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I've been on just 25mg for a little over a month. Also take Ortho birth control and have for 10+ years with no issues. First, the mood swings and depression the spiro caused in the first few weeks were intense. I had like three incredibly needless crying arguments with my husband. Felt "crazy", kind of like really bad PMS from weeks 2-3 despite having just had my normal cycle. Have been spotting all week, a solid 7 days before my normal cycle. All of this I could chalk up to hormones readjusting and was willing to wait it out and manage. But holy shit the shedding thats started at 4-5 weeks in I cannot do. I've had thick, long hair my whole life. Just a ton of it. I can't run my fingers through my hair without losing whole strands. The shower drain and my hairbrush look insane. I can feel the thickness change. About had a panic attack in the shower this morning as I've never had so much hair come out in my hands. Like, I'll deal with some emotional issues for clear skin but the hair loss is unacceptable. I'd rather have the cystic acne, fuck it. Going to talk to my doc about topicals or maybe try laser or something. I can't do the hormonal shit, the depression, anxiety and hair loss are just crushing. Can't believe the changes from just 5-6 weeks at a low dose. Just, wtf.
A little more than a year ago I was prescribed Spironolactone for cystic acne. I had it very deep around my chin and mouth. Before, I of course had very oily skin. It was basically uncontrollable. I had tried a few things for it, but my derm basically jumped straight to the Spiro. A couple months before, I was also put on Ortho Tri Cyclen Lo. I had a good year with this combo. I literally don't have any acne left, but there is a huge problem, my hair is literally just falling out. I have never ever in my life had this problem. I am a 21 year old female with zero family history of hair loss. I saw my derm back in July and she denied that Spiro could cause this. Back at that time, the hair loss was noticeable to me, just because i know my body and when something is right and wrong. Well, I was forced to sort of put it behind me because she said that it wasn't possible. Obviously I was frustrated, but there wasn't much i could do, as my potassium, iron, and thyroid were all checked and all fine.
Anyways, here I am in October with HORRIBLE shedding! I mean, when I comb my hair after a shower, clumps are falling out. I take vitamins and stay as healthy as possible. Even during the day my hair is falling into my lap and all over my arms. It is quite irritating and also mortifying. I am trying not to stress about it, as i know that will make it worse, but its a bit hard to stay positive about this.
So i just saw my derm and she did a pull test. It wasn't good... a few pieces came straight out with the plugs on the end. On top of hairloss, my scalp is TERRIBLY itchy, but there is NOTHING. No dandruff, no rashes, nothing. She told me to stop taking the Spiro, so i did. She said she's never met a person who had hair loss caused by a medication that is prescribed FOR IT, but that I might be the exception. I guess the ultimate question is, has ANYONE been on Spiro this long and experienced this? i would really appreciate it if maybe someone could shed some light on this situation.
I stopped the Spiro and I know it's too soon for the hair loss to stop as that was just 4 or 5 days ago.
Any thoughts?
In my case I take it as hormones for my transition to a woman. It is true that hair grows in the central parts but it does not grow as fast along the back.
@paigems hi! Im experiencing hair loss as well. I had king blond hair and my pieces are fully falling out from the root! Any advice? I am freaking out! Did the hair loss slow down? If so when???
@paigems hi! Im experiencing hair loss as well. I had king blond hair and my pieces are fully falling out from the root! Any advice? I am freaking out! Did the hair loss slow down? If so when???
@goldteammate hello! I am experiencing the same issue! Did you have any stop in the hair loss? Also looking for positive stories! Thank you!
Hi I know this post is old but I am experiencing same 😭
I have women balding but it was not so bad I would say I was on right time to start topical minox and I had a lot baby hair on temples and was happy but my derm said it can irritate my scalp and gave me 1.25 mg oral minox and spiro 4 months ago
I switched cold turkey to the meda and loosed all gains ! My hair falls in clumbs I thiught itd from minox but my shedding phase on topical was maybe 3 weeks so I didnt knew spiro can do it also because my derm said no hairfall from spiro but now after 4 months my hair is 50% wgat I had my temples are so bald and now I look terrible !!!! My derm say its not spiro and I should go to a psychologist because of the stress.. im only on 50 mg but I hate this med should I wuit it? But im afraid I will be completly bald im crying everyday I regret starting it😭