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I ve read this topic from first to last page and didn't found out nothing besides there are people suffering same condition as me. But there isn't any receipt what to do to stop the hair loss.
My tests came back. I ve checked B12 and calcium serum. Both are good. What does it mean -> calcium level is going hard up during vitaminosis and b12 is going down. It takes some time for them to get back to normal - i didn't ask derm how long, but it wouldn't help a lot. So i am in great condition. Also b12 can show any bowel problems. My weight loss is not due to it - or is not any more. On Wednesday i am going to the trichologist. Untill that day i will try not to worry about my problems, maybe less stress can help - for sure it wont hurt. I thought about my problem like that: i have hair still, am going to be bald, but now i look not so bad, and by the time i will go worse. So i am going to enjoy now untill i am good looking. I will keep coming to that topic everyday, still putting some new theories, try to figure out solution. cheers!
Ok, time for a post.
So, first of all let me answer oil girl's questions. Yesterday, I've talked to a doctor about it and we will run some tests as soon as possible (probably within this month). She told me that this is most probably a chronic case of hypervitaminosis A which could resolve on its own in the following years. The reason for this time of recovery is that vitamin A is stored in our bodies (and cells) and there is no fast way for the body to filter it out. This vitamin is not water soluble. The "fat depots" of my body have been filled with excessive/toxic amounts of vitamin A which has lead to this condition (this is put in my own words). There are natural biological mechanisms that slowly will work to "cleanse" it in order to rebalance the organism. This explains why I am losing hair from all over my body not just from a specific area.
She also told me that I should start taking omega-3 supplements because the fatty acids could work as a slow countermeasure and speed up the "cleansing" of vitamin A. I will purchase that today.
Recently, I've started using biotin and iron supplement in normal doses. That's about it. I have a healthy diet and workout as often as I can. Since there is no healthy way to speed up the recovery process I will just endure and see what will happen.
Now, as sztuka1988 asked:
1. Drug - Roaccutane
2. Time - 8 months
3. Dosage - 1st month - 40mg, 2nd - 40/60mg, 3rd/4th/5th/6th months - 80mg, 7th - 60mg, 8th - 60/40/20mg (decreasing until the end of the treatment)
4. Total applied per body kg - between 100 and 120mg.
I weight 90kg (198 pounds) and am 1.9m tall (6.2 feet).
Skin after accutane is doing ok. Nothing like before when I was dripping oil. There is a small, barely visible pimple from time to time, a few clogged pores. Nothing unmanageable. Sometimes my skin is a bit dry (and tight especially after a shower). No cracked lips whatsoever (this side effect subsided within 2 weeks after stopping the drug). What I've noticed is a permanent thinning of my skin on my whole body - veins everywhere are clearly visible. I don't mind that at all although I know that it could and will potentially lead to wrinkles and fine lines. The only side-effect besides the hair-loss that is a bit worrying is joint-cracking but I can live with that. Bottom line, accutane did its job - it gave me clear skin.
Hey, whats up? I am still sheeding, still the same pace. Banks getting big, less hair on top, sides, back, but still looking good 
. Okay, now to the important part. I was today on "mesotherapy"? I don't know if that is good translation. I got like 100-150 shots on my head with some kind of drug. Doctor says that after 3rd round - 2nd next week - i will notice new baby hairs. If these hairs stay on my head, they will change to normal kind of hairs and my hair will grow back thick, as they were back in a day. If i lose those too, there is no possible help for me. But she said that every of hair patients stop loosing hair. She said that it is "Hollywood" method - stars dont go bald when they start treatment. It cost 65Euro for 1 round. I need to do 5-6 to the end of the year. Then 1 per 3-4 months, then 1 per 5-6 months. She said if it wont help then nothing will help. Because u put drug inside your scalp - best method possible. Also u hurt your head which is good, because it helps circulation of blood - i dont know how to say it other way 
. Ok i lied, there is 1 other treatment - propecia. But i will not do that because i would rather be a bald man then hairy impotent with boobs.
My hairloss has lasted nearly 2 years post accutane and continues.
Once thick, gorgeous long curls.
Now brittle thin fucked unmanageable mess. I wish I was a guy so I could shave my head.
regrowth is minimal - and also falls out.
Hair is DRY as fuck...
Ive tried everything, please help?????
Ok, enough is enough.
I've ordered minoxidil because this will soon completely get out of control. Some substantial recession above the forehead mainly on the two sides and overall visible thinning, so I am hoping for the best with the minox. Wish me luck and I will keep you posted on my progress.
So, I browsed the net for some answers regarding minoxidil and TE/chronic TE and stumbled upon the following post (title is "Is chronic TE reversable?") that scared the SHIT our of me:
"If the loss has been going on for years the problem is that each shed pushes the hairs into their next life cycle and each hair only has a predetermined number of life cycles. If you had 5 episodes of shedding in one year you would have aged the hairs by 25 years. Each life cycle is about 5 years. You can see that the Chronic Telogen Effluvium can then use up a lot of life cycles and it is possible that the hairs could now be at the point where you would have been at age 95 if you did not have the TE episodes. The longer you have it the less chance of getting your hair back. The chance of getting hair back in CTE of 8 years is minimal. The use of 5% minoxidil does help strengthen the hairs and acts like a crutch for them during stress so I would suggest using it or continuing to use it as you probably have already been doing so."
If that is true that would explain why so few sufferers manage to recover. This problem rapidly ages our hair. Also this would explain why even people without MPB history in their familiy (myself included) notice recession. We were predestined to get this sort of hair but many years, even decades later.
P.S. Here is a link to the official website where I found this:
[Edited link out]
On a side note, I've started using Reviva shampoo and minoxidil. That's my last resort and hope for recovery. If these do not work then I guess there is nothing I could do about this problem. I've already got a buzz and the next step would be to shave it all off because I would rather shave my head than walking around looking like an idiot with a frontline recession. My roomate suffers from MPB and he looks rediculous because he just does not want to shave away the remaining hair. While I am very sympathetic to his problem (because I can related to it) I know that this is not the way to go with it. Shave it all off will be what I would do. Counting the days...
It's been 14 months since I've started losing hair.
I didn't want to say anything before i was 100% sure, but your post convinced me to write that anyway. Yesterday i went for my 3rd shots of mesotheraphy. A week ago, after 2nd i noticed less hair in shower. And it continues to go down. I was loosing like 50 hairs, now i lose 20 max. The doctor says that she see less hair fall during shots 3rd time then 1st time. Also she see new hairs. I don't see them, but maybe there are some. Also shots hurt like a lot, much more 3rd time, then 1st. She says it's due to blood circulation. She thinks that it improved and this is why it hurts more. Also my hair texture on back and sides improves. Which is weird because i take shots only at the top. I think that the blood circulation have a lot to do with our problem. I had ichy scalp - not like a lot, but i remember even two weeks ago i used to scrach it sometimes. I didn't have a dundruff or anything that would cause it. Now i dont have ichy scalp. I don't know if those information/improvements means something, but i am sure that mesotheraphy helped. I don't know if it help on hair loss completely, if it cause hair to grow back like it was. Maybe it will, maybe it wont.
After my mesotheraphy i will buy this [Edited link out]. I think you should buy that too for your minoxidil therapy. I read that if you use that before and after applying minoxidil, the drug will go deeper. I found some sites in my country selling that and explaining why that is good, so i think you will find some info in your language.
About that article. I don't think that hair fossils can produced some kind of even number of hairs for life and for all the people. Human body is very different to the other human body and there are milions of reasons why we are different to each other. Fossils will stop to produce hair because of lack of something, not because they did their 8-9 or whatever cycles - job done, we are done here. Also we had like 200.000 hairs back in a good day. There is no way that i lost all of them - ok, top ones, say...50.000 - in my 7 months of sheeding. Even once, not to say 5 times. My problem was/is that there is no new hairs in the place of the lost ones. I think that my case, yours and everyone else here is not TE, CTE. Why i think that? Because we would loss more hair each day. redemption2501 - for my understanding for yours 14 months shed - if you had TE or CTE you would be bald, and for a few months already. I don't believe in MPB also. I think it something new. It is some kind of sickness, shortage of something, damage, that cause hair to fall out.
Thanks for your reply, I appreciate your input. I am already using a product that has an advanced nano technology for better absorption. It's early days to notice anything but I will stick to it for at least 3 months and will see how it goes. At least this Reviva shampoo is pretty good and it leaves my hair very soft and healthy looking. It claims to have great ingredients for hair restoration and so far I like it.
I have my own theory as to why this hair condition is happening. To put it simply accutane dries you up. It decreases the production of sebum in your body substantially. This will leave you with clearer skin with less blemishes because you won't get the same level of oil production not only during the course but afterwards as well. That unfortunately applies for your scalp, too. Suddenly the body is unable to produce the needed oil for your hair to be healthy. This is a shock that could lead to telogen effluvium for instance. Regardless of the condition that you could get from this sudden lack of oil, your body needs to re-adjust itself in order to correct the problem. This could happen on its own but unfortunately I believe this is rarely the case.
I suspect that this could be the issue I am facing because all my hairs all over my body have thinned out visibly and I lost a lot of body hairs.
Hi all,
I am a chinese guy from singaporean.Am currently on second course of Roaccutane for my acne however after 2months into it, i started to lose hair especially on the top. Called my doctor and he advised to go on a lower dosage, instead of taking 20mg of Roaccutane everyday he told me to go on twice in a week. Will it slows down the hairloss?
I am speaking of personal experience so it's necessary to take my words for it. I believe the shedding will decrease but might persevere for a prolonged period of time (probably won't stop before you finish accutane). You should be wary though. My advise - monitor your shedding closely and if it does not decrease, then you might want to consider abandoning accutane. It really is up to you. =
I am speaking of personal experience so it's necessary to take my words for it. I believe the shedding will decrease but might persevere for a prolonged period of time (probably won't stop before you finish accutane). You should be wary though. My advise - monitor your shedding closely and if it does not decrease, then you might want to consider abandoning accutane. It really is up to you. =
Hi thanks Redemp, Yah i am monitoring the shedding closely cause i am currently on Propecia and Minoxidil at the same time. So kinda tired on this routine, might gave up and shave bald once and for all and keep it tat way.
. Imagine taking Roaccutane,Propecia and applying Minoxidil everyday. Sigh.
I have been meaning to post to this topic for the reason that when I was following the boards, I remember, with regard to hairloss, people always said that it was rare people ever came back and posted good news and that they would just fade off into the sunset. I *think* I am on the road to recovery with regard to accutane induced hairloss. And I apologize upfront, my treatment is only applicable to women, sorry guys 
I am now 43 y/o F. About 1.5 yrs ago, after being on oral contraceptives for 20 yrs +, my obgyn took me off due to migraines. I never knew how much they helped my skin, granted even on the contraceptives, I didn't have anything close to great skin, but it was tolerable, and I was kind of resigned to the fact that I would never have good skin. Also, I had severely oily skin since adolescence which i could never control. I didn't own a photo without a greased up face. Ok so I went off b/c and and broke out like mad. Large cysctic acne on my jaw, my neck, my cheeks. My oil got even worse, etc. fast forward, went to a derm, she put me on retin a micro .04 and after about 2 months bumped me up to .1%. My acne pretty much got under control and we discussed the really bad oil and she suggested accutane. I weigh 130 lbs. She started me on 40 mg, i dried up in month 1 but in month 2 my oil came back. In month 3 she upped me to 60 mg. Dried up in month 3 but then in month 4 oil came back. Month 5 she upped me to 80 mg.
During months 3 or 4, I noticed increased shedding, but i was one of those people who "had enough hair for three people". By the end of month 5, my temples were receding and I was losing A LOT of hair all over my head. I was losing about 300 in the shower, blow drying my bathroom would be covered in hair, hair all over my apartment. I would be at work and throughout the day feel the tickle of hair on my arms as it fell out. All day, it was a constant reminder. I was styling my hair to cover the receding temples, however the receding was working it way upward towards my front hairline.
Derm wanted me to do month six, i filled the scrip and threw the meds away without starting it.
I was losing sleep, stressing, it was always on my mind. I called my GP and had him give me an anti-anxiety drug (made me too sleepy). About 5 weeks after stopping accutane (BTW my oil was back after 3 weeks), I started doing the same research as everyone else on here, and hitting dead ends. Here is where my story differs from most, and unfortunately guys, this is really only aimed at women, this is not for you, sorry again
I found an endocrinologist that specializes in women's hairloss and skin. Prior to accutane, I felt that even tho I had tons of hair, it was thinner on top, I could feel it. And since I started really shedding more in a MPB manner, I thought it may be hormonal but the accutane may have accelerated it (my acne definitely was since it was triggered by quitting b/c).
Anyway, I had already been to one endocrinologist who told me to start minoxodil and put me on 100 mg of spironolactone (which is a androgen blocker), but he was very discouraging. So I went to the hair/skin endocrinologist, he did way more tests, different hormonal tests rather than the basic panel that the first doctor ran. He said many women are testosterone sensitive and he doesn't believe you need to fall into a high range to have the negative effects of testosterone. I was actually on the low end for testosterone. He changed my birth control (I had restarted already) and said certain b/c pills are hair friendly, some of the hormones act like testosterone and are not hair friendly. He explained that testosterone often is the cause of hairloss and acne. men = testosterone = hair loss. He upped my dose of spiro to 200 mg a day, he doesn't feel anything below 200 mg will do much to help. He explained there are no guarantees and that regrowth is a slow process. He looked at my skin and asked "is that sebum or oil based make up?" (this was 5 weeks after stopping accutane)and he made a face, not the best bedside manner but he is considered a top doctor for these issues. He told me that within 3 or 4 months of spiro, my oil will decline, my skin should start improving there after.
I think because I had just come off accutane, I had a much faster response. My oil went away in 3 - 4 weeks, not months. My skin is the best it's been my entire life.
He told me I would continue to shed for 3 - 4 months. About 3.5 months I noticed the shedding slowing down. I am now about 4.5 months off accutane (I quit July 4) and I think my shedding is normal range, I lose about 50 - 60 in the shower (I know a lot of people on here freak about about 50 but 150 a day is normal and prior to that I had been losing many hundreds in the shower and then more all day). I now lose some throughout the day, but normal amounts. Parts of the visibly receded area have gotten more coverage, I was scared the hair that was coming in was the fine hairs that don't grow, but it seems to be growing, it's going to take a long time. At my front hairline, I had lost some but not enough to visibly recede, my biggest fear. About a month ago at my hair line I started with a bunch of short stubby hairs about 1/4 inch, looked really stupid, and again, I thought they weren't growing, but they are now 3/4 of the way down my forehead. The entire accutane shedding ordeal, I never had new hair growing in. I have long hair and throughout my life, I would always see some shorter hairs on top that was new growth, just there being annoying, I used to complain to my hair dresser and say I didn't want them, but then when I had no hair coming in, and none of those shorter hairs, that was a bad bad feeling. I am now seeing more and more of them every day.
I know the problem with my story is that I don't know whether the hair would have started coming back on it's own or not, but like others on here, I couldn't sit back and do nothing, plus, spiro has totally corrected my skin so it's apparent to me, that I am sensitive to testosterone.
Another thing, as the hair/skin endocrinologist explained to me, the hair is almost always controlled by hormones, and dermatologists don't have training in that area, that's why most of them can't even point you in any direction with regards to hairloss, they just don't know how it works. I know mine didn't. She told me there was nothing she could do, but come in anyway, she wanted to look at it. I saved my $50 co-pay and have no intention of going back to her (nor do I need to at this time).
Sorry this is so long, just figured maybe it could help some of the women out there.
Hello again guys,
I just wanted to post an update on what's going on with me. Nothing significant (no improvements) so far. This is my forth week into minoxidil and I hate it. It makes my hair look and feel dirty. I believe that I am experiencing the shed associated with this medicine but I really cannot be sure since I was shedding probably similar amounts before its use. Just an example - when I rub my hair, I could easily get 30+ hairs in less than 5 seconds...fun times...
From what I've read from people that had success with minoxidil they usually see visible improvements after 6 weeks and around month 3. I am not positive at all but we'll see. I'm planning to give this routine at least 6 months. I'm also taking biotin, flax seed, vitamin e, vitamin b complex and saw palmetto extract.
Also, after a close examination of photos from 6 months ago, I believe that the situation is not worsening. My hairline is the same and it might be possible that this condition is self-limiting but again this is more of a speculation rather than a concrete fact. My mom told me that she thinks this is true but she might just want to be nice to me and not make me worry even more.
Overall, my hair is slowly growing and I would probably not cut it for the next 6 months because the M shape hairline I see everyday really depresses me. Mind you, I've not lost all the hairs on the two sides of my frontal hairline but the hair there is really diffused and you could see the scalp through it (especially in bright lights).
I will update you again probably in a month...Whoever is reading this and experiencing hair loss, stay strong!
P.S. sztuka1988, what's going on with you, man?
@ raybies
Yeah, man. I've read about that shed and will stick to the minoxidil treatment. I'm just really down and feeling hopeless about this condition. It has been a steady decline from the first day the hairloss started and at this point I don't really see a bright light at the end of the tunnel...will see how it goes in the upcoming months.
I've read a few stories of males taking accutane, experiencing hair loss and recovering from it in around 4 years. They reported that their hairloss resembled male pattern baldness - recession in the hairline, etc. Once they've started recovering, their hairline went back to the way it was pre-accutane. Also, there is a thread on this board from a guy that claims that colon cleanse will alleviate the hairloss problem but I'm almost certain that it was not the cleanse that helped him. He reported that he started doing those around 4 years after his accutane course once (this is quite important) his acne came back. So I would say that his recovery was a natural process not in any way sped up by those miraculous cleanses. That's what I think at least. I could honestly say that since I've already tried those cleanses and nothing happened. Just wanted to share that with the community here.
@ raybies
Yeah, man. I've read about that shed and will stick to the minoxidil treatment. I'm just really down and feeling hopeless about this condition. It has been a steady decline from the first day the hairloss started and at this point I don't really see a bright light at the end of the tunnel...will see how it goes in the upcoming months.
I've read a few stories of males taking accutane, experiencing hair loss and recovering from it in around 4 years. They reported that their hairloss resembled male pattern baldness - recession in the hairline, etc. Once they've started recovering, their hairline went back to the way it was pre-accutane. Also, there is a thread on this board from a guy that claims that colon cleanse will alleviate the hairloss problem but I'm almost certain that it was not the cleanse that helped him. He reported that he started doing those around 4 years after his accutane course once (this is quite important) his acne came back. So I would say that his recovery was a natural process not in any way sped up by those miraculous cleanses. That's what I think at least. I could honestly say that since I've already tried those cleanses and nothing happened. Just wanted to share that with the community here.
Sorry to say but mionxidil will not do anything for accutane hairloss.
Is your scalp dry,flaky, tight? Does it burn?
Are you losing lashes and eyebrow hairs also?
How's your skin condition now?
Today I posted the derm that prescribed my death sentence a nice handful of hair ( thats I lose 3,4,5 times per day) along with a letter on how low dose prescription of the drug is the only way to go to protect the patient ansd minimize exposure and side effects.
The old standards of perscription are geared towards cancer treatment & NOT ACNE.
@ livetoregret
I'm not convinced in what you are suggesting. It's early days to make any conclusions whether minoxidil will help me or not. The fact that quite a few people saw improvements using it speaks clearly that you might not be right (and no, not all of them had male pattern baldness).
To answer your questions. No, my scalp is not tight or flaky. Maybe it's dry. Yes I do still lose eyebrows and I suspect what that means but regardless I am willing to try minoxidil because I really don't think that it will cause more damage than it is already done. As for my skin, it's in a pretty good shape. 100 % clean (at the moment I have about 5-6 clogged pores and they are tiny). That's actually a bit ironic, my skin is my least concern.
I'm really sorry that you are going through this...It is beyond horrible and I'm right where you are so be strong, you are not alone!
I am still sheeding, but i see hair grow. My doc from mesotheraphy is happy with the results and says that in 1-2 months i will see more improvements. I have ended 5 times course. Now i have 1-1,5 month rest. I will post some pics soon.
It take time to recover for sure. My doc says that skin is healing slowly and hair even slower. We need to wait until our skin will heal and then until our hair will grow.
I am thinking that somebody would spot and sue accutane if it would cause pernament hair loss on a big scale. Drug would be banned or whatever. There are a lot of people with sheeding, many posts. But where are they now? They are gone, not posting anything. They surely got better and abandon forum. And not only this forum. I am sure that you all looked on some treatment on 13454 sites, just like me. Noone ever written that they went bald.
My eyebrows got better. Still losing some hairs but many many growing, getting thick.
Man... i hate winter. Damn wind, damn snow. Hairs looking like mess, balding freaking man, cant wear hat, getting cold
Glad you dropped by to post an update, mate. Yeah, I agree with you that many people are unrealistic about the time-frame of recovery from such hair-loss. I think it would take a good number of years because of the vitamin A overdose and the other mechanisms of accutane. I've done the same as probably all of us as you mentioned and searched numerous forums for recovery stories. It's true that very few people come back to report that their hair went back to normal. Also, these forums are usually filled with people still suffering and that's the reason why we get mainly the negative aspect of the situation.
I think that my eyebrows got a bit better as well and I do believe that I am losing much less hairs there. Actually recently I've found out that most of the side-effects I had have disappeared. I'm especially happy that my knees are not as weak as they were when I've finished accutane. I was experiencing pain there everytime I had to climb stairs. My skin has nicely recovered and my pores are now much smaller than what they were during and months after the drug. I'm really hoping that in a few years I will have some of my hair back.
And yeah, it's freezing cold here as well!!! Snow everywhere!
@ Redemption,
Even i am going on a low dose now, it is also a pain to endure an extended course of accutane. I am supposed to do 20mg/daily for eleven months to prevent a relapse. Imagine if i do a 20mg with 2 times per week. I will end up don know how many more months than 11. Sucks. Even then hairloss have slowed down a bit for me, i am still holding on till as far as possible. In any worse case, i am prepared to shave off and go bald. Too tired to go on Propecia, Minoxidil and roccutane.
@ livetoregret
I'm not convinced in what you are suggesting. It's early days to make any conclusions whether minoxidil will help me or not. The fact that quite a few people saw improvements using it speaks clearly that you might not be right (and no, not all of them had male pattern baldness).
To answer your questions. No, my scalp is not tight or flaky. Maybe it's dry. Yes I do still lose eyebrows and I suspect what that means but regardless I am willing to try minoxidil because I really don't think that it will cause more damage than it is already done. As for my skin, it's in a pretty good shape. 100 % clean (at the moment I have about 5-6 clogged pores and they are tiny). That's actually a bit ironic, my skin is my least concern.
I'm really sorry that you are going through this...It is beyond horrible and I'm right where you are so be strong, you are not alone!
I seriously hope you get some improvement - didn't work for me. my issue is that my hair has dried up worse than anything, cant get a brush though it, the strands have become so fine and wispy if they dont come out from the root they just snap off. Ive also started going grey rapidly. Its insane. The quality of my hair is appalling and Ive had zero improvment over time. Im just trying to hang on and pray this will get better, the shedding will stop and it will re grow, but Im losing hope.
Its a million diff lengths and there are some fine wispy hairs but maybe 5% regrowing from what Ive actually lost and I am now 2 years on and my hair is still thinning like crazy from all over my head. There are simply no natural oils being produced to hydrate hair/skin. My skin is in awful shape. Dry and rough like sand paper.
Brows and lashes as well thin like crazy every day as well.
My lashes have become finer and shorter and my brows are totally dried out its disgusting.
They actually hurt in places which is strange and have become very thin in shape.
As a woman I am totally distraught at losing my hair and I feel like Im losing my mind along with it.
Its so hard to find any info on people that have been through this and come out the other side.
Glad you dropped by to post an update, mate. Yeah, I agree with you that many people are unrealistic about the time-frame of recovery from such hair-loss. I think it would take a good number of years because of the vitamin A overdose and the other mechanisms of accutane. I've done the same as probably all of us as you mentioned and searched numerous forums for recovery stories. It's true that very few people come back to report that their hair went back to normal. Also, these forums are usually filled with people still suffering and that's the reason why we get mainly the negative aspect of the situation.
I think that my eyebrows got a bit better as well and I do believe that I am losing much less hairs there. Actually recently I've found out that most of the side-effects I had have disappeared. I'm especially happy that my knees are not as weak as they were when I've finished accutane. I was experiencing pain there everytime I had to climb stairs. My skin has nicely recovered and my pores are now much smaller than what they were during and months after the drug. I'm really hoping that in a few years I will have some of my hair back.
And yeah, it's freezing cold here as well!!! Snow everywhere!
If you think about it in terms of the length of hairs that you lose - for me my hair was past shoulder length - so thats like 3/4 years of hair growth each strand I lose - issue is I do not see those strands re growing..Im so scared the follicles have died. No health care professional takes it seriously here, all I keep getting told is yeah its thin, but you dont have bald patches.
Nevermind my hair is so thin I cannot wear it down and even touching it makes it come out in handfulls. Ive stopped counting as its to traumatic.
I know its different for men and women but I am now 2 yrs post with no end in sigh to the hair thinning let alone new growth... So disheartening.
@livetoregret
Yeah, it takes a toll on you, I know. Same thing is happening to me. I'm terrified that I might go bald and this thought haunts me everyday. With that being said, I would still like to bring a positive vibe to the discussion here. I'm trying to think of this as a jorney and an adventure rather than as a horrifying nightmare. Yeah, it's awful and at times it is pretty depressing but we need to keep our hopes high. That's the only productive way to live through it for me at least.
You are a woman and that automatically improves your chances of recovery. I'm sure that this problem is even more distressful to a female than to us, men, but at the end of the day you should find something positive that makes you at least a little bit happier. Obsessing about it won't help at all. My only suggestion to you is to wait it out, there's probably no other way around it. Your condition will improve, I'm sure 
@ livetoregret
I'm not convinced in what you are suggesting. It's early days to make any conclusions whether minoxidil will help me or not. The fact that quite a few people saw improvements using it speaks clearly that you might not be right (and no, not all of them had male pattern baldness).
To answer your questions. No, my scalp is not tight or flaky. Maybe it's dry. Yes I do still lose eyebrows and I suspect what that means but regardless I am willing to try minoxidil because I really don't think that it will cause more damage than it is already done. As for my skin, it's in a pretty good shape. 100 % clean (at the moment I have about 5-6 clogged pores and they are tiny). That's actually a bit ironic, my skin is my least concern.
I'm really sorry that you are going through this...It is beyond horrible and I'm right where you are so be strong, you are not alone!
I seriously hope you get some improvement - didn't work for me. my issue is that my hair has dried up worse than anything, cant get a brush though it, the strands have become so fine and wispy if they dont come out from the root they just snap off. Ive also started going grey rapidly. Its insane. The quality of my hair is appalling and Ive had zero improvment over time. Im just trying to hang on and pray this will get better, the shedding will stop and it will re grow, but Im losing hope.
Its a million diff lengths and there are some fine wispy hairs but maybe 5% regrowing from what Ive actually lost and I am now 2 years on and my hair is still thinning like crazy from all over my head. There are simply no natural oils being produced to hydrate hair/skin. My skin is in awful shape. Dry and rough like sand paper.
Brows and lashes as well thin like crazy every day as well.
My lashes have become finer and shorter and my brows are totally dried out its disgusting.
They actually hurt in places which is strange and have become very thin in shape.
As a woman I am totally distraught at losing my hair and I feel like Im losing my mind along with it.
Its so hard to find any info on people that have been through this and come out the other side.
Glad you dropped by to post an update, mate. Yeah, I agree with you that many people are unrealistic about the time-frame of recovery from such hair-loss. I think it would take a good number of years because of the vitamin A overdose and the other mechanisms of accutane. I've done the same as probably all of us as you mentioned and searched numerous forums for recovery stories. It's true that very few people come back to report that their hair went back to normal. Also, these forums are usually filled with people still suffering and that's the reason why we get mainly the negative aspect of the situation.
I think that my eyebrows got a bit better as well and I do believe that I am losing much less hairs there. Actually recently I've found out that most of the side-effects I had have disappeared. I'm especially happy that my knees are not as weak as they were when I've finished accutane. I was experiencing pain there everytime I had to climb stairs. My skin has nicely recovered and my pores are now much smaller than what they were during and months after the drug. I'm really hoping that in a few years I will have some of my hair back.
And yeah, it's freezing cold here as well!!! Snow everywhere!
If you think about it in terms of the length of hairs that you lose - for me my hair was past shoulder length - so thats like 3/4 years of hair growth each strand I lose - issue is I do not see those strands re growing..Im so scared the follicles have died. No health care professional takes it seriously here, all I keep getting told is yeah its thin, but you dont have bald patches.
Nevermind my hair is so thin I cannot wear it down and even touching it makes it come out in handfulls. Ive stopped counting as its to traumatic.
I know its different for men and women but I am now 2 yrs post with no end in sigh to the hair thinning let alone new growth... So disheartening.
@Live to regret,
From your previous posts, i believed you are given a slight overdose of roaccutane that causes your intensive hairloss?
@livetoregret
Yeah, it takes a toll on you, I know. Same thing is happening to me. I'm terrified that I might go bald and this thought haunts me everyday. With that being said, I would still like to bring a positive vibe to the discussion here. I'm trying to think of this as a jorney and an adventure rather than as a horrifying nightmare. Yeah, it's awful and at times it is pretty depressing but we need to keep our hopes high. That's the only productive way to live through it for me at least.
You are a woman and that automatically improves your chances of recovery. I'm sure that this problem is even more distressful to a female than to us, men, but at the end of the day you should find something positive that makes you at least a little bit happier. Obsessing about it won't help at all. My only suggestion to you is to wait it out, there's probably no other way around it. Your condition will improve, I'm sure
I try to be optimistic but at this point 2 years down the line still losing hair the way I do with no regrowth in sight is just to much to take. I havent heard of anyone losing hair this long that goes into remission.
Its not like I can just shave my head and be cool with it. Its worn be down the point I just cant bare it anymore.
i don't think minox alone would be a good way to go,wthout hormonal support any growth gained with minox generally gets lost in time and you end up below baseline,only people i have seen mentaining have been the one with high doses,you can play russian roulette with 5% minox bd but it will be just it.are you sure you dont have mpb descended to you through genes.