support this association. Interestingly, isotretinoin is the only non-psychotropic drug in the FDA's top 10 list of drugs associated with depression. By contrast, the absence of double-blind, placebo-controlled studies, some flaws in the methodology of the current literature and some contradicting results in the studies of animal models seem to be the major reasons for the lack of an established causal link between isotretinoin use and psychiatric symptoms. However, given all the evidence, the association between isotretinoin use and psychopathology seems most likely to be justified.

Thanks to Darran for finding this.

Hmm. I wonder if the authors would consider letting their kids touch this drug. I doubt it.

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Accutainted, mes6890, Gladiatoro and 9 people reacted
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39
(@mes6890)

Posted : 11/30/2013 7:22 pm

Hi all -

This is one of the more out there side effects, but a cursory Google search will tell you I'm not the only one... Did Accutane mess with your teeth, anyone? I used to have very white teeth, and they are not so white anymore. It's un be liev a ble. Whitestrips and swishing with coconut oil is not helping, and those were always my go-to methods. I could just scream...

Any advice is welcome.

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0
(@Anonymous)

Posted : 12/01/2013 7:04 am

teeth problems are related to bad digestive system & acidity. teeth can be used as a mineral reserve by the body, same for hair. lack of vitamin d affect the teeth too but its more about cavities.
http://isupportorganic.blogspot.com/2013/11/use-this-herb-to-naturally-whiten-teeth.html
http://www.ehow.com/how_4807031_whiten-teeth-banana-peel.html

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MemberMember
153
(@crank92)

Posted : 12/01/2013 2:50 pm

Hi all -

This is one of the more out there side effects, but a cursory Google search will tell you I'm not the only one... Did Accutane mess with your teeth, anyone? I used to have very white teeth, and they are not so white anymore. It's un be liev a ble. Whitestrips and swishing with coconut oil is not helping, and those were always my go-to methods. I could just scream...

Any advice is welcome.

 

Seems 'tane knows no bounds.

 

I'll pitch in with the little I know about dental hygeine. I'm afraid like everyone else here are can't give you a direct cure to all the issues Roche have inflicted upon the masses. However, the usual tips I see are as follows (yes you will have heard of some if not all of them, but hey I'm trying);

 

i) Less sugars - whether it be cans of coke, or fruit

ii) Obviously some fruit is good, but try and avoid the more acidic ones. Acidity and sugar = bad combo.

iii) Less red wine, less coffee

iv) Don't brush your teeth within 20 minutes of eating sugary food - more likely to spread it around your teeth than remove it. Saliva does the job of removing sugar, not the toothpaste.

v) If you do eat something sugary, drink water immediately afterwards to rinse the mouth somewhat of the sugar. Rather than letting the bacteria thrive.

vi) Make sure calcium and Vit D levels are adequate.

vii) Don't go crazy on brushing your teeth 9 times a day, you'll most likely just cause gum recession.

 

That's off the top of my head. Same old info but hopefully one of those is something you hadn't heard.

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MemberMember
39
(@mes6890)

Posted : 12/01/2013 4:54 pm

teeth problems are related to bad digestive system & acidity. teeth can be used as a mineral reserve by the body, same for hair. lack of vitamin d affect the teeth too but its more about cavities.

http://isupportorganic.blogspot.com/2013/11/use-this-herb-to-naturally-whiten-teeth.html

http://www.ehow.com/how_4807031_whiten-teeth-banana-peel.html

When you obtain a degree in naturopathy and learn not to state your opinions as facts, let's talk. I know that's snarky, but I can't be the only one thinking it.

 

 

Hi all -

This is one of the more out there side effects, but a cursory Google search will tell you I'm not the only one... Did Accutane mess with your teeth, anyone? I used to have very white teeth, and they are not so white anymore. It's un be liev a ble. Whitestrips and swishing with coconut oil is not helping, and those were always my go-to methods. I could just scream...

Any advice is welcome.

 

Seems 'tane knows no bounds.

 

I'll pitch in with the little I know about dental hygeine. I'm afraid like everyone else here are can't give you a direct cure to all the issues Roche have inflicted upon the masses. However, the usual tips I see are as follows (yes you will have heard of some if not all of them, but hey I'm trying);

 

i) Less sugars - whether it be cans of coke, or fruit

ii) Obviously some fruit is good, but try and avoid the more acidic ones. Acidity and sugar = bad combo.

iii) Less red wine, less coffee

iv) Don't brush your teeth within 20 minutes of eating sugary food - more likely to spread it around your teeth than remove it. Saliva does the job of removing sugar, not the toothpaste.

v) If you do eat something sugary, drink water immediately afterwards to rinse the mouth somewhat of the sugar. Rather than letting the bacteria thrive.

vi) Make sure calcium and Vit D levels are adequate.

vii) Don't go crazy on brushing your teeth 9 times a day, you'll most likely just cause gum recession.

 

That's off the top of my head. Same old info but hopefully one of those is something you hadn't heard.

Those are good tips. I should be clear, my teeth still look nice, but it took some of the whiteness away. No question about it.

Amazing to see you've had such problems with 10 pills. Again, I only took 5. They (derms and tane proponents on this website) say it's "safe" as long as you take it under the "close supervision of your dermatologist." Who goes to the doctor after five or ten days of being on something? The doctor can't change the fact that after five days, it was too late for me. That line of defense needs to be reexamined.

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(@Anonymous)

Posted : 12/02/2013 3:54 am

Narutopathy? XDD I'm just saying facts that everybody knows. You don't need to have a degree to read books & informations from doctors, and to have your own experience, i'm just telling how things truely work, it's not something "alternative", it's simply how our human physiology work, no one can contest it, it's in official medicine books. I can't believe that i'm trying to help people who insult you back for it, it's kinda pathetic.

It's sad, people here accuse accutane for all of their trouble (even if it "magnified" existing problems its true) but do nothing to heal themselves. You say diet, isotherapy, herbs, detox cure, etc.. doesn't work, but you LIE, 100%, you don't even know what's a good diet, you didn't even do 10% of what is required and you give up after 2month. Typically american, i don't even know why i'm trying to help you (i say that for specific people here). You are a poison to yourself and don't even realize it.

Apparently you don't need infos to how to overcome accutane & other conditions, infos who already cured thousands of people afflicted by many different conditions (a lot more deadly than ours). Continue to wait an other magic pill to save you, you brilliant people (here again, specific).

I'm leaving this "doomed" place, bye and have fun in your lamentations. For those who have a brain, you should stay away from here, those people will bring you nothing but more despair & deception. Everything is up to you, accutane is not a big deal when you know what to do (can see my previous posts to understand), i'm far from being the only one who is now cured from it, and i can tell that i never heard about someone with more severe symptoms as me.

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