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Repairing the long-term damage from Accutane

 
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7
(@daniel80)

Posted : 05/30/2014 5:36 pm

I have started taking the oil two times a day now. Morning and evening. I have also found some other oil, specifically for anxiety/psychological problems

I started taking the latter oil about a week ago. Also twice a day. Now, every since starting with the RSO oil, which I have now taken for about 1 month, my symptoms for my axciety have improve overall about 50 %. BUT, at the same time I also started working with a healer concering these issues, so its hard to say what have helped the most. I belive it's my healer who I have to give credit to, mostly

Still, my body and everything feels fine (more than fine) from taking these oils. No side effects so far or anything.

My dry eyes and nose are still around 85 % better than before I started with the oil. My lips are around 50 % better. My dry skin is about 20 % better. I will say this: if it dosen't improve any further, I would still be extremely, extremely happy.

I can honestly say, I feel like a new person now. I also have to "thank" the garlic capsules for this.

As for my skin, before I started taking the oil and garlic capsules - that is now around 85 % better. Very good skin now. My skin is also looking a lot more healthly and less fragile. I should also say that I wash my skin with something called mediscrub. This is something, specially doctors uses for their hands/arms I believe.

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223
(@gladiatoro)

Posted : 06/01/2014 11:53 pm

It is vile how Allopathic doctors poison people and seen simultaneously as high status. The Hippocrates oath the swear " first do no harm" has long been thrown out the door.

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MemberMember
33
(@ihateaccutane)

Posted : 06/03/2014 12:15 pm

It is now 3 months since I am off the drug. I fear my sympthoms are getting worse. I am getting sensitive to bright light. And there are some things in my scene, small white things. Is it some bacteria or virus, which is not discovered yet? Wtf

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MemberMember
359
(@dubya_b)

Posted : 06/03/2014 3:50 pm

@MrErdem- Those things in your field of vision that look like bacteria are probably just floaters.

http://www.mayoclinic.org/diseases-conditions/eye-floaters/basics/definition/con-20033061

I've noticed them from time to time since I was a kid.

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MemberMember
33
(@ihateaccutane)

Posted : 06/05/2014 3:51 am

Thank you Dubya.

I have a question. I checked internet, the problem with ED, fatigue and depression is directly linked to low testesteron levels. I had it tested and also DHT, there was no anormalities but hormones are complicated to check, maybe that time my hormones were ok but one day later not. So my question is, is there somenody who focus on Testesteron and succeded any improvement?

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8
(@pabpab)

Posted : 06/05/2014 12:10 pm

On 6/5/2014 at 4:51 PM, MrErdem said:

Thank you Dubya.

I have a question. I checked internet, the problem with ED, fatigue and depression is directly linked to low testesteron levels. I had it tested and also DHT, there was no anormalities but hormones are complicated to check, maybe that time my hormones were ok but one day later not. So my question is, is there somenody who focus on Testesteron and succeded any improvement?

Did you check total or free testosterone? Obviosly free T is the only reasonable indicator.

I have low T (and DHT). Took clomid and my scores went thorough the roof but it had no influence on my libido, ED and the rest of sides...

Then took T injections (eh..clueless prof of endocrynology...) and scores were in the middle of the range, sides as usual, zero improvement.

You can check the details here in my log [Edited link out]

I'm pretty sure that it's much bigger that low T (which is an effect, not a cause). Androgen receptors are obviosly involved.

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MemberMember
359
(@dubya_b)

Posted : 06/05/2014 5:47 pm

@MrErdem- There have been a few stories of guys benefiting from using TRT if they had low T after tane, but it doesn't usually do any good. Seems like 9/10 times it makes no difference in sexual side effects or fatigue, depression, etc.

If you haven't had free T, E2, thyroid hormones, or androstanediol glucoronide tested, those may be a few things you might want to get checked out.

Most of us have hormone levels that are considered in the "normal" range and we still have symptoms of low androgens. and our severity of symptoms would indicate a drastic deficiency of androgens if it was a hormonal problem alone.

Have to also agree with Pab that this is beyond a simple hormone imbalance. There is a condition very similar to post-tane sexual dysfunction and depression called "PFS" (post-finasteride syndrome), and there is some evidence that it is caused by a malfunction of androgen receptors and related proteins.

You may want to research it a bit on the propeciahelp forum at [Edited link out]and see how similar your symptoms are to a general case of PFS.

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6
(@m-bison)

Posted : 06/06/2014 8:43 am

Hello,

wanted to ask if anyone has ever considered that this could be some kind of brain damage.

If this would be a T problem or a problem with androgen receptors, why some people have digestive problems,

or Tinnitus or for example the floaters mentioned above?

I found some articles that say accutane is probably changing some things in the hypothalamus which can lead

to depression, sexual dysfunction, digestive problems etc.

Also Cannabis which some people are convinced is helping them has been shown to be implicated in neurogensis

or the generation and regeneration of brain cells in the hypothalamus.

So wouldnt it be smarter to try something to recover/heal brain/hypothalamus than all this Test. and sexual supplement stuff?

I`m not sure, havent read every page on this forum, just wanted to hear your opinion.

Maybe this has been discussed before.

Sorry for my bad english by the way.

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MemberMember
157
(@tanedout)

Posted : 06/06/2014 5:03 pm

Interesting results of a study on longer term (2-4days) fasting here. Fasting has been found to regenerate immune system damage from aging or cancer treatment.

The study has shown that prolonged fasting promotes stem cell based regeneration. It specfically states that damage caused by chemo drugs (Accuntane is basically one) is repaired.

[Edited link out]

Some people have seen improvements, and apparently even full cures from fasting, and this might explain why.

Maybe the key to it is lots shorter 2,3 or 4 days fasts rather than one big 30 day one?

I think this is potentially quite significant..

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223
(@gladiatoro)

Posted : 06/07/2014 8:30 am

Sure we have brain damage it is a CHEMO drug , Chemo stands for Chemical Holocaust Either by Murder or Overdose that would be a good description , plus MRI's prove the brain damage done by isotretinoin just goggle it. CBD oil is the best treatment option we have it is an amazing healing plant with or without THC that is debatable , fasting may also be beneficial although I have done this before 2 weeks and saw little improvement bottom line is that there is permanent damage and we have to live with it .

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MemberMember
8
(@sunsetblvd)

Posted : 06/07/2014 9:11 am

Sure we have brain damage it is a CHEMO drug , Chemo stands for Chemical Holocaust Either by Murder or Overdose that would be a good description , plus MRI's prove the brain damage done by isotretinoin just goggle it. CBD oil is the best treatment option we have it is an amazing healing plant with or without THC that is debatable , fasting may also be beneficial although I have done this before 2 weeks and saw little improvement bottom line is that there is permanent damage and we have to live with it .

I find it amusing how people actually believe that. I had a bad experience with the drug too, but you can't blame it for everything wrong with your life. It's NOT chemotherapy, it doesn't matter how many times you and others make that argument. There's an uncanny disparity between isotretinoin treatment and cancer treatment. Making these hypochondriac-like claims may be fun for you but is actually quite harmful to impressionable readers of this forum. Any brain damage you feel you have is likely not from your accutane treatment that I'm sure was several years ago. There's no problem with bashing accutane, it definitely sucks. Just do it in a moral, rational manner. Thanks.

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MemberMember
223
(@gladiatoro)

Posted : 06/07/2014 2:10 pm

It is very evident what isotretinoin does to the human brain and the changes that occur like I said MRI's don't lie . There is usually a 20% change in the frontal lob of the brain . So YES brain damage is sadly a side effect. One of many. And Accutane is a chemotherapy drug sorry to disappoint you.

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223
(@gladiatoro)

Posted : 06/07/2014 2:26 pm

Many people who have taken Accutane report personal changes in there behaviour. A study in the American journal of psychiatry used PET and MRI scans to measure brain activity of patients using Accutane. The results were startling there was an average of 21% decrease in orbitofrontal frontal cortex activity THAT'S 21 % . The orbitol frontal cortex is involved in decision making and cognitive processing. In other words the area of your brain where your personality lives does not function efficiently anymore.

Accutane is a retinoid. Retinoids control cell growth , cell differentiation and cell death ( in certain tissues ). This is what some cancer patients require as a part of chemotherapy . A drug that was developed to treat severe cancers of the pancreas , the bone and the brain is now given to teens and young adults to treat .... pimples , what's wrong with this picture. So in

conclusion YES there is brain damage as I have said before. Unless you have severe cystic acne DO NOT consider this

drug even then life might be better with the acne or gee maybe change your diet and processed food intake ,

It is strange how people in the third world do not have acne could there be a connection ..... hmmm yes there is a hint

of sarcasm there.

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0
(@Anonymous)

Posted : 06/07/2014 8:44 pm

 

Sure we have brain damage it is a CHEMO drug , Chemo stands for Chemical Holocaust Either by Murder or Overdose that would be a good description , plus MRI's prove the brain damage done by isotretinoin just goggle it. CBD oil is the best treatment option we have it is an amazing healing plant with or without THC that is debatable , fasting may also be beneficial although I have done this before 2 weeks and saw little improvement bottom line is that there is permanent damage and we have to live with it .

I find it amusing how people actually believe that. I had a bad experience with the drug too, but you can't blame it for everything wrong with your life. It's NOT chemotherapy, it doesn't matter how many times you and others make that argument. There's an uncanny disparity between isotretinoin treatment and cancer treatment. Making these hypochondriac-like claims may be fun for you but is actually quite harmful to impressionable readers of this forum. Any brain damage you feel you have is likely not from your accutane treatment that I'm sure was several years ago. There's no problem with bashing accutane, it definitely sucks. Just do it in a moral, rational manner. Thanks.

Yes it is not like chemoterapy, it's far worse.

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MemberMember
7
(@09eric09)

Posted : 06/07/2014 11:53 pm

[Edited link out]

Here is a story about a woman's son who was treated with Accutane for cancer in the nervous system. Do some research next time,it's quite known at this point retinoic acid is used for cancer. Hell, just Google "retinoic acid" and it's right there on the chemocare website.

On 6/7/2014 at 10:11 PM, sunsetblvd said:
On 6/7/2014 at 9:30 PM, Gladiatoro said:

Sure we have brain damage it is a CHEMO drug , Chemo stands for Chemical Holocaust Either by Murder or Overdose that would be a good description , plus MRI's prove the brain damage done by isotretinoin just goggle it. CBD oil is the best treatment option we have it is an amazing healing plant with or without THC that is debatable , fasting may also be beneficial although I have done this before 2 weeks and saw little improvement bottom line is that there is permanent damage and we have to live with it .

I find it amusing how people actually believe that. I had a bad experience with the drug too, but you can't blame it for everything wrong with your life. It's NOT chemotherapy, it doesn't matter how many times you and others make that argument. There's an uncanny disparity between isotretinoin treatment and cancer treatment. Making these hypochondriac-like claims may be fun for you but is actually quite harmful to impressionable readers of this forum. Any brain damage you feel you have is likely not from your accutane treatment that I'm sure was several years ago. There's no problem with bashing accutane, it definitely sucks. Just do it in a moral, rational manner. Thanks.

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MemberMember
18
(@accutainted)

Posted : 06/08/2014 5:29 am

 

Sure we have brain damage it is a CHEMO drug , Chemo stands for Chemical Holocaust Either by Murder or Overdose that would be a good description , plus MRI's prove the brain damage done by isotretinoin just goggle it. CBD oil is the best treatment option we have it is an amazing healing plant with or without THC that is debatable , fasting may also be beneficial although I have done this before 2 weeks and saw little improvement bottom line is that there is permanent damage and we have to live with it .

I find it amusing how people actually believe that. I had a bad experience with the drug too, but you can't blame it for everything wrong with your life. It's NOT chemotherapy, it doesn't matter how many times you and others make that argument. There's an uncanny disparity between isotretinoin treatment and cancer treatment. Making these hypochondriac-like claims may be fun for you but is actually quite harmful to impressionable readers of this forum. Any brain damage you feel you have is likely not from your accutane treatment that I'm sure was several years ago. There's no problem with bashing accutane, it definitely sucks. Just do it in a moral, rational manner. Thanks.

Uncanny disparity? That doesn't even make sense. Exactly what are you referring to?

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MemberMember
33
(@ihateaccutane)

Posted : 06/08/2014 7:15 am

Is there someone who checked prostate. Unordinary growth in prostate may cause ED, back pain, etc.. I will check it cause I also started to feel like I have to pee all the time.

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MemberMember
8
(@sunsetblvd)

Posted : 06/08/2014 9:51 am

 

Sure we have brain damage it is a CHEMO drug , Chemo stands for Chemical Holocaust Either by Murder or Overdose that would be a good description , plus MRI's prove the brain damage done by isotretinoin just goggle it. CBD oil is the best treatment option we have it is an amazing healing plant with or without THC that is debatable , fasting may also be beneficial although I have done this before 2 weeks and saw little improvement bottom line is that there is permanent damage and we have to live with it .

I find it amusing how people actually believe that. I had a bad experience with the drug too, but you can't blame it for everything wrong with your life. It's NOT chemotherapy, it doesn't matter how many times you and others make that argument. There's an uncanny disparity between isotretinoin treatment and cancer treatment. Making these hypochondriac-like claims may be fun for you but is actually quite harmful to impressionable readers of this forum. Any brain damage you feel you have is likely not from your accutane treatment that I'm sure was several years ago. There's no problem with bashing accutane, it definitely sucks. Just do it in a moral, rational manner. Thanks.

Uncanny disparity? That doesn't even make sense. Exactly what are you referring to?

What am I referring to? Maybe the fact that a drug that reduces oil production in the body is constantly put on the same level as CHEMOTHERAPY. My aunt had breast cancer and to say the two are the same is just stupid. Maybe it was used in chemotherapy but constantly claiming post-taners are victims of unneeded chemo sounds insane to both medical professionals and normal people. I don't think I need to list the differences between the two.

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MemberMember
7
(@09eric09)

Posted : 06/08/2014 12:34 pm

Here's the story again since you ignored my first post. A woman's son WITH CANCER TREATED WITH ACCUTANE. Yes it is used for chemotherapy.

[Edited link out]

On 6/8/2014 at 10:51 PM, sunsetblvd said:
On 6/8/2014 at 6:29 PM, Accutainted said:
On 6/7/2014 at 10:11 PM, sunsetblvd said:
On 6/7/2014 at 9:30 PM, Gladiatoro said:

Sure we have brain damage it is a CHEMO drug , Chemo stands for Chemical Holocaust Either by Murder or Overdose that would be a good description , plus MRI's prove the brain damage done by isotretinoin just goggle it. CBD oil is the best treatment option we have it is an amazing healing plant with or without THC that is debatable , fasting may also be beneficial although I have done this before 2 weeks and saw little improvement bottom line is that there is permanent damage and we have to live with it .

I find it amusing how people actually believe that. I had a bad experience with the drug too, but you can't blame it for everything wrong with your life. It's NOT chemotherapy, it doesn't matter how many times you and others make that argument. There's an uncanny disparity between isotretinoin treatment and cancer treatment. Making these hypochondriac-like claims may be fun for you but is actually quite harmful to impressionable readers of this forum. Any brain damage you feel you have is likely not from your accutane treatment that I'm sure was several years ago. There's no problem with bashing accutane, it definitely sucks. Just do it in a moral, rational manner. Thanks.

Uncanny disparity? That doesn't even make sense. Exactly what are you referring to?

What am I referring to? Maybe the fact that a drug that reduces oil production in the body is constantly put on the same level as CHEMOTHERAPY. My aunt had breast cancer and to say the two are the same is just stupid. Maybe it was used in chemotherapy but constantly claiming post-taners are victims of unneeded chemo sounds insane to both medical professionals and normal people. I don't think I need to list the differences between the two.

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MemberMember
223
(@gladiatoro)

Posted : 06/08/2014 7:57 pm

Sure it's a chemotherapy drug that was cross marketed to teens and young adults for something as harmless as pimples it's as simple as that but it was FIRST developed for cancer treatment. Allopathic Cancer treatments are horrible anyways and cause massive harm / death , these are what the pHARMa industry calls black box drugs and for good reason as a listed side effect is death , there are lots natural of cures for cancer RSO is one of them ESSIAC would be another no TOXIC drugs needed. You guys really need to go to Natural News web site if you want to learn about the true healing of the body / mind.

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MemberMember
359
(@dubya_b)

Posted : 06/08/2014 10:46 pm

@M Bison- Androgen receptors are expressed in nearly every cell in the body (including brain cells), meaning they likely serve a function in every cell in the body.

Immunocytochemical localization of androgen receptor with polyclonal antibody in paraffin-embedded human tissues.

[Edited link out]

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We investigated the immunohistochemical localization of androgen receptor (AR) using a polyclonal antibody for 55 KD recombinant human AR in human tissues fixed with 4% paraformaldehyde solution and embedded in paraffin. Immunoreactive AR was restricted to the nuclei of various tissues. Among the well-known androgen target organs, secretory cells and basal cells of the prostate, spermatogonia, spermatocytes, Sertoli cells and Leydig cells of the testis, epithelial cells of the rete testis, fibroblasts in the whole organ, squamous cells, sweat gland and hair follicle cells of the skin, and hepatocytes of the liver were positive for AR. In addition, smooth muscle cells of the prostate, uterus, urinary bladder, gastrointestinal tract, arteries, and arterioles were strongly immunoreactive for AR. Cardiac muscle and striated muscle of psoas were positive for AR. Acinar cells, ductal cells, and myoepithelial cells of the breast, endocervical and endometrial cells of the uterus, cyto- and syncytiotrophoblast of the chorionic villi, and tubules of the kidney were also positive for AR. Most FSH, LH, and some GH endocrine cells in the anterior and posterior lobes of the pituitary gland, follicular cells of the thyroid gland, and adrenocortical cells were positive for AR. Cells immunoreactive for AR were ubiquitously distributed throughout the entire body. The present study demonstrated the diversity of androgen effects on many target tissues.

Tinnitus and visual field defects are common symptoms of idiopathic intracranial hypertension (IIH), a condition known to be caused by Accutane and other retinoids and also correlated with hypogonadism/low testosterone.

The following study was based on a phone survey, but it does show a strong correlation between symptoms of hypogonadism and IIH.

[Edited link out]

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Men with IIH are more likely than controls to have symptoms associated with testosterone deficiency and OSA. These associations suggest a possible role for sex hormones and OSA in the pathogenesis of IIH in men.

There are also many post finasteride sufferers with tinnitus, vision problems, and other common signs of intracranial hypertentsion and some have actually been diagnosed with intracranial hypertension.

Accutane/Isotretinoin has many biological effects that are not anti-androgenic in nature, so it is difficult to determine with any certainty which effects of the drug cause which symptoms.

It's anti-androgenic effects seem to be a very likely explanation for sexual dysfunction, although there isn't much evidence linking the anti-androgenic effects to the severe gastrointestinal side effects many post-taners experience.

There is also a chance it may be neurological damage.

Not trying to shoot your comment down, only sharing why I believe an androgen receptor malfunction could explain most side effects of the drug.

Without a better understanding of how the drug causes permanent symptoms, no one can know for sure.

@sunsetblvd-

On 6/8/2014 at 10:51 PM, sunsetblvd said:

What am I referring to? Maybe the fact that a drug that reduces oil production in the body is constantly put on the same level as CHEMOTHERAPY. My aunt had breast cancer and to say the two are the same is just stupid. Maybe it was used in chemotherapy but constantly claiming post-taners are victims of unneeded chemo sounds insane to both medical professionals and normal people. I don't think I need to list the differences between the two.

Please do explain the differences between the effects of Accutane the chemotherapy drug and the effects of Accutane the acne treatment.

That should be very entertaining.

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Crank92, M Bison, Gladiatoro and 12 people reacted
MemberMember
148
(@oli-girl)

Posted : 06/08/2014 11:07 pm

Well if anyone knows the complete history of Accutane, then you would know that it was used as a chemotherapy drug and they noticed it was clearing their acne. However, the inventor of Accutane stated that it was so toxic and drop the trials for the use of acne.. most of us know the rest of how it came on the market!

It is a Chemotherapy drug and used in many serious cancers especially the of the brain and in children in high doses! There are brain scans that show frontal lobe damage! "Chemo Brain"

It even referred to as Chemo in the New Jersey trials!

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MemberMember
120
(@pido)

Posted : 06/09/2014 1:15 am

However, the inventor of Accutane stated that it was so toxic and drop the trials for the use of acne.. most of us know the rest of how it came on the market!

How it came on the market?

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MemberMember
33
(@ihateaccutane)

Posted : 06/09/2014 4:47 am

Today I have seen endocronologist, neurologist, gastroentologist and they all said it may be mental. (They checked the old blood results) Waiting for new blood results again.

 

Edit: and an urologist in an another hospital. He checked and prescribed me something like viagra and said everything is in my mind.

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MemberMember
5
(@accux)

Posted : 06/09/2014 9:32 am

Well if anyone knows the complete history of Accutane, then you would know that it was used as a chemotherapy drug and they noticed it was clearing their acne. However, the inventor of Accutane stated that it was so toxic and drop the trials for the use of acne.. most of us know the rest of how it came on the market!

It is a Chemotherapy drug and used in many serious cancers especially the of the brain and in children in high doses! There are brain scans that show frontal lobe damage! "Chemo Brain"

It even referred to as Chemo in the New Jersey trials!

Any idea what kind of doses were used for chemo?

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