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My experience of Accutane (5.5 months)

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(@jamman)

Posted : 10/13/2016 7:51 am

After some other people had helped me with some questions on a different part of the forums, I felt I should give back on my experience of taking Accutane for 5.5 months, as before I started taking the medication myself, I was keen to find out what other people had experienced throughout their journey, and the results they had achieved.

Please note, I did not take before/after photos, and this is my 100% honest opinion, if you want to ask any questions, I have email notifications set up, so just reply below or PM me, I'll get back to you as soon as I can. I also feel obliged to say that what I experienced, you may not, from what I hear, everyone has a different experience with Accutane.

I started in November 2015, and finished in March 2016. At this point, I was 20, male, poor diet, lack of general care for myself, miserable, unhappy and so on, the general sort of feeling quite a few people who have moderate-severe acne have.

Dosage
Month 1: 20mg/day.
Month 2&3: 40mg/day.
Month 4: 60mg/day.
Month 5+ 80mg/day.

Months 1,2 & 3.

Throughout Months 1-3, I honestly did not experience any difference, I mean nothing, so I won't even talk about it.

Month 4
After the dosage was upped to 60mg/day, the side effects very quickly came around. In no particular order I experienced dry skin, and cracking of the cheeks, lips & nose areas. This was probably amplified and made worse with more poor skin care routine at the same, tied in with working in a kitchen for long periods of time, my skin was dry and cracking, yet caked in sweat and oil at the same time. It's also worth noting that my diet at the time was poor, lack of veg, and mostly processed 'crap'. How ever, my acne was improving massively.

Month 5 (6 Weeks)

This is where for most people, you have to consider if taking Accutane is worth it. Like I said before, everyone who takes Accutane has a different experience. But these 6 weeks, were nothing but misery despite my skin becoming 95% clear. The clearest it has ever been since before I hit puberty and things just went belly up.
The side effects that I experienced..

Dry skin - The sides of my lips were cracking & bleeding, every day. The area around my nose was the same, cracking and bleeding regularly. Cheeks were dry, and felt tight, no matter how much moisturiser I applied. During the last 6 weeks, My entire arms, both left and right, dried up, cracked, became sore, and there was a rash there all the time.

Energy, or lack of - I was tired all the time, no matter how much sleep I could get, I felt lethargic, caffeine didn't help, nor did an increase of carbs within my diet. There was also plenty of days where I could just not get to sleep, I would toss and turn all night.

Mood - I didn't realise till afterwards just how bad of a mood I had been in, my staff would constantly ask me If i was alright, they all knew the medication I was taking, and I also informed my boss prior to taking the medication what could happen. I would blow everyone off, it affected my social life, and work life massively, tied in with the lack of energy and quite frankly will to live, I was a grumpy asshole. A few weeks after finishing Accutane, my boss and everyone commented how nice it was for me to be back to my normal self.

Bleeding - Nose bleeds at least 3 a week, and they were bad, they would go on for a few minutes and it was heavy too. I can't even begin to tell you how annoying this was at work. I know you don't want to hear it, but rectal bleeding, yep, it happened, not nice.

Headaches - I've not had headaches for years, since I switched soda/fizzy drinks out for water a few years back, and drink upwards of 5L a day, the headaches vanished, they soon came back and were horrible.

'Suicide' - Now I'm not going to sit here and say I directly thought about throwing myself off a cliff , but there were times where I was low, really low. I wanted to be alone, yet I felt depressed from having no social life, I didn't want to go out because I looked like shit, cracked skin, bleeding, etc etc. it's a vicious circle, and arguably I should have stopped taken Accutane sooner and spoken to my Dermatologist. But I didn't want things like this being recorded on my medical record, as I had hoped to join the Army (and still do), things like this on a medical record just cause problems and make people ask questions later down the line in training.

So...
The outcome, I became 95% clear, the day I finished Accutane, I started a new diet & exercise regime, I eliminated all processed foods, dairy & gluten, ate a truck load of veggies, and plenty of water each day. I did this for 3 months, till June 2016. During this time, my skin remained clear, the occasional pimple, but hell, that was amazing in comparison to how it used to be. I was healthy, and quite frankly enjoying life. I then incurred an injury which put me out of work and the gym, I got pretty frustrated about this, and went straight to the shop and bought what's typically known as 'junk food' which included plenty of dairy, gluten, etc etc. By this point you can already guess what I'm going to say, my acne broke out, pretty bad, since June, my diet hasn't been great, my acne has gone from good to bad constantly. In a few days I'm going to start on the Acne.org regime, with a clean diet, and see where it gets me. I wonder if this whole time all I had to do was eat well, and my skin would have been fine. Was Accutane ever necessary?

Would I recommend Accutane from my experience? No.

If I could reverse time, I wouldn't have taken it. I lost a couple months of my life being unhappy and miserable, my life consisted of going to work, then going home, and repeating, nothing else, that's not a healthy way to live.

Any questions, please don't hesitate to ask.

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(@malemuriel)

Posted : 10/29/2017 3:27 pm

Hey ! thanks for the post! just wanted to know are you doing today ? any side effects? thanks

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(@south-texas)

Posted : 01/08/2018 6:31 pm

Thank you for sharing your story. I hope you are feeling better.

My 15 year old son is pre celiac according to the endoscopy done by his gastroenterologist. Acne is a side effect of gluten sensitivity. If he would not eat gluten, he could be acne free.

Other parents flip when I say gluten free. It is not hard. Just eat: Rice, potatoes, gluten free pasta (you actually have to follow the directions on gluten free pasta cooking) eat Fritos, corn tortillas, meat, veggies, fruit and Hersey Chocolate.

Oh, Lactose can also cause acne. He only drinks Lactaid milk. He has been depressed, extremely irritatable, his grade are plummeting, its not worth it. Try to not take Accutane. If you do take it, dont do it in high school. Its wrecking his gpa, sleep, relationships.

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