Acne.org Products
Just got back from my new derm, who looks like a botox clown but apparently is very good who treats movie stars and such, he told me, which I thought was interesting. Anyway, he said that I have a mild form of rosacea and prescribed oracea, has anyone tried this. He said the hair loss was most likely on the verge of reversing itself, probably as soon as I stepped out of his office since it hasn't for the last 16 months. I'll see what the allergists has to say regarding my immune system but every time I meet with a new doctor or derm I always just want to punch them in the face.
Oracea could be good, i haven't tried it myself but it can potentially be very helpfull, let me know how you get on.
The active ingriedients in oracea are a time released doxycycline and a normal dose of doxy, doxy interupts inflamation pathways, reducing the inflamatory process within your cappilaries.
Hey bro Lamarr, I have stop using emu oil on my scalp and I mainly applied it on frontal hairline but I have to stop using it due to tiny bumps developing on my hairline which I believe was due to the oilyness from emu oil. The natural oil on my scalp had returned after I stopped taking accutane for over 3 weeks which I believe might be a good thing.
Yes, it contain tocopherol. No wonder I got such problem. What's the brand that you are using bro? Any website?
Ah that will be why then buddy, i also made that same mistake once and the stuff made me break out like crazy, witamin E does that.
I can't really recommend a brand but i just get 100% pure emu from ebay, nothing added nothing removed, look for a similar product bro!!
Yes, it contain tocopherol. No wonder I got such problem. What's the brand that you are using bro? Any website?
Ah that will be why then buddy, i also made that same mistake once and the stuff made me break out like crazy, witamin E does that.
I can't really recommend a brand but i just get 100% pure emu from ebay, nothing added nothing removed, look for a similar product bro!!
lamarr1986,
Can you give me a link to the Emu oil that you're using? I looked at some on Ebay but a lot of them don't say if they include vitamin E or not. Don't want to buy the wrong one. 
My head does itch so I guess I'll give emu oil a try.
Thanks in advance
I use this one, but i normally buy atleast 3x60ml at a time, i slather it on!!
http://cgi.ebay.co.uk/100-Pure-Australian-...1QQcmdZViewItem
I, too, went to a new derm yesterday. At least this one admitted that Accutane, indeed, causes hair loss and that in his experience most people do recover, but he did let me know that some of his patients have not. He also let me know that with this type of TE (which most docs think last 3-6 months) is not strange to continue up to two years. Again, all of this is not new to us, but it was kind of refreshing to have at least someone admit this. I pushed on the AA theory - he said he has also seen this happen, but doesn't think this is what is going on in my case (i have not lost eyelashes, eyebrows or any other body hair during this process). He looked at my follicles and said that I do not have scarring (which means the follicle is dead) and did see new growth. He also admitted that I have lost a ton of hair (i actually have basically a bald spot at the top of my head and on the back of my head b/c of all the hair I have lost). He told me I could either wait things out (my shed all week has been down to 100-120) or I could use Rogaine. I asked him why all derms push Rogaine and he apologized and said that unfortunately for men there are only two options for them to recommend (Propecia and Rogaine) and for women, only Rogaine. He has seen it work for other types of TE shed (i.e. post-baby shed) and really believes one doesn't need to use it forever if they don't have AGA (which he is almost sure I do not have). Again, I am so torn as to what to do - I almost want to kick myself in the a** b/c I didn't start the Rogaine previously (if I'm going to do it now).
I also want to let the group know that he recommended a particular biotin pill - it's called Appearex - if you see the bottle it simply states it contains 2.5 mcg of biotin - so i asked why i needed to buy this brand - he said for some reason this brand is better absorbed by the body - (i actually googled it and saw some people said it helped with their accutane hair loss!)
EDIT: To ithappens - the doc also admitted that Tane can also drastically change the texture of the hair.
Gracie, did you inform him of the diffuse AA? I still think most derms don't recignise this form of hairloss anywhere near as much as they should...
The diffuse AA can easily e confined to the scalp and the only real way to tell between TE and Diffuse AA is a biopsy, or as most derms do, use a topical steroid to "test the water" so to speak, if you have a response to the steroid you know what you have...
Edit: also i would just like to add, those of you that have no other side effects you should rest assured you hairloss is almost certain to resolve, the people who have this long term have numerous other health issues related to tane...
Common side effects that seem to go hand in hand with long term hairloss include rosacea like symptoms, mouth ulcers(canker sores)/cold sores, cold extremities (hands and feet) otherwise known as raynaud's. I actually have all of the above 
. Julius who posts in this thread sometimes has been loosing his hair for 7 years and he has the raynauds and cold sores, i know two other guys who have the flushing and raynaud's along side the hairloss (they have also been loosing hair for 7-9 years).
A few of us are working on a few different treatments and i will obviously let everyone here know if anything works out.
Lamarr - I told him about this web-site and about how some people have been diagnosed with diffuse AA - he agreed that he has definitely seen it in some patients (although he said it was "rare") - he doesn't believe in biopsies (many derms in the states I'm finding out do not like doing them) - the reason is that most often times they come back inconclusive so it's pointless to do them in the first place. I think he would have tested the AA theory out more with me if I had any other side effects from the Tane - fortunately (if I could say this) i only have hair loss as a side.
Max - that is the biotin - evidently it's "pharmaceutical grade" biotin and is better absorbed by the body. I"m going to pick some up today.
I have also been taking the Hair, Skin and Nails vitamins (that i think blaze mentioned) and my nails are growing like crazy - maybe this is also why i've noticed a decrease in shed?
Gracie did you go on the pill for accutane? or were you already on it? If so did you stop taking it when you finished tane? The pill could just as likely be the cause if you started/stopped taking it around the same time as accutane. Either way it is just a matter of time until you recover so i wouldn't worry...
Like you said you will probably have to go through something similar post partum 
I was actually already on the pill before I started Accutane - BUT, i ended up switching brands in Sept (because I had read that my brand wasn't "hair friendly" - needless to say, I hated the new pill and ended up switching back in January-still on it (have been for 9 years) - My derm said that my TE could be extended by the switch in the pill as well as my "severe" emotional stress b/c of the loss (i actually had to take some time away from work because of it).
Also - (and I'm glad you mentioned this Mark) - the derm said once you experience a TE shed you are way more susceptible to having them in the future due to other things. He basically told me I would definitely have one if I ever have a baby. GREAT!
Update on my situation. I am barely shedding mich hair anymore. I will rarely get any hair in the shower drain, even after not washing my hair for 2-3 days. The thing is I still lose the occasional short and tapered hair so I know I'm not out of the dog house yet. By the way Lamarr, really appreciate you providing so much information.
Update on my situation. I am barely shedding mich hair anymore. I will rarely get any hair in the shower drain, even after not washing my hair for 2-3 days. The thing is I still lose the occasional short and tapered hair so I know I'm not out of the dog house yet. By the way Lamarr, really appreciate you providing so much information.
What was your regimen?
lamar,
we all greatly appreciate your breath of knowledge, it truly is a help!
i was wanting to know if there is any way you could summerize all of your findings for us! i want to show my derm the information you have extracted. you have so many posts in this forum and if there was a way to condense that into a research like paper that we could all draw conclusions from, i think that would go miles in our efforts to stop this!
Hi all!! I've been lurking for months so I feel like I know all of you personally.
Quick background on me is that I am a 37yr old female that took tane for 4 months almost 4 yrs ago.
Lamarr I truely appreciate your input as I have read all of your posts in this forum as well as some of them in the Accutane Action Group forum as well. I've tried several different remedies thru the years and I do not intend to give up however am finding your following statement inaccurate in that I am very healthy in all other respects (lucky me) but have yet to find anything that has slowed down my hairloss (150-175/day) and it certainly hasn't stopped after 4 years.
Edit: also i would just like to add, those of you that have no other side effects you should rest assured you hairloss is almost certain to resolve, the people who have this long term have numerous other health issues related to tane...
I finally gave in and starting using Rogaine about 1 month ago. Other than that I take 500mg Biotin, a daily viatmin, calcium and just started the 600mg grapeseed extract (as recommended by Lamarr).
Kara
PS I tried that supplement/medicine by Dr. Shah that was mentioned some time back but it did not make the slightest difference.
Hi all!! I've been lurking for months so I feel like I know all of you personally.Quick background on me is that I am a 37yr old female that took tane for 4 months almost 4 yrs ago.
Lamarr I truely appreciate your input as I have read all of your posts in this forum as well as some of them in the Accutane Action Group forum as well. I've tried several different remedies thru the years and I do not intend to give up however am finding your following statement inaccurate in that I am very healthy in all other respects (lucky me) but have yet to find anything that has slowed down my hairloss (150-175/day) and it certainly hasn't stopped after 4 years.
Edit: also i would just like to add, those of you that have no other side effects you should rest assured you hairloss is almost certain to resolve, the people who have this long term have numerous other health issues related to tane...I finally gave in and starting using Rogaine about 1 month ago. Other than that I take 500mg Biotin, a daily viatmin, calcium and just started the 600mg grapeseed extract (as recommended by Lamarr).
Kara
PS I tried that supplement/medicine by Dr. Shah that was mentioned some time back but it did not make the slightest difference.
Excellent! the more the merrier!
welcome.
first off i am very sorry to hear about your situation.
secondly, i find it incredibly intriguing that we have these females that are suffering, just as bad as the men! so to all the dermatologists that throw rogaine at you and say you have MPB....ha!
and also can you be a little more desciptive about your condition? do you beleive that it is diffuse AA, telogen or what?
and finally, you claim to have tried several different remedies, what were they? i think this is very important!
phan23 said:Hey lamarr,Are you still taking Biotin? I just read from another forum and they were talking about how biotin can help with diffuse hair loss. This seems promising
Heres the link Link
finally something positive...
that post had people taking 15 mg a day!! wow!
i think ill stick to 2 mg...
Update on my situation. I am barely shedding mich hair anymore. I will rarely get any hair in the shower drain, even after not washing my hair for 2-3 days. The thing is I still lose the occasional short and tapered hair so I know I'm not out of the dog house yet. By the way Lamarr, really appreciate you providing so much information.What was your regimen?
I don't really have much of a regimen. I take propecia because it helps to prevent minaturization of the hairs which I am losing over and over again. As I said though, I'm still losing short and tapered hairs which indicates my hair cycle is not back to normal yet 