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5 Months Post-Accutane... Digestive Problems?

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(@needsomehelp1)

Posted : 01/21/2014 12:56 pm

 

Hello, I was just wondering, I've been off Accutane for 5 months, but i never got to have a "regular" result when I go to the toilet since... I had seen a doctor who told me I was lactose intolerant, so I stopped everything with lactose since december but I still have diarrhea and basically any time of day, any time of night, I can't expect do do things like fart...

Anyway it's getting a bit uncomfortable, and I was just wondering if there's something I should check out.... I think maybe gluten, but it seems rather extreme... I didn't have any kind of problem like that before, but I know a lot of people whom I've subtly talked to about this, and gluten intolerance would be the reason why I had acne in the first place (THAT hasn't come back yet.), and so on. So basically the new digestive problems would be old, but they didn't affect my digestion? So that's why I'm confused, I don't know if it's accutane or if there's anything. I used to have a LOT of trouble on accutane, which gave me enough problems with school and people, most people have stopped talking to me altogether but I still have one or two friends who are around, and physically my back doesn't hurt and I "feel healthy", except the annoying digestive problems, so I'm not sure if it would be Accutane, and my doctor said I wouldn't have anything after accutane if I didn't have something before.

So.... i don't know what to think! Help...?

 

P.S.: No blood at least (used to until about december).

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(@melmel87)

Posted : 01/21/2014 1:42 pm

Accutane can cause IBS from what the side effects say, but if you had problems prior to accutane it could have made it worse.

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(@quetzlcoatl)

Posted : 01/21/2014 1:48 pm

Sounds like you killed too many of your intestinal stem cells. Accutane is a cancer chemotherapy, after all. I'm not entirely sure what can be done. Perhaps the diarrhea a result of malabsorption. Sugars and ions hold onto water as they pass through your system, and so if they are not absorbed, they can make stools watery, as seen in lactose intolerance (lactose is a sugar). That's probably why your doctor thought it was lactose intolerance, but this is clearly more widespread since it didn't respond to reduced lactose intake, and likely applies to sugars and ions in general.

You'd have to try to stimulate regrowth. Avoid sugars (including starches), and try to eat more fats. There's a chance that you could have fat malabsorption as well, but that's less likely, and if you do, you'd probably be able to see it in your stools (you would be able to see the fat that wasn't absorbed). Also eat proteins, of course, but more fats.

I would suggest making bone broths to aid in healing; the gelatin, proteins, and host of other nutrients have been historically good for fixing GI issues. I would also suggest increasing fiber intake in the form of leafy greens; this should help to stabilize your flora, because the cellulose isn't meant to be by your body absorbed anyway.

Now, if you have Crohn's, it's a whole new story. I believe you would be in much pain, though, if that were the case.

Oh, and malabsorption can lead to nutritional deficiencies down the road and a whole host of other problems. You really need to dedicate yourself to fixing your body right now, otherwise it will be harder later on. Start with strict paleo - bone broth soups made correctly (if you have the resources to do so; just google paleo bone broth recipes), leafy green salads, a few of the less sweet fruits (you need to avoid sugars; go for small granny smith apples, raspberries, blackberries, pumpkin, all in moderation). Cook with butter and coconut oil. Use coconut cream to thicken things. If you don't know how to cook, a wealth of information is available online. There are many paleo websites you can draw information from about what you should and shouldn't eat. The transition is hard, but I'm afraid conventional medicine doesn't offer many cures for GI afflictions.

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(@needsomehelp1)

Posted : 01/22/2014 11:12 am

 

Ok, well I can tell it doesn't hurt except sometimes I get stomach aches. (Though I say "stomach" ache - it's in that area.) As for fats I don't eat a lot of fat, I usually eat about once a day, but I snack on vegetables all the time.

 

I had stopped butter though because it's supposed to contain lactose?

 

Is it possible it's because of the vegetables though? Sometimes I really eat a lot, like a whole cauliflower.

 

As for what I see or don't in my stool I wouldn't be able to tell, it's a mess but it changed a lot from before. Also I did use to drink a lot of milk and eat a lot of cheese, I never had a problem but I had tetracycline prior to accutane so I stopped. I started back again when I was on accutane but I was overdosing on accutane or something, i only have some vague memories but I don't think milk was a problem at the beginning? It seems to have become a problem only a little after I finished accutane, or maybe I just didn't notice earlier.... but still I haven't been really brave enough with surprise "farts" yet to find a job and I'm gonna get kicked out of the house so I really need to get something done other than my doctor telling me I can't have anything new because of accutane.

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(@quetzlcoatl)

Posted : 01/23/2014 10:50 am

Butter contains trace amounts of lactose, but you almost definitely don't have lactose intolerance. What you're describing sounds like IBS, which there is no cure for. This is bad, because the information we have about it is scarce and conflicting.

What I would do is try to rebuild the flora (in addition to healing my gut with bone broth soups, etc). To do this, you'll need probiotics, prebiotics, and compounds that selectively destroy bad bacteria (you'll need to destroy the bad bacteria in order to make room for the good ones). I can recommend a few things, but some of them are hard to get, and quite expensive. One of the most unfortunate parts of all this is that none of these treatments are covered by insurance. Because conventional medicine offers no cure, you're caught between spending a lot of money, and suffering endlessly. Not a good place to be :/

Anyways, here's what I would recommend, on a typical day:

[Wake up]

2 x Mutaflor with water

[wait 30 minutes]

Breakfast - Pumpkin Smoothie: 2Tb Almond Butter, 2Tb full fat yogurt, 3Tb coconut milk or coconut cream, 4Tb pumpkin, 1 banana, 1 raw egg, cinnamon, nutmeg, and vanilla to taste. Blend on low speed for 30s, then high speed on 30s or until everything is well mixed, enjoy.

Snack - Salad: As many raw leafy greens as you can handle (no lettuce, baby spinach is much better, but you can also look for things like arugala), sprinkle of walnuts or pecans, sprinkle of dried cranberries, sprinkle of lemon juice, sprinkle of olive oil.

Lunch - Seared Chicken: A couple chicken breasts or thighs, or however much you want, 2 small red onions, 8 grape tomatoes, 6 cloves of garlic (mash/mince garlic 10 minutes before adding to pan for maximum nutrition), 1Tb capers, 2Tb beef broth. Brown onions, then add garlic. Add chicken, and sear it on both sides until slightly browned. Add tomatoes (sliced in half), lower heat and add beef broth. Let cook for a while, then shut off heat and add capers (note - I am not a chef, so feel free to modify these recipes. I just make what looks good to me, and adheres to the paleo diet).

Snack - Yogurt: 1/2 - 1 cup yogurt, sprinkle dried cranberries, nuts, and honey on top. Slice up a red banana for extra flavor (make sure it's nice and ripe).

1 x Align (with yogurt)

Dinner - Bone broth beef stew (many recipes online; it's important that you make your own broth)

2 x Mutaflor (before going to sleep, preferably at least 2 hours after dinner)

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In addition to the many and varied foods included in the paleo diet, you'll need:

Mutaflor - sold in Canada and Europe but not the US (our FDA likes to squash the competition of pharmaceutical companies). Mutaflor cannot be shipped to you if you live in the US. Still, this is probably one of the best probiotics on the planet, and is worth making the trip for. Basically E. coli in a box (most E. coli are not harmful, including this one). Take 4 pills a day, 2 in the morning and 2 at night, without food is best.

Align - B. infantis, also a very useful probiotic. I think you can buy it online and have it shipped to you. 1 pill a day, without food, or with yogurt.

Vitamin C - I recommend megadosing on vitamin C for the beginning of your treatment plan. 10g a day, divided into 2 doses (5 grams in the morning, 5 at night), without food. I recommend taking it before probiotics - so, wake up, take 5g vitamin C, wait 30 minutes, take probiotics, wait 30 minutes, eat breakfast. The idea is that the vitamin C is clearing a path for your probiotics, but it could kill the probiotics as well, so you want to time it correctly. Megadosing on vitamin C could cause diarrhea for some, but don't be disheartened by this. Take the vitamin C for 4 days, and then stop. Remember to take probiotics during and after vitamin C megadosing.

Emmental cheese - Has a particular strain of probiotic - up to 1 billion live cells per ounce of cheese. The bacteria eat lactic acid, so if you ate the cheese after eating yogurt, you would get a more potent effect.

Fiber - Get fiber from a bunch of sources, predominantly leafy green salads. Cauliflower is fine in addition to these leafy green salads. If you can find an organic, unwashed mix of greens in the store or from a healthfoods shop, get it. Leafy greens have good bacterias on them as well, and you might get lucky. Other great sources of fiber are onions and garlic. Cook with these as much as possible - in addition to have fiber, they destroy bad bacteria. Again, make sure to cut/smash the garlic 10-15 minutes before cooking with it for maximum benefit.

Coconut - Coconut oils are slightly antimicrobial in the right ways. Add coconut cream to smoothies, cook meats in coconut oil, add coconut oil to stews, etc. The coconut oil will help to stabilize your flora and keep the bad bacterias at bay after you stop the vitamin C megadosing.

So, to sum it all up:

Vitamin C megadose - 5g, twice a day, for a total of 10g for 4 days without food

Mutaflor - 2 pills twice a day without food

Align - 1 pill once a day without food/with yogurt

Emmental Cheese - once every other day, or every three days, with yogurt is better

Green salads - A good sized serving, twice a day

Onions/Garlic - Cook with it whenever possible

Coconut oil/coconut cream/coconut milk - Add it to whatever possible

I don't like making guarantees, but if you manage to do all this, I would be very surprised if you did not drastically improve. This isn't easy, though. Just getting things like mutaflor is a challenge in its own, even if you have plenty of money. And the paleo diet isn't exactly cheap, either. It also takes some time for your palette to get used to the new tastes, especially if you're going by the standard American diet. It took me two years to be able to eat salads twice a day.

Best of luck to you.

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(@needsomehelp1)

Posted : 01/23/2014 11:50 am

 

Thanks, I'll do my best to try out those things, but that seems very complex. :s I know from the news here in Canada (I live in Quebec) we have plenty of E Coli in hospitals, but that's not the good type I'm afraid. as for the rest there's lots of things that seems complicated... I suck at cooking, most of the time I just eat a basic something like cooked meat once in a while, otherwise I just eat raw vegetables or fruits or raw nuts and whatever... key word always being "raw", but I also eat garlic and so on...

 

I really doubt it would be IBS though because I don't have pain except sometimes once in a while like I guess anyone could have a stomach ache. It might be gluten because I haven't taken out all of the gluten related things from my diet long enough to see if it would be that, but I want to go do a blood test soon. Besides I really don't think my doctor would've said I'm lactose intolerant and so on without considering IBS too?

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