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My (F19) accutane telogen effluvium journey (PICS)

 
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25
(@undone515)

Posted : 10/24/2017 1:48 pm

Thanks for checking in,  Karly123. Unfortunately, my shedding seems to have increased in the last two or three weeks, which is extremely maddening. :@ I'm not sure if stress is at the core of this, as I've been really anxious about my upcoming move to a new city lately. I'm beyond the one-year mark and am in disbelief some days that I lost SO much hair. I will say that the quality of my hair has gotten much, much better in the last year, and I think that's due to getting rid of my candida, plus supplements, fixing my gut, etc. This has got to stop for us all at some point I would think. I've heard correcting a disrupted hair growth cycle can take up to a year or more, but it is feeling quite hopeless some days. :smileys_n_people_15: I just have to keep telling myself that our bodies are incredibly resilient and intelligent, and are naturally equipped to handle shock to the system...I desperately want to believe that my hair cycle will restore itself. I think I had latched onto this idea that my hair loss would run its course and I would magically wake up with tons of new sprouts of hair one day, due to all the stories and articles I'd read. I wonder if the tapering off of shedding is more like a rollercoaster (with times of less shed, then an uptick) than a straight line. I'm praying one of us has something positive to report soon. Hope everyone is doing well. XOXO. 

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chicanery, MeritNorth, flowerpower123 and 9 people reacted
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56
(@flowerpower123)

Posted : 10/25/2017 5:06 am

its good that some of you are reporting that your hair is starting to "feel normal again"....maybe thats the start of the hair cycle starting to normalise itself? Just praying this ends soon for us!

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chicanery, MeritNorth, chicanery and 3 people reacted
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79
(@chicanery)

Posted : 10/31/2017 8:17 am

Been using minoxidil for 9 weeks now. I am currently still shedding way too much, but (fingers crossed) the huge minoxidil shed seems to be tapering off. I'm no longer losing huge handfuls of hair. I also can SEE visible regrowth from the minoxidil. I don't know if these hairs will stay around, or grow properly, but they are definitely from the rogaine. I have a lot of new, dark-coloured, thick 1cm long hairs around my hairline. Didn't expect it to work like this - it really IS generating new growth.

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flowerpower123, Juwalker, MeritNorth and 6 people reacted
MemberMember
49
(@karly123)

Posted : 10/31/2017 9:08 am

good news to read chicanery!! :) 

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MemberMember
47
(@meritnorth)

Posted : 11/05/2017 9:08 pm

Update: I've lost the regrowth I was gaining and seem to be in another shedding spell. :(  I'm hoping it's part of the cycle my body is going through to get back to normal, but it's so frustrating!

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MemberMember
231
(@fchawk)

Posted : 11/06/2017 7:12 am

Serum Biotin Levels in Women suffering Hair Loss

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4989391/

"Of the women complaining of hair loss assessed for serum biotin levels, 38% had values consistent with biotin deficiency (<100 ng/L) and 13% optimal (>400 ng/L). In the women in whom trichograms were performed, both groups (biotin deficiency and optimal levels) demonstrated diffuse telogen effluvium in 24%. Therefore, the trichogram is not helpful in detecting hair loss relating to biotin deficiency since it is neither sensitive nor specific, with telogen effluvium in women usually being of multifactorial origin. Rather, associated seborrheic-like dermatitis found in 35% of women with serum biotin levels <100 ng/L and telogen effluvium versus 0% of women with optimal biotin levels and telogen effluvium in trichograms, may point to significance of biotin deficiency. Finally, the patient's history may be helpful in detecting biotin deficiency, though with low sensitivity, since in the biotin deficiency group 11% (eight inflammatory bowel disease, six isotretinoin treatment, six antibiotic treatment, and one antiepileptic treatment) versus 1.5% in the group with optimal biotin levels (one on antibiotic treatment) presented with a history of risk factors for biotin deficiency."

It is unlikely biotin is the sole cause, and I am a dude who has simply noticed my hair is weaker than it was, but without suffering much hair loss, but I found it interesting that the study noted that in the severe cases of biotin deficiency accutane was a leading cause, even though the people who take accutane would be a fraction of the people who take antibiotics. Anyway, my best guess would be that accutane inhibits the absorption of all vitamins and minerals, so in addition to taking biotin, it may well be a good idea to take a multivitamin on top, or supplement other essential vitamins and minerals individually. No doubt other deficiencies are causing other issues, even if they are less apparent.

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MemberMember
1
(@jamesjohn)

Posted : 11/07/2017 3:12 am

hey I was wondering what you mean by shedding. I have had diffuse thinning for 2.5 years following a year of accutane. I cant figure out if I have CTE or mpb, Im a dude and have really short hair so Im assuming thats why I dont have visible shedding but if I had long hair it would shed. Im assuming you mean falling out by shedding.

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49
(@karly123)

Posted : 11/07/2017 12:26 pm

yes, is falling hair :) 

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56
(@flowerpower123)

Posted : 11/08/2017 4:05 am

Merithnorth, do u think there is something that triggered your shed to start again and loose the regrowth? Are u taking any supplements or using any vitamin A cream?

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MemberMember
79
(@chicanery)

Posted : 11/09/2017 8:56 am

I'm shedding horrendously again, handfuls.. probably 400-500 a day. i just dont know what to do, and can't believe i took Accutane. I'm gonna keep using the minoxidil and will report back in a few months. I don't think you can/should be updating weekly when it comes to hair loss, as it's just such a long process. I guess by around January I'll know whether the minoxidil is helping. I just need the sheddingto stop .The constant shedding that I've had since accutane is the reason why I have 35% of my original hair. I do get regrowth, my follicles work, but my daily shed rate is still so high....why?

Until Xmas/Jan, I've just gotta focus on other stuff. My hair is HORRIBLE now, and I'm so angry, bitter and jealous. I'm 20 and spending a semester abroad for university, and at this stage in my life I *should* have my waist length, incredibly thick, luscious hair. I've massively messed up taking accutane and will probably have to live with this forever, but it's also not something I can accept. Feeling very, very low.

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MeritNorth, Yar, flowerpower123 and 6 people reacted
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211
(@brendan452)

Posted : 11/09/2017 3:10 pm

Hi I'm still shedding hair but it is now very minimal.
i noticed an improvement after using regaine foam and himalaya liv52 double strength supplements.ive very very recently started drinking spearmint tea as this is proven to work in diffuse hair loss ive only been using it recently so I can't give it a thumbs up just yet

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MemberMember
79
(@chicanery)

Posted : 11/09/2017 4:22 pm

1 hour ago, brendan452 said:

Hi I'm still shedding hair but it is now very minimal.
i noticed an improvement after using regaine foam and himalaya liv52 double strength supplements.ive very very recently started drinking spearmint tea as this is proven to work in diffuse hair loss ive only been using it recently so I can't give it a thumbs up just yet

how long have u been using rogaine for? is it helping you regrow hair?

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MemberMember
211
(@brendan452)

Posted : 11/10/2017 2:40 am

About a year.we are all regrowing hair if we wasn't we would all be bald by now .hair takes a long time to grow and it's very hard to notice but accutane has put most of our hair in the telogen phase.the regaine does suppress the telogen phase and it makes me shed a lot less I loose maybe 20 hairs a day were this time last year it was in the hundreds .i only use it at night because that's what seems to work for me.please note I am a male and what has helped me may not necessarily help you in the same way

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56
(@flowerpower123)

Posted : 11/10/2017 7:20 am

Brendan,

how long did your hair fall out for? Did it start after you stopped taking accutane?

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MemberMember
211
(@brendan452)

Posted : 11/10/2017 11:37 am

My hair started falling out while I was taking accutane and it was the reason I stopped taking it.it still continued to fall out even after years of not taking it

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MemberMember
48
(@a1992)

Posted : 11/10/2017 1:15 pm

25 yo male here, today is exactly 4 months post accutane. I lost a good chunk of my hair (17% ish on top of scalp) to accutane within the 2 months after I stopped accutane. 45 days ish since I started properly taking care of my hair and this passed week I noticed the shedding significantly reduced to maybe around 50 to 70 days hair, possibly even less. I will write my full story soon and hopefully it can help you guys out a bit.
to be honest the main reason you all shedding is due to stress which can cause chronic TE. On the day I worry less, I shed less hair and the days that I freak out more hair falls out. When I discovered this fact about my hair I removed stress from my life as much as I can and I feel much much better. Haven't seen any regrowth but I know its too early however I feel my hair is getting thicker and stronger after a month of taking supplements and no rogain. will post more info soon and will include pictures.

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1
(@yoto)

Posted : 11/11/2017 7:52 am

hi chicanery,
i took Accutane 3 years ago (on and off, like when I have a pimple I take Accutane for a week and when my face was cleared I stop using it) during the first two years I never had a hair loss, but last year, all the sudden, the frontal of my scalp is thinner on the right side just the right side and I didnt know that one of the side effects of Accutane is hair loss till 3 months ago so I stoped using it, the Irony of my situation that Im studying in a pharmacy school, and when I was reading a book on hair loss I noticed that retinoids induce hair loss is common thing ( Accutane is a retinoids derivative) and it will recover after the drug is completely eliminated from your body
but Accutane or isotretinoid can cause a cholestasis which is acondition in which substances normally excreted into bile are retained, so the Accutane elimination delayed further more and there is liver detoxdrugs to speed up the process.

as for my hair loss as Ive told you Im now 3 months off Accutane
and the hair shedding is slower then before but no sign of hair thickness and the acne is back again.

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MemberMember
49
(@karly123)

Posted : 11/17/2017 2:17 pm

hello! im still have falling hair, i have resumed the use of minoxidil again, 5% :) 

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chicanery, flowerpower123, Yar and 6 people reacted
MemberMember
47
(@meritnorth)

Posted : 11/27/2017 8:10 pm

My hair is back to shedding majorly. I really thought I was starting to see a difference but it now seems to be getting worse. I'm so sick of trying to style my hair to cover my scalp. Picture of what's left of my once full head of hair :( 

20171127_190750.jpg

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Yar, chicanery, Yar and 3 people reacted
MemberMember
211
(@brendan452)

Posted : 11/28/2017 7:22 am

If your taking any vitamins like iron biotin etc don't! All it does is makes things worse

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MemberMember
56
(@flowerpower123)

Posted : 11/28/2017 7:31 am

Brendan, why do u say not to take vitamins? Surely they could only help the hair?

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MemberMember
48
(@a1992)

Posted : 11/28/2017 2:06 pm

Do not stop taking ur vitamins!!!

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MemberMember
49
(@karly123)

Posted : 11/28/2017 3:01 pm

hola MerithNoth, that happened to me twice, that why i started with the Minoxiidil. I'm totally understand you :) 

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MeritNorth, flowerpower123, MeritNorth and 3 people reacted
MemberMember
211
(@brendan452)

Posted : 11/28/2017 3:36 pm

If you take too much zinc it will cause hair loss due to copper imbalances
if you take biotin in high doses it also causes hair loss
iron overdose for long periods of time if you are not deficient causes hair loss
an excess of any vitamin that you are not deficient in will do more harm than good and poison your body.
it wound be fantastic if I could go to holland and Barrett buy some iron and poof no more hair shedding and I tried that.but it doesn't work like that ,are livers are struggling to detox and adding an excess of concentrated vitamins we don't need will only put more strain on are body's.
a good detox tea every day minoxidil to slow down the shedding and time is the best.my advice is stay away from concentrated vitamin tablets because it's the very reason we are all in this mess

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MemberMember
211
(@brendan452)

Posted : 11/28/2017 4:07 pm

Do you think homeless people living on the streets and people living in third world countries get the rda of iron and biotin every day ??? No do they fuck and do they all have bad hair??? No to that question aswell they definitely don't.
if your looking at vitamin tablets for the answer I'm sorry but your waisting your Time i waisted years and money going down that route

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