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Halfpipe, you don't need an endo to order the test necessarily, any doctor even the doctor you are going to can order the test just get your doc to do it explain the situation. I am still waiting until there is a room available in the hospital so that I can get an arginine infusion test because it is an inpatient procedure, ill let you know how that goes, hopefully I can get in there this week, but get your Gh level tested asap.
O really jordan? dam thought I had to get an endo,lol from the way you were saying endo I just assumed I guess
thanks
Has anyone heard of that flushing/redness cream that is coming out in like a year/2,called sanrosa?
Supposed to be groundbreaking
Too bad for me I dont have the patience to sit back and wait for the goverment to approve it (could take a long time)
Here is a picture of a women who was tested on it for 120 minutes
ok i am confussed...
what are the tests that you guys recommend for us to get? because i am willing to help to find a solution toward our problem.
i am already getting a vitamin defficiancy test at; www.genewize.com
check it out..
so after i do that test which other tests should i be getting?
I FKN HAD IT. THERE IS NO DAM CURE FOR THIS SHIT.
its been two years with this freaking problem and i i've been to all the best dermatologists in Florida. All they say it is rosacea, and all they can do is control it. I am 100% sure that what i have is not fking rosacea.
It is an accutane LIFE long side effect so f it
Peter just look at lemarr for example,I bet he felt the same way you were feeling but he researched,and was determined to find a cure and he did.
Now I just got my prescription for plaquenil (100 mg daily)
I will hopefully see results like lemarr did (slightly in 10 days) and can post a good review in a month but I will update a couple times a week because I am sure you guys are gonna be interested.
halfpipe.
Peter just look at lemarr for example,I bet he felt the same way you were feeling but he researched,and was determined to find a cure and he did.
Now I just got my prescription for plaquenil (100 mg daily)
I will hopefully see results like lemarr did (slightly in 10 days) and can post a good review in a month but I will update a couple times a week because I am sure you guys are gonna be interested.
halfpipe.
Hey bro,
That is a very low dose, but i understand you want to keep any potential side effects to a minimum. My 100mg of mepacrin is about the same as 250-300mg of plaquenil. Now having said that i seem to be able to maintian on about 50-75mg of mepacrin, so you should see some results!!
Halfpipe,
Yeah my dermatologist told me about that cream when I went in to her complaining about the flushing for the first time about a year ago. It supposedly fights against acne too, but i don't know how long it is going to be before it hits the market. My only concern with that product right now would be if it would respond to our skin as I don't believe we suffer from rosacea which it is meant to treat. Nonetheless I am sure that I would be giving it a shot if it was on the market right now. Good luck with the plaquenil. I hope it works out well for you, but please monitor it closely to ensure that you don't get any nasty side effects from it.
Jay,
The fact that your flushing has decreased 20% only 7 months post accutane is very encouraging. There has been people that have seen the flushing go completely away within the first year to year and a half. My advice to you would be to avoid using harsh products on your face or to use any maintenance drugs such as minocycline. If you just leave your skin alone I would think that it has a good chance of going away within the next five months. I would advise you to just wait it out five months to see if it improves on its own before you consider doing anything to try and treat it because you could possibly make it worse. Only 7 months post accutane is too early to tell if it will go away or not. I hope that helps. Let me know if you have any questions.
Long read but I think it may help some of you lol sorry if I am rambling
Lemar first off thanks for the plaquenil dosage information I am going to start with 200mg now
And peter a brief history on my journey to get an anti-millarial
first off..
anti-malarial drugs are very VERRRY hard to get and I am SPEAKING from experience,way harder to get then accutane lol
First off I went to a couple clinics...(IM FROM CANADA..FREE HEALTH CARE..EVERYONE GOES TO CLINICS BECAUSE THERE TOO LAZY TO GO TO THERE FAMILY DOCTOR..SO CLINIC DOCTORS USUALLY UNDERSTAND)..So I went,To try to get mepacrine..all the doctors were confused and just concerned because it is a DRUG for a serious thing such as LUPUS so thats what jumps in doctors minds.
After my fail attempts with getting mepacrine and reading from lemar that any anti-millarial will do the job I resorted to plaquenil
I tried to call my main doctor..his secretery didnt pick up for 2 days so I resorted to medical clinics ..I went to one very nice female doctor who when I told her My doctor told me to go on plaquenil for my lupus symptoms (a lie but I did not expect her to understand the flushing problem,my overall view is no one will ever understand if you have not experienced it) so she was very concerned for me..she was asking have I been tested and That for a drug like this,only specialists usually give out but she said If my doctor agreed to me going on it then thats his choice but she said usually doctors who are not your family doctor,wont give you a drug like an anti-millarial,because once again its a serious drug.
So I called my family doctor again and boom he was away till monday,I decided not to wait (I just got my car back) and decided to give a medical clinic another shot,I went in and told the doctor that my family doctor was away and his secretary told me to come here for this prescription,he had questions saying usually its given for arthritis,I told him I have lupus symptoms (butteryfly rash..we usually get that either from seb derm/flushing..from ACCUTANE!) so he understood and gave me it for 10 days until I saw my doctor but he was still very concerned and asked my doctors full name and everything..(he was a bit worried I could tell)
anyways I get it and I am in the best mood Ive been all week,I go to get it filled and the pharmacist was concerned too and she asked if I had arthitis problems and I said not really and she looked at me (I was flushing) and said maybe its auto-immune and I could not believe it,out of all the people a pharamacist gets what I was thinking the whole time..BINGO
and plaquenil is used for lupus/arthritis yes peter,I believe mepacrine can be used for arthritis too.
A little bit of info on plaquenil
Hydroxychloroquine belongs to a group of medications known as anti-inflammatories and antimalarials. It is used alone or in combination with other anti-arthritic medications to treat rheumatoid arthritis because it helps to reduce pain, stiffness, and swelling in joints. It may take several weeks before the beneficial effects of hydroxychloroquine for the treatment of rheumatoid arthritis are seen.
Hydroxychloroquine is also used to treat and prevent certain types of malaria. It is also used for the treatment of systemic lupus erythematosus (SLE).
Overall Yes anti millarials are kind of a pain to get but as long as you do your research and have a open/good relationship with your doctor it will usually work out..
But always look going into a doctors office as YOU HAVE SOMETHING TO PROVE,dont ever go in thinking they will understand,I am pretty pushy lol but it has worked out
and by the way my useless derm when I brought up an anti-millarial for flushing he Laughed and said no there is side effects and said there is no cure for flushing and that I will have to deal with it and he said If you want advice,You may not wanna hear it but maybe dont look in the mirror for a while 
I wanted to punch him in the face
Fucking some derms man...
Dont look in the mirror lol I have a girlfreind,pretty popular guy,and go to university
and let me finish by saying my university has taken the biggest crash due to my flushing..(I decided to skip half a term to focus on getting rid of this problem)
We just have to all come together and help one another
Its good to see this thread back and active again,I was losing a little bit of hope because no one was posting in it a while ago.
Halfpipe.
Peter, did you say you already got your GH tested?
Halfpipe, your right lamarr did do a lot of research and found away to deal with his symptoms but he has not cured the problem, this inflammation is simply being blocked, we need to work on trying to find a cure, I know that sounds ridiculous because most of us are working on two years with the shit. Nevertheless, before I stuff another quick fix down my throat I am going to use the doctors I have put together to attempt of get to the bottom of this and it will go a lot faster if even a few of us are willing to get different tests and try some seemingly unorthodox things.
Lamarr, it is also something more than what you said before and a systemic inflammatory response to nervous system fluctuation and changes in cortisol levels. This is inconsistent with the fact that I get worse as the day goes on and seem to reset in the morning. Cortisol levels are at their highest in the morning and their lowest at night. Additionally higher levels of cortisol are attributed to inflammatory responses, which is inconsistent with the symptomatic progression. If is does actually have to do with the cortisol than the answer is that there is more going on that is causing our bodies to behave abnormally, aka improper hormone function.
Now this is just a possibility but if our pituitary glads our damaged than the adrenal gland is going to attempt to overcompensate for the lack of pituitary function. Cortisol is produced by the adrenal gland, as the day goes on and our growth hormone level drops the adrenals incorrectly produce more cortisol, thus causing the symptoms to intensify as the day goes on and almost reset in the morning.
Halfpipe,
Yeah my dermatologist told me about that cream when I went in to her complaining about the flushing for the first time about a year ago. It supposedly fights against acne too, but i don't know how long it is going to be before it hits the market. My only concern with that product right now would be if it would respond to our skin as I don't believe we suffer from rosacea which it is meant to treat. Nonetheless I am sure that I would be giving it a shot if it was on the market right now. Good luck with the plaquenil. I hope it works out well for you, but please monitor it closely to ensure that you don't get any nasty side effects from it.
Jay,
The fact that your flushing has decreased 20% only 7 months post accutane is very encouraging. There has been people that have seen the flushing go completely away within the first year to year and a half. My advice to you would be to avoid using harsh products on your face or to use any maintenance drugs such as minocycline. If you just leave your skin alone I would think that it has a good chance of going away within the next five months. I would advise you to just wait it out five months to see if it improves on its own before you consider doing anything to try and treat it because you could possibly make it worse. Only 7 months post accutane is too early to tell if it will go away or not. I hope that helps. Let me know if you have any questions.
Thanks
Thank, Im hopeful. Ill keep updated.
One thing ive noticed is that when i flush my face feels warm and pulsating. Recently Ive noticed that the oil in my skin and hair is coming back (along with some acne). Hopefully this will lead to positive changes in my flushing.
Now this is just a possibility but if our pituitary glads our damaged than the adrenal gland is going to attempt to overcompensate for the lack of pituitary function. Cortisol is produced by the adrenal gland, as the day goes on and our growth hormone level drops the adrenals incorrectly produce more cortisol, thus causing the symptoms to intensify as the day goes on and almost reset in the morning.
Bro, skin being much calmer in the morning is TYPICAL of rosacea. Go on the biggest rosacea forums and read, they all say the same thing!!
Lamarr I respect you man and your knowledge but there is no way what we have is rosacea. when I workout in the morning or do anything else that would normally exacerbate it my face is fine so it has nothing to do with my skin being calmer. We all got in this position because we took a drug and now we need to take another drug to help alleviate the symptoms. If it worked for you great, I just don't want to be on the next message board saying hi guys i took mepacrine for a couple months to get rid of my flushing and now I have to write this message using Brale because the mepacrine ruined my sight. I now the probability of that happening is slim but I cannot trade this ish for something worse just from a psychological standpoint. And really what do any of us really know doctors included, about all of this medication. Previously unknown side effects have been reported on just about every medication around. I am 100% with you about the inflammation portion, but if there is another cause and therefore a cure I am going to find it. Lamarr when I first started reading this blog man you were an inspiration because you were constantly perusing a solution and I want to keep that up. Whatever you believe the cause of this is specifically let me know and maybe my docs can throw that into the mix, I am always open for suggestions.