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The answers I got from my doctor about hair loss

 
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(@kat24385)

Posted : 05/03/2011 2:00 am

Hey, has anyone tried topical crude onion juice consistently? Found this study on pubmed:

 

http://www.ncbi.nlm.nih.gov/pubmed?term=onion%20alopecia

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(@kirbatha)

Posted : 05/04/2011 4:46 pm

Update:

 

Background: Started Accutane Halloween '09, was no longer able to style my hair by the following February/March without it looking jankety, shedding continued. Doc said 5-6 months recovery, I said okay. Hair kept shedding, went back for a check-up, he said a few more months. I said okay. He offered Propecia, I was too scared of poisoning myself AGAIN. He suggested Rogaine, I bought some, it's sitting in my closet and has been since before I came for this semester at school. Shedding continued, went in again because I was concerned. Doc said he'll see me in 6 months and if it wasn't fixed by then, there wasn't much I could do.

 

So, it's been about a year since I finished the 'tane, and I've got pretty mad thinning around my crown now, and some recession at the temples. The slightest breeze does quite a number on my hair. So I accidentally, while researching Histogen online (btw, hair loss sufferers might want to take a look at it, it could be another false hope cure but I'm actually quite intrigued), discovered a rather well-renowned hair doctor in my city. Emailed him two nights ago, got a call back yesterday morning to set up a free consultation today at 3. I just got home from it. They were incredibly professional and incredibly cool, and for once, I got a doctor to just tell it like it is with my hair loss.

 

He said the hair at the back was very nice and dense, if a bit fine (I've always had fine hair). The thinning at the crown, he says, is only very slightly worse than the thinning on top, which isn't bad, but that my temples are receding quite aggressively, especially since it's only been a year and a half since I started Accutane. He gave me the options of (of course) Propecia, Rogaine, lasers, and hair transplants. I voiced my concerns about Propecia, and he actually managed to convince me to give it a shot, mainly because if I don't start now then by the time some REAL treatment comes along (which he said was not a matter of if, but when) I might not have much left to work with. Nice. So, he wrote me a 'script for Propecia, and I just popped my first pill. Here's hoping it doesn't kill my sex drive like Accutane killed my hair (2-5% my ass, Dr. Derm.) He also mentioned the Propecia patent will be running out soon, so yay generics!

 

The lasers were tempting, because this place charges a one-time fee of $4500 (which can be spread over 3 months if desired) for the lasers, while other places around here charge $3500 to $6000 annually (one-time vs. annual seems like a hell of a deal). I might consider it after a while on Propecia.

 

*prays for Histogen's success*

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(@electroshock)

Posted : 05/06/2011 1:17 pm

Update:

 

Background: Started Accutane Halloween '09, was no longer able to style my hair by the following February/March without it looking jankety, shedding continued. Doc said 5-6 months recovery, I said okay. Hair kept shedding, went back for a check-up, he said a few more months. I said okay. He offered Propecia, I was too scared of poisoning myself AGAIN. He suggested Rogaine, I bought some, it's sitting in my closet and has been since before I came for this semester at school. Shedding continued, went in again because I was concerned. Doc said he'll see me in 6 months and if it wasn't fixed by then, there wasn't much I could do.

 

So, it's been about a year since I finished the 'tane, and I've got pretty mad thinning around my crown now, and some recession at the temples. The slightest breeze does quite a number on my hair. So I accidentally, while researching Histogen online (btw, hair loss sufferers might want to take a look at it, it could be another false hope cure but I'm actually quite intrigued), discovered a rather well-renowned hair doctor in my city. Emailed him two nights ago, got a call back yesterday morning to set up a free consultation today at 3. I just got home from it. They were incredibly professional and incredibly cool, and for once, I got a doctor to just tell it like it is with my hair loss.

 

He said the hair at the back was very nice and dense, if a bit fine (I've always had fine hair). The thinning at the crown, he says, is only very slightly worse than the thinning on top, which isn't bad, but that my temples are receding quite aggressively, especially since it's only been a year and a half since I started Accutane. He gave me the options of (of course) Propecia, Rogaine, lasers, and hair transplants. I voiced my concerns about Propecia, and he actually managed to convince me to give it a shot, mainly because if I don't start now then by the time some REAL treatment comes along (which he said was not a matter of if, but when) I might not have much left to work with. Nice. So, he wrote me a 'script for Propecia, and I just popped my first pill. Here's hoping it doesn't kill my sex drive like Accutane killed my hair (2-5% my ass, Dr. Derm.) He also mentioned the Propecia patent will be running out soon, so yay generics!

 

The lasers were tempting, because this place charges a one-time fee of $4500 (which can be spread over 3 months if desired) for the lasers, while other places around here charge $3500 to $6000 annually (one-time vs. annual seems like a hell of a deal). I might consider it after a while on Propecia.

 

*prays for Histogen's success*

 

Taking Propecia, you might just be trading one problem for another...

 

I would rather be bald and be able to get it up, then have a full hair and a limp one... :)

 

Did you get your blood tested to see if you have an auto-immune disorder?

 

Propecia is a DHT blocker, if your problem has nothing to do with MPB, then you won't be solving your problem.

 

Just food for thought... taking a pill is what you got you here, and now you're taking another...

 

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(@ignition)

Posted : 05/07/2011 9:42 am

Taking Propecia, you might just be trading one problem for another...

 

I would rather be bald and be able to get it up, then have a full hair and a limp one... :)

 

Did you get your blood tested to see if you have an auto-immune disorder?

 

Propecia is a DHT blocker, if your problem has nothing to do with MPB, then you won't be solving your problem.

 

Just food for thought... taking a pill is what you got you here, and now you're taking another...

 

His problem is obviously MPB (possibly triggered by the accutane) as his temples are receding and his crown is getting thinner. These are typical MPB symptoms.

 

If i would get MPB i would seriously consider taking propecia. You always take a risk of course but on the regular hairloss sites i never heard of anyone with permanent side effects (only on horrorstorysites like propeciahelp)

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(@jaysjay)

Posted : 05/20/2011 8:46 am

[Edited link out]

another news!

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(@texasboy15)

Posted : 05/23/2011 9:45 pm

Well, its official. Taking accutane for 9 days has officially fucked up my life for good. I have a bald spot that will probably be similar to Manu Ginobili's in another year. Fuck everything. My appearance is ruined and I am only 22 years old. Severe temple recession, thin hair everwhere, and this fucking bald spot on my crown. I really do not know how to cope with this shit anymore. It is nearing month 20 of the shedding and it is just as bad now as it was back when it first started. To think that I am going to shed for the rest of my fucking life just because I took a drug for 9 days is unbelievable. Would have rather gone through chemo because then I would get my hair back at least

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(@just_a_guy)

Posted : 05/24/2011 11:17 pm

Well, its official. Taking accutane for 9 days has officially fucked up my life for good. I have a bald spot that will probably be similar to Manu Ginobili's in another year. Fuck everything. My appearance is ruined and I am only 22 years old. Severe temple recession, thin hair everwhere, and this fucking bald spot on my crown. I really do not know how to cope with this shit anymore. It is nearing month 20 of the shedding and it is just as bad now as it was back when it first started. To think that I am going to shed for the rest of my fucking life just because I took a drug for 9 days is unbelievable. Would have rather gone through chemo because then I would get my hair back at least

 

I had severe accutane induced shedding, which luckly stopped 3 weeks after the last pill, but your case sounds like typical male pattern baldness. Maybe accutane triggered it, but it sounds like it was bound to happen sooner or later.

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(@jaysjay)

Posted : 05/26/2011 11:43 am

please someone tell me if rogaine would help in accutane induced shedding when the hwir have gone wavy,brittle and shedding regularly.

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1147
(@lamarr1986)

Posted : 05/26/2011 2:38 pm

My derm gave me prescription clobetasol which i apply to my scalp every night for about two weeks and it's supposed to get rid of sebhorric dermatitis. So far the itchiness in my scalp has subsided a lot.

 

I used clobetasol propinate for 6 months (.5%) until it thinned my scalp out and made it uber sensitive. Be mindful that topical steroids will thin your skin, thin skin affects the ability of a folicle to hold a hair.

 

I also tried Betamethason Valtorate .1% which is a milder steroid, it helped with the itchieness and made me feel like I was doing something to combat my hair loss, but both topicals proved ineffective.

 

I am at 2 and a half years of consistent shedding with about 30% hair density on the top of my head, still losing about 200-300 hairs per day and not getting better.

 

I have an appointment with a specialist in auto-immune related hair loss on Monday, hopefully he will have some answers. I will update if he can "shed" some light on the situation. Sorry that was a bad joke.

 

Good luck to all!

 

Cheers,

 

Matt

 

 

How often were you using the clobetasol? 2x per day? Also what makes you think it thinned the skin and in which areas do you believe it did this?

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(@jaysjay)

Posted : 05/27/2011 12:08 pm

anyone, please tell me if anythink or rogaine or finesteride or steroid or ketoconazole or the combination of any two/three of them has been seen beneficial in accutane induced hair shedding.

 

i will be very gratful for the effort of someone contributing to my cause as i am badly seeking a solution to a problem which might get old and chronic if i overlook it any further.

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1147
(@lamarr1986)

Posted : 05/27/2011 1:17 pm

anyone, please tell me if anythink or rogaine or finesteride or steroid or ketoconazole or the combination of any two/three of them has been seen beneficial in accutane induced hair shedding.

 

i will be very gratful for the effort of someone contributing to my cause as i am badly seeking a solution to a problem which might get old and chronic if i overlook it any further.

 

Jay,

 

Personally I use a mid potency steroid aproximately 4 times a week, along with a laser helmet and topical essential oils (I made my own mix and used a scalp applicator to apply).

 

It maintains my hair pretty good (I still shed hair at an abnormal rate across my entire body (i.e. my arm and pubic hair Is pretty much gone)) but the hairline and a small area above my ears also continue to worsen slightly.

 

I used minoxidil with the steroid for a while and it definently helped, I discontinued it as I thought it may have been making my accutane induced flushing worse....

 

I am thinking of starting some dermarolling along with copper peptides added to my essential oil mix.

 

I recommend you only try one thing at a time, as you want to guage how your hair is responing to each inividually.

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(@electroshock)

Posted : 05/28/2011 3:39 pm

My derm gave me prescription clobetasol which i apply to my scalp every night for about two weeks and it's supposed to get rid of sebhorric dermatitis. So far the itchiness in my scalp has subsided a lot.

 

I used clobetasol propinate for 6 months (.5%) until it thinned my scalp out and made it uber sensitive. Be mindful that topical steroids will thin your skin, thin skin affects the ability of a folicle to hold a hair.

 

I also tried Betamethason Valtorate .1% which is a milder steroid, it helped with the itchieness and made me feel like I was doing something to combat my hair loss, but both topicals proved ineffective.

 

I am at 2 and a half years of consistent shedding with about 30% hair density on the top of my head, still losing about 200-300 hairs per day and not getting better.

 

I have an appointment with a specialist in auto-immune related hair loss on Monday, hopefully he will have some answers. I will update if he can "shed" some light on the situation. Sorry that was a bad joke.

 

Good luck to all!

 

Cheers,

 

Matt

 

 

How often were you using the clobetasol? 2x per day? Also what makes you think it thinned the skin and in which areas do you believe it did this?

 

 

Hi Lamarr,

 

Its a known side effect of topical steroids that they thin skin. When your skin gets thinner its brittle and even light scratching can cause bleeding.

 

I was using clob 2 x per day, morning and night.

 

It thins the scalp wherever you apply it.

 

I've stopped all topicals until I get the results of my scalp biopsy and blood work in 2 weeks.

 

I will update the results of the tests and what treatment I begin, but the good thing is I finally found a doctor that specializes in auto-immune hair-affecting disorders and he has assured me that it is an auto-immune disease brought on by Accutane. He doesn't see signs of miniturization, and has assured me there are treatment options and is confident he can either reverse the hair loss or at least stop it.

 

Cheers

 

Matt

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1147
(@lamarr1986)

Posted : 05/29/2011 3:29 pm

My derm gave me prescription clobetasol which i apply to my scalp every night for about two weeks and it's supposed to get rid of sebhorric dermatitis. So far the itchiness in my scalp has subsided a lot.

 

I used clobetasol propinate for 6 months (.5%) until it thinned my scalp out and made it uber sensitive. Be mindful that topical steroids will thin your skin, thin skin affects the ability of a folicle to hold a hair.

 

I also tried Betamethason Valtorate .1% which is a milder steroid, it helped with the itchieness and made me feel like I was doing something to combat my hair loss, but both topicals proved ineffective.

 

I am at 2 and a half years of consistent shedding with about 30% hair density on the top of my head, still losing about 200-300 hairs per day and not getting better.

 

I have an appointment with a specialist in auto-immune related hair loss on Monday, hopefully he will have some answers. I will update if he can "shed" some light on the situation. Sorry that was a bad joke.

 

Good luck to all!

 

Cheers,

 

Matt

 

 

How often were you using the clobetasol? 2x per day? Also what makes you think it thinned the skin and in which areas do you believe it did this?

 

 

Hi Lamarr,

 

Its a known side effect of topical steroids that they thin skin. When your skin gets thinner its brittle and even light scratching can cause bleeding.

 

I was using clob 2 x per day, morning and night.

 

It thins the scalp wherever you apply it.

 

I've stopped all topicals until I get the results of my scalp biopsy and blood work in 2 weeks.

 

I will update the results of the tests and what treatment I begin, but the good thing is I finally found a doctor that specializes in auto-immune hair-affecting disorders and he has assured me that it is an auto-immune disease brought on by Accutane. He doesn't see signs of miniturization, and has assured me there are treatment options and is confident he can either reverse the hair loss or at least stop it.

 

Cheers

 

Matt

 

 

Hi Matt,

 

I have been using topical steroids for many years now....My skin doesn't seem in bad shape and my derm advises that with once daily application, especially on the top of the scalp where the skin is rather thick, skin thinning is very rare.

 

I don't LIKE topical steroids, but if you let the hair miniturize to a certain point you will likely never get it back. I use it with low level laser therapy as this has the oposite affect of steroids in that they thicken the skin. That could be why I don't seem to of had any issues with them.

 

I am very interested to see what your doctor suggests as a treatment. I don't know of many treatments for auto immune that aren't somewhat destructive to the skin, other than protopic/elidel and cyclosporin.

 

Low level laser therapy is one, and there are a number of others, but none of which garuntee results unfortunately.

 

Cheers,

 

Mark

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(@just_a_guy)

Posted : 05/29/2011 6:41 pm

anyone, please tell me if anythink or rogaine or finesteride or steroid or ketoconazole or the combination of any two/three of them has been seen beneficial in accutane induced hair shedding.

 

i will be very gratful for the effort of someone contributing to my cause as i am badly seeking a solution to a problem which might get old and chronic if i overlook it any further.

 

A shampoo with ketoconazole and zinc will certainly help, especially if you have dandruff. Topical rogaine and topical steroid also seems to help. You might try all of these for a month or so and see what happens, just don't over apply.

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(@ignition)

Posted : 05/30/2011 5:20 am

anyone, please tell me if anythink or rogaine or finesteride or steroid or ketoconazole or the combination of any two/three of them has been seen beneficial in accutane induced hair shedding.

 

i will be very gratful for the effort of someone contributing to my cause as i am badly seeking a solution to a problem which might get old and chronic if i overlook it any further.

 

I do believe minoxidil helps. I use 3% minoxidil and it's supposed to keep hairs in the anagen fase longer, thus slowing down shedding. I don't think stuff like finasteride helps with accutane induced shedding, it does help if accutane triggered MPB though. So if you see hairloss primarly at the crown and temples i guess it may help.

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(@frazetta)

Posted : 06/22/2011 9:26 am

I started a topic a couple days ago before I found this one, so I thought I'd put all my following posts here. I was on accutane for about four months and I started experiencing shedding around the last month of my treatment. I wasn't really alarmed as my derm told me people shed x amount of hairs on average. Now I'm one month post accutane and my hair is alarmingly thin. When I come out of the shower I look like I've been dancing around in radiation. I booked an appointment to see my derm because I am alarmed at how much hair density I've lost. I used to have thick thick hair (oh it could never happen to me right?) and now my hairline is so thin, my crown you can see through for atlease a square inch, the hair around my ears is receding and my temples grow ever so thin. I constantly find myself picking hairs off my face or body because I shed so much. I wasn't super worried until a few days ago now I am downright terrified. I want to see my derm ASAP but she can't see me for atleast a week. Friggen accutane..

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(@holdonhair)

Posted : 06/24/2011 1:05 pm

Frazetta said:
I started a topic a couple days ago before I found this one, so I thought I'd put all my following posts here. I was on accutane for about four months and I started experiencing shedding around the last month of my treatment. I wasn't really alarmed as my derm told me people shed x amount of hairs on average. Now I'm one month post accutane and my hair is alarmingly thin. When I come out of the shower I look like I've been dancing around in radiation. I booked an appointment to see my derm because I am alarmed at how much hair density I've lost. I used to have thick thick hair (oh it could never happen to me right?) and now my hairline is so thin, my crown you can see through for atlease a square inch, the hair around my ears is receding and my temples grow ever so thin. I constantly find myself picking hairs off my face or body because I shed so much. I wasn't super worried until a few days ago now I am downright terrified. I want to see my derm ASAP but she can't see me for atleast a week. Friggen accutane..

Unfortunately if your body is like most others that have experienced Accutane induced TE, there isn't much hope for your hair in the short term. I experienced the same thing on the last (5th) month of treatment and it progressively got worse for several months.

It's been 10th months since I took my last pill and I'd say i have 50 - 60% less hair than i did starting the treatment. The front was first to thin, then crown, then sides and back. It's been depressing and I've allowed it to rule my life since it began. I'm just coming to terms with the situation and getting on with my life (with a bit of Toppik!).

My hair is on the improve now and I have regrowth over most parts of my scalp, although i believe my crown will take years to return if it ever does. My new hairs are falling out too though, and some are miniaturized which i've never had before (but this doesn't necessarily mean I have MBP). It's not uncommon for the follicles to restart themselves as vellus a couple of times with TE until they get over the shock and start up thicker again (so i've read).

I've tried / am trying Biotin, B C E vitamins, saw palmetto (apparently a safer DHT inhibitor substitute for Procepia), detoxing, nizoral, nioxin, t-gel, laser comb.

If i could go back to the beginning of it falling out I'd do a detox straight away! Liver and Bowel. I believe it really helped me the most out of anything. There's that Accupoison still inside you man! It's fat soluble vitamin A and it's clinging to your liver, excreting into your bowels and entering your blood stream still. If you get it out quickly enough the hair shedding will subside quicker (but unfortunately it will still shed for at least another 3 4 months from now).

"The mechanisms by which drugs promote hair loss are not known but presumably drugs alter the hair follicle environment in some way such that the cells are no longer promoted to proliferate and grow"

Get whatever crap is left inside you so your cells can start turning wheels again. Hopefully by doing a drug detox it gives your body a better chance at healing to homeostasis.

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(@mdr8)

Posted : 06/24/2011 5:13 pm

Hey all, I took my last pill in november of 2007. Just this past August in 2010, I noticed my hair is thinning. It's all over my head, not in any specific areas. My body hair is also thinning all over, including my facial hair, arms, legs, chest etc. The hairs grow back in but are very fine and fall out easily. Hairs fall out when I lightly run my hands through my hair, and I'm losing eyelashes/eyebrows like crazy. Two dermatologists have told me MPB and threw propecia at me and ignored the body hair loss. I really feel like my hair loss is not MPB, thus I feel like taking propecia would be a risk with no benefits. My question to you all is, do you think it is accutane related if I didn't notice it til almost 3 years after my last pill? If not related to accutane, what other things do you think it could be? I really need to find a derm. that will take this seriously and not just chalk it up to MPB.....

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148
(@oli-girl)

Posted : 06/25/2011 12:15 am

Hey all, I took my last pill in november of 2007. Just this past August in 2010, I noticed my hair is thinning. It's all over my head, not in any specific areas. My body hair is also thinning all over, including my facial hair, arms, legs, chest etc. The hairs grow back in but are very fine and fall out easily. Hairs fall out when I lightly run my hands through my hair, and I'm losing eyelashes/eyebrows like crazy. Two dermatologists have told me MPB and threw propecia at me and ignored the body hair loss. I really feel like my hair loss is not MPB, thus I feel like taking propecia would be a risk with no benefits. My question to you all is, do you think it is accutane related if I didn't notice it til almost 3 years after my last pill? If not related to accutane, what other things do you think it could be? I really need to find a derm. that will take this seriously and not just chalk it up to MPB.....

 

 

I think I remember you have posted in the past about other issues from Accutane. Maybe it is time to have a few things checked, such as hormones, iron and autoimmune disorders. Body wide hair loss could be alopecia or related to what I mentioned. I would search out more then just a derm they will be no use.....

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MemberMember
0
(@mdr8)

Posted : 06/25/2011 10:13 am

Hey all, I took my last pill in november of 2007. Just this past August in 2010, I noticed my hair is thinning. It's all over my head, not in any specific areas. My body hair is also thinning all over, including my facial hair, arms, legs, chest etc. The hairs grow back in but are very fine and fall out easily. Hairs fall out when I lightly run my hands through my hair, and I'm losing eyelashes/eyebrows like crazy. Two dermatologists have told me MPB and threw propecia at me and ignored the body hair loss. I really feel like my hair loss is not MPB, thus I feel like taking propecia would be a risk with no benefits. My question to you all is, do you think it is accutane related if I didn't notice it til almost 3 years after my last pill? If not related to accutane, what other things do you think it could be? I really need to find a derm. that will take this seriously and not just chalk it up to MPB.....

 

 

I think I remember you have posted in the past about other issues from Accutane. Maybe it is time to have a few things checked, such as hormones, iron and autoimmune disorders. Body wide hair loss could be alopecia or related to what I mentioned. I would search out more then just a derm they will be no use.....

 

 

Hi, who should I search out if not a dermatologist? And so I'm guessing you think this is not accutane related? I have a dr. apt. with my GP in a couple weeks and I could ask him to refer me to a specialist, I Just don't know what type...

 

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(@frazetta)

Posted : 06/26/2011 9:23 am

holdonhair said:
Unfortunately if your body is like most others that have experienced Accutane induced TE, there isn't much hope for your hair in the short term. I experienced the same thing on the last (5th) month of treatment and it progressively got worse for several months.

It's been 10th months since I took my last pill and I'd say i have 50 - 60% less hair than i did starting the treatment. The front was first to thin, then crown, then sides and back. It's been depressing and I've allowed it to rule my life since it began. I'm just coming to terms with the situation and getting on with my life (with a bit of Toppik!).

My hair is on the improve now and I have regrowth over most parts of my scalp, although i believe my crown will take years to return if it ever does. My new hairs are falling out too though, and some are miniaturized which i've never had before (but this doesn't necessarily mean I have MBP). It's not uncommon for the follicles to restart themselves as vellus a couple of times with TE until they get over the shock and start up thicker again (so i've read).

I've tried / am trying Biotin, B C E vitamins, saw palmetto (apparently a safer DHT inhibitor substitute for Procepia), detoxing, nizoral, nioxin, t-gel, laser comb.

If i could go back to the beginning of it falling out I'd do a detox straight away! Liver and Bowel. I believe it really helped me the most out of anything. There's that Accupoison still inside you man! It's fat soluble vitamin A and it's clinging to your liver, excreting into your bowels and entering your blood stream still. If you get it out quickly enough the hair shedding will subside quicker (but unfortunately it will still shed for at least another 3 4 months from now).

"The mechanisms by which drugs promote hair loss are not known but presumably drugs alter the hair follicle environment in some way such that the cells are no longer promoted to proliferate and grow"

Get whatever crap is left inside you so your cells can start turning wheels again. Hopefully by doing a drug detox it gives your body a better chance at healing to homeostasis.

Interesting. I'll confront my dermatologist about the detox and see what she thinks. I may still do it anyways even if she says it's rubbish, it can't hurt. I'm glad to hear your hairs are coming back, even in the slightest manner. My temples are extremely scares of hair lately and I'm hoping that grows back. If my hair doesn't get too much worse in the short term I think I could stick out half a year. I just really hope to god it all grows back.

Edit: Also I'm curious what repercussions such a cleanse would have on the acne remission patients take accutane for..

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(@brad1972)

Posted : 06/27/2011 4:19 pm

There is no question that Accutane can cause hair loss, I had quite a bit in month 5 on 80 mg a day but was fine after getting off of it. Plus my hair is thick and I didn't miss the hair.

 

But to the person saying that a mere 9 pills caused this massive hair loss, I have a very hard time believing it was Accutane. 9 pills is simply not enough to build up in your body to do much of anything.

 

Let's remember, many people are predisposed genetically to baldness or hair loss and in probably "some" or a "few" of the cases, Accutane simply exacerbated what was going to happen anyway.

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148
(@oli-girl)

Posted : 06/27/2011 9:02 pm

Hey all, I took my last pill in november of 2007. Just this past August in 2010, I noticed my hair is thinning. It's all over my head, not in any specific areas. My body hair is also thinning all over, including my facial hair, arms, legs, chest etc. The hairs grow back in but are very fine and fall out easily. Hairs fall out when I lightly run my hands through my hair, and I'm losing eyelashes/eyebrows like crazy. Two dermatologists have told me MPB and threw propecia at me and ignored the body hair loss. I really feel like my hair loss is not MPB, thus I feel like taking propecia would be a risk with no benefits. My question to you all is, do you think it is accutane related if I didn't notice it til almost 3 years after my last pill? If not related to accutane, what other things do you think it could be? I really need to find a derm. that will take this seriously and not just chalk it up to MPB.....

 

 

I think I remember you have posted in the past about other issues from Accutane. Maybe it is time to have a few things checked, such as hormones, iron and autoimmune disorders. Body wide hair loss could be alopecia or related to what I mentioned. I would search out more then just a derm they will be no use.....

 

 

Hi, who should I search out if not a dermatologist? And so I'm guessing you think this is not accutane related? I have a dr. apt. with my GP in a couple weeks and I could ask him to refer me to a specialist, I Just don't know what type...

 

 

 

Are you in the U.S.? Well I would give you GP all your symptoms not just the body wide hairloss....I'am NOT saying it isn't caused by accutane, most likely it is....Esspecially since you have experinced problems since taking it. Have hormones, iron and possibly autoimmune disorders.

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(@frazetta)

Posted : 06/29/2011 5:46 pm

I went to my doctor today and she told me that my hairloss wasn't too terrible. I asked her about diet and supplements and she said there's no evidence to support or disprove any effect it may have on hairloss caused by Accutane. I also asked her about chances and timeline for recovery, she was reluctant to say anything but I brought up around a year and she seemed somewhat agreeable to that. I forgot my list I printed out on a sticky note so I didn't remember the to ask about the cleanse until the way home. I may try it this weekend though just for kicks. She prescribed me a topical steroid to increase the bloodflow to my scalp but wasn't promising any results. I had a hard time getting straight answers out of her. She told me hairloss was such an uncommon side effect and I assume since accutane is so unpredictable she really had no idea what to say. I'm gonna get a haircut soon and I'm kind of afraid of my hair looking patchy. I was hoping to get the sides buzzed but maybe not so much now.. All I can do is wait.

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(@mdr8)

Posted : 06/29/2011 8:20 pm

Hey all, I took my last pill in november of 2007. Just this past August in 2010, I noticed my hair is thinning. It's all over my head, not in any specific areas. My body hair is also thinning all over, including my facial hair, arms, legs, chest etc. The hairs grow back in but are very fine and fall out easily. Hairs fall out when I lightly run my hands through my hair, and I'm losing eyelashes/eyebrows like crazy. Two dermatologists have told me MPB and threw propecia at me and ignored the body hair loss. I really feel like my hair loss is not MPB, thus I feel like taking propecia would be a risk with no benefits. My question to you all is, do you think it is accutane related if I didn't notice it til almost 3 years after my last pill? If not related to accutane, what other things do you think it could be? I really need to find a derm. that will take this seriously and not just chalk it up to MPB.....

 

 

I think I remember you have posted in the past about other issues from Accutane. Maybe it is time to have a few things checked, such as hormones, iron and autoimmune disorders. Body wide hair loss could be alopecia or related to what I mentioned. I would search out more then just a derm they will be no use.....

 

 

Hi, who should I search out if not a dermatologist? And so I'm guessing you think this is not accutane related? I have a dr. apt. with my GP in a couple weeks and I could ask him to refer me to a specialist, I Just don't know what type...

 

 

 

Are you in the U.S.? Well I would give you GP all your symptoms not just the body wide hairloss....I'am NOT saying it isn't caused by accutane, most likely it is....Esspecially since you have experinced problems since taking it. Have hormones, iron and possibly autoimmune disorders.

 

 

Yes, I am in the US. I will talk to my GP when I go and see what he says. The dermatologists that I saw said it is highly unlikely that it is due to accutane since the hair loss started 3 years after taking my last pill...... I just don't know what to make of it anymore. Time will tell I guess.

 

Hey all, I took my last pill in november of 2007. Just this past August in 2010, I noticed my hair is thinning. It's all over my head, not in any specific areas. My body hair is also thinning all over, including my facial hair, arms, legs, chest etc. The hairs grow back in but are very fine and fall out easily. Hairs fall out when I lightly run my hands through my hair, and I'm losing eyelashes/eyebrows like crazy. Two dermatologists have told me MPB and threw propecia at me and ignored the body hair loss. I really feel like my hair loss is not MPB, thus I feel like taking propecia would be a risk with no benefits. My question to you all is, do you think it is accutane related if I didn't notice it til almost 3 years after my last pill? If not related to accutane, what other things do you think it could be? I really need to find a derm. that will take this seriously and not just chalk it up to MPB.....

 

 

I think I remember you have posted in the past about other issues from Accutane. Maybe it is time to have a few things checked, such as hormones, iron and autoimmune disorders. Body wide hair loss could be alopecia or related to what I mentioned. I would search out more then just a derm they will be no use.....

 

 

Hi, who should I search out if not a dermatologist? And so I'm guessing you think this is not accutane related? I have a dr. apt. with my GP in a couple weeks and I could ask him to refer me to a specialist, I Just don't know what type...

 

 

 

Are you in the U.S.? Well I would give you GP all your symptoms not just the body wide hairloss....I'am NOT saying it isn't caused by accutane, most likely it is....Esspecially since you have experinced problems since taking it. Have hormones, iron and possibly autoimmune disorders.

 

 

Yes, I am in the US. I will talk to my GP when I go and see what he says. The dermatologists that I saw said it is highly unlikely that it is due to accutane since the hair loss started 3 years after taking my last pill...... I just don't know what to make of it anymore. Time will tell I guess.

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