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DAY 25 of Accutane Journey

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(@cravingclarity)

Posted : 02/18/2016 6:44 am

Hi guys!
My names Steph. I have been dealing with acne for 8 years now. I remember when it started, I always had oily skin growing up but when I hit freshman year of highschool I started seeing a change in my skin (and not a good one). I really can't count the amount of times that I have gone to my dermatologist... they have a file for me that is as thick as a dictionary. It got so bad my junior year and I was so depressed that I refused to go to school, I couldn't stand people looking at my skin and even a guy made a remark once saying "it looks like you have herpes" when I had a breakout around my jawline. I have had so many cortisone shots that I have honestly spent a small fortune on them... and whoever has had those shots usually knows how it feels to get an atrophy from them. I didn't even graduate highschool because I was so embarrassed of my skin that I did my senior year online. My skin is weird tho, it is very unpredictable. In the summer my skin is mostly clear but bam, fall and winter hit and I have the hormonal cystic acne covering my chin. I think I am more self-conscious then a lot of other people because when I break out bad I go into a depression, it sounds silly to some but I can't help it I don't want to go out and socialize. I don't remember a time where I left my house with no make up. If I am not breaking out in cystic acne then I still always have a lot of clogged pores, blackheads, and red marks/ some scars left behind. I always dreamed of the day that I could go camping or on a trip and I wouldn't have to worry about my skin and makeup and trying to hide the fact that I needed to apply foundation every morning. I describe it by finally feeling FREE. I don't have to plan around my skin, or worry about vacations and whether or not I will have a bad breakout. It has taken a toll on relationships, and obviously my self-confidence, and my emotional well-being. I envy the friends I have that go out drinking the night before and don't even have to worry about taking their make-up off before sleep, and then waking up and still having flawless skin. I have honestly been on so many treatments that I got to the point of hopelessness. Every antibiotic they give out for acne, I have tried it, proactiv, any topical (epiduo, aczone, retnoids, differin), have tried chemical peels, microdebrasion, was on spirolactone for 4 years. Went on birth control at 15 solely to try to help my acne and have been on it ever since (I am now 22). I hate taking medications, and have a mom that's taught me holistic ways of living. I have even tried to change my diet for acne as well but it's hormonal and even tho spirolactone helped for awhile I saw it creeping back. I want to get off birth control but am too scared. So this leads me to one of the hardest decisions I have had to  make so far in life. I have almost went on accutane 3 times in the past but would chicken out right before starting the course. Last semester I broke out so bad on my chin that even the dermatologist was concerned and suggested accutane, not because of the severity but when I do breakout the cysts are massive and he knows that I have tried everything. I finally gave in... I am so sick of having to deal with my skin. I have been on amnesteem 40mg for 25 days now. My doctor said he is going to bump me up to 80mg starting in month 3 (6 month course). I have done so much research on this drug throughout the years that I know the horror stories and I know how much it has transformed faces covered in acne all over to having porcelain skin. My decision was based of thinking that we only have one life to live and I have spent 7 years letting my acne control me and I am ready to be able to feel confident and not have to worry when my next big breakout of cysts will be. I have had some side effects tho... I am near the end (I think) of my initial breakout...Had 7 cysts come but go fairly quickly. Got a lot of pimples near my mouth (don't know if that's a common thing). The amount of blackheads coming to the surface of my skin is insane and gross. It feels rough because it's trying to pull them out and they are more black in color. I have dry skin, especially where the pimples are, cracked lips (aquaphor is my best friend), have seen a change in my vision (normally have excellent vision),things are quite blurry at times, itchy patches of skin, very tired and low energy, back pains, some tingling sensations in my fingers, and do see a bit of change in my mood (more sad and irritable than usual). I don't have to use 20 oily absorption pads daily anymore! And, I am seeing gradual changes in my skin. I still have 5 months left so I am hoping the side effects stay at bay because this really will help my quality of life. Since I have been on it I haven't been social much (I have only been out once with friends), but that also could be because I have so many classes this semester and I didn't really want to see anyone when I had so many cysts on my face. Hoping to help others with my experience and get feedback/advice from others. It would be nice to have people to talk to that have been there and know what I am going through. Thanks everyone :) 

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(@bigappleedubs)

Posted : 02/18/2016 11:46 am

Hey CravingClarity!

Just wanted to say that I've also just started my accutane journey (I'm on day 10) and I can relate to so much of what you've said. I've had cystic acne, to varying degrees since I was 16, and I'm now 34...I can't believe I've waited this long to try accutane (yes, I can...I was scared of it), but I've realized how much my skin has affected my mood and my personality. Like you, I can't wait to be able to not think about my skin almost 24/7, and I can't wait to be able to look people in the eye and not worry about what they're thinking about my skin. Spiro helped me a lot, too, and I was on it for 8 years, but eventually it stopped working, and when I went off, my cysts came back with a vengance. I also find that when I'm stressed my skin gets terrible, and last year I had a very, very stressful, emotional year, and my skin blowing up only made things that much worse. So you are not alone, and I'll be following your journey!

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(@cravingclarity)

Posted : 02/21/2016 5:25 am

On February 18, 2016 at 10:46 AM, bigappleedubs said:

Hey CravingClarity!

Just wanted to say that I've also just started my accutane journey (I'm on day 10) and I can relate to so much of what you've said. I've had cystic acne, to varying degrees since I was 16, and I'm now 34...I can't believe I've waited this long to try accutane (yes, I can...I was scared of it), but I've realized how much my skin has affected my mood and my personality. Like you, I can't wait to be able to not think about my skin almost 24/7, and I can't wait to be able to look people in the eye and not worry about what they're thinking about my skin. Spiro helped me a lot, too, and I was on it for 8 years, but eventually it stopped working, and when I went off, my cysts came back with a vengance. I also find that when I'm stressed my skin gets terrible, and last year I had a very, very stressful, emotional year, and my skin blowing up only made things that much worse. So you are not alone, and I'll be following your journey!

Hey bigappleedubs!
Thanks for the response! It's nice to hear that I'm not alone in this journey. My family thinks I'm crazy for going on this medicine that has such a bad rep. But, people that don't deal with bad breakouts really don't understand the emotional toll it takes on someone. Your skin sounds very much like mine. During finals last semester I had a massive breakout (stress and hormone related) that one of the cystic pimples was bigger than a pencil eraser. Please message me whenever you wanna talk or compare notes lol. I'm so excited for us both! I truly do think accutane is not as bad as a lot of people say. Every medication has side effects... And if I wasn't on accutane than I would be on a antibiotic that isn't good for long term use also. Are you having any side effects or initial breakout so far? Hope you're having a good weekend!

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(@cravingclarity)

Posted : 02/22/2016 5:04 am

Day 29: Just when you think the initial breakout is subsiding... you wake up to three inflamed pimples (all by eachother I might add). I went to my monthly dermatologist appointment on Friday. I asked him when I the "purging" with be done with and he said (I kind of already knew just wanted him to make me feel better lol) that it is different for everyone. But, he said that on average the patients he sees turn the corner around month 3. i suck at being patient and that's exactly what I need to be while on this medication! Does anyone else feel extremely tired on accutane? I honestly slept a total of 14 hours yesterday and now my sleeping schedule is all messed up.

I have those pimples right now that are itchy (they are trying to come to a head) and I am pretty uncomfortable with that combined with the dryness. I have never seen so many blackheads on my skin before, they are all wanting to come out at once. I have always had blackheads but they never felt rough in texture, and now they do and are very much more noticeable than before accutane... I also am getting in places I usually didn't. So weird to see your skin day by day pushing everything out that was just sitting in there. I have to get my bloodwork done tomorrow and start my second month on tuesday! Only 5 more months to go! Seeems forever but hoping it flies by.

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