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The answers I got from my doctor about hair loss

 
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(@blazedjin)

Posted : 11/13/2007 10:24 pm

have any of you have like pimples on your scalp? im getting quiet a few on the back of my head and on top just a few, what does this mean?

 

i had a few of them but i read someone comments regarding this and they suggest its our immune system attacking our hair follicle. dont know if this information is legit

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(@_andy_)

Posted : 11/13/2007 11:41 pm

have any of you have like pimples on your scalp? im getting quiet a few on the back of my head and on top just a few, what does this mean?

 

i had a few of them but i read someone comments regarding this and they suggest its our immune system attacking our hair follicle. dont know if this information is legit

 

 

I have a ton of pimples on my scalp now. Not sure what this is.

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(@lamarr1986)

Posted : 11/14/2007 12:32 am

The thing is even if you do have AA, it can quite often recover itself.... Usually takes atleast a year though if it is untrated. Some people just get very unlucky and it continues for a very very long time though...

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(@lamarr1986)

Posted : 11/14/2007 12:36 am

Oh p.s. the few threads i have found where people's derm have recomended topical/oral steroids to fix this problem are often laughed at suggesting that if anything steroids will make the problem worse.. It's clear to me however that their are a few derms out there, like blazed's that know the truth and how to trate the problem...

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(@sw-cub)

Posted : 11/14/2007 1:27 am

I will say this, I very much doubt that all accutane hair loss cases are AA like blazed derm said. From some things that I have read, diffuse AA is much more difficult to treat than regular AA because it effects the entire scalp. People with regular AA get injections where it is infecting them, but with diffuse AA you would have to get your whole scalp injected. Lamarr where did you hear that diffuse AA takes only a year to resolve? I have seemed to have gotten a more negative perception of it.

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(@davidhatesacne)

Posted : 11/14/2007 2:08 am

well didn't blaze get perscribed a medication for it that would take a month to help? if so, well have to wait a month to see how it's worked out for him.

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(@lamarr1986)

Posted : 11/14/2007 4:29 am

I will say this, I very much doubt that all accutane hair loss cases are AA like blazed derm said. From some things that I have read, diffuse AA is much more difficult to treat than regular AA because it effects the entire scalp. People with regular AA get injections where it is infecting them, but with diffuse AA you would have to get your whole scalp injected. Lamarr where did you hear that diffuse AA takes only a year to resolve? I have seemed to have gotten a more negative perception of it.

 

I can''t honeslty remember where i read it i read so many articles... I'm not saying all cases, i'm saying MOST e.g. 95% of prolonged cases over 2 years are AA.... What you need to remember, is that it wasn''t our genetics which has done this to us... And like my dad and grandad said months and months ago (both medical backgrounds) , all it may require is the immune system dampening down for a short time for it to get back to normal...

 

Like i said it isn't a genetic thing for us so....

 

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(@sw-cub)

Posted : 11/14/2007 10:06 am

I will say this, I very much doubt that all accutane hair loss cases are AA like blazed derm said. From some things that I have read, diffuse AA is much more difficult to treat than regular AA because it effects the entire scalp. People with regular AA get injections where it is infecting them, but with diffuse AA you would have to get your whole scalp injected. Lamarr where did you hear that diffuse AA takes only a year to resolve? I have seemed to have gotten a more negative perception of it.

 

I can''t honeslty remember where i read it i read so many articles... I'm not saying all cases, i'm saying MOST e.g. 95% of prolonged cases over 2 years are AA.... What you need to remember, is that it wasn''t our genetics which has done this to us... And like my dad and grandad said months and months ago (both medical backgrounds) , all it may require is the immune system dampening down for a short time for it to get back to normal...

 

Like i said it isn't a genetic thing for us so....

 

 

 

Okay, that makes more sense to me. People who suffer from diffuse alopecia areata their whole life are genetically predisposed. The time span for drug induced alopecia areata is much less.

 

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(@_andy_)

Posted : 11/14/2007 10:26 am

I have one more, last theory about this nonsense.

 

I remember giving some thought to alopecia areata - I think if you look at the first page of this thread, it's one of the questions I asked my doctor. But I'm starting to think the following:

 

Accutane shrinks sebum glands. And DHT is stored in sebum. What if, when those sebum glands shrunk, the DHT either leaked out or had no where to go and hit the hair cells like a ton of bricks?

 

Even people without genetic hair loss would be effected. And this would explain:

 

- the TGF theory about Accutane hair loss

- the short, fine hairs most of us suddenly see falling

- scalp pimples

 

If this is the case, then either:

 

- the sudden excess DHT miniaturized some hair follicles to death, for those genetically predisposed to hair loss

 

OR

 

- it temporarily miniaturized some hair follicles; the effect of the DHT subsiding is equivalent to taking Propecia without taking it - i.e., reducing DHT

 

This would also explain inflammation, which might be mistaken for alopecia areata.

 

Just another crazy theory. You've all come to expect these, I think.

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(@lamarr1986)

Posted : 11/14/2007 11:18 am

Nah i don't agree with that Andy :P. How do you explain shedding from all over my whole head? I still shed mostly strong very healthy hairs, only a few times have i gone throuhg a period of loosing some finer hairs!!

 

Also how do you explain not reduction in shedding when alot of accutane hairloss victims begin propecia? alot of people say it has no effect, which leads me to believe DHT has nothing to do with it in most cases...

 

Also i thought you asked your doc if fingernail ridges or pitting is a sign of alopecia areata, not could you possibly have it :P.

 

Dr CHu, who i believe has probably used and prescribed accutane longer than any other derm, told me that prolonged shedding is often due to undiagnosed alopecia areata. The good news is if you have a derm that can recignise this problem then you are half way there..

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(@_andy_)

Posted : 11/14/2007 11:39 am

Nah i don't agree with that Andy :P. How do you explain shedding from all over my whole head? I still shed mostly strong very healthy hairs, only a few times have i gone throuhg a period of loosing some finer hairs!!

 

Also how do you explain not reduction in shedding when alot of accutane hairloss victims begin propecia? alot of people say it has no effect, which leads me to believe DHT has nothing to do with it in most cases...

 

Also i thought you asked your doc if fingernail ridges or pitting is a sign of alopecia areata, not could you possibly have it :P.

 

Dr CHu, who i believe has probably used and prescribed accutane longer than any other derm, told me that prolonged shedding is often due to undiagnosed alopecia areata. The good news is if you have a derm that can recignise this problem then you are half way there..

 

Fair enough, mate! My theories :think: are meant to be shot down! :D

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(@_mikey_)

Posted : 11/14/2007 6:06 pm

so far this is my second day using rogaine.., i got the foam one. any one using rogaine or any minox and can post on how it is going. Also i dunno if this is going to work since it says it only work on the back of the scalp and on top not in the front. so i dunno.

also who is using nizoral shampoo, and is it helping/

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(@sweetheartt75)

Posted : 11/14/2007 6:07 pm

for a while i wished that i hadnt gone on accutane but now i realize that there is NO way my skin would have been this clear without the accutane. i tried everything and my face was beginning to scar pretty badly, accutane gave me clear skin for the first time since the 5th grade. so while we are losing some hair, the clear skin is whats important. when you first meet someone the first thing they see is your face and i know we probably all felt like we were being judged based on our acne before the accutane. i mean i didnt even go on my first real date until the end of my senior year in high school which is when i finished the accutane, no one wanted the acne girl! so i guess i can deal with super shitty hair.

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(@blazedjin)

Posted : 11/14/2007 6:35 pm

I think everyone should read this. I will try this before I resort to propeica and hopefully it will help me. Also I have noticed my scalp is less itchy ever since I applied lidex so hopefully this means less shedding.

[Edited link out]

Edit: For those who are interested in the product.

I had chat with Dr. Shah asst. and the treatment should work, and there is no use of continuing the treatment unlike Rogaine, which sometimes you have to be dependent on in order to maintain the hair you grown.

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(@_mikey_)

Posted : 11/14/2007 7:39 pm

thanks blaze for that post, but that girl in the site does not list what did dr shah put her on, what kind of treatement that worked. do you know?

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(@blazedjin)

Posted : 11/14/2007 7:50 pm

thanks blaze for that post, but that girl in the site does not list what did dr shah put her on, what kind of treatement that worked. do you know?

 

I think she went on the hair loss treatment because she doesnt mention alopeica areta on her post. Im trying to get in contact with her so hopefully we will get more information.

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(@_andy_)

Posted : 11/14/2007 8:10 pm

thanks blaze for that post, but that girl in the site does not list what did dr shah put her on, what kind of treatement that worked. do you know?

 

I think she went on the hair loss treatment because she doesnt mention alopeica areta on her post. Im trying to get in contact with her so hopefully we will get more information.

 

 

I'm willing to believe the person who posted that, but how do we know that after a year and a half the hair loss didn't just stop on its own? I don't know. I'm not a big believer in homeopathic medicine. It'd be interesting to contact her, though.

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(@_mikey_)

Posted : 11/14/2007 9:00 pm

andy that is true, but does it matter at this point? why not just try something especially since all other things fail.

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(@_andy_)

Posted : 11/14/2007 9:35 pm

andy that is true, but does it matter at this point? why not just try something especially since all other things fail.

 

True, true. Like me and the Propecia. True.

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(@gracie1234)

Posted : 11/14/2007 10:41 pm

Can we say impulsive - I already checked the site and ordered 4 months of their solution. I am willing to try ANYTHING at this point. I refuse to go on Rogaine (don't want another drug in my system) and since I lost 500 hairs today (yes, i counted them and then had a breakdown), i figure i have nothing to lose.

 

Blaze - Let me know if you hear from the girl. I would be curious to what she has to say.

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(@gracie1234)

Posted : 11/14/2007 10:54 pm

One more thing - wanted to post an article that someone sent me from another site when I was freaking out about losing short hair as well:

 

This article might be reassuring:

http://www.americanhairloss.org/types_of_h.../effluviums.asp

 

3. In a third type of TE, the hair follicles do not stay in a resting state but rather cycle through truncated growth cycles. When this happens, the individual experiences thin scalp hair and persistent shedding of short, thin hair fibers.

 

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(@davidhatesacne)

Posted : 11/14/2007 11:19 pm

perhaps the most reassuring thing about this thread is we are all in the same boat. no one that was around when this thread started has fully recovered. farve4, rudolph (hasn't been around in forever), and gdwright might of had shedding that has gone away, but they haven't returned saying their hair has returned to normal.

 

andy posted a thing some months ago saying that he found a medical book that said 9/10 (i believe) of the people that suffer hair loss due to accutane recover. that, plus the countless posts from people with derms reassuring them that their hair loss will subsided. this tied with the fact that people seem to vanish and never return to tell you if they have recovered, leaves me to believe that accutane hair loss may be reversible, but may take longer then originally thought. i mean, there are a lot of people posting their stories in this thread. i don't think we will all experience permanent hair loss.

 

edit;

 

thanks for posting that site gracie. it does a great job of describing TE. this in particular seems to describe me, as my hair is relatively thick, i've been shedding awhile, and i don't loose as many hairs as you guys;

 

"2. The second form of TE develops more slowly and persists longer. The hair follicles may not all suddenly shed their hair fibers and enter a resting telogen state. Rather, the follicles may enter a resting state as they normally would, but instead of returning to a new anagen hair growing state after a month or two, they stay in their telogen state for a prolonged period of time.

 

This results in a gradual accumulation of hair follicles in a telogen state and progressively fewer and fewer anagen hair follicles are left growing hair. In this form of TE, there may not be much noticeable hair shedding, but there will be a slow thinning of the scalp hair. This form of TE is more likely to occur in response to a persistent trigger factor."

 

 

not to mention accutane is a constant trigger that apparently was triggering hair loss long before i knew it.

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(@gdwright)

Posted : 11/15/2007 12:40 am

hey i wanted to mention...on the minox for just about a month now and holy crap am i shedding. only when i apply it, more so at night really. whats great about it though is that i know im shedding for a good reason whereas with my shed from accutane, i never was quite sure i would see those hairs again. from my understanding this shed is an outstanding sign that things are working as they should. ive been shedding for about a week and a half now, havent noticed a difference. the tane shed last for many many months, which is why i could easily tell the toll it had taken on my hair. anyways, so far im quite impressed with how things are going, i have very good feelings about this. applying this crap is as easy as brushing your teeth in the morning, even easier knowing that ill be seeing outstanding results in a matter of months. i couldnt sit around any longer waiting for my tane shed to recover ya know? alright this is good...very very good. i'll continue to keep yall posted. take care for now

 

oh and im not trying to sell this stuff...but if you're thinking you might be interested in giving it a shot and are worried about the money. i got four bottles for around 50 us dollars right off the site. thats about four months worth. k, bye

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(@sverd)

Posted : 11/15/2007 12:45 am

Sorry for not replying for so long. I feel like it's my duty to keep everyone updated since we're in this together. Anyways my shedding has stopped for a while and my hair does not look any thinner or anything. I'm 90% sure I'm done with this ordeal and that my regular hair is back. I think it's just a matter of time proportional to how long you were on accutance. I was on for less than two months so that can explain why my hair loss hasn't lasted as long as others. I hope you all get through this.

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(@lamarr1986)

Posted : 11/15/2007 5:26 am

Cheers for the update dolph, i'm glad your shedding stopped!!

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