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Repairing the long-term damage from Accutane

 
MemberMember
1753
(@truejustice)

Posted : 04/12/2018 5:34 pm

Thx for info Colinboko

I really hope you get an outcome with these latest tests, something that we can actually leverage so we can avoid this stab in dark approach up till now!!

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MemberMember
75
(@colinboko)
MemberMember
1753
(@truejustice)

Posted : 04/13/2018 3:06 am

44 minutes ago, Colinboko said:

I was waiting for the part where he says he took Accutane, it was all brought on by weed and ecstasy use....wow.

Good post man, theres some really great content there and stuff to leverage, things that I havent tried before.

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MemberMember
75
(@colinboko)

Posted : 04/13/2018 11:15 am

11 hours ago, TrueJustice said:
I was waiting for the part where he says he took Accutane, it was all brought on by weed and ecstasy use....wow.

Good post man, theres some really great content there and stuff to leverage, things that I havent tried before.

I think the fact that it wasnt triggered by Accutane can show how anything can be triggered in the body at any given time.

Like Ive said before.. my Accutane side effects of at least those that are listed on the pamphlet subsided days/week after I stopped. My lips werent ridiculously crusty, nosebleeds stopped, skin gained a little bit more oil. The load that Accutane had on my body triggered something else is what it seems like

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MemberMember
15
(@nemesisbrady)

Posted : 04/15/2018 1:51 am

Well Im back
and doing worse than ever

few updates

*i started eating more kale spinach goji berries
seeet potato u name it
beta vitamin a about 400% I guess for week or so daily
trying to do greens and veggies more

so today I wake up and eyes are more crusty dry and nose dry inside
lips are actually shriveling and corners of mouth on mustache area flaking
making me now believe
I cant handle vitamin a at all
now this could all be bs but it feels like Im on tane
as far as dry eyes nose skin dandruff hair falls out 15-20 pieces some days with dandruff

mouth and lips never dry unless on meds
but now it seems as if my lips are shriveling from the excess a

i want to know what the deal is still with a
im starting to think avoiding it at all cost
will push the excess a out thats restored
as I feel beta version isnt toxic but in our cases
the excess is allowing more to be pushed out into blood? Still confused

my main symptoms are dry dry eyes
(now pay 300 a month for blood serum eye
next step is ipl Lipiflow )

dry nose inside worse upon waking and when laying down for sleep
seems to dry out when i am when I am trying to relax and just closing eyes

skin is flaking rashy flushed no oil Rosacea seb derm like

Dandruff despite shampoo conditioner for it thats Jason healthy and washing 1-2x week

cold hands and feet all the time
worse when stressed and anxious

insomnia 10 years now
I wake up every 2 lies on the dot no reason
sometimes wonder if its the dryness waking me
anxiety?

severe dark bags from sleep issues
my eye area looks 50
im 29

Urinating so much

facial flushing is coming back agajn
heart pounds same time so its def anxiety

problem is all these meds dry me more and cause what seems to be an issue for a lot

erectile issues

now I wanna ok about the tane side effects Ive noticed are gone

1.constipation use to be baddddd
water and fiber changed this
if I dont drink water enough its back

2.lower left back pain -vanished thank god
maybe fish oil helped
it come back when I stopped gabapentin but is not anymore

3.erectile issues
now i remember after tane I had issues with getting erection it was weak went down to easy

this was result of SSRI and beta blockers for the depression facial flushing and more anxiety accutane caused

so Ive noticed this with erections
i dont get them waking up I also dont sleep well
sometimes when I have to urinate its hard waking

I use to not get random ones

now I get them here and there and what else that helped
was being with a girl who was very sexual and crazy
turns out that turns me on blame it on porn

also what may have helped is magnesium glycinate
I am thinking of stopping it though because I think its causing flushing

but I want to say for ppp th erectile issues

see if its meds too
maybe need to find an easy girl and feel comfy with them

somwtimes I notice its not hard with porn because Im afraid of causing issues and losing zinc from reading internet

but im always horny
So Not sure what it is thats going on for some

is it that u its dont think of sex??? Or ever want to watch porn?

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MemberMember
1803
(@guitarman01)

Posted : 04/15/2018 4:34 pm

Dysautonomia and Gastrointestinal Dysmotility

So if motility problems do develop, this could be a risk factor for SIBO in the long run.
This is where a problem can become multi faceted.
Also looking at IBS symptoms.
"Pimentel et al[12] found abnormal lactulose breath test results in 93/111 (84%) patients with irritable bowel syndrome."

Autoimmune-mediated gut dysmotility puts patients at risk for bacterial overgrowth

Publish date:October 4, 2016

You'd be looking at a 3hr breath test for methane and hydrogen levels.
Genova Diagnostics offers 2 and 3 hr testings.

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MemberMember
15
(@nemesisbrady)

Posted : 04/15/2018 7:18 pm

Ive decided to be the sacrificial lamb for us

im going to ingest so much vitamin a
Im forced to get liver transplant

since this all started with that

then if that dont work
heroin and suicide

all seriousness Im tired of being sick and no answers

im afraid of food. Now
and meds

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MemberMember
15
(@nemesisbrady)

Posted : 04/15/2018 8:49 pm

Sorry for all the posts just having a bad time per usual

i was reading few of these

As far as sinus issues
i wake up stuffy and has deviated septum before tane
i was told I have cyst in sinus cavity

my question is how many of u have
cold hands feet
sleep issues
dry eyes nose skin scalp lips
and facial flushing
hair thin out a little
frequesnt urination
and heart pounding just walking

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MemberMember
15
(@nemesisbrady)

Posted : 04/16/2018 1:09 am

Last post for tonight
im sure u all know accutane has parabens
and parabens are known to disrupt endocrine and mimic estorgen

wonder if we got that going on

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MemberMember
75
(@colinboko)

Posted : 04/16/2018 2:11 am

1 hour ago, Nemesisbrady said:

Last post for tonight
im sure u all know accutane has parabens
and parabens are known to disrupt endocrine and mimic estorgen

wonder if we got that going on

Have you tested for the AcHr Ganglionic antibody by any chance? I got it done last week and am waiting on results.

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MemberMember
75
(@colinboko)

Posted : 04/16/2018 10:21 am

@guitarman01Weve gotta find a way to get in touch with Babis...

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MemberMember
15
(@nemesisbrady)

Posted : 04/16/2018 1:23 pm

11 hours ago, Colinboko said:
12 hours ago, Nemesisbrady said:

Last post for tonight
im sure u all know accutane has parabens
and parabens are known to disrupt endocrine and mimic estorgen

wonder if we got that going on

Have you tested for the AcHr Ganglionic antibody by any chance? I got it done last week and am waiting on results.

No I havent
I quit docs because they said addisons most likely
pheocromocytoma
carcinoid
thyroiditis
sjorgens

and never follow back and help

only thing thats shown is igg4 elevated
ana speckled 1:160
low d 37 even with 5,000
low magnesium and low zinc
but supplements didnt jelp
magnesium I swear gave me random erections though

and high estorgen
low total t low normal
and high t levels

thats it

history of high tsh thyroiditis but meds made me lose too much weight and no help

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MemberMember
15
(@nemesisbrady)

Posted : 04/17/2018 3:06 pm

So after extensive research

its obvious least in my case

its all cell death
its killed my body inside and aged and aging me more

i think my time is done here on this earth

but before I check out
im going to run few tests to see if I can help u guys

I will finally try this vitamin a shit
liver and few others
before that I will
try to push for as much tests as I can

my goal is to force my liver to have to be transplant and get this shit out

i will bite the bullet

because this drug is reason why

i have such mental issues
hair loss
eye produces no oil and skin is thin dry and aging
sleep issues and more

i have no quality of life and its been almost 11 years

So I will see for everyone what a does to the body
and if I get toxic
i will get my liver removed

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MemberMember
1803
(@guitarman01)

Posted : 04/17/2018 9:22 pm

On 4/4/2018 at 10:34 PM, Frage said:

Isn't the biggest mystery to this condition the POST nature of it?

I think bacteria plays a role. It could be why there is such a constant shift.
Not surprising to me they are looking into the microbiome with the most recent post finasteride study.
They are finding some bacteria protect themselves by forming calcification biofilms.
They are also finding altered bacteria in neurodegenerative diseases.

"Brains from patients with Alzheimer's disease show changes in bacterial populations compared with healthy brains"

Anyone that really figures any of this out is going to figure out a hell of a lot more then any post drug disorder.

I think this is something else as well.

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MemberMember
1803
(@guitarman01)

Posted : 04/18/2018 2:50 pm

Heres an example. This is just some random substance found in nature.
Sophora flavescens is a plant.

Look at the effect it has on bacteria modulation.

Antibacterial and Antiandrogen Flavonoids fromSophoraflavescens

These compounds exhibited significant antibacterial activities against the Gram-positive bacteriaStaphylococcus aureus,Bacillus subtilis, S.epidermidis, andPropionibacteriumacnes. They also exhibited antiandrogen activities.

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MemberMember
299
(@macleod)

Posted : 04/18/2018 3:25 pm

I think metabolism would suggest the post nature as well. The way in the hippocampus and hypothalamus function. I've seen doctors for years and the only positive feedback I received was when I threw out "hypermetabolsim" to a neurologist and he mumbled "that's definitely possible" as he was looking at my anisicoria in my pupils. That is why I am so adamant about hypermetabolism. However, after the next meeting he had recommended treating the anhedonia with a psychiatrist and thought against a SPECT scan. Bacteria dysregulation? Sure, why not. Maybe cause people digestion and bloating issues. But enough to cause people to suffer stroke, erectile dysfunction, or suicidal thoughts? Not likely.

On a positive note my mild hyperbaric chamber is complete and functions great. My engineer friend and I have tested it for about an hour. I will begin my own treatments this summer for about 45 days gradually increasing duration from 30 minutes to 1.5hrs. Here is a photo:

[Edited image out]

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MemberMember
1803
(@guitarman01)

Posted : 04/19/2018 2:35 pm

On 4/18/2018 at 3:25 PM, macleod said:

Bacteria dysregulation? Sure, why not. Maybe cause people digestion and bloating issues. But enough to cause people to suffer stroke, erectile dysfunction, or suicidal thoughts? Not likely.

Im going to shove not likely right up your hyperbaric chamber.
You seem most concerned about redirecting people on here than anything else (thats not based on any sort of fact) and clocking me.

This is one example of Bacteria affecting the brain.
"Brains from patients with Alzheimer's disease show changes in bacterial populations compared with healthy brains"

This is an example of Bacteria affecting androgens.
Antibacterial and Antiandrogen Flavonoids fromSophoraflavescens
These compounds exhibited significant antibacterial activities against the Gram-positive bacteriaStaphylococcus aureus,Bacillus subtilis, S.epidermidis, andPropionibacteriumacnes.They also exhibited antiandrogen activities.

(and I literallyonce again just posted this)

This is Bacteria affecting Vascular function
This is a possible progression that could be brought on by autoimmune gut dysmotility
(just got done posting this as well)

Subclinical atherosclerosis is linked to small intestinal bacterial ...

by FR Ponziani - 2017 - Cited by 2- Related articles

Feb 21, 2017 -A glucose breath test was performed in order to confirm the diagnosis ofSIBOand vascular assessment was carried out by ultrasound examination. Plasma levels of the inactive form of MGP (dephosphorylated-uncarboxylated matrix Gla-protein) were quantified by ELISA and vitaminK2intake was...

This is what i might do.
I might create my own thread and it will be a person'schoice if they choose to listen.
The majority of my posts will no longer be on this particular thread.

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MemberMember
0
(@abi72)

Posted : 04/19/2018 2:37 pm

Are there any US citizens who would like to talk to lawyers.

I spoke to a great team who want to help us. They have already achieved so much
which I don't want to discuss here but willing to do so by email. I think they are willing
to tackle this but they are going to need people to come forward.
Dubya and Accuity - I already mentioned that I had 2 guys in mind who might be willing to speak to them.
Will you consider it and let me know - I can give you the details.

Has anyone ever seen a spanish report 2005 re sexual sides?
I need to track it down.

I am still trying to get case histories by email (authentication) to strengthen my arguments. Unless I get these case histories I am fighting a losing battle.

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MemberMember
299
(@macleod)

Posted : 04/19/2018 3:23 pm

Why are you so worried about being clocked rather than common sense and practicality?

You are presenting bacterial overgrowth for the millionth time when there are people suffering from severe side effects such as depression and erectile dysfunction.

SIBO? That was a test talked about years ago where we all drank a substance and blew into a bag for 10 minutes. Raise your hand if anyone here tested positive for SIBO?

By all means, get the test, it is one of many people should do if they have insurance.

But, I wonder, howmany people here have been on antibiotic courses to no avail? Or have made things worse by taking antibiotics.

I can focus on the facts. On the science. Can you really present any of those posts to a doctor? I definitely cannot.

Do any of your posts have anything in common with knowledgeable docs on the matter, such as Pezzi or Bremmer?

I'm not saying to stop posting, just maybe some direction as to how the science youpresentrelates to us.

I don't quite like being a bully to anyoneanymore, andit is not my intention at this stage of my life. If you want to solve the mechanisms of action dilemma (professionals cannot), rather than focus on treating side effects, by all means, but to subject us to it too? Not only us, but all the newbies who stumble on the site with god knows going on with their bodies, looking for solutions.

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MemberMember
15
(@nemesisbrady)

Posted : 04/19/2018 4:00 pm

This should end the mystery

here u go if u got time to read

https://ggenereuxblog.files.wordpress.com/2018/02/poisoningforprofits1.pdf

not sure how credible it is
he did run his own experiments

im bed ridden from this drug
i hope these cock suckers burn in hell

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macleod, macleod and macleod reacted
MemberMember
75
(@colinboko)

Posted : 04/19/2018 5:50 pm

So I was in class today when I received a call from my neurologist with lab results for my AcHr Ganglionic antibody test...

Normally they will leave a voicemail stating that the results were normal if they are indeed within range and thats the end of that. But they asked me to call them back to talk about them. Their office closed before I could call back so I should have the results tomorrow...

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MemberMember
1803
(@guitarman01)

Posted : 04/19/2018 6:20 pm

On 4/20/2018 at 4:23 AM, macleod said:

Why are you so worried about being clocked rather than common sense and practicality?

You are presenting bacterial overgrowth for the millionth time when there are people suffering from severe side effects such as depression and erectile dysfunction.

SIBO? That was a test talked about years ago where we all drank a substance and blew into a bag for 10 minutes. Raise your hand if anyone here tested positive for SIBO?

By all means, get the test, it is one of many people should do if they have insurance.

But, I wonder, howmany people here have been on antibiotic courses to no avail? Or have made things worse by taking antibiotics.

I can focus on the facts. On the science. Can you really present any of those posts to a doctor? I definitely cannot.

Do any of your posts have anything in common with knowledgeable docs on the matter, such as Pezzi or Bremmer?

I'm not saying to stop posting, just maybe some direction as to how the science youpresentrelates to us.

I don't quite like being a bully to anyoneanymore, andit is not my intention at this stage of my life. If you want to solve the mechanisms of action dilemma (professionals cannot), rather than focus on treating side effects, by all means, but to subject us to it too? Not only us, but all the newbies who stumble on the site with god knows going on with their bodies, looking for solutions.

My concern is I see a lot of "guys lets stop looking into this" from you.

Sibo was one quick example.
Here's more.

Gut bacteria hold clues to heart health

By AMERICAN HEART ASSOCIATION NEWS
[Edited link out]

People are still getting their head around how something in the gut can affect the heart, Reid said. One way is the microbes produce molecules that end up in the bloodstream or that affect factors in the bloodstream.

Such busy little bugs may account for much of the individual variation in heart health. Large-scale genetic studies suggest hereditary factors can account for only about 15 percent of cardiovascular risk, meaning environmental causes account for the rest, said cardiologist Stanley Hazen, M.D., Ph.D., chair of the Department of Cellular and Molecular Medicine at the Cleveland Clinics Lerner Research Institute.

Next you'll probably tell someone to stop looking into this.

Your not focusing on facts or science.
your focusing on me.
Dr. Pezzi seems pretty damn crazy to me if you actually look into his bio. Doesn't seem very credible to me.
He sounds like thedos equis man.

"I'm not saying to stop posting, just maybe some direction as to how the science youpresentrelates to us."
My response would be why would I take any more time then I already have. I cant make you get it.

Your not a Bully, just a distraction to me.
I think your not the only one that has Guitarman fatigue,
Thats why I am taking a break and will start a new thread.
If I continue to put in any effort and the way I go about things, that seems like the best idea to me.
Maybe more like a blog.
No distractions.

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MemberMember
15
(@nemesisbrady)

Posted : 04/19/2018 7:46 pm

    • Not our fish oil! Our oils are recovered from the eyes, heads, and livers of wild fresh fish caught for human consumption.

      So im eliminating all a from diet or least 90%

      as this will
      be my first experiment

      because not only is a poison least for us
      i did kale spinach Goji berries
      avocado
      sweet potato all for a week

      and my hair thinning lips shriveled up skin flakier

      so my question is this

      my fish oil is Wileys finest top brand good
      i take 3 for dry eye doesnt help anyways

      but problem is does this contain a? What they stated sounds it
      but no a on site or bottle
      im
      confused

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MemberMember
299
(@macleod)

Posted : 04/20/2018 12:49 am

10 hours ago, Nemesisbrady said:

This should end the mystery

here u go if u got time to read

https://ggenereuxblog.files.wordpress.com/2018/02/poisoningforprofits1.pdf

That is an amazing find Nemesis. I have to add this to my files and read asap! I think you could benefit from the hyperbaric treatment I'm trying as well. In conjunction with ketamine if you are really clinically depressed. Don't give up until you've tried everything.

Oh, and Nemesis. I also find myself taking 20,000-30,000 iu of Beta Carotene (sometimes Retinyl Palmitate), looking to see if we subsequently caused a deficiency by taking Accutane. I'm on the fence about Vitamin A, sometimes I feel better, sometimes nothing at all. Perhaps we have to do it for a longer period? (4 weeks). I referenced a medical journal about a boy in India who lost all night vision while on Accutane. The doctors took him off and treated with 200,000iu vitamin A for a few months, and he made a full recovery. They proposed people with deficiencies were susceptible to toxicity essentially.

-------------------------------------------------------------------------------------

Here's a video of what I'm trying to accomplish by hyperbaric o2 therapy. The majority of my side effects are neurologically related, so that is why it is of particular focus to me.

new article regarding ketamine treatment: http://www.bbc.com/news/health-43753073

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MemberMember
15
(@nemesisbrady)

Posted : 04/20/2018 1:07 am

Thank u I really hope so I hate this shit

so ima avoid a
and ur gunna try a?

whats the symptoms u got if u wanna message me

that thig I found is scary

but so is what we™re dealing with 

i think we have to exhaust everything 

so I™m willig to avoid a least 90% all retinal

i was juicing like a mad man
esting over 700% vitamin a beta
and my lips were like accutane shriveling up and dry
ill provide a pic to show 

So here™s the pic after consuming a lot of veggies

again I could have had allergy to food
or could be tooth paste brushing teeth and lip
athough I™ve done that forever and no dryness
could have been smart water 
could have been million things

i do know my skin gets drier too so here™s the pic

resembled accutane lips least first few months on it
minus bleeding cracking 

Also this is my nose after I smoked weed 

I always got bloody noses as a kid
but the dryness is crazy
and now I™m waking up with green crusted snots sorry I know disgusting

another weird thig maybe not accutane
but my beard is red and scalp hair is dark and hair everywhere else
i don™t mind that much
the hair growing up to eyes is a concern though

i barely can grow a beard tho and I™m 29

 

30984FC2-7119-485F-BED7-F002C0CFBBA2.jpeg

[Edited image out]

On 4/20/2018 at 1:49 PM, macleod said:

That is an amazing find Nemesis. I have to add this to my files and read asap! I think you could benefit from the hyperbaric treatment I'm trying as well. In conjunction with ketamine if you are really clinically depressed. Don't give up until you've tried everything.

Oh, and Nemesis. I also find myself taking 20,000-30,000 iu of Beta Carotene (sometimes Retinyl Palmitate), looking to see if we subsequently caused a deficiency by taking Accutane. I'm on the fence about Vitamin A, sometimes I feel better, sometimes nothing at all. Perhaps we have to do it for a longer period? (4 weeks). I referenced a medical journal about a boy in India who lost all night vision while on Accutane. The doctors took him off and treated with 200,000iu vitamin A for a few months, and he made a full recovery. They proposed people with deficiencies were susceptible to toxicity essentially.

-------------------------------------------------------------------------------------

Here's a video of what I'm trying to accomplish by hyperbaric o2 therapy. The majority of my side effects are neurologically related, so that is why it is of particular focus to me.

 

 

 

How do I go about that?? I know this drug caused more mental shit for me

was never depressed 
anxious yes but I could leave my house and go places
i just avoided parties and hanging with crowds

but since the drug a decade ago
im not who I was
Ill look into ketamine 

 

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