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Repairing the long-term damage from Accutane

 
MemberMember
26
(@camaroz28)

Posted : 05/15/2013 10:03 pm

@Gladiola: I was fine after the Accutane courses. I used Finasteride for 2-3 weeks to try it and didn't like it. I then moved onto saw palmetto, and that is bad news, too. I HAD NO LONG TERM SIDES FROM ANY OF THE ABOVE. I took low dose beta-carotene (1 pill per week) for antioxidant qualities, and that affected me, so you don't know what you are talking about; it is not like more proof was needed. Most people here have a long history of pharmaceutical usage - mine is pretty average. If anyone is worried about hair loss, they can perhaps kill two birds with one stone. I think it may be possible to have a hair transplant with the hair OFF Gladiola's back; and, you would be helping her out, too.

 

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MemberMember
223
(@gladiatoro)

Posted : 05/15/2013 10:14 pm

@Gladiola: I was fine after the Accutane courses. I used Finasteride for 2-3 weeks to try it and didn't like it. I then moved onto saw palmetto, and that is bad news, too. I HAD NO LONG TERM SIDES FROM ANY OF THE ABOVE. I took low dose beta-carotene (1 pill per week) for antioxidant qualities, and that affected me, so you don't know what you are talking about; it is not like more proof was needed. Most people here have a long history of pharmaceutical usage - mine is pretty average. If anyone is worried about hair loss, they can perhaps kill two birds with one stone. I think it may be possible to have a hair transplant with the hair OFF Gladiola's back; and, you would be helping her out, too.

Funny Z24 , so you are saying the low dose beta-carotene was the most damaging thing to you ok , I would have thought it was the two rounds of

CHEMOTHERAPY you took , but I guess beta-carotene is more toxic than the chemo you took hmmm... yeah.

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MemberMember
78
(@movingon)

Posted : 05/15/2013 10:29 pm

I think we need to keep latent effects in mind...my accutane side effects didnt hit me hardest until 7-10 years post tane.

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MemberMember
26
(@camaroz28)

Posted : 05/15/2013 10:34 pm

anyone take salmon oil here? i take it since it doesn't react the same way inside of me as fish oil...but im aware that it contains some A. I don't notice super drying effects, but i do notice it insulates my joints better. Any scientists out there want to give me the run down? I'm greatly looking forward to some more argumentative action for entertainment. jk just answers.

Did you notice that she didn't ask you this time; you have proved your worth many times? Now stop being a wannabe herbalist, and do not interject when the adults are talking. My sides were from the beta-carotene.

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MemberMember
35
(@user187201)

Posted : 05/16/2013 1:39 am

Theres no cure, we are screwed some more than others obviously.

Ive given up trying to find an answer, this has consumed my life for two years now.

I am about to quit my job and move home because I cannot handle this anymore my lie has been completely torn apart, every aspect.

I give up.

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MemberMember
26
(@camaroz28)

Posted : 05/16/2013 1:57 am

I'm really sorry to hear that LTR; I didn't know it was hampering your work life so much. You deserve way more than this bad movie script.

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MemberMember
223
(@gladiatoro)

Posted : 05/16/2013 7:34 am

Theres no cure, we are screwed some more than others obviously.

Ive given up trying to find an answer, this has consumed my life for two years now.

I am about to quit my job and move home because I cannot handle this anymore my lie has been completely torn apart, every aspect.

I give up.

Shelley you have to think positive , there are people who are in wheel chairs who are paralyzed from the waist down yet they continue to move ahead ,

things could be worse , think about that. And Z24 I'm not a wannabe herbalist , I am a herbalist it's my nature a hobby if you will. Now let's stop arguing

and try and find some answers for all of us. Beta carotene doesn't agree with you I understand that , but you should be looking into what improves your

condition because really all you talk about is 5-alpha reductase inhibition we get it you think they are bad , but you have to move on . Your input is

one sided.

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MemberMember
223
(@gladiatoro)

Posted : 05/16/2013 8:40 am

Z24 here is a article for you , you may want to read it concerning the dangers of prescription drugs , just in case you want to experiment with some more

drugs.

http://www.naturalnews.com/035222_drugs_junk_food_disease.html

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MemberMember
26
(@camaroz28)

Posted : 05/16/2013 9:18 am

Proceed with caution, is my only advice to you my little concubine. You talk about wanting to get to the bottom of things, yet you dismiss what has happened to me as highly improbable, because it doesnt fit in with your crude understandings, and your desire to take things that will harm you. You hang around here pretending to care, but all that which you do dish out, in essence, is misinformation. You should attempt to get things right. Also, dont comment about LTR needing to reassess, when you act like a petulant man-child that cant let go of his precious anti-androgens. Get things right if you expect to not be critiqued Gladiola.

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MemberMember
223
(@gladiatoro)

Posted : 05/16/2013 9:37 am

Proceed with caution is my only advice to you my little concubine. You talk about wanting to get to the bottom of things, yet you dismiss what has happened to me as highly improbable, because it doesnt fit in with your crude understandings, and your desire to take things that will harm you. You hang around here pretending to care, but all you do is dish out in essence is misinformation. You should attempt to get things right. Also dont comment about LTR needing to reassess, when you act like a petulant man-child that cant let go of his precious anti-androgens. Get things right if you expect to not be critiqued Gladiola.

Thanks to your brilliant advice , not , I have decided saw palmetto may not be the best treatment , not that I have been taking it lately , and really

I had no negative sides with it but I'll take your word on this one , I can deal with the hair loss , yet I have found something that has actually helped

me , BAXYL , it relieves the dryness and joint pain I suffer from unlike you I actually found something that works and has helped people on this

forum , now it's up to you to step up to the plate and give this forum something to cheer about , although it is unlikely you will be able to met

this challenge .

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MemberMember
14
(@auguriesofinnocence)

Posted : 05/16/2013 10:28 am

Yes! Thats the name of the supplement. Here is the article .

http://www.huffingtonpost.com/alexander-m-spring/accutane-putting-your-per_b_1314233.html

I am wondering if I can take it, I already take an antidepressant which affects seratonin. I will find out.

I never took antidepressants till I took accutane .

On 5/16/2013 at 2:38 AM, gladiatoro said:
On 5/16/2013 at 12:54 AM, AuguriesofInnocence said:

Ah sorry,I was just adding some levity. I dont think it can cause male breats development I was just reading that comment about 'bosomed buddy" or whatever... you guys have some amusing vocabulary exchanges, intentional or not[Edited image out]

On 5/14/2013 at 7:55 PM, AuguriesofInnocence said:

Evening primrose oil...can it make you grow manboobs?

Seriously, the only negative Ive read about it is it can increase manic behavior in manic-depressives. Or 'bi-polar" as the PC term is these days...

On 5/14/2013 at 12:01 PM, gladiatoro said:
On 5/14/2013 at 8:57 AM, camaroz28 said:
On 5/14/2013 at 12:59 AM, gladiatoro said:

Z24 , no you can't discipline me ha , no one can , your post is actually funny lol...

 

Evening prime rose oil , I'm thinking of trying it , it seems to have many benefits , joint pain , inflammation , nourish nails, scalp, and hair , promotes

blood flow ,even helps treat acne and rosacea etc....

http://www.wholehealthchicago.com/506/evening-primrose-oil/

Well, of course you are thinking of trying it, you cheeky little dickens. The foolishness of man perverteth his way. Gamma-linoleic acid (GLA), which is derived from evening primrose oil and borage oil, is a powerful 5-alpha reductase inhibitor. I am just looking out for the peeps that actually want rectification. I don't know what we would do without you leading the way?

[Edited image out]blind-leading-blind.jpg

Ah yes Z24 those dangerous 5-alpha reductase inhibitors you keep bringing up , but funny when I took saw palmetto I had no negative side effects hmmm...

yes indeed primrose oil could be deadly to me ..... not , I think the only thing that's dangerous is you and your advice ha.

 

hi, welcome to the site of us unfortunately accutained people.

You dont have a runny nose because your nasal mucus membranes are died up, probably. I dont know about foods with vitamin A... I wouldnt purposely eat them. I certainly wouldnt take vitamin A supplements. I just realized one of my multi vitamins has vitamin A and Ive stopped taking it.

There are liver cleanses you could do, some of the safer ones include dandelion tea and milk thistle...anything more serious than that I think needs more research.

I know, its a bummer not to be able to drink, Im from Polish/Russian desent and nobody trusts a guy who wont drink!

On Invalid Date at NaN:NaN PM, westersyl said:
&gt

;>>>

Firstly my english is not perfect because I am from Poland. I am happy that I ve just found this site and this topic. I have taken Isotretinoin for 6 months. Now I haven't taken it for almost one year. But I am sure my organism doesn't work like before. I want like some people here my old life back.

The worst think the doctors doesn't take me seriously.

What's wrong with me ? Mainly problems with digestion... I want to eat and eat and... I lost weight a little insead of put on weight. When I took Isotretinoin my stool was whole grey, now it's not grey but it's diffrent it's more mushy, not well formed I can find some pices of food like corn. ( NEVER had problem with digestion corn before).

I used to like drinking alcohol, to be honest I drunk a lot and I felt OK. Now after even a small dose I feel really bad. (my social life is ruined now) [Edited image out]

I also feel like i got too much (probably) hydrochloric acid. (maybe becasue I eat too much)

Thank to this site I found out it's definitely problem with the liver, no matter that all my liver test were fine. Now my question. Is it pernamet damage or temporary ? Is it possible to rebuild my digestion to normal ? Is there any post who 100% say what's work Jf i want to detox my liver ? Are the any aricles about it ? Are there any posts written by doctors who say how to come back to normal life ?

I really apraciete such solid voices here like Chico, but it's difficult to find post which say what is trule working.

I shouldn't eat anything what has Vitamin A (retinol)? or should I eat food with retinol to replace "fake" retinol which probaboly still is in my liver

Btw. I havent had runny nose since taking Isotretinoin.

(I have never seen written such thinks about Isotretion on the polish sites. ) It shows me how low is the awareness about how bad Isotretino

in is.lockquote>
 

Isnt that the truth .

Still, there are worse things out there. Ever heard of a drug called krokodil? Its a cheap form of heroin, if you see what those people are doing to themselves youre likely to lose your lunch. Still--Im sure smiling medical doctors in a sterile enviornment didnt encourage anybody to become heroin/krok addicts.

On Invalid Date at NaN:NaN PM, sbowlchica said:
&gt

;>

I watch My Strange Addiction. Why? To see what horrible things people can do to themselves and still be better off than us.

People that eat Comet cleaner. Pottery. Glass. Dryer sheets. Rocks. Cigarette ashes. Drywall. Plastic. Nail polish. Boxes of laxatives. Detergent. Couch cushions. Gasoline. Deodorant. Huffing mothballs. Bathing in bleach. All with no lasting effects.

We were encouraged by certified doctors to take a legal prescription. And what's become

of us?lockquote>

Evening primrose oil...can it make you grow manboobs? If that's the case I won't try it lol....

 

I just read an article which claims accutane disrupts the production of seratonin (which we all know) but the majority of seratonin is produced in the gut. This article also said a lot of digestive disorders get better if seratonin production is restored. When I find it Ill post the link its eluding me at the mo.

Ah sorry,I was just adding some levity. I dont think it can cause male breats development I was just reading that comment about 'bosomed buddy" or whatever... you guys have some amusing vocabulary exchanges, intentional or notteehee.gif

AuguriesofInnocence Well thank God for that really at this point that is all I need , I'm glad you cleared that up . (=

and Auguriesofinnocence , perhaps try 5-HTP , I have been using it with good results , my serotonin levels seem to be rebounding .

 

My sides were from the beta-carotene"

^ How do you know? I mean how do you know that you arent getting accutane side effects way after the fact, or a combination of accutane+ beta carotene"?

Im probably one of the least 'damaged' on here, physically anyway, but I still have a lot of psychological effects. Im completely hooked on caffiene, because I have no energy and I will be taking an antidepressant for God knows how long, because accutane messed with my seratonin levels.

I am scared to try and go off the antidepressant, yes it works great but if you miss a a few doses you get horrific withdrawl. It takes people months to wean off these drugs and most of them still have nasty withdrawl effects. I feel trapped in that sense, I got off accutane but now Im stuck with this antidepressant.

On 5/16/2013 at 11:34 AM, camaroz28 said:
On 5/16/2013 at 9:14 AM, sdro123 said:

anyone take salmon oil here? i take it since it doesn't react the same way inside of me as fish oil...but im aware that it contains some A. I don't notice super drying effects, but i do notice it insulates my joints better. Any scientists out there want to give me the run down? I'm greatly looking forward to some more argumentative action for entertainment. jk just answers.

Did you notice that she didn't ask you this time; you have proved your worth many times? Now stop being a wannabe herbalist, and do not interject when the adults are talking. My sides were from the beta-carotene.

 

dont give up. this isnt the way you want to live your life, but it doesnt make you useless or hopeless.

Last year, I was certain I would be dead within a month or so... and now I am better than I could have hoped.

Find something that matters and focus on that, and the people in your life who care about you.

Theres no cure, we are screwed some more than others obviously.

Ive given up trying to find an answer, this has consumed my life for two years now.

I am about to quit my job and move home because I cannot handle this anymore my lie has been completely torn apart, every aspect.

I give up.

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MemberMember
0
(@westersyl)

Posted : 05/16/2013 10:53 am

Maybe I read internet too much today... Just need to know one thing.

My digestion is definitely wrong, the stomach is ok, the duodenum is OK as well. My pancreas works probably well.

It hurts when I touch myself under the ribs in the middle of my belly. - it can be definitely the liver... I tried to find out what kind of problem it can be....

Does the accutane + (alkohol) could cause liver cirrhosis ? Is it possible that it happen and I can don't know about it ? AspAT and ALAT always ok.

Are there any blood test which shows if it can be sth serious or I just only scared myself becasue I read too much ?

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MemberMember
11
(@goosnargh)

Posted : 05/16/2013 1:03 pm

Hey so I discovered this thread about 2 years ago (roughly 8 years since I was on Accutane). I had the epiphany that the way I felt didn't originate from my feelings -- it was my physiology. It was a gradual decline traced back to the dry itchy skin, clicking joints, unquenchable thirst, tight muscles, high sweat tolerance, constipation, can't put on weight etc. that never fully disappeared. I saw I wasn't alone and some had it even worse. I couldn't understand how what was basically Vitamin A could stick around far longer than "regular" Vitamin A toxicity. I discovered that I too had an intolerance to dietary retinol. It took cod liver oil to identify it. It wasn't fun. This may explain it. Other people discovered cannabis too! It was the catalyst for trying to figure out all this in the first place but it's just an anti-inflammatory (amoung other things).

Fast forward to a week from today, with my mood/energy greatly improved after various dietary & lifestyle changes and experimentation. But those same problems only mildly improved. I figured I'd nailed it down to gut issues. If the exterior is dry the interior is surely effected, namely mucin production -- a crucial protective component. A lot of gut issues even state dry skin as a side effect. I was trying everything that should help but had little progress. Then I read a little more on something I'd thought I knew enough about to rule out -- Iodine. I was linked to a thread where people were much more lax about their intake than what I'd seen elsewhere in the Paleo community. I figured I'd worked my way up to ~1mg/day over the past six months and added 200mcg of selenium to go with it for about half of that time, I should be fine right? The Japanese have closer to 10mg/day.

Then I read the side-effects of deficiency...

Dry skin/eyes/mouth/hair, constipation, depression, fatigue

...Ok this is pretty broad when it comes to micronutrient deficiencies...

Insomnia, hypo and hyperthyroid -- Duh! --, stomach problems, cold hands & feet -- Ok but I've pretty much had that my entire life --, brain fog, low libido, hair loss -- I remembered this thread --, muscle cramps/pain/weakness, insomnia, fibromyalgia, weakened immune system -- Noted next to it: Candida --, sweating reduced or gone

Hmm did I just...

easily replaced by its relatives fluoride, bromide and chlorine that act as goitrogens. The periodic table helps us understand how this can happen. This halogen group has an hierarchial behavior. Fluorine ["F"] replaces any other halide ion below it. Chlorine replaces those below it but not fluorine: bromide, iodide, and astatide ions; while bromine replaces only iodide and astatide ions.

"There is 30,000 times more chloride than iodide on a molar basis in iodized salt. Due to competition for intestinal absorption between the halides chloride and iodide, only 10 percent of iodide in iodized salt is bioavailable."

Iodine is next to the bottom of this family. This means that it can be replaced by those above it. Thus bromide and chlorine can easily replace iodine in the body. Bromide and chlorine can be referred to as goitrogens.

The significance of this information about how halogens behave in the periodic table is that the industry and health professionals are continuing to neglect the health risks of using bromide, chlorine and fluoride.

Fluoride conspiracy nuts have a leg to stand on? Why the fuck do organisations set iodine intake recommendations WELL below fluoride intake levels from fluorodated water supplies? Make iodized salt and later persuade people to reduce their intake? What a joke.

Next day I upped it to 2.4mg and I felt the difference within the hour. More energy. Softer and more hydrated skin. Warmer hands and feet. God damnit, so high doses of retinol depletes iodine? Via overactive thyroid, infection or just some general micronutrient balance? Perhaps this explains the "worse before it gets better" part of Accutane as iodine depletes? Roche can still go fuck themselves for not figuring this out.

Read all of this so you know what you're doing

Yeah the presentation sucks and closely resembles bullshit. I didn't make it.

Also this if you have an autoimmune thyroid disease, but you should probably quit gluten anyway (though it's not the only problem) since your gut is likely as poor as mine. You'll feel better and heal faster if you're eating well anyway.

Today I did 4mg but I feel like it gets used up by the end of the day (the body apparently uses 6mg/day and it takes a year of 12.5mg/day to fully replete the 1.5-2g the body can store) and unfortunately I only have kelp at the moment. Taking 10 kelp caps is less than ideal when it comes to the arsenic/mercury content. Lugols + Iodoral + detox support (though one thing they probably don't know about, lipsomal glutathione, seems to work very well during detox) will arrive next week.

-Mike

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MemberMember
223
(@gladiatoro)

Posted : 05/16/2013 1:03 pm

Accutane is a Retinoid. Retinoids control cell growth, cell differentiation and cell death (in certain tissues). This is what some cancer patients require as a part of chemotherapy. A drug that was developed to treat severe cancers of the pancreas, the bone and the brain is now being given to teens to treat acne.

Something isn't right here.

A clip from that interesting article , yeah a miracle drug indeed. Not , does isotretinoin induce cell death??? Who knows the article seems to point

in that direction not a good thing.

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MemberMember
27
(@sbowlchica)

Posted : 05/16/2013 2:32 pm

Gah. Camaroz is right. I never thought I'd say that.

I had a conversation with a good friend who's in med school, and he backed up my concerns. Guess that means I'm quitting EPO. And I thought it was helping, too... maybe it was just my diet changes.

Inhibition of 5-reductase results in decreased production of DHT, increased levels of testosterone, and, perhaps, increased levels of estradiol. Gynecomastia is a possible side-effect of 5-reductase inhibition.

Accutane works by reduding 5a-reductase type 1.

the catch is, overproduction can do 1/2 things
either A- the opposite or B- the same as inhibition
overproduction can lead to decreased sensitivity of binding sites
thats how type I diabetes can work; lack of sensitivity for insulin

SO in producing too much DHT i can get side effects of too little DHT or vice versa

He told me to wait it out, keep eating right (staying away from carbs, sugars, oxalates), etc. I'm on hyaluronic acid/glucosamine and will start burdock and dandelion.

No one online ever talks about DHT inhibitors having the same side effects as increased DHT because that's really not a problem for most people. It's very rare to have low DHT unless you're on a DHT inhibitor. The body makes hormones for a reason. We need DHT or else we would have evolved without it.

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MemberMember
223
(@gladiatoro)

Posted : 05/16/2013 4:47 pm

Iodine deficiency perhaps this is part ot the puzzle.

http://www.thyroid.org/iodine-deficiency/

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MemberMember
14
(@auguriesofinnocence)

Posted : 05/16/2013 6:55 pm

So, taking an anti DHT supplement is as bad as having too much DHT?Im confused.

Ill stop taking it for now. I still will take the spearmint though I dont think thats been proven to do any harm or further throw hormones off balance. This hormone stuff blows, in my next life I hope to come back as a dolphin or something.

Gah. Camaroz is right. I never thought I'd say that.

I had a conversation with a good friend who's in med school, and he backed up my concerns. Guess that means I'm quitting EPO. And I thought it was helping, too... maybe it was just my diet changes.

Inhibition of 5-reductase results in decreased production of DHT, increased levels of testosterone, and, perhaps, increased levels of estradiol. Gynecomastia is a possible side-effect of 5-reductase inhibition.

Accutane works by reduding 5a-reductase type 1.

the catch is, overproduction can do 1/2 things
either A- the opposite or B- the same as inhibition
overproduction can lead to decreased sensitivity of binding sites
thats how type I diabetes can work; lack of sensitivity for insulin

SO in producing too much DHT i can get side effects of too little DHT or vice versa

He told me to wait it out, keep eating right (staying away from carbs, sugars, oxalates), etc. I'm on hyaluronic acid/glucosamine and will start burdock and dandelion.

No one online ever talks about DHT inhibitors having the same side effects as increased DHT because that's really not a problem for most people. It's very rare to have low DHT unless you're on a DHT inhibitor. The body makes hormones for a reason. We need DHT or else we would have evolved without it.

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MemberMember
223
(@gladiatoro)

Posted : 05/16/2013 7:53 pm

Gah. Camaroz is right. I never thought I'd say that.

 

I had a conversation with a good friend who's in med school, and he backed up my concerns. Guess that means I'm quitting EPO. And I thought it was helping, too... maybe it was just my diet changes.

 

Inhibition of 5-reductase results in decreased production of DHT, increased levels of testosterone, and, perhaps, increased levels of estradiol. Gynecomastia is a possible side-effect of 5-reductase inhibition.

Accutane works by reduding 5a-reductase type 1.

 

the catch is, overproduction can do 1/2 things

either A- the opposite or B- the same as inhibition

overproduction can lead to decreased sensitivity of binding sites

thats how type I diabetes can work; lack of sensitivity for insulin

 

SO in producing too much DHT i can get side effects of too little DHT or vice versa

 

He told me to wait it out, keep eating right (staying away from carbs, sugars, oxalates), etc. I'm on hyaluronic acid/glucosamine and will start burdock and dandelion.

 

No one online ever talks about DHT inhibitors having the same side effects as increased DHT because that's really not a problem for most people. It's very rare to have low DHT unless you're on a DHT inhibitor. The body makes hormones for a reason. We need DHT or else we would have evolved without it.

Sbowlchica are you sure burdock and dandelion aren't DHT inhibitors as well , better check with Z24 on that one ha.... he thinks avoiding

DHT inhibitors is the be all and end all for this syndrome we have , saddly not taking saw palmetto or EPO does nothing for my joint pain

or dryness , but taking BAXYL actually adresses these problems nicely and perhaps glucosamine , these supplements actually help my

symptoms. Wait glucosamine could be another DHT inhibitor lol.... Z24 quick we need your help .

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MemberMember
26
(@camaroz28)

Posted : 05/16/2013 8:12 pm

Gah. Camaroz is right. I never thought I'd say that.

 

You need to draw back just a scosche my young gazelle; you, are still in the wilderness, so you have to keep jumping. No, it is not the first time, and it wont be the last time you follow suit. Id say, you are developing quite the acid tongue, and you will certainly need that around here; so, I guess you are showing me that you have gained proficiency in that regard, too. You are welcome on all counts. I know that you are lashing out because you want to fit in with all the other disaffected youth around here, but this too shall pass.

@Gladiola: Yes, Mojumbo, Isotretinoin induces apoptosis. I dont know why we couldnt use you, to convincingly prove that Isotretinoin markedly impedes the capacity of mice to learn a spatial radial maze task? Im sure we could build a maze big enough, for you.

 

Sbowlchica are you sure burdock and dandelion aren't DHT inhibitors as well , better check with Z24 on that one ha.... he thinks avoiding

DHT inhibitors is the be all and end all for this syndrome we have , saddly not taking saw palmetto or EPO does nothing for my joint pain

or dryness , but taking BAXYL actually adresses these problems nicely and perhaps glucosamine , these supplements actually help my

symptoms. Wait glucosamine could be another DHT inhibitor lol.... Z24 quick we need your help .

And you want to be my latex salesman? You are purportedly amassing knowledge on 2000 herbs; I honestly don't think you know 2000 words.

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MemberMember
223
(@gladiatoro)

Posted : 05/16/2013 8:21 pm

 

Gah. Camaroz is right. I never thought I'd say that.

 

You need to draw back just a scosche my young gazelle; you, are still in the wilderness, so you have to keep jumping. No, it is not the first time, and it wont be the last time you follow suit. Id say, you are developing quite the acid tongue, and you will certainly need that around here; so, I guess you are showing me that you have gained proficiency in that regard, too. You are welcome on all counts. I know that you are lashing out because you want to fit in with all the other disaffected youth around here, but this too shall pass.

@Gladiola: Yes, Mojumbo, Isotretinoin induces apoptosis. I dont know why we couldnt use you, to convincingly prove that Isotretinoin markedly impedes the capacity of mice to learn a spatial radial maze task? Im sure we could build a maze big enough, for you.

Z24 you are quite the comedian I give you that lol.. , now do something productive and use your great er small mind to find solutions for our

syndrome , because frankly this whole DHT inhibitor thing is getting boring , if you know what I mean , are you up to the task??? Perhaps look

into iodine depletion caused by isotretinoin or something to that order. I mean really where would we be without you , yes Z24 there is a tone of

sarcasm in that last sentence.

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MemberMember
26
(@camaroz28)

Posted : 05/16/2013 8:34 pm

In all seriousness homes, we need research. So in a word, we need money; and, that may mean you need to curb your consumption of DHT inhibitor and whey protein shakes to help with funding?

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MemberMember
148
(@oli-girl)

Posted : 05/16/2013 9:55 pm

Well that's the thing there has been some research just not enough! Also, many suffers have spoken with scientists etc... they review things and then no such luck.

However, the most recent research that has been going is Accutane and epigentics. http://www.sciencedirect.com/science/article/pii/S0306987709002916

James Crandall Ph.D - Said it pretty good too on what accutane does. I always suggest if your bio chem buff to read max proboards, though over the years it been spammed! He has a lot of info and studies regarding accutane in which the propecia site has used and posted. Nathan's report and research is very good and though we couldn't get a research done on his theory there was intrest and it was good enough to be published in a book!

I am not really sure what exactly Accutane does to all of us, as are gentics are diffrent. Some suffer from Acute Vit A toxicity, some develop autoimmue response, others severe hormonal issues possibly due to androgen and other issues, some die! Some things work for others and some they don't!

Though I didn't really take meds before accutane, I have a severe problem with any pharma drug (even advil) since taking accutane. I acutally suffer from direct Vit A toxicity and it caused a autoimmune response. I also believe in thoose who have issues/diseases etc... Thoose diseases have thier conquences of thier own...

Camz- How much Beta did you take and did it have retinol / Vit A Palmitate in it! Yes, Accutane can cause latent effects in some and ongoing issues, not to say the other meds didn't contribute to making things worse. It would be interesting to know what exactly you suffer from?

Livetoregret- don't give up you just need to find a physican to take the abnormal labs serious! Don't let Roche win! Have you looked up holistic methods for thyroid and Rhuematoid, I know many suffers who haven't taken accutane with Rhuematoid who do holistic to control it with gluten free, yoga, etc...

Have a great rest of the week everyone :)

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Gladiatoro, MovingOn, Gladiatoro and 3 people reacted
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223
(@gladiatoro)

Posted : 05/16/2013 10:29 pm

Oli girl you mentioned Advil as causing you problems you should read these articles about prescription pain rellievers , and

natural alternatives , I mean it really doesn't surpise me that most things Big Pharma sells to us consumers is either toxic or deadly.

i http://naturalsociety.com/over-the-counter-painkillers-linked-hearing-loss-what-alternatives/

http://www.naturalnews.com/040131_NASIDS_pain_medications_adverse_drug_reactions.html

http://naturalsociety.com/5-natural-pain-relievers-for-pain-control/

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MemberMember
180
(@roland1968)

Posted : 05/17/2013 7:48 am

Theres no cure, we are screwed some more than others obviously.

Ive given up trying to find an answer, this has consumed my life for two years now.

I am about to quit my job and move home because I cannot handle this anymore my lie has been completely torn apart, every aspect.

I give up.

I agree with you LTR. same for me. I have given up my hope that things will get any better after more than 10 years.

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MemberMember
1
(@ezuber)

Posted : 05/17/2013 1:57 pm

@ sbowlchica or anyone else:

I took Accutane about three months ago for only 11 days. I stopped immediately because of the changes in my hair - changes in hair texture and increased hair shed. My hair texture improved rapidly after stopping, but my hair shed continues to this day, three months after stopping. I have been taking supplements to help such as vit B12 and biotin almost immediately after I quit Accutane. I recently have been experimenting with other things such as Taurine, TUDCA, vit D3, and fish oils. I mainly addressed this to sbowlchica because I have almost the exact same DHEAS levels as you - last time I was tested about a month ago it was 443. My testerone was slightly high as well, although I get regular periods, so I am unsure that I have PCOS - still waiting for results to come in next week from a hormone "restest" with a different doctor. I have recently noticed eyebrow shed and possibly eyelash shed. I was just wondering what supplements you avoided due to your high hormone levels and what ones you noticed helped with your hair.

Thanks,

Emily

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