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Clayman9

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About Clayman9

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  1. Hey everyone, stopping back in after quite some time. Last year was rough but things are finally starting to look better. I'm mainly making this post to explain many of the things I have tried, what worked and what didn't, what I went through and where I'm at now. I hope many of you can find some comfort in this post or at least find it helpful. Now I'm sure fulminant acne is something many of you haven't experienced which I am truly grateful for, my diagnosis came late due to the condition being rare and many misdiagnosis. I was afflicted with hemorrhagic sores, open lesions, cysts the size of half dollars, literal holes eaten into my skin, bruises across my back and chest, bone cysts, extreme fatigue, headaches, minor fever and joint damage. Fun list of things I suppose! This mess begin December of last year after suffering from normal cystic acne. It sounds silly but this caused me to be ill enough to miss an entire semester of high school, which was not an easy task. Mononucleosis, MRSA and a few other things were all possible diagnosis but treatment was not effective. Accutane was attempted but I attributed many of my symptoms to the drug and stopped treatment ( which I now believe was wrong but I dont regret my choice ). 2000mg of anti biotics were taken daily to prevent infection and treat possible staph along with bleach baths (as prescribed by my infectious disease specialist). I believe remission began around May its hard to keep track of dates. It took a lot of time to get where I am now and its still no where near perfect, Im not sure if I can attribute my healing with the medication or just time. What I have found in all honesty, less is more. I rarely wash my face unless its desperately needed using a very mild cleanser, exercise and nutrition was my savior and continues to be. I still have pretty moderate cystic acne which I pray will continue to fade with time. The only disappointing thing is the massive scars I have, they arent even similar to acne scars. Large bundles of scar tissue have eaten up much of my face and back. Onto the positives. I truly with all my heart want anyone suffering from severe acne or even moderate acne to understand people with actual heart will not look at you any different. The experiences I've been through lately have shaped who I am and really opened me up to those I know care. Finding the right treatment takes time but I urge many of you to make lifestyle changes such as diet and exercise, knowing your keeping your body healthy is a great stress relieve as well. I personally would never recommend any extreme diets just try and cut out overly processed foods (keep them to a minimum), drink water, coffee and tea have no effect on my skin but soda is terrible and keep from obsessively cleansing your skin. TLDR; time really is a cure all, along with lifestyle changes. View these times as a learning experience. I'd really like this thread to be a discussion so it'd be greatly appreciated if anyone shared there similar experiences or thoughts ! Also pics of my condition after some healing *they were much worse believe it or not *
  2. Clayman9

    Acne Fulminans Diagnosis

    Update with photos, I apologize for the necro http://m.imgur.com/a/xmJbZ
  3. Warning long post. Hey everyone, been awhile since I last posted here. I believe the last time I posted was when I was starting Accutane and the symptoms that came with that. Anyways, the good news is my "acne" is currently in remission of sorts. Bad news is i never caught what I was really dealing with until it was hear the tail end. A few months back when I started Accutane I was suffering from severe cystic acne. Upon starting Accutane and a bit before I was suffering from extreme fatigue, joint pain, bone pain, headaches and fevers on and off. Initially thinking this was Accutane side effects I took myself off the drug and went to the doctor who diagnosed me with mononucleosis despite the blood test being negative. Fast forward. My acne had exploded. Massive pustules on my cheeks and holes were being eaten into my shoulders. Covered in hemorrhagic blisters and cysts as well. Obviously worrisome so I schedule an appointment with an Infectious disease doctor (after being prescribed bactrim), she thinks I may have strep and staph, so she cultures the spots. Now im taking 2000mg of antibiotics daily. Clindamycin and doxycycline. Cultures come back negative. No mono no staph. She says it may have been the bactrim messing with the cultures and leaves me on the high dose of anti biotics for staph. Fast forward a bit again. Things are clearing up on my face, the half dollar size whole in my shoulder is shrinking slowly but other than that my fatigue and other symptoms are still here. Along with my cysts. Keep in mind I've been out of school a LOT due to this mystery condition that keeps being labeled acne. My Infectious disease doctor sets up an appointment with the best dermatologist in mid MO and bumps me up on the list due to urgency. I go in not expecting much but after talking for awhile and him looking at my labs I have been diagnosed with Acne Fulminans. Apparently there's only been around 100 cases ever recorded. So no one had thought of it I assume. My immune system was basically on overdrive attacking itself for half a year, damaging my muscles and bones and causing massive craters and scars the size of quarters all over my back and face. I'm not sure if anyone on this forum has dealt with this auto immune disorder but I found it somewhat interesting despite the fact it ruined a year of my life. Sorry for the rant just though Id put my story out there. I may be posting some pics of the massive sores soon.
  4. Clayman9

    I Need Help

    Bump
  5. Clayman9

    I Need Help

    Hey guys, it's been awhile since I posted. Ive been on Accutane but had to take a break when I got sick with mono. I've been back on it now for awhile but it's not healing up certain spots. (I'll explain) it started with 2 spots below my neck that completely swelled up and began draining pus. One side has healed, the other has not. These spots are now on my back as well. They are so painful, everytime I move it's like a hot knife digging into me. They break open in the shower and leave big deep holes. Not comparable to cysts I've had. I went to the doc and showed them these sores on my neck and back, they seemed to think it may be an acne flare up but gave me bactrim incase it was staph, 5 days passed and they called asking how they were doing. They haven't changed at all, some spots are even worse... They call me back in, take a look and say it's advanced severe Acne? For real. I'll try to upload pictures of this but in case I don't. They are nasty sores not cysts, they drain and crust over constantly and hurt like hell. They refuse to heal. Any ideas?
  6. Clayman9

    Aquaphor Miracle?

    Yo guys. Since starting Accutane my skin has improved pretty drastically so far. I've only had 2 terrible cysts on both sides of my jawline. Filled to the brim with pus. They eventually drained but wouldn't heal and kept filling up. We'll I've read good things about aquaphor for dry skin and I must say it does work for that. Although I was skeptical about putting it on my face since it's spoofed up Vaseline. In the end I was desperate, the jar said healing ointment so I slathered it on both spots (thick) and dab it on some other minor spots as well. I went to sleep like normal and woke up with every single spot almost completely healed. No soreness, itchiness or flakyness to be seen. This is amazing stuff and I highly recommend trying it on spots that are stubborn and refuse to heal. Anyone else have experiences with aquaphor?
  7. Clayman9

    Feel like crap

    Update. Doc says I have mono. Rip me
  8. Clayman9

    Feel like crap

    Was told to stop Accutane until I can talk to my derm. Fatigue to an extent where I have to force myself to keep my eyes open. Headaches behind my eyes come and go. Stiff joints, neck and back are making me feel like an old man. So far my acne has begun to clear but my school life is being completely destroyed. :(
  9. I'd really like some advice guys. I'm one full month into Accutane. I feel like ass. I'm completely exhausted and irritable. My joints are stiff. Back is achy. Neck is stiff. Dry skin obviously. Appetite changes, can hardly force myself to Eat sometimes. So since I'm already skinny I'm losing weight. Constant pressure behind eyes and around sinuses sometimes leading to terrible headaches. It's hard to make myself go to school like this. I have no energy. I know I need to make myself but it's hard to force myself into a situation where I feel like garbage. Should I quit. It makes me sad to think I might need to stop. Gosh this sucks.
  10. Yo everyone. I know I've been posting a lot lately! But now that I know I have access to such an amazing group of people the questions just keep coming to me. I'm on my 3rd week of accutane and no longer getting any new spots *knock on wood* but the ones I had are pretty much still there or or worse than ever haha. It seems everything is scabbing up a lot more lately. A large cyst I had that now has white heads all over it just gets more and more sore. My skins been very dry as well even with lotion. Main questions. How can I speed up recovery of open spots like the cyst I mentioned? What is a GREAT lotion to use while on accutane? Also, should I avoid cleansing everyday? ALSO THE SPOTS THAT ARE BROKEN OUT ITCH SO BAD
  11. Clayman9

    Acne drainage :(

    Any help?
  12. Clayman9

    Acne drainage :(

    Hey guys it's me again. This one is going go be a little gross but I'm sure you guys are used to it. I've been on Accutane for nearly 3 weeks and it has caused my acne to scab up really bad. I've been having a bit of a problem at night. It appears my acne is draining in my sleep. Perhaps moving around on my pillow is causing them to break open but it's nasty. It is leaving stains all over my god dang pillow case. Is there anyway to prevent this? It's really rather repulsive even to me, waking up with acne gunk all over the thing u sleep on.
  13. Clayman9

    Help! Masturbation-Acne problem!

    It's not always an addiction though. Just because you like or enjoy something doesn't mean that our have to do it all the time. Not all people that drink are alcoholics. Not everyone that enjoys a cup of coffee has to have 5 cups a day. I like soda so I have one every once in awhile, I'm not addicted. I have nearly cut it out of my diet completely with no problems.
  14. Clayman9

    Help! Masturbation-Acne problem!

    There literally no difference when it comes to masturbating or sex. They are both causing your body to do the same thing. Now doing this obsessively I can understand may be a problem. But every once in awhile when needed I see no problem with.
  15. You're a very angry person that seems to think you know more than everyone here and everyone everywhere else. Why should anyone even try to help you or give their opinion if you're just going to crap all over it? But I guess you know more, a LOT more.
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