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11 hours ago, guitarman01 said:saw you scratched this. Here is the study. They're saying it was more potent than antibiotics.
Thank you kind sir 
https://www.ncbi.nlm.nih.gov/pubmed/1492156
'The precise contribution of the bacterially synthesized menaquinone to overall vitamin K requirements in man is unknown.'
So a big maybe..
Supplementing to be on the safe side seems wise (if presenting deficiency symptoms or if your dietary intake is likely deficient) and also intermittently adding some fermented food types to your diet and/or adding Kale/similar leafy greens to diet for K content and their ability to feed beneficial bacteria. https://www.sciencedaily.com/releases/2016/02/160215114005.htm
21 hours ago, macleod said:You are just taking up so many pages and none of it is practical. That's just the truth.
So I have to go back to this. What are you talking about here? I have a feeling you're just filtering over my posts because for some reason its making your blood boil a little bit. If something I said offended you, my best advice would be to let it go.
I think your looking at things the wrong way. Im not trying to dominate this thread. Everyday im just trying to push things or move the needle just a little bit more. Some people might be in a better position to look into some of these things, whether that's finances, insurance, geographical location or just plain relentlessness. I dont view this as a criticism but an advantage.
On 7/14/2017 at 0:16 PM, ACCUiTy_drANE said:ALT (SGPT): 67 IU/L (0-44) - OUT OF RANGE
AST (SGOT): 50 IU/L (0-40) - OUT OF RANGE
Alkaline Phosphatase, S: 72 IU/L (39-117)Everything in the "CBC With Differential/Platelet" category was normal, and there were most tests in the "Comp. Metabolic Panel" category, which I can post if anyone is interested.
I have a few takeaways: Given the recent focus on the liver in this thread, I found it interesting that "ALT (SGPT)" was one of the few out-of-range readings I had. Does anyone have feedback on this?
Creatine Kinase (CK) is often checked alongside ALT and AST when ALT and AST are elevated. High CK, along with elevated ALT and AST, appears to be an indicator of potential muscle or brain damage.
Not sure you have had fatigue and muscle pains along with the personality changes since Accutane?
But testing CK might be worth considering since it has been found to be elevated in patients taking isotretinoin who suffer myalgia/myopathy (muscular pain/disease).
There are also loads of case reports of elevated Creatine Kinase in Isotretinoin patients suffering from myopathies.
You might also want to contact Mario Vitali regarding the liver damage angle.
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17 hours ago, macleod said:I have an entire jar of kefir that has been growing for almost a year. I started with just a teaspoon. I drink it couple times a week. It helps... ( I think ).
Ok, I just bought some Vitamin K2. I'll let you know if I feel anything or just another bottle to add to the collection.
I don't think you are meant to grow it for a year - just 10 days then fridge. You can put a pre culture in it..
Did you make yourself?
29 minutes ago, Dubya_B said:Creatine Kinase (CK) is often checked alongside ALT and AST when ALT and AST are elevated. High CK, along with elevated ALT and AST, appears to be an indicator of potential muscle or brain damage.Not sure you have had fatigue and muscle pains along with the personality changes since Accutane?
But testing CK might be worth considering since it has been found to be elevated in patients taking isotretinoin who suffer myalgia/myopathy (muscular pain/disease).There are also loads of case reports of elevated Creatine Kinase in Isotretinoin patients suffering from myopathies.
You might also want to contact Mario Vitali regarding the liver damage angle.
.
How you doing Dubya? Have you looked at how some kids are recovering from being vaxxed using gaps diet, chelation and biomedicine.
I just think you all have everything to gain and nothing to lose by trying it. Dr shippen did say to me fasting and cutting carbs might help.
Google austime vit K and glutathione.
6 hours ago, hatetane said:I don't think you are meant to grow it for a year - just 10 days then fridge. You can put a pre culture in it..
Did you make yourself?
I started with a teaspoon bought on ebay. The initial cultures have grown over the year and multiplied I meant to say. I feed them milk or Coconut milk, let it sit for 2 days in room temperature, sometimes 3, build up c02, once the lid is ready to pop, strain then drink, rinse and repeat with new milk. Whenever you don't want to make a batch for a week or two, you put them in the fridge with milk of course, and they will slow down to a crawl in reproducing.
6 hours ago, hatetane said:Dr shippen did say to me fasting and cutting carbs might help.
I've truly (nil) fasted a couple times for 4-5 days max and it is an amazing experience. On day 3 or 4 your joints start to throb with pain as your body eats up free radicals and mends damages done to your body over the years. Naturally, since you use your joints everyday, they are the first to begin repair. It's pretty much a scientific fact that fasting increases HGH, testosterone, insulin resistance, proliferate beta cells, in a last ditch effort to sustain the living organism (You).
It's good. I recommend it as long as you don't have blood sugar issues. I was 210lbs in 2013, i'm now 170 with diet changes and exercise. It helps, but I still have lingering neurological side effects, It's not a cure all, but it helps.
9 hours ago, guitarman01 said:So I have to go back to this. What are you talking about here? I have a feeling you're just filtering over my posts because for some reason its making your blood boil a little bit. If something I said offended you, my best advice would be to let it go.I think your looking at things the wrong way. Im not trying to dominate this thread. Everyday im just trying to push things or move the needle just a little bit more. Some people might be in a better position to look into some of these things, whether that's finances, insurance, geographical location or just plain relentlessness. I dont view this as a criticism but an advantage.
I just try to put myself in the shoes of a new person stumbling on this thread for the first time and seeing every day just copy and paste pages of everything from Lyme disease to Alzheimers, to copper toxicity and just being completely lost. I don't think the ones truly affected by this drug have any form of ego left. I know that Accutane is pandoras box. I don't think my theories are 100% right, I'm just looking for practical solutions to try until I can get back to where I left off before taking this drug...I found a scientific study linking Accutane to depression through transcriptional changes in the brain. That is real evidence.
It's a well known strategy that in law and business, all you need is a gray area, you try to conflate obscurities as much as possible, try to confuse and misdirect as much as possible, to obscure the truth. It's odd having new user accounts with a handful of posts saying "hey guys it's 100% an autoimmune issue" or "its candida" "We should try fecal transplants". Like, that's the type of stuff that make real doctors think this is hypochondria.
41 minutes ago, macleod said:I just try to put myself in the shoes of a new person stumbling on this thread for the first time and seeing every day just copy and paste pages of everything from Lyme disease to Alzheimers, to copper toxicity and just being completely lost. I don't think the ones truly affected by this drug have any form of ego left. I know that Accutane is pandoras box. I don't think my theories are 100% right, I'm just looking for practical solutions to try until I can get back to where I left off before taking this drug...I found a scientific study linking Accutane to depression through transcriptional changes in the brain. That is real evidence.It's a well known strategy that in law and business, all you need is a gray area, you try to conflate obscurities as much as possible, try to confuse and misdirect as much as possible, to obscure the truth. It's odd having new user accounts with a handful of posts saying "hey guys it's 100% an autoimmune issue" or "its candida" "We should try fecal transplants". Like, that's the type of stuff that make real doctors think this is hypochondria.
I mean I'm not gonna lie, you're definitely not wrong at all with "doctors thinking it's hypochondria"
To be honest, that's why I've stopped trying to relate things to accutane. Instead of saying "hey I think this drug sparked an autoimmune disease"
i just say "hey, I'm feeling weak, brain fog, depressed. Can we get some tests done?" and then I go from there. My constant muscle weakness/brain fog/voice complaints have gotten me way farther than bringing up accutane ever has.
Yeah it's tough to prove what we are going through but that's why we need to use every little symptom to push doctors for tests. I complained about my voice/hearing and will be put on prednisone this week. Is my hearing really that bad to where I would need prednisone for it? Not at all... Did I lie just so I could get ahold of some medication to see if it alleviates any symptoms? Certainly. We gotta know how to play the game.
1 hour ago, macleod said:I found a scientific study linking Accutane to depression through transcriptional changes in the brain. That is real evidence.
Looking at this study it looks like it shows increased cortisol levels due to hyperactivity of glands induced by retinoids.
If this can be measured by just simple cortisol blood levels, then this is not the case post accutane.
If this requires a stressor and then test cortisol blood levels then thats something to look into.
This falls into whats been talked about recently. The difference is it was retinoid induced. It could have the same mechanisms and could still be autoimmune-like in nature if chronic.
https://www.holtorfmed.com/dr-pdf/Diagnosis Treatment CFS FM.pdf
Diagnosis and Treatment of Hypothalamic-Pituitary-Adrenal (HPA) Axis Dysfunction in Patients with Chronic Fatigue Syndrome (CFS) and Fibromyalgia (FM)
This is a marker (antibody) that this^ might be going on.
Achr ganglionicneuronalantibody. I tested positive for this antibody and so did babis. to put it in perspective 1 in 15000 test positive for this per mayo clinic. This is blood proof of autoimmune autonomicnervous systemdysfunction.
There is also real evidenceof accutane being an environmentaltrigger to numerous autoimmune diseases (i'vefound a study or two myself along the way)
Thehypothalamusis responsible for the regulation of certain metabolic processes and other activities of theautonomic nervoussystem. It synthesizes and secretes certain neurohormones, called releasing hormones orhypothalamic hormones, and these in turn stimulate or inhibit the secretion of pituitary hormones.
All we can do is look into all this until we can prove or disprove What might be going on. I've spent quite a few G's myself this year trying to figure it out. You had a guy that just had a lumbar puncture trying to figure it out, someone had to cross state lines just to get blood tests. You had a guy that said he was scared to post, but wanted to post because he thought it was Canidia and wanted to try to help people and took the time to do so.
So please think about this shit before you go on your next rant.
Hey I don't mean to offend anyone, but srsly to me it all adds up and makes perfect sense.
On 15.7.2017 at 1:19 AM, guitarman01 said:Theres antibody testing for this. It looks to be up to 70 to 80 percent accurate. Even walkin lab tests all the antibodies for 199. This could be a worthwhile test. if you can find it, I thought someone did say on here they tested positive for candida antibodies. Dont remember the details.Ehohel said he felt 100 percent on prednisone. If there was a candida infection that was causing systemic effects ( obviously it's not in the blood, would have to be coming from the gi tract) he should have felt worse theoretically on prednisone.
Yes unfortunately it's possible to miss this with stool samples, because not every lump is carrying more Candida traces as expected in a healthy gut. This antibody test is measuring different immunoglobulins, but they can be elevated for different reasons, so it's still not 100% accurate.
From my understanding prednisone should of course make a big difference since it suppresses the autoimmune reaction and lower the antibodies, but it doesn't eradicate the yeast and it's mykotoxins. This is why it only works short term in my opinion and will only bring you a nice rebound.
The problem with Candida is that, as I said it was treated a little dubious by quacks in the 70s, so doctors today don't believe in it and disregard everything that has to do with it. That's why I wont go see a doctor regarding this issue again, until I feel I'm cured.
Our gut has the most impact on our immune system, so I'm absolutely certain that this auto-immune response (that I'm surely not born with) has its souce in a disrupted gut flora and everything that follows.
The bad part is: diet alone doesn't resolve anything. It weakens the yeast, but if you go to harsh it can also trigger the release of more toxins as a response. It's the combination of diet, antifungals, colon cleanse and probiotics that helps in the long run and you'll have to stick to it for months.
I almost feel like I can control my brainfog and trigger my evil forgetfulness by tweaking my diet and nystatin.
I think we can't rule out, that some with different symptons might have different gut problems or even parasites, but in the end it all boils down to accutanes antibiotic impact completely killing our gut flora.
I will try to keep you guys updated over the next couple of weeks and if only one of you finds relief in this path, then I can die in peace 
45 minutes ago, C1328 said:Hey I don't mean to offend anyone, but srsly to me it all adds up and makes perfect sense.
Yes unfortunately it's possible to miss this with stool samples, because not every lump is carrying more Candida traces as expected in a healthy gut. This antibody test is measuring different immunoglobulins, but they can be elevated for different reasons, so it's still not 100% accurate.
From my understanding prednisone should of course make a big difference since it suppresses the autoimmune reaction and lower the antibodies, but it doesn't eradicate the yeast and it's mykotoxins. This is why it only works short term in my opinion and will only bring you a nice rebound.
The problem with Candida is that, as I said it was treated a little dubious by quacks in the 70s, so doctors today don't believe in it and disregard everything that has to do with it. That's why I wont go see a doctor regarding this issue again, until I feel I'm cured.
Our gut has the most impact on our immune system, so I'm absolutely certain that this auto-immune response (that I'm surely not born with) has its souce in a disrupted gut flora and everything that follows.
The bad part is: diet alone doesn't resolve anything. It weakens the yeast, but if you go to harsh it can also trigger the release of more toxins as a response. It's the combination of diet, antifungals, colon cleanse and probiotics that helps in the long run and you'll have to stick to it for months.
I almost feel like I can control my brainfog and trigger my evil forgetfulness by tweaking my diet and nystatin.I think we can't rule out, that some with different symptons might have different gut problems or even parasites, but in the end it all boils down to accutanes antibiotic impact completely killing our gut flora.
I will try to keep you guys updated over the next couple of weeks and if only one of you finds relief in this path, then I can die in peace
I hate to say it after all we've been through with tane but isn't there anti candida drugs we can take??As opposed to the path of supplements.
Ive given up on supplements- at best they provide about 5- 10% relief but that's it.
I recently took Lamisil to clear up an infected toenail - I responded very well and it cleared up, prior to this I took all the topical treatments and none of them worked - I had the infected nail for over 5 years because I didn't want to touch another drug, I take Lamisil and it clears up in weeks!!
My point is, it's going to take more than supplements to get us out of this mess we're in with tane, yes supplements might aid but it's going to take another drug to get us out of the woods, that's regardless of whether you think our problems are candida related or something else.
I would look at some of the stronger Anti-Candida prescription drugs.
4 hours ago, guitarman01 said:I don't think it's candida. I'm just talking about respecting people.
I agree, lets all be respectful.
At the same time whether a new member or not, I wouldn't come on the forum declaring....IT'S THIS or THAT. Naturally that's going to upset a few people on a forum looking for an answer established over 5 years ago.
If I was to believe the first doctor I went to after tane I'd come on here declaring- IT'S VIT C.......we all know it's not.
So yes, screening what one says on here is also important, just my opinion with respect to finding a bloody cure!!
6 hours ago, guitarman01 said:I don't think it's candida. I'm just talking about respecting people.
Let me rephrase this. Respect gets respect.
6 hours ago, macleod said:See what I'm talking about? That last post by that user confirms there are shill accounts on here. Always has been for years. So, am I still just ranting by asking for organization in your research so I don't mistakingly associate your account with theirs?
To me that last rant sounded like you were giving everyone the middle finger. If that was just directed at me, I dont care.
So to recap, Im posting too much and its bothering you, you dont like what some other people are posting, and you want more people to pay attention to what your posting.
You manage to be so oblivious to my postings, you confuse me with another user, not only that your not even aware some of what ive been most concerned about directly relates to what you just posted.
For example you said you smoked some weed and had a stroke. Thats fucked up. Ive been talking about phospholipid antibodies they are saying could be drug induced that could lead to antiphospholipid syndrome or "thick blood" where people could be more prone to blood clots or risk of stroke.(I have them) Ive also talked about thrombosis risk based on genes like MTHFR. Ive also talked about calcification and trying to look into that by getting a carotid artery screening. and all you say is you're posting too much. Progress doesnt get made or things figured out by everyone posting less.
Ive also talked about gingivitis that can progress to periodontal disease. This is Bacteria, Autoimmune and dry mouth.
If your not paying close enough attention,(and that goes for everyone's postings) or logging on alot thats fine,
You cant make these blanket statements though that discredit some things if you havent been following everything.
When you stop and criticize people thats worse than the actual posts you're criticizing. Like what we're doing right now, I dont want to do this with you. Things will work themselves out.
End Rant.
Im sure your gonna say your peace and then we can move on. This is really all such a waste of time.
Hey guys,
I'm glad i found this forum. So i'll begin by saying that in September 2016, I had a moderate cystic acne breakout. My mom decided to take me to the dermatologist, and discussed with the doctor what was going on. Due to my family's history with bad acne, he decided to put me on accutane as the first treatment in late October. I began at 40 mg a day for one month, being 5'9 and 170 pounds. I was ecstatic, because this medication cleared my sister's acne so well and she had no side effects whatsoever, so i was ready. No here's the awkward part...about 3 weeks into treatment I realized that i "couldn't get it up" that well. I then did a quick google search for shits and giggles, and saw that Accutane can cause ED. I immediately went off the medication, and told my parents that it was just "making me tired". So at this point i was relieved. But to my amazement, the ED never really went away. I first attributed this to my lowbody fat, because I was in very good shape at the time. But then i started making connections. Overtime, i went through good and bad times pertaining to this topic. For days, sometimes weeks, i would be totally dead down there for weeks. I also noticed candida on my tongue since ending treatment. Recently in the past two months, I've had two spurts of feeling great, oily face, horny, and feeling happy. Then, these good spurts disappear, and I feel absolutely dead "down there" and legitimately feel impotent. Im currently in this state of partial impotence and cant get my D up for the life of me (no morning wood, spontaneous erections, etc). So basically what I'm asking is does it get better in terms of ED? My sleep patterns are beginning to return, and my "good spurts" with no symptoms seem as though they are begining to happen closer to each other but this "dead spell" is the worst yet. Does this mean im recovering? The symptoms seem to be on and off right now, so maybe this is my body fighting to get back? I sure hope so. And for ED, what can i take to get me back on track? My libido is up, I want to have sex, but it seems as though I have no visual stimulation and my penis isnt connected to my brain. I could literally get hard looking at a girl before now i really have to work it. i am only 18, so i gotta get my stick working at 100% all the time. I'm looking at taking creatine, gilko bilabo, and maybe pine pollen. I just need to some truthful answers because im pretty down right now. And i really hope this ED thing isnt permanent. I have really done my research on these AR-5 Reductase inhibitors and its scaring me. Any advice? Am I screwed down there for life? Its been 6 months. Please any response will be helpful. Thanks.
September 2016, how is this shit still being prescribed?! Absolutely makes my blood boil.
@Sprinterguy98 - I'd get eating a very clean diet, no processed foods and refined sugar, cut out alcohol, exercise and do HIIT training at the gym if you can.
@guitarman01- you seem to be able to get all sorts of tests done which is great, but I really think many of things are just downstream issues as a result of depleted neurosteriods post accutane. Are you able to get you cerebrospinal fluids tested?
In the recent Italian PFS* study this showed depleted levels of neurosteriods in the CSF fluid of the PFSguys, but blood tests looked fine. The issue is more neurological than endocrine it seems. Getting similar testing done would be a big step forward for accutane victims, and I believe this would show similar results and would finally give us something concrete to go on;
QuoteKey findings of the study include broad effects on plasma and cerebrospinal fluid (CSF) neuroactive steroid levels observed in 14 PFS patients, as compared to 25 controls. Statistically significant decreased levels of DHT, pregnenolone, progesterone, 17-beta estradiol and dihydroprogesterone (DHP), and increased levels of DHEA, testosterone and 3-alpha diol were observed in the CSF of PFS patients.
[Edited link out]
Do you have scope to get such tests performed? Anyone else have the ability to get extensive testing done seemingly at will, like GM?
* For any newbies PFS is Post Finasteride Syndrome, guys who have got the same sides as us from taking that 5 alpha reductase inhibitor (anxiety, depression, ED, loss of libido, persistent dry skin, brain fog etc) so this is relevant to us.
@tanedoutI have been on a clean diet the whole year and workout 5 days a week. I am a track sprinter so I have a large amount of muscle and maybe 8% bodyfat. I have also cut out alcohol. This hasnt really helped at all, I appreciate it though. Any more advice? Since I only took it for 3 weeks, do i have a good shot at full recovery? Thanks
16 minutes ago, Sprinterguy98 said:@tanedoutI have been on a clean diet the whole year and workout 5 days a week. I am a track sprinter so I have a large amount of muscle and maybe 8% bodyfat. I have also cut out alcohol. This hasnt really helped at all, I appreciate it though. Any more advice? Since I only took it for 3 weeks, do i have a good shot at full recovery? Thanks
Well sounds like you're on the right track (no pun intended!). If I were you I'd keep that up and not be focusing on this thread and keep a positive mindset. Nobody has the answers or this thread wouldn't be 13,000 posts long.
18 hours ago, guitarman01 said:So to recap, Im posting too much and its bothering you, you dont like what some other people are posting, and you want more people to pay attention to what your posting.
You literally just did what that other guy did a couple weeks ago regarding asking doctors for tests. Put words in my mouth, made up your own delusional scenario, where you (as the child) are in the right.
Someone is creating accounts to throw this thread off. Always has been for years. Just look above. All I'm saying is try to keep your stuff organized so it's easier to discern between the shill accounts and real affected people.
Hey I just found a website where one guy told his story (finasterid user) and his natural recovery. He is now trying to help other people(already has some guys recovered too) and explains how to do it step by step. I will try it and if i have success i will give you feedback. I just want to ask if someone on here want to go this way together with me so we can share experience and give motivation? Just write me if you want.
3 hours ago, Jorcruz24 said:Has anyone noticed that these side effects tend to affect men more than women ? It appears most of us are guys on this thread, and the only other people I knew personally to have taken accutane were women who have had no side effects since.
Yes. And before I took this drug, my research were biased actually . I was googling in French and almost all review available were given by women. They were fine and recommended the drug . So I took it too thinking I would be fine too . A male friend of mine took the drug without damage afterwards also. It really makes me think what was different in us long term victims to those that took the drug without much harm .
But hey, daily reminder, people have gotten better, some have recovered . Do not give up, do not stop trying. It might take years but this is life; the day I will be recovered, the faster the better, I will look back and say it was worth it, for all the knowledge/experience it gave me, plus personal reasons. Cliche yes, but what doesn't kill you makes you stronger
Idontknow1993, are you referring to CDnuts ? I'm planning to follow his protocol as well. I just have to make myself in a better situation financially and I also want to try some products I have/will purchase/d beforehand
Everyone here still looking for an answer. Still feeling the effects like everyone else here. Sucks that our quality of life has been diminished. Wish at the age of 13 when I was prescribed these drugs that I could just say no. Oddly enough I have a twin brother who took the same course as me and he really has little to none of the effects I or other users here have. I just assume i must have metabolized the medicine differently.