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To the people with hair loss and ED due to accutane :
Listen carefully :
- All the supplements, herbs and bla bla bla, wont help you at all. If some of them will help u, it will be temporary (maybe a week or so)
- Testosteron creams, injections, hormone replacement therapy, androgen pills (ex. PROVIRON) (i've tried them all, they don't work, some work for a short time)
- eating healthy doesn't make any difference either. I've eaten for months just vegetables and fruits,,,with no difference
- exercising doesnt make any difference.
- waiting.....doesnt make any difference.......it's been about 3 years since i stopped taking accutane.
- for those with accutane hair loss : propecia doesn't work, minoxidil doesn't work, hair transplant doesn;t work.
I don't believe we are recovering. I don't believe our bodies are healing etc etc etc.......
Accutane isn't in our bodies anymore. You all have to realise that. Our bodies don't work well anymore because we can't process vitamin A anymore....We all need vitamin A for healthy skin, healthy hair, etc...
We have retinoic defect, from what i've seen. It's 99% permanent, from what i've realised.
For those who think we took a chemo drug,,,,is ok to believe that. But we don't suffer the chemo drug side effects.
We suffer from hypervitaminosis A.
I know a guy, personally, who took alot of vit. A for a longer time. His hair is as thin and dry as mine, his skin is super dry, as mine, super dry eyes, conjunctivitis, osteoporosis, memory loss, etc he has same symptoms as the accutane damaged people.
We need to cure this retinoic defect, to be able to process again vit. A . If we do that, we will be like we used to be.
If not, all the herbs and supplements wont help. I've tried everything, even hormone injections, pills, herbs, healthy eating, fasting, etc etc etc. Nothing works.
Take care!
I can agree with you.
I tried many things with no progress. Blood test is a waste of time.
To the people with hair loss and ED due to accutane :
Listen carefully :
- All the supplements, herbs and bla bla bla, wont help you at all. If some of them will help u, it will be temporary (maybe a week or so)
- Testosteron creams, injections, hormone replacement therapy, androgen pills (ex. PROVIRON) (i've tried them all, they don't work, some work for a short time)
- eating healthy doesn't make any difference either. I've eaten for months just vegetables and fruits,,,with no difference
- exercising doesnt make any difference.
- waiting.....doesnt make any difference.......it's been about 3 years since i stopped taking accutane.
- for those with accutane hair loss : propecia doesn't work, minoxidil doesn't work, hair transplant doesn;t work.
I don't believe we are recovering. I don't believe our bodies are healing etc etc etc.......
Accutane isn't in our bodies anymore. You all have to realise that. Our bodies don't work well anymore because we can't process vitamin A anymore....We all need vitamin A for healthy skin, healthy hair, etc...
We have retinoic defect, from what i've seen. It's 99% permanent, from what i've realised.
For those who think we took a chemo drug,,,,is ok to believe that. But we don't suffer the chemo drug side effects.
We suffer from hypervitaminosis A.
I know a guy, personally, who took alot of vit. A for a longer time. His hair is as thin and dry as mine, his skin is super dry, as mine, super dry eyes, conjunctivitis, osteoporosis, memory loss, etc he has same symptoms as the accutane damaged people.
We need to cure this retinoic defect, to be able to process again vit. A . If we do that, we will be like we used to be.
If not, all the herbs and supplements wont help. I've tried everything, even hormone injections, pills, herbs, healthy eating, fasting, etc etc etc. Nothing works.
Take care!
This is also my experience. No matter what I tried, there was never really an improvement. maybe some symptoms got better but I never felt I was really fighting the root cause. It haunts me every day, that I have taken this drug.
Hello everybody!
I'm new here. As all of you, I'm a post accutane sufferer. My story began many years ago. I took Accutane from October 2006 to February 2007 (40 mg per day) and then from March to April 2007 (30 mg per day). In other words, I took the drug for 7 months. I started to experience some psychological problems in January, at my 4th month of therapy. I had serious digestive problems, hallucinations and wanted to jump out of the windows, but I was lucky as my parents were with me and helped me not doing it. We rushed to the doctor who prescribed me the drug and he told us not to be afraid because " the drug has this side effect which ends when the therapy is over". We trusted the guy and after the therapy things began to change. It is true that my acne is gone and my psychological problems went away but I still suffer from poor digestion and other problems which came out after the end of the treatment. These are:
- Tremendous hair loss + extremely oily hair
- Extremely poor digestion
- Incapacity to gain weight, no matter how much I eat
- Pruritus: my body itches much, especially my legs
- Chronic fatigue
- IPB
- I don't know why but my skin has changed and when the sun shines I get always burnt, while I used to get a wonderful tan before the therapy
- My wounds take too much time too recover. When I stab myself for instance, it might take 2 hours for my skin to regenerate (while bleeding), before the therapy it took only some minutes
The problems in bold are the ones I regard as worst. When I say extremely poor digestion I mean that I can take up to 24-48 hours to digest the food I eat. For instance, I noticed that when I eat tuna, eggs, or milk I won't digest any food (so I won't sleep and everything will be a mess). Yes, it might be linked with vitamin A, in fact I tend to react bad towards it. I visited different doctors and had to face the usual "It's all in your mind, son!" which makes me sad and bewildered every time. I underwent a gastroscopy, a colonscopy and blood tests only to find out I suffer from coeliac disease (even if when I have some gluten I feel ok). Today I'll visit a hepatologist but I can foresee a "It's all in your mind, son!". I'll let you know guys!
Now, about my hair, my scalp became extremely oily: after 1 hour from the wash, my hair got already oily and my scalp itches a lot. I tried everything: shampoos, lotions, 1 month of propecia in 2012, sodium bicarbonate and supplements to no avail. I visited doctors who told me that Accutane never causes this strange "rebound" concerning the hair and the scalp, therefore they concluded "there's nothing else we can do".
About my IPB my urologist pointed out that "impaired digestion leads to IPB" so he conlcuded that "if I want to recover from IPB I need to heal my digestion first".
These 8 years have been crazy for me, I went to several doctors and spent a lot of money. I've tried everything and anything, I'm about to try my second liver-flush by Andreas Moritz (just performed one in January). I came across this forum two weeks ago and managed to read all the posts. I would like to thank people like Stefan Lay who got us started, Chico Esposito who's never giving up and all the others who remind me every time that I'm not alone. I consider all the long-term damage from accutane sufferers to be heroes, since they are living a life which is worse than the one of ordinary people, and they are often misunderstood, because doctors and other people can't see what they can, and they can't feel what they can.
Thanks for sharing your story. I have most of your symptoms. It is interesting, that you mentioned IPB. I have problems with prostatitis but never linked it to Accutane. Your story makes me think, if there is a connection. It is terrible, really terrible.
Hey Roland!
Thanks for answering me. Yes, it is terrible, indeed. Thinking about the fact that the two of us share some side effects, I am wondering if you found any method that helps you struggling with them? I noticed that removing eggs, milk, butter, tuna, cucumber (and pickles) helps digestion a bit, even if not much. For my scalp I don't know what to do since I've tried everything and anything. Should I try with a Shaman? 
I'm just kidding. I was surprised when I read you're from Germany since as far as I know you have great doctors there, what did they tell you about Accutane? Did you try to talk about it with them?
As far as I'm concerned, this forum gives me some sort of relief because I don't feel alone anymore. I am convinced that there is a solution, a way to recover somehow, but I think it has yet to be found. Consider this guys: we the people managed to land on Mars and are planning to build there space colonies in the next future... I can't think, or should I say I can't accept the idea that there's no way to fix a body which was intoxicated by a destructive drug.
The question for all of you is:" What about trying to find a doctor (or a medical researcher) who's not following the "traditional doctors and farmaceuticals' way" and might explain us the true way of action of the drug? I'm thinking about this because surfing the net and making my way through forums, medical journals, it seems that the true way of action of Accutane is still unknown. This does not mean I disagree with what has been said here previously. I'm just saying that maybe there's something else (apart from what we've already found) that we need to know in order to find a solution. Don't you guys think that I'm being too optimistic or gullible! I have my bad periods of depression, sadness and sorrow due to accutane, but I think that we have to try to stay optimistic in order to achieve better results.
Kink
P.S. Sorry for any grammar mistake but it's late here and I need to sleep (if my digestion wants)
Stay away from allopathic doctors there all prostitutes ALL of them , our problems stem from them . Only nature can heal us to a point symptom management is all we can do , it's the blunt truth.
Hello Gladiatoro!
I can see your point, but I can't think about living a life of "symptoms management". All I can do is try to find anything that might help us. Look, I know it's frustrating (it's 8 years I can't sleep more than 14 hours per week), but I think the key is hidden in the drug's "still not completely known" way of action. Think about it carefully, we do know many things about those pills, but we don't know everything. It's ok about keeping the doctors away from this matter (in my previous point I specified that I didn't think about doctors who follow the pharmaceutical factories' rules, which doesn't mean I'm talking about healers or Vodoo rituals. I'm just wondering if there are caring doctors or researchers who think that accutane is just something to be banned and act accordingly). There's something that I don't quite catch for instance, if it's true that we suffer from hypervitaminosis A (it must be true, because new accutane's leaflets reccomend not to assume vitamin A or retinol food during the whole treatment, at my time it wasn't even MENTIONED and my then dermatologist didn't say a word about it), why removing it from our diets does not make us recover? Has anyone a specific, proven answer to this question? Maybe we should stay away from it for several months? As far as I know, somebody here wrote that our bodies have lost the ability to manage vitmain A intake. I know that many people with food allergies managed to recover from them by assuming just increasing doses of food they were intolerant or allergic to. Has anybody tried anything like this?
Look, I know how it feels like Gladiatoro, I underwent this treatment 8 years ago. From that time, this story became part of my ordinary tragedy. It's like feeling dead inside. It's a dark jail of emptiness, absurdity, nonsense. It's like living a nightmare, and no one can understand anything about it. When I look at the mirror, I can't see the guy I used to be. I'm not telling you any sermon about life and happiness. I'm just insisting on not giving up, thanks to this forum, many steps were taken, maybe at a slow pace. But we're moving.
Hope to hear from you soon guys!
P.S. Roland, did you read my message?
Kink
Hey Roland!
Thanks for answering me. Yes, it is terrible, indeed. Thinking about the fact that the two of us share some side effects, I am wondering if you found any method that helps you struggling with them? I noticed that removing eggs, milk, butter, tuna, cucumber (and pickles) helps digestion a bit, even if not much. For my scalp I don't know what to do since I've tried everything and anything. Should I try with a Shaman? I'm just kidding. I was surprised when I read you're from Germany since as far as I know you have great doctors there, what did they tell you about Accutane? Did you try to talk about it with them?
As far as I'm concerned, this forum gives me some sort of relief because I don't feel alone anymore. I am convinced that there is a solution, a way to recover somehow, but I think it has yet to be found. Consider this guys: we the people managed to land on Mars and are planning to build there space colonies in the next future... I can't think, or should I say I can't accept the idea that there's no way to fix a body which was intoxicated by a destructive drug.
The question for all of you is:" What about trying to find a doctor (or a medical researcher) who's not following the "traditional doctors and farmaceuticals' way" and might explain us the true way of action of the drug? I'm thinking about this because surfing the net and making my way through forums, medical journals, it seems that the true way of action of Accutane is still unknown. This does not mean I disagree with what has been said here previously. I'm just saying that maybe there's something else (apart from what we've already found) that we need to know in order to find a solution. Don't you guys think that I'm being too optimistic or gullible! I have my bad periods of depression, sadness and sorrow due to accutane, but I think that we have to try to stay optimistic in order to achieve better results.
Kink
P.S. Sorry for any grammar mistake but it's late here and I need to sleep (if my digestion wants)
Hi Kink,
I share most of your symptoms but not all of them. My worst side effects are dry skin, hair loss, dry hair, dry eyes, prostatitis, fatigue, joint pain, extreme sun sensitivity. I do not have problems with digestion. Over the last years I tried many things to overcome those sides or reverse the accutane effects as a whole. But to be frank, nothing really worked. There are 2 things, that seem to help with my dry skin. First is vitamin D supplement and the second is zero alcohol intake. But clearly that does not reverse accutane, it only makes some of the symptoms less worse. I would call it symptoms management.
Yes - the German healthcare system is considered to be quite well organized if you compare it to other countries. Nevertheless accutane gets subscribed quite often in Germany. Maybe not so easily as in USA but is still a common medication for severe acne.
I talked to some specialists about accutane like Prof. Melnik who published the article about Isotretinoin and FoxO1 and other doctors. I always get the response, accutane can not be the cause of your problems. Or: "If your skin is dry, put some moisturizer on it", "You have no scars, accutane worked quite well for you". And so forth. I am sure this will all sound familiar to you. One doctor even contacted Roche, to find out if there is a possible solution. And the answer was, there is no solution.
I am more and more convinced, that Accutane damaged our system in an irreversible way. I don't think it can be reversed. And I don't think, Accutane is still in our bodies. My last walk will be to a miracle healer. I have given up on the other options.
Cheers
Roland
Hi you guys!
First of all, Gladiatoro, thanks for your likes and interest. I do not know if there is a solution to this matter or not, either way, it's better to face it all together. As to you Roland, I have some helpful suggestions about IBP (in case you don't know them yet). Thanks to my urologist I found some tricks that can help in handling the whole issue. Basically they are about diet and lifestyle (of course he prescribed me also very light medicines, but I'm not here to suggest or prescribe drugs). What helps me the most is tomatoes (especially red ones). They are full of Lycopene, which is an element that helps "deflate" and reduce the inflammation. When I have lots of tomatoes in form of sauce or raw ones (no ketchup or anything like that) urination and sexual intercourse get way better. You have to stay away as much as possible from chocolate and artificial sugars (if you're German, try to avoid things like Berlineri or Krapfen I think these are their names). However, it's important not to stick too much to the diet. Just try to be more moderate on "forbidden" food's consumption. But what matters the most is tomatoes, really, if you eat them for 2 weeks you can see a discrete improvement. The only problem is that tomatoes do contain lots of vitamin A so if you're like me you can't have tons of them. I try to stay under the suggested daily amount. I was also told that bathing in (low temperature if possible) water helps. But I can't really say if it helps or not, maybe a bit. And it's important to sleep in a right temperature place. Urologists even suggest sleeping naked (at least without pijama's trousers) and I met patients who told me that it actually helps. I hope I told you something you didn't know yet Roland. Now that I know about Fox0 I'll try to find something out.
See you soon
Kink
P.S. I try to connect every day, if I reply late is because I'm very busy these days
Roland 1968 what was your dosage ? How long did you take it ?
I had 2 courses. Each course approx 4 months. Total dosage 120mg/kg. Enough to sink a battleship, if you ask me.
I don't believe this question is important at all. The talks about "You had side effects cause you took large dose...if you take low dose, you'll be ok" or "you took it for too long...." are just bullshit.
It's all about how your body reacts to accutane. Some people take it for 7-8 months at doses of 70-80mg/day and then they acne is back, meaning accutane didnt do any damage to their bodies. Some people take low dose of accutane for few weeks and then the permanent side effect begin.
I took it for just 3 months, only 20mg/day, and i'm the sickest person from this forum, I got almost all the bad sides, including : dry hair, hair loss all over the body, itchy scalp, conjunctivitis, dry eyes, seborrheic dermatitis, E.D., fatigue, memory loss, brain fog, depression, insomnia, rectal bleeding, low body temperature, muscle weakness, liver damage and others. I wanna mention the fact that I had none of these symptoms before accutane.
It's all about....your "luck".
And it's useless to say that, if I know what will happen, I would have never touched accutane. The doc told me I will be ok.
People! Don't put your faith in doctors! Many know nothing about this job! Study very very well on the internet about any drug that they prescribe to you. It's about your life.......they don't care!
Even one pill is too many it's pure ^&*(&^ POISON but what would one expect from ALLOPATIC INC. CUT / POISON / BURN is the name of the game they don't give a &*() about what happens to you , you go to a derm and they treat pimples with CHEMO &*()))) brilliant , Dr Stefan Lanka a brilliant scientist from Germany said acne needs to come OUT think about that . The whole system is a &*()_*& joke. Designed for repeat customers nothing more nothing less. It's all lies lies and more &*()** ing lies. It's %^&*( ing barbaric , primitive and corrupt .
Hey guys, here with an update.
Diagnosed with Crohn's around two weeks ago (finished my Accutane course just shy of two years ago). I've been to about five different doctors in the last four months trying to figure out what's wrong with me, and was dismissed multiple times before being diagnosed with Crohn's Disease. Been on steroids now for two weeks (Entocort) with minimal side effects and minimal results. Muscle aches, joint pain, and severe fatigue continued to the point where I sought out yet another doctor for yet another round of blood tests. This time, with a Crohn's diagnosis to help persuade him, I was able to get the doctor to check some things that previous doctors didn't look at. A couple days ago I got a call back informing me that my iron levels were low. Not low enough to be be recognized as anemia when checking blood cell count, but still well below where they ought to be. Having already cut out gluten, added sugar, and complex carbs, I've now switched to a high animal protein diet rich in iron, as well as starting supplements.
I've seen great improvements since switching my diet and cutting out all proceeds food (with the exception of high quality whey protein isolate), but am still nowhere near where I want to be. My CRP levels aren't that high (10, the very upper limit of acceptable), but the arthritis in my hands is getting kinda ugly (23 year old male, should not have any arthritis). With all my aches and pains I believe that I'm severely vitamin D deficient in addition to being iron deficient, but in Canada my health coverage won't cover that test, so I'll have to pay for it privately to confirm. Haven't seen the sun in weeks, so even with high dose vitamin D supplements I doubt I'm really getting my levels up very quickly.
At this point, after having felt so shitty for weeks, I'd happily settle for "just" hairloss, thin skin, wrinkles, hyper pigmentation, and depression. The body aches and weakness caused by vitamin and mineral deficiencies are a whole new level of misery. I'm praying that by summer, with some help from iron supplements, vitamin D, and sunshine, I'll at least be back the level of health I was as recently as September.
Hey guys, here with an update.
Diagnosed with Crohn's around two weeks ago (finished my Accutane course just shy of two years ago). I've been to about five different doctors in the last four months trying to figure out what's wrong with me, and was dismissed multiple times before being diagnosed with Crohn's Disease. Been on steroids now for two weeks (Entocort) with minimal side effects and minimal results. Muscle aches, joint pain, and severe fatigue continued to the point where I sought out yet another doctor for yet another round of blood tests. This time, with a Crohn's diagnosis to help persuade him, I was able to get the doctor to check some things that previous doctors didn't look at. A couple days ago I got a call back informing me that my iron levels were low. Not low enough to be be recognized as anemia when checking blood cell count, but still well below where they ought to be. Having already cut out gluten, added sugar, and complex carbs, I've now switched to a high animal protein diet rich in iron, as well as starting supplements.
I've seen great improvements since switching my diet and cutting out all proceeds food (with the exception of high quality whey protein isolate), but am still nowhere near where I want to be. My CRP levels aren't that high (10, the very upper limit of acceptable), but the arthritis in my hands is getting kinda ugly (23 year old male, should not have any arthritis). With all my aches and pains I believe that I'm severely vitamin D deficient in addition to being iron deficient, but in Canada my health coverage won't cover that test, so I'll have to pay for it privately to confirm. Haven't seen the sun in weeks, so even with high dose vitamin D supplements I doubt I'm really getting my levels up very quickly.
At this point, after having felt so shitty for weeks, I'd happily settle for "just" hairloss, thin skin, wrinkles, hyper pigmentation, and depression. The body aches and weakness caused by vitamin and mineral deficiencies are a whole new level of misery. I'm praying that by summer, with some help from iron supplements, vitamin D, and sunshine, I'll at least be back the level of health I was as recently as September.
DO NOT take vitamin D without magnesium. Accutane alters the calcium levels in the blood...taking vitamin D could make that calcium goto unwanted places (joints) and cause many worse problems.
we all have a collagen problem... its related to crohns as well.
Magnesium and Manganese
Anyone completely cured yet?
My new doctor says I am a genetically bad detoxer, MTHFR and pyrolurria and things like that. Anyway, zinc is my fave supp at the moment. In the last month I have noticed improved confidence and memory when speaking and socialising. Downsides, are insomnia, and weird tingling hands and feet.
Hi Timatron
As far as I know, the only ones who claimed they recovered are those who tried liver flushing. There's also a video on youtube about it that you can find here [Edited link out]However many others tried it to no avail. I'm actually about to try my second flush but after the first nothing has really changed. I'm waiting for my liver test results in 2 weeks (I'll let the forum know if something comes out). Apart from that, I tried everything and anything unsuccessfully, but I never give up. People here managed to find out that accutane damages FOX01 which is a part of our DNA. As I mentioned in my last post, we should try to understand the exact way of action of the drug before thinking about any solution. I think that thanks to this forum great steps have been taken, we just have to stick together, be patient and keep it up. I know it is difficult to live this way, but in order to achieve something we need to resist. Timatron, would you mind writing me a list of your side effects?
Kink
Hey guys, here with an update.
Diagnosed with Crohn's around two weeks ago (finished my Accutane course just shy of two years ago). I've been to about five different doctors in the last four months trying to figure out what's wrong with me, and was dismissed multiple times before being diagnosed with Crohn's Disease. Been on steroids now for two weeks (Entocort) with minimal side effects and minimal results. Muscle aches, joint pain, and severe fatigue continued to the point where I sought out yet another doctor for yet another round of blood tests. This time, with a Crohn's diagnosis to help persuade him, I was able to get the doctor to check some things that previous doctors didn't look at. A couple days ago I got a call back informing me that my iron levels were low. Not low enough to be be recognized as anemia when checking blood cell count, but still well below where they ought to be. Having already cut out gluten, added sugar, and complex carbs, I've now switched to a high animal protein diet rich in iron, as well as starting supplements.
I've seen great improvements since switching my diet and cutting out all proceeds food (with the exception of high quality whey protein isolate), but am still nowhere near where I want to be. My CRP levels aren't that high (10, the very upper limit of acceptable), but the arthritis in my hands is getting kinda ugly (23 year old male, should not have any arthritis). With all my aches and pains I believe that I'm severely vitamin D deficient in addition to being iron deficient, but in Canada my health coverage won't cover that test, so I'll have to pay for it privately to confirm. Haven't seen the sun in weeks, so even with high dose vitamin D supplements I doubt I'm really getting my levels up very quickly.
At this point, after having felt so shitty for weeks, I'd happily settle for "just" hairloss, thin skin, wrinkles, hyper pigmentation, and depression. The body aches and weakness caused by vitamin and mineral deficiencies are a whole new level of misery. I'm praying that by summer, with some help from iron supplements, vitamin D, and sunshine, I'll at least be back the level of health I was as recently as September.
Hey dude I'm 20, been on 2 rounds of accutane (one in 2012 and one in 2013) and I have all of your side effects. Reading your posts, I'm assuming accutane affected both you and I in the same way. A week after I finished my second round of tane, in Nov. 2013, I had hair loss which has since subsided for the most part. Starting in August 2014, about 10 months after I completed my second round of tane, I began getting muscle and joint aches which have gotten progressively worse. I'm just curious as when you began noticing the deterioration of your joints? Since mine starting hurting 10 months after I finished my course I'm not even 100% accutane caused it.
Hey guys, just checking in with where I am at.
Over these past years I have been so fixed on nutrition and supplementation that I really ignored the blatantly obvious factors that I had been battling depression on my own. I had insomnia which again I related to malnutrition from accutane, mind fog which I also associated to nutrition/accutane,IBS,ED...joint popping back pain...you name it. I was so blind sided by the fact that accutane was a direct cause of all my appearance and cognitive issues. this past week has led me to believe it is more of an indirect cause of them.
I believe accutane gave me a depressive side effect while on the meds. Post meds I haven't been able to get out of that funk and the depression has gotten worse.
I have always known that Pot, Alcohol, even adderall were the only medications that allowed me to feel slightly normal for a day. I now believe that the peoples along with myself that claim alcohol pot..whatever have "cured" them are starting to be real. Bodybuilders..working out/anti stress...etc.
About a week ago I got a prescription for 5 mg of Cipralex a selective serotonin reuptake inhibitor (SSRI). Cipralex is generally used to treat depression, OCD, and generalized anxiety disorder. I dumped all my nutritional supplements as well. I take one 5mg pill a day now.
After a week of being on anti depressants, and 3 weeks of NoFap (this helps with anxiety as well) I have noticed:
- No more hairloss
- Psoriasis/seb derm is the clearest it has ever been
- Rosacea is almost gone (im also using finacea gel)
- jaw and ankle popping have stopped popping
- skin feels moist
- I ate like shit these past couple days and have had the greatest most rewarding poos of my entire life. srsly.
- I am getting spontaneous erections in the day, and morning wood...my libido is back. (usually anti - depressants can have a lowering libido side effect)
- back pain/shoulder pain lowering it feels like i can hold my head up in a better position
- what I really notice and other friends as well is that my eyes are more "alive"... I no longer have white bumpy lines and dark patches underneath my eyes. I can open them more and I just look younger I think.
- and the best thing I have noticed...NO MORE DAM BRAIN FOG. I am optimistic about my future now...have fun talking to people etc.
I really stress that everyone here look into anti depressants. At first I thought i was in a manic funk from the SSRI, but people have commented on my appearance and my Dad was the one who told me my jaw stopped popping during meals. For me its starting to be happy mind = healthy body. We have been through a lot due to this drug so please look into anti depressants. I'm not claiming them to be a cure for all of our struggles but over the past week i can't believe what is happening to me, i'm almost in tears... it feels like i somewhat have my life back.
After telling my doctor of my accutane sides diminishing, she said that serotonin and collagen production can be linked together. If anyone wants to expand on that feel free = ) .
I will check back in to let you guys know if my symptoms are still diminishing.
Cheers
you guys should invest your time in researching nuclear factor kappa beta. seems pretty viable to me. don't have much time to post now adays.
easiest way to inhibit this pathway is to just eat certain medicinal herbs. for instance studies show turmeric is a great alternative to crohn's/UC drugs like mesalamine or pentasa. 3500mg or 1-3 tsp per day. look up sayer ji for info
Anyone completely cured yet?
My new doctor says I am a genetically bad detoxer, MTHFR and pyrolurria and things like that. Anyway, zinc is my fave supp at the moment. In the last month I have noticed improved confidence and memory when speaking and socialising. Downsides, are insomnia, and weird tingling hands and feet.
interesting. maybe you had some sort of copper dysregulation. zinc deficiency can aggravate that. i prefer getting my zinc from oysters
At this point, after having felt so shitty for weeks, I'd happily settle for "just" hairloss, thin skin, wrinkles, hyper pigmentation, and depression. The body aches and weakness caused by vitamin and mineral deficiencies are a whole new level of misery. I'm praying that by summer, with some help from iron supplements, vitamin D, and sunshine, I'll at least be back the level of health I was as recently as September.
DO NOT take vitamin D without magnesium. Accutane alters the calcium levels in the blood...taking vitamin D could make that calcium goto unwanted places (joints) and cause many worse problems.
we all have a collagen problem... its related to crohns as well.
Magnesium and Manganese
also get adequate A and K2 to prevent soft tissue calcification from the D. how does accutane alter serum calcium? really interested in reading a study