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@Chico: I have no problem with optimism, as long as it's not the main focus of this forum. Facts and answers and help should be the main focus, with optimism sprinkled in, not the other way around.
if you find a way of testing the blood for accutane (which there must be /some/ way) I hope you'll share your results with us. Also, please do keep us posted on your fasting/detoxing.
@Maynerd, pitching a resort in Mexico that costs $45,000 is probably not going to land you many partners. However, if you do decide to do it and it ends up helping you, please come back to the forum and let us know.
I also believe that accutane is still stored in my body.
A couple days ago I did an experiment. I tried to eat as many spicy foods as I could. I also drank cinnamon/green tea (not sure if that has a connection). Throughout that day I was fine but the next day I got a familiar feeling.
I remember while I was on accutane I used to get ...hot flashes(?)
Out of nowhere I would just start burning up! My ears and face would get red and I felt like I had a fever.
Back to the experiment. The day after my "spicy food day" I got one. It was so strange/hot. It took me a while to remember that I would get those while on accutane.
I think that the spicy foods sent the accutane back into circulation and it took my body a little while to react.
So if it is stored in the fat and we circulate it, does that mean it will have the same effect on the body as if we were taking it?
Also, if its stored in the fat and we do our best not to circulate it, why do we still have some toxic effects?
Joe, I can't believe that is a healthy diet. You must have more variety than that. Where are your veggies and fruits?
4 questions relating to our post accutane bodies
If I'm experience ibd/s, I obviously am not getting all the nutrients and protein foods and vitamins provide, correct? So I either would have to eat more or consider a supplement that assists in the absorption or something?
Does anyone see an issue with trying to live a bodybuilder (natural) lifestyle after accutane? This would consist of a HIGH protein and carb diet and calorie, but of course I will be eating a ton of veggies and fruits. Also, you mentioned people considering steroids, has something happened to our test levels from accutane?
...Can we ever party...? I don't mean can we have a beer maybe followed by another one an hour later, I mean can we go party frat style, or is this just for sure going to ruin post accutane bodies? I don't have plans on becoming an alcoholic, but has taking accutane basically made it so I can't ever rage again even though I only have a year of college behind me? We were told not to drink on accutane... so can we not drink after either...?
Also, marijuana. I'm a medical patient and I smoke a lot. Any ideas on whether this changes things now that I went through accutane?
Hi,
As a post accutane sufferer I just wanted to share some of my symptoms and some of the things I've found improve them.
Digestion:
Digestions was absolutely horrible, partially genetic but I'm convinced it was induced by the accutane since I never had any digestive issues before hand. Self diagnosed myself with IBS, both C and D. I honestly went 3 years without producing a properly formed stool.
The absolute best thing that I've done for my digestion is a probiotic supplement. None of this wimpy 3-8 billion per capsule nonsense, I didn't experience any benefit from taking the "recommended dose". Instead, I now take roughly 90 billion a day. I use Advanced Naturals aka Renew Life Critical Care 80 billion at night and same brand BoulardiiMAX in the morning. Honestly this is the best thing that I have yet to do for myself.
I'm not sure if I suffer from some form of chronic SIBO but taking probiotics has allowed me again to make a well formed stool.
HINT: the probiotics I take are very expensive if you buy them with the Renew Life title. However, if you know I some form of a register doctor, nutritionist, naturopath, I don't think they're too picky, they can purchase the exact same thing with the Advanced Naturals title for practically 1/2 the price as long as they tell the company that they're trying to resell the product for full price. You may even be able to find the Advanced Naturals for a cheaper price than Renew Life.
The second best thing I've discovered are Protomorphogen (PMG), produced by StandardProcess. Basically, the concept is that the Protomorphogen in a sense reteach your cells how to function properly. It sounds kind of crazy, but there actually is a bit of science behind it if you google it. Nevertheless, I can honestly attest that the Dermatrophin I take has seriously helped me. I've been experimenting with other PMGs with perhaps less noticeable if any improvement but Dermatrophin is something I can definitely say has helped. Dermatrophin reteaches soft tissue, gut, skin etc. how to behave, it has reduced inflammation, acne and IBS for me personally.
Again, you can purchase StandardProcess products on Amazon or in store, but you can also ask a doctorly friend to order them for you at a serious discount.
Finally, coming in at a very close third is another StandardProcess product entitled Cholacol. As we all know Accutane can seriously screw up the production and circulation of bile. Cholacol is a bile salt and helps stimulate the production of bile. In one of the posts above I read someone so seriously effected by fat that they could not even take the supplements they wanted because the capsules were made of vegetable oil. I was nearly this sensitive to fat when I discovered Cholacol. Basically, I theorize that Accutane makes us sensitive to fat so we avoid fat because we can't digest it, but we can't digest it because we don't have enough bile but in order to get more bile we need to consume fat because bile is produced from fat. Cholacol is sort of a jump start in my opinion to help you be able to consume fat. Don't get me wrong, this is no miracle pill but I can once again eat some fat, even the occasional side of french fries or chips without my body freaking out, so long as I take the Cholacol. Again, Cholacol is just a bile salt so if you don't have access to the StandardProcess brand look for other version of bile salts or even ox bile, which is actual bile. Unfortunately, StandardProcess is the only brand I know that produces PMGs.
As its late and my laptops dying this is all have time to post now. This is no cure by any means but these are supplements that have in fact helped me. I wish the best for all of us. IndigoRush I truly enjoy watching your video's please don't stop making them.
Best of luck
Switch
P.S. - On top of all the supplements I take, not all of them are listed above, I avoid gluten, dairy, large amounts of fat and fiber. I still suffer from acne, although when I stick to my supplemental regime it is for the most part under control as well as my digestive issues. Now I just need to find the some help for my accutane induced poor ever altering vision.
Hi,
As a post accutane sufferer I just wanted to share some of my symptoms and some of the things I've found improve them.
Digestion:
Digestions was absolutely horrible, partially genetic but I'm convinced it was induced by the accutane since I never had any digestive issues before hand. Self diagnosed myself with IBS, both C and D. I honestly went 3 years without producing a properly formed stool.
The absolute best thing that I've done for my digestion is a probiotic supplement. None of this wimpy 3-8 billion per capsule nonsense, I didn't experience any benefit from taking the "recommended dose". Instead, I now take roughly 90 billion a day. I use Advanced Naturals aka Renew Life Critical Care 80 billion at night and same brand BoulardiiMAX in the morning. Honestly this is the best thing that I have yet to do for myself.
I'm not sure if I suffer from some form of chronic SIBO but taking probiotics has allowed me again to make a well formed stool.
HINT: the probiotics I take are very expensive if you buy them with the Renew Life title. However, if you know I some form of a register doctor, nutritionist, naturopath, I don't think they're too picky, they can purchase the exact same thing with the Advanced Naturals title for practically 1/2 the price as long as they tell the company that they're trying to resell the product for full price. You may even be able to find the Advanced Naturals for a cheaper price than Renew Life.
The second best thing I've discovered are Protomorphogen (PMG), produced by StandardProcess. Basically, the concept is that the Protomorphogen in a sense reteach your cells how to function properly. It sounds kind of crazy, but there actually is a bit of science behind it if you google it. Nevertheless, I can honestly attest that the Dermatrophin I take has seriously helped me. I've been experimenting with other PMGs with perhaps less noticeable if any improvement but Dermatrophin is something I can definitely say has helped. Dermatrophin reteaches soft tissue, gut, skin etc. how to behave, it has reduced inflammation, acne and IBS for me personally.
Again, you can purchase StandardProcess products on Amazon or in store, but you can also ask a doctorly friend to order them for you at a serious discount.
Finally, coming in at a very close third is another StandardProcess product entitled Cholacol. As we all know Accutane can seriously screw up the production and circulation of bile. Cholacol is a bile salt and helps stimulate the production of bile. In one of the posts above I read someone so seriously effected by fat that they could not even take the supplements they wanted because the capsules were made of vegetable oil. I was nearly this sensitive to fat when I discovered Cholacol. Basically, I theorize that Accutane makes us sensitive to fat so we avoid fat because we can't digest it, but we can't digest it because we don't have enough bile but in order to get more bile we need to consume fat because bile is produced from fat. Cholacol is sort of a jump start in my opinion to help you be able to consume fat. Don't get me wrong, this is no miracle pill but I can once again eat some fat, even the occasional side of french fries or chips without my body freaking out, so long as I take the Cholacol. Again, Cholacol is just a bile salt so if you don't have access to the StandardProcess brand look for other version of bile salts or even ox bile, which is actual bile. Unfortunately, StandardProcess is the only brand I know that produces PMGs.
As its late and my laptops dying this is all have time to post now. This is no cure by any means but these are supplements that have in fact helped me. I wish the best for all of us. IndigoRush I truly enjoy watching your video's please don't stop making them.
Best of luck
Switch
P.S. - On top of all the supplements I take, not all of them are listed above, I avoid gluten, dairy, large amounts of fat and fiber. I still suffer from acne, although when I stick to my supplemental regime it is for the most part under control as well as my digestive issues. Now I just need to find the some help for my accutane induced poor ever altering vision.
Thank you SO much for sharing this information!!!
THESE are the posts I love to see on this forum. I will look into these supplements, and if you run across anything else, please feel free to share it with us!
Joe, I can't believe that is a healthy diet. You must have more variety than that. Where are your veggies and fruits?
4 questions relating to our post accutane bodies
If I'm experience ibd/s, I obviously am not getting all the nutrients and protein foods and vitamins provide, correct? So I either would have to eat more or consider a supplement that assists in the absorption or something?
Does anyone see an issue with trying to live a bodybuilder (natural) lifestyle after accutane? This would consist of a HIGH protein and carb diet and calorie, but of course I will be eating a ton of veggies and fruits. Also, you mentioned people considering steroids, has something happened to our test levels from accutane?
...Can we ever party...? I don't mean can we have a beer maybe followed by another one an hour later, I mean can we go party frat style, or is this just for sure going to ruin post accutane bodies? I don't have plans on becoming an alcoholic, but has taking accutane basically made it so I can't ever rage again even though I only have a year of college behind me? We were told not to drink on accutane... so can we not drink after either...?
Also, marijuana. I'm a medical patient and I smoke a lot. Any ideas on whether this changes things now that I went through accutane?
I can't answer most of your questions, because I don't know your exact symptom set and I probably don't share it.
But yes, the diet is complete and offers everything necessary for thriving life. Veggies and fruit are unnecessary. The only problem might be minerals, which scallops can provide. There are indigenous groups of humans living on nothing but meat. If you only eat meat, you'll need lots of fat. Add carbs and you can cut to near zero fat without problem.
IBS does not necessarily indicate nutritional deficiency. Typically chronic fatigue is the leading indicator of nutritional deficiency. IBS indicates you are eating something you shouldn't, or that you need to supplement in ways that target intestinal irritability.
I'd be very interested to know how marijuana impacts your symptoms, particularly IBS. I find smoking handrolled tobacco indispensable while coping with a symptom cycle.
Also, many thanks to switch for sharing. Your ideas make sense and I will try them.
This may be a bit outside the box but I found this [Removed]. They claim it is 10 times more effective than stem cell therapy and can help our own organs rebuild themselves by targeting our stem cells via specifically designed poly peptides. So even if the tane is still in us, giving ourselves practically brand new organs will allow our bodies to process it much more efficiently and there can't be anywhere near the same levels within us as when we originally took it... I talked to one of the owners the other day and he talked about targeting the stomach and liver but I need to figure out the scope of the therapy to see if it can target the thyroid, brain, etc... I was going to wait till I talked to him a few more times before posting but then I became facebook friends w them and saw that they are having a drawing to give 5 free therapy sessions away, so I figure if one of us wins that then that could be our test to see if it helps our specific problems as much as I theoretically think it would. [Removed]. The treatment involves staying at a resort in Mexico for 10 weeks while they infuse your blood with these poly peptides. The regular price is 45,000.
Also, the owner doc guy said that they have DNA testing kits that were developed by a company that Steve Job's Dr. contributes to and they can determine what ailments you are genetically predisposed to or already have. This can be done via a spit test through the mail.
I know this seems a little out there but I think it's worth looking into. The number to call them is on their website.
I was almost convinced of NCC's telomere theory until my personal experience as of late. I have been feeling like my system is being "re attacked" by the tane and it all started so quickly. Certain joints started feeling hollow and cracky (crepitus in neck). Also, some new ones such as IBS-like gut problems (30mgs glutamine per day helps gut gurgling a little). Dry eyes/floaters. Due to the sudden onset of these things I feel like it is either in the gut or in the fat cells. I went from losing a bunch of weight to gaining some of it back (makes me think gut) and I started working/steam rooming and taking 8 tocopherol vit E (makes me think fat cells) when these symptoms flared up again.
I have had some minor success with the top of my mouth being dry and the two things I changed when i noticed this were I started taking coq10 by breaking the capsule open in my mouth before swallowing and I also started taking cognisure but it was probably the coq10 if anything.
Hey guys, I wanted to share something I recently learned I was wrong about.
I previously could never figure out whether a symptom cycle lasts 4-5 days or 7-8 days. It turns out that it depends mainly not on the severity of the infraction, but on the amount of food I eat while sick.
If I am taking care of myself, I don't have the energy to cook until late evening, if at all. So I just don't eat. That lengthens the digestive cycle time, and therefore extends the duration of the symptoms. Result: I'm sick for 7-8 days.
However, if I'm being well taken care of, then I'll eat 3 big meals per day at least, maybe 4. That cuts the digestive cycle and symptom duration to 4-5 days, and also greatly reduces the severity of the fatigue.
I'd previously emphasized the importance of a taoist approach - do nothing until you feel like doing something, conserve energy and willpower, avoid stress to prevent self-destructive behavior. Now I've adopted the reverse approach - I'm pushing myself to maintain a normal Circadian, eat a lot, and do a fair bit of walking no matter how bad I feel. These practices cut recovery time dramatically. That's worthwhile even if it increases stress and self-destructive behavior somewhat.
On 2/13/2012 at 2:13 AM, IndigoRush said:[Edited link out]
This might be the wrong place to post this but at the same time it might be the best. This is by no means a personal attack but having watched all your videos I felt some points needed to be made. Whilst I found it quite amusing when you referred to people who drink milk as 'idiots' and anyone who considered accutane 'a knob' it stopped being funny when I realised you were being entirely serious.
Firstly your whole stance on pharmaceutical companies is extremely hyperbolised, accutane is sold the world over, not every government can be in the pocket of these companies. Furthermore youre from the UK (as am I), Im currently seeing a dermatologist on the NHS this costs the government money!! Theyre very reluctant to prescribe the drug as it costs them a lot to do so; if accutane was as you make out they wouldnt shell out loads of money prescribing the stuff.
You also take the doctor and book you reference so often in your videos out of context. As I understand a link between accutane and temporary acute depression was found, the book centres not around this discovery but the drama surrounding pharmaceutical companies fight to repress this yes it is awful but it is not as you present so often proof that accutane causes major depression.
Pointing towards Amanda Bynes as an example of dangers of accutane is also laughable. Upon research I found she retracted the statement you mentioned, but even so using a child star having (by child-star standards) a negligble breakdown as a sign of accutane-induced mental disorder is just scaremongering. Disney stars (as well as any young celebrities) are prone to breakdowns this does not suggest accutane caused her (or Michael Jackson who was cocktails of meds) a major depression when off the drugs.
I understand youre interested in health but reading books on pop science does not provide you with sufficient knowledge to continuously deride and insult western medicine as a whole which is based on investigation and fact. Whilst the drug may have had adverse effects for you and alot of people on this thread, calling for it to be banned (when its been effective for most of the 15 million people who have used it) has no basis. Im sure youre used to being called a hypochondriac etc but as a whole you do come across as someone who is misattributing any problem he may face to accutane.
Again this is not an attack but I feel scaremongering people away from a drug which is highly effective based on a somewhat pseudo-knowledge of science is not right. I agree more investigation needs to be conducted into how this drug works but using phrases out of context (eg its a chemo drug) and distorting the truth will stop a lot of people getting treatment that would help them as opposed to save their life
Just some thoughts on those videos
On 2/13/2012 at 11:11 AM, TheKnowing said:On 2/13/2012 at 2:13 AM, IndigoRush said:[Edited link out]
This might be the wrong place to post this but at the same time it might be the best. This is by no means a personal attack but having watched all your videos I felt some points needed to be made. Whilst I found it quite amusing when you referred to people who drink milk as 'idiots' and anyone who considered accutane 'a knob' it stopped being funny when I realised you were being entirely serious.
Firstly your whole stance on pharmaceutical companies is extremely hyperbolised, accutane is sold the world over, not every government can be in the pocket of these companies. Furthermore youre from the UK (as am I), Im currently seeing a dermatologist on the NHS this costs the government money!! Theyre very reluctant to prescribe the drug as it costs them a lot to do so; if accutane was as you make out they wouldnt shell out loads of money prescribing the stuff.
You also take the doctor and book you reference so often in your videos out of context. As I understand a link between accutane and temporary acute depression was found, the book centres not around this discovery but the drama surrounding pharmaceutical companies fight to repress this yes it is awful but it is not as you present so often proof that accutane causes major depression.
Pointing towards Amanda Bynes as an example of dangers of accutane is also laughable. Upon research I found she retracted the statement you mentioned, but even so using a child star having (by child-star standards) a negligble breakdown as a sign of accutane-induced mental disorder is just scaremongering. Disney stars (as well as any young celebrities) are prone to breakdowns this does not suggest accutane caused her (or Michael Jackson who was cocktails of meds) a major depression when off the drugs.
I understand youre interested in health but reading books on pop science does not provide you with sufficient knowledge to continuously deride and insult western medicine as a whole which is based on investigation and fact. Whilst the drug may have had adverse effects for you and alot of people on this thread, calling for it to be banned (when its been effective for most of the 15 million people who have used it) has no basis. Im sure youre used to being called a hypochondriac etc but as a whole you do come across as someone who is misattributing any problem he may face to accutane.
Again this is not an attack but I feel scaremongering people away from a drug which is highly effective based on a somewhat pseudo-knowledge of science is not right. I agree more investigation needs to be conducted into how this drug works but using phrases out of context (eg its a chemo drug) and distorting the truth will stop a lot of people getting treatment that would help them as opposed to save their life
Just some thoughts on those videos
OK, buddy. Seriously? The only point I will actually agree with you on is the fact that some pseudo science is being supported in this thread. But once you understand the desperation of the people in this thread you really can't blame us.
Excuse me, Indigo, for fighting this battle for you; however, I cannot believe after reading what other people have posted here as well as what I personally have gone through because of this drug, that an ignorant would-be know-it-all would DARE come in here and tell ANYONE that Accutane is a "good" drug and that it can save lives. Are you kidding me? This drug kills people. This drug debilitates people. With your logic you may as well employ Russian roulette as well- it doesn't kill every time, go ahead, do it. Give me a break.
The fact is, this drug was discontinued in the States for a reason. There are also so many past and even currently pending lawsuits because of the incredible damage this drug has caused and the lives it has ruined.
And you really want to say this drug doesn't cause depression? On the drug's own pamphlet it clearly states it can cause suicidal tendencies and thoughts! That is not "acute" depression. It also changes brain functioning, which has been earlier cited in this very forum. I can't believe you'd have the gall to come into this room and tell us that the drug is not that bad. All we are doing here is trying to get better after what this drug has done to us. And I might be able to actually get on board with what you were saying if the drug cured a disease or helped people live longer. But all it does is get rid of your acne. And it actually shortens lifespan by the admittance of the very company that created it. Please, go tout your ignorance elsewhere, we have no need of it here.
With all of that said, this thread should remain a source of positivity and help and answers, not a forum for drama or back-and-forths and high school antics. Please, if you have nothing to contribute to the above ends of this thread, don't post at all.
/end soapbox speech.
Nowhere did I say it was a 'good' drug and the odds of suffering from long-term side effects are minimal so its nothing like playing russian roulette.
I'm not a would be know-it-all I just dispute some points made in those videos (insulting western medicne and using disney girls as scaremongering tools)
The drug was discontinued as the patent ran out and many generics are still availible.
In terms of depression I was refering solely to the study carried out in the book so often mentioned in the FireYurDoctor videos. It does cause mood change but suicide is again extremely rare, your mood is monitored on the drug and if you feel suicidal you should stop taking it immedeately - this is advised universally so should not be a problem.
I did not come here to upset anyone but time and time again I see scaremongering with people cliaming the drug will ruin your life etc. I know a LOAD of people who have taken it and couldn't reccomend it more, nooone I've encountered in real life has ever regretted taking it. I understand for the people in this thread this is a sensitive topic but those videos are innaccurate and shouldn't be used to scare people off using a drug that could help them. The side effects are clearly laid out before you're put on the drug and people should make informed decisions with the help of their qualified doctor not randoms on the internet.
I think TheKnowing was very respectful in what he said. He remained very neutral, and respectfully reminded people here that there is a bigger story than just our own experiences with Accutane. He also made a point that people needed to hear about the need to understand what you are talking about... a lot of you guys are talking about supplements and therapies that are sometimes complete marketing hype and bullshit... some of the processes you guys are talking about don't relate to "repairing your body from Accutane" at all.
I'm all for alternative therapies... but you still have to be VERY discerning about what are helpful therapies and what is medical pseudo-bullshit.
No need to be defensive towards TheKnowing... I thought he was very respectful.
I'd also like to remind you guys that I am healing myself from all the medical problems I've encountered since taking Accutane, and all I am doing is seeing an alternative therapist who works on the connection between your mind and body... like a counselor but more focused on your body and physical symptoms. I take probiotics occasionally, I take vitamin D, and I take zinc for my skin. I avoid dairy, I avoid wheat, I avoid yeast and sugar... nothing groundbreaking here. And most of the time I feel completely normal again. I don't think desperation and seeking for magic cures will ever work... you can't count on and wait for magic to happen. You need to stop expending so much energy on this topic and obsessing over how sick you think you are/ perceive yourself to be. You will not get better if you continue to think that way.
Nowhere did I say it was a 'good' drug and the odds of suffering from long-term side effects are minimal so its nothing like playing russian roulette.
I'm not a would be know-it-all I just dispute some points made in those videos (insulting western medicne and using disney girls as scaremongering tools)
The drug was discontinued as the patent ran out and many generics are still availible.
In terms of depression I was refering solely to the study carried out in the book so often mentioned in the FireYurDoctor videos. It does cause mood change but suicide is again extremely rare, your mood is monitored on the drug and if you feel suicidal you should stop taking it immedeately - this is advised universally so should not be a problem.
I did not come here to upset anyone but time and time again I see scaremongering with people cliaming the drug will ruin your life etc. I know a LOAD of people who have taken it and couldn't reccomend it more, nooone I've encountered in real life has ever regretted taking it. I understand for the people in this thread this is a sensitive topic but those videos are innaccurate and shouldn't be used to scare people off using a drug that could help them. The side effects are clearly laid out before you're put on the drug and people should make informed decisions with the help of their qualified doctor not randoms on the internet.
The point of this thread is to help others that have developed severe side effects as a result of the drug, the point of this thread is NOT to deter people from taking the drug. It's about people with these side effects coming together and giving advice and experience on possible ideas to cure these side effects, although invariably there will be an anti accutane stance because of the circumstances. I'm not going to waste time on arguing....because it'll just derail this thread from it's intended purpose. I'm sorry if I or others have offended you by talking negatively about accutane. I'm sure there are many other threads with a positive angle on the drug, i don't go around telling those people to avoid the drug regardless of what happened to me, nor should you go on a "repairing side effects from accutane" thread and tell people to stop writing anti-accutane things.
Nowhere did I say it was a 'good' drug and the odds of suffering from long-term side effects are minimal so its nothing like playing russian roulette.
I'm not a would be know-it-all I just dispute some points made in those videos (insulting western medicne and using disney girls as scaremongering tools)
The drug was discontinued as the patent ran out and many generics are still availible.
In terms of depression I was refering solely to the study carried out in the book so often mentioned in the FireYurDoctor videos. It does cause mood change but suicide is again extremely rare, your mood is monitored on the drug and if you feel suicidal you should stop taking it immedeately - this is advised universally so should not be a problem.
I did not come here to upset anyone but time and time again I see scaremongering with people cliaming the drug will ruin your life etc. I know a LOAD of people who have taken it and couldn't reccomend it more, nooone I've encountered in real life has ever regretted taking it. I understand for the people in this thread this is a sensitive topic but those videos are innaccurate and shouldn't be used to scare people off using a drug that could help them. The side effects are clearly laid out before you're put on the drug and people should make informed decisions with the help of their qualified doctor not randoms on the internet.
The point of this thread is to help others that have developed severe side effects as a result of the drug, the point of this thread is NOT to deter people from taking the drug. It's about people with these side effects coming together and giving advice and experience on possible ideas to cure these side effects, although invariably there will be an anti accutane stance because of the circumstances. I'm not going to waste time on arguing....because it'll just derail this thread from it's intended purpose. I'm sorry if I or others have offended you by talking negatively about accutane. I'm sure there are many other threads with a positive angle on the drug, i don't go around telling those people to avoid the drug regardless of what happened to me, nor should you go on a "repairing side effects from accutane" thread and tell people to stop writing anti-accutane things.
I wouldn't want to derail this thread either, the only reason I posted as I did was because I saw the youtube video posted here - having seen the others I felt they were misrepresenting the drug and thought that without a youtube account I would post my objections here. If indigo (or anyone else) want to discuss anything further I welcome any PMs but agree this isn't the best place for the back-and-forth involved.
Thanks to Andrew for understanding and backing the point I was trying to make and good luck to you all with your recoveries.
You know i've always thought there is a bile component in all this. Try as i might i've never been able to get my stools back to normal colour and i find it hard to eat nuts, olive oil, avocado's and other sources of monounsaturated fat. I still think the bile has something to do with the gi problems and the inability to remove these fat soluble toxins from the body, but after taking many liver tinctures and herbs i never got resolution to those problems. After which you think it cant possibly be right, but i'm sure the liver has something to do with the cause and effect.. of these long term problems.
Some people on here think i'm just a quack talking about how the accutane is still in our bodys lol.........i don't mind what people think, i welcome the different theory's from all sides. I did alot of research on anabolic steroids and their damage to the liver, it's not as random as it sounds. Anabolic steroids are fat soluble hormones, these fat soluble hormones are removed via the same liver pathway as accutane, in fact the liver binds synthetic steroids with glucuronic acid in the same way that it binds accutane. It's plausible to make the suggestion that the same down regulation of bile acid transport could happen, between both substances...understanding their both liver intensive drugs.
This could in part explain the inability to remove the accutane from the body and some of the digestive effects. The accutane would be stored in the fat cells which would explain the rationale behind the hypervitaminosis A side effects. It would also explain the reason why people react to retinol foods or foods high in beta carotene, it would explain the reaction to spicy foods, and the difficulty some people have absorbing fat in the diet.
Thats an explanation but it's not an answer, i don't know how to go about healing the liver, i've tried and failed.... the liver cant remove anything unless it's in the bloodstream, otherwise it's a waste of time and money. But pushing it back into the bloodstream has it's own problems if the liver is not capable of detoxifying it, so there in lies the problem.
Scraped the oysters and bought a zinc supp instead (probably for the best, the less retinol you consume the better), taking 30mg a day, Not expecting a resolution in any symptoms, although i'm hoping to build my bodies zinc levels for the retinol binding protein and the increase in stomach acid.
If your body doesn't have elevated Vitamin A levels anymore, then in what way do you think Accutane is still in the body? I don't think there is much evidence to support that, and I think it's a very negative belief system to think that Accutane is still in your body. If you believe it's still in your body and making you sick, then you will become/ continue being sick from believing that.
Accutane has knocked many of us for six... it really knocks some people off their feet because it's quite a powerful drug. The way it makes you feel can also lead you to live your life differently (skipping meals, skipping breakfast, not sleeping well, extra stress and anxiety, especially pertaining to health, digestion problems and body aches) and these patterns can continue long after you stop taking it.
These are not judgmental questions but some basic things that are very key:
1) Are you anxious? Do you fixate on your health?
2) How do you sleep? Are you getting enough sleep (around 7-8 hours)? Too much? Do you sleep on a regular schedule? Do you go to sleep with an overactive mind or do you fall asleep peacefully? Do you have a computer beside you or a tv on while you sleep, or headphones in?
3) Do you eat breakfast? (this is very important)
4) Do you snack between meals to keep your energy up?
5) Do you do some exercise? (jogging, walking, or swimming)
6) How do you perceive your body? What messages are you sending yourself?
7) How do you imagine energy flowing through your body? Do you perceive that others have more energy than you and there is an expectation that you should have more?
Those are just a few questions I'd ask anyone before they start to intervene with any type of supplementation or other medical approach.
If your body doesn't have elevated Vitamin A levels anymore, then in what way do you think Accutane is still in the body? I don't think there is much evidence to support that, and I think it's a very negative belief system to think that Accutane is still in your body. If you believe it's still in your body and making you sick, then you will become/ continue being sick from believing that.
I'm not interested in medicating symptoms for the rest of my life andrew, I wanna get to the bottom of this. I welcome your critisism though and this forum is a good place for rationale debate, I know your thinking we are too health obsessed and our actions are self limiting. I'm aware of the underlaying connotations of your message and your right in some sense, our fixation with this is not healthy. But to say "if you don't have elevated Vitamin A levels, you don't have accutane in the body" is pretty naive. Firstly a Vitamin A test will not show the presence of accutane because it's looking for the presence of Retinol. When your on the drug (Accutane) your Vitamin A levels will come back normal for this precise reason. 13cis retinoic acid is a different chemical to retinol.
Secondly my belief in this theory does not make me more ill, in fact it makes sense out of my side effects and also why i react to the foods i do. I don't know whether everyone with post accutane side effects has the drug in their body still.... it would be wrong of me to suggest that. But i'm willing to go out on a limb and say the people with a long list of problems like skin conditions, joint problems, dry lips (chellitis), dry eyes, sensitivity to sunlight, inability to gain weight..... those guys still have it in their bodies, the ones with the long list of hypervitaminosis A mimicking side effects.
Thats my personal belief, but you can think otherwise.
1. Anxious..no , Yes i do fixate on my health too much
2. I probably get either too much sleep or not enough, i mostly go to sleep with an active mind...i sleep peacefully and computer is beside me.
3. Yes i try to eat breakfast daily
4. Yes i do snack
5. I weight lift when i have the energy
6. i'm negative towards my appearance so the perception of my body is not a good one
7. i imagine my energy as blue light flowing slowly. Yes i percieve others have more energy, if i visualized their energy it would be red and flowing quickly.
Hope that answers your questions Andrew
If your body doesn't have elevated Vitamin A levels anymore, then in what way do you think Accutane is still in the body? I don't think there is much evidence to support that, and I think it's a very negative belief system to think that Accutane is still in your body. If you believe it's still in your body and making you sick, then you will become/ continue being sick from believing that.I'm not interested in medicating symptoms for the rest of my life andrew, I wanna get to the bottom of this. I welcome your critisism though and this forum is a good place for rationale debate, I know your thinking we are too health obsessed and our actions are self limiting. I'm aware of the underlaying connotations of your message and your right in some sense, our fixation with this is not healthy. But to say "if you don't have elevated Vitamin A levels, you don't have accutane in the body" is pretty naive. Firstly a Vitamin A test will not show the presence of accutane because it's looking for the presence of Retinol. When your on the drug (Accutane) your Vitamin A levels will come back normal for this precise reason. 13cis retinoic acid is a different chemical to retinol.
Secondly my belief in this theory does not make me more ill, in fact it makes sense out of my side effects and also why i react to the foods i do. I don't know whether everyone with post accutane side effects has the drug in their body still.... it would be wrong of me to suggest that. But i'm willing to go out on a limb and say the people with a long list of problems like skin conditions, joint problems, dry lips (chellitis), dry eyes, sensitivity to sunlight, inability to gain weight..... those guys still have it in their bodies, the ones with the long list of hypervitaminosis A mimicking side effects.
The doctor Indigo linked to us reported removing toxins from fat cells that had been there for 25 years. I don't think it's a stretch to believe that Accutane could still be in our bodies. What I am concerned about is just what you said, Chico- we have our explanation but we still need an answer. So far our leads are zinc and bile, hopefully we can do something with that.
Just thought I would update everyone regarding my sugar level issue. I tested postive for antibodies, GAD 65, low insulin in the blood and and low ceptitide. Yep folks I am type 1 diabetic (autoimmune) at the age of 35 can someone explain that please! Also this is not going to be good for my high arched feet or thoose lovely nerves.
I hope all of you are doing well, This body just keeps going it's like a machine.... I can't explain how someone can look soo healthy and be healthy and thier body has gone to shit in 4yrs....Well I do but, whatever......
Keep up the good work guys [Edited image out]
I'm sorry to hear that 
I seem to have a lot of reactive hypoglycemia since taking Accutane (not sure if it's the cause or not but that's when it started) and I finally identified it as such with my doctor this past fall. I'm eating strategically now so that I feel better. Luckily the doctor said that there are no signs to indicate I'm heading towards having diabetes though.
It's quite heritable is it not? Does anyone else in your family have it?
I'm sorry to hear that Oilgirl my mother is also type 1 diabetic, she got it at 26. I've heard good things about the paleo / primal blueprint diets in relation to diabetes. Your blood sugar levels are kept more stable by all accounts, but diabetics do need to eat a certain amount of carbs per day so their sugar levels don't get too low. I know if it was me i'd try a paleo or primal blueprint style approach and moniter my blood sugar levels daily, if they were too low i'd up my carb intake until the blood sugar was in normal range. The insulin plays a part in all this too, taking insulin will drop blood sugar levels.....i've heard of people that have lowered their insulin dose over time because they control their blood sugar levels with their diet, not suggesting they ever came off insulin but they did lower their required dose. Good luck Oilgirl i really wish you all of the luck in the world on this.
You know i've always thought there is a bile component in all this. Try as i might i've never been able to get my stools back to normal colour and i find it hard to eat nuts, olive oil, avocado's and other sources of monounsaturated fat. I still think the bile has something to do with the gi problems and the inability to remove these fat soluble toxins from the body, but after taking many liver tinctures and herbs i never got resolution to those problems. After which you think it cant possibly be right, but i'm sure the liver has something to do with the cause and effect.. of these long term problems.
Some people on here think i'm just a quack talking about how the accutane is still in our bodys lol.........i don't mind what people think, i welcome the different theory's from all sides. I did alot of research on anabolic steroids and their damage to the liver, it's not as random as it sounds. Anabolic steroids are fat soluble hormones, these fat soluble hormones are removed via the same liver pathway as accutane, in fact the liver binds synthetic steroids with glucuronic acid in the same way that it binds accutane. It's plausible to make the suggestion that the same down regulation of bile acid transport could happen, between both substances...understanding their both liver intensive drugs.
This could in part explain the inability to remove the accutane from the body and some of the digestive effects. The accutane would be stored in the fat cells which would explain the rationale behind the hypervitaminosis A side effects. It would also explain the reason why people react to retinol foods or foods high in beta carotene, it would explain the reaction to spicy foods, and the difficulty some people have absorbing fat in the diet.
Thats an explanation but it's not an answer, i don't know how to go about healing the liver, i've tried and failed.... the liver cant remove anything unless it's in the bloodstream, otherwise it's a waste of time and money. But pushing it back into the bloodstream has it's own problems if the liver is not capable of detoxifying it, so there in lies the problem.
Scraped the oysters and bought a zinc supp instead (probably for the best, the less retinol you consume the better), taking 30mg a day, Not expecting a resolution in any symptoms, although i'm hoping to build my bodies zinc levels for the retinol binding protein and the increase in stomach acid.
Have you tried TUDCA? I would highly recommend that. My stool is light and it changed the color and resulted in an improvement in health. I had to discontinue due to IBS sensitivity to the magnesium stearate in those pills. But I suspect a powerful answer lies there.
Anyway, I'm not doing any pills at the moment. I can be healthy without them, simply by following my steamed low fat meat and rice regimen. I need a period of stability to perfect and confirm the approach, and resolve the scallops issue once and for all, and also ensure a stable life footing in other areas. Can't afford to be sick from pill experimentation this month.