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The answers I got from my doctor about hair loss

 
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1147
(@lamarr1986)

Posted : 09/02/2007 12:23 pm

well i have only been shedding for 4 and a half months, but the thing is it doesn't seem to be slowing down at all, if anything it's speeding up as the weeks go by :S, when it comes to propecia etc, i have read we have a window of 30 months from the time mpb starts (if it has come into play) and the time we begin treatement, before any permanent damage is done, obviously we have to factor in any damage that accutane may or may not of done...

 

But yeah if you were to start propecia now, you should atleast maintain decent coverage, just like a woman going through chronic TE, i'm still going to try and wait it out, if i have my hair buzzed short i will begin using my topical spironolactone (sp)

 

Edit, i'm also 6 months post tane...

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(@davidhatesacne)

Posted : 09/02/2007 3:07 pm

it really seems like a lot of people that have been involved with this have continued shedding. it's very bizarre that none of us have a happy story to tell yet. i guess we will see in 6 months.

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(@ithappens)

Posted : 09/03/2007 12:42 am

i'm in month 7 post accutane. trust me if propecia doesn't stop the shedding I'm fucked big time.

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1147
(@lamarr1986)

Posted : 09/03/2007 3:34 am

How much do you shed atm? i still loose around 150 hairs a day... but i constantly have alot of regrowth, less so at my temples though....I don't think propecia will stop the shedding, but should hopefully enable you to regrowth hair that hasn't been so far...

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(@sverd)

Posted : 09/03/2007 4:35 am

How much do you shed atm? i still loose around 150 hairs a day... but i constantly have alot of regrowth, less so at my temples though....I don't think propecia will stop the shedding, but should hopefully enable you to regrowth hair that hasn't been so far...

Its really hard to say, maybe 50 on a bad day. Actually I'm not even sure if I lose that much. It's definitely going better than it was a few months ago. You probably know what I mean when I say I didn't really have a limit to how much hair I was losing. Like once I stood over the sink and brushed my hands through my hair for a few minutes and I lost about 40 hairs right there. Well I tried that again this morning and I lost 5 hairs after brushing my hands through my hair repeatedly for a few minutes.

 

I'm just worried because I have some regrowth but not a lot.. Can it take longer before hair starts growing back in? 4 months since I started shedding.

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(@pikapig)

Posted : 09/03/2007 4:48 am

Just curious..will this effect be the same for nimegen?

 

apparently i didnt tot that consuming accutane could cos such a big effect...i am onli 3 days old with nimegen...and i am really afriad now...

 

its seems to be a trade off between hair and facial...

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MemberMember
1147
(@lamarr1986)

Posted : 09/03/2007 5:33 am

Nimegen as you call it is just a generic isotretinoin, it will have exactly the same effects, hairloss may appear common, but it isn't as frequent as it would appear from this forum...

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(@sw-cub)

Posted : 09/03/2007 12:25 pm

its hard for me to even estimate how many hairs I lose. There is no way they I can really keep track. I can count the hairs in the shower drain each time, but other than that I have no idea how many are coming out when I dry my hair or the hairs that fall out throughout the day. The other thing is when I run my hands through my hair I can always catch a few hairs so how should this be accounted for. If I run my hands through my hair a bunch of times in a day I can lose hundreds of hairs but if I don't I will lose a much lesser amount.

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(@jade2)

Posted : 09/03/2007 5:23 pm

its hard for me to even estimate how many hairs I lose. There is no way they I can really keep track. I can count the hairs in the shower drain each time, but other than that I have no idea how many are coming out when I dry my hair or the hairs that fall out throughout the day. The other thing is when I run my hands through my hair I can always catch a few hairs so how should this be accounted for. If I run my hands through my hair a bunch of times in a day I can lose hundreds of hairs but if I don't I will lose a much lesser amount.

 

 

 

Well. it seems that I'm the one that's been the longest off accutane and still shedding. I'm now in month 10. Although I did shed quite a bit throughout the treatment, but only noticed toward the end that my hair had considerable thinned.

 

I think my hair loss sounds a lot like Lamarr's, I lose a lot of short and long hairs, but I think I have constant growth...but the new hairs keep falling as well. For those of you at month 7-8, hang in there cause I'm at month 10 and still not bald. But I have lost 40% overall volume. Although, in the last couple of weeks I seemed to have started another really heavy shed (it had slowed down a little over the last 3 months). I just run my hands through my hair and 10-15 come out! It is suddenly feeling thinner again? I don't know of different shed cycles during accutane recovery, but if anyone has - please let me know! It's really getting my down again....

 

I'm trying to stay drug free for as long as I possibly can, but like a few of you my front hair line has receded slightly and my temples are so obviously thin.

 

Thanks Lamarr for the soy product suggestion - i'm going to try and eat more. I've started on grape seed extract as well, so fingers crossed I hope it helps!

 

Jade

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1147
(@lamarr1986)

Posted : 09/04/2007 12:51 am

its hard for me to even estimate how many hairs I lose. There is no way they I can really keep track. I can count the hairs in the shower drain each time, but other than that I have no idea how many are coming out when I dry my hair or the hairs that fall out throughout the day. The other thing is when I run my hands through my hair I can always catch a few hairs so how should this be accounted for. If I run my hands through my hair a bunch of times in a day I can lose hundreds of hairs but if I don't I will lose a much lesser amount.

 

 

 

Well. it seems that I'm the one that's been the longest off accutane and still shedding. I'm now in month 10. Although I did shed quite a bit throughout the treatment, but only noticed toward the end that my hair had considerable thinned.

 

I think my hair loss sounds a lot like Lamarr's, I lose a lot of short and long hairs, but I think I have constant growth...but the new hairs keep falling as well. For those of you at month 7-8, hang in there cause I'm at month 10 and still not bald. But I have lost 40% overall volume. Although, in the last couple of weeks I seemed to have started another really heavy shed (it had slowed down a little over the last 3 months). I just run my hands through my hair and 10-15 come out! It is suddenly feeling thinner again? I don't know of different shed cycles during accutane recovery, but if anyone has - please let me know! It's really getting my down again....

 

I'm trying to stay drug free for as long as I possibly can, but like a few of you my front hair line has receded slightly and my temples are so obviously thin.

 

Thanks Lamarr for the soy product suggestion - i'm going to try and eat more. I've started on grape seed extract as well, so fingers crossed I hope it helps!

 

Jade

 

 

Heya Jade, yeah my hairloss does seem like how you describe, i am starting to loose more shorter hairs than anything though... I can tell they are newly formed (within the last 4 months) due to the fact they have a feathered edge e.g. haven't seen a pair of scissors!!

I think the soy product is a good idea for all of us, prescriptions drugs aren't always the answer but we have been drilled to believe nothing provided by nature is 'strong' enough. The soya contains all amino acids we need for hair growth coupled with it binding to DHT and stopping its negative effects.

 

Jade one more thing i forgot to add, you should use nizoral 2-3 times a week if you can (keep an eye out for any scalp irritation) this has been proven to some degree to aid hair growth and possibly even reduce scalp dht (some body builders use it for acne) it is one of the most popular shampoos in the hairloss community!!

 

I know i'm only in the early days compared to you jade but my hair seems very thin one month then can thicken up the next!! i hope it is all to do with when our hair was 'shocked' into its resting state all those months back!!

 

best of luck

 

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(@sverd)

Posted : 09/04/2007 6:07 am

Oh god I just had a nightmare that the top of my head was almost bald and I had those orange dots covering my scalp that old men have. Now I definitely know I would become suicidal if I started going bald. :o

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(@blazedjin)

Posted : 09/04/2007 9:10 am

Does anyone have scalp irritation? I think if you don't then you should be fine because I have really bad scalp irritation and it must be a sign that there is permanent damage to my hair follicles.

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2
(@_andy_)

Posted : 09/04/2007 10:59 am

How much do you shed atm? i still loose around 150 hairs a day... but i constantly have alot of regrowth, less so at my temples though....I don't think propecia will stop the shedding, but should hopefully enable you to regrowth hair that hasn't been so far...

Its really hard to say, maybe 50 on a bad day. Actually I'm not even sure if I lose that much. It's definitely going better than it was a few months ago. You probably know what I mean when I say I didn't really have a limit to how much hair I was losing. Like once I stood over the sink and brushed my hands through my hair for a few minutes and I lost about 40 hairs right there. Well I tried that again this morning and I lost 5 hairs after brushing my hands through my hair repeatedly for a few minutes.

 

I'm just worried because I have some regrowth but not a lot.. Can it take longer before hair starts growing back in? 4 months since I started shedding.

 

 

Hey. I think we should regrow hair in the order we lost it. So just because you only some regrowth doesn't mean you won't see a lot more of it soon. Period of regrowth should equal the period of shedding. For instance, I shed for 4 months. So I will regrow hair over four months.

 

My shedding (which started up again) is slowing down again - I think. I really hate this situation. I see regrowth and my hair is definitely better than when this all started, but I'm worried about a resolution.

 

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2
(@_andy_)

Posted : 09/04/2007 11:03 am

Does anyone have scalp irritation? I think if you don't then you should be fine because I have really bad scalp irritation and it must be a sign that there is permanent damage to my hair follicles.

 

I don't think scalp irritation has anything to do with the follicles. Scalp irritation has more to do with lack of sebum due to Accutane.

 

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1147
(@lamarr1986)

Posted : 09/04/2007 12:41 pm

i did have scalp irritation, but then i realised i was over using nizoral (use the 2% strength here in the uk) and once i lessened the use of that my scalp is A ok again...

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(@jade2)

Posted : 09/04/2007 8:32 pm

Hey Lamarr,

 

Thanks for the Nizoral tip - I really had no idea that it could help - I'll give it a go! I know what you mean about some months your hair feeling fuller than others...lately though, the last couple of weeks, it's been really shedding and feels much thinner again :( I also have that slight scalp pain when I touch my hair or move it around that I remember at the beginning when it was falling out like crazy. Did you ever experience that sensation?

 

I too shed a ton of little short new hairs that can't possibly have been cut (1-2 inches), but also long ones (although some days it seems more short ones). That makes me think our hair is definitely going through short cycling and does worry me. For some reason even the new hairs being produced can't remain....

 

The thing that is getting me down is that it's been 10 months now and it seems to suddenly be getting worse again....shouldn't it be getting progressively better if it's just TE from accutane? I mean more recovery stories that I've read said the shedding progressively slowed (albeit sometimes took a long time). I remember reading about one girl who had a long bout of TE induced by accutane but then later discovered it was AGA as it progessively got worse and didn't recover! I keep wondering if in some cases Accutane induced TE (if prolonged) can lead to AGA? I'm probably just being paranoid...just having a very bad, thin hair day....

 

Jade

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2
(@_andy_)

Posted : 09/04/2007 9:47 pm

Hey Lamarr,

 

Thanks for the Nizoral tip - I really had no idea that it could help - I'll give it a go! I know what you mean about some months your hair feeling fuller than others...lately though, the last couple of weeks, it's been really shedding and feels much thinner again :( I also have that slight scalp pain when I touch my hair or move it around that I remember at the beginning when it was falling out like crazy. Did you ever experience that sensation?

 

I too shed a ton of little short new hairs that can't possibly have been cut (1-2 inches), but also long ones (although some days it seems more short ones). That makes me think our hair is definitely going through short cycling and does worry me. For some reason even the new hairs being produced can't remain....

 

The thing that is getting me down is that it's been 10 months now and it seems to suddenly be getting worse again....shouldn't it be getting progressively better if it's just TE from accutane? I mean more recovery stories that I've read said the shedding progressively slowed (albeit sometimes took a long time). I remember reading about one girl who had a long bout of TE induced by accutane but then later discovered it was AGA as it progessively got worse and didn't recover! I keep wondering if in some cases Accutane induced TE (if prolonged) can lead to AGA? I'm probably just being paranoid...just having a very bad, thin hair day....

 

Jade

 

Jade,

 

Have you been seeing miniaturized hairs? Fine, less pigmented hair?

 

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MemberMember
1147
(@lamarr1986)

Posted : 09/05/2007 8:18 am

Hey Lamarr,

 

Thanks for the Nizoral tip - I really had no idea that it could help - I'll give it a go! I know what you mean about some months your hair feeling fuller than others...lately though, the last couple of weeks, it's been really shedding and feels much thinner again :( I also have that slight scalp pain when I touch my hair or move it around that I remember at the beginning when it was falling out like crazy. Did you ever experience that sensation?

 

I too shed a ton of little short new hairs that can't possibly have been cut (1-2 inches), but also long ones (although some days it seems more short ones). That makes me think our hair is definitely going through short cycling and does worry me. For some reason even the new hairs being produced can't remain....

 

The thing that is getting me down is that it's been 10 months now and it seems to suddenly be getting worse again....shouldn't it be getting progressively better if it's just TE from accutane? I mean more recovery stories that I've read said the shedding progressively slowed (albeit sometimes took a long time). I remember reading about one girl who had a long bout of TE induced by accutane but then later discovered it was AGA as it progessively got worse and didn't recover! I keep wondering if in some cases Accutane induced TE (if prolonged) can lead to AGA? I'm probably just being paranoid...just having a very bad, thin hair day....

 

Jade

 

 

jade i would imagine that girl would of had some sort of hormone problem... If you haven't been tested then i think you should have your androgen/testosterone levels checked!! it is easily fixed in women so don't worry if they come back high, if you have had them checked then i wouldn't worry about AGA. i really wouldn't just keep your nutrition optimum as we have discussed!!

 

My hair is also feeling the worst it ever has at the moment, i loose a riduculus amount but i'm not counting anymore, i'm doing all i can so there is no point in dwelling...

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(@jade2)

Posted : 09/05/2007 12:43 pm

Andy,

 

I have definitely seen finer, short new hairs falling out too. I can see a definite difference between the longer thicker (older hairs) that fall out and the new ones. No change in pigmentation though. I wasn't too worried about this because I read in TE as the hair is cycling and trying to recover you can get these intermediate hairs that are finer and that will fall out? Have you heard of that?

 

Jade

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(@jade2)

Posted : 09/05/2007 12:51 pm

Lamarr,

 

I am definitely going through another sudden heavy shed - I run my hands through my hair and each time at least 10 hairs come out and it is worse in the mornings! This reminds me of the beginning...uggh. I know what you mean about dwelling though, there is no point and I no longer count either.

 

I actually did have my hormones tested a while back and everything came back ok. I did go again last week though to check again due to the heavy shed and should have results next week. Are your new short hairs that you are losing finer as well? Have you ever heard of another accutane case where the shedding got worse and then better again?

 

 

best,

 

jade

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MemberMember
1147
(@lamarr1986)

Posted : 09/05/2007 1:32 pm

Alot of them are slightly finer yes, but not by much and i have read this is typical of prolonged TE, i still dont have enough recession to believe i am suffering in any way from MPB and my loss is even throughout my scalp, e.g. sides are same as the top...

 

The reason for them being smaller in prolonged (i'm not using chronic as i don't believe it can be definate for us yet) is that the body doesn't provide as much nutrients to that individual hair follicle (or can't for some reason), i don't believe they have been miniturized by dht...

And yes your first post is also another reason for this... If i look closely at my hairs, at the ends oposite the club ends e.g. the end that first pokes out from my scalp, the end are often finer and then thicken up towards the bulb, if MPB (AGA) is the case, it would be the oposite as many people suffering from mpb see a finer strand of hair towards the club end of the hair e.g. the newest part of the hair is under attack from DHT/inflamation...

 

About the shedding becoming worse before it gets better, when we think about it i suppose it would make sense, if we are nearing the end we would possibly see a wave of regrowth (which is supposedly what forces the hairs out) so i guess that makes sense!!

i don't think this is always the case though..

what i wonder to myself when all of this is happening and when i see more shorter hairs than anything being shed... is whether it is only certain follicles effected and say 40% of my follicles will never be touched? i don't know i hope that is the case because then AGA/mpb would only effect those follicles being shed constantly...

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1
(@favre4)

Posted : 09/05/2007 4:39 pm

my sheddign has basicaly stopped but my hairline seems fucked? what are your all updates andy, lamaar, and dolph??

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1147
(@lamarr1986)

Posted : 09/05/2007 5:12 pm

Still shedding like a bitch, very thin ALL over, hairline not very great but not terrible...

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0
(@teapot)

Posted : 09/05/2007 5:19 pm

Heres a pic of all the hair Ive lost in the past few weeks.. its scary.

 

Heres my parting up top..

if it's any comfort, I lose that much in a single day.

 

And I'm not taking roaccutane (yet), I just have PCOS. :(

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(@jade2)

Posted : 09/06/2007 11:28 am

Lamarr,

 

What's your thoughts on taking silica?

 

Jade

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