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16 hours ago, Ruvik said:after zink, iron, copper...
this is month is the turnof gut and probiotics
next bullshit? stay tuned
my question, how many time you assumed accutane?
i think for me there is no solution and no recover possibility, i m stay on the drugs 18 monhts, 6 x 3 in 2005, 2008, 2012
i have all sides write in this topic, i think roche read this topic, if one dayI lived two lives , before age 20 and after age 20 , when I will be totally depressed I would like an attempt to roche home , I live in Switzerland . I would take them to hell!
Maybe an experiment to determine how much Accutane it takes to reach a sub-lethal, but debilitating, dose is a more fitting punishment than death for them.
I'm concerned our problems could be flat out liver problems, even if test come back with normal enzymes. And no I'm not saying mass storage of vitamin a either. Every thing could fit into some kind of liver disorder that may not be detected until it's late stage. I just read a study about lower collegen and hyaluronic concentrations due to liver disease. Altered mental status, drugs, supplements that hang around in the intestines for too long. Muscle loss, Ed, body hair loss. Nausea to the point of almost coma like. Pale skin . altered hormones, Osteoporosis. We are deficent in nothing yet still sick.
13 hours ago, marlin15 said:15 hours ago, Gladiatoro said:And btw don't f"&$" with your skin in any shape or formour skin cell receptors are royalty f"&$)ed up, after years of experience trust me on this one.
what do you mean by this
Well a few years ago I tried to get rid of mild acne on my chest anyways I was rubbing witch hazel on there daily after doing this for two weeks or so I started getting heart papulations and dizziness so I stopped rubbing and the symptoms went away after a few days.
Hello I'm new here, can anyone advise me on where to find the subform designated to nutrition in treating/repairing long term roccutane damage or the most useful threads? this one seems fairly active but im sure theres more and this website is somewhat disorganized for newcomers.
thanks in advance for anyone who can point in the right direction
thegteam
On 4/4/2016 at 0:03 PM, Gladiatoro said:Some days I can taste the poison in the back of my mouth a bitter taste it's strange but true , a type of re-activation I guess if I eat too much oily food the day before.
@Gladiatoro You can taste the accutane? How do you know the taste of it? Did you open up the capsules and actually taste it before? If so, and what you're saying is true, then that's a major discovery. That would indicate it's in our livers being expelled with the bile (which has long been my theory - and why liver flushing is highly effective)
On 4/4/2016 at 6:45 PM, hatetane said:I did watch the entire video. Brilliant but still a lot to take in and address. Did you type up that summary yourself? That is seriously impressive.
Are you going to implement any of this - any ideas on keeping it simple and moving forward slowly?
@hatetaneYup, typed it myself. I figured it'd help a lot of people. Currently, I'm only going to be doing chlorine dioxide (MMS) for a few weeks to see what happens. If that can't cure me, I'm going to be trying liposomal artemisinin with a few other things like colloidal silver, Chaga, transfer point beta glucan, etc..
I believe one of the problems we all suffer with is chronic infection of some kind due to depressed immunity i.e. Lyme, protozoa, viruses, etc.. I'm currently comparing major protocols together to see the golden nuggets they all have in common: detox protocols of klinghardt and christopher shade, parasite protocols of klinghardt, hulda clark, shade, Andreas Kalcker and Lyme protocols of klinghardt, Neil Nathan, Katina Makris, & Stephen Buhner. Note that Klinghardt is mentioned quite often. He has a vast knowledge. I highly recommend looking into his stuff. The video and summary I posted was from 2014. He's using other cool things nowadays like high dose liposomal melatonin. Everyone here should have an ultrasonic jewelry cleaner to make liposomal compounds. I wish I knew about that 3 years ago at the beginning of my journey.
When I start to get symptoms (good or bad) from treatment, I'll post here.
PS
One thing I started doing was taking Epsom salt baths. I can only tolerate 1/4 cup for about 10 minutes before I start feeling nauseous and extremely fatigued. Once, I took a 30 min bath with 2 cups and it almost killed me. I'd be curious about others' experiences. Anyone here also not able to take them? PM me and lemme know.
PPS
I've seen tiny parasite larvae come out of me when doing liver flushes and sometimes with coffee enemas. I believe parasites to be one major obstacle for me. One way you can figure out if you have them is if you notice you get emotional problems, anxiety, or an itchy bum near the full moon when they're most active.
--
@HaniaD You said you were getting a scan for your liver? If the stones aren't calcified, they won't show up. Most stones in the gallbladder originated in the liver and are not calcified. You could perhaps see dilated bile ducts though. Also, the back pain you feel on the right side is from your gallbladder being congested.
--
EDIT: Does anyone ever care to chat via Skype? If so, PM me
9 hours ago, Gladiatoro said:Sure how do you explain chronic dehydration if it wasn't stored in the liver
Very good point!!
I can also say for sure that after about 12 years post accutane my dehydration has gotten really bad - my hair has no natural oil left at all, just completely dry and now greying 
The only hope I have is to complete more liver flushes - not just settling at doing 4-5 of them but getting upwards of 10-12. That's what that guy on YouTube claimed he did to overcome accutane issues - perhaps that is what it takes!!?
Also, I need to work on my gut health - pointless doing liver flushes only if I have "leaky gut"
syndrome and all the crap that goes along with that.
On 1.04.2016 at 9:58 PM, tryingtohelp2014 said:Like ive said, my brain hasnt felt this good in years. the brain fog is gone, ive been going to the gym 2x a day for weeks. i attribute this to increased dopamine? im motivated again.
How about your joints? Has copper helped them, you feel less pain?
On 8/4/2016 at 7:20 PM, tanedout said:Get some decent quality gingko biloba and also ginseng capsules and take a couple each morning for a few months. I found that helped, even if only to a point, but the effect remained after stopping. If you want something guaranteed to work immediately get some Erase Pro.
Thank you, I need an alternative of erase pro , because in Switzerland I don't find this
Very much agree with the organisms living inside of us. Immunity cannot be overlooked. Western doctors suck at diagnosing infections as well. There are so many different kinds.
I doubt it, maybe if we find the mechanisms of action that prove it can directly or indirectly cause permanent cellular or glandular damage. that it makes people more susceptible to diseases and such...but who's gonna fund the research and speak out in their respective industry. Bremmer tried and was lambasted. but, we could definitely cost them millions of dollars with negative publicity in the media by protest or other. I see their stock going down for a few days. They are too big. About as big as an oil company. When something is that big economically, they have influences beyond imaginable. Of the highest caliber. Doctors...Scientists...Judges. A bit similar to that movie Concussion with will smith and the NFL.
I say we pursue action to have our medical costs covered for life. demand dedicated research on the issue. And if not, cost them millions in the stock market with negative publicity. Obviously we are stronger together than individually.
15 hours ago, MovingOnMusicGal said:Very much agree with the organisms living inside of us. Immunity cannot be overlooked. Western doctors suck at diagnosing infections as well. There are so many different kinds.
Western doctors SUCK at everything in reality they couldn't even cure a common cold they are however good at handing out synthetic poisons.
On 4/4/2016 at 6:03 PM, Gladiatoro said:Some days I can taste the poison in the back of my mouth a bitter taste it's strange but true , a type of re-activation I guess if I eat too much oily food the day before.
Are you stressed or anxious? A strange bitter/metallic/artificial taste at the back of your mouth often comes with great anxiety. I get that when I'm super stressed/busy at work sometimes.
13 hours ago, macleod said:I doubt it, maybe if we find the mechanisms of action that prove it can directly or indirectly cause permanent cellular or glandular damage. that it makes people more susceptible to diseases and such...but who's gonna fund the research and speak out in their respective industry. Bremmer tried and was lambasted. but, we could definitely cost them millions of dollars with negative publicity in the media by protest or other. I see their stock going down for a few days. They are too big. About as big as an oil company. When something is that big economically, they have influences beyond imaginable. Of the highest caliber. Doctors...Scientists...Judges. A bit similar to that movie Concussion with will smith and the NFL.
I say we pursue action to have our medical costs covered for life. demand dedicated research on the issue. And if not, cost them millions in the stock market with negative publicity. Obviously we are stronger together than individually.
Sometimes I think about a kickstarter/crowd funding for a research for accutane victims and /or a proper lawsuit. Not sure though...
Interesting article here which quotes studies linking prebiotics to BDNF (Brain Derived Neurotrophic Factor). Low BDNF is likely to be a factor in brain fog. Noopept increases BDNF and taking it increases mental awareness, and at least one person on this thread has said it pretty much clears their brain fog (but only for a period of about 8 hours, then you need to keep taking more noopept, so not really a solution), however...
- Research has shown that the consumption of probiotics, or live bacteria, can havebeneficial effectson functions ranging from the immune system tothe brain and behavior5, 6.
- Gut bacteriaand probiotics have a profound effect on behavior and neurochemistry. Germ-free mice, for instance, have been shown to exhibitlower levels of anxietyand higher locomotion than mice with a normal gut microbial population7-9.
- The new study found that prebiotic treatment alters the levels ofbrain-derived neurotrophic factor(BDNF), which is important for neuronal growth and survival; N-methyl-D-aspartate (NMDA) receptor subunits; and amino acids associated with signaling by the neurotransmitter glutamate, an excitatory neurotransmitter4, 12,13
.
https://spectrumnews.org/opinion/viewpoint/guest-blog-the-case-for-using-prebiotics/
GOS and FOS (referred to in the above article) appear to be often found in baby-formula probiotics! Maybe thinking about adding some into my current gut health protocol which is basically focused on trying to re-estabish my lack of [as shown by gastrointestinal testing] specific 'good bacteria' strains. Currently I'm eating home made sauerkraut, drinking kefir milk daily and talking 'green banana flour' which is a 'resistant starch' - pre-biotic (to help the colonies get established).
Short video on resistant starch here (have posted before)
[Edited link out]
5 hours ago, Gladiatoro said:No not stressed just pissed off , I can't believe I ever trusted allopathic medicine. It seems ever year something new comes out how isotretinoin f@))s over the body.
Yea, the system is so backwards. Even a product like Diet soda, they just recently found out the artificial sweetener in it (sucralose maybe?) causes actual cancer if you drink copious amounts of it (as if we didn't have a feeling before, now its actually confirmed). Will that stop pepsi or coca cola? Nope. They could care less. When you have a product that millions are willing to buy, and you are economically more viable than individual human beings, the game is tilted to your favor. Diet soda will continue to sell just like Isotretinoin, the people who enjoy their lives, good for them, the ones who are affected, fuck em, who gives a shit.
22 hours ago, HaniaD said:Are you stressed or anxious? A strange bitter/metallic/artificial taste at the back of your mouth often comes with great anxiety. I get that when I'm super stressed/busy at work sometimes.
Sometimes I think about a kickstarter/crowd funding for a research for accutane victims and /or a proper lawsuit. Not sure though...
I'm very anxious and I have this metallic taste in my mouth, not saying they're related though. It usually comes at days when I can't drink much, but after I got the taste in my mouth, no amount of water will remove it. It's like some metallic kind of taste coming out of my gums. I can taste it with my tongue. I also start to grow some whitish stuff on back of my tongue which smell like death if I rub it with my fingers and smell them. I don't know how bad it would get if I didn't wash my tongue twice a day. Isn't this sign of parasites?
I also think some crowd funding for research could be one good possibility. I doubt we can learn isotretinoin's effecting mechanisms completly soon enough. It's not like I need much money in this shitty life anyway.
1 hour ago, Pido said:I'm very anxious and I have this metallic taste in my mouth, not saying they're related though. It usually comes at days when I can't drink much, but after I got the taste in my mouth, no amount of water will remove it. It's like some metallic kind of taste coming out of my gums. I can taste it with my tongue. I also start to grow some whitish stuff on back of my tongue which smell like death if I rub it with my fingers and smell them. I don't know how bad it would get if I didn't wash my tongue twice a day. Isn't this sign of parasites?
Yeah that could be a symptom of parasites. You should try and completely remove sugar from your diet for a period (as in removing not just processed sugar, but fructose, so no fruit as well) and see if the symptoms change.
2 hours ago, Pido said:I can taste it with my tongue. I also start to grow some whitish stuff on back of my tongue which smell like death if I rub it with my fingers and smell them. I don't know how bad it would get if I didn't wash my tongue twice a day. Isn't this sign of parasites?
http://lifespa.com/the-science-of-tongue-scraping-with-copper/
add it to the list of symptoms
just got retested and added a Vitamin D test... the vitamin D test just came back super low.
I've been following this thread for years. Time to pay it forward.
I was an extreme accutane case (story at the end of this, but you've heard it before). After my bad reaction, I actually met with the inventor of accutane in 2010. He's a dermatologist who lives near my hometown, in Dublin, Ohio.
I went in for a routine dermatology appointment as a "new patient" and surprised him. I was terse. I got under his skin enough that he explained that he hadtried to publicize information about accutane after he sold it to La Roche. They sued him over the articles of research he was beginning to put out in the newspaper about how accutane works. He kept silent on the details, but pointed me toa hospital where I met a neuroimmunoendocrinologist who agreed to take me on. I've worked with this doctor for 4 years, and I feel 95% better.
Maybe your body is not the same as my body. Maybe accutane affected us all in different ways. Here's how it affected me:
1. Severe IBS. Got an endoscopy to rule out IBD, Crohn's, and Ulcerative Colitis.
2..Adrenal Failure. I took salivary-cortisol testsand was diagnosed with adrenal insufficiency (addison's disease).
3. Blood tests. I was diagnosed with reactive hypoglycemia and extremely high triglycerides.
4. More tests drew a connection to yeast overgrowth, low Vitamin D, land ow testosterone.
5. PTSD. I was diagnosed by a counselor not because of any traumatic event, but because of my symptoms.
6. Extreme fatigue. I got my Kreb's cycle made and learned that my ATP production (protein synthesis) was very low.
7. Erectile dysfunction. Low testosterone.
Here's what I did about it:
1. Prescriptions.I took cortif for about three years as a replacement for my extreme case of adrenal insufficiency. Ialso took a Nystatin (anti fungal for yeast), and low-dose naltraxone for about 1 year.
2. Diet change.I've eaten a strict diet similar to the anti-candida diet for about 5 years now. I don't eat fruit (or sugar) except for avocado, tomato, and dark chocolate above 70%. I've worked in brown rice, corn chips (before bed for low , and potato chips to avoid ketosis.
3. Supplements. I weaned off all prescriptions above andadded in Taurine (blood sugar Source Natural Calm Thoughts (anxiety/energy from adrenal issues), Magnesium, Zinc, and Vitamin D together, and creatine (orotine) before workouts (3x weekly, no long distance cardio).
4. Vitamin C. For two weeks, I maxed out my system with vitamin C. I figured out my maximum tolerance and maintained it. This drastically improved my energy.
5. Red wine. I drink 1-2 glasses of red wine (boxed) every night. This has drastically reduced my inflammation.
6. Sexual health. I stopped all sex for an entire month. I put up filters on my internet using Open DNS. About 3 times each year I stop all sex for two weeks. These short periods of rest and life change of media control have drastically improved my low-t issues.
7. Sleep. I go to bed at 9p when I need to, sometimes sleeping 10-12 hours on weekends.
8. Biofeedback, accupuncture, and meditation. All of these have been important for daily stress (inflammation) reduction.
Story:
I took accutane for two weeks. After my last dose, I fell asleep for about 3 days and woke up weird. I remember getting really bad headaches. I also had terrible constipation. I couldn't use the bathroom for about 2 months and ended up in the hospital several times. The stomach is connected to your mood, your brain, your biochemistry. I ended up with terrible anxiety, heart palpitations, hyper vigilance, depression, insomnia, and suicidal ideations. My blood sugar was all over the place, my tryglycerides were through the roof, and I had panic attacks daily.Former athlete, musician, honors student in high school turned couch-ridden, college drop out. Sound familiar?
When I was on the couch for 9 months, I swore I would pursue my dreams if I ever got healthy again.Today, I'm there. I've graduated college and gone on a different path and I have the energy and mental capability to succeed again. I'm determined to make my story a happy ending.
10 hours ago, tryingtohelp2014 said:http://lifespa.com/the-science-of-tongue-scraping-with-copper/add it to the list of symptoms
just got retested and added a Vitamin D test... the vitamin D test just came back super low.
Doesn't surprise me your deficient in Vit D.... Accutane Victims are! I posted way back on this thread the relationship between Vitamin A and Vitamin D. If your going to supplement make sure it's in liquid form 🙂
8 hours ago, Mr Ketogenic said:I've been following this thread for years. Time to pay it forward.
I was an extreme accutane case (story at the end of this, but you've heard it before). After my bad reaction, I actually met with the inventor of accutane in 2010. He's a dermatologist who lives near my hometown, in Dublin, Ohio.
I went in for a routine dermatology appointment as a "new patient" and surprised him. I was terse. I got under his skin enough that he explained that he hadtried to publicize information about accutane after he sold it to La Roche. They sued him over the articles of research he was beginning to put out in the newspaper about how accutane works. He kept silent on the details, but pointed me toa hospital where I met a neuroimmunoendocrinologist who agreed to take me on. I've worked with this doctor for 4 years, and I feel 95% better.
Maybe your body is not the same as my body. Maybe accutane affected us all in different ways. Here's how it affected me:
1. Severe IBS. Got an endoscopy to rule out IBD, Crohn's, and Ulcerative Colitis.
2..Adrenal Failure. I took salivary-cortisol testsand was diagnosed with adrenal insufficiency (addison's disease).
3. Blood tests. I was diagnosed with reactive hypoglycemia and extremely high triglycerides.
4. More tests drew a connection to yeast overgrowth, low Vitamin D, land ow testosterone.
5. PTSD. I was diagnosed by a counselor not because of any traumatic event, but because of my symptoms.
6. Extreme fatigue. I got my Kreb's cycle made and learned that my ATP production (protein synthesis) was very low.
7. Erectile dysfunction. Low testosterone.Here's what I did about it:
1. Prescriptions.I took cortif for about three years as a replacement for my extreme case of adrenal insufficiency. Ialso took a Nystatin (anti fungal for yeast), and low-dose naltraxone for about 1 year.
2. Diet change.I've eaten a strict diet similar to the anti-candida diet for about 5 years now. I don't eat fruit (or sugar) except for avocado, tomato, and dark chocolate above 70%. I've worked in brown rice, corn chips (before bed for low , and potato chips to avoid ketosis.
3. Supplements. I weaned off all prescriptions above andadded in Taurine (blood sugar Source Natural Calm Thoughts (anxiety/energy from adrenal issues), Magnesium, Zinc, and Vitamin D together, and creatine (orotine) before workouts (3x weekly, no long distance cardio).
4. Vitamin C. For two weeks, I maxed out my system with vitamin C. I figured out my maximum tolerance and maintained it. This drastically improved my energy.
5. Red wine. I drink 1-2 glasses of red wine (boxed) every night. This has drastically reduced my inflammation.
6. Sexual health. I stopped all sex for an entire month. I put up filters on my internet using Open DNS. About 3 times each year I stop all sex for two weeks. These short periods of rest and life change of media control have drastically improved my low-t issues.
7. Sleep. I go to bed at 9p when I need to, sometimes sleeping 10-12 hours on weekends.
8. Biofeedback, accupuncture, and meditation. All of these have been important for daily stress (inflammation) reduction.aStory:
I took accutane for two weeks. After my last dose, I fell asleep for about 3 days and woke up weird. I remember getting really bad headaches. I also had terrible constipation. I couldn't use the bathroom for about 2 months and ended up in the hospital several times. The stomach is connected to your mood, your brain, your biochemistry. I ended up with terrible anxiety, heart palpitations, hyper vigilance, depression, insomnia, and suicidal ideations. My blood sugar was all over the place, my tryglycerides were through the roof, and I had panic attacks daily.Former athlete, musician, honors student in high school turned couch-ridden, college drop out. Sound familiar?
When I was on the couch for 9 months, I swore I would pursue my dreams if I ever got healthy again.Today, I'm there. I've graduated college and gone on a different path and I have the energy and mental capability to succeed eagain. I'm determined to make my story a happy ending.