Notifications
Clear all

Repairing the long-term damage from Accutane

 
MemberMember
78
(@movingon)

Posted : 07/26/2013 8:48 am

I'm glad Blue Ice has helped you and thanks for the info...but I am completely vitamin a intolerant no matter what form. I'd be careful but i hope it continues to work for you.

Quote
Gladiatoro, JosephBuchignani, Gladiatoro and 3 people reacted
MemberMember
91
(@josephbuchignani)

Posted : 07/26/2013 10:19 am

That's interesting and corroborates what Chico says. You guys should compare notes.

Can you elaborate on how you're sure that vit A slays you?

I guess we all just have idiosyncratic things we have to avoid. Very obnoxious from a community cure together info pooling standpoint. Where's the fucking central line of attack, dammit.

If it's just massive individual self tracking and experimentation combined with heavy intelligent reading, that's disappointing, but I can accept.

Quote
MemberMember
85
(@and1)

Posted : 07/26/2013 11:36 am

That's interesting and corroborates what Chico says. You guys should compare notes.

Can you elaborate on how you're sure that vit A slays you?

I guess we all just have idiosyncratic things we have to avoid. Very obnoxious from a community cure together info pooling standpoint. Where's the fucking central line of attack, dammit.

If it's just massive individual self tracking and experimentation combined with heavy intelligent reading, that's disappointing, but I can accept.

People react very differently that is one reason why conventional modern medicine does more harm than good. I am lucky to be on your team, pretty much everything that works for you works for me.

Assuming it also works the other way you should try high dose 80% Silymarin, works great for me. Take about 2-3g daily spread throughout the day. My body weight is around 185 pounds, so you can adjust your dose accordingly. Be careful to get a good Silymarin supplement. Currently I am taking the one from bulkpowders, but for instance still have half a bottle from Now Foods in my closet and it does not work at all, gives me nothing but headaches. Silymarin is part of the Curing Courtney protocol, which I am trying to fully implement over time. In the book they recommend Silymarin from Biotech Pharmacal.

Quote
MemberMember
148
(@oli-girl)

Posted : 07/26/2013 4:36 pm

I have said it a million times I can't ingest vit A enriched foods/ carrots and broccoli slay me and that's beta! There's quite a few suffers old and new who had those issues! Then there's some who don't! Be careful though the true test will be after a few months! Good luck Joseph

Quote
timatron, MovingOn, timatron and 3 people reacted
MemberMember
223
(@gladiatoro)
MemberMember
78
(@movingon)

Posted : 07/26/2013 7:55 pm

yah I just remember from reading Patti Lodes story that she seriously harmed herself more from the cod liver oil, so just be careful and go slowly. you guys should really look into iodine tho! cant say enough good about it. if you have gut issues MAKE SURE to take a good probiotic or you aren't helping anything. until there is goo bacteria down there, everything else is a waste in terms of what you put in your body. this is something ive observed. others may be different.

*good haha

Quote
MemberMember
223
(@gladiatoro)

Posted : 07/27/2013 12:16 am

A study reported in Phytomedicne investigated the comparative effects of carvacrol in the liver of rats subjected to restricted blood supply and the

restoration of blood flow to the organs and tissues following a period of time. They found that carvacrol ws able to protect the liver against defects

caused by the event. They also found carvacrol to be non-hepatotoxic at the applied doses.

Learn more: [Edited link out]

Quote
MemberMember
3
(@clancybenjamin)

Posted : 07/27/2013 1:54 am

Hey all,

Just came across this forum a few days ago after feeling like hell for the last year or so... no explenation or disorders found after 40+ trips to the doctors etc. Now i'm convinced that this is all stemming from a course on our favorite drug Accutane. 3 weeks in and I woke up in the middle of the night with extreme vertigo and nausea which sent me to the ER. Now i'm left with constant nausea, dizziness, blurred vision, fatigue, nagging muscle and joint pains (particularly lower back, neck, knees), etc.

There are a few symptoms however that have me baffled and im wondering if any of you have experienced them.

1. Weird fatigue that moves and comes out of nowhere- For example I will be sitting around and all of a sudden my tongue becomes pained and fatigued (almost like it just ran a marathon) and then the feeling moves into my jaw etc. Particularly annoying is when this is sitting in my neck or under my jaw. There is a tightness that is so damned annoying when it happens.

2. Sometimes I wake up and my neck and spine have this wierd "hollow" feeling (not sure how else to explain it).

3. My throat is usually sore to varying degrees but some days I wake up with this strange taste in my mouth (almost metallic)

4. Every single one of these symptoms comes and goes in waves with no explenation or trigger that I have been able to find. Do your symptoms come and go as well?

I've lost about 30 lbs in the last year because ive been playing with my diet so much trying to find out if there are trigger foods etc. (its obvious my digestive system was hit) the fatigue and weakness also kept me out of the gym. FYI this isnt good as I was thin to begin with... 6'2 and fell from 178 to about 150.

I've been on a Palio diet for the last couple of months and im going to try the Iodine soon... nothing else I have tried has done a damn thing. Also, after gastro, neuro, rhumy, hemo, ent, and psych, I am finally seeing an Endocrinologist in a few weeks. I am going to request a FULL workup on my homone levels etc. There is no way that every test can keep coming back normal. Doc's are literally all starting to tell me this shit is in my head... the irony is that I am a pre-med student.

Anyhow, if any of you have these same wierd symptoms can you give a shout out?

Thanks guys (an gals)

Clancybenjamin

Quote
goosnargh, JosephBuchignani, and1 and 6 people reacted
MemberMember
85
(@and1)

Posted : 07/27/2013 3:36 am

Hey all,

Just came across this forum a few days ago after feeling like hell for the last year or so... no explenation or disorders found after 40+ trips to the doctors etc. Now i'm convinced that this is all stemming from a course on our favorite drug Accutane. 3 weeks in and I woke up in the middle of the night with extreme vertigo and nausea which sent me to the ER. Now i'm left with constant nausea, dizziness, blurred vision, fatigue, nagging muscle and joint pains (particularly lower back, neck, knees), etc.

There are a few symptoms however that have me baffled and im wondering if any of you have experienced them.

1. Weird fatigue that moves and comes out of nowhere- For example I will be sitting around and all of a sudden my tongue becomes pained and fatigued (almost like it just ran a marathon) and then the feeling moves into my jaw etc. Particularly annoying is when this is sitting in my neck or under my jaw. There is a tightness that is so damned annoying when it happens.

2. Sometimes I wake up and my neck and spine have this wierd "hollow" feeling (not sure how else to explain it).

3. My throat is usually sore to varying degrees but some days I wake up with this strange taste in my mouth (almost metallic)

4. Every single one of these symptoms comes and goes in waves with no explenation or trigger that I have been able to find. Do your symptoms come and go as well?

I've lost about 30 lbs in the last year because ive been playing with my diet so much trying to find out if there are trigger foods etc. (its obvious my digestive system was hit) the fatigue and weakness also kept me out of the gym. FYI this isnt good as I was thin to begin with... 6'2 and fell from 178 to about 150.

I've been on a Palio diet for the last couple of months and im going to try the Iodine soon... nothing else I have tried has done a damn thing. Also, after gastro, neuro, rhumy, hemo, ent, and psych, I am finally seeing an Endocrinologist in a few weeks. I am going to request a FULL workup on my homone levels etc. There is no way that every test can keep coming back normal. Doc's are literally all starting to tell me this shit is in my head... the irony is that I am a pre-med student.

Anyhow, if any of you have these same wierd symptoms can you give a shout out?

Thanks guys (an gals)

Clancybenjamin

Welcome on board. All these years I was waiting to come across a tane vicitim who is actually from the field of medicine. My expectations are high.

I am also interested in iodine, if you know anything worth sharing please share it with us.

Quote
MemberMember
223
(@gladiatoro)

Posted : 07/27/2013 8:12 pm

Accutane = Chemotherapy on a related note , polls were taken by accomplished scientists at the McGill Cancer Center from 118 doctors who are

all experts on cancer. They asked the doctors to imagine they had cancer and to choose from six different 'experimental' therapies. These doctors

not only denied chemo choices, but they said they wouldn't allow their family members to go through the process either! YET they hand it out like

candy to teenagers and young adults , a wonderful orthodox medical system we have , yes I`m being sarcastic . On a postive note we may never

get cancer because of this `` CHEMO `` drug , one always has to look at the bright side of the picture. (=

Quote
timatron, sasquire, JosephBuchignani and 6 people reacted
MemberMember
223
(@gladiatoro)

Posted : 07/28/2013 11:46 am

The FDA ( Federal Death Administration) just want to borrow a fraction of that intelligence from an herb and claim it as their own chemical version,

side effect riddled , patent it and then slander the original creator, very typical thief and cheat. Later when the patients die they claim , this is heroic

medicine and we did everything we could , using the best science we had , gad they are creepy! Let's all hope that they are stupid enough to

follow their own advice and take plenty of their own chemical drugs or miracle of miracles finally wake-up!

The future of medicine does not involve foolishly bombarding the body with toxic synthetic chemical drug , but lies in nutrition and exercise.

Quote
and1, and1 and and1 reacted
MemberMember
223
(@gladiatoro)

Posted : 07/28/2013 3:48 pm

This article is really good and goes into detail about primitive tribes around the world and there LACK of health problems. Worth the read.

[Edited link out]

Quote
MemberMember
143
(@indigorush)

Posted : 07/29/2013 4:33 am

It's been a while...

I got an email through here, so thought I'd check in and say Hello while I was here.

How's it all going?

I don't have time to back-track through the last dozen or so pages of this forum...

Has anyone made any progress?

What's the current plan of action?

Stefan

Quote
MemberMember
148
(@oli-girl)

Posted : 07/29/2013 9:20 am

Indigo- how are you doing?

Quote
MemberMember
78
(@movingon)

Posted : 07/29/2013 11:37 am

Welcome back Indigo!

Quote
MemberMember
143
(@indigorush)

Posted : 07/29/2013 4:46 pm

Thank you...

I'm not sure I'll be spending much time chattin', but it's nice to see how you're all doing.

I hope you are well.

While I've made some good progress personally, with facing fear and being less obsessed with Accutane, unfortunately I can't shout 'I'm cured'.

My health issues are still there, and they do still get to me... sometimes a lot.

I guess I've learned a few things though...

My advice: Don't bother with ANY supplements. Such a waste of money and they only ever led to me feeling more frustrated because they did fuck all.

I still try to eat well and make an effort to avoid too much junk.

Main issues for me are still waking up like a bag of hungover crap, despite not consuming alcohol.

I seem to have vertigo and dizziness a lot of the time.

The dry eyes and dry mouth and a pain in the butt, also.

I don't even bother with eye-drops anymore.

Balancing blood sugar levels seems to be important, because anything too high in sugar tends to wipe me out and leave me exhausted.

Due to start a new job next week, so will be earning full-time wages again.

I'll probably start spending a bit more money on real, good food.

But yeah, I won't be wasting it on pills.

I got a juicer last year and haven't used it in months.

The problem I have is, I've read so many books and online articles... there's so much conflicting evidence.

I always find myself thinking twice before eating.

'Are eggs good or bad?' I ask myself.

'I have bread every day. What if this is stopping my digestive system from healing...' blah blah.

I still vlog on YouTube (www.youtube.com/fireyourdoctor) if you want to follow my progress, but I don't talk about Accutane or health as much these days.

The other day I was sent a newspaper story about someone who killed themselves 9 days after the BBC3 documentary aired.

They'd taken Accutane 10 years ago and ended up suffocating themselves because of the side effects.

That put me in a depressed state for a while.

Reading anything like that will, so don't go looking for information like that.

Anyway,

That's a little update for you

x

Quote
MovingOn, oli girl, MovingOn and 3 people reacted
MemberMember
3
(@mahweeoh)

Posted : 07/29/2013 6:27 pm

Is there any way some of you can post your labs? Or just give me the ranges on what you've had done? What is considered "normal" is not always normal.

Edit: By the way I'm on week one or so on cod liver oil and no break outs so far. I'll update you later on how it goes. People keep complimenting me on my skin and saying it has this glow. Interesting.

Quote
MemberMember
223
(@gladiatoro)

Posted : 07/29/2013 7:38 pm

Is there any way some of you can post your labs? Or just give me the ranges on what you've had done? What is considered "normal" is not always normal.

Edit: By the way I'm on week one or so on cod liver oil and no break outs so far. I'll update you later on how it goes. People keep complimenting me on my skin and saying it has this glow. Interesting.

By cod liver you are referring to Blue Ice correct ?, or are you taking something else.

Quote
MemberMember
3
(@mahweeoh)

Posted : 07/29/2013 11:43 pm

 

Is there any way some of you can post your labs? Or just give me the ranges on what you've had done? What is considered "normal" is not always normal.

Edit: By the way I'm on week one or so on cod liver oil and no break outs so far. I'll update you later on how it goes. People keep complimenting me on my skin and saying it has this glow. Interesting.

By cod liver you are referring to Blue Ice correct ?, or are you taking something else.

I'm taking Carlsons. I know some people are against how it's processed, but I'm having no issues with it thus far. Blue Ice is mighty expensive and it looked like most of it had some form of butter in it and I can't do dairy products.

Quote
MemberMember
85
(@and1)

Posted : 07/30/2013 2:49 am

I think butter oil is lactose free, but apart from Blue Ice I think Carlsons is one of the few brands out there that make OK CLO.

Quote
MemberMember
91
(@josephbuchignani)

Posted : 07/30/2013 5:05 am

I can't do any dairy products except full fat homemade yogurt and butter oil. Since you've had no adverse sides from CLO, mahweeoh, might be worth seeing what the K2 in the butter oil can do for you. That was what made the huge difference for me.

Alternate sources would be natto, some hard cheeses, or K2 pills.

I've heavily modified my polyphasic strategy and am looking fair to unlock bio level 6. Maybe a day or two, barring accident.

Quote
MemberMember
157
(@chico-esposito)

Posted : 07/30/2013 11:52 am

I can't do any dairy products except full fat homemade yogurt and butter oil. Since you've had no adverse sides from CLO, mahweeoh, might be worth seeing what the K2 in the butter oil can do for you. That was what made the huge difference for me.

Alternate sources would be natto, some hard cheeses, or K2 pills.

I've heavily modified my polyphasic strategy and am looking fair to unlock bio level 6. Maybe a day or two, barring accident.

So whats your routine now Joseph? are you still taking 2 grams of udca per day. You've said blue ice cod liver oil with butter oil in it has given you some improvements, acacia fiber has been mentioned and udca.

Is your diet still rice, scallops, shrimp (prawn's), homemade full fat yoghurt....can you eat anything else?

I'm finding certain trigger foods myself that cause lapses in my condition.

Quote
MemberMember
91
(@josephbuchignani)

Posted : 07/30/2013 3:43 pm

I cut the rice and scallops, they were suboptimal. My entire regimen and history is listed in my signature, to avoid repetition.

Quote
MemberMember
3
(@mahweeoh)

Posted : 07/31/2013 12:01 am

I can't do any dairy products except full fat homemade yogurt and butter oil. Since you've had no adverse sides from CLO, mahweeoh, might be worth seeing what the K2 in the butter oil can do for you. That was what made the huge difference for me.

Alternate sources would be natto, some hard cheeses, or K2 pills.

I've heavily modified my polyphasic strategy and am looking fair to unlock bio level 6. Maybe a day or two, barring accident.

I would if I could find out absolutely if it's dairy free. I am pretty sure I'm allergic. Just got some sort of cyst...so unless there's an initial breakout, nothing comforts me yet. I'll try this for a few months and if it works, I'll stick with it. If not, I'd have to either: find a doctor who will fix my underlying condition ( nigh impossible these days ) or get on Accutane before my parents good insurance policy runs out. I know this might bother some people to hear this after telling me not to. I can cover breakouts with makeup but the problem is pain with the larger cysts/constant itchiness that distracts me from study. How long until cod liver oil actually works normally or are there any success stories? I might switch to Blue Ice once this runs out. I'm glad that it worked for you.

Quote
MemberMember
91
(@josephbuchignani)

Posted : 07/31/2013 1:21 am

Natto is dairy free. Butter oil obviously is dairy.
Just figured out the cause of the last two episodes. It wasn't a refrigeration fuckup. It was a different brand of shrimp.
Sometimes my usual frozen source runs out, so I found a stopgap - chilled shrimp at another grocery store. First episode I wasn't sure of the cause, yellow listed the chilled shrimp and redlisted sloppiness on milk refrigeration for yogurt prep. Second episode hit despite perfect yogurt prep. Both episodes 24 hours after eating the chilled shrimp.
The second time, I'd smell tested the chilled shrimp, cooked immediately, consumed within one day. Didn't matter.
I'll check the label and see if they're adding sodium triphosphate or something. But I suspect it's just a quality issue. It's "pre-frozen" and from china, and tastes mushy compared to my usual zesty perfect flavorful frozen source.
This is another confirmation of previous observations on the importance of meat quality. Organic free range chicken vs. regular makes the difference between IBS attack and healthy for me. Apparently a lot of the meat out there is quite poor quality, even at respectable supermarkets.
Damn this hypersensitivity. I'd say that mercifully it's over, and mercifully it wasn't anywhere near as bad as it's been in the past, but there was still nothing merciful about it.
Just goes to show the importance of experimental hygeine and journaling. This could've kept happening if I hadn't been carefully tracking. It would've been easy to blame on the attendant mild overeating and poor sleep, but those were merely symptoms, not the cause.
Lesson learned. If shrimp is mushy and bland, do not eat. Should be frozen until cooked, then eaten immediately, zesty snap crunch, nothing added.
Quote
and1, and1 and and1 reacted