True that about too much vitamin A worsening symptoms, i went though a phase of taking cod liver oil as it would scab my seborheic dermatitis up. I thought the detox angle was the answer for years, i don't believe it's helped me in fact it's only made me worse. I threw my bottles of cod liver oil away, one was half empty, the others were full. No more vitamin A for me.

For me, the physical side effects while on 1 month of accutane were considered "normal"--dry bleeding lips which came off in pieces, nosebleeds and fatigue. But the mental aspect was the worst, I looked and felt like a zombie. I was filled with a deep depressive dread, everything seemed wrong, it was like the world had turned into a horrible place. I was never able to relax, even when I was sleeping I was jolted awake by panic attacks.It took a good 3-months after stopping accutane before I no longer felt suicidal. I literally had someone with me at all times, my husband had booby traps in my room at night so he could hear if I got up. He was terrified I would kill myself, and I nearly did.

Almost a year later, I have mostly recovered from the physical effects, though I flush easily and am sun sensitive. I also am having hair thinning, most people say they dont notice it but its very noticable to me. Im using herbal oils to help scalp cirulation but my hair will probably never be the same.

Here are pics of me, the green dress is my hair before all this crap.

The second is me in a zombie-like state on accutane--scary blank expression and all. Scary isnt it?

The third is my hair in the right light which shows thinning at the front.

All my life, I always said I had too much hair, it was very thick. I guess we should watch what we say :-I

Anyway, good luck to you all. Fuck Roche.

Yeah the second picture , is the zombie slash accutane mode many of us have felt I think we can all relate to that one lol... zombie mode.

I am doing great, in 2nd round job interviews, working in meantime, tons of travel for interviews, able to do it without problem. Switched from scallops to shrimp for minerals, that worked. Everything else same. I get my life back.

Sorry to hear others are still struggling.

Awesome Joseph; I take it you will now be cancelling your subscription, and moving on. I hope you don't completely forget about us, but I would understand if you did. Greener pastures and all that. I mean, I do watch reality television.

On 4/21/2013 at 10:41 PM, gladiatoro said:

About a year ago or so I did a little experiment with stinging nettle tea , normally a wonderful detox for the body , so I drank about four cups of it

per day thinking this would cleanse my body pretty well , the usual course is one month of drinking it , I read this in an old herbal book my dad

had he does a course once a year and he is 87 years old , well after a month or so my left arm went numb the whole

arm and I started getting heart papulations , this lasted for about a month or so .

The heart papulations only lasted a few days but my arm was literally

numb for a month after my tea course , so I looked into the constituents of stinging nettle and I found out it has many vitamins and minerals

but it is high in Vit A , so yeah high doses of vit A even natural are not good for us ,

So this proves my theory that we are hypersensitive to vit A in a bad way. In other words too much vit A worsens our symptoms.

I hear you bud - loud and clear. I guess the gist of what you are saying is we should ALL be wary of what we naively consider to be safe, because in actuality theses compounds have pharmacological or biological activity not dissimilarly to those used in the pharmaceutical industry. I guess you missed the point in your father's book pertaining to the anti-androgenic activity of stinging nettle by affecting sex hormone binding globulin. You were on two natural anti-androgens at once. You have definitely proved a theory, if you ask me.

[Edited link out]

I am doing great, in 2nd round job interviews, working in meantime, tons of travel for interviews, able to do it without problem. Switched from scallops to shrimp for minerals, that worked. Everything else same. I get my life back.

Sorry to hear others are still struggling.

I never thought I'd be ending my participation in this forum by agreeing with Joseph, but he's right.

Diet is truly the key. Bottom line we have to face the fact that consuming once-normal foods like breads and processed foods used to just be unhealthy, but now are actually the underlying causes to all of our symptoms. Switching to yogurt + raw meats/small portions/heavily restricting your diet is not only the only thing I've found to work, it actually does work. If you need further help as I've mentioned previously, you can get your doc to prescribe an antibiotic or disease modifying drug, but diet alone is really enough. It's just how bad do you want it. Do you want to eat what you've always eaten and deal with all of these post-accutant side effects, or do you want to change your diet and be normal again?

I wish everyone the best of luck, but this is really where the road ends.

I hope this forum continues to be a place of comfort and help for sufferers, though. Best of luck to you all.

Yes, great advice Nick. One question though: Why did you choose a picture in which it appears you are descending down from Heaven? Is is that you are attempting to subtlety tell us you are doing God's work by undoing the Accutane damage simplistically with diet change: perform a miracle, if you will? It's funny because there are a large number of people who contradict what you have said. People should try the diet change for themselves, but you shouldn't attempt to extrapolate in such a matter of fact manner.

Boys. Stop it.

Anyone figured out the joint pain besides the body not producing HA naturally? The only relief i've gotten is from salmon oil and HA. my hip is like a 90 year old woman's hip;.

What about GLA or gamma linolenic acid to give it's full title. Its in borage/starflower oil and evening primrose oil i remember someone saying a while back that it specifically helped their skin dryness, has anyone had any experience with this? it's meant to be an anti inflammatory omega 6 fatty acid.

Also what about flaxseed oil, it's an omega 3 without the retinol content of fish oil, but i've heard a poster reference the fact that they don't do well on any omega 3.

 

@thefrenchguy- It was nearly the same for me. I was lucky enough to experience my emotions, along with my sex drive, nearly disappear all in the same day. A 24 hour chemical labotomy + chemical castration via Accutane. It got a little better for me over the next few months, but nothing has been right since that day.

The depression and lowered libido while on the drug were minor, and my "crash" happened a few weeks after stopping the drug.

I have to ask, were you still taking accutane around/on the day your emotions got wiped-out?

I took the drug for 2 weeks and at the end of the 2nd I felt something wrong in my body and mind (like I wasn't the same) and so decided to quit the drug. I was constantly improving the week after having stopped but after 7 days off the drug I felt something wrong going on at lunch and at dinner I was a zombie with no more emotions like a machine ( no more happy, no more surprised, no more sad, just empty).

So my side effects really began after having quit the drug which is hardly comprehensible.

However, may be thanks to the low-dose I recovered 90% of what I was before. Another odd thing is that my situation is not stable (some days I'm exactly like before the drug and somedays I'm experiencing side-effects of the drug like chapped lips in summer which can go away the days after

Yes, It has been stated and known that side effects can wax and wane at times! Hopefully since you only took the drug for 2wks you will be able to recover fully over time, though not a gaurantee!

Seriously, guys, this is what Roche wants. United we stand, divided we fall. Even our closest friends and family have said that we're overdramatizing, that we're hypochondriacs, that this is all in our heads. This group is all we have, so we need to stick together.

It's okay to think that someone else's supplement/regimen/medicine is BS. That's fine. But if you're going to point it out, do it with facts, not opinions. Post sources: studies, books, something legitimate that backs up your claims. If you think something that someone is doing is going to harm them, let them know why.

In the same vein, just because someone makes a treatment mistake doesn't mean they're stupid/evil/foolish, and does NOT give you the license to provoke them. We're a community, and fighting among ourselves will get us nowhere.

Also, we need to accept that different things work for different people. Just because something didn't work for you doesn't mean it won't work for someone else. Accutane has done different things to all of us; we don't all have the exact same side effects and blood test results. For most of us, Accutane screwed up a whole bunch of things, and we've got a lot of health issues to skate around.

When it comes to cures, I'd say diet is the easiest thing to try, especially if Accutane left you with digestion issues. So many people have had success with it. Just try it for a month and see how you feel.

Also, Chico, if I were you, I'd go with the borage oil. I take evening primrose oil because it raises and helps me metabolize my estrogen¦ I'm not sure you want that

What about GLA or gamma linolenic acid to give it's full title. Its in borage/starflower oil and evening primrose oil i remember someone saying a while back that it specifically helped their skin dryness, has anyone had any experience with this? it's meant to be an anti inflammatory omega 6 fatty acid.

Also what about flaxseed oil, it's an omega 3 without the retinol content of fish oil, but i've heard a poster reference the fact that they don't do well on any omega 3.

I take GLA in liquid form by Nordic Naturals! It does good for me, is it a cure well no! Also, I would tread lightly on the flax as many old suffers and myself who have been around awhile didn't do well with flax. Such as flushing, palpatations etc... It's up to you, though you could start with flax seed in with certian things vs a supplement. I have say diet is crucial at least for me and I feel alot better without sugar, alot of carbs, etc... Digestion has improved alot also

 

Seriously, guys, this is what Roche wants. United we stand, divided we fall. Even our closest friends and family have said that we're overdramatizing, that we're hypochondriacs, that this is all in our heads. This group is all we have, so we need to stick together.

 

It's okay to think that someone else's supplement/regimen/medicine is BS. That's fine. But if you're going to point it out, do it with facts, not opinions. Post sources: studies, books, something legitimate that backs up your claims. If you think something that someone is doing is going to harm them, let them know why.

 

In the same vein, just because someone makes a treatment mistake doesn't mean they're stupid/evil/foolish, and does NOT give you the license to provoke them. We're a community, and fighting among ourselves will get us nowhere.

 

Also, we need to accept that different things work for different people. Just because something didn't work for you doesn't mean it won't work for someone else. Accutane has done different things to all of us; we don't all have the exact same side effects and blood test results. For most of us, Accutane screwed up a whole bunch of things, and we've got a lot of health issues to skate around.

 

When it comes to cures, I'd say diet is the easiest thing to try, especially if Accutane left you with digestion issues. So many people have had success with it. Just try it for a month and see how you feel.

 

Also, Chico, if I were you, I'd go with the borage oil. I take evening primrose oil because it raises and helps me metabolize my estrogen¦ I'm not sure you want that

Yes I fully agree united we stand , divided we fall , arguing over what one person tries to improve there situation and cutting them down is childish and

I won't play that silly game , try what you like whatever helps you but DON'T cut down other people for there trials and errors , you can point out your

opinion but you don't have to be rude , I am referring to Z 28 , grow up man. This forum is to help each other period.

What about GLA or gamma linolenic acid to give it's full title. Its in borage/starflower oil and evening primrose oil i remember someone saying a while back that it specifically helped their skin dryness, has anyone had any experience with this? it's meant to be an anti inflammatory omega 6 fatty acid.

Also what about flaxseed oil, it's an omega 3 without the retinol content of fish oil, but i've heard a poster reference the fact that they don't do well on any omega 3.

Chico , I agree the retinol is very bad for us , a few years ago I took fish oil for a month or so a fair amount per day interestingly enough it said

on the bottle it was Vitamin A free , that's why I bought it , it was carlsons fish oil , yet my back seized up for three days (not fun)after ingesting

this stuff again a giant failure in my treatment plan lol... for obvious reasons I avoid any kind of fish oil now , this drug is fun fun fun. ha. I still

don't understand how a synthetic drug can cause all these side effects years later , certainly our gene expressions have been changed perhaps

even our DNA. Live and learn I guess.

 

 

Seriously, guys, this is what Roche wants. United we stand, divided we fall. Even our closest friends and family have said that we're overdramatizing, that we're hypochondriacs, that this is all in our heads. This group is all we have, so we need to stick together.

 

It's okay to think that someone else's supplement/regimen/medicine is BS. That's fine. But if you're going to point it out, do it with facts, not opinions. Post sources: studies, books, something legitimate that backs up your claims. If you think something that someone is doing is going to harm them, let them know why.

 

In the same vein, just because someone makes a treatment mistake doesn't mean they're stupid/evil/foolish, and does NOT give you the license to provoke them. We're a community, and fighting among ourselves will get us nowhere.

 

Also, we need to accept that different things work for different people. Just because something didn't work for you doesn't mean it won't work for someone else. Accutane has done different things to all of us; we don't all have the exact same side effects and blood test results. For most of us, Accutane screwed up a whole bunch of things, and we've got a lot of health issues to skate around.

 

When it comes to cures, I'd say diet is the easiest thing to try, especially if Accutane left you with digestion issues. So many people have had success with it. Just try it for a month and see how you feel.

 

Also, Chico, if I were you, I'd go with the borage oil. I take evening primrose oil because it raises and helps me metabolize my estrogen¦ I'm not sure you want that

Yes I fully agree united we stand , divided we fall , arguing over what one person tries to improve there situation and cutting them down is childish and

I won't play that silly game , try what you like whatever helps you but DON'T cut down other people for there trials and errors , you can point out your

opinion but you don't have to be rude , I am referring to Z 28 , grow up man. This forum is to help each other period.

 

>What about GLA or gamma linolenic acid to give it's full title. Its in borage/starflower oil and evening primrose oil i remember someone saying a while back that it specifically helped their skin dryness, has anyone had any experience with this? it's meant to be an anti inflammatory omega 6 fatty acid.

Also what about flaxseed oil, it's an omega 3 without the retinol content of fish oil, but i've heard a poster reference the fact that they don't do well on any omega 3.

Chico , I agree the retinol is very bad for us , a few years ago I took fish oil for a month or so a fair amount per day interestingly enough it said

on the bottle it was Vitamin A free , that's why I bought it , it was carlsons fish oil , yet my back seized up for three days (not fun)after ingesting

this stuff again a giant failure in my treatment plan lol... for obvious reasons I avoid any kind of fish oil now , this drug is fun fun fun. ha. I still

don't understand how a synthetic drug can cause all these side effects years later , certainly our gene expressions have been changed perhaps

even our DNA. Live and learn I guess.

Some Suffers have been okay eating salmon! I eat it about 3x a wk and I am okay! Just make sure it is GMO FREE!

 

Seriously, guys, this is what Roche wants. United we stand, divided we fall. Even our closest friends and family have said that we're overdramatizing, that we're hypochondriacs, that this is all in our heads. This group is all we have, so we need to stick together.

 

It's okay to think that someone else's supplement/regimen/medicine is BS. That's fine. But if you're going to point it out, do it with facts, not opinions. Post sources: studies, books, something legitimate that backs up your claims. If you think something that someone is doing is going to harm them, let them know why.

 

What on Earth? There are a handful of people playing fast and loose with the term poison, but then straight out turn around and take another poison. Of course, it is an inconvenient truth, so now I am the bad guy. Your parents and friends are right to label you however they want if you subscribe to the aforementioned reasoning. You shouldnt be on Spironolactone, if you are having serious side effects. Spironolactone is going to compounds things, and there is no escaping that. The truth is even after being decimated by a pharmaceutical, people will stop at nothing to retain there hair and curb any remaining acne with whatever else they can get their hands on. Fine, do that, but don't cry wolf. Have a look at the conversation I had with the user Aussieface. He had E.D., digestion issues, depression, etc. He ended up in E.R., he then proceeded to lambast his dermatologist with incriminating literature on side effects, only to then jump back on the Accutane, because as he claims, he had to "listen to his body."

I have made my point clear over and over again; dont claim poison, and then turn around and ingest another. If I have to explain why DHT inhibitors and herbs and pharmaceuticals that are considered anti-androgens should not be tolerated in this thread, you are beyond reasoning. I may have been a little smug (entertaining) given the amount of pandering that is done here, but I have been honest and factual. Many here have been delusional and deceitful and straight out dangerous to this community (Gladiatoro: I have shown over and over again). This behavior would not be tolerated at Propeciahelp.com, and I bet it would be nigh on impossible to get $100 from most of you (there are exceptions I know) to commit to research. That speaks volumes.

On 4/23/2013 at 7:55 AM, sdro123 said:

On day 2 of gluten-free! man do i want a burger. Feeling great though. Still have reynauds and dry skin, but my digestion is sooo good. Oregano oil and gluten free is looking up, but the diet is hard! I need you guys to motivate me!! [Edited image out]

Have the burger with just NO bread ! Give it some time and it will become a norm I feel sooo much better with low carb and gluten free, and if you have a craving for some bread then do gluten free!

Buddy, you belong on a hair loss website. You obviously know nothing about herbs and you shouldn't be offering advice. You straight out lie as I have proven, when you talk about taking beneficial herbs for "detox" purposes when you obviously have ulterior motives. That is just pathetic. Also, you don't have to space your writing that far apart. This is not grade school, where you need to draw pictures next to your words to clarify your point. On second thought, perhaps you should ignore my last statement.

Yes I fully agree united we stand , divided we fall , arguing over what one person tries to improve there situation and cutting them down is childish and

I won't play that silly game , try what you like whatever helps you but DON'T cut down other people for there trials and errors , you can point out your

opinion but you don't have to be rude , I am referring to Z 28 , grow up man. This forum is to help each other period.

 

Buddy, you belong on a hair loss website. You obviously know nothing about herbs and you shouldn't be offering advice. You straight out lie as I have proven, when you talk about taking beneficial herbs for "detox" purposes when you obviously have ulterior motives. That is just pathetic. Also, you don't have to space your writing that far apart. This is not grade school, where you need to draw pictures next to your words to clarify your point. On second thought, perhaps you should ignore my last statement.

Yes I fully agree united we stand , divided we fall , arguing over what one person tries to improve there situation and cutting them down is childish and

I won't play that silly game , try what you like whatever helps you but DON'T cut down other people for there trials and errors , you can point out your

opinion but you don't have to be rude , I am referring to Z 28 , grow up man. This forum is to help each other period.

I space my writing far apart so you can easily read it , I figured you needed help with that ha , and yeah I still take saw palmetto ciclically ,

and I have benefited from it as have others with NO ill effects to speak of , like oily girl said we are all different some things work some things

don't for others , I have made my point to you many times on this herb and I do know a bit about herbs in fact I study them and am currently

working on around 2000 different herbs that I research , a hobby of mine. If you think saw palmetto is so harmfull then don't take it , but I will

and I'll take whatever benefits me. Z28 face it no one likes you .

I am doubtful you graduated high school. If you ever do cut out that herb you are in so much denial about, you will probably come to realize you are driving what Justin Bieber considers a real Mustang. Clueless!

But it's the dryness that is at the root cause of all physical symptoms if we can't address that then what hope do we have?

Why is it only some of the guys on here fight? Let's just tone it down a notch. Let it go...accutane should be uniting us...and no I'm not gonna say world peace too, because I just want to be able to go on here and get some helpful information without getting anxious about who is bashing who. just stop please. thank you!! I'm sure I've given some advice that wasn't spot on, but it is ADVICE. I always say it's MY experience but to try it at your own risk. MOVE ON.

But it's not me Z28 keeps harassing me lol... he started it all it's true . He has to go sit in the corner of the room now for a while and put on a dunce cap ha...

Why is it only some of the guys on here fight? Let's just tone it down a notch. Let it go...accutane should be uniting us...and no I'm not gonna say world peace too, because I just want to be able to go on here and get some helpful information without getting anxious about who is bashing who. just stop please. thank you!! I'm sure I've given some advice that wasn't spot on, but it is ADVICE. I always say it's MY experience but to try it at your own risk. MOVE ON.

Well this is the thing: You have never said anything which I find even remotely problematic in the context of this thread. That is the point. If you decided to take DHT inhibitor herbs at home to combat whatever you like I really have no problem; just don't come on here, and twist the facts to suit your warped agenda. I mean I even like your musical taste; I am big fan of Radiohead and Beach House, but not so much Death Grips. I would have preferred Elliott Smith, but I have no right to bring that up here because that would be completely decontextualized point to bring up, and you are certainly not harming anyone. If the inappropriately named Gladiatoro can forget his own little problems in the setting of this important thread, you will not hear a murmur out of me. If he continues to act with disregard, I propose a forced name change to something more apt like Gladiola.

You guys are seriously great fun.

Life really does suck in so many ways now, but at least we can still have a laugh.

Hey, in a normal world we might even have a round of drinks imagine that?!

^^Haha, you certainly paint a picture. Could you imagine Joesph after a few drinks and cigarettes on a belly filled with homemade yoghurt? Priceless!

On 4/23/2013 at 9:57 AM, gladiatoro said:

On 4/23/2013 at 2:21 AM, sbowlchica said:

Seriously, guys, this is what Roche wants. United we stand, divided we fall. Even our closest friends and family have said that we're overdramatizing, that we're hypochondriacs, that this is all in our heads. This group is all we have, so we need to stick together.

It's okay to think that someone else's supplement/regimen/medicine is BS. That's fine. But if you're going to point it out, do it with facts, not opinions. Post sources: studies, books, something legitimate that backs up your claims. If you think something that someone is doing is going to harm them, let them know why.

In the same vein, just because someone makes a treatment mistake doesn't mean they're stupid/evil/foolish, and does NOT give you the license to provoke them. We're a community, and fighting among ourselves will get us nowhere.

Also, we need to accept that different things work for different people. Just because something didn't work for you doesn't mean it won't work for someone else. Accutane has done different things to all of us; we don't all have the exact same side effects and blood test results. For most of us, Accutane screwed up a whole bunch of things, and we've got a lot of health issues to skate around.

When it comes to cures, I'd say diet is the easiest thing to try, especially if Accutane left you with digestion issues. So many people have had success with it. Just try it for a month and see how you feel.

Also, Chico, if I were you, I'd go with the borage oil. I take evening primrose oil because it raises and helps me metabolize my estrogen¦ I'm not sure you want that

Yes I fully agree united we stand , divided we fall , arguing over what one person tries to improve there situation and cutting them down is childish and

I won't play that silly game , try what you like whatever helps you but DON'T cut down other people for there trials and errors , you can point out your

opinion but you don't have to be rude , I am referring to Z 28 , grow up man. This forum is to help each other period.

On 4/23/2013 at 12:01 AM, Chico Esposito said:

>>What about GLA or gamma linolenic acid to give it's full title. Its in borage/starflower oil and evening primrose oil i remember someone saying a while back that it specifically helped their skin dryness, has anyone had any experience with this? it's meant to be an anti inflammatory omega 6 fatty acid.

Also what about flaxseed oil, it's an omega 3 without the retinol content of fish oil, but i've heard a poster reference the fact that they don't do well on any omega 3.

Chico , I agree the retinol is very bad for us , a few years ago I took fish oil for a month or so a fair amount per day interestingly enough it said

on the bottle it was Vitamin A free , that's why I bought it , it was carlsons fish oil , yet my back seized up for three days (not fun)after ingesting

this stuff again a giant failure in my treatment plan lol... for obvious reasons I avoid any kind of fish oil now , this drug is fun fun fun. ha. I still

don't understand how a synthetic drug can cause all these side effects years later , certainly our gene expressions have been changed perhaps

even our DNA. Live and learn I guess.

I know it's weird, theres some connection with omega 3 and retinol in the body. It could be that trace amounts of the retinol are still in the product and thats what affected you. Even flax contains beta carotene, i was looking through udo's choice ingredients and it contains wheat germ oil which is full of beta carotene, the oil itself is bright orange because of the carotenoids it contains. Likewise with pumpkin seed oil....it's retinol and foods high in carotenoids that we seem to react too.

On 4/23/2013 at 4:22 AM, oli girl said:

On 4/23/2013 at 12:01 AM, Chico Esposito said:

What about GLA or gamma linolenic acid to give it's full title. Its in borage/starflower oil and evening primrose oil i remember someone saying a while back that it specifically helped their skin dryness, has anyone had any experience with this? it's meant to be an anti inflammatory omega 6 fatty acid.

Also what about flaxseed oil, it's an omega 3 without the retinol content of fish oil, but i've heard a poster reference the fact that they don't do well on any omega 3.

I take GLA in liquid form by Nordic Naturals! It does good for me, is it a cure well no! Also, I would tread lightly on the flax as many old suffers and myself who have been around awhile didn't do well with flax. Such as flushing, palpatations etc... It's up to you, though you could start with flax seed in with certian things vs a supplement. I have say diet is crucial at least for me and I feel alot better without sugar, alot of carbs, etc... Digestion has improved alot also [Edited image out]

I'm going to order borage oil, thank you for your advice Oil Girl.

On 4/23/2013 at 7:34 PM, Livetoregret said:

But it's the dryness that is at the root cause of all physical symptoms if we can't address that then what hope do we have?

Theres two types of dryness, most accutane sufferers have both. The first is there is no production of sebum, so the skin on the face / body looks very dry, as does the hair because it's not lubricated. The second is the internal dryness which is the lubrication of the joints, cartilage and bones of the body, which creates joint cracking, pain, weakness.