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Sheefa

Men fancy trading in your acne for impotence?

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false dilemma?

I wonder what percentage of accutane users get sexual dysfunction

we may never know because of how under reported it must be

I also wonder if there is any way to remedy the situation afterwards

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When a side effect like this hits you, you're on your own for answers. There's nothing that can really be done with doctors, and let's be honest they're the one's who got you/us here in the first place. The strange thing is that this side effect tends to hit people AFTER stopping treatment with this drug. For me, I got it last year... 4 years after taking the last of this Vitamin-A overdose.

We can all spend time on this forum debating what's happened and feel like a helpless victim, or we can try something else. I had some bacteria problem come up last week (though at the time I was considering the worst). It was on my testicle and felt like a lump, so I thought 'Shit. Now I've got Cancer to deal with! (As well as all the post-tane side effects). I resulted to going back to the doctor to confirm what it was. Epididy...something. He offered me what any doctor would - Antibiotics. I let him speak for a bit, and after being told I'd have to avoid being in the sun for 2 weeks (while taking the tablets) and asking of the ("Unlikely" and "Rare" - Ha!...) side effects, I decided to take his prescription and leave it in old Mr. Garbage Bin. I'd been reading lots of natural methods of dealing with problems. Vitamin C in high doses can be a great natural anti-biotic and the only possible side effect (If you have a huge dose) is diarrhea. Also garlic. I know this has nothing to do with E.D, though I do think Accutane is again responsible as the causes of Epididymitis (I think that's what it was) didn't relate to anything I'd done, but I just wanted to provide you with an example of why the doctors and medicine aren't the only people/viewpoint. My testicle isn't hurting anymore.

Also though, when I was there, he obviously had a look at my testicle and I decided to ask (or rather rant) about my E.D which I knew was caused by 'tane. He pretty much agreed that the drug is very dangerous (Would have been nice to have this truth provided 5 years ago) and that there is nothing you can do about the toxicity it's caused to your liver. I refuse to accept that, but I'll get to that in a minute. He then offered up all the things I knew he would (Having surgery on Mr. Winkie to get him to stay upright, and various pills like Viagra. I just laughed and said there's no chance of that happening to me at 21.

If I could be grateful for anything that's resulted from taking 'tane, it's this: I know sh*t loads about health now. I also know that medicine is just ONE way of looking at things. Unfortunately, in the western world, we accept it as THE way. Chinese medicine, nutrition change and even homeopathy - I say 'even' because I believe it isn't just a FAD - many swear by it, and that western medicine has created that as a lie because they have the power to do so. They need people to be sick so they can make money. Personally, I've tried homeopathic accutane to try and reverse damage but it's not helped me. I believe it can work for many other illnesses but accutane is more complicated.

I don't want to make this TOO long, so I'll start to round this thing up now. You can spend hours every night looking for answers to this and other problems. You can go each day thinking about it every day like you're doing OR you can try a different approach. I'm not fixed yet, but I believe I can and will be. The fact of the matter is you get blood tests done to check your liver while on this drug. The Liver is responsible for so much. We should all know by know that Accutane is a retinoid and derives from Vitamin A. It is basically an overdose of Vitamin A, which is toxic. Vitamin A is stored in the liver. From internet research it seems the most likely answer to our problems is working within and healing our insides, rather than trying to fix each problem like Erectile dysfunction. This is the same mistake medicine makes... It just rushes to fix a symptom, not the cause and therefore it fixes nothing.

Check this site out:

http://www.sensiblehealth.com/Journey-01.xhtml

I'm not anything to do with this site. I promise you that. You can order products of this site, but I live in the UK so found another site to order supplies. You will see this is about liver-flushing. Section 3 will outline what you can to do, but from what I've read on other sites (curezone) accutane damage can be helped with this. It doesn't sound particularly pleasant but if there's a chance that I could fix my problems, I don't care. I've decided to stop working at my office job so I can try to heal (And persue a career in Music if I get through this), so will be doing this when I haven't got to work (6 weeks time). It could take a few goes for results, but I believe if we don't repair the damage, we will keep getting more and more problems. I get the odd grey hair growing now - AT 21!! (Could be from crazy amounts of worrying and stress). Section 1, which is linked, really seems to fit with a lot of stuff though. Vitamins and supplements not making any difference for example...

I also believe we all need to introduce relaxation into every day. We have a lot to be stressed about, so giving our mind a break will help. I personally listen to Paul McKenna's CD that came with 'Change your life in 7 days'.

I really hope we can make it through this. I know if I did, I could really make a difference in this world as a second chance would mean letting nothing go to waste.

Good luck,

Indy.

P.S The liver can regenerate itself.

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... I resulted to going back to the doctor to confirm what it was. Epididy...something. He offered me what any doctor would - Antibiotics. I let him speak for a bit, and after being told I'd have to avoid being in the sun for 2 weeks (while taking the tablets) and asking of the ("Unlikely" and "Rare" - Ha!...) side effects, I decided to take his prescription and leave it in old Mr. Garbage Bin. I'd been reading lots of natural methods of dealing with problems. Vitamin C in high doses can be a great natural anti-biotic and the only possible side effect (If you have a huge dose) is diarrhea...

My father had a similar infection and he skipped the antibiotics he was prescribed. Some time later he was having ED and urination problems. They found he had a serious e-coli infection in his prostate. He started a month of antibiotics course and his ED subsided.

Antibiotics are NOT the same thing as Accutane, they do not cause the same amount/kind of problems. Skipping your course of antibiotics is is a not a very good idea. You can try your natural healing methods ALONG with the antibiotics. There are several good ones in Europe, such as roxithromycin, which are effective and have few side effects. If you do not like what was prescribed, ask for something else, but I would not skip that course, unless I wanted major complications from infection down the road.

If you take your antibiotics, chances are your ED will improve...

Edited by Babis
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I started a third course of accutane.

7th day: Acne gone

8th day: Met a hot girl in club, had a boner the minute she smiled to me, we had one drink.

9th day: Erection & libido gone. Muscle tone gone.

Hint: alcohol increases anti-androgen effects and toxicity of retinoids

10th day: Stopped accutane

I dated the girl but it was pointless. Accutane took away my acne along with my erection & libido. Completely. It took 6 weeks to recover partially, but only to 30%-70% of normal.

If you have acne you wont be getting none in the first place
Edited by Babis
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from this post, it is concluded that if you are a male with severe acne, there goes your sex life out of the window becase :

before accutane :

pimply, unattractive, no sex life

after accutane:

clear skin, attractive, no sex life

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from this post, it is concluded that if you are a male with severe acne, there goes your sex life out of the window becase :

before accutane :

pimply, unattractive, no sex life

after accutane:

clear skin, attractive, no sex life

:lol:

Acne =/= Accutane deficiency

There are ways to get rid of your pimples without frying your brain or your @@

Edited by Babis
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There are no scientific studies that prove or disprove this or any of the supposed long term side effects of accutane. It's all speculation, and there is no egitimate study that says 100% accutane does this, or caused that. NO ONE CAN SAY FOR SURE ACCUTANE IS OR IS NOT RESPONSIBLE FOR PERMANENT SIDE EFFECTS.

Evie Conrad- Here are some corrections to some stuff you said.

3)Two years ago when Roche discontinued accutane, there was a statistic released from some pharmaceutical agency that stated around 16 million people have been treated with the Accutane brand of isotretinoin alone. This number did not take into account the generic brands. Since then there has been no official statistic of how many people have been treated.

9). Accutane induces an autoimmune response in some individuals which causes the body's immune system to attack its own digestive system, among other things. While retinoic acid is SPECULATED to cause the shortening of telomeres which would give your suggested theory some substance, it has yet to be proved in a lab. So therefore, accutane causes IBD which is induced by an autoimmune response.

By the way, accutane is not really used in the treatment of cancer because it proved to be relatively ineffective. Therefore, its hard to correlate its cancer treating effects with its effects for causing long term side effects.

FredQ,

It is good that you offer counter-arguments, but I am afraid I do not agree with everything. First of all, I posted a list of articles above, some of which state very clearly that accutane can cause permanent side effects to some users. The article by Csoka et al. has a paragraph that explains that really well.

Secondly, I asked my hematologist, who is also a very reputable oncologist, and he said that "retinoids (including isotretinoin) are amazing, they can completely eliminate certain types of cancer".

Thirdly, many of the things that Evie Conrad mentioned are being gradually confirmed in my case by my doctors. First, the hypogonadim, then the autonomic dysfunction. And recently my neurologist mentioned I may have brainstem dysregulation, which causes autonomic dysfunction as well as a sensory integration dysfunction (including severe visual problems). So there you go. It is either a very weird coincidence that I hear Evie Conrad's comments from my doctors' mouths, or accutane really had a lot to do with my permanent neuroendocrine problems.

One thing I agree with you on is that IBD is caused by an autoimmune response triggered by accutane. I have a friend who had this happen, and now he has to take immunosupressant therapy for life. Dysautonomia can also be of autoimmune nature. There is also evidence that accutane may cause demyelination & multiple sclerosis, either via an autoimmune response or by inhibiting 5-alpha-reductase-1 and therefore allopregnenolone, a neurosteroid that promotes myelination.

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I just thought I would present some data to illustrate that Accutane and other retinoids have anti-androgen activity which can cause primary and/or secondary hypogonadism.

Evidence for decreased androgens, neurosteroids and their receptors:

Evidence for decreased androgen 5 alpha-reduction in skin and liver of men with severe acne after 13-cis-retinoic acid treatment.

J Clin Endocrinol Metab. 1994 May;78(5):1064-9.

Effect of oral isotretinoin treatment on skin androgen receptor levels in male acneic patients.

J Clin Endocrinol Metab. 1995 Apr;80(4):1158-61.

Excerpt: "The present study clearly demonstrated a decrease in androgen receptor binding capacity... The isotretinoin-receptor complex may interact with cis-acting response elements in the promoter region of regulated genes, repressing the gene transcription encoding for the androgen receptor, the gene transcription encoding for the 5-alpha-reductase activity, or both transcriptions simultaneously."

Epigenetic side-effects of common pharmaceuticals: A potential new field in medicine and pharmacology.

Med Hypotheses. 2009 Nov;73(5):770-80.

Excerpt: " The following adverse effects have been reported to persist, even after discontinuing therapy, suggesting persistent (or perhaps slowly-reversing) gene expression changes and epigenetic effects: alopecia, arthralgias, ocular abnormalities, inflammatory bowel disease, keloids, osteopenia, hyperlipidemia, erectile dysfunction, and psychiatric disturbances. Isotretinoin is postulated to have complex effects on the brain and central nervous system."

13-cis-retinoic acid competitively inhibits 3 alpha-hydroxysteroid oxidation by retinol dehydrogenase RoDH-4: a mechanism for its anti-androgenic effects in sebaceous glands?

Biochem Biophys Res Commun. 2003 Mar 28;303(1):273-8.

Isotretinoin, tetracycline and circulating hormones in acne.

Acta Derm Venereol. 1997 Sep;77(5):394-6.

Effects of isotretinoin on male reproductive system.

Lancet. 1994 Jul 16;344(8916):198.

Erectile dysfunction during isotretinoin therapy.

Actas Urol Esp. 2005 Nov-Dec;29(10):974-6.

Acitretin-associated erectile dysfunction: a case report.

Cases J. 2009; 2: 210.

In animals treated with retinoids, testicular atrophy with spermatogenetic arrest was described:

Toxicology, carcinogenicity, and teratogenicity of some orally administered retinoids.

J Am Acad Dermatol. 1982 Apr;6(4 Pt 2 Suppl):652-9.

Retinoid receptors involved in the effects of retinoic acid on rat testis development.

Biol Reprod. 2001 May;64(5):1307-14.

In humans treated with retinoids, pituitary hormones (including LH and FSH), testosterone and IGF-1 where suppressed:

Isotretinoin influences pituitary hormone levels in acne patients.

Acta Derm Venereol. 2011 Jan;91(1):31-4.

Effects of chronic retinoid administration on pituitary function.

J Endocrinol Invest. 2005 Dec;28(11):961-4.

Short-term isotretinoin treatment decreases insulin-like growth factor-1 and insulin-like growth factor binding protein-3 levels: does isotretinoin affect growth hormone physiology?

Br J Dermatol. 2010 Apr;162(4):798-802

Unfortunately, the anti-androgen effects are not confined to the skin. They also occur in the brain, liver, spinal cord, genitalia and everywhere else the drug is absorbed.

Great post Babis!

For those of us to be unfortunate enough to be victim to persistant (possible permanent) sexual dysfunction from isotrentinoin, PLEASE REPORT THIS TO THE FDA MEDWATCH. Here is the link:

http://www.accessdat...atch-online.htm

Ref:

http://www.google.co...&rlz=1I7_____en

http://www.google.com/search?client=ubuntu&channel=fs&q=accutane+impotence+site%3Aacne.org%2Fmessageboard%2F&ie=utf-8&oe=utf-8

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I took the world's worst legal TOXIN known as Accutane in 1997 when I was 16 and a virgin and have literally been in a living hell ever since. By far the worst mistake of my life!!!!!!! I thought the FDA made sure drugs were safe for public consumption?? Boy was I wrong...dead wrong possibly. I guess the FDA takes the wait n see approach? Can you imagine allowing a damn drug onto the market and you don't even know exactly how it works? The exact mechanism of Accutane is unknown? WTF? Prove how it works then approve it....right? Well that's what the FDA did and it ruined my life along with my brothers. In the FDA's defense nothing like Accutane was ever created so I think they were taken off guard. At least I never thought a drug could be so permanetly destuctive. Taking Accutane for me and my brother was worse than actually dying, even though I am because of my Kidney. Whoever or whomever passed Accutane has a lot, and I mean a lot of blood on their hands. Every fetus that came out deformed, every poor kid that killed themselves etc. I just hope GOD makes anyone who knowingly put profits ahead of lives pay and pay dearly for what they may have knowingly did. They actually gave an award to Dr. Gary Peck aka "SATAN" who invented/created this toxin which makes me cringe. I learned the hard way that if something is too good to be true it always is. The only reason I took Accutane/Toxin was because it worked for my mother. She would rave about it all the time when I was young. She literally said to me it's a "miracle drug" and I quote "Everybody should take it". After I heard her say that I was sold and was dead set on taking it at the first sign of acne, which I later did and regret every single day.I remember clear as day getting home and was surprised to see that Accutane came in a box, and the pills were in foil. It said pregnant women shouldn't handle or take it. Red flags went up and I was thinking this stuff is legal and easily obtained so it has to be safe right? WRONG, I underestimated greed and thought it went through a lot of testing on humans. Just thinking a company made tens of Billions off literally poisoning people makes me sick.

Now I'm 31 and I just found out that 100% it had to be Accutane that ruined me. It is the only medicine, and it should be called "The SEX KILLER DRUG" I've ever taken besides over the counter meds. After I believe a few weeks into my 6 month dosing schedule I began to not be able to maintain errections and lost almost all the feeling in the head of my penis along with a disconnected/numbness feeling, like my penis wasn't a part of me. If you've taken Accutane young and are male you might know what Im talking about. I literally went from being rock hard and horny all the time to a pathetic joke and still am at 31. I never had a girlfriend in my life because I couldn't/can't perform.....again sad but true. I tried over & over and it usually ended up with me losing my erection being embarassed and never wanting to see the girl again due to total and utter embarassment. I still remember the first sign of impotence in 1997. I was very confused and alarmed -sad but 100% true. Little did I know that's how I would stay the rest of my life. My libido has been almost zero ever since taking that horrible toxin.

My brother took Accutane in 1996 and was the major reason I took it. He had really bad acne and it cleared him up pretty well. So I didn't want to get bad acne so I went on Accutane/Toxin as a precaution, which makes my story all the more horrible. At the first sign of a few pimples I told my brothers dematologist I wanted to go on accutane because I heard it cleared acne up for life. The Dermatologist was a little reluctant but said ok. A year after my brother was on Accutane/Toxin he confided in me that he couldn't keep erections well and said he really had no feeling in the head of his penis. I was uterly shocked because I was going through the same issue. I thought it was genectic because I was so sold on Accutane being safe I never correlated the two. His friend also experienced the exact same side effects. Think about it? The only 3 males I have known to take Accutane ie.myself, my brother and his friend all started to become impotent weeks into their course and have been that way 15 years later. There is no way it could have come from anywhere else but Accutane that is why I'm so adament it was Accutane that destroyed out sex lives/lives permanetly. Ater reading postings on here I had my DHT level checked and it is a mere 14.

I didn't put the two together until just recently and to say Im mortified would be an understatement.The sad part is I didn't even have bad acne. My mother took Accutane in 1983 and told me it was a" Miracle Drug".That is why I asked the dermatologist for it, and he reluctently did. He gave me 40mg for 3 months then 40mg/80mg alternating days the following 3 months.I suffered horrible depression, suicidal idealation, really bad aggession and a lot other side effects as well. I have kidney disease now and I have no family history or diabetes and never have taken any other medications so it had to be Accutane that destroyed my kidney. I never abused any drugs or alcohol either. Accutane has literally made my life a "living hell" as it has done to many. Too bad Roche didn't listen to Dr. Pezzi in 1991 or I could've been saved along with my brother and friend who also suffer from sexual dysfunction and zero libido and loss of feeling as a result of Accutane .For those unfamiliar with Dr. Kevin Pezzi he is a dermatologist who himself became impotent and contacted Roche numerous times dating back to 1991 about this horrible side effect.

But why would Roche listen? It would've literally costed them tens of Billions. This problem has to be widespread but it's exteremly hard to talk about, especially to a doctor who would probably not believe you.anyway. Roche had to know about this and knew disclosing this info would scare a lot of people away and open themselves to lawsuits. How could they not know? I hate Hoffmann-La Roche with a passion so deep that words cannot describe.I was wondering if hormone therapy or any other method could reverse this. After doing a lot of research I doubt it besides taking Viagra. Should I try hormone therapy or is that a waste of time? I wouldn't give Accutane to my worst enemy! It's literally cruel and unusual punishment. It would have been better for Roche to kill me. I literally feel as though I lived 1,000 deaths and I'm not exaggerating. I hope GOD makes Roche pay, because they had to know.I was living the dream until I took Accutane then the wheels fell off.

Before Accutane I never had a single sucidal thought, or was aggessive or had any obsessive thoughts or anxiety whatsoever. I really mean that, I was happy, now it's the opposite. There are 50 known listed side effects for Accutane and I got about the worst 10. I guess my body chemistry was just right to be affected? All I know for sure is before Accutane I was the completly normal and as soon as I went on Accutane I became extremely depressed, very Irritable ie. snapping on people, aggressive ie. got into fights my senior year, kicked off the baseball team/ school. I had crazy sucicdal thoughts a lot. And just had no interest in girls anymore. Also, I suffered from severve dry eyes which really screwed me up playing baseball before I lost my temper and got kicked off the team. I never smile or laugh anymore either does my brother and we both used to smile and laugh all the time before Accutane, this still persists to this day. If I didn't live It I wouldn't think believe it but it's what happened to me. Accutane really ruined my mind, body and soul. I guess that will happen when your pumping 40/ 80mg a day of 13-cis-retinoic acid in your developing body.Think about how ignorant my dermatologist was. He was giving a 16 year old boy who had literally a few pimples 80 mg a day of a retinoid that was proven to harm developing minds/nervous systems. My body is all messed up now, I just got diagnosed with IBS, and Kidney disease, and Generalized anxiety disorder. I just can't believe I'm a victim of corporate greed. My monocytes are low and the only two ways those are low is from toxin damage or chemotherapy ie Accutane. Thanks Hoffman La Roche for ruing my life along with tens of thousands. I hope all you corporate wigs burn in hell for profiting off hurting people!!!!!!!!!!!!!!

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I took the world's worst legal TOXIN known as Accutane in 1997 when I was 16 and a virgin and have literally been in a living hell ever since. By far the worst mistake of my life!!!!!!! I thought the FDA made sure drugs were safe for public consumption?? Boy was I wrong...dead wrong possibly. I guess the FDA takes the wait n see approach? Can you imagine allowing a damn drug onto the market and you don't even know exactly how it works? The exact mechanism of Accutane is unknown? WTF? Prove how it works then approve it....right? Well that's what the FDA did and it ruined my life along with my brothers. In the FDA's defense nothing like Accutane was ever created so I think they were taken off guard. At least I never thought a drug could be so permanetly destuctive. Taking Accutane for me and my brother was worse than actually dying, even though I am because of my Kidney. Whoever or whomever passed Accutane has a lot, and I mean a lot of blood on their hands. Every fetus that came out deformed, every poor kid that killed themselves etc. I just hope GOD makes anyone who knowingly put profits ahead of lives pay and pay dearly for what they may have knowingly did. They actually gave an award to Dr. Gary Peck aka "SATAN" who invented/created this toxin which makes me cringe. I learned the hard way that if something is too good to be true it always is. The only reason I took Accutane/Toxin was because it worked for my mother. She would rave about it all the time when I was young. She literally said to me it's a "miracle drug" and I quote "Everybody should take it". After I heard her say that I was sold and was dead set on taking it at the first sign of acne, which I later did and regret every single day.I remember clear as day getting home and was surprised to see that Accutane came in a box, and the pills were in foil. It said pregnant women shouldn't handle or take it. Red flags went up and I was thinking this stuff is legal and easily obtained so it has to be safe right? WRONG, I underestimated greed and thought it went through a lot of testing on humans. Just thinking a company made tens of Billions off literally poisoning people makes me sick.

Now I'm 31 and I just found out that 100% it had to be Accutane that ruined me. It is the only medicine, and it should be called "The SEX KILLER DRUG" I've ever taken besides over the counter meds. After I believe a few weeks into my 6 month dosing schedule I began to not be able to maintain errections and lost almost all the feeling in the head of my penis along with a disconnected/numbness feeling, like my penis wasn't a part of me. If you've taken Accutane young and are male you might know what Im talking about. I literally went from being rock hard and horny all the time to a pathetic joke and still am at 31. I never had a girlfriend in my life because I couldn't/can't perform.....again sad but true. I tried over & over and it usually ended up with me losing my erection being embarassed and never wanting to see the girl again due to total and utter embarassment. I still remember the first sign of impotence in 1997. I was very confused and alarmed -sad but 100% true. Little did I know that's how I would stay the rest of my life. My libido has been almost zero ever since taking that horrible toxin.

My brother took Accutane in 1996 and was the major reason I took it. He had really bad acne and it cleared him up pretty well. So I didn't want to get bad acne so I went on Accutane/Toxin as a precaution, which makes my story all the more horrible. At the first sign of a few pimples I told my brothers dematologist I wanted to go on accutane because I heard it cleared acne up for life. The Dermatologist was a little reluctant but said ok. A year after my brother was on Accutane/Toxin he confided in me that he couldn't keep erections well and said he really had no feeling in the head of his penis. I was uterly shocked because I was going through the same issue. I thought it was genectic because I was so sold on Accutane being safe I never correlated the two. His friend also experienced the exact same side effects. Think about it? The only 3 males I have known to take Accutane ie.myself, my brother and his friend all started to become impotent weeks into their course and have been that way 15 years later. There is no way it could have come from anywhere else but Accutane that is why I'm so adament it was Accutane that destroyed out sex lives/lives permanetly. Ater reading postings on here I had my DHT level checked and it is a mere 14.

I didn't put the two together until just recently and to say Im mortified would be an understatement.The sad part is I didn't even have bad acne. My mother took Accutane in 1983 and told me it was a" Miracle Drug".That is why I asked the dermatologist for it, and he reluctently did. He gave me 40mg for 3 months then 40mg/80mg alternating days the following 3 months.I suffered horrible depression, suicidal idealation, really bad aggession and a lot other side effects as well. I have kidney disease now and I have no family history or diabetes and never have taken any other medications so it had to be Accutane that destroyed my kidney. I never abused any drugs or alcohol either. Accutane has literally made my life a "living hell" as it has done to many. Too bad Roche didn't listen to Dr. Pezzi in 1991 or I could've been saved along with my brother and friend who also suffer from sexual dysfunction and zero libido and loss of feeling as a result of Accutane .For those unfamiliar with Dr. Kevin Pezzi he is a dermatologist who himself became impotent and contacted Roche numerous times dating back to 1991 about this horrible side effect.

But why would Roche listen? It would've literally costed them tens of Billions. This problem has to be widespread but it's exteremly hard to talk about, especially to a doctor who would probably not believe you.anyway. Roche had to know about this and knew disclosing this info would scare a lot of people away and open themselves to lawsuits. How could they not know? I hate Hoffmann-La Roche with a passion so deep that words cannot describe.I was wondering if hormone therapy or any other method could reverse this. After doing a lot of research I doubt it besides taking Viagra. Should I try hormone therapy or is that a waste of time? I wouldn't give Accutane to my worst enemy! It's literally cruel and unusual punishment. It would have been better for Roche to kill me. I literally feel as though I lived 1,000 deaths and I'm not exaggerating. I hope GOD makes Roche pay, because they had to know.I was living the dream until I took Accutane then the wheels fell off.

Before Accutane I never had a single sucidal thought, or was aggessive or had any obsessive thoughts or anxiety whatsoever. I really mean that, I was happy, now it's the opposite. There are 50 known listed side effects for Accutane and I got about the worst 10. I guess my body chemistry was just right to be affected? All I know for sure is before Accutane I was the completly normal and as soon as I went on Accutane I became extremely depressed, very Irritable ie. snapping on people, aggressive ie. got into fights my senior year, kicked off the baseball team/ school. I had crazy sucicdal thoughts a lot. And just had no interest in girls anymore. Also, I suffered from severve dry eyes which really screwed me up playing baseball before I lost my temper and got kicked off the team. I never smile or laugh anymore either does my brother and we both used to smile and laugh all the time before Accutane, this still persists to this day. If I didn't live It I wouldn't think believe it but it's what happened to me. Accutane really ruined my mind, body and soul. I guess that will happen when your pumping 40/ 80mg a day of 13-cis-retinoic acid in your developing body.Think about how ignorant my dermatologist was. He was giving a 16 year old boy who had literally a few pimples 80 mg a day of a retinoid that was proven to harm developing minds/nervous systems. My body is all messed up now, I just got diagnosed with IBS, and Kidney disease, and Generalized anxiety disorder. I just can't believe I'm a victim of corporate greed. My monocytes are low and the only two ways those are low is from toxin damage or chemotherapy ie Accutane. Thanks Hoffman La Roche for ruing my life along with tens of thousands. I hope all you corporate wigs burn in hell for profiting off hurting people!!!!!!!!!!!!!!

Hi there.

First of all, I agree 100% with what you said.

You aren't crazy. This drug does these things.

I, too, suffer from digestive problems (undiagnosed), sexual dysfunction and other horrible effects because of this drug.

You can follow my video series on www.youtube.com/fireyourdoctor if you wish.

I'd urge you to make a video so we can spread the word better and protect people from this poison.

I have spent many, many times doing the same as you - Shouting about what's happened.

I probably will in the future.

However, we need to accept (this doesn't mean agree with) what's happened.

Yes, we must continue to fight the battle against Roche (and the FDA who are just as bad) and that's why I'm doing the videos.

But it'll do no good to hold all that anger.

This is all very real, but part of the problem is our unwillingness to let the anger go.

Whatever has happened to us is unchangable.

We may never have a 'real' life, a sex drive, good health.

But we can treat our bodies as best as possible.

We mustn't underestimate the damage caused by this drug.

Stress is unavoidable, especially in these circumstances.

But we can actively start to enjoy life.

Focus on what you DO have.

Start doing things that you enjoy.

Certain things aren't under our control.

It's extremely frustrating when you can't have what you want most (good health in this case), but the world has dealt it's cards.

It's up to us how we play the game now.

If we keep thinking our lives are over, we will live pointless lives.

We have to keep motivated. Keep strong.

That's all for now.

I'm sorry you're going through this too.

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I do not see why you have to put up with this and passively accept your destiny.... If you want your health back, you need to fight for it.

Rather than trying a bunch of supplements randomly, how about getting tested first, to see what you are deficient in?

How about getting your hormones checked and getting treated by a true expert?

Most endocrinologists and dermatologists know squad about hormones (I have seen many), but there is John Crisler in the US, or Pierre-Marc Bouloux in the UK, and others listed at

http://www.propeciahelp.com/doctors

who know what they are doing and may be able to help.

There are also many tests to do

http://www.propeciahelp.com/testing

Have you had any of those done, at least those in the short-list?

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Accutane didn't cause any permanent side effects for me and it didn't affect my love life at all.

Don't believe these horror stories about impotence.

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