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Repairing the long-term damage from Accutane

 
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223
(@gladiatoro)

Posted : 07/08/2017 12:20 pm

I think we all should start a class action law suit against Roche .Sadly the only ones that win are stomach related however intercranial pressure is also a side effect it's what I got off and on throughout the years . Why do you think people get headaches and lose their hair.

Its a direct side effect no question. Some lawyers are involved in this .

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223
(@gladiatoro)

Posted : 07/08/2017 12:49 pm

Honest derms will tell you then main long term side effects are joint pain and depression. Plus dry eyes dry mouth skin.

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47
(@walden-rev)

Posted : 07/08/2017 1:03 pm

On 7-7-2017 at 7:01 PM, Kynarr said:
Word of advice, go straight for injections. I do subQ Enanthate at 80mg weekly at the moment. I've increased my T to over 800 most recently. Androgel will fail you. Don't go on it.

This is the one problem we know most of us have, that we can address. I'll report my story soon, but I'm finally starting to get better. I doubt it will cure every issue, but it's a damn good start.

Thinking about doing this too to kickstart it.
can you elaborate on the injections? Are you on a med supervision? If no, how hard are the injections to do yourself?

Thanks!

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223
(@gladiatoro)

Posted : 07/08/2017 1:15 pm

My allopathic doctor said and I quote "It's not that bad youhave to take better care of yourself and watch your diet " I said I never signed up for any of this b.s. lol I think I mentioned this before on here but those were his exact words regarding isotretinoin.

I tell you the day good old beer becomes toxic is the day the entire medical system is backrupt / corrupt .That day has arrived. All my ancestors drank I'm forced to drink endless water for my chronic dehydration that never goes away.

And to be honest I don't think being chronically dehydrated is very health for the human body.

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(@pmcheal)

Posted : 07/08/2017 1:21 pm

Hello everyone
Ive been reading the forum for years. Ive been suffering the last 10 years with a whole list of side effects like most people here.
I was just wondering if someone could help me to do with tudca and the possibility of accutane still stored in the body. I know this topic comes up a lot and people have different views about it. Just to do with tudca, first time taking it a couple of years ago 2 weeks into taking it had massive nose bleed during the night, pillow covered in blood and the extreme dryness tightness peeling of the skin on myface.As we know these are temporary side effects when your on accutane. Recently i started taking tudca again and calcium d glucarate and same thing happened again, also when i was on sam-e had a couple of nose bleeds.So whats happening here is my body trying to detoxify this poison out of the body or is there another reason for the nose bleeds and peeling of the skin, someone on the forum said it was because of another reason cant remember what it was.Is it possible that some people have residue or metabolite of the drug still stored in the body and others dont.

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1803
(@guitarman01)

Posted : 07/08/2017 3:13 pm

Im a few credits shy of my lawyers degree, but I dont think you can sue them for any side effects that are already written on the label.
My problem is there is no medical record of me taking Accutane anymore, too much time has passed. Im trying to get a written signed statement from my dermatologist before he retires, saying he prescribed me a course, but the details and dosage will be vague or not exist. I know it was at least for a few months though. Id like to have this just in case. For example, If I would have to go on some sort of immune suppression to be back to normal, that is no minor thing. This could be very expensive as well. Years have passed, but if proven to be caused by accutane, there might be exceptions to the statute of limitations, being that no definable testing was even publicly available until more recently.

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223
(@gladiatoro)

Posted : 07/08/2017 4:02 pm

46 minutes ago, guitarman01 said:

Im a few credits shy of my lawyers degree, but I dont think you can sue them for any side effects that are already written on the label.
My problem is there is no medical record of me taking Accutane anymore, too much time has passed. Im trying to get a written signed statement from my dermatologist before he retires, saying he prescribed me a course, but the details and dosage will be vague or not exist. I know it was at least for a few months though. Id like to have this just in case. For example, If I would have to go on some sort of immune suppression to be back to normal, that is no minor thing. This could be very expensive as well. Years have passed, but if proven to be caused by accutane, there might be exceptions to the statute of limitations, being that no definable testing was even publicly available until more recently.

Trust there have been tons of lawsuits over the years and as I have often said this drug should be reserved for severe cystic acne ONLY NOT mild acne that's criminal to say the least.

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75
(@colinboko)

Posted : 07/08/2017 4:21 pm

1 hour ago, guitarman01 said:

Im a few credits shy of my lawyers degree, but I dont think you can sue them for any side effects that are already written on the label.
My problem is there is no medical record of me taking Accutane anymore, too much time has passed. Im trying to get a written signed statement from my dermatologist before he retires, saying he prescribed me a course, but the details and dosage will be vague or not exist. I know it was at least for a few months though. Id like to have this just in case. For example, If I would have to go on some sort of immune suppression to be back to normal, that is no minor thing. This could be very expensive as well. Years have passed, but if proven to be caused by accutane, there might be exceptions to the statute of limitations, being that no definable testing was even publicly available until more recently.

I actually picked up my records the other day and my derm asked why and I said "cause you royally fucked my life up for almost a whole year now and you've done nothing to help.."

have my ENT apptmt this Thursday. We shall see if he finds anything....

sure hope he does

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223
(@gladiatoro)

Posted : 07/08/2017 4:24 pm

If you haven't noticed I like pissing derms off everyone on this board knows they read our comments lol. One derm described it as the lesser of the evil I'm not so sure.

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223
(@gladiatoro)

Posted : 07/08/2017 4:43 pm

All truth passes through three stagesfirst it is ridiculed second it is violently opposed and finally it is accepted as self evident. We truely are living in the dark ages of medicine. It is governed by$$$$

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223
(@gladiatoro)

Posted : 07/08/2017 5:00 pm

And by the way if you think your going to cure a nuclear attack with a couple of supplements your kidding yourself side effects are just what they are PERMANENT. Drink lots of water .

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77
(@simplemutton)

Posted : 07/08/2017 5:11 pm

Hi guys
I had two rounds of Accutane 6-7 years ago and I've also experienced side effects from the drug....they have improved quite a lot but they're still there a bit.

My side effects are mainly mental, I experienced:
- Brain fog
- Inability to focus and concentrate
- Lack of productivity
- More hours of sleep needed than before
- Fatigue
- Forgetfulness of words
- Short term memory problems

Now, it's not as bad as before but they're still there.

I also took another drug (finansteride) that gave me similar problems.

And actually I made a connection because the mental problems I experienced are the same and not only in my case. What I read in this topic is the same of what I read in the propecia help forum (people that took finasteride)

Another thing I said that these side effects are experienced mostly by men and not a lot of women.

Now, we know how finasteride works...it destroys androgen hormones and raises estrogen.
Maybe Accutane has the same effect?

After all the symptoms I described are classic symptoms of low testosterone and other androgenic hormones

and the fact that women usually don't experience these side effects is a huge red flag for me

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223
(@gladiatoro)

Posted : 07/08/2017 5:11 pm

And might I add if you think the government is going to save you with chemotherapy, radiation and vaccines think again poison does NOT have the ability to do that.

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1803
(@guitarman01)

Posted : 07/08/2017 5:46 pm

33 minutes ago, SimpleMutton said:

Another thing I said that these side effects are experienced mostly by men and not a lot of women.

Another reason for this is acne is more of a male dominant problem as opposed to female. For example I can think of just one girl that had really bad acne in high school, as opposed to quite a few guys. You could tell who went on accutane. So the ratio of men to women who have taken this drug is probably pretty skewed.

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223
(@gladiatoro)

Posted : 07/08/2017 6:09 pm

I would recommend to stay away from caring and loving derms I remember reading once of a woman who had severe acne she refused to take isotretinoin instead she took salt baths daily and kept her acne in check I tried that but it nearly killed me due to my isotretinoin exposure thanks accutane .

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42
(@kynarr)

Posted : 07/08/2017 6:25 pm

5 hours ago, Walden Rev said:
Thinking about doing this too to kickstart it.
can you elaborate on the injections? Are you on a med supervision? If no, how hard are the injections to do yourself?

Thanks!

I'm followed by an Andrologist, but I inject myself every week. SubQ is super easy. No pain, no scars. I use 27 gauge needles. I just pin it in my belly and inject. It's stupid easy. You can probably check some videos on youtube if you need, or just get help from a nurse somewhere for your first time. There's really no worry about it at all. It's as easy as it gets. I prefer it to having to apply gel to my arms every morning.

Regarding the Chinese study linked today. I'm eager to know more. I haven't had the time to read it, but any Accutane related study that discusses hormone issues, IMO, is on the right track.

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macleod, Gladiatoro, macleod and 3 people reacted
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1804
(@truejustice)

Posted : 07/08/2017 6:27 pm

6 hours ago, Gladiatoro said:

I think we all should start a class action law suit against Roche .Sadly the only ones that win are stomach related however intercranial pressure is also a side effect it's what I got off and on throughout the years . Why do you think people get headaches and lose their hair.

Its a direct side effect no question. Some lawyers are involved in this .

I'd actually like to go the opposite way and give Roche a heap of money, enough so they can send senior management off to do some ethics classes, maybe learn a few things about morals and how not to be corrupt- clearly they are lacking in these areas.

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4
(@vice-accutane)

Posted : 07/08/2017 6:32 pm

Gladiatoro please, we all know you have suffered a lot . As we all have . But keep those negative posts for yourself . Us too know some facts about chemo, vaccine, allopathic medicine and big pharma . Those posts where you write it doesn't bring anything helpful to This thread. If you have given up the fight, I'm sorry. If you need support just ask. Yes it's terrible. But don't discourage those that don't want to give up.

It is possible to recover. And it's even more possible to get a quality of life back even though it doesn't mean a full recovery . Are you sure you tried it all?

The world is huge and resourceful, us human of the 21st century don't know anything yet about it .

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223
(@gladiatoro)

Posted : 07/08/2017 6:37 pm

2 minutes ago, Vice-accutane said:

Gladiatoro please, we all know you have suffered a lot . As we all have . But keep those negative posts for yourself . Us too know some facts about chemo, vaccine, allopathic medicine and big pharma . Those posts where you write it doesn't bring anything helpful to This thread. If you have given up the fight, I'm sorry. If you need support just ask. Yes it's terrible. But don't discourage those that don't want to give up.

It is possible to recover. And it's even more possible to get a quality of life back even though it doesn't mean a full recovery . Are you sure you tried it all?

The world is huge and resourceful, us human of the 21st century don't know anything yet about it .

Sorry for my rants just expressing my views and all the b.s I have been through for really nothing .

I think we all got @$$ed over in life somehow.

Btw I'll never give up the fight one thing I know for sure is that life is precious and btw I have made a 99 % recovery pretty impressive considering.

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223
(@gladiatoro)

Posted : 07/08/2017 6:56 pm

My main objective in this forum was to figure out all the long term side effects of this drug and I think I have done that.

And so I call it mission accomplished. Trust me it literally took me decades to get there. Now I think I'll have a beer.Cheers.

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1803
(@guitarman01)

Posted : 07/08/2017 7:10 pm

5 hours ago, PmcHeal said:

the possibility of accutane still stored in the body.

This isnt really the million dollar question anymore. But its still a question. With no indication of altered liver function, no doctor is going to give a biopsy to look into this. Maybe if you had a abnormal fibroscan, possibly coupled with an enlarged liver. Then maybe a biopsy.

I might look into getting a fibroscan.
Without any proof of excess storage of vitamin A or liver damage, You could be chasing this idea for a long time to come.

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223
(@gladiatoro)

Posted : 07/08/2017 7:10 pm

I literally milk topics right dry to the bone my specialty having said that I think I'm finally done here , good luck to all isotretinoin suffers in the near future handing out chemo will be considered an act of crime mark my words.

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299
(@macleod)

Posted : 07/08/2017 7:13 pm

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1
(@pmcheal)

Posted : 07/08/2017 7:52 pm

45 minutes ago, guitarman01 said:
This isnt really the million dollar question anymore. But its still a question. With no indication of altered liver function, no doctor is going to give a biopsy to look into this. Maybe if you had a abnormal fibroscan, possibly coupled with an enlarged liver. Then maybe a biopsy.

I might look into getting a fibroscan.
Without any proof of excess storage of vitamin A or liver damage, You could be chasing this idea for a long time to come.

Thanks for the reply.Do you know the video [8 tips for reversing accutane side effects] on youtube, what studies are they reading to come to the conclusion that accutane is still stored in the body.

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183
(@monsterdiesel)

Posted : 07/08/2017 7:57 pm

Has anyone tested free and total carnitine levels in blood?

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