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13 hours ago, Dubya_B said:A recent story on the Daily Mail website discusses several of the recent regulatory actions regarding Accutane and includes the story of a man who has been suffering sexual dysfunction and depressive symptoms since taking Accutane years ago.
Comments are shocking! There are so many comments how it was their best decision to take this drug. OMG
The most stupid part is that they believe that they use it under control and thats why they dont get the side effects.
I was under control too. I gave blood tests before and during too. But here I am with lots of side effects.
Stupid jerks
2 hours ago, IhateAccutane said:Comments are shocking! There are so many comments how it was their best decision to take this drug. OMG
The most stupid part is that they believe that they use it under control and thats why they dont get the side effects.
I was under control too. I gave blood tests before and during too. But here I am with lots of side effects.
Stupid jerks
Ed has been very brave - a member of this forum I might add.
Yep a lot of people like this drug. Many of them don't even know how they might have been effected by this drug - they put some of what they are sufferingdown to other things.
More shocking is how parents support it. Take a risk yourself but if you knowthe risks why let a kid take it.
I will always maintain that accutane is too dangerous to be prescribed to anyone but at the very least every patients has the right to be fully informed.
The PiLshould describe in great detail what could go wrong and Doctors should reinforce this.Patients should be made aware that if things start to go wrong coming of the drug is not enough to halt or reverse the side effects - when the more serious sides occur it is too late - not to mention many suffer side effects after the drug is ceased.
We know that many parents haven't got clue about how damaged their kids are - how many of you have told your parents or anyone for that matter?
So all these parents who are saying how great the drug is really should take a closer look at theirkids.
Please take the time to comment yourselves
https://www.regulations.gov/docket?D=FDA-2018-P-4088
18 hours ago, Dubya_B said:A recent story on the Daily Mail website discusses several of the recent regulatory actions regarding Accutane and includes the story of a man who has been suffering sexual dysfunction and depressive symptoms since taking Accutane years ago.
Thx for posting this.
At the risk of sounding negative, when can we get a story that implies there are injuries from Accutane but the focus is on finding out who can help us - which field of medicine??
Not to diminish this story as this person has every right to tell their story but weve had this type of article written 15 years ago that includes the typical response from Roche - its just repeating itself.
Id love to see a story that focuses on trying to find out which field of medicine is going to put their hand up to help the victim, a story where its alreadyknown there are complications from taking the drug but what next....
This current story does serve a purpose- who knows how many people it will stop from taking Accutane?!Id like to think anyone considering taking it reads story and decides not to, from that angle the story has done its job.
What we need though is a story about who is going to stand up and help us!! Otherwise well just see them roll out this story again in another 10 years and well still be where we are yeah....
18 hours ago, TrueJustice said:Thx for posting this.
At the risk of sounding negative, when can we get a story that implies there are injuries from Accutane but the focus is on finding out who can help us - which field of medicine??
Not to diminish this story as this person has every right to tell their story but weve had this type of article written 15 years ago that includes the typical response from Roche - its just repeating itself.
Id love to see a story that focuses on trying to find out which field of medicine is going to put their hand up to help the victim, a story where its alreadyknown there are complications from taking the drug but what next....
This current story does serve a purpose- who knows how many people it will stop from taking Accutane?!Id like to think anyone considering taking it reads story and decides not to, from that angle the story has done its job.
What we need though is a story about who is going to stand up and help us!! Otherwise well just see them roll out this story again in another 10 years and well still be where we are yeah....
How many will stop from taking isotretinoin after this single article? Let me say it. Zero! None! What I am trying to say is that, I am visting doctors / specialists few times in every week. And you know what they are saying? They say that this substance is not really dangerous at all. So it will not help anyone. I gave myself a month and then I am going to sue my doctor. I do not believe it will help to anybody but maybe other doctors will hear about it and will stop lie about this substance. My doctor almost cried when she heard about my problems but is it help me or other patients? Not at all.
Not one story or one article but hundreds. Thats what it is, thats what it could have been or still could be. Some of what ive read just on this forum alone, I think what the hell is going on here? Some of the sides are so similar down to a tee, and still we cant figure it out. And yes I do believe there are some things that can be problem solved. Figure out just one thing, It might lead to much more. Example @Dubya_BI read you mention once something about zaps or feeling a zap type sensation. maybe a sting? yea me too, him too, also him. Other guys almost feel like they are developing MS. So whats going on? Lost nerve connections and reconnections? This is happening in my brain of all places. I have the MRI scan to prove it.
Unfortunately it might take someone reaching a deeper hell to finally shed some light on things. And hopefully coming back. If you can easily induce it through substances that are harmless to most, you should theoretically be able to come back as well. Time is my biggest fear though. It will become less easy.
As far as the stories, if I had the foresight these all would have been archived neatly in one place. Going all the way back to the RAG days.
Im going through damage caused by accutsnr as well. I still don't believe its out of my system even tho its been a year. I have tan that has still hasn't got away increase in body hair sry skin uneven skin eczema caused by this stupid drug. also moles ive never had before.im not sure what to do. Also depression and other bad thoughts.Any advice?
On Ž11Ž/Ž27Ž/Ž2018 at 1:08 PM, hatetane said:Ed has been very brave - a member of this forum I might add.
Yep a lot of people like this drug. Many of them don't even know how they might have been effected by this drug - they put some of what they are suffering down to other things.
More shocking is how parents support it. Take a risk yourself but if you know the risks why let a kid take it.
I will always maintain that accutane is too dangerous to be prescribed to anyone but at the very least every patients has the right to be fully informed.
The PiL should describe in great detail what could go wrong and Doctors should reinforce this. Patients should be made aware that if things start to go wrong coming of the drug is not enough to halt or reverse the side effects - when the more serious sides occur it is too late - not to mention many suffer side effects after the drug is ceased.
We know that many parents haven't got clue about how damaged their kids are - how many of you have told your parents or anyone for that matter?
So all these parents who are saying how great the drug is really should take a closer look at their kids.
Please take the time to comment yourselves
https://www.regulations.gov/docket?D=FDA-2018-P-4088
Thanks for posting the link, I actually follow the mom's anti Accutane thread on FB. I don't live in the U.K. but she was on the radio as well speaking against the drug. I was going to post the link today on here. Hope all is well 
Just an update on my end, I ended the fast I was on last time I was here after 7 days, then did another 5 day fast, then a 2 day fast, and was low carb inbetween fasts to stay in ketosis. Libido was low during the day, but had really strong morning wood EVERY morning if I had eaten the day before. Also Acne cleared up but no blood noses or anything like that, so I don't think it is like be on accutane again. Random muscle/jointpains have gone away, and I honestly don't think I've lost any strength since I hit the gym today after breaking my fast 2 days ago and could deadlift 140kg sets 5 then 3 then 3, like I could before my fasts, except I had less groin pain than before, and now I'm 95kg instead of 105kg. I still have a bad shoulder that I've been trying to rehab since forever, so I think fasting hasn't helped tendons/ligaments as much as its helped muscles and inflammation
Mentally has been weird. I'm feeling sharper since I broke my fast, but I always had pretty good energy during my fast and was always had good mood during my fast, but would be talking and sometimes forget names or wouldn't be able to find the word I was looking for while fasting. A little bit air headed.
On another note I was more motivated, usually I am reactive and and just float through life, but I was much more proactive which is nice.
Anyway, physically I feel the best I've felt for years
19 hours ago, under_tow said:I have done close to 4 weeks of low/zero vitamin A now, after reading Grants work. I am a two roundaccutane user. Going zero vitamin A is healing all symptoms and giving me child like skin quality. Detoxing/depleting vitamin A(accutane) stores is the key.
Thats really great to hear. I feel like I have plenty of issues to resolve and depleting the excess vitamin A which is stored in my body is just the beginning of the healing process. I've always had this feeling that something is blocking my natural healing process but I could never make sense of it. I think that's the hardest thing to come to terms with concerning post accutane side effects, Why can't my body heal and overcome these issues in the way that it is designed to. Grants vitamin A hypothesis has given me a way to understand that.
How have you developed your Vitamin A deplete diet? Have you come across the diet that Dr Garrett Smith is developing?
Good luckwith your recovery and I hope to hear from you again.
Thanks,
Lee
20 hours ago, under_tow said:I have done close to 4 weeks of low/zero vitamin A now, after reading Grants work. I am a two roundaccutane user. Going zero vitamin A is healing all symptoms and giving me child like skin quality. Detoxing/depleting vitamin A(accutane) stores is the key.
Can you elaborate? How was your skin before you started this diet?
I have just looked at his suggested diet and I cannot imagine restricting myself to those foods for the rest of my life. What are you eating on a daily basis?
2 hours ago, Justdry said:Can you elaborate? How was your skin before you started this diet?
I have just looked at his suggested diet and I cannot imagine restricting myself to those foods for the rest of my life. What are you eating on a daily basis?
2 hours ago, Justdry said:Can you elaborate? How was your skin before you started this diet?
I have just looked at his suggested diet and I cannot imagine restricting myself to those foods for the rest of my life. What are you eating on a daily basis?
It's not for the rest of your life and it's not just the foods that Grant eats. Do a bit more research. Read some of his work
19 hours ago, Roland1968 said:child like skin quality sounds like a double edged sword to me. I think, that Accutane gives you a child like skin texture as well. But also the skin sensitivity and the dryness. Not sure if this is good news.
Child like in; no oiliness, no acne, soft, smooth, clear, no redness, basically a healthy normal complexion.
7 hours ago, Charles133 said:Just an update on my end, I ended the fast I was on last time I was here after 7 days, then did another 5 day fast, then a 2 day fast, and was low carb inbetween fasts to stay in ketosis. Libido was low during the day, but had really strong morning wood EVERY morning if I had eaten the day before. Also Acne cleared up but no blood noses or anything like that, so I don't think it is like be on accutane again. Random muscle/jointpains have gone away, and I honestly don't think I've lost any strength since I hit the gym today after breaking my fast 2 days ago and could deadlift 140kg sets 5 then 3 then 3, like I could before my fasts, except I had less groin pain than before, and now I'm 95kg instead of 105kg. I still have a bad shoulder that I've been trying to rehab since forever, so I think fasting hasn't helped tendons/ligaments as much as its helped muscles and inflammation
Mentally has been weird. I'm feeling sharper since I broke my fast, but I always had pretty good energy during my fast and was always had good mood during my fast, but would be talking and sometimes forget names or wouldn't be able to find the word I was looking for while fasting. A little bit air headed.
On another note I was more motivated, usually I am reactive and and just float through life, but I was much more proactive which is nice.
Anyway, physically I feel the best I've felt for years
Fasting is the quickest way to deplete/detox vitamin A stores from the liver and tissues, short and long water fasts always helped my skin improve, didn't realize the connection, until a few weeks ago.
4 hours ago, marshl1 said:Thats really great to hear. I feel like I have plenty of issues to resolve and depleting the excess vitamin A which is stored in my body is just the beginning of the healing process. I've always had this feeling that something is blocking my natural healing process but I could never make sense of it. I think that's the hardest thing to come to terms with concerning post accutane side effects, Why can't my body heal and overcome these issues in the way that it is designed to. Grants vitamin A hypothesis has given me a way to understand that.
How have you developed your Vitamin A deplete diet? Have you come across the diet that Dr Garrett Smith is developing?
Good luckwith your recovery and I hope to hear from you again.
Thanks,
Lee
Hey Lee,
Yes been following Dr. Smiths posts.
Here is a list of the zero/low vitA foods I have been using for the last month, and seeing great improvements.
lean beef, lean chicken/turkey, egg whites, non fatty fish, some nuts
coconut oil, olive oil, butter(small amounts for butyric acid)
bread, pasta, rice, potato, black beans, oatmeal, cornmeal, non-fortified cereals
cauliflower, turnip, celeriac, parsnip, onion, garlic
banana, grapes, apples, pineapple, (thinking about adding: raisins, dates, blueberries, raspberries, strawberry, cherry)
Apple juice, grape juice, coconut milk(non-fortified)
Sugars, maple, honey, brown/white
Grant's free ebooks are here(some really good accutane information in Poisoning):
https://ggenereux.blog/wp-content/uploads/2018/09/PoisoningForProfits.pdf
https://ggenereux.blog/wp-content/uploads/2018/08/BreastCancer.pdf
2 hours ago, Justdry said:Can you elaborate? How was your skin before you started this diet?
I have just looked at his suggested diet and I cannot imagine restricting myself to those foods for the rest of my life. What are you eating on a daily basis?
Skin before, was excessive oiliness, flaky, dandruff, acne and plugged pores all over face, upper chest/back/arms/butt, lots of redness, sickly looking complexion.
The detox/diet takes a few weeks/months, then you can add back in carotenes, pre-formed retinol foods, but test and monitor your reaction. Water fasting quickens the detox.
Milk, ice cream, pizza, chocolate, etc...all high in vitamin A, the reason they cause people issues when overloaded with vitamin A in their liver and tissues.
36 minutes ago, marshl1 said:
It's not for the rest of your life and it's not just the foods that Grant eats. Do a bit more research. Read some of his work
I have been reading his e-book all day and the recommendations he made toward the end for the diet were very limited. Further to that, he said he intends to do that for the rest of his life, so forgive me for assuming that was the blanket suggestion there.
Is there another paper of his I am missing with further food sources?
7 minutes ago, Justdry said:I have been reading his e-book all day and the recommendations he made toward the end for the diet were very limited. Further to that, he said he intends to do that for the rest of his life, so forgive me for assuming that was the blanket suggestion there.
Is there another paper of his I am missing with further food sources?
I think his skin issues where so severe(eczema, no acne)that he plans to stick with the tight restrictions, sounds like he still flares right back upwhen adding in even small amounts of vitA.
Compromised from birth it sounds like, I don't think that most of us will be in the same scenario as him.
More and more people are catching on, and creating lists of foods that work for them:
12 minutes ago, under_tow said:Child like in; no oiliness, no acne, soft, smooth, clear, no redness, basically a healthy normal complexion.
Skin before, was excessive oiliness, flaky, dandruff, acne and plugged pores all over face, upper chest/back/arms/butt, lots of redness, sickly looking complexion.
The detox/diet takes a few weeks/months, then you can add back in carotenes, pre-formed retinol foods, but test and monitor your reaction. Water fasting quickens the detox.
Milk, ice cream, pizza, chocolate, etc...all high in vitamin A, the reason they cause people issues when overloaded with vitamin A in their liver and tissues.
Thanks for responding. My skin is extremely dry 8 years post accutane.
It's severely damaged from the long term dryness, so, it's red, doesn't heal over, absolutely zeromoisture retention.
I believe I caused this by washing with water only for 5 years, however, as it won't heal over and act like normal skin do you believe following this diet may be the key?
When I do think back, the worsening condition with my skin came at a time when I was hitting the gym a lot and was consuming about 4 or 5 eggs per day ontop of all the meat and Whey.
My onlyreal symptom remains my skin though. In recent months my hands have now become dry and the head of my penis also.
I started supplementing with Beta Carotene a couple of weeks ago and nothing has worsened so I don't know.
1 minute ago, Justdry said:Thanks for responding. My skin is extremely dry 8 years post accutane.
It's severely damaged from the long term dryness, so, it's red, doesn't heal over, absolutely zeromoisture retention.
I believe I caused this by washing with water only for 5 years, however, as it won't heal over and act like normal skin do you believe following this diet may be the key?
When I do think back, the worsening condition with my skin came at a time when I was hitting the gym a lot and was consuming about 4 or 5 eggs per day ontop of all the meat and Whey.
My onlyreal symptom remains my skin though. In recent months my hands have now become dry and the head of my penis also.
I started supplementing with Beta Carotene a couple of weeks ago and nothing has worsened so I don't know.
My PAS symptoms were opposite to you, accutane made my acne worse and skin excessively oily after each round. Following the diet cleared this up in a few weeks, still following and seeing improvements daily.
Try out zero vitA approach for a few weeks and see how you respond, quickest test would be a short water fast(3 to 7 days), see how your skin responds.
10 minutes ago, Justdry said:I really don't think I could manage a water fast - I'm skinny enough now as it is
Whats your daily meal plan look like with the depleted diet?
Ya fasting is tough, I am tall and fairly ripped, but have done 3, 7, 10, 14, and 20 day water fasts in the last 1.5yrs, skin always greatly improved on the fasts and now know it was due to vitA depleting. After those fasts I went back to eating high vitA diet, not realizing it was the cause of the skin/symptoms worsen again.
Here are my daily staples:
lean beef, lean chicken/turkey, egg whites, non fatty fish, some nuts
coconut oil, olive oil, butter(small amounts for butyric acid)
bread, pasta, rice, potato, black beans, oatmeal, cornmeal, non-fortified cereals
cauliflower, turnip, celeriac, parsnip, onion, garlic
banana, grapes, apples, pineapple, (thinking about adding: raisins, dates, blueberries, raspberries, strawberry, cherry)
Apple juice, grape juice, coconut milk(non-fortified)
Sugars, maple, honey, brown/white
Sample day:
Breakfast: Large pot of Oatmeal(1cups oats, with brown sugar, glucose syrup, raisin, coconut oil and 1/2cup egg white), love it.
Snack: large decaf coffee, sugar and coconut milk, bread, peanut butter, grape jam, banana
Lunch: ground beef, beef stock, rice, beans, onions, garlic, white corn tortilla, coconut oil, salt/pepper,
Snack: nuts, fruit, rice cakes
Dinner: Chicken, mashed cauliflower/potato, coconut oil salt/pepper
On 11/28/2018 at 7:53 PM, guitarman01 said:Example @Dubya_BI read you mention once something about zaps or feeling a zap type sensation. maybe a sting? yea me too, him too, also him. Other guys almost feel like they are developing MS. So whats going on? Lost nerve connections and reconnections? This is happening in my brain of all places. I have the MRI scan to prove it.
Never had brain zaps except a few times when I tried buspirone. Some of the SSRI folks mention having this side effect when they are taking it, or in the short-term after withdrawal.
What were the doctor's comments on your MRI. What did it show?
31 minutes ago, Dubya_B said:Never had brain zaps except a few times when I tried buspirone.
yea that's what I remember reading. I could call it stings as well not really isolated to the brain. (for myself) I noticed pain in feet as far back asyears ago to the point where I wanted to take my shoes off, also lost sensitivity, so this maybe isnt isolated to a certain area. No nerve damage so far in feet, had a EMG a couple years ago.
Others mention twitches or spasms( I get those too) It seems the nervous system is being affected.
As far as the MRI, it showed thinning of the corpus callosum, which is basically lost nerve connections and mild cerebral atrophy. The two apparently go hand in hand.
They could not tell if it was progressive. They logged me with a generic neurodegenerative disease, and said it was beyond them locally and I would have to seek out a more advanced neurologist or clinic.
Testing positive for the acetylcholine ganglionic antibody as well, tells me this could be autoimmune in nature.
You could look this up for ED, sexual feelings, sensitivity, = there could be a link with immunity.
This is literally the type of thing though where you might have to travel the country to get in front of the right dr.
and who's always got the time and money? This would probably start through emails. All these dr's, researchers have public emails.
Even one of those dr's conducting one of the Propecia study's I think see's patients.
There's also a type of abnormal muscle weakness that hasnt showed up on any tests yet.
You've also seen cases of blood restriction, so it all could be related. But again trying to discover something that maybe hasn't quite been discovered yet.
Good post above with some depth - youve obviously done the hard yards going and getting this testing done.
So to those who might have similar issues neurological, like light sensitivity or tension in the head or depression etc, its highky doubtful that doing a Vit A free diet will cure these issues - we need to be clear when we say what exactly the Vit A free diet has actually done yeah
If all youve got is a dandruff prob and dry skin, sure try that diet but Im assuming youve got bigger issues to deal with outside of this....
As if someone with ED issues is all of a sudden going to be cured. Not saying the Vit A free diet has no merit, lets just be clear though on what issues we have and what it can actually do for us!!
Remember at the extreme end Accutane can cause bowel cancer. Do you really think that all thesepeople had to do was get off the Vit A to avoid this.....just saying it couldnt possibly cure everything so be clear on what you expect it to do so we dont confuse anyone!!
On 5/13/2011 at 11:24 AM, *thismission said:I completely agree! At that moment I just wanted "The Magic Cure Accutane" but that is not what it was! I went through one course and it replaced my blemishes with painful cystic acne. The derm wanted me to do another round and after my face getting extremely dull looking, scarred up, and the pain from the cystic markings, I said NO. &Decided to do some real HARD fact research to find the right products for me. I did and I have had great success with these few methods. I wish I could tell everyone NEVER EVER TAKE ACCUTANE. The risks greatly outweigh the benefits! I had horrible horrible scarring for the longest time after that. Even to this day my hair is much thinner and far more dry than it had been previous to that. My scalp is extremely sensitive to the point that I get rashes from normal shampoo and conditioners. The bones in my legs would get SO sore for the first year afterward eventhough my Accutane course was only 5 months. &I'm thinking I might have that "Thyroid" problem that people say they get from it where you can overheat in the night time resulting in night sweats. I had to learn to sleep with an extremely light sheet blanket to control that. :/ Accutane is SERIOUS business people. Wish I would have listened to the horror stories because although my ailments are light some people DO have terrible outcomes. &It never did get rid of my acne in the first place.
All this after one course, imagine what two would have done?
PLEASE people try alternative methods to heal your acne, don't reach for these terrible pills.
CLEAR SKIN CAN BE ACHEIVED WITH THE RIGHT PRODUCTS.
Just wanted to share my experience. Good luck folks<3
Ok, can you elaborate on what you did for your acne? Did you have or still have cystic acne?
On 11/1/2018 at 1:16 PM, Gatu77777 said:I finished my Accutane course a month ago. I was on Accutane for 7 months. 20mg for one month and 40mg for 6 months.
After finishing my course I experienced dizziness, confusion, blurry vision, fatigue, and low libido. I started panicking and researched what could be wrong. I had such a big shock when I found so many people with the same problems who have been going through this for years.I then went on a diet but that didn't help. I did blood tests that showed I had low iron levels. I then supplemented with iron and went on a new diet with red meat (no vitamin a), rice, baked beans and sweet corn and fruits and vegetables. And after a week the dizziness was completely gone, my energy levels were back my erection was back and ejeculation was back to normal.
Now I'm back on my normal diet but the symptoms came back.That diet had no vitamin a in it. Removing vitamin a was what helped me recover. But the moment I started eating normal again all my symptoms came back.
My gp also said that hair loss can be iron deficiency.
I'm going to try my diet again and see what happens. Does anyone know any other way to ease the symptoms atleast??
Did you get an update from your doctor regarding your symptoms?
9 hours ago, TrueJustice said:Good post above with some depth - youve obviously done the hard yards going and getting this testing done.
So to those who might have similar issues neurological, like light sensitivity or tension in the head or depression etc, its highky doubtful that doing a Vit A free diet will cure these issues - we need to be clear when we say what exactly the Vit A free diet has actually done yeah
If all youve got is a dandruff prob and dry skin, sure try that diet but Im assuming youve got bigger issues to deal with outside of this....
As if someone with ED issues is all of a sudden going to be cured. Not saying the Vit A free diet has no merit, lets just be clear though on what issues we have and what it can actually do for us!!
Remember at the extreme end Accutane can cause bowel cancer. Do you really think that all thesepeople had to do was get off the Vit A to avoid this.....just saying it couldnt possibly cure everything so be clear on what you expect it to do so we dont confuse anyone!!
I've only got dry skin issues so I might give it a shot.
I've been taking beta carotene every day for a couple of weeks and started eating a lot of cheese and milk the past few days and my skin has all of a sudden gone extra dry the past 2 days, even through moisturizer. Not sure if this is a coincidence or what.
I'm confused though because the bumps on the backs of my arms have disappeared, which you would think is a good thing. I hate this minefield.
On 11/30/2018 at 8:47 AM, under_tow said:Compromised from birth it sounds like, I don't think that most of us will be in the same scenario as him.
Im not really on the same vitamin A deplete bandwagon for a few reasons. All the testing they have done and still continue to do on 13-cis and similar, you think there would have been a few studies out there that show accumulationin tissue.
Also retinol sources in the normal diet are already pretty slim to begin with. You got fortified milk and cereal, but thats about 10% of the daily value. This seems like a drop in the bucket compared to just one pill of accutane.
That being said "compromised from birth"
Maybe Intake of substances that modify host health, weather thats diet or drugs.
I posted this not too long ago, keep in mind everything is as I go. If I was going to criticize myself I realize that everything is a little premature. Meaning I havent had the chance to trial something for months on end or continue to work through the problem. I post things as I come across them.
Here is showing a very intricate relationship between an exact strain of probiotic that you can buy and retinoids.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3660574/
Immunomodulation byBifidobacterium infantis35624 in the Murine Lamina Propria Requires Retinoic Acid-Dependent and Independent Mechanisms
Bifidobacterium longumsubsp.infantis35624 (B. infantis) was originally isolated from resected human healthy gastrointestinal tissue and human clinical studies have demonstrated its efficacy in Irritable Bowel Syndrome patients[15],[16]. In addition, murine studies have demonstrated that this microbe protects against inflammatory disorders across a range of inflammatory conditions including colitis, pathogen infection, arthritis and respiratory inflammation[17][20]. Previously,in vitrostudies with human dendritic cells suggested that promotion of retinoic acid metabolism byB. infantiswas a key regulatory feature of this bacterium
On 11/29/2018 at 3:31 AM, oli girl said:Thanks for posting the link, I actually follow the mom's anti Accutane thread on FB. I don't live in the U.K. but she was on the radio as well speaking against the drug. I was going to post the link today on here. Hope all is well
Hi Jen, nice to hear from you. Can you please post the link as I couldn't find it. I will email you if I can find your address.
On 11/27/2018 at 9:49 PM, TrueJustice said:Thx for posting this.
At the risk of sounding negative, when can we get a story that implies there are injuries from Accutane but the focus is on finding out who can help us - which field of medicine??
Not to diminish this story as this person has every right to tell their story but we™ve had this type of article written 15 years ago that includes the typical response from Roche - it™s just repeating itself.
Id love to see a story that focuses on trying to find out which field of medicine is going to put their hand up to help the victim, a story where it™s already known there are complications from taking the drug but what next....
This current story does serve a purpose- who knows how many people it will stop from taking Accutane?! I™d like to think anyone considering taking it reads story and decides not to, from that angle the story has done its job.
What we need though is a story about who is going to stand up and help us!! Otherwise we™ll just see them roll out this story again in another 10 years and we™ll still be where we are yeah....
What can you suggest to get researchers on board? We will be sure to support anything you come up with.