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kerrylee

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Everything posted by kerrylee

  1. Did that treatment keep them away? I've developedthese all over my face and they are multiplying. I'm so sad.
  2. I can 100% tell you yes on the milk thing. It's a big trigger! I've been suffering with Sebaceous Hyperplasia so bad right now. I'm so sad. Did yours come back off accutane?
  3. I'm suffering so bad with this. Myou self esteem is in the tolit. I heard when you go off the accurate it comes back. Is this true?
  4. Hi Chris...how did the Dapsone work?
  5. Thanks! I hope it does. And yes, I started him on zinc today. I'm frustrated because I called the doctor to tell him what is happening with his chest and back, and he says its not likely to be PF and to continue the meds. I know it has to be. This is a roller coaster!!!
  6. Im so over this...I read this whole topic. I have a 17 year old son who has been dealing with chronic scalp folliculitis for 2 years. On oral antibiotics he is completely clear, when stopped it comes back within days. For the first time 2 weeks ago he was put on Doxycyline. After 2 weeks he developed hundreds of pin head size pustuals on chest, shoulders, upper stomache and back. I know this is PF. He has had this same thing come and go on his forehead only a few times. All the while treating sc
  7. Im so over this...I read this whole topic. I have a 17 year old son who has been dealing with chronic scalp folliculitis for 2 years. On oral antibiotics he is completely clear, when stopped it comes back within days. For the first time 2 weeks ago he was put on Doxycyline. After 2 weeks he developed hundreds of pin head size pustuals on chest, shoulders, upper stomache and back. I know this is PF. He has had this same thing come and go on his forehead only a few times. All the while treating sc
  8. Hi there! Just wanted to check how your folliculitis was being handled. Im in desparate need of help. My almost 17 year old has been dealing with this for 1 1/2 years. Hes been through so much. I have spent countless hours up all night trying to find something. Have tried everything. Please if you can help me I would appriciate it. Thanks, Kerry
  9. Viscous, My 16 year old son has been dealing with this almost 2 years now. He is in the worst shape now and in a lot of pain. Hundreds of pustular pimples on his scalp. We are seeing an Infectious Disease specialist tomorrow. The top dog here in Florida. If they cant figure it out I wouldny know what to do. Im very scared, Thats my baby and he hurts so bad. Im worried it came from an Accutane treatment he did a year before this started. Who knows. Ill keep you posted and good luck to you, Ker
  10. Does anyone out there have severe scalp acne? Its called folliculitis. Pimples on head, pustuals and pain. My son has this for almost a year and a half now. So tired to find a cure. Going to infectious disease in 2 weeks. I believe it was caused by his accutane course. Its so awful for him. Anyone else? Kerry
  11. Really? Thaat is great to know!!! Thanks
  12. I have never heard of that. I dont believe that to be true just because My 16 year old son has two friends that just went on it a few weeks ago. My son was on it for 8 months. IT WAS GREAT! Everything has side effects. My sons acne was bad enough that he had emotional side effects. It was very hard for me to put him on it. He is a changed kid. he experienced stomache pains in the beginning that went away. Dry lips..get Aquaphore NOW. Best stuff ever! He had joint pain throughout that went away
  13. Hi...I need some info and this seems to be the best place I have gotten help in the last year and a half!! Long story short. My 16 year old had bad acne. Pustyal and cystic. Tried everything. went on accutane. been clear for a year and a few months. occasional small breakouts. Took 8 months to clear. Before, during and after accutane his breakouts have been linked to milk. He used to drink a ton of it.We experimented with this 3 times. It's not dairy products...just milk (weird I know). If he e
  14. I didn't get that last message until after Iwentt to thhe store. I bought Head and shoulders with Selinium. Thanks for the recommendation. My biggest fear and question for everyone is: Will his hair fall out with PF. Pleease tell me no.....
  15. Thank you max for all that! They did do a biopsy and it was the Pityrosporum folliculitis. I was up all night with no sleep reading about it. I have to say I am so sad for my son. I called the dermatologist back. I dont think she is being straight about this. She called me today and said his blood work was ok and she had another treatment she wanted to talk to me about. He goes in Tuesday. Also, I made an appointment with Infectious Disease for him today. I wanted a second opinion. I know I soun
  16. Hi everyone. I have read 22 pages about everyones folliculitis, looking for someone who would mention having the same symptoms as my 16 year old son. He has PF. The derm sent a culture out and had it confirmed. The majority of it is in his scalp! No one has this. Little pustuals all over his head! Now there have been some moving to his forehead lately. Is this uncommon? He was on accutane for 8 months about a year ago.Been completely clear. NOW THIS.He is so upset. Im very upset and not sleeping
  17. Thank you for replying! This truely SUCKS for him! He is only 16. Can he really losehis hair!! I am freakin out. Accutane cleared him completly...NOW THIS. Why treat it if it's going to come back? I'm so confussed. It's spread a lot. He did Nizoral oral tablets and shampoo. It went awaybut then just came back. Please tell me it's not life long? Kerry-SAD
  18. Hi there! My son has been off accutane for about 1 year now. So far so good! He was on it 8 months total. About five months ago he started getting pustuals all over his scalp. They look just like a pimple. You can pop them. They gather at first on his lower neck in his hair and spread all over. He has been on medication five times. They clear up but the minute he stops the medicine, they return and double! I have been to the derm over and over. The last time I went she took a biopsy and sent it
  19. Hey there! Good to here your starting! My son is 15 also. He did 8 months of accutane and is perfectly clear now. It was a long ride but he didnt miss a dose and it was all worth it! It will become very frustrating. Dry lips, initial breakout, joint pain etc..... Those are the only side effects my son had. After he was off a month they went away. Most people take around 6 months. He had cystic acne and pustuals so he took a little longer. You cant even tell he had acne before. I truely never tho
  20. you will see a huge improvement. The hardest thing is being patient. Dont be discouraged if it takes longer then others. We thought his would never clear. He is 15 and was on it for eight months on 60 mg a day. He is 100 percent clear! Good luck an you will see a huge improvement. The hardest thing is being patient. Dont be discouraged if it takes longer then others. We thought his would never clear. He is 15 and was on it for eight months on 60 mg a day. He is 100 percent clear! Good luck and
  21. HeNick, I sent you a message and answered your questions. Hope it helped. I forgot to say...Stay out of the sun. I had my son put sunblock on every morning before he left. We live in Florida and they would get worse and stay so much longer when we were at the beach or water parks. I was so glad when school started and he was indoors. What a difference in how much faster they faded.
  22. I understand everyones reactions to milk may vary, but I cannot express enough how bad it was for my son. We learned this by testing it and observation. My son is 15 and would get bad acne and cysts after consuming so much milk. He ate cereal like mad, and NO it was not the sugar for those ready to argue. He gets to much sugar..yeah...he's a teen. He is totally clear now after 8 months of accutane. Even on accutane he would get cysts even at the end if he had milk. Each time we took it out of hi
  23. Hi Nick, I have a son named Nick too...Just had to pu that in there. My other son is 15, he was on accutane fr eight months. During that time I had him start on 1 zinc pill, 2 vit.E pills and 1 vit.c Ester. I believe it helped a lot. He is post accutane for little over three months now and I still have him take them. His red marks have faded a lot since stopping accutane. There are several that are remaining. I guess time helps. Taking these supplements cant hurt you so give it a shot. It take
  24. Actually fballer twelve....I cant believe you called me stupid either. Besides if you could read it's a he not a she. Thanks Rebecca! He must be a disrespectful teen. Please dont give up on this site because of a few kids. I got a lot of help here. The sun truely does caue the red marks to worsen. My son is on the pale side right now but well worth it. His marks are almost gone. Let those who dont want to listin do it the hard way. Their loss. I'm just a mom trying to help and I'm far from stupi
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