i could careless about the side effects. i only finished 1 month of tane but had to stop cause my kidneys were high...but i still wanna continue...and will continue. i just want normal skin. no acne, no oily skin

I feel low right now.. I need some sort of escape.. there doesn't seem to be any real way out of this...

Joe, I need your thoughts on this. It's probably something that won't go anywhere but I just need something else to believe might work,. I don't know where oy ulive, but on I'm a celebritiy get me out of here, they stay in the jungle for 3 weeks eating rice and beans every day. they may eat a little more food on top of this if the celebrities win extra food, but otherwise it is only rice and beans. now it has to be rice and beans for a reason. it surely has to give you every vitamin and mineral you need. with that sort of show the nutritional balance has to be right. i don;t know though if they use white or borwn rice, or what variety of beans. i know it would be ver boring to eat just these foods, but they do it. maybe this could be an elimination diet? I'd rather eat this then the sea food and animals. obviosuly the rice is already something you have anyway. thing is im sure im allergic to rice, but maybe the rice (which was made in the pasta i mentioned) was brown, and maybe white rice is different, and may not react badly too it? or maybe rice is just rice, and i will. i know this probably sounds desperate but i am right now. i need somethig to work. joe - your thoughts on this would be good.

 

Hey brother, I feel for you. You can reach me faster by PM, BTW.

It's very unlikely that you're allergic to white rice. But that's easy to test. Just eat nothing but white rice for a day and see what happens.

White rice is hypoallergenic. It's used to make pills casings and stuff. It was probably something else in the pasta, or maybe the hull of the brown rice.

The difference between white rice and brown rice is this: the white part is the inside, and the brown part is the outer "shell". All plants have toxic defenses to prevent animals from eating them. Rice's defenses are in the brown shell. When that's removed, the white part is pure starch.

Rice and beans is an elimination diet, but it's not a good elimination diet. You won't be able to survive on it. 3 weeks wouldn't kill you, but you'd definitely be losing energy. Humans are designed to go through lean times where good food is scarce, so they're not permanently hurting the celebrities by feeding them a suboptimal diet for a short time.

I think I recall you're a vegetarian. If so, I'd check out the book the 4 Hour Body by Tim Ferriss. I think it has some good tips on eating vegetarian and still getting everything you need. You're probably suffering from micronutrient deficiencies, like most vegetarians. He goes into that, if I recall correctly. He provides a good vegetarian elimination diet.

Now here's the problem. In my case, being a vegetarian is simply not possible, because my digestion is so damaged. Meat is way easier to digest than 99% of plants. I don't know how messed up your digestion is, so I can't tell you whether vegetarianism is a viable option for you.

"Are any of you reading, or have you read, books on dealing depression?

I've read some in the past, but I think I need to apply the tools better.

We certainly need to find a way to better deal with this because we cannot expect a change in the coming future.

But I know it's hard.

I had one of those days yesterday.

Suicidal and all."

Yes, I have read many many such books. They are valuable and interesting, but they will not save you when the biological wave overwhelms you, because your energy will drop below the threshold required to resist.

The best solution is to be able to retreat, rest, avoid boredom with entertainment, and recover your biological health. The mental health will follow.

When I get flattened, I know how long it will take me to get back up again, and I just grimly wait it out, while minimizing the pain. I tell myself, "It's all biological." That reminds me that it's not my fault, it's not under my control, and it will pass soon, changing into an upswing as irresistible as the down.

Dark light and minimal social contact helps too.

I just spent a day and a night getting flattened by either the magnesium stearate or the gelatinized starch in two melatonin pills I took two nights ago. So I got to put all this into practice. First came the depression, then cramps whose agony incited me to homicidal rage, then exhaustion, then long sleepless boredom.

But here I am, fine and dandy again. My body doesn't even remember what happened to it yesterday, and neither do my emotions. It's all biological.

--------

Food sensitivity is not the same as food allergy.

Food sensitivity means you have a problem when you eat it. Allergy means you get a specific histamine response. There are many other types of inflammation than histamines.

--------

Indigo, I do give you credit for your emotional perseverance and ability to retain a girlfriend. That's no easy task, as I'm well aware. You're right that making an effort to cope with the present is very important. And the present can be made much more bearable.

I actually do have an extremely extensive system of meditation and psychological self-management that is based on years of study of self-improvement (before I knew Accutane was my problem). But I don't share it here because it's too personal.

Also, I have an extremely extensive productivity system that I developed for the same reason - I couldn't get stuff done. It's at cyborganize.org

--------

Luke, I'm sorry. Have you tried a scallops and rice only elimination diet? If I were in your shoes, that's what I'd do. Desperate times. I'd do that for 1.5 weeks. Most results should show after 3 days, some after 1 day.

At least then I'd know my minimal symptom baseline, and also my maximal health point without medical/supplemental intervention.

By the way, this diet produces a massive increase in sex drive.

From there, I'd try to make a diagnosis as to which specific body systems were broken, and how.

Hi Guys,

As promised, here is the reply I got from the girl at Primal Blueprint:

i could careless about the side effects. i only finished 1 month of tane but had to stop cause my kidneys were high...but i still wanna continue...and will continue. i just want normal skin. no acne, no oily skin

 

That is a really insensitive thing to say, when a lot us of here are in a desperate way because of the drug.

Thanks Luke for what you posted. Most of what you said I expected, so it wasn't a big shock. Unfortunately this seems to be what happens, and you are verifying it.

Thanks Joe for the reply to my question, and Indigo for your last post.

I'm not sure what I am going to do. I really don;t have the motivation to do much. But, I guess I need to change my diet. I feel if I'm going to get anywhere, I'm going to have to do some sort of elimination diet, and slowly build up, so I could hopefully lose all foods that are bringing me down. Those supplements that were mentioned in your post Indigo aree interesting, it's always best to hear from other Accutane people. The thought of eating this Primal Blueprint or Laleo Diet though doesn't appeal to me, due to the meat factor. I just don't want to put any more pre-formed Vitamin A in my body. I've still got a dry scalp and my energy levels have dipped since taking and stopping the Eniva Vibe 3 months ago, and because of this I've felt even more despressed. This is another thing I really hate about Accutane and why it is so unique to anything else. Your body needs Vitamin A for so many things and is such an important vitamin, yet this drug has screwed how the body uses it.

Jmsil, I'm pretty sure the Vit A from meat won't hurt you unless you're eating liver, and maybe not even then. I think it's the plant vitamin A that's bad for us. I could be wrong about this. I have noticed zero impact from vitamin A from meat, but may have seen something from vegetables.

Thanks for that interesting post about the chick, Indigo. I took notes. It sounds like I might be doing a lot better than her, when I'm diet-compliant, since I'm above 100% then. Has she made any progress on reversing long term damage?

I've emailed her again with some questions regarding where she's at now and what Vitamins.

It certainly is very annoying, jmsil, that we can't just use straight-forward advice.

It should be as simple as eating healthy food, but because of our digestive system and possible problems with Vitamin A, it makes everything difficult.

On 12/11/2011 at 8:55 PM, IndigoRush said:

PH Balance is meant to be a good indicator of overall health and immunity.

Ted agrees.

[Edited link out]

This relates to hair loss, but its advice in general about a solution. I've found lemon water does indeed help some of my symptoms.

i could careless about the side effects. i only finished 1 month of tane but had to stop cause my kidneys were high...but i still wanna continue...and will continue. i just want normal skin. no acne, no oily skin

 

Uhm so you risk Kidney damage ( which is a documented side effect in the RX info provided) or Diabetes which can cause acne itself for acne.Playing Russian Roulette my friend.

 

i could careless about the side effects. i only finished 1 month of tane but had to stop cause my kidneys were high...but i still wanna continue...and will continue. i just want normal skin. no acne, no oily skin

 

Uhm so you risk Kidney damage ( which is a documented side effect in the RX info provided) or Diabetes which can cause acne itself for acne.Playing Russian Roulette my friend.

 

yes. i kno its sad, but id trade my kidneys to have my life back. PERIOD

 

 

i could careless about the side effects. i only finished 1 month of tane but had to stop cause my kidneys were high...but i still wanna continue...and will continue. i just want normal skin. no acne, no oily skin

 

Uhm so you risk Kidney damage ( which is a documented side effect in the RX info provided) or Diabetes which can cause acne itself for acne.Playing Russian Roulette my friend.

 

yes. i kno its sad, but id tried my kidneys to have my life back. PERIOD

 

No Idea what that sentence meant, but Mr. T pities the fool.

I see you have another 5 star rating on Amazon which is good.

I've just been searching for Accutane cures/solutions on Google, there's nothing on the front pages so I usually go into the big number page results to see if there any hidden gems every now and then, but none

What I did find was the Accutane Lawsuit firm website which is basically updating there cases every few days it seems. It's good to knkow how things are going... this is interesting:

"Roche has reportedly paid out more than $50 million in Accutane settlements, and currently it looks as if they may have to shell out even more. Federal cases brought by an Accutane lawyer have been consolidated into multidistrict litigation (MDL) in the United States District Court for the Middle District of Florida, Tampa division.

Over 6,000 lawsuits filed by an Accutane lawyer seeking Accutane settlements are proceeding in the New Jersey mass tort. Judge Higbee previously issued an order preparing eight lawsuits for jury selection beginning in October 2011."

Full link: http://accutanelawsu...s-well-victims/

6,000 Accutane lawsuits... my my... Roche are going to be busy. 6,000 lawsuits is a huge number when you think how many people actually bother to file a lawsuit. You could probably times that number by 100 to get a better idea of who actually suffer from serious health problems due to the drug, which would make the number 600,000. And I assume this is only in the USA, being a american website and mentioning Accutane rather then Roaccutane. I think it was the article that coolguy showed me, it said, or had figures resembling, that 1.5 times more people have taken Accutane (Roaccutane) outisde America then in America, so that would come to around 1.5 million serious Accutane sufferers worldwide. Obviosuly these are just estimates but I think that's a pretty fair conclusion. Just shows you how big scale this is.

 

 

 

i could careless about the side effects. i only finished 1 month of tane but had to stop cause my kidneys were high...but i still wanna continue...and will continue. i just want normal skin. no acne, no oily skin

 

Uhm so you risk Kidney damage ( which is a documented side effect in the RX info provided) or Diabetes which can cause acne itself for acne.Playing Russian Roulette my friend.

 

yes. i kno its sad, but id tried my kidneys to have my life back. PERIOD

 

No Idea what that sentence meant, but Mr. T pities the fool.

 

oops. i meant id TRADE my kidneys to get my life back

 

 

 

 

i could careless about the side effects. i only finished 1 month of tane but had to stop cause my kidneys were high...but i still wanna continue...and will continue. i just want normal skin. no acne, no oily skin

 

Uhm so you risk Kidney damage ( which is a documented side effect in the RX info provided) or Diabetes which can cause acne itself for acne.Playing Russian Roulette my friend.

 

yes. i kno its sad, but id tried my kidneys to have my life back. PERIOD

 

No Idea what that sentence meant, but Mr. T pities the fool.

 

oops. i meant id TRADE my kidneys to get my life back

 

Unbelievable.

Accutane poisoning is just like prison.

You're going to do hard time. You have to get your mind right, to have any chance of getting through it.

Some guys break. Some guys work the system for a better deal. And some guys meticulously plan a prison break, and walk away clean... as long as they stay real careful forever afterward.

I'm finishing up my time on those two melatonin I took. It isn't easy, but my mind is right, and I'm almost through it.

From now on, no pills that aren't specifically gastro neutral. Not even Vit-D.

Exceptions: probiotics, bile production / liver pills, lecithin, stuff like that.

Treatment is tailored to my condition, naturally. Not to be taken as advice for others.

Accutane poisoning is just like prison.

You're going to do hard time. You have to get your mind right, to have any chance of getting through it.

Some guys break. Some guys work the system for a better deal. And some guys meticulously plan a prison break, and walk away clean... as long as they stay real careful forever afterward.

My thoughts exactly. It is a prison sentence. If you get hit hard like I did, it's a life sentence.

After all the warnings people should know better. But I know people will do what they will do.

The only way out of this thing is some kind of better solution. I don't think it's coming anytime soon.

Roche has to go down for this. Probably a hopeless dream. They should though. Go down forever. Good to hear about more lawsuits at least.

Ahh, I'm back at 100% after my 3 days of suffering. Nothing feels better. So worth it.

I've realized that the soybean oil in those Vit-D pills was the reason I wasn't quite hitting my top speed over this recent period.

I'll avoid Vit D deficiency and set my Circadian with sunlight and exercise now, instead of pills.

[Edited video out]

Hi Guys.

I heard back from the girl I mentioned.

She guesses she is 65% - 75% better from 2 years ago (when she started to take action and get tests etc) and now goes out at night with her friends, without problem.

I know for me this is not doable at the moment. I can't enjoy myself, and also get too tired.

This is reassuring, so I hope we can think more optimistically.

Of course, Joe is 100% better, but only when he sticks to a very strict diet.

She mentioned about allergies, and when tested the ONLY food she wasn't allergic to was Cherries.

I asked her if she had to only eat cherries, and luckily she didn't.

She started to eat simple foods (She follows a Vegan diet so eats natural stuff).

Allergies normally play a part in a weakened immune system, as well as adrenal fatigue.

You know when you ask someone a load of things in one email and they answer about half?

Then you ask more questions and don't get all the answers you want?

Yeah - that kinda happened. I'm not going to keep asking her though.

Poor digestion is obviously a big problem in terms of not being able to eliminate toxins, so this looks like a good place to start.

Despite what my hair analysis said, I find it hard to believe my gut flora is in balance.

My probiotics contain 2 billion bacteria, whereas the VSL #3 contains 450 billion per sachet.

You take 2 sachets a day, I believe for about a month, to replenish a lack of healthy bacteria.

These are expensive, but she said it helped her a lot.

The glutagenics is, again, pricey, but I believe it could be very helpful.

We don't know quite why Accutane affects the colon/GI Tract, but it seems a common issue.

Glutagenics is a Glutamine-related product and works by repairing the digestive tract.

I wouldn't be surprised if we have some inflammation going on.

The girl I spoke to now eats what she wants without problems, though she does avoid gluten/dairy.

Like I mentioned, PH Balance is a good starting point.

I may get a book on this, or just further research online.

She said these things were most likely down to the immune system not functioning properly, so this is something we need to investigate.

My nutritionist mentioned an 'ige test'.

She was (maybe still is) on natural hormone replacement because she was found to have 'no hormones' (her words).

So, there are things we can try, though it'll cost us.

But next year, I'm hopeful that I can find out the relevant info.

Though it may not be fixing the 'cause' of what Accutane has done, it'll at least help us to get better and repair the problems we have.

I don't know her full circumstances apart from that she felt depressed/anxious/tired and had digestive issues but it's probably similar to what we suffer from.

At least it's something to go on.

I just need some fucking money now!

I suspect this is something we may need to get tested for.

Great video again Indigo.

Interesting email you got back from your girl, or "that chick", as Joe referred her to. The fact she was allergic to everything but cherries is scar. Really scary. I hate to think what my allergies are confirmed as. I can't remember if you said, but do you know how long from when she suffered the bad side effects till she started to feel better?This is what's important to me. Whether it was a year or two, or longer.

But if she said those supplements helped, and they do sound like ones that would make sense, then I might try them. It probably won't be till after the Christmas period now... I don't want to risk feeling worse then I already am at this "happy period" where I have to pretend that I'm happy and normal when I'm far from it. I also will be looking at starting a vegan elimination diet, or some sort of template to start from as well after Christmas.

I reckon a diet in high protein will be the way I'll go. I think my body really needs to build, and protein does that. I know red lentils is a really high source that contains all the amino acids, and beans of all varieties are high sources. Maybe celery for the electrolytes.. I know people that work out have a celery tonic for post workout for replace all the electrolytes, so this makes sensefor having low energy levels, and dehydration. Potatoes for calories, brocolli for being a superfood. Just some ideas I may or may not follow. I might just have to buy that book Joe which you mentioned, for a better understanding of an elimination diet, because you are definately on to something in terms of feeling better, food plays a crucuial role. Whether it's a full on fix, I still have big doubts.

I think she'd been off the drug for a while.

I feel like shit again.

I have a job interview Friday, but I have too much on my plate to worry about.

Fucking testicles shouldn't create problems, and yet months back I had some pain.

So, I went to the Doctor (despite feeling more ashamed than ever) and he said I had Epididymitis.

He offered anti-biotics, which I declined, and I went home and took high doses of Vitamin C, and some garlic capsules.

The pain went in a few days (not sure if what I did helped).

However, I had an appointment with a Nurse prior to that because I was concerned about my testicles.

Still now, they're nearly always tight and feel numb.

I'm pretty sure I have Varicoceles.

I went to the Nurse because there were testicular cancer posters outside my office at work.

I tried to 'self-inspect' but around my left testicle it feels like there's a load of worms or something.

This would match Varicoceles, though there's something similar (called 'Hydrocele').

Has anyone else got a noticable problem with their testicles? I noticed when I searched 'Accutane Vari -' It came up. Same with Hydrocele.

Other people have obviously searched it on Google.

It's been on my mind a lot these past several days. That in itself may be making it worse, but my 'bag' seems to be held tight and hard, rather than relaxing.

Maybe my testicles are mimicking my own inner feelings.

I certainly don't feel relaxed right now.

I'm too embarassed (and afraid) to go to the Doctor again though.

It wasn't mentioned before, but the guy (and nurse on the other occasion) just seemed to be checking the testicles.

Not the scrotum per se.

Fucking hell, I've had enough of this.

I'm 21 years old and my health is the biggest concern in my life.

I've tried so hard to be positive, and enjoy myself.

But it just doesn't seem doable.

Every now and then it just hits me, smack in the face - My life has become worthless.

I could use a pick-me-up right now you guys :/

Fuck it, you guys.

I'm going to fucking kill myself.

What's the cunting point any-fucking-more?

I'm sick to my head of this.

What a pointless fucking life.

My family are against me, as if I need that!

I just hear them shouting about me.

My balls have been on my mind all day. They're pulled really tight towards me, instead of hanging down (been going on for a while) and my scrotum has been tingling uncomfortably.

My penis has been shrivelled and shrunk too, and that's pretty much gone on for ages.

I'm doing my best and it doesn't even matter.

I'm eating like a healthy-person would, and I just get fucking worse.

Why bother? Really?

Ok I cannot seem to sign in as "jgsdghjkhjkl" so I'm now under a new user name.

Indigorush, I hear ya. Aside from the fact that I couldn't sleep last night, I have had terrible nausea and digestive problems, and today I wake up and my left knee is inflamed and I can't even walk on it...WTF?

Someone mentioned earlier that they would have killed themselves already if it were as simple as an on and off button. I couldn't agree more. But I hve no means of killing myself so until then I am stuck here. Doctors are assholes and don't even care. It's disgusting.

I hope Roche and the FDA are happy. The DEA (what a joke) spends all their time trying to stop the growth of PLANTS (cannabis) when the real and dangerous drugs are legal and easily accessed via prescription.

I really wish I had something positive to say now but I don't.

I think my nausea is from the fact that I am virtually intolerant to every food on the planet.

Since I've been doing a liver detox + lemon water for the past month or so, I've been waking up with dull liver pains that go away after I eat something. It's not an intense pain or anything, but to me this is saying that my liver is in need of a good cleanse and is NOT doing well. I'm glad I'm not working today because I wouldn't be able to walk. I'm 23 and it's like I am an old man. Digestive problems, joint problems, cartilage problems, environment sensitivities, hair loss, insomnia, the list goes on and on...This is fucked. I'm going to an allergist to get tested for food allergies soon.

It's the waiting that sucks the most.

And the helplessness.

We're all so willing to do anything to get better, and yet we don't know what really to do.

Life is cruel and unfair.

I wish it wasn't.

Right now, I don't have anything optimistic to say.

Not that I'm saying anybody should kill themselves, I'm not sure why you'd say you have no means of killing yourself?

I'm bored of all of this, and don't have the energy.

8 users are reading this topic.

Fucking 8 people right now are probably looking for an answer.

How can we all get together and protest against Roche?

It's not doable really, is it?

I can't believe how bad things have got.

It's really crazy.

I called Samaritans (a suicidal thoughts hotline).

I don't know what I was expecting.

Nice lady, but they're just there to listen.

They don't give advice or anything.

I really don't feel I have anybody to turn to.

I went to bed at around 9.30 last night.

Even after 10 hours of sleep, I feel tired and anxious.

I've lost the strength to care anymore.

10 hours, I wish I could get that much.

I was referring to a gun - the quick, easy, painless way.

I just sent in an email to one of those accutane lawsuits site. They said they are reviewing my case. Money would never make me happy but I'm getting desperate to at least be able to afford the supplements that are keeping me functioning (sort of). I think people on this forum should at least consider filing a suit, even if it gets rejected (crohns/IBD is what the lawyers are really looking for), it's worth a try!!

chrons/IBD is what they are looking for? So what do you need for a diagnosis?

I wonder whether you need proof you took the drug from medical records. I took it in the late 1980s. I don't know if that is on file anywhere.

I have something very similiar to IBD and a lot of food sensitivities. Is there something like a main site, the best site or organization, if I wanted to take legal action?

____________________

Indigo, sorry I have nothing positive to say. I have to watch my diet like a hawk just to be able to barely function.

We know there is no real cure or anything. My diet is making stocks/broth with varying meats with a few vegetables and white rice. In some ways it's like Joseph's, just without the strong focus on fish. It sort of works when I can follow it closely, at least to get semi-functional. It's not a conventional 'healthy diet', although it's certainly not unhealthy.

Maybe look into the lawsuits and try the broth/stock making and see how you feel? At least that is some potentially constructive action.