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Have any of you developed small little bumps on your arms? They are just like acnes, just smaller, and there are lots of em
Think I am going to ask for an appointment with my derm next week. Both bout the redness/flushing and those tiny devils bumps.
No bumps
seattle r u still on plaquenil..how did it work for you never head updates
and I was on doxy for 3 months and it did not do anything positive for redness/flushing for me
Halfpipe- Thanks for your response on Doxy. If anyone else has had any experience with this med please let me know
)
Did nothing for my flushing, I acutally was given it for the chronic bleperhitis that accutane caused, so I thought maybe it would help the flushing in conjuction but it didn't.
If all you have is flushing then it might be worth a shot, but I wouldn't stay on it tooo long and make sure you take a probotic since it is a antibotic.
Thanks for your help 
Just update on the tanning, its actually getting better slowly and surely, but lotion is a must to get dark enough to see any gains.
BUT
wash the lotion off about 2 hours after, or not you'll get zits. I got 3-4 zits, but luckly after some tooth paste treatement they're going, as I head off to UFC 113 this weekend!
Just update on the tanning, its actually getting better slowly and surely, but lotion is a must to get dark enough to see any gains.
BUT
wash the lotion off about 2 hours after, or not you'll get zits. I got 3-4 zits, but luckly after some tooth paste treatement they're going, as I head off to UFC 113 this weekend!
Ok, glad 2 hear that. UFC 113!! Go Lyoto Machida Go! lol
Have any of you developed small little bumps on your arms? They are just like acnes, just smaller, and there are lots of em
Think I am going to ask for an appointment with my derm next week. Both bout the redness/flushing and those tiny devils bumps.
KP maybe????
Yeah, it might be Keratosis pilaris. You know anything bout that? Way to go accutane 
Btw I just read that it often comes as a result of dry skin.. Maybe it dissapears after some time away from accutane.
Hello, my name is J.D. and I am so glad i found this blogg.... Im only 15 and have everything you guys have... i was put on accutane last year to shut down my oil glands... i had really oily skin, which is now very veryy dry.... on top of thatt I have the constant burning and flushing in my cheeks and sometimes my ears... Like this " 
" Although my derm cannot tell me whats wronge and just ignores the problem.... But nobody elce but you guys understand how hard this is for me.... I used to have some acne but i looked a lot better then i do now im just very insecure... other things i have now.. is that my face almost feels tightt... its hard to explain... but ik that when i am moving or in heat the flares get 10X worce... my cheeks get almost a sticky feeling. =/ ... Also under me shantelle asks about the bumps... they are a form of dry skin from the accutane... i should have never taken that med... but the bumps will go away just put lotion on them morrning and night... i have themm from my shoulders to my elbo . . I guess if anybody has any ideas that may help me let me know... i have everything you can havee.. and its killing me... ive already missed 52 days of school this year and its hurting me, ruining my life in a way. . . =/ The main thing is to keep this going.. i love hearing the things from you guys i can do to help this problem and maybe in the long run correct it . . . . BWT IVE BEEN OFF ACCUTANE FOR LIKE THREE WEEKS NOW... NOT LONG BUT THAT MED IS WHAT DID THIS TO ME... anyways keep this goingg. . its already helping me a lot . . and atleast ik now im not the only one with this probem... theres others out there like me.. 
Hello, my name is J.D. and I am so glad i found this blogg.... Im only 15 and have everything you guys have... i was put on accutane last year to shut down my oil glands... i had really oily skin, which is now very veryy dry.... on top of thatt I have the constant burning and flushing in my cheeks and sometimes my ears... Like this "
I'm sorry to hear that your only 15. Sounds like your flushing is just like mine from feeling sticky/tight. Fortunately you have only been off it for 3 weeks so there is still a lot of time/chance of natural recovery. It could be long term, but 3 weeks post is too early to tell. Give your body some time before you try anything too serious as you don't want to make it worse when it could be healing naturally. Many people have the flushing go away within the first six months to a year so obviously the ideal solution would be a natural recovery and you don't want to impede that. Feel free to ask any questions you have here though as the group here all know there stuff.
seattle r u still on plaquenil..how did it work for you never head updates
and I was on doxy for 3 months and it did not do anything positive for redness/flushing for me
I was on plaquenil for about 2 weeks. Didn't notice anything positive, but I wasn't on it long enough to notice much anyways. I stopped because my vision was starting to bother me and I was getting headaches. I don't think it was related to the plaquenil, but it was making me nervous. I had just started a new job 4-5 weeks prior to starting plaquenil and it involved sitting in front of a computer all day. I already had kind of bad eyesight (nearsighted) and I think the new job was straining my vision and most likely was the cause of my problems. I never have worn contacts/glasses because the poor eyesight hasn't really bothered me, but I'm at the point now where I need to correct it. Until I figure out whats up with my eyes i'm going to avoid plaquenil. Whats up with you though?
Hi all
Something interesting for post-accutane (isotretinoin) flushing suffers- my Dad suggested I try liver cleansing diet as Vit A is stored in the liver being a fat-soluable vitamin. Thought would give it a go- can't hurt.
After reading up on the Liver Cleansing Diet (FYI By Sandra Cabot) and for the last 6 days living off water, heaps of veges/fruit (excl those with high Vit A as can't see those helping), wholegrains incl homemade wholemeal bread, LSA (Linseed/Sunflower/Alomonds ground up) sprinkled on morning toast and evening fruit sald, homemade vege soups, chicken and fish etc I have already seen a noticeable improvement to my flushing. Every morning over the last 3+ months post-Accutane i'd wake up with flushed burning cheeks, and 6 days post starting the liver cleanse I'm only half as flushed when I wake up as I used to be and my skin is definitley less dry. I haven't followed the book's exact advice re what to eat in what week, but have followed all the rules re what foods to avoid and what foods cleanse the liver.
I'm going to see my GP doc tomorrow and discuss whether my liver is potentially damaged from taking the med. Maybe this could help a few of you out there if it's seemingly helping me?? I know some people, like me will try anything to get rid of this flushing issue.
Damn this shit is still ruining my life 7months past accutane. And now its gettn hotter outside which means, hotter in stores, home and schools. What the fuck did I do 2 deserve this. fuck
And since I almost haven't been 2 any classes because of this, i am flunking. And everyone just thinks i am a lazy fucker.
Havent told my parents about it either. How could they understand?
Have any of you tried laser or IPL or something like that? After what I have read that might be something that can help if it doesnt resolve by itself.
Damn this shit is still ruining my life 7months past accutane. And now its gettn hotter outside which means, hotter in stores, home and schools. What the fuck did I do 2 deserve this. fuck
And since I almost haven't been 2 any classes because of this, i am flunking. And everyone just thinks i am a lazy fucker.
Havent told my parents about it either. How could they understand?
Have any of you tried laser or IPL or something like that? After what I have read that might be something that can help if it doesnt resolve by itself.
You should try not to let it control your life. In my case I developed this after my sophomore year of college and I graduated last year. It obviously decreased my overall college experience, but I'm really proud of the fact that I didn't let it stop me from finishing school. Generally speaking you should try to get morning classes (especially 8-10) as this is the time when I found buildings to be the most bearable. I would also recommend freezing water bottles to take with you as this can help somewhat. I also found sitting in the back of classes made me feel more comfortable as well. I think that you would regret taking time off from school years from now.
You should tell your parents so they know whats going on with you. At the least it will give them a better understanding of you. I'm sure that your parents love you and will want to support you, even though they won't fully understand your problem. I know that its tough to talk about and I didn't tell my parents for a long time either, but I thought that they deserved to know. I haven't told anyone else though because, frankly, its not something I really enjoy talking about haha.
As far as lasers go it seems to be more miss than hit. Our accutane induced flushing doesn't seem to react very well to it, but it possibly could help. If you did decide to do go ahead with lasers make sure to get a test patch done to make sure you don't have a bad reaction to it. Sorry I can't be more helpful...
Damn this shit is still ruining my life 7months past accutane. And now its gettn hotter outside which means, hotter in stores, home and schools. What the fuck did I do 2 deserve this. fuck
And since I almost haven't been 2 any classes because of this, i am flunking. And everyone just thinks i am a lazy fucker.
Havent told my parents about it either. How could they understand?
Have any of you tried laser or IPL or something like that? After what I have read that might be something that can help if it doesnt resolve by itself.
Hi there 'A New Start'
Totally agree with JT.
Would recommend talking to your family and letting them know what's happening; mine have been very supportive, listening (must be sick of me lol), and keeping the windows and doors open when it gets too hot for me inside the house etc (even if they're feeling cold). Air-con on full blast in whomever's car we were travelling in.
My GP has recently got me to take VIT A blood test but it takes 3 weeks for results to come back. If it shows Vit A toxicity/levels too high (due to Accutane). He did agree that my flushing and 'overheating' definitely 'has to be' related to Accutane (Isotane in NZ).
I found I was super, super photo-sensitive and any summer sun (even just 4-5 minutes) would bring on increased levels of flushing/burning. Hats were compulsary for me in summer.
Hope this info helps a little
Shantelle
I'd be suprised if your Vit A levels come back high. Once Accutane has done it's damage it is done, there's no turning back. On another note have you decided to try the doxy first?
Yeah i'm not sure what to expect really re Vit A levels. Will have to wait and see what results show end of next week.
Meanwhile, my Liver ALT blood results have come back already, and showed raised ALT levels beyond the normal range (ALT blood test is typically used to detect liver injury). I'm going to discuss/investigate this further with the GP once the Vit A result comes in.
Re 1x 50mg Doxycline daily- it'll be 4 weeks into treatment at end of this week, and Derm said it takes 6 weeks for anti-inflammatory effects to kick-in. Hopeful, but will have to wait and see. Cross-fingers this works )
just curious are there any other gay guys out there suffering from post-accutane stuff?
if so, PM me. would be nice to talk to another one.
anyway. ive been on plaquenil for one month now and I am so far pretty disappointed as it has not significantly helped my flushing.
there are times when i feel like it is helping a little. but today i went to the gym and tried to exercise and I had a HUGGGGEEEEE flushing episode.
i started out on 400 mg a day and have mostly taken that dose. however last week i went on vacation and mostly just took 200 mg per day during that tiem.
yeah, i dunno, it has mostly just disappointed me. it does make me feel alittle dizzy at times. and i sort of feel like it makes my dry mouth even worse. HOWEVER, i will say I feel like I've noticed a subtle improvement in my joints.
just curious are there any other gay guys out there suffering from post-accutane stuff?
if so, PM me. would be nice to talk to another one.
anyway. ive been on plaquenil for one month now and I am so far pretty disappointed as it has not significantly helped my flushing.
there are times when i feel like it is helping a little. but today i went to the gym and tried to exercise and I had a HUGGGGEEEEE flushing episode.
i started out on 400 mg a day and have mostly taken that dose. however last week i went on vacation and mostly just took 200 mg per day during that tiem.
yeah, i dunno, it has mostly just disappointed me. it does make me feel alittle dizzy at times. and i sort of feel like it makes my dry mouth even worse. HOWEVER, i will say I feel like I've noticed a subtle improvement in my joints.
How long did your accutane-periode last, and how long have you been off it?
Shantelle I saw your post in the Negative Accutane Experiences. As I could read you are only 3 moths post stopping accutane, and thats not really a long time. For people with normal accutane side effects like redness it can take up to 6months and maybe a year before your skin is recovered. For us who, obviously, suffered with severe side-effects there are still lots of hope of a recovery, it just takes A LOT of time. Diagnosing you with Rosacea after 3months seems way to drastic, and your derm really doesnt know lots about accutane. Maybe thats why all the meds ment for Rosacea your trying isnt giving any results. The fact that your derm doesn't think all this is related to accutane also says a great deal about his competence on accutane side-effects.
I know how you feel. I think about the flushing every minute, every hour, every day, BUT I have been in touch with several people who have recovered from this. Common for all of them is that it takes time. Not 3months, but maybe eight, twelve or sixteen. It is hard and its unfair that this happened to us, BUT there are still hope, lots of hope, remember that. I just need to, cause a life like this isnt an option.
just curious are there any other gay guys out there suffering from post-accutane stuff?
if so, PM me. would be nice to talk to another one.
anyway. ive been on plaquenil for one month now and I am so far pretty disappointed as it has not significantly helped my flushing.
there are times when i feel like it is helping a little. but today i went to the gym and tried to exercise and I had a HUGGGGEEEEE flushing episode.
i started out on 400 mg a day and have mostly taken that dose. however last week i went on vacation and mostly just took 200 mg per day during that tiem.
yeah, i dunno, it has mostly just disappointed me. it does make me feel alittle dizzy at times. and i sort of feel like it makes my dry mouth even worse. HOWEVER, i will say I feel like I've noticed a subtle improvement in my joints.
How long did your accutane-periode last, and how long have you been off it?
Shantelle I saw your post in the Negative Accutane Experiences. As I could read you are only 3 moths post stopping accutane, and thats not really a long time. For people with normal accutane side effects like redness it can take up to 6months and maybe a year before your skin is recovered. For us who, obviously, suffered with severe side-effects there are still lots of hope of a recovery, it just takes A LOT of time. Diagnosing you with Rosacea after 3months seems way to drastic, and your derm really doesnt know lots about accutane. Maybe thats why all the meds ment for Rosacea your trying isnt giving any results. The fact that your derm doesn't think all this is related to accutane also says a great deal about his competence on accutane side-effects.
I know how you feel. I think about the flushing every minute, every hour, every day, BUT I have been in touch with several people who have recovered from this. Common for all of them is that it takes time. Not 3months, but maybe eight, twelve or sixteen. It is hard and its unfair that this happened to us, BUT there are still hope, lots of hope, remember that. I just need to, cause a life like this isnt an option.
i took accutane 6 years ago in 2004. i took it for about 4-5 months.
An it hasn't improved? ok. so the plaquenil MIGHT be helping. i am currently in bed TOASTY under my covers. and i usually get flushing when i do this. but right now i dont seem to have much flushing.
but of course yesterday i had that huge episode at the gym, but maybe that is an extreme scenario.
so who knows.
oh, and i had my eye exam today. and the eye doctor was pretty firm in saying that plaquenil at this dose (2x a day at 200mg so 400 mg per day) should be safe. aand he's totally like random eye doctor with no affiliation with my derm.
hey does anybody here remember/know the name/email of the inventor of accutane? i remember someone in this thread mentioning that they were actually being treated by him. i think he was in new jersey? he kept telling people to like get their human growth horomone levels checked or somethign? i forget.
Just wanted to come back on here and update. I think it's a very healthy thing to swap stories..
My flushing was A LOT worse in the winter with heaters lurking around ever corner but I am definitely still feeling the effects (I am about 7 months in on the whole flushing thing). Since I am living away from home I can't go to a derm (im in asia) so I have had to try and find any trick that would help. I don't have bad flushing now but now my cheeks are more or less permanently purpley-pink... which blows. I am now however so overly conscious of it that I blush (because of emotion/ embarrassment) quite frequently.
Here are some things I do now to try and ease my situation:
- Constrant water
- try not to touch my face
- seek air conditioning whenever possible
- Get lots of sleep ( I find its worse when I'm tired )
- no soup/ coffee/ spicy food (obvious)
- Vaseline face mask every night before bed
- LOTS of fish oil
- I find its worse on an empty stomach so I try to always have something in there
- I barely wash my face. Any oil is good oil ( i think )
- Sweat seems to help. A run in the wind is sometimes a great relief.
- Consealer... this ones a bit "top secret" although I'm sure people notice. I use Avene make-up coverup for sensitive skin over an SPF moisturizer in the morning. It makes my skin feel extra "numb" and "fussy", like I'm about to get flush... but when I look in the mirror everything looks calm. Plus it helps with confidence. Which brings me to my last point..
- TRY YOUR BEST NOT TO THINK ABOUT IT! For some reason our bodies as Human beings have a connection between our faces and our brains (i.e. blushing when embarrased). Personally, I think this is a flaw in design ( who needs it ) but it's there none the less. I find I am less likely to flush if I am wrapped up in a movie because I'm not thinking about my appearance whatso ever. Sometimes I will just stop, take a deep breath, let my face relax and try to stand with confidence. When I think about it... its silly to flush because im embarrassed about what other people are thinking. If I was to see someone walking around with confidence and a red face I would be more likely to see past the flushing then I would someone looking clearly nervous. This one is a difficult feat but possible none the less.
So ya I'f your like me and can't get to a derm or find that their advice is bull-crap, maybe some of these tips will help a bit. If anyone has more suggestions please post!
I have an over the phone derm appt June 14 so I hope to get some help then.
Hi all
Interesting info...
Update on Mepacrine... looks to have helped another person recently with flushing.
http://rosaceagroup.org/The_Rosacea_Forum/...ead.php?t=21347
A past poster in this thread, Lammar has also mentioned on rosaceagroup.org that Mepacrine helped with rhinophyma (Rosacea affecting the nose)
http://rosaceagroup.org/The_Rosacea_Forum/...6703&page=2
Halfpipe101 - Are you still having success with Mepacrine as per your post on rosaceagroup.org website? or have you found better success with Plaquenil?? or both??
Still on Doxy - this is week 5. Apparently anti-inflammatory effects should kick-in from week 6. Might keep mepacrine in mind though.