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Has anyone ever heard of somebody recovering from this shit? I've been reading these pages, it's depressing. Is there at least some hope out there? I've never heard of anybody recovering, has anybody else?
Yes, I once heard about a chap who managed to get 90%, but he was just way too besotted with 5@ reductase inhibitors and quelling androgen receptor expression to go the extra mile. Something about wanting to be in a Pantene ad. I understand. It's a crazy world.
I tested my estradiol today, the result is :
152,8 pmol/L (normal values are 28 - 156).
My costisol level is 588 nmol/L (normal is between 171 - 536)
What do u recommend me now guys? please, some advices, my hair is falling so much!
Robert, I take it you are not in the U.S.? If this is the case, I would arrange a phone consultation with Dr. Crisler in the U.S. He may only be able to offer some crude assistance, but that is all anybody can offer at the moment. You will also not have to convince him about the existence of this problem. He treats Finasteride victims and Accutane victims the same. Do a Google search for more information.
I have heard and spoken to many and I haven't run across a severe suffer or one who continues to get worse recover!
Yes someone posted about feeling better with canbis oil! The thing is many suffers try things or do things and feel great temporarily! Hence the key word temporarily!
I would also say hat those who test positive for things / develop long life illness and autoimmune diseases you have an answer but you aren't better!
Hey guys,
What do you think about Estrogen Dominance or deficiency? I know it's been brought up before, but I don't have the energy to scour all of the pages.
http://www.breastnexus.com/showthread.php?tid=5135
This is also interesting too, but i don't know where he is getting his info from:
I really feel like my hormones may be out of whack. Not to mention, when my digestion is slowed by psychotropics, I feel worse joint pain. But what if hormones are behind all of this???
Has anyone ever heard of somebody recovering from this shit? I've been reading these pages, it's depressing. Is there at least some hope out there? I've never heard of anybody recovering, has anybody else?
Hi,
I posted a few messages 1 year ago on this thread just after having taken accutane.I didn't take much of the drug (like 2 weeks or 3) and I was experiencing a range of side effects like: no more emotions ( it was crazy and from far the worse one, i litteraly felt my emotions going away in 1 day), muscular loss at legs and may be a little dryness on skin.
However, after 1 month or 2 I began feeling slowly better in my mind and now, 1 year after I'm not feeling exactly like before but the closest since I have taken this drug, physically and mentally.
The big issue now is hairloss, it's falling only on 1 side only but I don't know if it's MPB or accutane...
I think the best to do is to try to exercise, eat better and relax, I remember myself enhancing my side effects by reading clinical trials of isotretinoin on google scholar everyday...
Estrogen dominance is the most likely, probably phyto. Some chemical analog of estrogen, in other words.
Phytoestrogens in things like plastics and birth control are ripping apart natural fertility in the Western world. Increasingly this is everywhere.
Accutane damages the ability to clear the system, so that is the most likely.
----
Everyone with dry skin issues: Take creatine monohydrate powder with juice or some light tea. Also MSM. Creatine is more important though. If you haven't tried that you haven't tried the cheapest, best researched hydrater and energizer out there. It's not perfect, but it works. Consistently.
At some point I'm going to post a full list of what's worked for me. I agree with cannabis, smoking tobacco (in extreme moderation - don't try it if you can't control it), and taurine.
Also get as much sun as you can. Vit D absorbtion from food or supplements is clearly inhibited. D from sun is alright, but I need a lot.
Hey, one bright note is that if we're damaged by accutane a good number of us are probably genetically similar in some way. Fucked up as we may be, we're kind of like family with all the good and bad that entails. One day we'll find out more.
God willing, the people who made this happen at Roche are going down.
Sorry you have PCOS I have it too. I was misdiagnosed for years.
I have had some form of acne or other since I began menstruating at 12. I never really knew why...lasy year I had the worst outbreak ever, my skin was horrible and oily and I took spiro along with accutane (bad idea).
The spiro gave me extreme low blood pressure, no energy and well, the accutane--1 month on only 10 mg--made me suicidal, that along with PCOS.
A few months later I started taking yaz, and saw palmetto and spearmint. Within 4 months my skin was clear. I had cystic acne and extreme oiliness, and almost a year later my skin is great, I dont wear makeup and if I get anything its tiny red pimpes which disappear in a day.
Last year I truly felt everything sucked, I didnt want to live life anymore. Dont allow it to happen to you, keep trying different things until you have your acne and PCOS under control. There is hope, I really am OK now. I wish you luck 
)
Three important pieces of news:
1. I have PCOS.
2. I am now on spiro.
3. Everything sucks.
Change your diet. Trust me, it helps. And I really did use to eat a lot of fish (I was pescatarian.) I used to eat chocolate, peanut butter, and nuts all the time, but now on my low oxalate diet, I can't. Trust me, the cravings will disappear. And you'll feel better.
My doctor prescribed me 100 mg spiro, so I'm going to half it and do 50 for the first three weeks to see how it affects me. Believe me, if I start getting adverse effects, I now know to back off.
I have low estrogen, so evening primrose oil and peppermint tea are what have knocked out my acne. I'm going to keep on them.... I'm pretty sure EPO has helped to bring the moisture back to my skin.
For me, the physical side effects while on 1 month of accutane were considered "normal"--dry bleeding lips which came off in pieces, nosebleeds and fatigue. But the mental aspect was the worst, I looked and felt like a zombie. I was filled with a deep depressive dread, everything seemed wrong, it was like the world had turned into a horrible place. I was never able to relax, even when I was sleeping I was jolted awake by panic attacks.It took a good 3-months after stopping accutane before I no longer felt suicidal. I literally had someone with me at all times, my husband had booby traps in my room at night so he could hear if I got up. He was terrified I would kill myself, and I nearly did.
Almost a year later, I have mostly recovered from the physical effects, though I flush easily and am sun sensitive. I also am having hair thinning, most people say they dont notice it but its very noticable to me. Im using herbal oils to help scalp cirulation but my hair will probably never be the same.
Here are pics of me, the green dress is my hair before all this crap.
The second is me in a zombie-like state on accutane--scary blank expression and all. Scary isnt it?
The third is my hair in the right light which shows thinning at the front.
All my life, I always said I had too much hair, it was very thick. I guess we should watch what we say :-I
Anyway, good luck to you all. Fuck Roche.
The family of accutainted people we do share a bond indeed a close one as we can all relate to this
b.s of unwilling poisoning by our trusted elders , oil of oregano is a wonderfully natural antibiotic and is excellent for the immune system , I buy wild organic kind
it is potent as hell and burns the mouth for a few minutes even just one drop but it works and makes me feel better.
Does anyone have ear issues ie tinnitus from the poison ??? I have tinnitus in my left ear it is a constant buzzing sound , I'm lucky
it's mild but I have read of many people with this problem some have it really loud which must suck . Ginkgo biloba
is good for tinnitus as it drastically improves circulation something isotretinoin user have a lot less of so I think I'll pick
some up at my local health food store , my circulation sucks
and my fingers go numb super easy in the cold hmmm wonder why .... a yes sarcasm at it's best ha.....
"accutainted", I must remember that :-I
I agree, herbals are probably better than trying to counteract this poison with more poisons, er, meds. I just bought an oregano plant because they keep mosqitos away also.
I had tinnitus after accutane. I cant really say if accutane caused it, because I a) shot myself, so it could have been from the blast though it didnt appear till a month after the gunshot, and b) I tried to od on various otc meds, ibuprofen, benadryl etc. It didnt kill me but I felt fucked-up for a month, the day after I noticed tinnitus. That among other things, dont try to od it wasnt fun, I had vision/hearing/muscle problems and thought I was damaged forever. God has been kind to me in that Ive recovered from that od attempt. That was about 8 months ago, the tinnitus has faded a lot. I do take a supplement ginko and b 12 so maybe it helped.
I recently caught momo at 31 which is pretty late...I wondered if maybe accutane lowered my immunity? Because of losing too much weight I develped a rare ear dysorder called PET. It feels like your ear is blocked but the tube is actually open all the time when it should stay closed.
I have bad cirulation I get chilblains but I cant blame accutane Ive always had that.
All this fun stuff.
I am doing great, in 2nd round job interviews, working in meantime, tons of travel for interviews, able to do it without problem. Switched from scallops to shrimp for minerals, that worked. Everything else same. I get my life back.
Sorry to hear others are still struggling.
Joseph do you want to elaborate on what your deprived diet has helped with exactly?
Augeriesofinnocence-I have tinnitus as well. It sounds like the day after standing next to the pa at a queens of the stonage show except its all the time. It gets worse at night. For me it started about 6 months ago.
Your hair looks still healthy it doesn't look dry, again you should rejoice you only took it for one month.
I think of course the damage from side effects are relative to the dose ingested, but that's not to say that ppl don't suffer after taking a small amount because hey,we know this drug is poison full stop.
On a side note I was watching intervention the other day and I though to myself, Everything is a poison to humans and its only that dose that makes it so, but I could have taken heroin for a year and be in better shape than I now.
I see ppl after years of hard drug abuse have Healthy hair and skin, do you think they do half of the things we do for our bodies?
If we can stop one heart from breaking
We shall not live in vain
If we can ease one life the aching
Or cool one pain
Or stop one misguided person
From taking Accutane
We shall not live in vain.
Change your diet. Trust me, it helps. And I really did use to eat a lot of fish (I was pescatarian.) I used to eat chocolate, peanut butter, and nuts all the time, but now on my low oxalate diet, I can't. Trust me, the cravings will disappear. And you'll feel better.
My doctor prescribed me 100 mg spiro, so I'm going to half it and do 50 for the first three weeks to see how it affects me. Believe me, if I start getting adverse effects, I now know to back off.
Just curious what type of doctor would prescribe spirulina? and can you just buy this online in a good quality form?
Also, how severe are your symptoms? joint pain, heat palps, and painfully tired?
The doctor prescribed Spironolactone - a potassium sparing drug used for water retention (aldosterone antagonist); also an androgen receptor antagonist. In a word, an anti-androgen. I appreciate that she has PCOS, but if she also has pre-existing Accutane sides there will be a compounding effect. Androgen receptor blockade can't be done indefinitely; just look to cancer for that.
My husband took accutane in the mid-80s, he was just a teen...he has a lot of IBS issues, dry eye and arthritis which likely came from the drug.
Weve been experimenting with his diet, he doesnt eat dairy and gluten. Doesnt seem to have a problem with beef but everyone is different, thanks for the suggestions.
I keep extremely detailed records of my daily performance, so yes I can elaborate.Dropping to 1000 calories of grass fed low fat meat and homemade yoghurt stopped the gut cramps. Shrimp avoids micronutrient deficiency -> fatigue and dizzyness.WIthout this diet, excruciating gut crumps, IBS dumps, bloody stool, horizontal most or all of day, barely able to take care of self for basic cooking, acne, depression, mental fog, unable to work, unable to enjoy anything, insomnia, whacked out circadian rhythm, social incompetence, body pain, etc. Difficult not to be suicidal, particularly during cramps. My threshold for suicide is either unbearable pain or zero hope of becoming useful and effective.
On a side note I was watching intervention the other day and I though to myself, Everything is a poison to humans and its only that dose that makes it so, but I could have taken heroin for a year and be in better shape than I now.
I see ppl after years of hard drug abuse have Healthy hair and skin, do you think they do half of the things we do for our bodies?
^ this is very true. almost anything is toxic in large amounts, you eat too many carrots you turn oragnge, too much sun causes skin cancer or wrinkes, too much nutmeg will give you paranoid hallucinations. Hell even too much water can kill you--water!
Ive seen people on drugs who look fine and Ive seen ones who like like Keith Richards. :-I I wouldnt mess with illegal drugs for anything however most of the legal prescriptions are no safer.
Joseph do you want to elaborate on what your deprived diet has helped with exactly?
Augeriesofinnocence-I have tinnitus as well. It sounds like the day after standing next to the pa at a queens of the stonage show except its all the time. It gets worse at night. For me it started about 6 months ago.
Your hair looks still healthy it doesn't look dry, again you should rejoice you only took it for one month.I think of course the damage from side effects are relative to the dose ingested, but that's not to say that ppl don't suffer after taking a small amount because hey,we know this drug is poison full stop.
On a side note I was watching intervention the other day and I though to myself, Everything is a poison to humans and its only that dose that makes it so, but I could have taken heroin for a year and be in better shape than I now.
I see ppl after years of hard drug abuse have Healthy hair and skin, do you think they do half of the things we do for our bodies?
Joseph do you want to elaborate on what your deprived diet has helped with exactly?
Augeriesofinnocence-I have tinnitus as well. It sounds like the day after standing next to the pa at a queens of the stonage show except its all the time. It gets worse at night. For me it started about 6 months ago.
Your hair looks still healthy it doesn't look dry, again you should rejoice you only took it for one month.I think of course the damage from side effects are relative to the dose ingested, but that's not to say that ppl don't suffer after taking a small amount because hey,we know this drug is poison full stop.
On a side note I was watching intervention the other day and I though to myself, Everything is a poison to humans and its only that dose that makes it so, but I could have taken heroin for a year and be in better shape than I now.
I see ppl after years of hard drug abuse have Healthy hair and skin, do you think they do half of the things we do for our bodies?
@thefrenchguy- It was nearly the same for me. I was lucky enough to experience my emotions, along with my sex drive, nearly disappear all in the same day. A 24 hour chemical labotomy + chemical castration via Accutane. It got a little better for me over the next few months, but nothing has been right since that day.
The depression and lowered libido while on the drug were minor, and my "crash" happened a few weeks after stopping the drug.
I have to ask, were you still taking accutane around/on the day your emotions got wiped-out?
@09eric09- Hey, the first few years may be the toughest. I was feeling pretty well during my mid 20s compared to the first few years dealing with the side-effects, there were several periods of ups-and-downs though.
Things didn't begin turning total shit again till around 29/30 years old.
...You may get a little better someday, maybe even someday soon, but don't expect any "feeling nearly 100 percent" miracles until the cause of the side effects is figured out. Sorry.
Oli summed it up pretty well. This may be a life-sentence for some of us.
The full-recoveries I am aware of happened in the first year for the lucky few.
About a year ago or so I did a little experiment with stinging nettle tea , normally a wonderful detox for the body , so I drank about four cups of it
per day thinking this would cleanse my body pretty well , the usual course is one month of drinking it , I read this in an old herbal book my dad
had he does a course once a year and he is 87 years old , well after a month or so my left arm went numb the whole
arm and I started getting heart papulations , this lasted for about a month or so .
The heart papulations only lasted a few days but my arm was literally
numb for a month after my tea course , so I looked into the constituents of stinging nettle and I found out it has many vitamins and minerals
but it is high in Vit A , so yeah high doses of vit A even natural are not good for us ,
So this proves my theory that we are hypersensitive to vit A in a bad way. In other words too much vit A worsens our symptoms.
@thefrenchguy- It was nearly the same for me. I was lucky enough to experience my emotions, along with my sex drive, nearly disappear all in the same day. A 24 hour chemical labotomy + chemical castration via Accutane. It got a little better for me over the next few months, but nothing has been right since that day.
The depression and lowered libido while on the drug were minor, and my "crash" happened a few weeks after stopping the drug.
I have to ask, were you still taking accutane around/on the day your emotions got wiped-out?
I took the drug for 2 weeks and at the end of the 2nd I felt something wrong in my body and mind (like I wasn't the same) and so decided to quit the drug. I was constantly improving the week after having stopped but after 7 days off the drug I felt something wrong going on at lunch and at dinner I was a zombie with no more emotions like a machine ( no more happy, no more surprised, no more sad, just empty).
So my side effects really began after having quit the drug which is hardly comprehensible.
However, may be thanks to the low-dose I recovered 90% of what I was before. Another odd thing is that my situation is not stable (some days I'm exactly like before the drug and somedays I'm experiencing side-effects of the drug like chapped lips in summer which can go away the days after