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3 hours ago, brendan452 said:Any improvement
Noy much, still had hairloss, but my head itch was like it was on fire, never heard a bold guy really mention itch, honestly don't most bald peoples hair just fall out?
So not surprising it didn't work. May have slowed it down a fraction, couldn't really tell.
Ive been on a product called Toxa Prevent.
its been good so far in that I feel less irritable. I take 8 capsules per day - it has zeolites to extract toxins from the body
Im not necessarily saying it takes Accutane from the body but for me with my damaged lymphatic system, it is helping clear it finally
35 minutes ago, Anna Nim said:Anything that actually works on hair loss?
Cooper?
Vit D?
Zinc?
B12?
Only thing that will help accutane hairloss is heavy immuno-suppressant drugs, but I can't recommend them because the risk/reward isn't high enough. They worked for me, but now I eat strictly anti-inflammatory and am having some success but the diffuse hairloss won't ever fully stop. I think most people with accutane hairloss will find that nothing will easily stop it
Have you all thought about doing a DHT blood test? Because low DHT is bad, but if it's high then that explains EXACTLY these side effects:
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High levels of androgens, including DHT, can shrink your hair follicles as well as shorten this cycle, causing hair to grow out looking thinner and more brittle, as well as fall out faster. DHT can also make it take longer for your follicles to grow new hairs once old hairs fall out.
Some people are more susceptible to these effects of DHT on scalp hair based on variations in their androgen receptor (AR) gene. Androgen receptors are proteins that allow hormones like testosterone and DHT to bind to them. This binding activity typically results in normal hormonal processes like body hair growth.
But variations in the AR gene can increase androgen receptivity in your scalp follicles, making you more likely to experience male pattern hair loss.
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This is rarely asked by endocrinologists. I realized it'suseless to just ask for total and free testosterone, it's also important to scan for estradiol, prolactin, DHT, LH and FSH, and if possible all B vitamins, or at least B12, to get a clear picture.
Abnormal hair loss could be due to MANY deficiencies. Not just these. Of course without adjusting diet/supplements (which may not work and require additional stuff like probiotics) we wouldn't get anywhere. I stopped going to a gym 1 year ago and have no plans to continue if I am forced to wear a mask, because that alone impairs our health. So I'll have to wait until this is possible and then I'll try everything I said before. We need to do our own research and see what really changes, waiting for new studies to come up or just relying on drugs would be a waste of time.
Like I said, once we try everything possible, then we can be sure a drug is the only way to help us. I don't want a part 2 of what happened after I took Accutane, so I am 100% reluctant to try a more strong approach from Big Pharma. Try to list300 thingsin which you can try improving your health in a natural way (of course, don't appeal to anything that has no evidence that it works,and it's only promoted by scammersthat want to make a quick cash on your ignorance). Until we are sure the side effects can't be fixed the "natural" way we will be accused of not trying enough and blaming Accutane for something in these people's minds it didn't do.
To decrease DHT there are a few blockers:
https://drformulas.com/blogs/news/best-natural-dht-blockers
Still, this bit is discouraging:
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It depends on the cause of hair loss. If the hair loss is caused by DHT then DHT blockers will help. Regularly using a hair DHT blocker can help to manage DHT levels in the scalp, which may eventually help the hair follicles return to normal function. However, if the hair follicles are damaged, scarred, closed, or have not generated a hair in years, you may not be able to regrow hair. The best natural DHT blocker ingredients will support hair regrowth or improve the health of existing hairs (even thinner hairs) if the hair follicles are healthy and intact. Keep in mind that results will vary from person to person.
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I don't need to explain that not just diet, supplements (such as correcting severe zinc deficiency), sleep, etc. need to be taken care, also you need to check what kind of hair/skin products you've been using.
This link has a few tips on which ingredients to look for, in shampoos, something a good dermatologist should know:
https://www.webmd.com/connect-to-care/hair-loss/how-dht-blocking-shampoo-works
On 3/5/2020 at 5:32 PM, IhateAccutane said:6 years passed since my last pill.
I took 40mg/day for two months in 2014 Jan/Feb.
Stopped after I realised that I could not achieve erection.
Other symptoms started after I stopped Accutane.This is the list of my problems ever since:
- ED: Still weak connection between penis and brain.
- Shrunken genitals
- 10% Libido(Sometimes better)
- Dead flaccid especialy after hard gym workout
- No pleasure during ejaculation. (Sometimes better)
- Tinnitus: still there, biggest concern after ED.
- Vision problems: Floaters are gone by 99%. But I am still night blinded and have some visual snow and double vision.
- Tremors: Gone
- Weak urine: Still there
- Hair condition: I dont have menopause hair anymore.
- Dry eyes, nose, mouth: I never had these.
- Panic attacks, anxiety, suicidal state: Gone
- Energy: Better, just as pre accutane.
- Flexibility: Improved, %80
7 years passed since my last pill.
I took 40mg/day for two months in 2014 Jan/Feb.
Stopped after I realised that I could not achieve erection.
Other symptoms started after I stopped Accutane.
This is the list of my problems ever since:
- ED: Betterconnection between penis and brain comparing to last years but never like it used to be.
- Shrunken genitals
- 10%-50%Libido(Sometimes better)
-Usually dead flaccid
- No pleasure during ejaculation. (Sometimes better)
- Tinnitus: still there, biggest concern after ED.
- Vision problems: Floaters are gone by 99%. But I am still night blinded and have some visual snow and double vision.
- Tremors: Gone
- Weak urine: Still there (sometimes better)
- Hair condition: I dont have menopause hair anymore.
- Dry eyes, nose, mouth: I never had these.
- Panic attacks, anxiety, suicidal state: Gone
- Energy: Better, just as pre accutane but I aged so may be a little bit less.
- Flexibility: Improved, %80
I changed and I never liked my new settings.
But besides these damages that I have to live with, I have a normal life, I go to work, I enjoy good food, I drink, I listen to music, I enjoy good conversation with friends.
Hello. I went 7 days without eating! It completely cleared my head but didn't do anything for the low libido unfortunately. I am no longer experiencing joint pain as a result of water fasting but the hormonal imbalance is still a problem. I learned that stem cell replication starts at a 3 days and hits a maximum as 14 days of fasting. I feel the best I have since taking accutane but still not back to my best.
I am thinking that I will have to try going about 12 days next to see if that improves retinoid syndrome. I think you guys deserve to know if there is a way out of this.
Guys, we need more and more people to do this exact or a similar test and report the findings. It is easy. Members in UK, please do this test as soon as possible. This explains why WE crashed from Accutane!
See the link i shared and read it please.
A PFS victim did this test and its his main findings, this kinda sums up PFS or PAS for me:
Main findings
- missing the GSTM1 gene, which is responsible for neutralising toxins & pharmaceutical drugs
- male pattern baldness gene present
- increased enhancement of binding oestrogen
- less active 5AR2 gene / less conversion of test to DHT
- a gene linked to the resistance of finasteride
- reduced receptivity to vitamin D
- poor methylator
Interesting findings saffron and something for me to consider if this upcoming experiment is fruitless. But what if accutane's mechanism of action is permanent brain damage in the form of brain lesions. And what if these brain lesions result in long term diminished dopamine levels. And what if this damage could be reversed by amino acid therapy.
We all know how completely worthless tyrosine is for our issues. Helps a little with some things, but makes the hypertension worse. Well forget about tyrosine and focus on L Phenylalanine. Not only does it restore dopamine levels, but it also lowers serotonin, which eliminates the serotonin syndrome, and has some powerful systemic antihypertensive effects, as well as cartilage rebuilding effects, which I believe we're all dealing with. It also reduces intracranial pressure, which is a hallmark effect of accutane.
Now foods L Phenylalanine arrives tomorrow. Will be taking 3 per day, along with the omega 3 rich caviar capsules, and report results soon hopefully.
A stupid question but I'll ask anyway. Would having liposuction or fat removed / tummy tuck remove the storage. My feeling is that we still vitamin A stored in us. Would removing fat surgically remove vitamin A. Genuine question
I know so many of you are underweight but since accutane I've actually gained so much weight and have difficulty losing it. I've had numerous blood tests for the last 10 years. My thyroid tests are always normal. I have the complete thyroid tests, TSH, t3, t4, all normal. My symptoms after accutane are, extremely dry skin, hair shedding, sinus issues, bloating, craniol pressure, weight gain, darkening of the skin.
If we have anything stored in us, it's not vitamin A, it's 13 cis Retinoic acid, a derivative of vitamin A. Not a stupid question. Liposuction would remove some but not all of the Retinoic acid, if indeed it's still there. Non belly body fat would still retain the Retinoic acid.
I've pondered liposuction but researched it and found all kinds of horror stories, not just superficial stuff but major hormonal imbalances after liposuction.
Currently I believe the issue is permanent brain damage, but if it's still there, accutane is radioactive, and brown seaweed is maybe the best thing on the planet for removing radioactive material from the body. Seagate seaweed and swanson brown seaweed are two options.
Tretinoin is the polar opposite of accutane. Accutane is 13 cis Retinoic acid. Tretinoin is all trans Retinoic acid. Both are toxic because they're not a whole form of retinol. It's possible the tretinoin may still be there. Whole beef liver pills has whole food vitamin A, which is what the body wants/needs. Amazon has many decent brands of whole beef liver pills ranging in price from $20 and up.
If you're going with the theory that it's still there, then a combo of beef liver pills with brown seaweed pills would likely be the best bet. One to replenish true vitamin A, and the other to pull tretinoin from the body.
9 hours ago, Aaron76 said:Interesting findings saffron and something for me to consider if this upcoming experiment is fruitless. But what if accutane's mechanism of action is permanent brain damage in the form of brain lesions. And what if these brain lesions result in long term diminished dopamine levels. And what if this damage could be reversed by amino acid therapy.
We all know how completely worthless tyrosine is for our issues. Helps a little with some things, but makes the hypertension worse. Well forget about tyrosine and focus on L Phenylalanine. Not only does it restore dopamine levels, but it also lowers serotonin, which eliminates the serotonin syndrome, and has some powerful systemic antihypertensive effects, as well as cartilage rebuilding effects, which I believe we're all dealing with. It also reduces intracranial pressure, which is a hallmark effect of accutane.
Now foods L Phenylalanine arrives tomorrow. Will be taking 3 per day, along with the omega 3 rich caviar capsules, and report results soon hopefully.
Whats the serotonin syndrome you talk of?
Have you been diagnosed with that or are you making an assumption?
Serotonin syndrome is when theres too much systemic serotonin and not enough systemic dopamine. I've had this for 30 years post accutane. It causes hypertension, agitation, irritation, autonomic imbalance, gut issues, joint issues, sleep and mood issues, etc. I tested very high for 5hiaa several years ago. Doctor didn't even pay attention to it, probably because she didn't know what to do about it.
I think the issue is twofold. The radioactive drug is still in us, which causes reversible brain damage, which depletes dopamine and raises serotonin. Currently doing the following: 3 now l phenylalanine, 6 seagate seaweed, 1 pure encapsulations mcha, and 1 perfect beef liver. Will keep the board posted.
Forgot to mention, brown seaweed has always been the number one food recommendation from my biofeedback machine from day one. Apricots and pumpkin usually come in after that, then bananas and black currant. Crucifers and garlic typically show up a bit farther down the list. Beef liver is all over the map. Sometimes it's in the top two foods, and sometimes it's way down the list.
I think the machine can detect the Retinoic acid, and wants to detox it with brown seaweed. And also tries to counterbalance it with carotenoid rich apricots and pumpkin. This machine is russian tech from 2012, and sweet potatoes weren't big in russia back then, or they'd probably show up high on the list also.
Tyrosine shows up in the brain supplements section from time to time, but I think phenylalanine is better than tyrosine since tyrosine is a non essential amino, unlike L Phenylalanine, which is essential. If the drug is still in the body then the brown seaweed is likely the most important thing, with beef liver next.
If I do brown seaweed by itself, it completely wipes out my brain cholesterol levels. If I take it with beef liver, this negative effect does not happen. Vitamin A is important for cholesterol biosynthesis.
Pretty interesting things happening with the biofeedback machine tonight. Started upping doses. Took six pills of brown seaweed and no beef liver. An hour later I did a thyroid scan and the thyroid was a comeplete mess. The number one ranked food for the thyroid was, you guessed it, beef liver. Just popped two beef liver pills.
I think what's happening is the brown seaweed is pulling radioactive 13 cis Retinoic acid out, leaving the rxr and rar receptors empty, and those receptors desperately want to be refilled asap with what's supposed to be there, real vitamin A, and so the machine spits out beef liver as the top food recommendation. Staying up till 11 tonight with hourly scans. Will get back at it in the morning and report.
I think tj is right about clogged lymphatic system being a major part of the problem. I believe brown seaweed pills cn help detoxify lymph. Dr robert morse of youtube fame talks a lot about the importance of the lymphatic system.
Im getting major mental stress relief from the brown seaweed beef liver combo, but nothing much physically yet. If I don't see anything physically within the next week I'll probably begin lymphatic massage therapy at a local massage center.
