Hello
I have followed this topic for more than 2 years now .
I don't know where to start but it's about time I share my experience and path to recovery with you .
i crashed 3y ago after a 7 months course at 45/55mg/ day ( 1,88 80kg at this time ), was 17
at the bottomof the bottom, my symptoms were:
_terrible back pain
_tiredness and fatigue all the time, I would sleep 15 hours ( in all seriousness ) and waking up terribly tired, as if I just come out of coma
_ED to a point sex is impossible
_zero libido
_ anhedonia / emotional numbness , a robot basically . Surely the worst side effects of all . I can not feel anyting
_ hair loss ( went'from thick hair to very thin and fragile hair ) and eyebrow loss ( haven't seen this side in others a lot ) sometimes little body hair loss too
_ brain fog
_ eyes / vison issue, especially if I ever watch some light spots with one eye and close the other, the color appreciation will completely different , the room would be darker with the eye I watch the lights with. Weird side effect
_ dryness all over the body , especially face , eyes and scalp
_ penile shrinkage / tortion
_ weight loss, muscle loss ( probably not accutane directly but i had to stop sports as a result of the extreme fatigue )
_ digestive issue
_ insomnia
_ anxiety
I think that's it . I don't know if I was one of the unlucky one that got extremely damaged or if I'm just in range. It's not important
So this was in 2015. We are mid 2017 and I somehow improved, though far far from a recovery.
Back pain was the first to vanish a few hours after I ingested homeopathic doses of isotretinoin.
The fatigue/tiredness is gone, day and night difference
brain fog has considerably dimnished , I would say gone
digestive issue are gone or almost
I can run longer, faster, my energy improved
Sex shrinkage / pain has improved , though still suffer from ED.
Still 0 libido, no Emotion and dryness however.
But it's a huge relief. I can do things on a everyday basis ( sports, studying )
Here a list of the things I tried :
changes in diet ( it's been 3 years since I stopped dairy and gluten, no alcohol , cigarettes (never did) , no sugar or processed food at all, mainly organic . Lot of' vegetables, rice, fish, white meat, probiotics food, paleo basically.
I feel that diet is important , really , but definitely not the cure.
I did kidney flush, 3 liver flush ( I put so much hope on those back then but unfortunately it didnt do anything ( at least my feeling)
3colon cleanse, Homeopathy, I was running 2/ week, 6km even though from the start and with this brain fog it was horrible .
I took many supplements / vitamins / herbs : ginseng macca tribulus St. John's wort , glandular extract, zinc copper, Vit A / C / B1/3/6/9/12 the list goes on. To no avail mainly . Not worth going further
And six months ago I started cannabis oil , made it myself; through rick Simpson recommandations .
I literally was 100% convinced this would cure me fully ( as I have seen three recovery stories of former accutane sufferers) this is what kept my head out of the water throughout 2016. I convinced myself this nightmare was soon over .
This is the thing that helped me the most . But it didn't cure me .
This is what cured my digestive issue, got my energy level back, got rid of my insomnia, sometimes spontaneous erection . When I don't take it my testicles and dick feels weaker or like empty feeling . It's better when I ingest it.
However when I take it , my scalp and skin are much much drier. I don't know if it is a sign of recovery , or something that is working , or if it is not a good sign at all . can't figure out . The dryness never stops or diminish ..
anyway, to everyone that never tried cannabis oil and suffer from accutane side effects, this is the best product I have ever tried . The only one that made a " significant " change for the better in me .
If you are lucky it could even cure you. Seeing how it has helped me , I tend to believe those guys that claim to have recovered fully or mainly with it . It's not all made up. I'm continuing ingesting it . I haven't felt any improvement for more than a month but I'm going to continue and keep you updated .
Good luck to everyone
By the way, as a last note , I'm going to try some other products :
NSI 189 , semax , Proviron, Tianeptine, bremelatonide, progesterone, prednisone, ropinirol , some D3 agonist for sexuality ( known to induce hyper sexuality ) aripiprazole for example .
It might seem foolish but it's already been three years that my life collapsed with those side effects . I'm willing to try those , in all carefulness , and see .
I'm also considering trying ayahuasca or Ibogaine, ketamine , DMT etc and microdosing psychedelics, such as shrooms and lsd . Some that suffer from anhedonia have had some relief and even get cured . Worth trying in my opinion .
If some has already tried it and feel to share their experience , please do.
This isn't really a " detailed " post, or well structured one. But I'm typing with my phone and want to put it to an and . I apologize
Feel free to ask anything
Some of the PFS guys over on swolesource are seeing some great results from taking a pro hormone called R-Andro (basically synthetic androsterone) and a fairly high dose of niacinamide (B3), and potentially caffeine.
QuoteFeeling fantastic meaning: tons of energy, very good mood, almost normal libido, muscle gains, more blood flow to penis, way more confidence, mental improvements - you name it
QuoteI completely reverse all my remaining symptoms (mainly mental) when I take the caffeine and niacinamide combo
[Edited link out]
QuoteI'll give a full update soon but I'm currently at about 4 weeks of 400mg R Andro and 500mg niacinamide and I'm seeing brilliant results. Would say I'm pretty close to 100% many days and don't even feel as if I have a problem much of the time.
[Edited link out]
I had some really good results from 3 x heaped teaspoons of pine pollen each day for about 4-5 weeks (this contains androsterone, same as R-Andro, but much less), however it just ramps up my estogen and I get really sore nips etc, so always have to stop, but R-Andro is supposed to be anti-estrogen too, so shouldn't be an issue. I've got R-Andro on order, so I'll report back if I get any improvements from it. I can only find it from US based suppliers though so I'm having to get some shipped over, but anyone US based who wants to try it should have no issues getting it.
For mental sides (i.e. brain fog) it sounds like people are getting really good results from this combo:
500 mg niacinamide, 325 mg aspirin, 200mg caffeine
Does vaccinating make sense? Dr Stefan Lanka and Dr. Karl Krafeld This is the translation of the flyer by the society of which Dr Stefan Lanka and Karl Krafeld are presidents of. They are actually encouraging people to write to the government to be shown actual proof that viruses exist, since so much scientific 'evidence' is based on it. Although this has been done since the middle of last year, in Germany as well as Austria, and apparently some other European countries, so far, no government body has been able to provide this proof or to even refer to any relevant scientific literature! I will start something like this here in the UK, and I'd love to see this started in every country. claudia WISSENSCHAFT, MEDIZIN UND MENSCHENRECHTE E.V.Does vaccinating make sense? No! Because vaccinating is comprehensive fraud. It has never been possible to create diseases with relevant microbes. In the year 1882, the bacteriologist Robert Koch started scientific fraud on political orders. As neither he himself nor others managed to cause the purported diseases with bacteria, he produced, in totally insane and cruel animal experiments, "similar symptoms and assessed this as proof for the ability to infect someone. All those who vaccinate refer to these experiments from the 19th Century. Yes! If one accepts and approves that the governments of the world irreversibly implant nerve poisons such as mercury, aluminum, solvents etc by bypassing detoxification with vaccination. These nerve poisons provoke gradual to manifest stupidification, development disturbances of all kinds, paralysis and death of the vaccinated and serve to break the will of human beings. If the reactions to vaccines go beyond the average, then the law speaks of vaccine damage. No! Because the ability to infect was exclusively defined as poisoning by scientific medicine (Virchow, Max von Pettenkofer, Rush, Klein and others) which has recognized diseases objectively correct between poisoning, deficiency and brain functions. And the latin name for poison, for example in water through faeces, decay poisons in food and from corpses is Virus.Experiments were carried out publicly which have disproven the statements about infection through microbes and vaccination. Yes! If one accepts and approves that vaccinating has turned the human being into an easily manipulatable object who now believes that health does not result from onself, but requires a strong state and its pharma industry. Because the one who allows to be vaccinated, will allow anything and will no longer notice that he/she is being poisoned and KILLED with antibiotics, chemotherapy, irradiation, gen technology etc. No! Because none of those viruses that claim to make you ill, like smallpox, polio, hepatitis, aids, ebola, measles, mumps, rubella and tic viruses has ever been seen, isolated and proven as existent. State medicine invented these viruses in order to conceal vaccination and medication damages. This fact can easily be checked by anyone. There is no publication in scientific literature in which a scientist states and proves that he isolated and characterized the relevant virus out of a sick person. Relevant text books present, with fraudulent intention, models and photographs of cells as viruses. Any amateur can learn, within a couple of days, the isolating, photographing and characterizing of viruses which exist and which are all harmless. Yes! If one accepts and approves that by way of vaccinating in the Third World, massive population control, speak euthanasia, was and is executed. The vaccines there contain pregnancy hormones to prevent conception, gentech activated nuclein acid to sterilize males as well, plutomium with which whole tribes have been poisoned, etc. If the same nerve poisons are contained in these vaccines as in this country, then in a much higher concentration, up to 100 and 1000-fold. The resulting vaccine damages, acute liver failure and resulting whole boody bleeding will then be termed ebola, marburg, crimea-congo, lassa infection etc or as Aids. No! Because even since Pasteur, no vaccine contains what it claims to contain: viruses or parts thereof! If one enquires at the responsible authorities, the answer is given that this is a company secret of the manufacturer which has to be protected by the state. The health authorities, medical association and physicians conceal that each vaccine contains poisons, such as mercury, aluminum, solvents etc. Without which the serum would never produce a reaction! Inserts are generally not distributed. Yes! If one accepts and approves that the CDC and EIS and therefore the Pentagon manipulate the national health authorities through the WHO, and created through parliaments the legal frame to suspend civil rights any time and anywhere.A nd who execute a psychoterror, which is proven to result in ill health, against their own people by making dishonest statements about biowarfare, e.g. anthrax, pox, polio etc. No! Because all numbers shown by the state show clearly that vaccinations never had any influence on falling numbers of diseases, quite to the contrary. This is an easily uncovered fraud of those in favor of vaccinations in the production of statistics. The same goes for the definition of the various infectious diseases. These are constantly changed in order to proof, on one hand, the success of vaccinations, such as the change of the definition of smallpox and polio to show their disappearance and on the other hand to invent new infectious diseases, such as AIDS. Yes! If one accepts that genocide happens in your own country, because the German penal code defines vaccination as genocide: Who, with the intention to wholly or partly destroy a national, racial, religious or ethnic group as such, impose living conditions which are suitable to effect their physical destruction wholle or partly will be punished with life long imprisonment. In lesser cases, the punishment is no less than five years. Appeal! Those who continue to recommend, execute or allow vaccination, following these statements of facts. The advice is that the facts stated in this flyer will be checked by the reader. The simplest way to do this is to ask the relevant authorities for a scientific publication in which a scientist states and proves that he has isolated and shown the relevant illness causing virus taken from an ill person. This is called the compliance with the First Koch Postulate, which medicine states contrary to better knowledge. The law here demands proof according to the current state of science and technology. Therefore, proving the existence of a virus that causes disease requires the thermionic microscopic photograph of the isolated virus and the biochemical characterizing of the virus components. As such a proof does not exist anywhere, it becomes clear that the nerve poisons in the vaccines are intentionally implanted in the population. With this wanted deception and poisoning of the population, every citizen is obliged to file charges with the police against executioners and those involved in vaccinations. Read the book virus mania . Watch the documentary VAXXED , HOUSE OF NUMBERS endless lies . We need a Nuremberg trial these are CRIMES AGAINST HUMANITY . Accutane btw is CHEMOTHERAPY . We live in a world of endless LIES.
Read the book Virus mania and get informed. Learnabout German new medicine ie the body mind connection. Dr Hammer had a 90 percent cure rate with cancer vs 2% of conventional allopathic quackery of chemo and radiation.
chlorogenic receptors.This might be a key term. I just emailed a head researcher that studies this and showed how it might be related to Accutane. We will see if she gets back to me.
Again looking at some key tests that might make a difference as a group.
phosphatidylserine antibodies
and
alpha-3 AChR autoantibodies
10 hours ago, hatetane said:Gladiatoro, have you looked at vaxxed recoveries? I don't understand why no one thinks this protocol would be worth a try
Nope I have accutane damage having said that a lot of kids have vaccine damage FACT. Big pHARMa disgusts me , someone needs to go to jail.
All I
14 hours ago, Gladiatoro said:On 7/3/2017 at 11:26 AM, hatetane said:Gladiatoro, have you looked at vaxxed recoveries? I don't understand why no one thinks this protocol would be worth a try
Nope I have accutane damage having said that a lot of kids have vaccine damage FACT. Big pHARMa disgusts me , someone needs to go to jail.
All I am saying is that people are recovering from Parkinsons, alzheimers and autisme brought on my vaccine poisoning.
There protocols are a lot of what you guys have tried already but they have pulled it all together and persevered with their protocols.
Guys on here talk about diet but how long are we talking about - a few weeks or months - it's not long enough.
Someone said they were going to try glutathione for up to five weeks - not long enough.
I guess at some point you walk away from this forum knowing you are just waisting time!
@tanedout@guitarman01
Just making sure you guys will see this.
After me insisting about this test, my Mother who has had several issues with her health was found yesterday to have fibrosis stage 3 on a Fibroscan test despite the fact that her Liver enzymes were normal.
Please let me know if anyone here decides to have a Fibroscan test at some point.
5 hours ago, hatetane said:All I
All I am saying is that people are recovering from Parkinsons, alzheimers and autisme brought on my vaccine poisoning.
There protocols are a lot of what you guys have tried already but they have pulled it all together and persevered with their protocols.
Guys on here talk about diet but how long are we talking about - a few weeks or months - it's not long enough.
Someone said they were going to try glutathione for up to five weeks - not long enough.
I guess at some point you walk away from this forum knowing you are just waisting time!
Whoever invented this chemo torture deserves a monument in HELL.
On 2 juillet 2017 at 10:33 PM, Gladiatoro said:Read the book Virus mania and get informed. Learnabout German new medicine ie the body mind connection. Dr Hammer had a 90 percent cure rate with cancer vs 2% of conventional allopathic quackery of chemo and radiation.
I would be very sceptical, at least, of affirmations that viruses don't exist and vaccinations are useless. As an example, I've seen victims of polio in Africa, but not in Europe. Also that German new medicine seems like a quackery itself.
5 hours ago, mariovitali said:@tanedout@guitarman01Just making sure you guys will see this.
After me insisting about this test, my Mother who has had several issues with her health was found yesterday to have fibrosis stage 3 on a Fibroscan test despite the fact that her Liver enzymes were normal.
Please let me know if anyone here decides to have a Fibroscan test at some point.
Thanks, that's interesting to know. My liver enzymes always come back in range (all my bloods ever taken have come back in range). Just today I saw the doctor again to discuss recent bloods, ultrasound on gallbladder and liver and ECG, and I'm being referred to a specialist regards the liver so a fibroscan might well be on the cards.
Interestingly the ECG's showed abnormal s-waves regards to heartbeat. My pulse has been elevated post-tane and I have a much deeper heartbeat - can always feel my heart beat in my head lying on my pillow. One thing that seemed to help a bit with that is progesterone cream, and I plan to experiment some more soon, but hope to try some androsterone soon, so progesterone can wait.
2 hours ago, sacha_n said:On 2017-07-02 at 1:33 PM, Gladiatoro said:Read the book Virus mania and get informed. Learnabout German new medicine ie the body mind connection. Dr Hammer had a 90 percent cure rate with cancer vs 2% of conventional allopathic quackery of chemo and radiation.
I would be very sceptical, at least, of affirmations that viruses don't exist and vaccinations are useless. As an example, I've seen victims of polio in Africa, but not in Europe. Also that German new medicine seems like a quackery itself.
The truth is often shocking isn't it . Btw polio was is chemically caused think DDT pesticides , lead arsenic used for spraying orchard fruit in the 1800s early 1900s and yes the polio vaccine was causing paralysis sad but true .Aids was just a bunch of junkies in the 80s . What else hmmm that will do for now . Ask me any question and will answer it YES I'm that smart.
Regarding chemotherapy ,Chemotherapy is your best chance and may be your only chance at surviving cancer. Chemotherapy yields a miserable 2.3 percent average success rate Chemotherapy destroys your immune system the one thing that HELPS you survive cancer. Lies , lies and more lies spewed by the pHARMa $luts. If you want to learn something watch Dr Stefan Lanka on you tube he is simply brilliant one of the last great thinkers and he exposes all the pharmaceutical lies from swine flu to bird flu to ebola to zika btw zika was the flavour of the year last year another chemically caused illness caused by toxic pesticides sold in Brazil to poor folks so toxic in fact that these pesticides are not sold in the US , Canada and most of the world .
And so you have baby's born with shrunken head syndrome sick and evil . Another great web site is NO MORE FAKE NEWS .com Jon Rappoport another great thinker .
Just went to a dermatologist today to treat the ongoing dry, itchy scalp. This is one of many long term side effects I had after taking accutane for only 3 months. I went to a different dermatologist than my usual. What surprised me was when I asked them if they prescribed accutane, and they said yes, multiple times in a day even. I asked if they ever heard of anyone ever complaining about these long term side effects and they said no. She said it's very rare, and that I should keep going to the doctor to see if they can find what's wrong with me but that it's probably not the accutane. I said all these symptoms didn't start until after the drug.
My my point is, which we all already know, they're still prescribing this poison like there's no big deal. They have no idea what's wrong with you when things go wrong and they still never blame the drug, but somehow make it as if you're almost faking it ( I fucking wish I was!). If I had known of half of the side effects I would have to live with, I would never have taken this medication. But worst of all, they're still prescribing this shit 30 years later meanwhile we are all here trying to undo the life long damage.
Its a damn shame.
Just got some of my hormone tests back. Doc is concerned and wants to do more tests. 2nd test in a row low T and FSH.
Sex Hormone Binding | 24.0 nmol/L | 16.5 - 55.9 nmol/L (Range) |
Testosterone | 185 ng/dL | 348 - 1197 ng/dL |
LH | 3.7 mIU/mL | 1.7 - 8.6 mIU/mL |
Follicle Stimulating Hormone | 0.8 mIU/mL | 1.5 - 12.4 mIU/mL |
I'd start to feel pretty confident if we could get at least one more person testing positive on this test. Unless we start getting multiple negative results for people that have had long standing multi-symptom sides from Accutane (especially gastric motility, this could be IBS, bloating, constipation,reflux, feeling full early) this hasn't been disproven yet. Mayo clinic might be the only laboratory in the world atm to test for this antibody. They have only offered this test since 2005. Mayo does seem to offer international testing.[Edited link out]
Its this simple. One or two more people test positive on this, (and we have a combination of people that took accutane long ago and recently.) Then we would have a case. A big one. This is what you could start showing doctors all over the country or world.
I could be wrong, but we need just a few more of these test results just in case.
GANG | AChR Ganglionic Neuronal Ab, Serum |
This is the only antibody proven to cause dysautonomia.
This is what it can cause. It can come on slowly and worsen with time.
http://www.dysautonomiainternational.org/page.php?ID=124
Symptoms
Symptoms of AAG can include:
-severe orthostatic hypotension (very low blood pressure upon standing)
-fainting
-constipation and GI dysmotility
-urinary retention (neurogenic bladder)
-fixed and dilated pupils (Adie's pupils)
-dry mouth
-dry eyes
Also from looking into this further and I believe it mentions it in the video, it can also cause:
multiple system atrophies
muscle spasms, tics, twitches
Coronary Spasms (magnesium seems to counteract this)
heart palpitations
erectile dysfunction
possible cardiovascular dysautonomia
mental disturbance
Bronchia dysautonomia. This could restrict cough reflux, where you might start to build thick mucus.
and probably much more. Basically everything that is suppose to function automatically, doesn't anymore.
Here is a image depicting this.
1 hour ago, Taneraped said:Has any one tried the ion foot bath? I did one today and I have done them in the past but I was curious to see if you did multiple foot baths if this could heal the damage done from accutane.
They might provide relief yes but are hardly a cure!!
We need to stick to stating what might provide relief vs repairing damage - they are two completely different things at this stage.
Up till now you'd have to consider everything mentioned as only providing relief which is important as we look at root causes and finding what will help repair the damage, in our case this is extensive as Accutane has impacted all over the body!!
http://www.dysautonomiainternational.org/page.php?ID=124
If you check out the video on this link (from one of just a few expert neurologist on this subject, another residing at mayo clinic in rochester (that's who I contacted) at about the 50.30 mark they talk about impaired mental function. Mainly executive decision making. They also talk about finding other acetylcholine antibodies. They are talking about changing blood pressure affecting and taking a toll on the brain( This is lowered blood pressure upon rising, This can be made worse by eating or drinking alot where more blood pools in the gut). Person's improve with various types of immune therapy. This includes IVIG, plasma exchange, Rituxan and corticosteroids.
Another takeaway thats a possibility,
antibody mediatedencephalopathy. Meaning altered brain function or structure.
immunotherapy improves both autonomic and cognitive function.
On 6/25/2017 at 2:58 AM, mariovitali said:Choline and acetylcholine are related to some of these Syndromes. I would like to point your attention to the fact that MERTK, GAS6 and TAM Signalling are related to many autoimmune diseases. Just a thought
The AChR Ganglionic Neuronal Ab number responds to therapy, meaning it decreases.
So if this was to respond to vitamin k2 that would sure be something.
But Related meaning is k2 the agonist or antagonist for these diseases. does k2 suppress tyrosine kinase for example?
Speaking of tests. have you had any tests that have been significant?
Have you had a fibroscan?
you've mentioned copper, what are you looking at here?
Have you noticed improvement in any testing since feeling better?
On 7/6/2017 at 8:20 AM, guitarman01 said:I'd start to feel pretty confident if we could get at least one more person testing positive on this test. Unless we start getting multiple negative results for people that have had long standing multi-symptom sides from Accutane (especially gastric motility, this could be IBS, bloating, constipation,reflux, feeling full early) this hasn't been disproven yet. Mayo clinic might be the only laboratory in the world atm to test for this antibody. They have only offered this test since 2005. Mayo does seem to offer international testing.[Edited link out]
Its this simple. One or two more people test positive on this, (and we have a combination of people that took accutane long ago and recently.) Then we would have a case. A big one. This is what you could start showing doctors all over the country or world.
I could be wrong, but we need just a few more of these test results just in case.
GANG AChR Ganglionic Neuronal Ab, Serum This is the only antibody proven to cause dysautonomia.
This is what it can cause. It can come on slowly and worsen with time.
http://www.dysautonomiainternational.org/page.php?ID=124
Symptoms
Symptoms of AAG can include:
-severe orthostatic hypotension (very low blood pressure upon standing)
-fainting
-constipation and GI dysmotility
-urinary retention (neurogenic bladder)
-fixed and dilated pupils (Adie's pupils)
-dry mouth
-dry eyesAlso from looking into this further and I believe it mentions it in the video, it can also cause:
multiple system atrophies
muscle spasms, tics, twitches
Coronary Spasms (magnesium seems to counteract this)
heart palpitations
erectile dysfunction
possible cardiovascular dysautonomia
mental disturbance
Bronchia dysautonomia. This could restrict cough reflux, where you might start to build thick mucus.
and probably much more. Basically everything that is suppose to function automatically, doesn't anymore.
Here is a image depicting this.
Excellent science here!!
In one sentence, what is the test called??
I cant find it amongst all the info,
I'd like to get this one done.
Hello.
Sorry for interrupting in the middle of conversation.
I've been reading the posts from 2014-2015 as well as more recent this thread for a couple of days and wanted to ask whether advice back from these years long-time users of this thread find useful.
Is taking vitamin A, taurine, B3 as suggested proven to be effective at taking this substance out of the body/liver?
I was also thinking about vitamin E, NAC, sulforaphane but they don't get mentioned too much over here.
I finished taking isotreonine more than 1.5 years ago, been taking it 6 months.
What I experience at this time is severe photophobia, dry eyes, problems with digestion (not as severe as others, I can tolerate most of foods- usually orange stools, less than usual), headache that's felt when moving head fast in different directions, high heartrate, anxiety, mild anhedonia.
The thing I was thinking about most at the moment was about the potential detox of the liver from the accutane that is said to still reside in the body.
Thanks in advance.