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Repairing the long-term damage from Accutane

 
MemberMember
715
(@thomas76)

Posted : 10/18/2022 8:10 pm

Last weeks blood test came back high lipids. Will shoot for lovastatin at next weeks appointment.

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MemberMember
715
(@thomas76)

Posted : 10/19/2022 10:44 am

https://www.sciencedaily.com/releases/2013/08/130829112854.htm

Some of the biggest aspects of accutane poisoning are increased triglycerides and telomere shortening. Statin drugs appear to address both issues.
I believe all the negative reviews about statins come from ignorant people who were too stupid to include Coq10 along with their statin drug, and then blame the drug for all their problems, which leads real victims like ourselves to stay away from it and suffer needlessly for years. My test showed high lipids. Doc appt on the 25th.

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0
(@healinglight)

Posted : 10/20/2022 3:59 am

On 10/13/2022 at 9:25 PM, MonsterDiesel said:

Are you supplementing biotin? Because this is how you give yourself a biotin deficiency.

No, I've eaten up to 50 whole raw eggs a day and have never had any issues with it. The only issue is that if you eat a lot of raw eggs and no other source of fat your body gets a bit dry, because raw eggs bind toxins from fat in your body and increase metabolism. Some eat just the yolks but I think it's better to eat all of it.

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MemberMember
715
(@thomas76)

Posted : 10/20/2022 8:48 am

I think a big part of the confusion with accutane is that for some people, the issues persist because the drug is trapped in the body, while for others, the issues persist after the drug is long gone due to permanent brain damage.
lecithin rich foods such as raw eggs blended with lactose free milk would be excellent for those who have the drug trapped in the body, as healing light has noted. Lecithin activates Lrat, which would be huge for removing accutane if its still there.
for those dealing with permanent brain damage, I believe statins may be the answer. Hopefully will find out next week.

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MemberMember
183
(@monsterdiesel)

Posted : 10/20/2022 8:49 am

4 hours ago, HealingLight said:

No, I've eaten up to 50 whole raw eggs a day and have never had any issues with it. The only issue is that if you eat a lot of raw eggs and no other source of fat your body gets a bit dry, because raw eggs bind toxins from fat in your body and increase metabolism. Some eat just the yolks but I think it's better to eat all of it.

Also, raw egg whites contain avidin which bind biotin creating a deficiency. It's a well known effect of eating raw eggs. It would be prudent to add biotin anyway.

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MemberMember
715
(@thomas76)

Posted : 10/20/2022 8:51 am

A blender deactivates avidin. I have issues eating raw eggs straight from the shell due to the biotin issue. When i toss them into a blender with milk those issues vanish.

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MemberMember
397
(@calcified)

Posted : 10/21/2022 7:01 pm

On 10/20/2022 at 2:14 AM, Thomas76 said:

https://www.sciencedaily.com/releases/2013/08/130829112854.htm

Some of the biggest aspects of accutane poisoning are increased triglycerides and telomere shortening. Statin drugs appear to address both issues.
I believe all the negative reviews about statins come from ignorant people who were too stupid to include Coq10 along with their statin drug, and then blame the drug for all their problems, which leads real victims like ourselves to stay away from it and suffer needlessly for years. My test showed high lipids. Doc appt on the 25th.

Can I ask your bmi?

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MemberMember
715
(@thomas76)

Posted : 10/22/2022 2:52 pm

Not sure. Height fluctuates up and down 510 to 59. Weight before the scamdemic was 170. After the scamdemic 190. Ive always been borderline high triglycerides going back to my very first blood test in early 20s. Docs never really pressed me to take a statin since it was always borderline.

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MemberMember
715
(@thomas76)

Posted : 10/27/2022 8:44 am

Doc said I dont qualify for a statin based on overall cardio risk score. I started dr Christophers xinfx formula earlier this week and so far so good. Not saying Im fully healed but Im liking how I feel from it so far. Sleep has improved also.
This is a herbal formula designed to support the lymphatic and immune systems. Healing light, nature crazy YouTube guy, myself, and others have theorized that accutane is essentially trapped in the body, and getting it out of the body is key to recovery.
The lymphatic system is likely the most crucial route of accutane excretion. If the lymphatic system is dysfunctional, accutane isnt going anywhere. Once the lymphatic system is supported herbally, its function improves and accutane can then finally be released.
there is one other lymphatic herbal formula that looks interesting. Himalaya herbals immunocare. Keeping fingers crossed. Will report more progress info as it comes.

Psalso doing ancestral supplements living bone as well for alkalizing and rls support.

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MemberMember
715
(@thomas76)

Posted : 10/27/2022 10:28 am

 

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MemberMember
183
(@monsterdiesel)

Posted : 10/27/2022 12:50 pm

On 10/20/2022 at 9:51 AM, Thomas76 said:

A blender deactivates avidin. I have issues eating raw eggs straight from the shell due to the biotin issue. When i toss them into a blender with milk those issues vanish.

Interesting. Did you learn that from a study?

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MemberMember
715
(@thomas76)

Posted : 10/28/2022 12:44 am

Absolutely not. In my experience studies mean nothing. Actual first hand anecdotal evidence is paramount in my book. I feel absolutely horrible after cracking a raw egg into my mouth and swallowing. I feel slightly better when blending lactose free milk with raw eggs at high speeds in a blender.
A google search reveals others feel the same way about blending raw eggs. Its possible the high speed blending action generates enough heat to denature the avidin, or maybe its a mechanical action of the blades against the avidin. Regardless, it works for me.

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MemberMember
715
(@thomas76)

Posted : 10/28/2022 11:32 pm

Added whole beef liver pills back to the program today, to go with dr Christophers xinfx and ancestral living bone. Will post results later.

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MemberMember
715
(@thomas76)

Posted : 10/29/2022 6:42 am

I just diagnosed the foot issue Ive had for quite a while. Haglunds deformity. A Google search reveals other accutane ppl deal with this issue. I believe athletic sandals with a back strap are likely the best fix outside of surgery. Got a pair of Fila sandals coming in tomorrow.

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120
(@pido)

Posted : 10/30/2022 1:44 am

I had hallux rigidus, a bone spur over my big toe joint and I had to get it surgically removed. I believe I got it from walking with safety shoes at work.

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MemberMember
715
(@thomas76)

Posted : 11/03/2022 7:38 pm

Dropped the other supplements and just started rosehips capsules. Accutane is 13 cis retinoic acid. Rosehips are loaded with all trans retinoic acid, which is the polar opposite of 13 cis retinoic acid.
My current theory is that accutane is trapped in the body preventing true vitamin A from attaching to rxr and rar. Retinol rich beef liver overloads the body with too much of the cis isomers. Same thing with eggs. Rosehips does not, as there are no cis isomers in rosehips, only the trans isomer, which is what the body is lacking thanks to accutane. Will report any progress, if any, next week.

https://mahalo.care/retinoic-acid-by-numbers/

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MemberMember
183
(@monsterdiesel)

Posted : 11/04/2022 8:37 am

12 hours ago, Thomas76 said:

Dropped the other supplements and just started rosehips capsules. Accutane is 13 cis retinoic acid. Rosehips are loaded with all trans retinoic acid, which is the polar opposite of 13 cis retinoic acid.
My current theory is that accutane is trapped in the body preventing true vitamin A from attaching to rxr and rar. Retinol rich beef liver overloads the body with too much of the cis isomers. Same thing with eggs. Rosehips does not, as there are no cis isomers in rosehips, only the trans isomer, which is what the body is lacking thanks to accutane. Will report any progress, if any, next week.

https://mahalo.care/retinoic-acid-by-numbers/

How much rosehip would you have to take to get any significant amount of ATRA? Also remember that ATRA is what retin a is which is what started all my toxicity issues. If this theory is true, rubbing retin a would have the same effect but I don't recommend this.

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MemberMember
715
(@thomas76)

Posted : 11/05/2022 1:16 am

The problem with retin a is it is a synthetic isolate, whereas rosehips is a whole food. The human body doesnt like synthetic isolates. It always prefers Whole Foods. Rosehips already has wiped out my chronic rls. Libido shows minor improvement but nothing major yet.

So far Id rate rosehips above anything else Ive taken, natural or pharmaceutical. Definitely not cured but Ill stick with it daily for now and maintain hope. 2 capsules x2/day. Solaray is one of the cleanest brands out there. Earthborn elements is a clean brand also.
with retinol rich beef liver and eggs Id always have to stop in less than a week because after a while those both do me more harm than good. I believe they were overloading me with too much cis retinoic acid. If I can go over a week with daily rosehips intake, that would definitely be a good sign. Not there yet.

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MemberMember
715
(@thomas76)

Posted : 11/06/2022 9:38 am

Just added Tribulus to the program. Will keep the board posted.

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MemberMember
715
(@thomas76)

Posted : 11/06/2022 9:44 pm

This board is not for pro accutane, pro poison morons. Get back to poisoning your body while the rest of us focus on recovery.

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0
(@thomas-whitley82)

Posted : 11/12/2022 5:53 am

I know this is a long old thread now but i took accutane (labelled roaccutane) in the UK when i was 17/18 (im now 40). At age 30 i was diagnosed for a while with cfs/me until they discovered i was producing no testosterone from my testes at all. It even took them a year to do that blood test!

I was diagnosed with secondary hypogonadotropic hyporgonadism (sp?) because my pituitary gland doesnt release a hormone to my testes anymore. Kind of got swept under the carpet but lost my job whilst this was going on as it was a physical job and been on nebido testosterone injections every 11 weeks for 10 years now.

Every now and then i do a search on Google and these threads pop up. There was one a long time ago wherby there was a court case in the US for similar issue but that was many years ago.

One theory was your pituitary gland gets suppressed when on this drug but not enough to cause problems short term. Then as you age and everything has a bit more mileage and shrinks with age things fall over and stop functioning properly.

Just theories as theres never been enough medical interest.

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MemberMember
397
(@calcified)

Posted : 11/13/2022 6:37 am

@Bluegluenever heard of producing zero testosterone only low normal, do you take other meds, I know opiods crush my testosterone below normal.

I tried the injections of testosterone but it was only noticeable when I was above normal ranges.

I don't believe it's a pituitary issue, I would be more inclined to believe it's got something to do with retinoic acid or retinol functions.

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MemberMember
1804
(@truejustice)

Posted : 11/13/2022 7:22 pm

Endocrinologist took one look at me earlier this year and said, well you definitely produce testosterone just by looking at you

Ive got hairy arms and a beard so hes right,the question is more about is it getting around the body to all the right places??!!

After a comprehensive blood test he concluded I should have enough fuel in the tank so to speak and not to go on replacement therapy. He said thats a complicated path that has its own host of issues - I agree.

 

Anyway, I continue to work with kinesiologist in balancing hormones, balancing immune system in the right/left brain in particular

Combating brain fog with the following program with brain balancing:

NADPH + Flaxseed Oil - the oil helps NAD get into the brain, others may need a diff oil, this is what I best respond to.

SOD Booster + B1 + Magnesium

After todays session, the next thing my brain wants is a product called Pycnogenol, to help reduce inflammation This should be a good one for me, help to reduce brain fog/inflammation and Im hoping reduce varicose veins which Ive had post tane and never had before that.

 

Theres also sessions still with lymphatic drainage.

Hard to say if Im wasting my time and money going down this path but what else are you going to do?? Have to try something to improve health.

 

Grateful to still work full time and to have a reasonable quality of life, theres still hope I guess, its been a long path out though

 

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MemberMember
397
(@calcified)

Posted : 11/14/2022 10:18 am

@TrueJusticegood work on being fulltime, im only part time, wouldn't be able to go full time just too much joint pain/calcification/stiffness and fatigue.

It's weird how we have fairly low test, yet hairy, truth is I think we have high dht in skin after accutane or me anyway. RA or retinol is a dht inhibitor in skin which I think I'm low on now or it just don't work anymore.

As far as seeing a kinesiologist, its your money, so your call. Hope they not charging you too much as cost of living in our country is getting insane.

You were the first person to respond to me on the forum years ago, which made me fell welcome, which I thank you.

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MemberMember
715
(@thomas76)

Posted : 11/14/2022 8:53 pm

I was with the same job full time for over 15 years until November of 21, when b shift was eliminated. Ive never been any good with early mornings or working c shift. Been doing doordash grubhub and ubereats with a 2010 Toyota Prius the past few months and it works well for me. Decent money, decent schedule, no pressure.

Currently doing canned pumpkin, raw honey, and lactose free 2% milk smoothies twice daily. The idea being that accutane is still in the body, and using beta carotene rich pumpkin to replenish true vitamin A, and honeys rich supply of glucose to create glucuronic acid, to conjugate with accutane via glucuronidation. Studies have shown that glucuronidation is the major detox pathway for accutane.
monsterdiesel once mentioned a sensitivity to beta carotene. I believe raw honey would eliminate beta carotene sensitivity because the glucose content would help create a detox pathway for accutane. Will keep the board posted.

Forgot to mention, pumpkin and honey have always been two of the top food recommendations from my biofeedback machine.

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