Jump to content
Acne.org
Search In
Find results that contain...
Find results in...
lucky girl

Getting worried about dry eyes!!

Recommended Posts

Just wondering.... I just read another thread that mentions that dry eyes can be a side effect that lasts. How long have people that have finished Roaccutane found this to be for? Can it be permanent???

I am worried as I have a condition called kerataconus that is a degenerative eye condition that one day may result in a corneal transplant. My eyes are dry even without Roaccutane so I am concerned that they are really going to get alot drier (I'm only on my first week and they are already drier) and if it its then a long term effect I don't know which would be harder to live with, my acne or dry uncomfortable eyes. My Dermo did speak to my eye doctor and he said it would be fine though they really only spoke about the compatability of my eye medication with Roaccutane, I don't think dryness was mentioned. I am a bit paranoid when it comes to my eyes.

Link to post
Share on other sites

I was on Accutane about 15 years ago, and yes the dry eyes was a permanent side effect for me (and dry mouth as well i might add). However, as the acne slowly came came back, so did the moisture in my eyes, although they are still much drier than they were before Accutane. I wasn't able to wear contacts for years. I can now, i'm not sure how much of that was advances in the contacts, and how much was moisture returning to my eyes. Be prepared to be friends with that bottle of "natural tears" eyedrops indefinitely.

Link to post
Share on other sites

Bboyskate,

Are you off accutane? If so, how long till the eye side effect faded as you indicated it did? I'm still waiting and I'm starting to get really depressed about the possibility that I may never wear contacts again. My eyes are still terribly uncomfortable after two weeks off. berry

Link to post
Share on other sites

OK I feel the need to vent my frustration so sorry in advance. coincidentally after I posted this thread and deciding I need to get in touch with my doctors and discuss this (but can't until Monday as my derm is away), I got a letter from my eye doctor saying that he had tried numerous times to call me (though we have an answering machine and there have been no messages), and after receiving notification from my GP (??? it was my dermo) in regards to starting Acne Med (I presume this is actually Roaccutane), he has done some 'research' and thinks that the dry eye factor will be 'less than ideal for contacts wearing' and that I should switch to Doxycycline so that my eyes are not affected, and he will prescrbe this for me so I don't have to go back to the 'GP' (gee thanks).

The reason I am so frustrated is that I had laser surgery by this guy four years ago that seemed great for a while but then when my eyes started to deteriorate, I went back for a check up and they said that the measurements of my eyes now indicated that I have kerataconus. They couldn't do enough for me fromthat point on which, while seemingly caring and good service, made me suspicious. They offered to pay for free contact lenses, sent me to a specialist contact lense guy, paid for my glasses, and still supply me with expensive eye drops. To me I instantly thought ' Oh my god they fucked up and are trying to smooth it over', or they are determined to keep me quiet so that there is no bad publicity'. It might be different in the medical profession but in my business and any other job I have had, we would never offer free stuff unless we were smoothing over a mistake. I went for second andopinions and they said that the testing for kerataconus that was done before I got lasered, at that time wasn't precise enough to have picked it up though the measurements that were taken indicated that I was in a kind of on the edge of the normal range. It's basically impossible now, I think, to say for sure if I had the condition then or if it developed after the laser but it is definite that laser is the worse thing that you can do for eyes with this condition. I know that I entered into it at my own risk so to speak but it still pisses me off. Now I feel frustrated that this doctor has said to my dermo ' Yeah it'll be fine to take Roaccutane with the medication for my eyes yaddah, yaddah and then four weeks later and two weeks into my treatment advises me to take Doxycycline(!!???). I know he doesn't have a clue of my acne battle but there is no way I am taking doxycyline again as I've been there done that and am not going there again, especially on the advice of an eye doctor!!.

It is easy for me to be angry with him and I suppose I don't have cause to be as at least he is following up on it and has done some reasearch, but here I was thinking I am on a positive road to beating my acne and now I feel like I've been kicked in the guts once again. i defintiely worry about permanent dry eyes as I wonder if it would hamper the success of a corneal transplant in the future.

I hope there is some solution to this and I don't have to stop taking Roaccutane, i will be really upset if I do. I will talk to them both on Monday and see what the story is. I am only on 20 mg a day and the dry eyes are only a bit dryer than normal. i'm thinking an option may be to just stay on this dosage, what does everyone else think?.

I hope I don't sound like a spoilt child, but it is just so frustrating and sometimes I feel like we put so much faith in the medical profession and being laypeople it is sometimes difficult to know what to believe, which advice to follow, and who to trust.

Thanks for listening to me offloading, I feel a bit better now!!!

Link to post
Share on other sites

So does the limited reponse mean that it is not commone to have lasting dry eyes after treatment? I hope the chances are smal as it's really going to suck if I get to talk to my derm asn it is recommended that I stop Roaccutane, but my eyes are mor important than my acne. It will just mean that I will be sentenced to life battling it with antibiotics etc, though I suppose it will be just ging back to normal. My skin is responding really well already to Roaccutane too. All I can do is wait until my derm gets back from holidays next week!!!!!

Link to post
Share on other sites

I think you haven't got much of a response because many of the people here are actively taking it or haven't been off it long enough to know for sure. According to the listing of side effects, it is common for the dry eyes to be a lasting effect with a cooresponding lack of tolerance for contact lenses.

Although honestly i think you may be over reacting to this possibility. The effect does taper off over time, i doubt it would interfere with corneal transplant at some point in the future if needed, but you might need to moisten your eyes more often than other people do.

Does your derm know about your eye meds? The derm is most likely to know which meds interact with Accutane, it sound like your eye doctor is freaking out because you might sue for malpractice and trying to cover his own ass.

Link to post
Share on other sites

I have a friend who took it in 97 and she permanently has dry eyes though she has still been able to wear contacts.

I'm about to go into my 5th month of Accutane and constantly used eye drops and I haven't had a single second of discomfort. I also switched to a more hydrating contact lens which I think helped a lot (as well as not sleeping in them).

Link to post
Share on other sites

Ok so I think that I should just talk to my doctors hey, if there would be no problem with a transplant even if I have Sahara eyes, the I'll take the plunge and just continue Roaccutane. It is such an unkown individual thing, how Roaccutane effects people long term I guess.

I know I am a worry wart but I can't help but voice my thoughts here though at the end of the day I will discuss with the professionals which I am sure will put my concerns to rest.

Link to post
Share on other sites
Just wondering.... I just read another thread that mentions that dry eyes can be a side effect that lasts.  How long have people that have finished Roaccutane found this to be for? Can it be permanent???

  I am worried as I have a condition called kerataconus that is a degenerative eye condition that one day may result in a corneal transplant.  My eyes are dry even without Roaccutane so I am concerned that they are really going to get alot drier (I'm only on my first week and they are already drier) and if it its then a long term effect I don't know which would be harder to live with, my acne or dry uncomfortable eyes.  My Dermo did speak to my eye doctor and he said it would be fine though they really only spoke about the compatability of my eye medication with Roaccutane, I don't think dryness was mentioned.  I am a bit paranoid when it comes to my eyes.

Link to post
Share on other sites

i was able to wear contacts fine after accutane. But i didnt start wearing them untill about a year and a half after it so i dont really know how long it took for my eye dryness on tane to fade out. though i never noticed eye dryness on it in the first place. Over the last year or so my eyes have become slightly drier and less tolerant of contacts for some unknown reason, and now im nearly 3 weeks into a second course of it, i can barely tolerate contacts at all. I too hope this doesnt finish them off....

eye dryness is certainly a lasting effect for some. I think there are things you can have done to aleviate eye dryness though, medical procedures. I heard of getting your tear ducts 'filled in' once. would have to look into that stuff.

Link to post
Share on other sites

'But why not try and alleviate the dry eye condition itself? My recommendation is to ask your doctor about the possibility of lacrimal or punctal occlusion, which plugs up the tear drainage system to keep more moisture in your eyes.'

Link to post
Share on other sites
'But why not try and alleviate the dry eye condition itself? My recommendation is to ask your doctor about the possibility of lacrimal or punctal occlusion, which plugs up the tear drainage system to keep more moisture in your eyes.'

Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Personalized Advice Quiz - All of Acne.org in just a few minutes


×