jmsil, thanks for posting. What is up with Roche (roaches).

 

Does anyone have a list of the CEOs and research scientists who have created and okayed these drugs over the last thirty years?

 

Who exactly is responsible for this?

 

Who specifically is responsible for suppressing the test results? The drug's makers aren't "Roche" - the drug's makers are specific people, just as it is specific people who are not revealing the side effects. Who are they?

 

The surface similarity of the side effects of accutane and tamiflu made me think they are contaminating some of their drugs with something.

 

It's more likely there is some kind of similar chemistry to some of their drugs, but that contamination idea was my first thought.

 

_______________

 

Indigo,

 

When I was younger for many years my white blood cell count was low, specifically neutrophils.

 

That no longer seems to be off in recent tests.

 

I suspect it's the body trying to adjust to the bomb that went off inside.

 

________________

 

Boris, thanks for posting. I'm always struck by how similar the symptoms are.

 

There is definitely a pattern.

 

As for the creator this is what he said- Dr. Bollag, the inventor: 'Accutane is so toxic -- so toxic -- not my word, their word -- it should never be given for anything other than severe cystic nodular acne. Accutane, originally submitted to treat cancer, it is then switched by the company and it comes on the market in 1982."

You can read up and find more hx on how it ended up on the market for acne. Might not make you mood good though!

On 1/17/2012 at 7:23 AM, Lukez said:

jmsil, thanks for posting. What is up with Roche (roaches).

Does anyone have a list of the CEOs and research scientists who have created and okayed these drugs over the last thirty years?

Who exactly is responsible for this?

Who specifically is responsible for suppressing the test results? The drug's makers aren't "Roche" - the drug's makers are specific people, just as it is specific people who are not revealing the side effects. Who are they?

The surface similarity of the side effects of accutane and tamiflu made me think they are contaminating some of their drugs with something.

It's more likely there is some kind of similar chemistry to some of their drugs, but that contamination idea was my first thought.

_______________

Indigo,

When I was younger for many years my white blood cell count was low, specifically neutrophils.

That no longer seems to be off in recent tests.

I suspect it's the body trying to adjust to the bomb that went off inside.

________________

Boris, thanks for posting. I'm always struck by how similar the symptoms are.

There is definitely a pattern.

Hey Lukez, no worries, it's my pleasure. I think it's crucial in order to maintain a healthy mental state to be pro-active, and to actively seek pleasure/satisfaction.

We ought to be selfish once in a while ! For example, tonight I played soccer with some buddies, chatted with this cute German girl. Enjoying life's small pleasures.

I don't know if some of you guys regularly browse through the propeciahelp.com website. The forum is super active, I wish we could get such an active community of Accutane LTSE Sufferers. I fully comprehend that our damage doesn't exactly match their damage, but there are quite a few similarities.

Anyways I've been lurking the following thread on their forum recently : [Removed]

Maria did a course of Accutane (10+ years) and had symptoms creeping up ever since. A couple of Propecia-affected guys and her are reporting some

improvement. Lamar uses that supp. as well, probably not the exact same product, since they use Maximum Milk Thistle, which has a patented formula. I'll be following that thread closely... it could be worth a try in the future.

Anyways off to study. Stay strong.

Boris

Does anyone else have hypoglycemia since taking Accutane? That seems to be my big energy problem.

Does anyone else have hypoglycemia since taking Accutane? That seems to be my big energy problem.

 

Hey Andrew.

Haven't heard from you in a while.

You doing okay?

Anyway, Yes. I think so.

If your adrenals aren't functioning well, like mine, this can be an issue.

It's recommended to avoid sugary foods... But they're all sooooo good!

Yeah I've found ways to manage it with my diet but sometimes it's a hassle.

I'm doing fairly well though. Been seeing this therapist who's helped immensely. Just hitting the occasional rough patch, but that's life I guess!

Hey.

I'm worried about my teeth.

As I may have mentioned before, I suspect I have Sjogren's syndrome (an autoimmune disorder).

However, I was tested for this a couple of years ago and told the test came back as normal.

Dry eyes and Dry mouth are both symptoms of Sjogren's.

It's makes me so angry to know that tooth decay is another worry.

I spent 4,000 on Invisalign to straighten my teeth (I finished this last year).

My smile is now one of the only things I like about my appearance.

That won't be said if they all fucking fall out though.

Who else here has dry mouth?

What do you do about it?

Does anyone else have cavities?

I used to eat lots and lots of sweets when I was younger, but take very good care of my teeth nowadays.

I floss after food, drink lots of water etc. I have no other drinks apart from herbal/green teas.

However, first thing in the morning, my mouth has like NO moisture whatsoever.

I chew gum to help sometimes, but I never really feel hydrated - despite drinking water constantly.

I never had to have a filling, but now (in the last 2-3 years) I've had 3, and I'm 99% certain I will need another one when I see my dentist.

Seriously, ARRRGH! This fucking drug.

Is anybody here going to make a YouTube video and response mine?

I need your help.

Hey.

I'm worried about my teeth.

As I may have mentioned before, I suspect I have Sjogren's syndrome (an autoimmune disorder).

However, I was tested for this a couple of years ago and told the test came back as normal.

 

Dry eyes and Dry mouth are both symptoms of Sjogren's.

It's makes me so angry to know that tooth decay is another worry.

 

I spent 4,000 on Invisalign to straighten my teeth (I finished this last year).

My smile is now one of the only things I like about my appearance.

That won't be said if they all fucking fall out though.

 

Who else here has dry mouth?

What do you do about it?

Does anyone else have cavities?

 

I used to eat lots and lots of sweets when I was younger, but take very good care of my teeth nowadays.

I floss after food, drink lots of water etc. I have no other drinks apart from herbal/green teas.

However, first thing in the morning, my mouth has like NO moisture whatsoever.

I chew gum to help sometimes, but I never really feel hydrated - despite drinking water constantly.

 

I never had to have a filling, but now (in the last 2-3 years) I've had 3, and I'm 99% certain I will need another one when I see my dentist.

Seriously, ARRRGH! This fucking drug.

 

Is anybody here going to make a YouTube video and response mine?

I need your help.

 

Indigo- Low Thyroid can cause dry eyes & mouth too! Are you working on that???? What test did you have sjogren's? Did they do a lip biopsy or the schimer's test? Are you staying away from acidic foods and drinks? There are products I am not sure about in the U.K., but you can google products for dry mouth like certian mouthwashes etc.. and Thera tears is a good drop and lacri lube (I believe Lamarr uses this). Last time I asked you what you have done or read dry eye zone you said not much!

Andrew- Make sure that you becareful with thoose sugar levels. Yes it can cause hypoglycemia, make sure you keep something with you or juice and signs and symptoms are excessive sweating, extreme hunger,weakness, shaky, dizziness. There are other issues that can cause hypoglycemia also.

Hope everyone is doing well, I will update my lastest on everything that has transpired in a couple weeks, I will say that my lab work also showed low insulin levels. I have started insulin interesting fact though is around 4 months I stopped my biotin which is Accutane is known to deplete (study) so I started it back will be interesting to see. - Jen

Jen,

I am working on my thyroid, but it's difficult.

They say it can take a year on average to sort hypo out.

That's if the underlying cause of the problem is sorted.

If Accutane is responsible, I might not be able to do anything.

As you'll have guessed, I won't take drugs for it (and again, for thyroid, I know you depend on them long-term and they have side effects).

Therefore, I am taking the natural route.

I add sea salt to my food. Just a small pinch. Great for minerals.

I am taking Iodine and selenium, which are recommended.

I am looking into getting a fluoride toothpaste.

My gums have been bleeding recently too. I'm fucking terrified that my teeth will fall out, like someone else (accutaner) has said before.

That would be the final straw for me. I hear fluoride is bad for the thyroid though. I filter my water at home.

I try to eat a good diet, but sometimes I just feel so fucking fed up (like I do right now, after a terrible day at work) and eat whatever.

I know that an alkaline diet is recommended.

Sugar is considered harmful for thyroid and adrenals, but I always have fruit as snacks.

Reducing stress is the most difficult thing in the world with all this going on.

I was still depressed when I wasn't working, but doing 37 hours a week in a very difficult job is driving me insane.

I just feel tired and lousy when I get home, so I'm not able to have any joy.

I've only been there 2 weeks, but I want OUT!

However, I really need to find a part time job before I can do that.

I think for anybody the job would be hard though. But for me, my brain isn't coping.

I expect I'll get fired if I don't leave on my own terms. I keep forgetting everything, and there is SO much to remember.

As for the dry eyes, you said yours had got worse.

Now, I'll bet you've tried it all.

See. This is the most frustrating thing in the world.

You do everything and get worse.

I just use eye drops (with MSM).

I've tried a large variety of eye drops and none seem to be great for me.

Especially Lacri lube. I used to put that in at night and it made things seem worse.

My eyes can barely open in mornings though.

Seriously, what the fuck am I going to do?

I can't live like this. Everything is at rock bottom for me now.

I'm helpless in all of this.

Things have just got worse, and that's what will continue to happen until I result to ending my life like the rest of 'em.

SO PLEASE MAKE A GOD-DAMN VIDEO IF YOU WANT TO TAKE THESE FU*KING C*NTS DOWN!

Jen,

 

I am working on my thyroid, but it's difficult.

They say it can take a year on average to sort hypo out.

That's if the underlying cause of the problem is sorted.

If Accutane is responsible, I might not be able to do anything.

 

As you'll have guessed, I won't take drugs for it (and again, for thyroid, I know you depend on them long-term and they have side effects).

Therefore, I am taking the natural route.

 

I add sea salt to my food. Just a small pinch. Great for minerals.

I am taking Iodine and selenium, which are recommended.

I am looking into getting a fluoride toothpaste.

My gums have been bleeding recently too. I'm fucking terrified that my teeth will fall out, like someone else (accutaner) has said before.

That would be the final straw for me. I hear fluoride is bad for the thyroid though. I filter my water at home.

I try to eat a good diet, but sometimes I just feel so fucking fed up (like I do right now, after a terrible day at work) and eat whatever.

I know that an alkaline diet is recommended.

 

Sugar is considered harmful for thyroid and adrenals, but I always have fruit as snacks.

 

Reducing stress is the most difficult thing in the world with all this going on.

I was still depressed when I wasn't working, but doing 37 hours a week in a very difficult job is driving me insane.

I just feel tired and lousy when I get home, so I'm not able to have any joy.

I've only been there 2 weeks, but I want OUT!

 

However, I really need to find a part time job before I can do that.

I think for anybody the job would be hard though. But for me, my brain isn't coping.

I expect I'll get fired if I don't leave on my own terms. I keep forgetting everything, and there is SO much to remember.

 

As for the dry eyes, you said yours had got worse.

Now, I'll bet you've tried it all.

See. This is the most frustrating thing in the world.

You do everything and get worse.

 

I just use eye drops (with MSM).

I've tried a large variety of eye drops and none seem to be great for me.

Especially Lacri lube. I used to put that in at night and it made things seem worse.

My eyes can barely open in mornings though.

Seriously, what the fuck am I going to do?

I can't live like this. Everything is at rock bottom for me now.

I'm helpless in all of this.

 

 

Things have just got worse, and that's what will continue to happen until I result to ending my life like the rest of 'em.

SO PLEASE MAKE A GOD-DAMN VIDEO IF YOU WANT TO TAKE THESE FU*KING C*NTS DOWN!

 

Indigo- Hang in there I know it's hard! I wouldn't say that I get my worse. My thyroid is under control, I do deal with sjorgren's and well I think of this way right Accutane cause autoimmune thyroid, sjogren's is autoimmune and 2nd to autoimmune thyroid alot of times and well Type 1 diabetes is connected to both.

So though Accutane caused one thing that 1 thing could cause a myraid of other problems.

I don't know, but my sjorgren's was under control till all this new recent events sooo maybe Nathan's report has some merit or maybe my DNA changed. I just keep going though.

Also if your eyes are that bad then you better resee an eye doctor as you don't want to end up with damage. How did lacri lube make it worse?

<p>Hi guys.

An update for me real quick, I gotta get to work in a couple min

WTF that got fucked up. I wrote a lengthy post. Whatever, I'll retype. This is going to be lengthy, but I HIGHLY recommend everyone read this.

First off, HCL supplementation is a must. Someone already mentioned it too. I was diagnosed with GERD immediately after getting off accutane. After becoming sicker from the meds they gave me for that, I did more research. Read the book "why stomach acid is good for you" It basically says that it's rare to impossible to overproduce stomach acid, and that the reason for GERD, acid reflux, and other digestive ailments is actually NOT ENOUGH acid. I tried HCL supplementation immediately after accutane but it hurt my stomach. After doing DGL and other good supplements for my stomach, I went back to HCL and it made a world of a difference. Accutane pretty much ripped apart my stomach and it's ability to produce enough acid, although it's been gradually getting better with the help of supplementation.

So there's one "cure" if you will. It also knocked out a LOT of food sensitivities (not a complete cure though). Don't be scared of the idea of HCL supplementation - your stomach is meant to handle it. After all, accutane itself is VERY acidic in itself - my dermatologist warned me to never lie down after taking accutane cuz it can rip through your esophagus. Scary. It's also very fucked up to think that people are given drugs (antacids and acid blockers) that are the EXACT OPPOSITE of what they should be taking for their condition. In the book, he mentions how before big pharma came into play in early 1900s, HCL supplementation was the common way of treating and CURING digestive problems mostly related to reflux.

Next up, I did two coke liver flushes (found on curezone). DO THE COKE FLUSHES, THEY ARE WAY EASIER THAN THE EPSON SALT ONES!!! I realized I needed to do these because I had a dull pain in my upper right quadrant - ie my liver (even though my idiot doctor was like "umm maybe it's your colon"). I also knew this must have been related to my reflux (thanks to reading curezone and "the cure for all diseases" by dr hulda clark)

After the second liver flush and around 2 months of HCL supplementation, my reflux is near non existent. With a continuation of this, I know it will be gone forever. My digestion has improved greatly. Unfortunately, I still get random hunger pains, and my stomach growls ALL the time, even after meals, but this is no where as bad as it was before.

((If anyone recalls from my previous posts, I had very ill looking stools with mucus in them, undigested food, naseau, etc. I credit HCL supplementation in helping these symptoms. In addition, I took Colostrum mixed with probiotics (primal defense and VSL). This took around 2 months for decent results. I'm still not 100% yet. So be patient.))

So that's "cure" #2

Positive thinking also helped with this. I realized that once I "forgot" my symptoms - ie, I didn't "expect" them to happen like they always do - they started to go away. Positive thinking can go a long way...Unfortunately, I'd be lying if I said that I'm completely positive about all this. I'm still very negative, and bipolar.

Regardless, I'm not out of the woods yet. I've had so many other problems on and off (and I still cannot gain backt he 20 pounds of muscle that I lost). But after my second liver flush, my liver felt SO much better, but the next days I had terrible insomnia, confusion, brain fog, mood swings, and dizzyness. I realized that whatever toxin my liver was holding was released into my body, but I did not excrete all of it. These toxins probably reloacted to my brain. I do believe that my liver is holding on to some accutane as well as heavy metals because my symptoms reflect heavy metal poisoning (although I will admit that the symptoms are similar to those of accutane side effects). My candida absolutely will NOT go away (also another reason for food sensitivities - like gluten) which is a sign of a metal toxicity.

My hair loss has been very extreme, as the right side of my head is almost balding.

I will be performing the Andrew Cutler protocol of chelating for heavy metals. This is the ONLY way to fully get rid of heavy metals. Basically, you have to take a low dose of Alpha Lipoic Acid every 3 hours for 3-4 days in a row (yes, even at night although it doesn't matter cuz I don't sleep anyway), and then rest the next 3-4 days. Then start it up again. If you do it, you MUST commit. He recommends no less than a year on this protocol, it's gonna be brutal, but I'm desperate for results. When done correctly, I've read amazing testamonies.

I believe that this way might also chelate the rest of the accutane that may be circulating in my body. I will be starting this in a couple weeks and I will be committing at least a year to it. For a while I believed that "we are unique cuz accutane fucks us up differently than other things." I don't believe this to be the case. We just need to find the right way to detox.

I will also be doing a colon hydrotherapy within the next week to make sure to flush out any toxins in my colon. I read around these forums of some guy who got better from his accutane side effects (colitis, hair loss, etc) from doing an oxygen flush. I tried an oxygen flush and hated it, and it did not work well for me. I think colon hydrotherapy would be more effective.

Oh and here's an amazing "cure". Hulda Clark, in her book, mentions how most, if not ALL, diseases are caused by foreign invaders and or toxins. She claims that the people she treated with cancers of say, the liver, always had a specific liver parasite. Now, this theory is still being debated upon, but one thing I've consistently read online, is the positive testamonies with her invention - the "zapper." Basically, tiny microscopic creatures all can be killed by frequencies that are harmless to humans. Hulda did many trials and proved the effectiveness of this. I thought, why the hell not!! I bought one on ebay for around $50. I had bad joint pain in my right knuckles for months previous. And if anyone recalls my earlier post, I had waken up one morning with my knee completely swollen and I was unable to walk. I finally was able to walk, but it didn't seem to heal at all. Well, after using the zapper, the pain in my knuckles is GONE and my knee is OK. It's possible that my knee may have healed on its own, but I absolutely 100% attribute my pain free knuckles to the zapper. At the least, when your body is trying to detox itself, a little help is certainly welcome.

So there's another "cure"

That is all, I hope this helps, guys. We need to stick together on this, and I will update you all when I begin my chelation and hydrotherapy. Please don't give up.

EDIT: One more thing!! Get away from anything toxic! Your deodorant has aluminum in it! Your shampoo has chemicals! your toothpaste has fluoride! (FLUORIDE IS NOT GOOD FOR YOU) Your foods have GMOs and other chemicals which are VERY harmful, especially when your body is trying to detox! I'm sure many of you, like myself, have educated yourselves on the harms of our current environment and foods. Yes, your parents will think you are crazy, so let them! Just like many of you, my mom no longer shows any sign that she cares because she thinks it's all in my head. I've come to the point where I understand the fact that they will never be able to comprehend the disease that accutane has caused. It makes it difficult, but you gotta keep trying. If I die during all these trials I've done to my body, I at least hope that I could have helped someone else in the process. FUCK big pharma and worthless mainstream doctors, and let's continue to help each other out!!

-Eric

I'm glad to here you are improving rewopwspe. Unfortunately I have become very resistant when it comes to being encouraged by any positive comments regarding this situation.

I tried liver flushes 6-7 years ago, and must of done around 10. I got little green thins out that have been described as stones but felt no benefit. And I did this when I "only" had rosacea and generally looked unhealthy. If that didn't help me then, then it's not likely at all to help me now with a lot of side effects that have surfacd since. I did liver flushes both with and without Epsom salts (which is the most vile drink you can have)and most nights I would wake up feeling very sick for an hour or so before puking up the oil mixture. although this is not uncommon and i still had "stones" pass out. but continually being sick and feeling no benefits were not worth it. Yes, I think my parents didn't understand why on earth i kept doing them after continually being sick, but obviously I'd do anything to get out of this shitty situation. I could do it now even if I wanted to, because i can't even tolerate olive oil now, and luckily fidning pages 1-3 of this thread I know why.

As i mentioned in a prev post, I have not long come off taking a complete set of chinse tinctures for 5 MONTHS straight. A lot of people use these herbs on curezone for liver flush prep, and they always get a good feedback in producing liver flsh results, so i know the herbs are good quality. This cost a hell of a lot of money having these shipped from Canada for 5 months, when i bottle is $25 and you have 4 bottles each time at the same which only last 3 weeks. I also beleive 100% that the tinctures (Chinese herbs) are a lot better then milk thistle and the like because China seems to have the best understanding of herbs, and have the history and culture around herbs, so they know exactly how to treat conditions. i just think this is way more then healing the liver, look at alcoholics... tere livers are bad and proved in tests/scans, but don't half the problems that accutane sufferers get. I persoanlly can not see what else i can do after tring herbl tinctures specifically for liver for 5 full months, so i can give my liver the best chance of getting better, and obviopsuly the liver flushes in the past.

haven't reied colon hydrotherapy but something i did try for 3 full months was Dr Shulze's Intestinal Formula 2, which again cost a bomb cos a tub only lasts 7 days, so i went through 12 tubs of clay/seed mix with lots of herbs aimed to calm and heal and drag out any nasties in the colon. Again, no improvements, and this was under 3 years ago.

The hcl is slightly interesting,, but isn't the stomach lining supposed to be damaged from Accutane? I would worry if the body poruces less stomach acid for that very reason, and giving it more acid could make things worse.

I don't know how indigo is feeling now as he hasn't post for a week or so, but i can understandand echo hhis thouhgts. I just could not do full time, or any job really, because of depression, social anxiety, agorapheobia, anthropophobia (fear of people) not to mention pyscially feeling tired/weak and other things like my eyes, rosacea etc.. "why do i put myself through this" and "why don't i just put myself out of my misery" are normal thoughts when things have become this bad when previously i had none of these problems before the tane.

Eric and James -

Thank you for posting.

I read your comment this morning and it gave me a little bit of hope, though James has killed it again (darn that boy! Jokes).

I appreciate it though.

Whether Accutane damages the lining of the stomach or what, I don't know.

If we assume it does, L-Glutamine may help.

However, if you (Eric) say that HCI (w/pepsin?) has helped your digestion, I'll definitely consider it.

My personal plan is to ditch a lot of my supplements once I've used them up.

I've probably already said this.

I'll focus on taking B-Compex, Vit C, Vit D, Vit E, Magnesium and some immune boosters.

I'm not really sure what will happen in terms of my digestive system.

I've still got hemorrhoids (makes me sick to just admit it) and constipation.

I've not been diagnosed, so who knows if there's something serious going on.

I think I've got too much pride to walk down to the very doctor who gave me Accutane and say 'Can you check my bum out?'

I guess you've got to laugh.

I'm still taking VSL#3 though, and will finish the last couple of packs I have.

They don't appear to have made any difference. Whether they will or not, I don't know.

To be honest, I don't expect much these days.

Can I ask what brand of HCI you use (or have used)?

I've heard of Hulda Clarke's book before, and the zapper.

I'd be interested to read it (though it costs more than I'd usually spend on a book) but the whole zapper thing sounds a bit of a gimmick.

Not saying it won't work.

Hell, I bet it does. It probably has research backing it.

But I don't think it'd cure this.

The coke flushes sound... interesting. Coke as in Coca Cola?

I've never tried any liver-flushes myself.

Mainly due to others' not having success with it.

It's debatable whether stones are stones or not, I hear.

I'm willing to try things, but I'm less willing to be the first person to try things nowadays.

Like James suggested, full-time work is hard with this.

I really am not enjoying my job AT ALL.

I'm getting very stressed out because it's really difficult.

I don't just mean because of my brain fog and anxiety.

A hint on anxiety though.

I've been reading various books.

The best advice for dealing with anxiety, albeit very simple, is this:

- Lose the resistance.

Basically, instead of getting worked up into your thoughts ('I feel so awkward', 'I don't want people to look at me') you just let everything go.

When making eye-contact, you shift your focus purely on your body sensations (or on the other person).

You slow your mind down.

Like I said, it sounds simple, but it's good stuff.

I'm not at all cured of anxiety, but when I remember to do this, I don't feel so self-concious.

It's pointless thinking 'Accutane has made me anxious and I can't help it'.

I think we've been through a traumatic experience.

I don't know about you guys, but when I was on Accutane... it was pretty horrible.

I felt like my soul was being tortured.

Writing about it in my book made me realise that there was a massive turning point.

But I don't think our brains our fucked-for-life.

A lot of people become anxious and get over it after a while.

A good idea, which incorporates the above tip is to have a cold shower.

Set it to cold and force yourself under it.

Your mind will go nuts.

'Ahhhhh... Cold! What are you doing? Get out!'

Stay there.

Practice letting your thoughts go.

Just relax.

You won't die.

In 5 minutes, you'll be warm again.

While under the shower though, focus purely on how your body feels.

Don't think thoughts.

Easier said than done.

That's why it takes practice.

Then, do the same in social situations.

And don't get angry with yourself for being like this.

It's not your fault at all.

But don't blame Accutane either.

Yes, it is at fault, but it'll take your power away.

We can work through certain elements of this though.

One of my biggest problems related to Accutane (my digestion/sex-drive hadn't crashed at this point) was flushing (as in going red).

Now, I'm able to control this well.

I was introduced to everyone in my office (maybe 40 people), and I just stayed cool..

I occasionally still go red, but I find that it only happens when I am anticipating it, or fighting it.

Quit fighting this.

It will only lead to more frustration.

Right now, I'm lacking time.

I'm at work 40 hours a week (including travel).

Normally I'm exhausted/stressed when I get home.

I do Drama Tuesday nights (2 hours).

Badminton Thursdays (2 hours).

I see my girlfriend inbetween.

I don't have much time to enjoy my own company now.

I really miss it.

I'm working on a new book (called 'You, But New') which I'm going to sell for £1 on the Kindle.

I plan to finish this within a month or so.

I want to get better at guitar.

I'm looking for a new job (yes, already) so really, I don't have a lot of time to just relax.

If anything, work has kept me off this site so much.

I used to check so many times throughout a day when I was off.

I guessI was waiting for a miracle or something to appear.

I know I should be resting more, but what can I do?

I should lay in until 9 because of my adrenal fatigue.

I get up at 7.

I end up going to bed after 11 because I want to fit something fun in before I go to sleep.

I end up playing Xbox or reading, or both. This is really the best part of my day.

My girlfriend may read this, so I'm sorry, but I can't help feeling best when I'm alone.

I'm not really sure why this is.

I think I'm a bit of a loner really.

It doesn't bother me, just being by myself (assuming I have something to keep my mind busy).

Sure, I like to spend time with others, but it just seems like everything sucks time out of my life.

I don't really like relaxing to a film (which is normally what me and my girlfriend do) because it feels like I should be doing something better.

I think really I want to be actively doing something for all this. For my health.

But, I guess I can't do anything.

Time may be a healer.

Hey, I still think you should all do your videos.

Like I said, the worst case scenario is that we save a few people.

If enough of us get involved and urge others to do the same, we can raise awareness about this.

My book has now sold 16 copies.

It's hardly enough.

We need to be the one's to change history.

Maybe we can.

I'm certainly up for it.

Is anybody else though?

At 21, I feel too low/exhausted to work full-time.

What about when I'm 45?

We deserve compensation for what's happened.

I'm not someone to say that without reason, and I'm sure none of you are either.

But what we've dealt with is too much.

We shouldn't have to bite our tongues and get on with it.

We should expose Roche and the FDA for what's happened.

I'm sick of seeing myself, and you guys (who I would call my friends) upset over this.

It's not fair on us.

Acne and then this.

But nobody is going to come and save the day.

We shouldn't leave this up to God, or whatever you want to believe in.

We should be the change we want to see.

And that's my last time asking y'all to get involved in this thing.

But do you want these guys to get away with what they've done for another 25 years?

Think of all the innocent lives being destoyed in that time.

Think of the blood-money Roche would earn.

Okay, I think I've motivated you now.

Make a video, yeah?

Gee, that was long - Sorry

I support jmsil on this. I'm not really into the whole positive thinking thing anymore. Been there, done that.

Nor trying some supplement based on a theory about what accutane does (when it's unknown whether that theory is even true, like with endless liver cleanses).

Positivity comes from health. It's not the other way around. People want to sell the idea it's the other way around because it's easy to sell people false hopes. People want to believe. Of course. But most studies on things like visualization helping with cancer don't get confirmed. The 'positive thinker' people who wrote books on using your mind to get rich ... died poor.

You feel down when you're sick. That's natural. You feel pain when you're hurt, physically or emotionally.

Trying something unknown or unusual is more likely to work. That's not saying much though. I've done everything from the regular to alternative to extreme with little or no results so far. What would help would be a huge amount of money so I can just nurse my health and go at my own pace.

Actually being well is nothing other than a distant memory. It might as well be a dream.

I'm feeling very stressed by work and life lately. The stress always comes back and doesn't take much. I'm so tired of there being no real solution to this. I really wonder why I've bothered after all these years. Just automatic for the organism, I guess. It's not like things are looking up at all.

Hey guys how are you all? great information from all of you as always. Just thought i'd pipe in with what i'm doing at the moment in the hope that it may help anyone.

Firstly i bought this book called "Wild fermentation" and i've started fermenting my own sauerkraut, cultured vegetables, water kefir, kombucha, buying brown rice miso (unpasturized)...and eating loads of cultured fermented foods. I find my digestion to be better when i'm doing this, you could add Natto for the vitamin K2, Kombucha contains natural glucuronic acid by process of it's fermentation. This glucuronic acid can bind to xenobiotics (accutane is one) and hopefully remove them from the body. I haven't personally noticed anything like that yet but i really feel fermented foods are powerful healing foods for balancing gut flora. I'm also taking Modifilan, which is a heavy metal chelator and thyroid booster....it's a natural kelp thats noted for it's ability to remove radiation and toxins from the body. I'm taking it to supplement my thyroid. I'm going to start buying fresh seaweed and start juicing it, hopefully that will give me ample iodine, and sodium alginate which can help remove toxins from the body. Trying to juice dark leafy greens as well, collard greens, spinach, coriander etc

Still taking my RAW D3 vitamin D supplement cos i need to get my vitamin D levels up.....Seriously considering buying a multi spectrum digestive enzyme. I've tried all the plant based ones like digest gold and even tried super enzyme capsules by Now...which are animal based.

I have my eyes on this http://www.the-natur...igestant-1.html but it's too damn expensive. I wanna get a two phase tablet...one that releases the HCL and pepsin in the stomach and the pancreatin and ox bile in the small intestine....Also reading into low stomach acid levels as someone just above has mentioned. Seems low stomach acid can stop the body sending signals to the pancreas and gallbladder to release the enzymes / bile for a meal.

Don't know whether to go the dark leafy greens, seaweeds, miso, chlorella, juice fasting route and try to remove fat soluble toxins from the fat cells, or sorting out my GI problems and replenish my stomach acid, bile flow and heal any possibility of leaky gut...and hope that will heal the body.

This whole thing is a nightmare sometimes i feel like i can't go on......i used to feel that way all the time, in my early 20's i wanted to kill myself over all this. I used to listen to Kurt Cobain, kinda idolize that destructive mentality. I was a quick fix sorta person hence taking accutane in the first place, at 17. As you grow up you realise all the things you did as a young man come back to bite you in the butt. I tried to kill myself when i was 21...directly because of my accutane side effects...it wasn't a serious attempt, it was more of a cry for help at the time. They threatened to section me under the mental health act..... i was the end of my tether with it all....I was just really depressed and couldn't see a logical way out. i don't know why i'm telling people this, but i feel it's important to let people know...... there are other people going through exactly what your going through, and i look back at that time and feel so stupid.

So stupid to waste your life over what? a skin condition? side effects from a drug? it's easy to play the victim, but you have to be careful about pushing those closest to you away. It kinda reminds me of that Rocky quote "nobody will ever hit you as hard as life, it's about how hard you can get hit and keep on going forward, how much you can take and keep on moving forward" Thats quite poignant because i'm sure alot of us feel that way sometimes. It's about perseverance...that life! it's all about perseverance.

I'm gonna feel like a fool for posting this into the ether that is the internet....but if it reaches someone that may find sense in my innane ramblings, so be it.

Jmsil, The coke liver flush doesn't require fasting or drinking the nasty salt solution. And I already knew I didn't have any stones, but your liver still can hold on to toxins. I'm sorry to hear that didn't work for you. As for HCL, I actually got worse before I got better. If you think your stomach might still be fucked up from tane, spend a few weeks taking DGL to restore some mucus before going to the HCL. But since it's been a while since you've gotten off tane, I'm sure you'd be alright taking it. It honestly won't hurt you. And if you have undigested particles in your poo, HCL might be your solution (along with proper chewing of course).

Funny, if I went back to my gastro to tell them I am taking HCL supplements instead of acid-blockers, they would probably think I'm crazy. Goes to show how ignorant they all are.

I started with 250mg HCL by Solaray. Then I moved to 650 mg and switched over to NOW Foods brand 575mg (the 650 mg of solaray smelled like fish, ew). For bigger meals, I would take around 4-5 or more. Now I find myself taking less, maybe around 3. Remember, if your stomach isn't making enough acid, then digestive enzymes won't be secreted as much. And with that logic, I would assume that would mean that if you are taking an enzyme supplement, it might still be worthless without proper amount of stomach acid which also goes for vitamins. There's a lot of information online, or get the book "why stomach acid is good for you," I personally enjoy that book because the author spends more time ripping on pharma companies than he does in explaining why stomach acid is good for you

I'm starting to notice a trend here. Today I felt very ill. My abdomen area just feels sickly and it's always making weird noises. I seem to feel this way the more I exercise and go to the gym. Why> I have absolutely no idea!

My brain fog and dizzyness is almost unbearable. I am extremely tired. But I cannot sleep. I average around 4-5 hours of sleep a night, it's fucked. I find myself only "half" asleep. Sometimes I twitch which wakes me up - those are very unbearable :/

My colon hydrotherapy is next Thursday. I'm really hoping that some of the theories are true, and somehow accutane is still lodged in my colon...but after almost a year from taking it? Almost doesn't seem possible. Regardless, my body is holding on to SOME toxin since my liver pain is almost nonexistent after my 2nd liver flush. I think I will also try a service they offer called ion-cleanse detox or something like that, just for the hell of it.

Like I said before, I will be doing the alpha lipoic acid chelation in a couple of weeks. That is pretty much the master "cleanse" for heavy metals especially mercury, according to Dr Cutler. My symptoms match a heavy metal poisoning. But it could just be an accutane poisoning. Either way we will see.

As for the previous post regarding chelation - Andrew Cutler claims that kelp and other herbs for chelation (chollera, spirulina) typically only MOVE around the metals and toxins in your body, and rarely dispose of them all. This can actually be more dangerous than helpful. He says the only way to full rid yourself is doing the alpha lipoic acid protocol.

I really urge you guys to keep trying things, more RADICAL! And stick with the program for a few weeks. We need to try as many things as possible if we are going to successfully work as a group. Stop taking random herbs to see if they will help, because they WON'T! I have what feels to be a 10 pound bag of herbal products I've tried - they sometimes help, but overall, they are NOT the CURE!

Get yourselves on "programs," we gotta start narrowing this shit down, for real. I'm getting pissed just thinking about the bullshit I've been putting myself through...

Oh and the zapper - that shit is legit, trust me, it's wayyy past the placebo effect for me. No more joint pains. At all. Many people also claim they never get sick since using it because it's so efficient at killing bacteria. Just head over to curezone, there's a ton of info on that.

Hopefully I will actually get some sleep tonight

-Eric

Oh, guys, another thing.

Even though there are some differences, I think we can all agree we have -

Chronic fatigue

food sensitivities

poor digestion

mental issues

Start paying attention to your tongues if you haven't already. I KNOW I have candida because I have thrush. I am interested if anyone else has thrush, even a small amount could suggest a fungal overgrowth.

My point here is that we are all thinking that accutane poisoned us (it did), but maybe our end result is NOT directly from accutane, but from a lowered immune system from the drug leading to a Candida overgrowth, metal toxicities, etc etc. Our symptoms are very very common with those of candida and metal toxicity. And chronic candida means metal toxicity. If accutane lowers immune response, and who knows what else, there are many possibilities on what our bodies weren't able to fight off. We are all surrounded by toxins all the time, but we are on a harmful drug like tane, the damage could be a lot more severe...

And these symptoms are also common for celiac disease so get tested if you haven't already because new studies are claiming that accutane causes celiac.

Hey Guys.

I'm so happy that it's the weekend at last!

Well, actually this week has gone by pretty fast, but I'm craving a lie in!

Eric,

I bought the book about stomach acid and why it's good for you today.

I read a few pages on my lunch break at work.

I can tell it's very well written already.

The reviews on Amazon.com are very good for the book too.

I don't get heartburn or anything.

I just have constipation, freaking hemorrhoid(s) and I get bloating.

I also get this weird thing.

I can't find the words to describe it.

I'm not sure if it's got a name.

Could even by reflux.

Anyways, it doesn't hurt.

It's like my stomach has spasms.

Though that doesn't sound right either.

It's like my belly goes out and in real quick and I feel like I'm burping but don't burp.

(Doesn't make things much clearer).

Will HCI w/pepsin help me?

I do sometimes have undigested particles in my... erm, poop. (Nice)

Normally when I have seeds or something.

Something's definitely not great with my digestive system.

Did you Accutane was acidic or something?

Does that mean our stomach's would be producing less or more acid?

Have you been tested for stomach acid levels or anything like that?

Anyway...

You were saying about brain fog and that.

I got a book through the post today.

It's called 'Your Brain After Chemo'.

Not sure which I'll read first, but the above book is meant to be very good and offers advice for getting back on track.

You might want to check it out.

Chico, my man. Good to hear from you.

Do you not feel suicidal at all anymore?

I find it hard to think I'll ever be free of depression/suicidal thoughts.

At least while this is all going on.

I'm always trying though.

I do make an active decision to be happy, but sometimes this stuff beats me down.

I have found that I have more energy and happiness when I am given fresh hope, but I hate to have to rely on this being sorted in order to be happy/

Happiness is the ultimate goal.

Work is good and bad for me.

Sometimes I think 'Another shit day, in my shit job, in my shit life'.

But most people work in job's they don't enjoy, right?

Life wouldn't be perfect if we didn't have these problems, right?

Sometimes I think I forget that.

But at least I'm earning some money again, and it keeps me busy.

It can be stressful and demanding, but my old job was the opposite. I hardly had work to do, but I did prefer my old work-mates.

I do think it's important to focus on other things besides health.

Of course, I'd do near to anything to get my health back, but right now it's not an option like that.

I look forward to Badminton each week.

Drama is okay, though this term is a bit repetitive.

I'm working on that new e-book, so that keeps me going.

I'm trying to improve at guitar and I wrote a new song (called 'Lose it all') the other day.

Really, I have a lot which I enjoy.

I really love learning about health, and reading with a cup of tea is bliss to me.

I plan to go on Holiday this year, hopefully with my girlfriend.

It's just good to have things to look forward to.

I'm determined to make it through this though.

We can't keep thinking about killing ourselves.

My Grandad passed away, I think in October, last year.

I was listening to Avril Lavigne's song 'Slipped away' and it made me cry because I realised I'd never see my Grandad again.

Thank God I won't lose the memories I have.

When he died, it didn't hit me. I was too trapped in this Accutane business.

I didn't realise that I'd never see him again.

I don't know - maybe Heaven is real. Maybe there is something more than what we see at present.

But I wouldn't ever want to do that to my family.

I couldn't stand to kill myself, knowing they'd be at my funeral.

They'd probably never understand what had happened.

I want to bring happiness to other people.

I can't bare being told 'I'm really getting worried about you' by relatives/friends.

I don't want them to be thinking I'm close to suicide, even though I sometimes voice that aloud.

Another valuable thing to remember is this:

Remember how you were when you were 8, 9... 10, whatever.

You were scared of things.

You were a beautiful, innocent kid.

That person lives inside of you.

Sorry if this sounds cheesy to anybody.

But it's important to realise that you're still that person.

You have not become someone different because of Accutane.

It's just a bad thing that happened.

I think we're doing a great job of dealing with this incredibly difficult challenge.

But with every obstacle, there comes an opportunity.

I've said it before.

We have the chance to change the world with this.

We have the numbers.

We could all raise awareness about this drug, and prescription drugs in general.

From what I've read already (in the Stomach acid book), it's another Accutane (the drugs they're giving out).

The side effects aren't the same, and it's not chemotherapy.

But people take the drugs for years and all the time they are damaging their bodies (and killing themselves slowly).

Without stomach acid, your body doesn't absorb nutrients and vitamins.

I feel grateful to have spoken to every one of you.

We're all doing our absolute best in this, and I think it's fair to say that we are intelligent and willing.

I do believe that one day, all this hard work will pay off.

Hopefully, that day won't be too far off.

Speak soon,

Stefan

Hi Stefan!

Glad you got the book. I've learned that HCL is so important for so many different ailments. First off, accutane IS acidic because my derm told me never to lie down immediately after taking it or else it might burn through my esophagus! Theory - the highly acidic chemical elements of accutane may have messed up my stomach's ability to produce its own acid. It makes sense in my own case, because I didn't have ANY problems until almost IMMEDIATELY after I finished my course of the drug. Almost as if tane was acting like my own stomach's acid.

I know what you mean about stomach spasms. HCL didn't do anything for those. I get those sometimes at night randomly. I also tend to get those when I get very hungry, which is one of my accutane symptoms - extreme hunger after eating a full meal. The HCL has helped with the extreme hunger, which is good. I wish I could have definite proof of my low stomach acid via tests, but there are no holistic gastros in STL, Missouri that accept insurance. So unfortunately, I do not have the money. I can only speculate. Try it out for at least a couple weeks, see if your digestive system improves. Like I said before, HCL is good for the stomach, it won't hurt you! Like he says in that book, your stomach NEEDS to be HIGHLY acidic.

Let me explain further. Months ago when I started going the alternative medicine route, I got something called a nutritional blood test. The nurse took a small amount of blood and immediately put it under a microscope. From there you could see everything going on with my blood - and I had A LOT of issues: High amounts of fungal, bacteria L form, parasites, uric acid (ie, joint pain and precursor to gout), rouleau, anisocytosis, target cells, poikilocytosis, and acanthocytes. What does all this mean? Well, it means that I have poor ability to absorb and digest proteins, sugars, carbs; acanthocytes are a sign of liver, lung, or colon toxicity; parasites and bacteria and fungi can rob you of nutrients (chronic fatigue), etc. It explained my condition exactly how felt.

So in regards to bacteria and parasites found in my blood, the main fighter of these little critters are my white blood cells and...HCL! Stomach needs to be ACIDIC in order to KILL these little bitches. And between accutane robbing me of proper amounts of HCL, it also lowered my immune response in fighting these little guys - which explains too, why I was sick at least once a month while taking that horrible drug.

I would bet that if all of you took that test, you would have very very similar results.

Keep me updated on that chemo book, sounds interesting.

-Eric

The difference with natural vitamin A megadosing is the body is more likely to clear it out over time.

 

By contrast accutane does cause known permanent damage such as shrinking DHT receptors.

 

Accutane can't be cleared in a normal way. It's not even clear that it actually stays in the body. It may just damage the body permanently and then leave the system. Cleanses therefore may be useless. They don't ever seem to work.

 

This is why a cure, and by cure I mean restoring the body to what it would have been without accutane, is probably impossible. Although a solution may be possible.

 

The difference between accutane and vitamin A megadosing isn't too dissimilar.....when you megadose with Vitamin A the body stores the retinol in the liver, it continues to store the retinol until the liver reaches full capacity in terms of what it can store. After that point the body has no choice but to store the retinol that keeps being ingested into the fat cells. These fat cells are located under the skin all over our body.....basically our body fat. In the case of vitamin A megadosing...if the patient has ingested too much retinol the liver will shut down and in some cases people will die of liver failure. Now accutane is different although the outward side effects are similar (side effects like cracked lips, dry peeling skin, joint cracking, depression etc) accutane is retinoic acid, which is NOT stored in the liver. Retinoic acid is only used in the skin were it controls how quickly your skin cells shed. Accutane is mostly removed via glucuronidation.....thats the same pathway that removes fat soluble vitamins, fat soluble hormones and some other pharmacuetical drugs. Because retinoic acid can not be stored in the liver, if there are complications the body will store the drug in the fat cells.

Some people that take retinoic acid for acne have poorly functioning detoxification systems, sometimes it's the reason why they have acne in the first place. Acne can be caused by the bodies inability to remove fat soluble hormones like testosterone or growth hormone, we all know that we get acne when we hit puberty. I think people with poorly functioning detoxification pathways have the hardest time with accutane and are usually the ones that get the side effects.

I personally believe the retinoic acid is not properly removed by the body in these types of people and as a result the body has to store these fat soluble compounds in the body fat. It could be people with leaky gut..in which case the body try's to remove the retinoic acid but it just gets recirculated back into the system over and over. It could be a lack of glucuronic acid which is the molecule that carries these drugs around and out of the body. It could be a case of low bile flow which can be caused by gluconidated drugs. As a result of low bile flow it's very difficult to remove fat soluble toxins of any kind. Zinc deficiency can interfere with Vitamin A metabolism as well, although i'm not sure whether that relates to retinoic acid.

So megadosing vitamin A is different because the liver is involved in retinol storage, it's not involved in retinoic acid storage. The body has a contingency plan when eating retinol...because retinol is all around in nature (in animal livers, fish, dairy). So the body in all it's infinite wisdom understands that a human being might take too much cod liver oil, or eat too much lambs liver and has an inbuilt protection in place..... which involves storing the retinol in our liver.

There is no contigency plan for retinoic acid because you cannot eat retinoic acid in nature. It's not available in any food source.... it has to be synthesized in a laboratory, or converted from retinol within our own bodies. Our body understands the dangers of converting too much retinol into retinoic acid, so it's a very tightly monitered system, it will never create too much retinoic acid, only exactly what the body needs.

Another difference is retinoic acid is not as liver toxic as megadosing vitamin A, but thats directly because it's not stored in the liver. Retinoic acid can damage the liver but not in the way that it'll raise your liver enzyme levels.

Chico, good post. It makes sense that retinoic acid is different. The alien quality of it is why all those liver cleanses and the like don't work.

I think accutane creates system wide damage, but may leave the body over time. There is lasting damage to digestion, the colon, the brain which is largely composed of fats, and the body and joints. Alcohol sensitivity. Why is that? Presumably liver and digestive system and brain again. A kind of barrier is destroyed or damaged.

The drug is clearly more harmful to some people than others. Factors like age, body type, previous drugs taken, and diet all play a role.

From the comments here and elsewhere, is it more males who get the bad side effects? It seems that way.

Regarding being unable to clear toxins in the first place, thus the acne in the first place, I don't see why some who have acne and presumably can't detoxify and take accutane aren't all similarly affected if that was it. But there is a probably a genetic tendency to be hit harder by accutane side effects.

I also agree that more radical approaches than these herbal approaches is necessary.

I should probably briefly say the whole zapper and HCL thing don't last, although HCL can be helpful for awhile. I've seen those two approaches before and done HCL myself. It seems to work for awhile but doesn't last (although everyone should pursue whatever they like and if it works for you that is fine).

Most of that health food store stuff really doesn't work enough, or at all. It's more a short term shift that triggers hope when you're noticing something, you think, "maybe this is it!" but then no lasting results. Things like vitamin D, sure, especially if you have a deficiency, and a couple key supplements, but that's it.

If I ever read someone posting they're cured I'm thinking it's got to be something new. Maybe from taking steroids or something similar. Or something random and probably seemingly unconnected.

Your right i'm racking my brain trying to think what really has worked, i've took so many of these supplements....the most obvious one for me was juice fasting. I went on a juice fast for 10 days, just juicing vegetables no fruit. I was taking circulation boosting herbs (tincture) and my skin condition (sebborheic dermatitis) just disappeared for that time. It started to go away after about 2 days into the fast. When i stopped it after 10 days it came back within a day or two. I lost about 1 and a half stone during that time...i was already quite skinny to begin with so i couldn't afford to go any longer.

So theoretically if you have something like zeolites or some other fat soluble toxin remover and use it during a juice fast it could remove the toxins whilst their in the circulation. Something like a far infra red sauna during the fast may purge toxins out from the bloodstream. Although i've done sauna sessions in the past and haven't seen results, but things change when your body is in ketosis and is burning fat, these fat soluble drugs enter back into the circulation again.

Chico, that was a fascinating and intelligent description of the likely pathways. It raises interesting options for treatment.

I agree that fasting appears to be effective, although it is not sustainable.

Alright, I'd like to give an update, since it's been a while.

My previously described diet of cod, shrimp, scallops and rice got me to a level where I could work about once a week with travel, then be sick the rest of the week. This was a massive improvement, but not good enough. I now realize that the problem was most likely the shrimp shells.

But also I was dealing with all the errors and infelicities that travel imposes. Anyway I knew my solution still wasn't good enough. In particular, my recovery times were too slow. Something was still wrong.

So I cut down to just scallops and rice. This was frankly not very appetizing, even for me. The rice cooker helped, but not much.

I enjoyed better results for a while - smoother work cycles. But I wasn't force-feeding myself the scallops this time, instead letting natural satiety be my guide. As a result, I began to lose lots of body fat, and finally muscle too. My energy levels dropped and my digestion worsened.

So, I am agnostic about whether a sustainable peak experience is possible with force-fed scallops and rice, but I'm quite certain it isn't pleasant, and eating normally is equivalent to fasting, because one eats so little.

At this point, I'm not interested in peak experiences - I'm talking about nootrophic-like effects - just a sustainable life.

My experimentation was interrupted by a trip deep into China where scallops were unavailable. I therefore switched to a diet of lean steamed pork, chicken, squid, and de-shelled shrimp. But mostly steamed pork. And of course, white rice and water.

Adherence during this 7 day period was perfect, as was general health hygiene. Meaning I kept regular hours, exercised daily, got morning sunshine, ate quickly after rising, etc.

I made one error early on, when I decided that beef with marbling might be safe and ate about 3-4 meals including beef over 2 days. This caused a typical reaction cycle lasting 3-4 days. This was the first time I could isolate and observe a single reaction cycle. Day 0 was fine. Days 1-2 featured stomach pains and growing fatigue coupled with insomnia. Days 3-4 were cramping and IBS-D.

This was a very minor infraction in terms of quality, but fairly severe in terms of quantity. Recovery was extremely rapid, with day 5 being completely fine again. The severity was not terrible, as I was still able to go out, with some difficulties.

I am now on the road home, and I am 100% confident that this new diet will enable me to work 7 days a week instead of 2.

Unfortunately I had to attend a couple of banquets at the end, so I am a little bit fucked up right now. Drinking small amounts of baijiu was an unavoidable social obligation. Likewise, I had to eat small amounts of other foods I wouldn't normally touch. This more severe infraction has resulted in nasal allergies and fatigue so far. I am on day 1-2 and stomach pains and insomnia are just beginning. Fortunately I now know how to quickly resolve such problems, and the rest of the journey should not be difficult.

I'll also be getting a shipment of various supplements from the US, including TUDCA. It will be interesting to see the effects. If they're already there when I get home, I may use them to try to speed up my recovery time.

I don't think I need them to maintain normal energy, focus, mood, weight, strength, endurance, etc. But it would be useful to have the capacity to eat other foods without losing a half week.

In sum, I am very very pleased that pork is back on the menu. Also, I think that steaming is the best way to cook the meat for a weakened digestive system, because it cannot burn and it tends to leech out fat. Also, it's quite tasty and tender. Well, as tasty as low fat meat can be. I highly recommend pork and squid with hot rice. Chicken is pretty meh. I haven't yet decided how to reincorporate scallops, or if that's even necessary. I think I will do so cautiously, just to make sure I haven't developed an intolerance for them.

If you don't remember, I suffer from a broad range of reversible symptoms that vary by dietary intake, and whose primary expressions are IBS, fatigue, bad mood, acne and allergies.

I can't comment on the acne aspect yet, since I wore a woolen hat that turned out to be comedogenic. Seems to be clearing though.

One other thing I highly recommend - buy a pair of cheap but cool looking reddish tinted sunglasses and wear them in the evenings to block artificial blue light. It greatly reduces stress from Circadian dissonance and promotes better sleep.

I am considering going back to the doctors for blood tests etc to see how I am. I REALLY hate going there... I admitted in my prev post that I have a type of social phobia, and even just going to the doctors is an ordeal.. going there, then going back another day for the blood test, and then again back for the results...... I'm getting pressured by my dad and others to go, as they want me to get better, despite me saying this isn't going to happen. But I may go just to get blood tests to really just confirm things. I go on about how shit I feel and how shit my health is and saying Accutane has done this to me but I just feel it is not enough. So yes I need some results when I go for a blood test.

What I need to know is, what blood tests should I have done? What are the common things to like out for which are more likely to be wrong being an Accutane sufferer? I remember Modestm saying that "T3" should be tested, anmd Oli Girl said T3 and T4 in conection with the thyroid. Having lookd up about thyroid testing and T3 T4, there are multiple tests for each, as well as other tests that can be done for thyroid via blood test. I'm really confused and need to know what exactly to do. I read yesterday that last year (Feb 2011) new studies showed Accutane causes Coeliac Disease, and I've suspected within the last few years I've had an intolerance to wheat/gluten and getting worse all the time, so I will definately test for this. I want to get tested for B12 and Vitamin D, but I've treid before and they either say the places I go to don't test for these, or they do, but when I get there they say they don't.. so I don't know if I can test for this but I'll try. Blod sugar will need testing, and white blood count and liver. To answer questions on this, my last blood test was early 2010, and one before that was Sept 2009. In Sept 2009 my white blood count was below the range, and liver was out of range. 8 months later in 2010 my white blood was EVEN LOWER and again showed liver was out of range. I fear what the white blood count could be now.

So I really just need to know what are the important things to have tested on a blood test for the situation we are in. I don't want to keep going back to the docs incase I missed something on the blood test that needed testing. Going back to a place where they continually hand out poison to ruin peoples health is not something I want to keep doing.

jmsil, get tested for everything you can. There is little common pattern in results, although I've also bilirubin off and D and white blood cell counts for neutrophils.

Accutane poisoning really does not usually show up with blood tests though. My white blood cell counts are fine lately, but it's almost 20 years later since my first blood tests trying to figure out what was wrong.

D is a more recent thing. Make sure with that you check what the levels really say. There is a lot of debate on what the right level is. Most labs will give you very conservative assessments of what is out of range. Dr. Mercola (look him up on google) will give less conservative assessments.

This is a very sneaky attack, what accutane does, so by all means do the tests but don't expect much.

I had my T3 and T4 tested lately and nothing. Celiac also does not usually show up, although again there are usually symptoms of that and eliminating grain is useful for me and many others. So accutane obviously ruins something in the digestive track, but for whatever reason does not show up on the test.

It's fairly well known that the celiac tests are really for people with the most extreme version of it. They don't work for the people who develop senstivities to gluten.

What we really need are something like tissue sample tests to see if accutane stays in the system. If not, what kind of damage does it do. I recall reading that DNA changes in some way from taking it. That kind of analysis comes from universities for some grad student's paper, not a regular lab.

Having the symptoms, having taken the drug, and also having something like detectable cellular damage would be a lot clearer.

Even though lots of people here have strongly overlapping symptoms, this still doesn't have the attention of any researchers. Until it does, this is going to be very difficult.

In my recent trips to the doctor, and I've avoided them for years on and off too, it's clear that talking about the symptoms such as anxiety and depression will get one farther, even if that also reduces the chance of looking in any depth into the condition. This is because Big Pharma loves creating drugs for depression, no other reason.

The doctors don't give a shit anyway. They just want to push their drugs and if Big Pharma says its safe that's good enough for them, no matter how many times over the years that's proven to be a lie.

Your suffering is just more money for them.

Good luck anyway and let us know how it goes.

@JosephBuchignani Thanks Joseph, it's seems you have difficulty digesting fat as evidenced by the marbled steak.... amongst other things you've told me. I'm surprised you can eat retinol containing foods like scallop and squid.....although there is very little retinol in either. Can you eat turkey? Also do you ever consider buying organic meat? the reason why i say that is because commercially grown animals are usually fed antibiotics and in america are routinely injected with human growth hormone. The produce they are fed is often non-organic corn / grain, which contains both pesticides and herbicides. Humans store fat soluble toxins within their fat cells...so do animals and these pesticides and herbicides can end up in their fat. It's like when farmers feed chickens flaxseed...it increases the omega 3 content of the egg, or when they feed an animal corn it makes the fat a more yellow hue. The fat of a commercially grown animal can be concentrated with toxins such as pesticides, pcb's etc

Organic animals are raised on organic produce in a much better environment, so they tend to have less stored toxins than commercially grown animals for that reason. If you do have a weakened liver in any way these pcb's and dioxins may cause some problems. Just something to look into.