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Repairing the long-term damage from Accutane

 
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(@timatron)

Posted : 10/24/2014 1:38 am

 

first it doesn't last 4 month, it last 6-8. and i already answered this question many times here, you can find it by yourself in every posts i made.

8 months??????? what planet are you on? cmon now... if you cant get even this fact straight, i cant help you.

From the American academy of dermatology:

Will isotretinoin cure me?

About 85% of patients see their skin permanently clear after one course of treatment. A course of treatment generally lasts about 4 to 5 months.

The recommandations for dosage and duration of treatment haven changed over time. I took accutane 14 years ago and it was strongly recommended to reach a cumulative dose of 120mg/kg. Most people did not reach this withinn 4 months and took it longer or started a second course.

I think you will find that its taken till acne is gone. 2 mths? Great. stop. 5 years? Finally. Stop.

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(@Anonymous)

Posted : 10/24/2014 1:39 am

 

and you can keep your stupid studies for yourself, modern medicine is crap, they don't even understand 1/10 of how the body work, 60 years ago we didn't even had computer, modern medicine is very recent, nature and humans are here for far longer than that, we don't know better than it, modern pharmaceutical medicine is no better than it's beginning with "snake oil".

and if they knew anything about physiology they would have eradicated disease's, but instead of that they poison & kill people, humanity never had been so sick and unhealthy than today, 20% of child are obese, never had been so many cancer, diabete, heart disease, etc.. even babies start to born with cancer now. the body work as a whole, studying isolated part thinking you'll understand the root cause of health issue is highly stupid, specially when you ignore the lymphatic system. soon they'll tell us that disease are pharmaceutical deficiency, oh wait they already do that.

Life expectancy in western societies has never been higher than today. This is also because of the access to a modern healthcare system. I don`t think, that your exaggerations and simplifications are very helpful in the discussion anonyy.

Your wrong, first i talked about diseases, we never have been so sick, and never had been so many death by diseases than today it's a fact. And if you want to talk about life expectancy we don't know yet what modern medicine & agriculture & modern food in general will cause to our life expectancy. Old people in your life expectancy statistics ate a good diet, without modern crappy agriculture (& animal "farm") who is nothing more than handling vegetal pathology with tons of chemicals & artificial gene manipulation, we destroyed the soil, biodiversity and life thanks to the stupid companies who sold war residue as pesticide & fertilizer to make profit, wasn't enough to kill people, now we even entrust those mass murderer companies like monsanto to create foods for us into their labs, it's so funny how humans are stupid. Humans violated every single law of nature and they still don't understand why they have issues. Those guys in your statistics also lived a life with less drugs (pharmaceuticals), vaccines & other polluants, you'll see the results in life expectancy in this new generation. And you can already see that children are far more disease afflicted than before, they even born with those disease now.

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(@Xavier Gil)

Posted : 10/24/2014 1:45 am

Then youre pretty much saying theres no help. What else is there? If a supp or natural chemical cant help then what are you waiting for? Another drug?

Noone is going to spend millions of dollars on research for us unless there is a patentable drug at the end of the tunnel. Do you think at the end of the research they find "hey, regular massages cure accutane poisoning!" or "regular exercise does too" or "crystal therapy helps accutaners!"

No. Those things wont be researched. And they don't help specific accutane poisoning, only general health a bit, I've tried them.

I have already found some supplements to help, which is why I will continue along this path.

If supplements dont work, then nothing will. Theres nothing else. And I'm not taking another drug. And if a drug DOES find to be accutane healing, there will certainly be an equivelent in nature or supplemental form.

As Chico said, nobody has found any suplement that works. There's a placebo effect and afterwards the degeneration comes back. If there's no solution we must accept it, but that doesn't mean that we must stay at home crying. As someone said, doctors believe that this forum is bullshit. I said AH to the last doctor that told me that. I don't know what we can reach if we create a isotretinoine association but I am sure that we will get more results than discussing in this forum about the benefits of the cannabis oil, which is totally stupid.

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MemberMember
180
(@roland1968)

Posted : 10/24/2014 2:01 am

 

and you can keep your stupid studies for yourself, modern medicine is crap, they don't even understand 1/10 of how the body work, 60 years ago we didn't even had computer, modern medicine is very recent, nature and humans are here for far longer than that, we don't know better than it, modern pharmaceutical medicine is no better than it's beginning with "snake oil".

and if they knew anything about physiology they would have eradicated disease's, but instead of that they poison & kill people, humanity never had been so sick and unhealthy than today, 20% of child are obese, never had been so many cancer, diabete, heart disease, etc.. even babies start to born with cancer now. the body work as a whole, studying isolated part thinking you'll understand the root cause of health issue is highly stupid, specially when you ignore the lymphatic system. soon they'll tell us that disease are pharmaceutical deficiency, oh wait they already do that.

Life expectancy in western societies has never been higher than today. This is also because of the access to a modern healthcare system. I don`t think, that your exaggerations and simplifications are very helpful in the discussion anonyy.

Your wrong, first i talked about diseases, we never have been so sick, and never had been so many death by diseases than today it's a fact. And if you want to talk about life expectancy we don't know yet what modern medicine & agriculture & modern food in general will cause to our life expectancy. Old people in your life expectancy statistics ate a good diet, without modern crappy agriculture (& animal "farm") who is nothing more than handling vegetal pathology with tons of chemicals & artificial gene manipulation, we destroyed the soil, biodiversity and life thanks to the stupid companies who sold war residue as pesticide & fertilizer to make profit, wasn't enough to kill people, now we even entrust those mass murderer companies like monsanto to create foods for us into their labs, it's so funny how humans are stupid. Humans violated every single law of nature and they still don't understand why they have issues. Those guys in your statistics also lived a life with less drugs (pharmaceuticals), vaccines & other polluants, you'll see the results in life expectancy in this new generation. And you can already see that children are far more disease afflicted than before, they even born with those disease now.

No I don't see this development. Childhood mortailty in Germany is at its lowest level in 2012. And this is the most recent data.Statistical data is not yet available for 2013.

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0
(@Anonymous)

Posted : 10/24/2014 2:03 am

I didn't talked about mortality.

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MemberMember
180
(@roland1968)

Posted : 10/24/2014 2:08 am

 

first it doesn't last 4 month, it last 6-8. and i already answered this question many times here, you can find it by yourself in every posts i made.

8 months??????? what planet are you on? cmon now... if you cant get even this fact straight, i cant help you.

From the American academy of dermatology:

Will isotretinoin cure me?

About 85% of patients see their skin permanently clear after one course of treatment. A course of treatment generally lasts about 4 to 5 months.

The recommandations for dosage and duration of treatment haven changed over time. I took accutane 14 years ago and it was strongly recommended to reach a cumulative dose of 120mg/kg. Most people did not reach this withinn 4 months and took it longer or started a second course.

I think you will find that its taken till acne is gone. 2 mths? Great. stop. 5 years? Finally. Stop.

This would have been a good strategy. But clearly this is not what was recommended to me by the doctor. I took accutane for many weeks after the acne was gone. And from discussions with other accutane sufferers I know, I was not the only one.

 

I didn't talked about mortality.

If you don't see the link between life expectany and childhood mortality then I can not help you.

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0
(@Anonymous)

Posted : 10/24/2014 2:10 am

if you think it's accurate to compare childhood mortality & global life expectancy can't help you either. even a kid born with cancer can survive and die at age 10, you need to think a little deeper.

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MemberMember
180
(@roland1968)

Posted : 10/24/2014 2:15 am

if you think it's accurate to compare childhood mortality & global life expectancy can't help you either. even a kid born with cancer can survive and die at age 10, you need to think a little deeper.

Have you read my posts at all?

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(@Anonymous)

Posted : 10/24/2014 2:17 am

You think i answer without reading what you said?

It's not a debate, you can't deny that children and even adults are far more afflicted by disease than last couple decade, i don't know what you are trying to do here.

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MemberMember
8
(@timatron)

Posted : 10/24/2014 2:22 am

Cannabis oil is not totally stupid.

Anyway, here is a list of symptoms that I'm trying to find a cure or at least treatment to.

Remember, in medicine, the definition to cure, means to totally be fixed, with no more intervention.

To treat, means to manage the ongoing symptoms, usually with a little pill.

Trying to treat or cure:

IBS/diarrhoea - brought on within a month of starting roaccutane. Currently managed with fodmap diet, low histamine diet, Lauricidin sometimes, and slippery elm sometimes. Tried millions of things without benefit for a long time.

Wrinkly/dry/fat loss facial skin - brought on within a month of starting roaccy. This is the current one I'm trying to find a cure to, where the hell is it?? Does noone know yet??

Depression - brought on maybe a year after I stopped roaccy. Hardly an issue now, except during extreme stress.

Anxiety/brain fog/cant think - already had this before roaccy, but probably tripled in the years afterward. Found multiple supps to help, still experimenting.

Chronic fatigue - hit 2 years after. From experience with different neurotransmitter drugs, is probably actually something to do with the brain, rather than physical fatigue which is what I thought for at least 5 years. When I find my perfect cure for brain fog is when this fatigue symptom will vanish. However, I will add, I have high cortisol, and low testosterone which are both fatigue related.

Know of any cures for me guys? Guys?

I've tried hundreds of supplements to find only a few gems that help. But it was worth it so far.

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MemberMember
18
(@accutainted)

Posted : 10/24/2014 6:12 am

How can docs say this forum and many others are bullshit when you have hundreds of people complaining about the exact same side effects years after taking the drug. It just doesn't make sense. SO FRUSTRATING!!!

A clean easy to navigate site/forum with all the scientific studies showing negative sides of accutane is definately needed. Docs are only interested in the science not the living proof.

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MemberMember
44
(@nick-ryan)

Posted : 10/24/2014 12:51 pm

I have to agree with Xavier at this point. And frankly, I'm tired of seeing the abusive comments being posted by people here.

The update to this point is: the people still talking here have not cured themselves, only treated their symptoms, as if they return to a "normal" diet, all of their symptoms come back. That is the only fact. Diet absolutely helps if not completely treats all side effects, but you will have to limit yourself 1 at a time and see what you can still get away with eating without experiencing side effects.

Joseph has left this forum as he got a solid, repeatable diet down of rice/fish/supplements that helped him, and no longer needs to visit the forum. The best advice I can give right now for immediate relief is change your diet and stop eating processed/fatty/grainy foods whenever possible and exercise/get sun/drink a lot of water.

Feel free to continue to postulate on a cure, but fighting over trivialities and being abusive is not what this forum should be about.

PM me if you have any particular diet or other questions and I'd be happy to answer them.

Cheers

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153
(@crank92)

Posted : 10/24/2014 7:09 pm

Just a quick post:

Timatron if you're having gastric issues, give the 'Specific Carbohydrate Diet' a go. Reduced my symptoms by 90% in 3 days. After a month, sticking to the diet gave me complete resolution of symptoms. Now 2 years later, I can stray quite heavily without issues. However, I'm still not 100% but somewhere >90%

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0
(@Anonymous)

Posted : 10/25/2014 12:56 am

Of course if you return to a crap diet you'll feel bad again, specially if you had a bad diet for 20 years and only a good one for 6 month. When you stop eating those highly toxic foods your body defense about them fade away, and when you take them back you feel bad far more faster.

And why go back to eating toxic food when you felt the amazingness of eating physiologicaly? for nothing in the world i'll do that.

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(@Xavier Gil)

Posted : 10/26/2014 6:55 am

I don't have any of your symptoms. I only suffer joint pain and discs degeneration. Suplements and diets don't work to me. Do you know anyone who has treated succesfully this side effects with any suplement? Not me after years looking for solutions. That's why I am suggesting to go further

Perhaps your side effects let you believe in miraculous suplements that can treat or cure them. That's not my case. Anyway, that doesn't mean that we can't work together and help other people in the future. When I started to investigate isotretinoine, I would have loved to find an association, website or whatever with all the information that I needed. This and the other forums are nothing but forums. A serious documentation needs a serious project and people working on it. That's what I was suggesting and that's what we need.

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MemberMember
153
(@crank92)

Posted : 10/26/2014 8:25 am

Another update:

Only think this is worth mentioning because of how much trouble it gave me in the past.

As some of you are aware I LOVE COFFEE. But after Accutane my GI tract hated it. 3 months after 'tane I could take literally a sip and I would have to find a toilet within 2-3 minutes or risk sh*tting myself.

Prior to RSO and after about 18 months of the SCD I could tolerate coffee a lot better. I could have coffee in the mornings BEFORE eating without much problem. But having coffee after having eaten was still a substantial risk.

Now about 2 months into RSO; yesterday whilst doing one of the Nazi camp-esque work shifts of 15hr/day I ended up just going f**k it lets have a sh*t ton of coffee to get me through the evening. So I ended up having 5 double espresso's between 6-7pm (not exaggeration; I'm an addict, plain and simple) . Side effects: I worked like a demon up until when I finished at 1am. Nothing else.

I'm not saying coffee (caffeine) never gives me problems. The worst it gives me now I have found is an urge to go and a slightly damp turd (apologies for graphic nature).

Sadly, still nothing more than vaping has given me on the sexual sides.

Xavier: If you are planning on starting some sort of activism in this regard, keep me in the loop please. Before RSO I was a more active in that regard. However, being stoned most of the time whilst holding a job and trying to get my med applications done on time is proving pretty taxing currently.

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Accutainted, Accutainted, Accutainted and 3 people reacted
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(@Xavier Gil)

Posted : 10/27/2014 6:13 am

Xavier: If you are planning on starting some sort of activism in this regard, keep me in the loop please. Before RSO I was a more active in that regard. However, being stoned most of the time whilst holding a job and trying to get my med applications done on time is proving pretty taxing currently.

Great, we are counting on you. I will keep you informed.

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1
(@pizzaface10)

Posted : 10/27/2014 1:33 pm

It has been three months since I finished my 2 and a month course of accutane and sadly I've seen minimal improvement. My oil has come back, my acne is still there and frankly I don't care that much. I suffer from mild depression, and anxiety which I know are caused bythe side effects I'm suffering such low libido and weak erections most of the time. I also feel very emotionless. I know the anxiety isn't making things help. I don't feel myself and sadly I believe the effects are permanent as I think if I were to get better it would've happened by now. I guess I just have to keep waiting but its hard to understand what's happening to me as I'm only 18 and still a virgin. I'm not mad that I took accutane but I'm mad that I developed these horrible side effects. I also started seeing a psychiatrist who is minimally helping but I know he can't fix my health problems. Since I wasn't on accutane that long I wish that all these problems would get better but to me all the good days are in the past. These last three months have been pure hell but I have to stay positive even though I worry a lot

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(@Anonymous)

Posted : 10/27/2014 3:21 pm

If you want your body to heal start by avoiding the most toxic food of all: grains (specially who contain gluten) & dairy (fried & processed foods also). Since you took accutane "only" 2.5 month and not too much time passed it can be enough i think. If i knew back then what i know now i would have saved many years of my life.

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1
(@pizzaface10)

Posted : 10/27/2014 5:01 pm

What do you suggest I add to my diet? And of course if removing dairy and grain from my diet actually helps I'm guessing I'll have to continue on that diet forever and give up the foods I love which means I can never return to a normal teenage life

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(@Anonymous)

Posted : 10/27/2014 5:05 pm

Yep you'll have to do that for some time. But when you'll feel a lot better and try again those foods, you'll feel the difference and you won't want them again. If you love those foods it's because they contains opioids.

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153
(@crank92)

Posted : 10/27/2014 5:09 pm

Pizzaface10: My psychological sides were absolutely terrible until about 8 months after then started to do a U-turn. I would say about 12-14 months after I was back to normal. There is still hope for you yet.

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MemberMember
1
(@pizzaface10)

Posted : 10/27/2014 6:23 pm

What about the low libido? And little to no morning wood. That's my main concern and apparently that is permanent.

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MemberMember
33
(@ihateaccutane)

Posted : 10/28/2014 4:54 am

What about the low libido? And little to no morning wood. That's my main concern and apparently that is permanent.

I remember my first ED. I had hourglass penis shape and total impotence. Now it is better. Dont think that things will go worse..

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MemberMember
1
(@pizzaface10)

Posted : 10/28/2014 8:49 am

Did you do anything to improve it? Or did you just wait it out? And can you have sex normally?]

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