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Lamarr,
I'm pretty sure that would be typical of all people just from a common sense viewpoint...
Jordan,
In my case i'm positive the reason why I have more success between 6 am- 12 pm than between 12 pm- 6 pm is directly due to the fact that the weather outside is cooler in the morning which leads to generally cooler buildings which leads to less flushing. If I workout in the morning my face is fine as well. I'm not trying to say that what you're saying is wrong, but for me at least it seems pretty simple.
Hey Jordan,
Firstly...the mepacrin has been used for over 100 years. All side effects are well known, millions of people have taken it (it doesn't aim to alter the body like accutane). tane has only been out about 25 years?
Secondly, dr chu my dermatologist (probably the best in europe, possibly the world) has used meparin on a few cases of accutane induced rosacea. That is what he calls this side effect from accutane, Rosacea...
When i was first diagnosed he told me it sometimes wears off, especially if you don't have it in the family (i do not). But then again sometimes it doesn't.
I pushed for the mepacrin because i knew it would be a huge benefit to me, not just the rosacea but all my other nasty tane induce side effects (all due to inflammation).
Lamarr, again man you know your ish, but, to call it accutane induced rosacea is just throwing in the towel to me. I say that because there no cure for rosacea and there is not even a definitive cause, thus mepacrine is not a cure rather it is just masking the existing problem. That being said Lamarr I have nothing but respect for you man and are opinions just differ. Your working with Chu and you think he knows his such and I am working with my guy Abrishamian who I think knows his stuff. Next time you see Chu ask him if he knows if Dr. Abrishamian because has done a lot of work in Europe predominantly Germany.
Update just took my first pill of today a couple hours ago and my flushing is pretty bad right now but usually with flushers when taken new medication the flushing gets worse before it gets better
This happened with rameron aswell.
halfpipe.
Halfpipe, My flushing was worse for the first 3 days. Then i began noticing some changes. Then by about a week to ten days i knew it was helping.
Lamarr, again man you know your ish, but, to call it accutane induced rosacea is just throwing in the towel to me. I say that because there no cure for rosacea and there is not even a definitive cause, thus mepacrine is not a cure rather it is just masking the existing problem. That being said Lamarr I have nothing but respect for you man and are opinions just differ. Your working with Chu and you think he knows his such and I am working with my guy Abrishamian who I think knows his stuff. Next time you see Chu ask him if he knows if Dr. Abrishamian because has done a lot of work in Europe predominantly Germany.
I will try and remember to mention him. Well the mepacrin seems to work for pretty much every case of accutane induce rosacea (admitedly it has only been tested on about 4 in total). So the other anti milarials should aswell. I don't want people just jumping on these though. I didn't JUST take it for the rosacea. Remember i have alopecia areata, mouth ulcers, mild joint pain, dryness, folliculitus, extreme ocular rosacea etc etc. I also had swelling of my nose, which would of possibly lead to nasal growth (all of these from tane) i knew mepacrin would be good for me.
Anyone can add me on msn if they wanna chat. Address is [email protected]
And for anything who is looking at the rocasea forum,I am now dowing that forum at all but they just seem to be a bit scared about finding a solution which I find odd
one girl started taking mepacrine and stopped within the first 2 days because she said her flushing got worse lol which I found stupid because anyone with flushing knows it gets worse before it gets better.
I find this forum (this thread) much better.
Jordan,
Hey man quick question. I talked to my doctor today about the growth hormone test and she said that the test for growth hormone directly is extremely variable and can be misleading. She recommended a test she considers better called insulin-like growth factor. I'm just wondering what test you got done?
A sad update..
I went to my main doctor to get my prescription refilled (he didnt know I was on plaquenil) but I sent him a email about mepacrine so I could get it and second he walked in he said Theres no way he could give me such a harsh drug like mepacrine,he said it messes with everything,your immune system and he said even if you get your eyes checked out by a doctor if there is slight damage it is IRREVERSIBLE..he basically said it has so many side affects and can really mess you up and he said this which I kind of agreed on but I was still sad
"So what are you going to do,be on mepacrine your whole life?,the side effects from that are huge"
He said alot of other stuff but im too sad right now to talk anymore..dont really know what I am going to do..feeling like giving up while im typing this..my flushing has been getting worse aswell..flushing while writing this..flushing all the time these days..on rameron for months see no improvement really..just dont know what to do anymore..
I was reading about oracea..and was wondering if that will help me? lemar..anyone with info it would be great
at a loss for words right now really..other parts of my life are falling apart due to this by the way..but i wont go on..
halfpipe 
Your doc is clearly totally uneducated on mepacrin. There is no risk of eye toxicity with mepacrin and millions of lupus patients take anti milarials similar to mepacrin but actually mroe dangerous (if you can call it that) for their entire lifes. Trust me mepacrin is pretty safe as drugs go.
It doesn't MESS with your immune system. That is the good thing about it. It supresses negative aspects of it.
If he thinks there are eye risks with mepacrin he obviously has no knowledge on the drug and has probably never used it.
JT get the growth hormone serum test, most traditional doctors will suggest the IGF-1 test because it provides more consistent results, however, it is not indicative of the specific pituitary problem we have so it will most likely be in range but you should still get that tested as well. If possible you should ideally have a full comprehensive endocrine workup including those two tests. The most important is the growth hormone serum test and you also need to get your blood draw early in the morning, when you wake up give blood asap like within the hour. Growth hormone levels peek from four to six in the morning and therefore will be at their highest the closer they are to that point.
Yo halfpipe, hang in there man don't give up I think my docs have almost figured it out and just dont stop man get your ass tested for everything, I know Lamarr said that what we have cannot be tested for but that is not necessarily true. Dont lay down and take this ish pursue an answer and we will find it trust in that.
Jordan,
Yeah that is what I was thinking. Might as well get them both tested, its just blood right haha.
Halfpipe,
Try to stay calm and positive man. I know that is hard to do, but getting worked up only dramatically increases our flushing. Since mepacrine can only treat the flushing anyways don't think of it as a miracle drug. There still could be other potential solutions out there for us.
hello.
I am a senior in pre-medical and my biomedical science professor is a pedriatrician.
After class i stayed talking to him about what has been happening to us. (permanent redness after accutane with flushing).
He then took me to the university head dermatologist, which happened to be his brother!
The dermatologist took me to the lab and looked at my cheeks and eye lids with microscopes and eye vision machines. We were together like for 1 hour 1/2.
He made me a blood work for vitamin defficiancy, and i was low in vitamin A, C and B12.
After all the examinations he told me that what happened was that during accutane i had a chemical reaction and i flushed too much which (damaged my blood vessels).
Damaged blood vessels are the cause of flushing and persistant redness. As for the eyes getting red he told me it was caused by all the flushing which makes the pores close.
He told me that this can be CURED with ipl lasers. And told me to buy zenmed skin supplement.
Then he explained that.... After the dialated blood vessels get fixed, my eyes and skin elasticity, and oil production will increase.
I had my first IPL two days after and it has been 3 weeks, and my skin is producing a little bit, more oil. I can even notice me getting clogged pores in my nose. I am having my next IPL next week, and another one in about 4 weeks after my next one.
I hope this helped.
has anyone used ipl lasers here?